Jason Matthew Stuart

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~Mom's awesome 13 year old!!~

Welcome to Jason's Web Page. Jason is a strong & brave little soldier who was diagnosed with ALL (Acute Lymphocytic Leukemia) on May 9th, 2003 at age 3 years, 4 months. We wanted to share his story with famlily, friends and anyone who is interested.

IN THE BEGINNING.....Jason Matthew Stuart was born on January 18th, 2000, weighing 9.0 lbs with a head full of black curly hair.We brought him home in a snow storm wearing little navy blue snow boots! He is full of energy and always on the go! He has a awesome, COOL brother, James 16, and an wonderful, caring, sister Megan,13 years old





HOW WE FOUND OUT~ He was sick for 2 weeks with toncilitis and 2 given antibiotics, After a week of not getting any better, just laying around, weak and not eating or drinking I took him back to his doctor. He started having stomache pain on the way to the doctor. Once there his DR. did a quick check and sent us to the Local ER. At the ER I told my story over and over. Jason was gragging his belly and crying out in pain. He was just laying there looking so sick. They drew blood (twice)and gave him IV fluid. After a couple hours (he slept) he perked up and was talking and looking better! Then the doctor came in with news that it was "malignancy in the blood" I knew that was Leukemia. We were in total denial and it was all sorta of fog after that.



ONCE AT JOHN"S HOPKINS ER~ Jason was feeling much better so much so that he was running a monster truck up and down the stretcher! We were greeted by a whole team of wonderful doctors, one in particular, who will always hold a special place in my heart,(Dr. V) for he was so calm, comforting, and reassuring that our precious little baby was going to be OK and he eased all our fears. From that point on, I felt (and continue to feel) that we were at the best place we could be. The diagnosis of Luekemia was confirmed, Type ALL (Acute Lympocytic Leukemia) We were told he was going to have to have a "infusaport" surgically placed in his chest.(It is a permenant line attatched to a blood vessel in which he gets all his blood drawn through and all his IV's and Chemo through.)He was admitted to John's Hopkins Pediatric Oncology Floor 8th floor that night. We also were told his blood count was only 1/3 what it was suppose to be. (I later learned the leukemia cells has pushed a lot of the red cells and platelets out of the blood)On Monday May 12, 2003 he went to the OR for a Bone Marrow, Spinal Tap and a port Placed for him to get chemo through. We spent the first 12 days of the 29 day Induction phase in the hopital. He was given 3 units of blood to get his counts up to an "OK" level and later in the week he had to have platelets. His energy level never gave up, even as sick as he was all we did was play the entire time we were there. Even the doctors were amazed at his engery level!





ALL ABOUT OUR TREATMENTS~ We go to John's Hopkins Children's Oncology Outpatient center (8th floor) for his treatment. I truly love his Medical team and couldn't ask for any better. His total treatment course will be 130 weeks! On November 28, 2005 Jason FINISHED all Chemotherapy, 2 months before his 6th birthday! His port a cath was removed April 11, 2006! Jason's leukemia was put in remmission 28 days afte diagnosis! He was on course POG 9905, standard risk. Now we are down to monthly visits at Johns Hopkins!


~ Treatments are ALL DONE....9 months off Chemo WOO HOO~


ALL ABOUT JASON~ He loves his Rescue Hero men, and is crazy about motorcycles, monstertrucks, dirt bikes, He likes trucks and matchbox cars too. He is in 1st grade at Bainbridge Elementary and goes to Day Care at at Lighthouse Christian Academy before and after school. He likes having books read and watching TV. He is an expert puzzle putter togetherer. He loves Spiderman and anything with spiderman on it! He works in his workbooks a lot too. When the weather is nice, you'll find him outside riding his bikes, playing with friends, riding the go-cart, fishing with Noah or playing at the creek with all the boys in PA. He also loves playing outside at Daddy's in the sand box, on the trampoline or riding his 4-wheeler & street-bike. house. He enjoys playing Tonka trucks on the computer too! He is an all-around busy little boy!





All ABOUT OUR FAMILY~ Mom (me)~ I am a full-time single mother to 3 awesome kids which takes up all of my time and every single bit of my energy! My 2nd job~ I work a full-time job as a nurse at a Nursing Home, which I dearly LOVE. I walk into 35 Great-Grandmothers and Great-Grandfathers to love and care for everyday. Dad~ working hard at Land Scaping business and seeing Jason every other weekend. Jason loves to go to see Daddy and always asks "Is is Friday yet?" James~ Jason's brother is 12 and in 9th grade. He is a cool, funny kid who is always tormenting his brother and sister and driving me crazzzzy. He loves skateboard stuff, computer, riding the dirtbike and TV. He a very good teen and I am proud of him! He is a BIG help to me being the oldest, always helping out when I ask. Megan~ Jason sister is 11 and in 6th grade. She is a loving, caring, emotional, creative, wonderful little girl. She enjoys writing, reading, coloring, and started cheerleading this year, She does aewsome in school, winning 1st place in schhol spelling bee, 3rd in math bee, outstanding acedemic achievement, and a Science award! She is all about style and fashion and always looks her best. She is a beautiful little lady inside and out. We have had a very difficult years since Jason's diagnosis: Jason's cancer, my mothers death, break-up of my family, new job and moving twice and becoming a single MOM. However, we have all made it through and are working on a wonderful future.... I love my family...

~"If God brings you to it, He'll bring you through it"~



A FINAL NOTE~ Jason is such a sweet boy! As his Aunt Joanne says~ I wish we could bottle his love up and spread it all around. He smiles and laughs a lot and is a very happy boy despite all he has to go through! His smile makes my heart light up. He keeps our spirits up and makes this whole Leukemia thing easier to handle. We am truely thankful he is doing so well and We pray for God to watch over him, and keep him strong to fight this leukemia. I tell Jason he's my "Li'l Angel from heaven." And he is....



PLEASE sign our guest book! I really enjoy looking to see who shared my son's story!


***For anyone who wants to keep up on his progress I will be updating the journal regularly

Children should be playing not fighting cancer


Be sure and visit my new ALL friends:

Sammie

Lindsay

Connor

Dianne

Tyler

Lakota

Garrett

Logan

Leah

Kendrie

Julia

Nicky



To JASON:
Love, Daddy, Mommy, James and Megan, Spot



Cancer Kids



The Littlest Soldiers
The medals on our chests
Are portacaths for meds
Helmets won't stay on
Cause no hair is on our heads.

Our weapons of destruction
We take every day
We fight the battle within us
While we struggle on to play.

We fight with honor and courage
No marine could do as well
We are only little children
Living in this hell.

So bring on the medals
The Purple Hearts of Wars
The Gold Cross, The Silver Star
To place upon our scars.

For We are the Children of Cancer
No one has fought so hard
But every day we struggle on
Our LIFE is our reward.

By:
Cheryl Jagannathan (mom to a leukemia survivor)





Jason's Banner made with love by The Heroes Banner Site

Journal

Saturday, February 2, 2013 11:40 AM CST

Been so long since I have updated! Jason is now 13 and off chemo 7 years now! He is a very normal 13 year old. He has been healthy as ever since off chemo, has been sick 0 as I can remember! Jason is very intelligent, active, and creative. He is a real joy of a son.

Read Journal History

Hospital Information:

Patient Room: Home

Johns Hopkins Childrens Center
600 N Wolfe Street
Baltimore, Md 21287
410-614-5055

Links:

E-mail Author: angelnurse722@yahoo.com

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