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Thorell Kids 
Lianna, Reilly and Tim
Santa's Village August 2007
Welcome to our Childrens Web Page. It has been provided to keep people updated about our Family and the disease we continue to fight daily. Mitochondrial Disease affects us all and does so differently in each of us. Please follow our Journey and become a partner in our life!
We are all pencils in the hand of a writing God, who is sending
love letters to the world.
-- Mother Teresa
I know God won't give me anything I can't handle. I just wish He
didn't trust me so much.
-- Mother Teresa
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Thought for the Day:
If God had a refrigerator, your picture would be on it.
If He had a wallet, your photo would be in it.
He sends you flowers every spring.
He sends you a sunrise every morning Face it, friend - He is crazy about you!
God has a history of using the insignificant to accomplish the
impossible.
-- Richard Exley
Journal
Monday, August 25, 2008 10:01 PM CDT Blood pressure is back to low normal for Tim. The Valium worked for the seizure and regulated the blood pressure too. Can't complain!
I had to laugh when Tim asked me last night why I worry about him....I said "gee I have no idea why!" yup he is a guy.
He is having breathing issues now and honestly looks bad. We are not telling him things look bad but he did say tonight that he didnt feel right. Not having seizures anymore that we can tell, but he looks off. And very weak. He is tremoring a lot and is unable to walk much from it.
We sat and talked for a bit...he had his head on my lap and said how much he misses his friend E...I know he does, and told him he just has to keep working hard to stay strong so he can visit him. He needs to go back an do IVIG soon..I always worry when he has to do that because it is hard on his body. He suffers so badly from it. His blood counts fall dangerously low and we worry. But we have to do it in order to keep his infections low....
Kris is lying to us...he is so much sicker than he is admitting...he has lost a ton of weight and looks absolutely horrible. He has an apt with GI soon and we will see what comes next.
Reilly is still not doing well neurologically. I am trying very hard to work with it and doing ok, making some progress, but he really is having tics and fears. poor little guy. He was my smiley guy and always loving..now he is withdrawing....ugh....so trying to work with things.
everyone is asking about my eye and vision...sad to say I still havent gotten back the lower left corner of the eye. Almost like a banana shape of black...but I am able to drive and work with the kids..just more annoying and frustrating. I also have had a migraine the past couple days and those are always a loved thing!! NOT.
The new van is working well....sales tax in mass is a killer but its paid for now, and I am able to drive it. I wont lie and tell you I am ok driving it...I am not really but I am getting better...
there are some days I really am glad I had a stroke back in 2005...I forget feelings so easily and honestly cannot remember the other van because it is totally out of sight and therefor out of mind! I also have forgotten the accident except for the sound of liannas screams. Those I remember.
School starts this week and I am thinking about holding out one more week... we did some stuff today but I will wait a week to jump in. I love homeschooling, and this year will be more fun. love the Jr high level stuff...
well...I am off to go check on tim and hopefully get some sleep...
please remember caringbridge families...pray for them and carry them in your heart....
I will update when things change..
Read Journal History
Hospital Information: Tuft's Medical Center's Floating hospital for children
750 washington Street
Boston Ma 02111
Links: http://www.gktw.org Give Kids the World - Please donate or volunteer!
http://www.mitoaction.org MDAC website
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