SARAH ROSE CARLINO

SCROLL DOWN FOR VIDEO OF SARAH!


SARAH WAS BORN ON JUNE 19 ,2003 HAPPY AND HEALTHY.IN NOV.03 SARE WAS DX WITH INFANTILE SPASMS.SHE UNDERWENT A VERY SERIOUS STERIOD TREATMENT.THE SEIZURES WERE BACK WITHIN A MONTH.WHEN SARAH WAS 1,THEY REFERRED US TO BOSTON CHILDRENS AND DX HER WITH CORTICAL DYSPLASIA.BY ALL ACCOUNTS IT LOOKED LIKE IT WAS ONLY AFFECTING HER LEFT SIDE.SARAH WAS A NORMAL ONE YEAR OLD..LAUGHING,RUNNING,AND JUMPING.IN FEB.05 SHE UNDERWENT A LEFT RESECTION OF HER FRONTAL LOBE.SHE QUICKLY BOUNCED BACK BUT, THE SEIZURES WERE BACK AGAIN IN A MONTH.DURING THE NEXT 6 MONTHS,HER DEVELOPMENT WAS BEING AFFECTED.WE TRIED SEVERAL SEIZURE DRUGS,THE KETO DIET,IVIG,CRANIAL SACRIAL THERAPY,ETC.IN DEC.05,SHE UNDERWENT A CORPUS CALLOSOTOMY,A CATHETER INSERTED AND A UNPLANNED RESECTION.THIS TIME THEY WERE CONFIDENT IT WAS GOING TO WORK...THEY FOUND A REAL "HOT SPOT"OF ACTIVITY THAT THEY REMOVED.SARAH NEVER WALKED AFTER THAT SURGERY AND CONTINUED TO HAVE NUMEROUS SEIZURES.IN JUNE 05,SHE WENT INTO RESP.DISTRESS AND NEEDED TO BE INTUBATED.OUR LONGEST JOURNEY STARTED OCT.4,2006.SARAH WAS PUT UNDER A PENTABARB COMA.SHE DEVELOPED PNEUMONIA,PANCREATIS,AN ILLYUS,UTI,AND ISSUES REGULATING HEARTRATE,BLOOD PRESSURE,ETC.SHE ALSO WAS DX WITH PERTUSSIS.SHE UNDERWENT A LEFT HEMISPHERECTOMY TO REMOVE THE WHOLE LEFT SIDE OF HER BRAIN.SHE DEVELOPED LUNG DISEASE AND HAS HAD TO BE INTUBATED SEVERAL TIMES. SARAH NOW HAS HUNDREDS OF SEIZURES A DAY AND OTHER PROBLEMS DUE TO HER ILLNESS.SARAH WAS GIVEN 2 WEEKS TO LIVE ON MAY 18,2007.....SHE IS OUR ANGEL THAT BRIGHTENS OUR LIFE EVERYDAY.WE CHERISH EVERY MOMENT WITH HER.FAITH,HOPE,AND LOVE HAS KEPT US GOING SURROUNDED BY A AMAZING NURSING STAFF,FRIENDS,AND FAMILY.THANK YOU FOR SHARING IN OUR JOURNEY.

Journal

Thursday, October 30, 2008 5:38 AM CDT

Missing Sarah more than ever today..remembering how special she was last year.
Although we were in a stormy patch with her broken leg,things felt very settled and peaceful last year today.
She seemed more attentive and happy than in weeks(without knowing what was ahead),I took it like we were headed for recovery.
The kids and I are feeling your loss more than ever today...miss you Sare.

Read Journal History

Hospital Information:

Boston Children's Hospital
ICU 7th floor Longwood ave.
Boston , Ma
617-355-6000

Links:

E-mail Author: moran1030@roadrunner.com

---

 

Your gift will help millions of people stay connected with friends and loved ones during challenging times.

---

 

This page has been viewed 120910 times.

Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent.  This information does not confirm that anyone is or was actually a patient at any facility.