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This page has been provided to keep our family and friends updated about me, Miss Julia Marie Ortego, and my fight against Spinal Muscular Atrophy (SMA) type one.
For more information on SMA, please visit SMA Support.
  
   
  
The Princess
Once upon a time there was a girl named, Julia, who was a beautiful princess.
The princess had beautiful eyes with a very pretty smile.
The beautiful princess came down from heaven and she could not walk or run, but she loved music.
The princess could see angels and talk to them.
She has some brothers that love her and one sister, in heaven, that loves her too!
Her voice sounds like beautiful doves singing.
The princess would always make people feel happy when she would look at them.
written by Joshua & Christopher Ortego 4/26/04
The Ortego Kids
This picture was made for me by our friend, Gladys Boyd.
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This is a picture of one of the beautiful cross stitch squares that were made into quilts for me and my sister. My friend, Cole, had SMA type one like me and he started his own organization, Cole’s Quilts! Now Mr. Cole is an angel in heaven, but his angel work continues on earth. We love you, Cole Daniel Webb!!!
Princess Julia and her friend, Princess Kalair...July 2004
My friend, Princess Aubrey, came to my third birthday party!
We are...
My family...Christmas 2004
Aww...
Little Julia is playing the harp!
I got to go to Holly Beach! Summer 2005
Mommy and Julia love eachother SOOO much!!!
Journal
Monday, October 15, 2007 9:29 PM CDT Julia is growing and becoming something else.
Her vocabulary has increased by bounds.
She is 40" and 25 lbs.
she loves to read books.. lots of books.
she loves to sing. she has learned the Hail Mary
in French.
She is really into Doro which she calls "OH man".
Hannah Montanna is another of her favs.
Julia is a parrot right now and i just love
that she is a chatterbox.
And spoiled rotten.
She wants be to tell everyone HELLO.
bye for now.
Read Journal History
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