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12/15/1999-12/4/2007
He fought the good fight, and went home to rest in the arms of JESUS. Read our story for a bit of our experiences, and to see how awesome a little man he was.

Journal

Thursday, February 25, 2010 8:14 AM CST

Just a little update to let you know about a new opportunity we have to raise monies for our walk team. A very kind friend from childhood is a photographer. She has offered her professional services to do us a photoshoot. for a $25 ticket purchase/donation you get a 20 min photoshoot as well as a phot pkg of 1-8x10, 2-5x7's, and 4-wallets. Her name is Daphne Ellenburg and her wbsite is www.ellenburgphotograhy.com. If you would rather just give a donation youcan do that at our walk website which is listed below in my previous journal history. The button to support this fundraiser is below. Thank you in advance!


Hi! Not sure who's reading, but I have stuff to vent, and since the newspaper is seemingly ignoring me, I'll come here to my old faithful. As those that still read know, new orleans is finally having the opportunity to host it's 1st curesearch walk for childhood cancer. you also know, that my mission in life since gaining my Meechie to heaven is to gain the little gold ribbons that signify this beast in our kids, just as much (preferably more) recognition than the pink ones..... well, hmph!!!! I have made some contacts which could pan out, but being I am not a patient person it is not happening fast enough for me. Let me share a little that i don't think i ever have. Every so often I kinda get in this funk where I go back and reread Meechie's journal here, then go find-which isn't hard if you know your way around the kids cancer cyber world- a few more heart wrenching stories...why do i do this? i dunno., but it does get me all riled up again. I know in my heart that GOD put me in this valley of grief because he knows how very stubborn, and pig headed i am. he knew that I wouldn't let this go. The best way to get me to do something is to hurt me, or make me mad, well guess what? this beast I know as cancer, has done the very best of both... Reliving my words, and going back in time just adds a little more fuel to the fire...

I am on the walk comittee with a mom who has lost 2 beautiful baby girls to this beast! I finally read their stories this morning, and well,,,, I am really ready to fight for this diseases recognition, and funding so that we can squash IT! I am upset that people who haven't been touched by it seem to have the attitude that well, that sucks for you, but our kids are healthy so we have no need to support "your" cause..... now don't get me wrong, no one has said these words to me,(thankfully) but it feels like it... how can someone you call a friend be hurt soo much and you can't even show some sort of support? i guess this co-chair thing would be so much easier if everyone felt as strongly about raising monies and awareness for this disease as i do. ugghhh. i guess my whole mission would be easier if everyone would just listen, not hear but listen. not just read the journals, but feel them. feel the anguish that the parents who write them are in. Put yourselves in their places.... Could you? Our kids come to us to fix all their little boo boos. How do you handle it when the biggest booboo of their life come about and mommies' kiss can't do a thing for it? Wouldn't you want to help? so that no more families have to face this pain? why can't we get a movement going? trust me. the susan g komen foundation started somewhere. someone is gonna listen to me, and somehow i will succeed. you probably think i'm crazy, no I'm not in the least. i am hearing almost daily a new story of a child with cancer in lafourche parish. This ain't gonna cut it. ..Just because your world is comfy, and your kids are cancer free, does NOT mean that the disease is not out there. All of us cancer families didn't have kids with cancer until that day we got the news, and our worlds turned upside down, and we un-wantingly-(i know-that isn't a word, but it fits) rode the most fearful rolleroaster that will ever be. OUR KIDS USED TO BE HEALTHY TOO!! SO, when you see or hear about some lady doing something you didn't think she was serious about, hopefully it is about me, or one of the folks who have joined me, and we have managed to get that little gold ribbon which signifies so very much some spotlight. ...

Wow that felt good, and i feel better. .. If you hung in there thanks! here's our walk website again,
http://host.curesearch.org/neworleans
copy and paste that and join Meechie's Mob, make a donation, or form your own team! We would greatly appreciate it! GOD BLESS! a very determined Dani

















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