Isaiah Montgomery Buchanon

Isaiah Montgomery Buchanon was born on January 11, 2005 at Vanderbilt Hospital. He was born at 7:08 am weighing in at 8lbs and 10 ounces and 21 inches long. At 20 weeks gestation an ultrasound determined that Isaiah's head did not measure correctly. At 27 weeks our journey of testing, ultrasounds, and the unknown began.

When he was born the doctors knew they were correct in their abnormal findings. Isaiah's obvious problems were mitten hands, syndactly of the feet, cleft palate, and his brain was protruding from his skull in the forehead area. After giving his mommy and daddy a chance to hold him, he was rushed to the NICU. On January 12, 2005 a clinical diagnosis determined Isaiah has Aperts Syndrome. He then spent 11 days in the NICU to establish his feeding and wean him down to a low enough oxygen rate he could go home. We then went home with oxygen and numerous other machines. His journey of operations began on April 12, 2005. All of Isaiah's operations have been performed by the staff and surgeons of Vanderbilt Children's Hospital. To date Isaiah has been in the operating room around 30 times. The surgeries have varied from minor to very complex. Some trips have been for a simple central line and others have been for major craniofacial surgeries and a tracheostomy was performed on August 30, 2006. In April of 2008 Isaiah had his mid face advancement to protect his eyes and give him a better airway. Hopes were high to remove the trach. After a six week hospital stay and turning of screws twice a day in his little head he developed and infection. Bacterial meningitis was diagnosed in early June. By July they were about to call in Hospice to get Isaiah home where he would be comfortable and he began to turn the corner. After prolonged IV antibiotics at home he developed yeast in the tummy which tracked up his shunt and gave him yet another case of meningitis but this time it was fungal. After another long hospital stay he fought through again and came home. Since then he has had two shunt revisions.

With Isaiah's syndrome come many difficult surgeries. Then with Isaiah being himself come many more complications. Isaiah is developmentally delayed physically and cognitivelly. Things such as sitting, crawling, walking, and speech are a huge obstical for Isaiah. Isaiah has very small airways(which go with his syndrome) which has caused huge issues since birth and eventually he was unsuccessful being pulled from a breathing tube, this caused him to have to have a trach. Isaiah also suffers from severe seizures which seem to come with no prediction. Along with these problems comes a whole list which you can read about in the journal.

Thank you for taking time to check on Isaiah and monitor his progress. As we continue our journey we depend on God to hold Isaiah in his big hands and protect him. Through Him we are given the strength to endure or days. Isaiah is a fighter and has amazing strength. His smile can make a rainy day seem sunny. As he continues with his journey please pray for strength, developmental growth, comfort, a continued wonderful personality and doctors knowledge. May you be blessed as you follow along with us. Please take time to sign our guestbook as we love to read the entries.




Isaiah's first two years of life:

Photo and video editing at onetruemedia.com

~~~~~Many have asked who did Isaiah's invitations to his party......
visit- trioartstationery.com
Michelle does a wonderful job!!! Can't say enough about how happy I was with what she did for Isaiah :)~~~~~


Some of these pictures are not turned correctly but the program would not work correctly so I just left them. Sorry I will try to fix them later. Enjoy my happy boy!!!!

Journal

Sunday, July 5, 2009 11:30 AM CDT

Well where do I start!!!!

We have had a wonderful holiday weekend. Last week my little sister was in with her baby so we got to see her and Calvin. Isaiah actually gave Calvin love!!! He was so cute and leaned over and kissed him and hugged him. He thought it was really funny that Calvin had to have his picture taken and not him :) We had a cookout at mom and dads that night to celebrate the fourth and Calvin's birthday with family and friends. Last week was a little cool but Isaiah and I enjoyed lots of outside time. Not a lot of pool time but it was nice for farm work! On Friday we did meet up with some friends and had breakfast then the water park! What fun.......

Isaiah's fourth was very good. Friday we went to Franklin and listened to Dad's band play and watched fireworks. One of his nurses/our friend Hope came and watched them with us. She commented on how different it is to see Isaiah enjoy life and not see him in the hospital. She was his night time primary nurse and loved watching him enjoy life!!! Now the cute part is he kept saying "boom boom mama". So sweet......most kids fuss when they are going on he fusses when they end! He also decided that he wanted to sit with his poppa half way through......so like a good grandfather dad came and sit on the ground and held him while he finished watching them. Two miracles sitting there watching fireworks go off.........Yes I got a picture. Last night it rained here so we went to a friends and sat in the garage while they set off fireworks. Tonight we are having friends down to eat, corn hole, smores and more fireworks!!!! Well if I can talk his daddy into going and getting some!

So life is going very well. He is still pulling at the one ear but hopefully soon that will be taken care of with a new tube. July 24th they will run his probe and put new tubes int he ear. I am sooooooo ready for his ears to feel better. Last Sunday he was so grumpy but between the ears and the antibiotic reducing the effectiveness of the antacids I can't blame him. The rest of the week has gone better.

This week will be more of the same. Fun, fun and more fun!!!! We are so enjoying just being home and enjoying the summer things we can do. I am enjoying canning and making lots of different things. Isaiah's development is growing. He stood in PT this week for five minutes. As we moe forward with the weaning of the phenobarb I think it will only keep improving!!! He is doing well with it a few withdraws at first but then better after a few days. We are going to wait until after vacation for the next dose decrease.

That is about it and my little guy is ready for me to be done. Have an amazing week!!!!

Nicki

Hospital Information:

Vanderbilt Children's Hospital

Nashville, TN
Room 7424

Links:

E-mail Author: nicki@logantele.com

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Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent.  This information does not confirm that anyone is or was actually a patient at any facility.