Isaiah Montgomery Buchanon

Isaiah Montgomery Buchanon was born on January 11, 2005 at Vanderbilt Hospital. He was born at 7:08 am weighing in at 8lbs and 10 ounces and 21 inches long. At 20 weeks gestation an ultrasound determined that Isaiah's head did not measure correctly. At 27 weeks our journey of testing, ultrasounds, and the unknown began.

When he was born the doctors knew they were correct in their abnormal findings. Isaiah's obvious problems were mitten hands, syndactly of the feet, cleft palate, and his brain was protruding from his skull in the forehead area. After giving his mommy and daddy a chance to hold him, he was rushed to the NICU. On January 12, 2005 a clinical diagnosis determined Isaiah has Aperts Syndrome. He then spent 11 days in the NICU to establish his feeding and wean him down to a low enough oxygen rate he could go home. We then went home with oxygen and numerous other machines. His journey of operations began on April 12, 2005. All of Isaiah's operations have been performed by the staff and surgeons of Vanderbilt Children's Hospital. To date Isaiah has been in the operating room around 30 times. The surgeries have varied from minor to very complex. Some trips have been for a simple central line and others have been for major craniofacial surgeries and a tracheostomy was performed on August 30, 2006. He is on a home vent due to central apnea.

With Isaiah's syndrome come many difficult surgeries. Then with Isaiah being himself come many more complications. Isaiah is developmentally delayed physically and cognitivelly. Things such as sitting, crawling, walking, and speech are a huge obstical for Isaiah. Isaiah has very small airways(which go with his syndrome) which has caused huge issues since birth and eventually he was unsuccessful being pulled from a breathing tube, this caused him to have to have a trach. Isaiah also suffers from severe seizures which seem to come with no prediction. Along with these problems comes a whole list which you can read about in the journal.

Thank you for taking time to check on Isaiah and monitor his progress. As we continue our journey we depend on God to hold Isaiah in his big hands and protect him. Through Him we are given the strength to endure or days. Isaiah is a fighter and has amazing strength. His smile can make a rainy day seem sunny. As he continues with his journey please pray for strength, developmental growth, comfort, a continued wonderful personality and doctors knowledge. May you be blessed as you follow along with us. Please take time to sign our guestbook as we love to read the entries.




Isaiah's first two years of life:

Photo and video editing at onetruemedia.com

Here are some pics from his fields trip before he was admitted this time and 2 from when the Predators came to visit. He slept but atleast there are pics!!!

New pics that Melissa took on Labor Day!!!! Thanks so much Melissa you are great!

Contact Info for Melissa: http://www.mrdstudio.com/



Halloween Pictures More to come!!!!

*****Pictures should not be copied from this web page without authors permission.*****

Journal

Monday, November 17, 2008 9:20 PM CST

We are home.

Isaiah's labs looked really good. He will not need potassium this week. Next Monday we will go to the doctor for one more blood draw. As long as the labs still look then that will be our last once a week visit for labs. Then it will just be the 5 (I think) appointments for the month of Decemeber. Don't they know that month is busy for us!!!!

He has done well today. This morning he had a good bath and loved playing with Daddy in the bath. We will be so glad when we are able to give him a bath on his own. Hopefully for his birthday list we can put bath toys!!! He loves a bath but with the trach he can't just get in. Isaiah's uncle Chris ended up riding with us to Nashville. After the appointment we went to Opry Mills mall. Me and Isaiah went to find him a Christmas outfit while daddy and Chris shopped in Bass Pro. They didn't mind at all that Isaiah and I were an hour shopping....hmmm!!!! I think I found him and outfit. I like it but not crazy about it. It will be one he can wear all winter. I thought this would be much more practical than an actual Christmas sweater. The main thing is we wanted a hat for his bald little head that has glue all over it still. We found a black cordoury hat....he will have matching pants and a sweater!!! Pictures soon!!!

Well off to bed.

Nicki

Hospital Information:

Vanderbilt Children's Hospital

Nashville, TN
Room 7424

Links:

E-mail Author: nicki@logantele.com