Nathan Gilbert

Welcome to Nathan Gilbert's (BD 8/12/00) Web Page. It has been provided to keep everyone updated about Nathan's battle with Fanconi Anemia. Nathan received an un-related donor 5/6 cord blood transplant on April 20th, 2005.

Journal

Friday, March 27, 2009 12:31 AM CDT

Day 1438

We have received all of the reports from Nathan�s annual post-transplant visit to Minneapolis, and everything looks great! We met with 5 different specialty physicians, had 2 x-ray procedures, 2 sonogram procedures, and only 1 lab stick. The plan is to continue with Nathan�s current medications, (Ursodiol to keep his liver enzymes within normal range, and growth hormones for small stature), and to continue close monitoring for potential head/neck cancers. The rest of the visit consisted of swimming in the hotel pool, going crazy on the roller coasters and rides at the Mall Of America and eating way too much, �road-trip junk food.�

Nathan had been attending the dual-language magnet school since he was in Kindergarten, but we realized last October that it was not a good fit for him. The Spanish/English curriculum just wasn�t something he was interested in, and as a result, he wasn�t performing at an acceptable grade level. When we approached him about the possibility of changing schools, he was adamant about not doing it, but when Chris told him that there would be no Spanish, Nate asked, �Can we start at the new school tomorrow?� That was all that we needed to know. The next week, he began attending a traditional magnet school, and we have been very pleased with the results. Nathan loves his new school, and is finally excited about reading, mathematics, and just learning, in general.

We also took Nate to be evaluated by an educational psychologist. Children with Fanconi Anemia can tend to have some learning disabilities, and we wanted to see if there was anything more that we could do for him. The evaluation revealed that he did have a memory storage problem, dyslexia, and some mild attention deficit. We are currently addressing all of these issues, and the results have been extremely positive. As Nathan put it the other day, �I finally know what�s going on!�

Thanks for checking in on us!

Chris & Stan, (Papa & Daddy)

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E-mail Author: ictstan@att.net

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