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Nathan Gilbert 
Welcome to Nathan Gilbert's Web Page.
It has been provided to keep everyone updated about Nathan's battle with Fanconi Anemia.
Nathan received an un-related donor 5/6 cord blood transplant on April 20th, 2005.
Journal
Wednesday, August 25, 2010 10:52 AM CDT Hello!
It's been quite awhile since our last journal entry. Nathan's visit to the Bone Marrow Transplant Center in Minneapolis, over Spring break, went well. Essentially, everything looks good. There was some suspicion about his thyroid, but we believe that may turn out to be nothing. He still gets a small dose of growth hormone every night before he goes to bed, and he gets a low dose of Concerta for a mild attention defecit problem. When I think of all of the other medications we used to have to pump into him, this is truly nothing.
His growth is still an issue, but it probably always will be. As with most Fanconi kids, his appetite is minimal, but he is slowly gaining height, (if not much more weight). We had a reading tutor working with him for over a year, and his skills in that area have greatly improved. Over the Summer, we switched over to a math tutor, and we are hoping that he will be ready for his new 4th grade challenges in that area.
Nathan does have an IEP in place that provides him with a bit more help in school, when he needs it. We think that the combination of his prematurity, and his exposure to chemotherapy may have caused some academic delays, but the staff at his school is excellent, and Nathan is a very hard worker.
Nate loves being around his friends, and was very anxious for the school year to begin. These days, his favorite things are his buddies, XBox, army men, and Nerf guns. We love seeing our happy, healthy, little guy enjoying life so much.
Stan (Daddy)
Read Journal History
Hospital Information: HOME
Wichita, KS
Links: http://www.fanconi.org Lots of information on Fanconi Anemia
http://www.marrow.org National Marrow Donor Program - How you can become a donor
http://www.fairviewbmt.org BMT info
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