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Welcome, this site has been created to keep our friends and family updated on Sydney and her upcoming surgeries and victories!

Journal

Thursday, March 5, 2009 8:19 AM CST

Sydney finishing one of her laps, she loves swimming!



Hard to believe its been so long since Ive updated. We have been busy with everyday things just regular life. Sydney has been doing awesome, she went to the Down Syndrome clinic in February at St V's and Dr Kumar said her heart valve is doing great and she MAY not even need her 4th heart surgery!!! Her genetic Dr, Dr Escobar said she was doing wonderful and he may request Sydney to be in a special study about children with DS. So we came back with all great news. Mom took her down to Indy since Ive been in the hospital with bleeding ulcers and gallbladder removal, but this CB site isnt about me:)
Sydney is doing wonderful in Kindergarten with her aid, Wyatt. She can spell her name correctly, knows her letters and can almost say the whole alphabet and count to 11. She has progressed so much this year, she is just amazing. Her aide does tutoring in the summer so I will enroll Sydney to go weekly since she learns so much from her. Most people can understand everything she is saying, she is still friendly as can be saying Hi to everyone and telling them to have a nice day.
Next week we leave for Georgia for Chads cousins wedding, Sydney will be one of four flowergirls, Im so exciting to see her be included in such a major event, I will post picture of her princessness!
The last week of January Mom took us to Orlando for a week, it was close to 80 each day and beautiful, Sydney's face cleared up and she loved swimming in the pool. We went to the MAgic Kingdom and had a wonderful time, Sydney could ride all the rides except Space Mountain and she loved them. We were able to use her stroller as a wheelchair due to her "heart" and could go thru the back entry which cut down the time in line tho the lines werent that bad it was actually a perfect time to go. I could go back right now!
Seth is doing good in 3rd grade much better than 2nd and he helps with Sydney teaching her everday things. I took them rollerskating a few weeks back and they both did really well, even thinking of buying us all skates and starting to do that as a family event on yucky weekends, tho Im not that stable on skates anymore.
Im hoping for spring soon, Sydney is ready to get outside with her dog, MAggie and walk around the yard hundreds of times...she loves being outside. The other day her and Chad were out picking up sticks it was only up to 30 but guess warm enough for her.
I will update pics soon, keep cking in and dont forget to sign the guestbook so I know youve BEEN here:)
Love from all of us,
Denise

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E-mail Author: dpequignot@earthlink.net

 
 

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