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Leandra's Lifeline

Our Angel came into our lives.. Feb. 3 , 2001 . We never could have imagined what she brought with her. Teaching us so much of love, selfishness, and sacrifice... was many of the few things. Leandra was transplanted with Umbilical Cord Blood on Aug. 29 , 2001 for a disease called Krabbe's Disease. Although it was effective and diminished some of her pain and suffering she went home to be with the Lord on Dec. 28 , 2003.

"And now.. these three remain.. Faith, Hope and Love. But the greatest of these is LOVE!"

Please always love like it is your last day.. you never know when it may come.

Journal

Friday, May 15, 2009 9:33 PM CDT

Well hello to those of you whom continue to check in on us. Sorry it has been so long since i have updated. Life has certainly been busy here in Indiana.
I can't believe how much time has passed us by and of course my beautiful girls are growing so quickly. Miss Lindsay is now thirteen and just as beautiful and wonderful as she has ever been. Lauren is about to complete kindergarten and is now six years old. They are both just absolutely wonderful. I have also had another addition to the family another beautiful healthy girl i was blessed with on September 30, 09. Allyssa Nicole we call her. Actually those of you who know me .... well since all i have are girls, i allowed the girls to pick out her name. Which was a wonderful idea and brought delight to both of them. So amazingly enough they agreed. And now we have Ally or Allyssa. She brings me so much delight and joy yet she resembles my Angel Leandra so much it is sometimes hard.
Otherwise the Lord has blessed me with a wonderful job that i indeed love and enjoy very much and since my separation with Daniel now five years later i have been blessed with a wonderful man whom someday may become more than a boyfriend,..... we will see what the Lord has planned for us.
As for the job i am running a thrift store, our profits go to the Light House Mission, a ministry for homeless folks of all sorts and i just love my duties and it has become quite successful. We find much support in the community and the way the economy is more and more people seem to be shopping in second hand stores now too. It is a wonderfully appealling job. I think one of the worst things in life is to have a job you hate to go to..... so i must thank God for giving me this oppurtunity.
As those of you know who have lost your own loved ones some days are still harder than others but i believe we are all doing well. I think of all of the wonderful people i met along my journey often and the influences they have made on my life. I thank you all. I do believe God has given me the strength to be a part of this again. As some of you may know i had to remove myself to help myself heal. This is a horrible painful disease that leaves lifelong scars and wounds on all parties involved. But needless to say i am now back to having the internet, thanks to a teenage daughter who can't live without her chat room. So if there is anything i can do to help, please just ask. I love you all very much and will always pray for peace and newborn screening and a cure. sending those of you i know much much love.

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Links:

http://www.huntershope.org   Hunter Kelly's story and information on organization
http://www.krabbes.com   Other Krabbe children and their stories
http://www.krabbes.net   Great resource for further education about Krabbe's disease


 
 

E-mail Author: stacyfrye@abcs.com

 
 

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