Kaitlin's Page

Thank you for visiting Kaitlin's page. She was diagnosed with Hurler Syndrome when she was 6 months old, and she underwent a stem cell transplant at Children's Memorial Hospital in Chicago when she was 13 months. Please feel free to leave us a note in the guestbook!

Journal

Monday, May 31, 2004 7:30 PM CDT

Hi everybody!
Sorry I haven't written in awhile, I've been a busy little girl. I hope to see all my Hurler friends at the Children's Memorial luncheon in June. I'll be going to a conference with Mommy, Daddy & Dr. Burton on June 13th at the Fairmont Hotel downtown. Doctors from all over the world are coming to learn about my storage disorder.

May 18th was big brother Jack's 7th birthday. We went to Haunted Trails and played video games and went on the rides. It was fun. I put some new pictures for everone to see.

I was at Children's Memorial for my regular checkup, and the doctor's discontinued my medicine because I'm doing very well.

I met some nice ladies from the Make a Wish foundation. Soon I'll be going to Disney World with my family to meet Mickey Mouse! I'll post the pictures after we come back.

Talk to you soon.

Your friend,
Kaitlin

Read past journal entries

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7408 W. 111th, Apt. 308
Worth, IL 60482

Email address  : chicago@planetcsi.com