Angel Whispering Simply Enchanting Angels http://seangels.org <reesecup32003@yahoo.com>
Tampa, Fl USA - Saturday, April 16, 2005 11:44 PM CDT
HAPPY EASTER LOVE WWW.POSTPALS.CO.UK
Post Pals <info@postpals.co.uk>
- Friday, March 25, 2005 3:37 AM CST
I know im early, but
Happy Valentines Day
Love Viks from Post Pals
viks <viks@postpals.co.uk>
- Wednesday, February 2, 2005 1:29 PM CST
A PRAYER FOR CHRISTMAS
God Give Us eyes this Christmas
To see the Christmas Star.
And give us ears to hear the song
of angels from afar
And, with our eyes and ears attuned
for a message from above,
Let "Christmas Angels" speak to us
of hope and faith and love
Hope to light our pathway
When the way ahead is dark,
Hope to sing through stormy days,
with the sweetness of the lark
Faith to trust in things unseen
and know beyond all seeing
That it is in our Fathers love
We live and have our being
And love to break down barriers
of color, race and creed,
Love to see and understand
and help all those in need.
Lord, bless those we love this Christmas Day,be they near or far away Bless those good friends who mean so much and those with whom we're out of touch. We bring them all to You in prayer, and ask You to keep them in Your care.
Please know that you are thought of, in a very special way, not just this beautiful season but every day.
Chris Ullrich - Bella's Grammy < c_ullrich@msn.com, caringbridge.com/page/isabellaledesma>
- Friday, December 24, 2004 11:50 PM CST
I've been checking often for an update. I hope that all is well with John and the rest of the family.
Kellie Langemeier <kelliel3@cox.net>
Portsmouth, VA - Thursday, December 2, 2004 6:11 PM CST
Love
Viks
viks <viks@postpals.co.uk>
- Saturday, November 13, 2004 11:42 AM CST
Wanted to check in to see how John is doing. Please let us know. Hope that all is well with John and your family.
Sharon
Chicago, IL - Monday, November 8, 2004 9:43 AM CST
Hello from Tennessee.
Just wanted you to know you are loved and may God bless you.
Love and blessings,
angel jen
CLICK
angel jen <angel.jen@comcast.net >
Burns, TN USA Tennessee - Sunday, October 24, 2004 7:29 PM CDT
Just dropping by to let you know that our love and prayers are with you...today...tomorrow...forever.
In Love & Prayer...Eleasha & Cody <eleasha@cox.net>
www.caringbridge.org/va/cody, - Monday, September 6, 2004 1:48 AM CDT
Hiya, just saying a hello, I have a few jokes for you today, this time about bears
Q: What do you get if you cross a skunk with a bear?
A: Winnie the Pooh!
Q: Why do bears have fur coats?
A: Because they'd look stupid in anoraks!
Lots of love and big…
Viks
viks <viks@postpals.co.uk>
- Tuesday, August 31, 2004 5:20 AM CDT
How big John, Phillip and Becky have gotten since I saw them! I laughed (and cried)reading the journal, thanks for sharing. Janet Groll
Janet M Groll <janetotrl@ameritech.net>
- Thursday, August 26, 2004 8:42 PM CDT
Hi & thinking of you all!
Lindsey <dancinangel09@sitestar.net>
- Thursday, August 26, 2004 5:18 PM CDT
Hi..just checking in to let you know your family is in my prayers today and always. God Bless..
Donna (mom to Ansley, dx 6/99-currently NED-stg. 4) <cochran7871@comcast.net>
Dallas, Ga - Wednesday, August 4, 2004 0:23 AM CDT
Hi Jen,
Great to finally get to meet you at the conference. Thank you for doing such a wonderful job with the kid's photos.
Linda Connolly (www.caringbridge.org/mi/ryanc)
Fenton, MI USA - Monday, July 26, 2004 11:05 AM CDT
Hi John,
I just wanted to see how you are doing. Have a good weekend.
Jaime <Jaime13042@aol.com>
NJ USA - Friday, July 9, 2004 9:30 PM CDT
Why do bears have fur coats ?
Because they'd look stupid in anoraks !
What do you call a big white bear with a hole in his middle ?
A polo bear !
Love Post Pals
viks <viks@postpals.co.uk>
- Sunday, July 4, 2004 3:34 PM CDT
Just want to say Hi". Found your page on Jay's
Keep up the good work. Prayers are answer. God is
good. Faith, Hope & Cure , Lou/grandmother to Josh(11)
http://www.caringbridge.org/page/josh
Lou Dailey <skiptolou@juno.com>
Knoxville, TN USA - Friday, June 25, 2004 6:21 PM CDT
Hi John :)
Virginia and Jay directed me to your site, via Jay's page. You sure are a cutie pie! And such a big boy now.
I was happy to read your page tonight.
Stay strong big boy John.
"God does not call us to do great things but to do small things with great love." ~Mother Teresa
Tamara, Anna, and Gray <thansgenm@verizon.net>
- Thursday, June 17, 2004 9:30 PM CDT
Hiya, a few jokes to try and make you smile this weekend.
What are prehistoric monsters called when they sleep?
A dinosnore!
What do elves do after school?
Gnomework
Where do tadpoles change?
In a croakroom!
Love Viks on behalf of everyone at Post Pals
viks <viks@postpals.co.uk>
- Sunday, May 30, 2004 12:53 AM CDT
Hi!
So glad to hear John's urine marker test was normal!! YES!!!
What a great feeling.
Also, thank you for sharing the article on Kristin Connor--What an *amazing* woman and advocate for our children she is--as you are as well, Jen. I thank God for both of you.
You also do a teriffic job on the list serve too--thank you for all your hard work and information getting-that is always so helpful!
My prayers continue for John!
God Bless you and your family always!
With Love,
Sara and Vic Hammer
www.caringbridge.com/mn/danielhammer <hammertime311@comcast.net>
Lakeland, MN USA - Saturday, May 22, 2004 2:57 PM CDT
Hello, I thought I would stop by to leave some jokes for you, I hope they make you smile.
Love Viks and Everyone at Post Pals
Q: How do you know that cats are sensitive creatures?
A: They never cry over spilt milk!
Q: What do you get if you cross a cat and a gorilla?
A: An animal that puts you out a night!
viks <viks@postpals.co.uk>
- Saturday, May 22, 2004 11:09 AM CDT
Just checking in. Continue to be in our thoughts and most importantly our prayers.
The Connollys (another NB family) -- www.caringbridge.org/mi/ryanc <padwik@yahoo.com>
Fenton, MI USA - Thursday, May 13, 2004 10:08 PM CDT
Happy Mother's Day!!!
Kim Watts www.taylorwatts.org <jimandkimwatts@yahoo.com>
Mc Calla, al - Sunday, May 9, 2004 10:13 PM CDT
I'm stopping by to add my prayers to those of many others. May your Mother's Day be full of smiles and free from the worries, just for a day.
Stephanie and RachelJoy <sstrom@quik.com>
- Saturday, May 8, 2004 9:45 PM CDT
My dear friend:
Well, I suppose it was too much to ask for -- no post scan chaos. As you know, my heart is sick with the confusion and uncertainty that exists right now. Just as you always embrace EVERYONE as they journey through their trials, please feel all of us embrace you and sweet little John.
By the way, Brandon is anxious to start teaching John some of his magic tricks -- "Abrakadabra, alakazam - make Brandon a good boy, wham bam bam!"
Love you!
Kristin
Kristin, Mike, Ryan and Brandon Connor (www.caringbridge.org/ga/brandonconnor <kristin.connor@agg.com>
Norcross, GA - Friday, May 7, 2004 10:00 AM CDT
Mothers Day Prayer
I Pray for you that on this special Mothers day,
God fills your heart in a truley beautiful way.
And may, He in His reach from heaven above,
Flow the wonderful family spirit, of His love.
I pray He grant, truley sweet and Angelic care,
That you may know, He is, always there.
I pray within God's great vast Love for you
In life, daily onward, In all that you may do,
You feel His love, His strength, His peace,
This Mothers Day blesses a spiritual release.
Have a Blessed Mothers Day
Chris Ullrich - Bella's Grammy <c_ullrich@msn.com, www.caringbridge.com/page/isabellaledesma>
- Thursday, May 6, 2004 6:08 PM CDT
Jen-
I can't believe that it has been two years since Marie & Rick met your family and first told us of your precious baby boy. I still find myself referring to him as "Baby John."
As always, John remains in my prayers. I pray that the X-ray Board finds that everything is okay with his scans and that you and Phil are able to maintain your sanity through all of this stressful waiting.
Kellie Langemeier <kelliel@verizon.net>
Portsmouth, VA - Thursday, May 6, 2004 1:39 PM CDT
Jen - I'm praying that the brilliant minds come up with a logical and not-so-scary answer to the confusing scans. Praying also that you make it through the waiting with sanity intact ;)
All my best,
Cathy West, mom to Nicklaus (NBIII) <westcathy@sbcglobal.net>
Modesto, CA - Thursday, May 6, 2004 1:23 PM CDT
Praying as always. I know the agony of the waiting and not knowing. I pray this is just a bump of confusion that will end quickly with answers.
love and Prayers,
Kim
Kim Watts www.taylorwatts.org <jimandkimwatts@yahoo.com>
Mc Calla, al - Wednesday, May 5, 2004 3:47 PM CDT
I am so happy to read the prelim report of the scans! Congratulations and I hope that the X-ray board ("whatever that is") will all agree that it is stable as well.
Donna <cochran7871@comcast.net>
Dallas, Ga - Tuesday, May 4, 2004 9:29 PM CDT
I am anxiously awaiting news about scans today...
Thank you, Jen, for all the kind words and feelings that you have expressed about Carter. We will hang tough together until he beats it!! I am hopeful that you guys are already on your way to "beating it" with clean and clear scans today.
Love across the miles between us,
Leigh Ann
Leigh Ann Martin <lascm@belsouth.net>
Atlanta, GA - Tuesday, May 4, 2004 6:17 PM CDT
We are praying for tomorrow's scans. May they be perfectly clean and clear. We will be having a CT, hearing, echo, urine and check up tomorrow. The MIBG and bm's will be in NYC on June 28-30. I am nervous as usual, but fairly positive it is me making a mountain out of a mole hill. Taylor has yucky poops for a month and not his normal huge appetite, so I am a little worried, but we will make it. Lots of prayers going up tonight for 2 special familes on the eve of scan day.
Love and Prayers,
Kim
Kim Watts www.taylorwatts.org <jimandkimwatts@yahoo.com>
Mc Calla, al - Monday, May 3, 2004 10:56 PM CDT
We're praying for clean scans on Tuesday, no post-scan chaos, no abnormalities that have no explanation. Your in our hearts and prayers always!
Love,
Kristin
Kristin Connor (www.caringbridge.org/ga/brandonconnor) <kristin.connor@agg.com>
Norcross, ga - Friday, April 30, 2004 8:45 AM CDT
Happy Birthday
Love everyone at Post Pals
viks <viks@postpals.co.uk>
- Thursday, April 29, 2004 9:48 AM CDT
I'm a littlw behind, but Happy Birthday to you!!! I hope all is well, we are always praying and thinking of you all.
Love and Prayers,
Kim, Jim, Taylor and Logan
Kim Watts www.taylorwatts.org <jimandkimwatts@yahoo.com>
Mc Calla, Al - Wednesday, April 28, 2004 8:36 AM CDT
John,
Dana Sanford <pooh_n_tigger2002@yahoo.com>
Jackson, MI - Wednesday, April 21, 2004 10:29 PM CDT
HAPPY BIRTHDAY TO YOU, HAPPY BIRTHDAY TO YOU, HAPPY BIRTHDAY DEAR JOHN, HAPPY BIRTHDAY TO YOU!
Your buddy,
Brandon
Brandon Connor (www.caringbridge.org/ga/brandonconnor) <kristin.connor@agg.com>
Norcross, GA - Wednesday, April 21, 2004 8:23 AM CDT
John
Sending lots and lots of BIG 'Happy Birthday' hugs your way!!!
~*~*~*Miss Samantha*~*~*~
Mrs. Shannon & Family <humphity319@aol.com>
#24 - Wednesday, April 21, 2004 1:35 AM CDT
HAPPY BIRTHDAY JOHN
Jen you are right - we live in an alternate universe. I know others have no idea what its like because I had no clue either until our d-day. Never realized how one sentence from a stranger's mouth could change my world forever...
Chris ~ Gooch's Site ~
- Tuesday, April 20, 2004 11:59 PM CDT
Allright, so you go months without an updated picture and then WAM there he is a kid-no longer that baby from previous shots. Wow, John looks GREAT!!! I miss the list serve-but know with time my life will fall back into place-just checking in. Talk to you soon.
Love,
gin
www.caringbridge.org/fl/paytonbogert <ginbogert@yahoo.com>
- Monday, April 12, 2004 12:10 AM CDT
Wishing you all a very blessed Easter!
With Love, The Hammer's <hammertime311@comcast.net>
- Friday, April 9, 2004 8:51 PM CDT
GOD BLESS YOU KIDDO WE PRAY FOR YOU HOLD ON1
BEBA <knikola@eunet.yu>
NOVI SAD, SERBIA - Sunday, April 4, 2004 11:19 AM CDT
Hi Jen, Your journal entry has helped me to appreciate anew, all the good things in my life. We will be praying for John as he continues treatment.
Stephanie and RachelJoy <sstrom@quik.com>
- Thursday, April 1, 2004 11:06 PM CST
We will be coming to Chicago in July for the NB conference. Will I see you there? If not I hope you live close enough that maybe we can meet up. I am dying to get into Oprah, but I don't know the schedule for the conference yet!! I hope things are well!!!
Kim Watts
Kim Watts www.taylorwatts.org <jimandkimwatts@yahoo.com>
Mc Calla, AL - Wednesday, March 31, 2004 8:21 PM CST
We will be coming to Chicago in July for the NB conference. Will I see you there? If not I hope you live close enough that maybe we can meet up. I am dying to get into Oprah, but I don't know the schedule for the conference yet!! I hope things are well!!!
Kim Watts
Kim Watts www.taylorwatts.org <jimandkimwatts@yahoo.com>
Mc Calla, AL - Wednesday, March 31, 2004 8:21 PM CST
Hi!! Kristin is gonna kill me:) I have a MR. Tea maker and it does not taste any different than boiled tea, just easier. Really the only secrest is in the sugar. You will just have to head south and have some with us:) Hope all is well.
Love and Prayers,
Kim Watts
Kim Watts www.taylorwatts.org <jimandkimwatts@yahoo.com>
Mc Calla, AL - Sunday, March 28, 2004 9:45 PM CST
Well, you did it again. You put into words my every thought and emotion. I just wrote in a journal entry on Taylor's page about how different things were now compared to before he was sick. Not in that we have clinic and have had chemo and what not, but that I love to just sit and watch him play, I don't care if the house is a mess or I am tripping over toys in the middle of the night. I don't care that I keep getting pushed out of my own bed because Taylor is hogging it. I could go on, but don't need to, I know you understand. I am saddened that my child had to endure the things he did, more than most adults have endured, however, it has made me, us better people and a better family that appreciates all life has to offer. I am praying for your little man and your family as always. May God bless you all.
Love and Prayers,
Kim Watts
Kim Watts www.taylorwatts.org <jimandkimwatts@yahoo.com>
Mc Calla, AL - Friday, March 26, 2004 3:55 PM CST
Thinking of you all today. I am so glad you posted the quote from Leigh Ann Martin. What a great reminder your entry is to all of us..with healthy children or otherwise. Seize the day always! (I have one of those out of control playrooms myself-thank you for helping me to remember what a true blessing that is!)
Donna (mom to Ansley Stg. IV-NED 4 yrs. now) <cochran7871@comcast.net>
Dallas, Ga - Wednesday, March 24, 2004 10:28 PM CST
Another beautiful entry from my beautiful friend. I do love you, my friend. You touch our souls with your words. Here's to explanations for fevers and distended abdomens (we are crazy, aren't we!?!)!
Love,
Kristin
Kristin Connor (www.caringbridge.org/ga/brandonconnor) <kristin.connor@agg.com>
Norcross, GA - Tuesday, March 23, 2004 9:08 PM CST
BRAVO BRAVO-Oh, how you explain my whole being so well. YES, YES and YES!!! To be understood-at the very least you understand me my friend! I am copying your entry and emailing it to my closest friend and of course my mom! Very well said!
Gin
www.caringbridge.org/fl/paytonbogert <ginbogert@yahoo.com>
Oviedo, FL - Tuesday, March 23, 2004 12:00 AM CST
Caring Bridge is such an amazing vehicle! Through an initial link to Carter Martin's website, I visit the Martins, the Hennessys, the Mitchells, the Cochrans, the Connors, and now, the Kwansinski's daily. I feel as if I know you all even though I've never met you. My boys (7 & 8 years old) and I pray for all of you every day.
I want to applaud you on your words about "outsiders". I have a nephew (also my Godson) who has cerebral palsy. As much as I love and care for him, my sister and brother-in-law, as much as I want to "be there" and help and make everything better, I have found that I can not. Not in the way that other people who share in that experience can. I am an "outsider". That does not diminish my role or what I CAN do for them. It does not diminish my capacity to pray and to love them.
Your words have provided a sense of relief. I have spent years trying to figure out the right thing to say or to do to let my sister know that I "understand". I now acknowledge that I can never really understand or provide the support and comfort that other "insiders" can. Thank God for support groups and other networks that bring people together. I thank God for my sister's "insiders". However, your words made me realize that as an "outsider" I have other gifts that I can give - gifts that maybe "insiders" can not provide. From now on, I can focus on that and not try to be everything to everyone.
Please know how much your words meant to this "outsider".
Golfo Pappas <golfop@bellsouth.net>
Atlanta, GA - Monday, March 22, 2004 8:43 AM CST
Dear Jen:
I feel compelled to respond publicly to the posting below that comments that you are alienating people with your words. Of course, your feelings are very valid. That's why you have moved so many of us, and so many of us have borrowed your words. I know you and your caring spirit. I know that you are grateful for the love and compassion of all those who care -- whether they have children with cancer or not -- those are all "insiders" to you. I know that when you say "outsiders", you mean those who do not try to relate to you and your struggles, those who do not try to understand the complexity of your experiences, and those who do not respond with compassion. We have all experienced that response...whether our struggle is that we have children with cancer or our struggle is something else. I think most people who read your words, especially if they know you, know what you mean. And I think most of us are so grateful that someone has had the courage to express their true feelings.
I thank you with all my heart for speaking how I feel.
Love,
Kristin
Kristin Connor (www.caringbridge.org/ga/brandonconnor) <kristin.connor@agg.com>
Norcross, GA - Saturday, March 20, 2004 8:35 PM CST
Ahh, sweet tea, it is good ain't it!:) I have a tea maker so I do not bowl it on the stove, I am lazy:) I have 1 secret, lots of sugar!! Going to NYC it so hard because we have to buy all the stuff to make Taylor tea or he will not drink.
I am praying all is well for you all in Chicago. We are considering coming up for the NB conference. Maybe I will see you if we go.
God Bless,
Kim Watts
Kim Watts www.taylorwatts.org <jimandkimwatts@yahoo.com>
Mc Calla, AL - Friday, March 19, 2004 10:07 PM CST
Hi there,
as an " outsider" i would like to comment on your standpoint since i'm hearing it a lot from " insiders."
I do understand that you feel that way and i certainly understand that nobody can understand better how you feel and what you go through than an other person in the same situation.
Which is not something unique and it doesn't apply to parents of cancer kids only.
Although i do understand this feeling of insider versus outsider, i don't think it's helpful for anybody to emphasize on it.
What do you achieve doing it?
What you do is you erect a wall. You turn us - people without a cancer kid into " outsiders" and tell us:" you can't relate and you have no clue anyway.".....
Dr. Phil would say: " How it that working for you?".......
i mean...... what good does it do?
Many people have no cancer kids, but have other situations that taught them the same lessons that you are describing. Some were very sick themselves, some lost their partners, some were fighting in wars or were abused as children and all of those people could say: YOU don't get it anyway, only people in my situation can relate.........
which is true - and it's not. And it doesn't get you what you want and need i believe.
I would think what you want are people that are compassionate and caring and full of love reaching out to you, trying to support and help in whichever way they can.
If you are already blocking many of them away by polarizing and telling " us" that we have no clue anyway, you might miss out on our compassion and our love.
just a thought..........
love and healing energy from Canada
mia
http://www-the-healing-tree.com
mia <miafriedrich@lincsat.com>
Staffa, ON Canada - Friday, March 19, 2004 1:51 PM CST
Hi, Jennifer! I linked to your site through Carter Martin's. And I linked to Carter's through another child's site. And I probably linked to that child's site through yet another child's site. I'm an outsider who's been reading about suffering children for a few years now. Caring Bridge is a great ministry. I wanted to thank you for your openness and honesty about what you are facing. I've been amazed at the faith I've read about through the months, but I know all of you experience many days of feeling low. I appreciated a glimpse into that all-too-common part of your journey. My husband and I are hoping to have a baby soon. Of course, I don't want to face what you're facing. No one does, and no one asks for it. But I pray that if I do, I will have the same grace and the same grit that you have shown. I skimmed through all of your entries and found myself in tears many times. There's no way to explain what you're going through. There's nothing fair about it. But thanks for being willing to share your experience. It really does help those of us who are still on the outside when it comes to childhood cancer.
Kelley Land <kelley@helwys.com>
Macon, GA United States - Thursday, March 18, 2004 3:50 PM CST
Hi Jen,
I'm another "insider" wishing I wasn't. My son Chandler was diagnosed with stage IV neuroblastoma in July 2003. He had been treated for a "bone infection" that wouldn't clear up for 6 weeks before we got the awful news. He was 14 months old. Now 8 months later we have endured 5 rounds of awful chemo, a tandem stem cell transplant, tumor resection surgery, three line placements, bone marrow aspirates too numerous to count, and now we are to begin radiation next week. I list all this to say that I really know what you said about everyone saying how strong you are. I too know that I am not strong enough to endure this without the divine help of God. Frankly, no one is strong enough without Him.
I applaud your efforts to raise money for research. Lunch for Life is so easy....everyone can participate! I just wish they would!
Thanks again for putting so many of my thoughts on your site! Keep us in your prayers as we will keep your John in ours and all the other cancer babies out there!
PS I heard about your site through Carter Martin's we were in transplant when he relapsed. His parents are so sweet!
Kim Booth (Chandler's Mom)www.caringbridge.org/ga/chandlerbooth <kbooth@colquitt.k12.ga.us>
Moultrie, GA - Thursday, March 18, 2004 11:44 AM CST
Ditto.......
I am so glad to finally "meet" you. I am adding John's site to my "hero" list.
Leigh Ann Martin (www.caringbridge.org/ga/cartermartin) <lascm@bellsouth.net>
Atlanta, GA - Wednesday, March 17, 2004 10:37 PM CST
"I do not believe God called upon me to be a mother of a child with cancer because I am strong. I do not believe God calls the qualified, but rather, God qualifies those who call upon him."
These are such incredible words. As the mother of a 14 year old with cerebral palsy I have often been "admired" for my strength, patience,courage....yada, yada, yada. I wish I could take all the credit, but it all comes from God. You said it beautifully. Thank you.
A Kostopoulos
- Wednesday, March 17, 2004 3:31 PM CST
Again, you took the thoughts right out of my head. I have had so many night like the one you described as I am sure many of us "insiders" have. Though I do feel insane, I am sure we are not or there wouldn't be so many posts here of people feeling the same. It is wonderful that are sharing your thoughts like this and it is opening us all up. I am praying as always for your family. May God bless you all.
Love and Prayers,
Kim Watts
Kim Watts www.taylorwatts.org <jimandkimwatts@yahoo.com>
Mc Calla, AL - Tuesday, March 16, 2004 10:23 PM CST
I feel as if you pulled the thoughts right out of my mind and put them into a form more eloquently than I ever could. My daughter was diagnosed with medulloblastoma on her first birthday and she has been undergoing chemo for the last 5 months. She too is battlescarred and she is fighting hard. Thank you for helping the rest of us on the "inside" know that we are not insane. Sometimes I think that God lets me hear from this person to prepare me for this or that. But I've met many now who have last their battle and many who have won. So I don't know what he's preparing us for. I sure know what I'm praying for though, for healing for our daughter and all the others. Thanks for voicing the feelings we have.
Prayers for all our kids,
Jenny
Catie's mom, 17 months
www.caringbridge.org/ga/catie <jencarroll@hotmail.com>
Guyton, GA USA - Tuesday, March 16, 2004 9:04 PM CST
Hi Jen,
Way to go! Again only us parents dealing with this monster can relate to one another. You captured my thoughts and put it to words.
L. Connolly (mother to Ryan diagnosed at 5 weeks)
Fenton, MI USA - Tuesday, March 16, 2004 4:31 PM CST
Oh my goodness Jen - you captured my emotions perfectly. And the mere fact that someone else knows exactly how I feel brings its own mixed emotions. Should I feel comforted and 'validated' that what I feel is normal and shared by so many others? Or feel heartsick and so very sorry that so many others have to feel this way? I think you distilled it all very nicely though - Cancer Sucks!
Cathy West, mom to Nicklaus, NB3 survivor <westcathy@sbcglobal.net>
Modesto , CA USA - Tuesday, March 16, 2004 11:37 AM CST
Ok Jen, you did it again! Thank you for having the honesty to put it all into words. Another "wise" saying I heard repeatedly while debating aloud whether Ansley would be healed or take a turn for the worse is.."If it is God's will" or "If it is meant to be.." There are too many IF's already involved with cancer. I do not believe it is God who gave Ansley cancer nor do I believe it is His will for her to die from it. I DO believe that with HIM-miracles can and do happen! I think it boils down to timing, treatment, health/attitude,prayers,support,faith and a realization that some things are out of our control. Cancer does not discriminate. Bless you for another wonderful,insightful entry.
Donna (mom to Ansley) <cochran7871@comcast.net>
Dallas, Ga - Tuesday, March 16, 2004 8:13 AM CST
Jen,
I thought you might like a response from an "outsider." I think it is great for you to get those feelings out in the open - not in the least insane. I have told Marie hundreds of times how I admire her strength. I don't think for a moment that I, or any other loving parent, would not show the same display of strength in your horrific situation; we just hope that we will never have to. There is also a certain degree of guilt in having healthy children when dealing with families of pediatric cancer patients; you thank God that your child is not the one with cancer, and then a part of you feels selfish for feeling that way. My heart breaks for ALL of these children and their families, but I would not trade places with them for the world. I too, have cried for children I know, children I don't know and those who are yet to be diagnosed.
I finished reading your latest entry, not feeling shocked or finding you insane, but finding that you are an incredibly loving and wonderful mother. John is blessed to have such a devoted (and dare I say strong?) mommy. I will continue to pray that he gets his miracle. May God bless you.
Kellie Langemeier <kelliel@verizon.net>
Portsmouth, VA - Monday, March 15, 2004 10:23 PM CST
Just checking in...I pray life is treating you all well.
Donna (mom to Ansley) <cochran7871@comcast.net>
Dallas, Ga - Sunday, March 14, 2004 9:44 PM CST
My dear friend Jen:
It is YOU who have spoken with such passion and eloquence. I'm so grateful for you, for your friendship, for your words. Every time we talk, every time I read your words, I thank God, even if only inwardly, almost instinctly, because He gave me a friend to whom I can totally relate. Yes, my friend, I live with you on the "inside", and I'm glad to be here right alongside you.
Love,
Kristin
Kristin Connor (www.caringbridge.org/ga/brandonconnor) <kristin.connor@agg.com>
Norcross, GA - Sunday, March 14, 2004 8:14 PM CST
I learned of John from Angel Akaida's parents (my husband is Rick's brother) after they met you at Sloane-Kettering. I check his site often and was glad to see that you had left an update; I recently asked Marie if she had heard how John was doing. I will continue to keep this precious boy and your beautiful family in my prayers.
Kellie Langemeier <kelliel@verizon.net>
Portsmouth, VA - Saturday, March 13, 2004 9:20 PM CST
Wow Jen!!! I think you speak for me and all other parents! The life of pediatric cancer is like no other, and it will forever change you. The things we have to do and see are just unspeakable. And you are so right, why even bother trying to explain this life to any outsider. They either run away or you hear "You are so strong, I could never go through that." Yes you would. You will do whatever it takes to fight for your child's life, even if it includes those horrid decisions that we, as parents, have to make. Thank you for bringing all of this to attention! Once your life is tainted with NB it never goes away. I worry everyday about Adam, and now I worry about our newest blessing (a girl), due July 30, being born with this monster like John. Of course each day is a blessing. We all have a new respect for life thanks to these little ones who have tought us so much in their short time here. God Bless them all!!
I hope that you all are doing okay. We think about you all the time! Love to John for us!!! We miss you!
www.akaida.org
Marie ~ Mom to Angel Akaida, Adam & Blessing # 3 <skylght@hotmail.com>
Shiloh, NC - Thursday, March 11, 2004 1:36 PM CST
Right on!! My daughter, Ansley, was diagnosed with NB4 in 1999 at 2 1/2. After treatments,surgeries and a stem cell transplant she achieved and remains in remission. Our next scans are on 3/15/04 and I cannot tell you how much I relate to your last entry! You put into words everything that goes through my mind on a daily basis. While we live each day being so blessed that Ansley is with us..we are very much aware that black cloud of cancer could rain all over us at any time in the future. It is a hard balance to keep. God Bless you and your family. Keep the faith.
Donna <cochran7871@comcast.net>
Dallas , GA - Monday, March 8, 2004 10:04 PM CST
How true, I can and do relate to every word you typed. Taylor was dx on 10/10/02 with NB4 at age 20 months. He is now 3 and NED. I pray we never face relapse, but I know that even though he is healthy now, the fear is still there. He just had scans last week in NYC. I stayed home in Alabama while he and his dad and grandad took the trip. I was so emotional that his nurse practitioner got me in touch with a councelor. I could not handle it all. I was fine inpatient because I knew cancer was there, but once we were NED it got harder, thost scans meant so much more now. It is so unfair, but it is now our life.
I am praying for you all, thank you for sharing your feelings. It makes me sad that other people have to feel this way, but it also helps to know that I am not alone in my feelings.
God Bless,
Kim Watts
Kim Watts www.taylorwatts.org <jimandkimwatts@yahoo.com>
MC CALLA, AL - Monday, March 8, 2004 8:07 PM CST
AMEN!!!
WHAT A POWERFUL LAST ENTRY JEN......ITS SOOOO TRUE! PRAYING FOR YOU JOEY AND YOUR FAMILY TODAY....
AMY BROWN (MASONS MOM) <www.caringbridge.org/asia/masondbrown amyjeanbrown@yahoo.com>
GRINNELL, IA - Sunday, March 7, 2004 3:18 PM CST
HELLO
CHECKING IN ON YOU HOPING THERE WOULD BE AN UPDATE...IVE BEEN WONDERING ABOUT YOU---HOPE IN ALL THINGS ARE OK. JUST WANTED TO LET YA KNOW IM THINKING OF YOU AND ALL THOSE OTHER CHILDREN OUT THERE.
MASON BROWN FAMILY <www.carinbridge.org/asia/masondbrown amyjeanbrown@yahoo.com>
GRINNELL, IOWA - Saturday, February 28, 2004 11:19 AM CST
Just stopping by to check and see how you all are doing...You are in our thoughts and prayers every day...
In Love & Prayer...Eleasha & Cody <ehilliard@verizon.net>
www.forcody.org, - Friday, February 20, 2004 5:17 PM CST
Happy Valentines Day, From Everyone at Post Pals
viks <viks@postpals.co.uk>
- Saturday, February 14, 2004 9:26 PM CST
I came across this website through a article in the newspaper a while back. Have been checking your website to check on how John is doing.
What a cute little boy.
Marcy
- Tuesday, February 10, 2004 9:25 PM CST
I just wanted to sign in and let you know that I'm thinking about you. I pray that your Christmas and New Year's was a blessed time and that 2004 will bring you blessings that you never imagined. I will continue to lift you up to the Lord in prayer for provision, strength and guidance as the Lord puts you on my heart. Blessings and love to you in Christ.
Khalita My Caringbridge Site Duke Peds BMT Aplastic Anemia <khalita@hecaresonline.org>
Lexington, NC - Monday, January 12, 2004 10:18 PM CST
The birds were a-squawking and just bugging me in general to send this greeting for the New Year. New Years Eve they will be safely tucked in their cages, with a loud air purifier running so they don't hear all the fireworks in our neigbhorhood. We are a "stay at home" family on New Years, because so many of our neighbors put on spectacular fireworks displays. But that doesn't help with the birds, that's for sure! So, as we roll in this new year, we are going to be thinking about you, our long distance friend, and oh, yes, the dogs and cats just reminded me they want to be included in our wish, too. So, here goes. Happy New Year from: (there'll be a quiz on this later, ha ha ha!)
Sport the collie, Murphy the Shih-Tzu, Esmerelda the Maine Coon cat, Lex the black cat, O'Malley the grey and white cat, Charlotte the himalayan, Tripoli the Yellow Nape Amazon, Pompeii the Severe Macaw, Dasani the Blue-headed Pionus, Mokuba the Jenday, and Mirage the Congo African Grey...(all 11) and Sam the 6th grader, Ben the 4th grader, Cathie and Mike. Whew. By the time you get through all these, it will be 2005!
Remember, you can click on the photo to see the birds on their website. (They told me THEY own it now. Pushy, aren't they?)
cathie Feathers 'n Smiles Texas, Haldago Bay http://haldago.org <haldago@earthlink.net>
houston, - Wednesday, December 31, 2003 5:30 PM CST
Dear John and family
I found your site while I was visiting gooch, I simply had to pass by when I saw that you are active in raising money and awareness about neuroblastoma, my fifteen year old daughter is suffering this deadly disease. Through my reasearch I have found that there really is a need for action such as yours. For my Michelle there is little hope now, but in her memory I would like to be able to do something significant, as there is not a lot here in the U.K, to my understanding, It is one of the least funded areas in medical research, due to it's rarity. Reading your site, gives me even more inspiration for my goal. thank you
May God Keep you Strong
Love
Jacqui
Jacqui Fray <ladyslix@hotmail.com>
liverpool, united kingdom - Wednesday, December 31, 2003 11:18 AM CST
Merry Christmas and Happy New Year to you from your part of the country. What's all this talk about cold? It's warmer here than in it is at home!!! I hope your Christmas was tons of fun and you are settling in for a good, happy, healthy, peaceful new year. You are such a blessing in our lives!
Love,
Kristin (from Jefferson City, MO)
Kristin Connor <kristin.connor@agg.com>
Norcross , GA - Sunday, December 28, 2003 5:53 PM CST
Love everyone at Post Pals
viks <viks@postpals.co.uk>
- Monday, December 22, 2003 6:42 PM CST
Sam and Ben are certainly creative, aren't they?! They were clowning around and with a simple hat, paper towels for a beard, and lots of pillows...emphasize LOTS....they came up with these costumes that they wanted to share with you. I don't know, I think Ben (on the right) looks more like a very well fed Sumo wrestler!
It was fun to see them waddling around, and FORGET trying to sit down...they plopped right off the chairs. (That is, the chairs they managed to even make contact with. With so much stuffing, they couldn't see where they were aiming and usually ended up on the floor. They didn't feel a thing with so much padding, though!) They eventually gave up, so the costumes weren't on very long, needless to say. Thank goodness, I was worried about my pillows' stuffing!
cathie Feathers 'n Smiles Texas, Haldago Bay http://haldago.org <haldago@earthlink.net>
houston, - Monday, December 22, 2003 2:19 AM CST
Dear Jen,
At first I did not recognize your name in your e-mail but as soon as I saw the CB address for John I did know! Thank you so much for sending me that Target information. I am vaguely aware of that school-donation program-hmmm, I'm wondering if that might be an enticement for Target to stop.
I will hope and pray that John does win this battle! I don't know if this helps, but I seem to know a lot of children who DO beat this cancer.
Thank you so much, also, for you kind words. If I can ever do anything for you, let me know. I mean it.
God bless,
The Paquette's: Monica, John, Aubrey, Saint Gabbie, and Noah
Monica Paquette <mj.paquette@att.net>
Minneapolis, MN - Thursday, December 18, 2003 6:56 PM CST
Dearest John
I gently wrap warm thoughts of you
in my little christmas prayers
For Heaven to smile on you
For Angels to watch over you
and the love of Jesus to fill your heart
Have A Merry Christmas
God Bless You And Your Family This Holiday
Chris Ullrich - Grand daughter dx with AML M5 <c_ullrich@msn.com, www.caringbridge.com/page/isabellaledesma >
Hemingford, Ne USA - Wednesday, December 17, 2003 0:36 AM CST
Stopped by to spread some holiday cheer around. You all are in our thoughts and prayers as we ask our HEAVENLY FATHER to wrap his loving arms around you and grant you a joyous holiday season filled with love. GOD BLESS. Sending lots of love from above - ANGEL COLBY JAMES COLE AND CREW.
jack - colby's daddy forever and ever
www.caringbridge.org/pa/colby, UNIONTOWN PA - Tuesday, December 16, 2003 8:23 AM CST
I love the Dare to be a Daniel! Very good. Sorry you are feeling a bit down and not getting the exact news you would like to hear. I hope your holidays bring many warm memories.
Eileen www.caringbridge.org/il/ej - WOULD LOVE TO HAVE ONE AND ALL COME TO VISIT. THANKS
- Tuesday, December 9, 2003 8:16 PM CST
Jen,
Thanks for sharing the "Dare to be a Daniel".
I really like it. And not only because I have a Daniel at home! :o)
We are supposed to be getting a snow blizzard tonight here in the twin cities..so we may be snowed in tomorrow! I doubt it though..the news people always cry wolf so I'm not too concerned.
Hope we do get enough for the kids to play in though!
Just checking in to say Hello!
Love and Prayers Always,
Sara
www.caringbridge.com/mn/danielhammer <hammertime311@comcast.net>
- Saturday, November 22, 2003 9:59 PM CST
~~KATIA'S PAGE~~
TRACY AND KATIA <TMSOL87@AOL.COM>
- Saturday, November 22, 2003 8:13 PM CST
Well, our flock certainly is getting interesting. We got Dasani, the Blue Headed Pionus just a few weeks ago, and now we've added our fifth (and final) member. I felt bad for Dasani, because he is smaller than our amazon, macaw, and Congo African Grey....so we got him a pal! Meet Mokuba, aka "Moki." (Mokuba is Kaiba's younger brother on YuGiOh) Moki has such a brilliant yellow! He is a Jenday and absolutely adores Dasani. He has pretty blue and purple tail feathers, too. They wanted you to know they're thinking about you!
cathie Haldago Bay http://haldago.org <haldago@earthlink.net>
houston, - Friday, November 21, 2003 2:26 PM CST
TOO FUNNY!!!! The Bogert girl's enjoy their Ceder Mount Kids as well only we rewind and rewatch There were 10 in the bed roll over roll over!!! UGH!!! Payton fell in love with this lovely song about a year and a half ago. At last, I thought I had her off it when one day from the rear of the car I hear Madison say "roll over". Yes, she too likes this song and now wants to hear it repeated-thank god for the repeat key on the CD player and repeat mode on the DVD. Yes, I was stupid enough to purchase both so I can listen to it in the car and watch it at home!! YAHOO!!! As the kid says inthe tape kids like to watch them over and over again!
I am sorry to hear that your LONG journey with John's scans continue. I don't know how you wait so patiently. You are a better woman than me. As always, I think of you and John and sure hope you get GREAT scan results next time. Hoep the steriods don't make him too grouchy for you!
Talk to you soon.
Gin Bogert
www.caringbridge.org/fl/paytonbogert <ginbogert@yahoo.com>
- Tuesday, November 18, 2003 9:46 PM CST
Hello Jen and adorable John!
I am glad to hear of stability in the scans but, like you am waiting to hear CLEAR!
Here is a moment of serenity for you To John and Jen
I will keep praying for CLEAR and for those donations to keep pouring in.
Love n hugz and many prayers
Katelynns Quest To Find A Cure!
Maria <regattacrew68@bellsouth.net>
- Tuesday, November 18, 2003 6:30 PM CST
Happy Halloween from us goblins and ghouls over in Houston! (Well, okay, Ben is a YuGi and Sam is a ninja!) We are thinking about you. It was a steamy 80 degrees tonight, so all the witches, frankensteins, mummies and whatnots were pretty hot trotting around the neighborhoods. We wanted to wish you a great evening!
cathie Feathers 'n Smiles Texas, Hugs and Hope <haldago@earthlink.net>
Houston, - Friday, October 31, 2003 11:24 PM CST
Thinking of you all
Chanda & Jake <courtneychanda@yahoo.com>
- Thursday, October 30, 2003 3:46 PM CST
John,
I found your page through another caringbridge page. I hate to hear about your breathing I will be prayign for you each and everyday. Love in christ
www.caringbridge.org/ky/sweetpeascorner
Kelli Froman <lilk_21@yahoo.com>
Louisville , KY US - Tuesday, October 28, 2003 3:02 PM CST
My dear friend Jen: Our lives take similar paths once again as you experience your pre-scan anxiety and I experience my pre-surgery terror. I am praying like crazy that answers are forthcoming and that the unknowns will start to disappear. You are an incredible mom and person, and I know that you will continue to fight for your child and find answers. Much love, Kristin
Kristin Connor <kristin.connor@agg.com (www.caringbridge.org/ga/brandonconnor)>
Norcross, GA - Monday, October 27, 2003 8:08 PM CST
This little cutie just dazzled me when I visited the bird nursery..so we've added a FIFTH bird to our flock! I couldn't believe the sizzling blue coming through..and he's only TWO MONTHS old! He's a boy (they did a DNA blood test) and he wobbled onto my finger and said, "Dah bop?" My heart went "pit pat" and the rest is history. I was lucky, because these guys aren't that common. This breeder has only had one other one...five years ago!
We are known for our unusual and original bird names. Well, this little guy is a BLUE HEADED PIONUS. So, meet DASANI. You know, like the BLUE bottled water by Pepsi? And guess what his nickname is? SONIC, (derived from the "sani") another BLUE item, ie, the Sega blue mascot? (think video games) How perfect!
Dasani will have a hot blue/purple head, it's awesome! But what you'd love the most is their smell. They have a fruity smell! Dasani smells like a cherry-orange mix! Well, we just wanted to share our baby news with you. Dasani will be in the nursery for another month or so. Bye for now, more bird pics coming soon.
cathie Feathers 'n Smiles Texas, Hugs and Hope <haldago@earthlink.net>
Houston, - Monday, October 27, 2003 12:06 AM CST
Hi John and everyone!
Just checkin' in on ya'll!
I LOVE the pictures..so, so cute!
I too will keep John in my prayers..that you get some answers and they are all teriffic ones! Keep the faith!
Take Care and God Bless!!
Your Friends,
The Hammer's
www.caringbridge.com/mn/danielhammer <hammertime311@comcast.net>
- Monday, October 27, 2003 9:42 AM CST
Stopped by to say hi to everyone and let you know that you all are in our thoughts and prayers. GOD BLESS. Sending lots of love from above - ANGEL COLBY JAMES COLE AND ARMY.
jack - colby's daddy forever and ever
www.caringbridge.org/pa/colby, UNIONTOWN PA - Sunday, October 12, 2003 9:15 PM CDT
Hi John! Instead of posting my birds' pictures, this time I thought we'd go wild. This is one of 300 pictures I took. Did you know Indochinese tigers LOVE to swim? They do. We watched these two for about an hour at the Houston Zoo. They have a huge area to lounge around in, and a wide "river" to swim in. The Houston Zoo is known for its natural habitats...some are so good, you can't see the animals. We never did spot the leopards (no pun intended.) which were hidden up in their rocky area.
Here's some fact about these tigers for you! They are found in mainly in Thailand, but also Cambodia, China, Malaysia, Myanmar, Jamaica, Virgin Islands (U.S.)
They like forest but also hills and mountainous areas. Their stripes are narrower than the Bengal tiger..but folks OFTEN get these guys mixed up! And guess how much they weigh when they are born? TWO ounces! The mom usually has 2-4 babies and by a year and a half old, they are skilled enough hunters to say, "See ya later!"
Click on the picture to go to the Houston Zoo page ..I've linked you the page where you can click on any of the mammals and see great pictures and facts. (I spent about an hour surfing the page myself! You can also go to birds, fish, reptile pages, etc.) Enjoy!
cathie Feathers 'n Smiles Texas, Hugs and Hope <haldago@earthlink.net>
Houston, - Thursday, October 9, 2003 5:36 PM CDT
My yellow nape amazon, Tripoli, thought you'd like a picture of a bird in your guestbook. She is a show off! Did you know she she sings Yankee Doodle, Saints Come Marching In, and Old Mac Donald Had A Farm? She also says 150 different things, such as (wolf whistle) "Wow! You're a ten!" Other things are "You're my baby," and "I love you" and "Whatcha doing?" and "I want outside!" She also tells me, "I want food." She also does MY laugh then says, "You're funny!" The last time I corrected her singing, she told me, "There ya go!" like SHE was teaching ME!
We are working on "Uh oh. I taste like chicken." Aren't I mean? Hee hee hee. Total, I have four birds. Tripoli, Pompeii (a severe macaw) Callao (a Half Moon Conure) and Mirage (a Congo African grey) They keep me busy! We're all thinking about you Jen, and praying for that soft tissue mass in John's abdomen and for tolerance with those steroids.
(BTW, If anyone who owns birds would like to join our Feathers 'n Smiles group, just click on the picture. We sign guestbooks of these wonderful kids and tell them briefly about our birds. )(You don't have to do pictures.)
cathie Feathers 'n Smiles Texas, Hugs and Hope <haldago@earthlink.net>
Houston, - Tuesday, October 7, 2003 11:50 AM CDT
Okay I am sending CNCF a check, and posted in on Goochs site and the Adopt a Kids site. If smokers would just stop for one week we would have TONS of money raised!
Chris ~ Gooch's Site ~
- Saturday, October 4, 2003 9:01 PM CDT
Hi Jen, John n family :)
I don't know how I got to your site, but I am glad I did.
I will check up with you often now that I have found you.
I feel for you, this is a scary disease that, until my own daughter was diagnosed, I had never heard of. John looks like such a happy, handsome little guy. It is hard to believe he is living with this. I do so pray that everything goes well for him, and that one day he will be free of all what is going on, to live a proper fun life with out the hassles and worries that nb can bring
You will always be in my prayers
love
Jacqui n Michelle
jacqui fray <ladyslix@hotmail.com>
liverpool, United Kingdom - Friday, October 3, 2003 2:35 PM CDT
Hi. My name is Malissia Loucks. I just found your sight. My daughter was diagnosed with neuroblastoma as an infant too. She was a little over 4 months old. I will be praying for John. Come visit Abigail's website, and we can share our experiences. She is only a month and a half older than John.
Malissia Loucks <www.caringbridge.org/nc/abigail>
Charlotte, NC - Friday, October 3, 2003 1:33 PM CDT
Hey Jen~
Just checking in. Hoping your days are filled with LOTS of sunshine and laughter. John looks like a completely happy little snuggle bug. Have a great day.
Chanda & Jake
- Monday, September 29, 2003 8:01 AM CDT
Hey there...Sorry it has been so long since I signed in but we have been stuck in Durham at Duke for a while now and my laptop truly tries my patience (and it usually wins)
Anyway, I will keep John in my prayers that the wheezing and the stuff in teh x-rays will soon be resolved...
You all remain in our thoughts and prayers...I still just love that baby's smile :):):):):):):)
Keep pushing for what you believe in...if you really feel that the port is the best for your baby then make it happen...it is NEVER an overreaction if takes away at least some of the pain and "torture"
In Love & Prayer...Eleasha & Cody <www.forcody.org>
VA - Monday, September 22, 2003 3:17 PM CDT
I read your entry and it sickens me that these kids have to go through this. Its such a damn shame he has to endure this, and then be terrified of the doctors and the clinic on top of it. Theres no reason it should take 45 mins to get blood, thats ridiculous. You must have been beside yourself .
Chris ~ Gooch's Site ~
- Thursday, September 18, 2003 0:01 AM CDT
JOHN YOU ARE SUCH A BEAUTIFUL LITTLE BOY, AND MY HEART GOES OUT TO YOU BECAUSE I HAVE SEEN THE PAIN YOU HAVE HAD TO ENDURE. MY GRANDAUGHTER LEXY HAS NEUROBLASTOMA STAGE IV BUT IS DOING GREAT. I WILL KEEP YOU AND YOUR FAMILY IN OUR PRAYERS.
LEXY’S WEBSITE
PAT NEWTON <pnewt4@aol.com>
NEDERLAND, TX - Monday, September 15, 2003 9:30 PM CDT
I read your journal entry with a big sigh of anguish. WHY does it always have to be this way?! WHY do our children have to endure this torture, and WHY do WE have to endure our own kind of torture with the neverending questions and the NEVER forthcoming answers!?!?! I am so frustrated for you! Forge ahead, Jen, for the answers you seek. Demand them. Don't stop until you get them. You're an awesome mom, and I know you'll continue to fight this battle for John until you know he's in the right hands receiving the right kind of attention! You're always in my prayers and in my heart!
Kristin Connor <kristin.connor@agg.com>
Norcross, GA - Thursday, September 11, 2003 9:25 PM CDT
Hello Jennifer,
What a beautiful family you have! I have been deeply moved by all that you and your family have been going through. John Henry is only a month older than my daughter Sami. You are all in our thoughts and prayers!!!
Love Always,
Dani, Dwayne, Sami, & Baby Miller
Danielle Miller <Ezgrader1@aol.com>
Somonauk, IL USA - Monday, September 8, 2003 3:21 PM CDT
HELLO PHIL AND BECKY AS WELL AS FAMILY. I AM KELLEE, I WORK WITH PAT AT WESTLAKE. I HAD THE WONDERFUL OPPORTUNITY TO MEET YOU ALL A WHILE BACK. EVER SINCE PAT INFORMED ME ABOUT JOHN HENRY'S RARE CONDITION, YOU AND YOUR ENTIRE FAMILY HAS BEEN IN MY PRAYERS. JUST REMEMBER TO KEEP THE FAITH NO MATTER WHAT!!! GOD IS A MIRACLE WORKER AND HE KNOWS JUST HOW MUCH YOU CAN BARE. LOVE YOUR CHILDREN EVERY MINUTE OF THE DAY, BECAUSE THEY ARE ALL A GIFT FROM GOD. STAY STRONG AS HUSBAND AND WIFE BECAUSE YOU WILL NEED TO SUPPORT ONE ANOTHER THRU THIS. AND I WILL LIFT YOU'RE FAMILY UP IN PRAYER AT BIBILE STUDY WEDS NITE. GOD BLESS AND TAKE CARE.
KELLEE CLIFTON-WILLIAMS <KELCLIF@YAHOO.COM>
BROADVIEW, IL USA - Monday, September 8, 2003 9:00 AM CDT
Jennifer,
I am glad to always get the updates from your mom. Even though I am so far, I am still thinking about you, your family and the unending strength of John Henry.
Lora Blume
Phoenix, AZ USA - Sunday, September 7, 2003 11:13 PM CDT
Hi Jennifer,
I am Corey's sister and I haven't seen you in years and years. Corey emails me updates on John Henry and we are praying for him. You have a beautiful family :-)
Fran Adams
Sugar Grove, IL USA - Sunday, September 7, 2003 8:11 PM CDT
WHAT AN ADORABLE CHILD! YOU ARE CONTINUALLY IN MY THOUGHTS AND PRAYERS AND MAY THE BEST OF LUCK COME YOUR WAY! ALWAYS BELIEVE AND ANYTHING IS POSSIBLE!
GOD BLESS
- Thursday, September 4, 2003 2:17 AM CDT
Hi little fella, you are such cutie. I found your link on Jake's page. I will be praying for you and your family that everything remains good with you
Love
Jacqui n Michelle
http://www.caringbridge.org/europe/jacqui
jacqui fray <ladyslix@hotmail.com>
liverpool, United Kingdom - Monday, September 1, 2003 10:41 AM CDT
Thinking of you.
Chanda & Jake
- Monday, August 11, 2003 3:16 AM CDT
Thanks for checking in on us and letting us know that you are praying...it means the world to us to have so much love and support...you all are in our thoughts and prayers daily...
In Love & Prayer...Eleasha & Cody <www.forcody.org>
- Friday, August 8, 2003 10:44 PM CDT
Thank you so much for dropping by Katia's page and signing her guestbook:) We pray for you little John daily. Love, Tracy
Visit Katia's Page and sign her guestbook:)
(Leukemia AML M4)
Tracy and Katia
- Thursday, July 31, 2003 12:59 AM CDT
Love the new picture...you all are in our thoughts and prayers every day...
In Love & Prayer...Eleasha & Cody <www.forcody.org>
- Thursday, July 31, 2003 7:34 AM CDT
We are sending lots of love and good thoughts, and strength all the way from across the country!!
Hello and Happy Summer!! Sending you lots of prayers and love toward good health and long life!!
HAYDENSHOUSE
Hayden and Mamaw Christina(grandmother) <haydenshouse@hotmail.com>
- Wednesday, July 30, 2003 8:57 PM CDT
Continuing to pray for John. I think of him often and hope he continues to fight this horrible disease. Stay strong little buddy.
Kris Wolf <wolfie01@mchsi.com>
Spring Valley, MN - Tuesday, July 29, 2003 5:48 PM CDT
Dear Jen:
I absolutely cannot believe that, after all this time, I am just now learning of John's website! WoW! I'm so glad to have some place to check before sending my frantic emails for news. Your journal post truly brought tears to my eyes. THANK YOU! You, too, have been a wonderful friend through this ordeal!
Much love, Kristin
Kristin Connor <www.caringbridge.org/ga/brandonconnor>
Norcross, GA - Monday, July 28, 2003 10:31 AM CDT
DOES BRANDON HAVE A SITE? IF NOT WE ARE PRAYING FOR THEM SO MAYBE YOU CAN PASS THAT ON FOR ME. I AM GLAD NEWS ARE GOOD:) I CHECK EVERYDAY FOR UPDATES AND I ALWAYS TRY TO THINK, "NO NEWS IS GOOD NEWS" BUT SOMETIMES "NO NEWS IS NO INTERNET CONNECTION:)" LOVE, TRACY
Visit Katia's Page and sign her guestbook:)
(Leukemia AML M4)
TRACY AND KATIA
- Sunday, July 27, 2003 1:39 PM CDT
I just recently adopted John. He is such a cutie. I hope all is well with you and that John is feeling great. I will check up on him again very soon.
Kris Wolf <wolfie01@mchsi.com>
Spring Valley, MN USA - Saturday, July 26, 2003 6:09 PM CDT
I love your front page photo! I just wanted to check for any updates and say HELLO!
Visit Katia's Page and sign her guestbook:) (Leukemia AML M4)
Tracy and Katia
- Saturday, July 26, 2003 12:08 AM CDT
Hey cutie, praying your levels go to where they should be
Chris ~ Gooch's Site ~
- Thursday, July 24, 2003 4:08 PM CDT
John is so adorable!! I am praying for him and your family
Cathy Rusyniak <Garbmike@optonline.net>
- Tuesday, July 15, 2003 1:18 PM CDT
I am praying for your sweet little baby, John. He is adorable!!! I am sure you hear that all the time:)
Visit Katia's Page and sign her guestbook:)
(Leukemia AML M4)
Tracy and Katia
- Sunday, July 13, 2003 11:53 AM CDT
Found your link through Cody. I will be praying for your little John and check back often.
Visit Katia's Page and sign her guestbook:) (Leukemia AML M4)
Tracy and Katia
- Friday, July 11, 2003 11:04 AM CDT
I just love the new picture...JOHN is just SOOOOOOOOO CUTE! I hope that all is well and that those levels will go away soon...
You are in our thoughts and prayers...
In Love & Prayer...Eleasha & Cody <www.forcody.org>
- Wednesday, July 9, 2003 8:25 PM CDT
Thinking of you. Just found out that Ayden has dammage to his trach from being intibated so many times as an infant and that is the ongong cough he had for so long. Apparently you can have all degrees of damage. We found this out from an ears nose and throat specialist. Just wondering if you ever looked into that for John and his breathing and cough situations? Hope I could be of some help
Josie Pynn www.caringbridge.org/canada/ayden <josie_pynn@yahoo.com>
Pembroke, ON Canada - Tuesday, July 8, 2003 11:21 PM CDT
Thanks so much for stopping by to check in and leave a message...I just can't get over how sweet your baby looks...I just love, love, love him :)
Anyway...even thoughh Cody continues to have high amounts of the CMV virus in all of his test, we have been exteremly blessed that he has continued to stay A-Symptomatic...he spends his days after clinic running around, playing, and driving me crazy...I could not ask for anything more (except for of course a negative CMV test)
I have been praying for John a lot and it is my sincerest prayer that he will soon be healed from this terrible disease and remember the pain no more...I will add the sanity prayer for mom and dad :)
In Love & Prayer...Eleasha & Cody <www.forcody.org>
- Sunday, July 6, 2003 7:34 PM CDT
Glad for the good news! Happy 4th!
Lindsey <caringbridge.org/va/lindseynicole>
Henry County, VA - Thursday, July 3, 2003 11:22 AM CDT
Hi!
That is great news about the CT results!!
We will be awaiting more great news too!
God Bless!
Love,
Sara
The Hammer's <www.caringbridge.com/mn/danielhammer>
Lakeland, MN - Wednesday, July 2, 2003 10:24 PM CDT
Hey John! I hope ur doing well.
Love always in Christ,
Lindsey <caringbridge.org/va/lindseynicole>
Henry County, VA - Tuesday, July 1, 2003 7:26 PM CDT
Hey John! I hope ur doing well.
Love always in Christ,
Lindsey <caringbridge.org/va/lindseynicole>
Henry County, VA - Tuesday, July 1, 2003 7:25 PM CDT
Hi John! You are such a cute little baby. You remind me of my little cousin, Dylan, he will be 1 in October. I hope that cancer will be gone shortly. ~Love 'n Hugs~
Love always in Christ,
Lindsey <www.caringbridge.org/va/lindseynicole>
Henry County, VA - Saturday, June 28, 2003 11:46 AM CDT
Dearest John and Family,
What a Beautiful Boy!!!
Please know our Prayers are with you all!!!
God Bless
Chris Ullrich-Bella's Grammy <crullrich@bbc.net, caringbridge.com/page/isabellaledesma>
Hemingford, Ne USA - Friday, June 27, 2003 3:14 PM CDT
What a sweetheart!! Our love to you!!
The Thomas Team
Christi's Mommy (6 yrs. NB - IV) refractory disease <www.ChristiThomas.com>
Tiffin (MSKCC), OH - Tuesday, June 17, 2003 9:22 PM CDT
Hi John, I am writing you all the way from a very sunny and hot Italy. Way to go with all those steps you are taking, WOW ! A very big hug to your whole family.
CIAO CIAO CIAO CIAO CIAO CIAO CIAO CIAO CIAO CIAO CIAO CIAO
Sabrina <morini@agriflex.it>
Forlě, FC Italy - Friday, June 13, 2003 8:23 AM CDT
I hope things are going well there, and I hope you know we are all pulling for you and praying for you!
Chris
~ Gooch's Site ~ * * ~ Adopt A Kid's site ~
- Thursday, June 12, 2003 9:22 AM CDT
Hey John !!
Just stopping by and checking in. Hoping you are feeling better soon. Awesome news on those BIG STEPS you are taking ! ! !Hope to meet you soon...
XO
Chanda & Jake
- Monday, June 9, 2003 7:50 AM CDT
Hey there...Just wanted to let you know that we continue to check in on you all daily...I am sorry to hear that John hasn't been feeling 100% but so glad to read that he started walking...HOORAY!!!!
By the way...you're really not crazy...that's just what they do to try and make you think they know more then youdo :)
It is our prayer beside you that the CT scan will show positive results and that your return to NYC will bring you nothing but good news...
Stop by and see us sometime when you have time...
Stay well...
In Love & Prayer...Eleasha & Cody & Greg & Riley <www.forcody.org>
- Sunday, June 8, 2003 4:56 PM CDT
Hi - I am from Quilts of Love - we make virtual quilts I would love for you to stop by and check us out? maybe you would let us have the honor of making a quilt just for you? hugs Angel Toto
^A^ Toto
- Friday, June 6, 2003 11:29 PM CDT
Hi Mr John Henry
We had such fun with you and Rebecca (our Princess)and Philly (our 5 year old Birthday Boy). You bring such joy to everyone's life.
May God Bless You and Remove ALL Disease From Your Little Body.
We Love You Sooooooooooooooo Much!
Grammy and Grandpa
Grammy & Grandpa Oshana
Chicago, IL - Monday, June 2, 2003 9:43 AM CDT
Hey John,
Sure hope you are starting to feel better. Have a real fun week!
Hugs,
Kathy haws
Thousand Oaks, CA - Sunday, June 1, 2003 1:30 AM CDT
I'm so sorry to hear about the ordeal John has gone through. My son Nicolas was also dx with neuroblastoma but he was 10 months old at the time. My world was shatted at the time. Why we are chose to go through these thing I still do not know, what I do know is if I could have one wish in the world it would be that all children and babies never have to go through this not cancer not any type of disease, nothing. I really hope John gets better, he is a beautiful baby. Please know that you will be in our prayers every day!!
Jeannie <jadbemi@hotmail.com, caringbridge.org/tx/nicben>
Eagle Pass , Tx - Wednesday, May 28, 2003 4:07 PM CDT
You know I check in on you every single day and I am sooooo sorry to keep reading that you have to deal so much garbage...but I am so impressed that you are able to keep such an awesome sense of humor through it all...I can relate to the lab in the basement so much...when Cody had to get his radiation we had to go to the "lab in the basement" too...we would wait and wait for a whole lot of nothing...
Anyway...sleep is so over rated anyway...and you know you will get plenty of sleep when you pass on to the next life, until then live it up and remember to savor each and every minute of each every moment of each and every night you have the chance and are given the opportunity to get up and spend it with your beautiful baby "J"
We continue to lift you and your fmaily up in prayer...stay strong miss Jennifer...God picked the best mom for John.
GOD TAKES CARE IN PICKING MOMS FOR "SPECIAL" KIDS
Most women become mothers by accident, some by choice, a few by social pressures and a couple by habit. This year, nearly 100,000 women will become mothers of handicapped children. Did you ever wonder how mothers of handicapped children are chosen??? Somehow I visualize God hovering over earth selecting His instruments for propagation with great care and deliberation. As He observes, He instructs His angels to make notes in a giant ledger. God passes a name to the angel and smiles, "Give her a handicapped child." The angel is curious, "Why this one God? She's so happy?" "Exactly," smiles God. "Could I give a handicapped child to a mother who does not know laughter? That would be cruel." "But has she patience?" asks the angel. "I don't want her to have too much patience or she will drown in a sea of self-pity and despair. Once the shock and resentment wears off, she'll handle it. I watched her today. She has that feeling of self and independence that is so rare and so necessary in a mother. You see, the child I'm going to give her has his own world. She has to make him live in her world and that's not going to be easy." "But, Lord, I don't think she even believes in you." God smiles. "No matter. I can fix that. This one is perfect. She has just enough selfishness." The angel gasps, "Selfishness? Is that a virtue?" God nods. "If she can't separate herself from the child occasionally she'll never survive. Yes, here is a woman whom I will bless with a child less than perfect. She doesn't realize it yet, but she is to be envied. She will never consider a step ordinary. When her child says 'Momma' for the first time she will be present at a miracle and know it! When she describes a tree or a sunset to her blind child, she will see it as few people ever see my creations." "I will allow her to see clearly the things I see . . . ignorance, cruelty, prejudice . . . and allow her to rise above them. She will never be alone. I will be at her side every minute of every day of her life because she is doing my work as surely as she is here by my side." "And what about a patron saint?" asks the angel, his pen poised in mid-air. God smiles. "A mirror will suffice."
-Author unknown
In Love & Prayer...Eleasha & Cody & Greg & Riley <www.forcody.org>
- Friday, May 23, 2003 7:46 AM CDT
Hi Guys!
Just wanted to say hi and let you know that John and your family are still in our thoughts and prayers. I hope that you were able to get the urine markers done, and that they turned out to be within normal levels. I admire your strength, Jennifer. You've had to deal with so much frustration and many unanswered questions. Hang in there!
Love,
Virginia & Jay B. <wmc82vm@hotmail.com>
RMDH, NY - Thursday, May 22, 2003 5:00 PM CDT
Just wanted to tell you that I am praying for your family.
DeAnna (Chase's mom, dx'ed 9-01 w/ an anaplastic astrocytoma) <www.caringbridge.org/ga/chasesmiracle/>
ga USA - Tuesday, May 20, 2003 11:35 PM CDT
Hey there...just checking in to see how things are going...we continue to keep you all in our thoughts adn prayers every single day...I hope that your beautfiul baby is feeling better and that the docs have finally figure dout what to do next...hope you had a really great Mother's Day weekend...
In Love & Prayer...Eleasha & Cody & Greg & Riley <www.forcody.org>
- Tuesday, May 13, 2003 10:43 PM CDT
Happy Mother's Day!!
Susan Wensel
- Monday, May 12, 2003 9:37 AM CDT
HAPPY MOTHER'S DAY TO YOU...HAPPY MOTHER'S DAY TO YOU!!!
In Love & Prayer...Eleasha & Cody & Greg & Riley <www.forcody.org>
- Saturday, May 10, 2003 9:24 PM CDT
Dear Jennifer, John & Family
Thank you for stopping by Carl's website!!! We have been very blessed with such wonderful support from family and friends, I am always so pleased when I see, or hear of one of our faithful supporters visiting anothers website and offering support to another family!!!!! John is just a little Dolly, what a precious sweetie!!!!! Maybe we will get to meet sometime that our paths may cross here in NY, or possibly the conference. We are trying to go, but may be right in the middle of an antibody round??? Will have to see how it all plays out. Thanks again, and we will also be keeping your family in our Prayers!!! God Bless you all
Love & Prayers
Kelly Robisnon
& Carl
Kelly Robinson <www.caringbridge.org/mn/carcar>
MSKCC, NY - Thursday, May 8, 2003 4:39 AM CDT
Wow I am glad to see the lactose free had such an impact. Thinking of you guys...
Chris ~ Gooch's Site
- Wednesday, May 7, 2003 8:39 AM CDT
John,
Hello big guy. My name is Jerri and I happened upon your site tonight and am I ever glad. I have a healthy 6 year old grandson, Kaden, and we pray daily for sick kids. We are friends of Carl Robinson who is at MSCC in NYC right now with NB Stage IV. He just started antibody therapy on Monday May 5 after having his SCT 3-11-03 at Sloan.
Your Mommy writes the best journals I have read in a long time in terms of the expressions she uses for your Drs.
I have been a critical care nurse for 25 years and I so understand what she means by the 4 twiddles!!!
I pray that you are feeling better each day and that your scans will never show uptake again. We have such a loving God that I know He will give you and your family the miracle you need for good health and NED.
Your picture is just adorable.
Celebrate and honor God. Be filled with joy and hope!
Philippians 4:4 "Rejoice in the Lord always. I will say it again: Rejoice!"
Good night sweetheart. It will be nice to be your penpals from SD.
Jerri McKinley and Kaden Mellema <pakrfan1@msn.com>
Sioux Falls, SD USA - Tuesday, May 6, 2003 10:55 PM CDT
I was thinking about your baby this morning when I woke up...he is so cute...I actually think of him regularly especially when I am playing with my baby :)
I am so sorry that you are having such a difficult time right now...please know that we are praying for you every single day...
we have not been online for a few days because we were finally released to go home...HOORAY!
We are scheduled to go back to Durham for a clinic day on Tuesday and surgery on Wednesday...
It is my strongest hope that soon things will clear up and God will drape you with His neverending love and mercy and heal John completely...
In Love & Prayer...Eleasha & Cody & Greg & Riley <www.forcody.org>
- Friday, May 2, 2003 1:43 PM CDT
Sending positive thoughts and many prayers your way in this web of confusion about your sweet Baby John!
You guys are doing a great job..Keep it up!
God Bless You!
The Hammer Family <www.caringbridge.com/mn/danielhammer>
Lakeland, MN USA - Thursday, May 1, 2003 9:19 PM CDT
God Bless you and that sweet angel in the form of a little boy - words cannot express my sadness over reading this -
Stacy
Willard, Ohio USA - Tuesday, April 29, 2003 7:53 PM CDT
Hey Jennifer & John!
Thinking of you guys and hoping to meet you both soon.
XO
Chanda & Jake
- Sunday, April 27, 2003 7:15 PM CDT
Dear John Henry,
We know that you have had a HAPPY BIRTHDAY, because we watched you eat and wear the chocolate cupcake we brought over for you on your birthday, and we have the pictures to prove it. We also know that had a HAPPY EASTER, as we watched you opening your eggs from the EASTER BUNNY.
As we watch you now, sleeping on our couch, we know that you will have a great time at your birthday party tommorrow.
As you are made in the image and likeness of GOD, we know that the healing process is working, even if it is not evident at the present time. WE LOVE YOU and CHERISH YOU !!!
B & D
B & D <HANKKWAS@CS.COM>
Chicago, IL USA - Friday, April 25, 2003 9:08 PM CDT
Hey Honey...Just wanted to take a few minutes to check on you...I have not a clue what you said but whatever is happening doesn't sound that good...I am sorry that you are having to deal with all of this and go through so very much...we will continue to keep you in our thoughts and prayers every single day...know that my heart and my prayers are with you today and every day...
In Love & Prayer...Eleasha <www.forcody.org>
- Friday, April 25, 2003 5:15 PM CDT
I have not signed your guestbook before although I have been checking on you frequently, I just want to send you my best wishes and to let you know I am praying for you, I hope that you get the answers that you are waiting for ASAP.
sharon shields <shrshlds@aol.com>
London, England - Thursday, April 24, 2003 7:57 AM CDT
Hi John,
I am thinking of you!
Lots of hugs,
Kathy Haws
Thousand Oaks, CA. - Thursday, April 24, 2003 1:00 AM CDT
Hello there. Sorry to hear you are going through so much lately. I will be keeping your whole family in my prayers as I know this must be very frustrating. I will continue to pray for Johns complete healing and moms strength to get through all this
Josie Pynn <josie_pynn@yahoo.com>
Pembroke, ON Canada - Wednesday, April 23, 2003 8:23 PM CDT
Please know that you are always in our thoughts and prayers and even though we may not comment often, we are always watching for the updates. Please take care & keep the faith.
Melanie Hadvab <mhlvsrh@aol.com>
Margate, FL US - Wednesday, April 23, 2003 9:10 AM CDT
Oh Jen!
I'm sorry to hear you didn't get any more answers after their meeting. There is something that is keeping them from thinking it is recurrent disease, even though the MIBG lit up. It must not look at all like NB?
We hope and will continue praying it is something VERY benign.It sounds like they can't even tell you the various things that it could be? It is so weird that they haven't seen anything similar in anyone else.
Anyway, we are very frustrated for you but also cannot even imagine the depths of your frustration!
We will keep our prayers strong for answers and good news soon!
God Bless,
The Hammer's
www.caringbridge.com/mn/danielhammer <hammertime311@comcast.net>
Lakeland, MN USA - Wednesday, April 23, 2003 9:07 AM CDT
Happy Birthday John! We check up on you often through your website. Sorry to hear all the craziness your parents are having to deal with...though the dwiddle dumb thing cracks me up everytime!!! We too are heading back to NY this week for another surgery and scans. hope you remember us. We met you last year in NY when you were there. My youngest daughter is only about a month younger than you and it sounds like you are both doing similar things. Payton is growing and doing well. Just hoping the scans come back OK this month and that the surgery is a success. Wishing you a great day and many happy more!
Gin, Payton and Madison Bogert www.caringbridge.org/fl/paytonbogert <ginbogert@yahoo.com>
Oviedo, FL USA - Monday, April 21, 2003 3:15 PM CDT
TO OUR MR JOHN HENRY
HAPPY 1ST BIRTHDAY JOHN HENRY!!! WHAT A 1ST YEAR YOU HAVE HAD. I REMEMBER HOLDING YOU MOMENTS AFTER YOU WERE BORN. I KNEW YOU WERE SOMETHING SPECIAL. YOU WON'T REMEMBER THIS BUT YOU PURRED LIKE A KITTEN. YOU WERE INCREDIBLE THEN AND ,IF POSSIBLE, YOU ARE EVEN MORE INCREDIBLE NOW. YOUR TINY LITTLE BODY HAS GONE THROUGH MORE IN ONE YEAR THAN MOST OF US GO THROUGH IN A LIFETIME AND YET YOU ARE HAPPY AND CHARMING AS YOU CAN BE. GOD IS WITH YOU ALWAYS. HE WILL PROTECT YOU AND WATCH OVER YOU. OUR PRAYERS AND OUR LOVE IS ALSO ALWAYS WITH YOU.
HAPPY BIRTHDAY LITTLE JOHN HENRY.
LOVE GRAMMY AND GRANDPA OSHANA
Grammy & Grandpa Oshana
Chicago, Il USA - Monday, April 21, 2003 10:42 AM CDT
HAPPY BIRTHDAY JOHN!!!!!
I hope that you guys had a good Easter. Did John see the Easter Bunny?? It was so good to see Jennifer and John in NY. It seems like forever since last summer when you all were here. John is such a cutie! Phil, Jay says that if John needs to come back to NY, you better come too!! Try to hang in there - I know how frustrating this all is. We continue to keep your family in our prayers.
Love & Hugs,
Virginia and Jay Barnett <vlm1960@hotmail.com>
RMDH, NY - Monday, April 21, 2003 8:00 AM CDT
OH! Almost forgot!
HAPPY 1st birthday, John!!
God Bless You today and everyday!!!!!
The Hammer's <hammertime311@comcast.net>
Lakeland, MN USA - Sunday, April 20, 2003 10:49 PM CDT
Hi Jen and Phil,
We check your site very often and as always John is in our prayers!
We hope and pray you will have your answers soon and will be able to breathe a huge sign of relief!
You guys are doing such a great job with everything!
And it's good to see you can try to keep a sense of humor about some things..I know that often helps me from going completely mad! :o)
Take care and we are wishing you many many blessings!
(and answers!)
Love,
Sara and Vic
www.caringbridge.com/mn/danielhammer <hammertime311@comcast.net>
Lakeland, MN USA - Sunday, April 20, 2003 9:50 PM CDT
After reading about John on Jay's page I realized that you were sitting with us in the waiting room of Clinic the other day. My son is Michael Romano. Waht a cute little guy John is. He was a hit with the kids. I will keep him in our prayers.
Sharon Romano <Sharomano@aol.com>
Bayonne, NJ USA - Sunday, April 20, 2003 9:06 PM CDT
HAPPY EMPTY TOMB DAY!!!!! HOPE YOURS IS FILLED WITH MANY NEW BLESSINGS!
IT IS MY HOPE AND PRAYER THAT YOUR FAMILY WILL SOON FIND SOME RESOLVE TO WHAT IS HAPPENING WITH JOHN...THAT GOD'S WILL BE DONE AND THAT YOU ARE GIVEN TEH PEACE AND STRENGTH THAT CAN ONLY COME FROM HIM!
In Love & Prayer...Eleasha & Cody & Greg & Riley <www.forcody.org>
- Sunday, April 20, 2003 4:57 PM CDT
Happy Easter John Henry!! We just wanted to let you know that we are thinking about you and praying for you daily!! We hope the Easter Bunny is good to you...you deserve it!! Love & Hugs!
www.akaida.org
Marie, Rick, Akaida & Adam <skylght@hotmail.com>
Shiloh, NC USA - Saturday, April 19, 2003 10:49 PM CDT
Hi John, I'm Angel Vicki to Akaida, and wanted to stop by and wish you and your family a very Happy Easter! I will pray for you and hope you will get better real soon..:)
Angel Vicki
Vicki Elam <bradnvicki@yahoo.com>
Klamath Falls, OR USA - Saturday, April 19, 2003 8:13 PM CDT
Just read most of the journal and want to let you know that I am adding John to my prayer list. I found his site from Akaida's site and also visited Jay's from your link. Want to wish you all a happy Easter and a BIG Happy Birthday to John! My best wishes for a successful outcome.
PS if you should e-mail, remove the "X" at the beginning, that's to prevent robots from collecting the addy and sending me unwanted junkmail.
Betty Lee aka Nightowl <Xnightowl1944@yahoo.com>
Glens Falls, NY USA - Saturday, April 19, 2003 8:12 PM CDT
Jennifer and Phil,
Thank you for updating the site.
I am sorry that John has uptake and it sounds like you still don't know what is going on. But if they want to repeat the tests in a month does this mean they think it could be negative? I wonder if they think something else is
making the MIBG positive then??
Well, again thank you for your updates..I check on John daily and he is always in our daily prayers.
Love,
Sara and Vic
www.caringbridge.com/mn/danielhammer <hammertime311@comcast.net>
Lakeland, MN USA - Saturday, April 19, 2003 9:51 AM CDT
Ahhhh...I remember those days of WONDERFUL TODDLER acrobatics. Jake just runs from me now. He booked OUT IN A MAD-DASH from the "finger-stick" room last week at Sloan. I swear he could beat anyone in a foot race. I hate we missed you. Thinking of you and hoping for the best.
Chanda & Jake
- Friday, April 18, 2003 11:02 AM CDT
Hi John,
I sure hope you have a fun Easter Bunny Day! You are in my thoughts and prayers.
Kathy Haws
Thousand Oaks, - Friday, April 18, 2003 3:05 AM CDT
Hey there cutie, I am glad to see that you are doing well. I hope that what Amie & I set out to do with the Adopt A Kids Site is working, and you have more people praying for you and visiting your site. I just wanted to take this opportunity to wish you a Happy & Healthy & Blessed Easter/Passover/spring time, whatever you prefer!!
Chris
~ Gooch's Site ~ * * ~ Adopt A Kid's site ~
- Thursday, April 17, 2003 11:39 PM CDT
Hello my name is Jenna and i was born with a bone disease. John's story isnpires me and he is in my prayers.
http://www.matmice.com/home/fighterandchampion
Jenna <hockeys_life@hotmail.com>
Kamloops, BC Canada - Thursday, April 17, 2003 10:44 PM CDT
Just dropping by to say hi...please know that I check in every day it has just been really crazy around here since we have all of our children here and they told us we can go home :):):):):):) NEVER A DULL MOMENT, I tell ya! You are in our prayers...
We are headed home on May 1st! HOORAY!!!!
In Love & Prayer...Eleasha & Cody & Greg & Riley & Jeremy & Marina <www.forcody.org>
- Thursday, April 17, 2003 10:07 AM CDT
dear Jennifer, you won't recognize my name but my husband and i met your mom and dad at the beach last summer. since then we have kept in touch and she has updated us on John Henry. i wanted you to know that you are in our hearts and prayers always. you are prayed for every week at my mother's prayer group in endwell, ny as well as every other week at my bible study here in the philadelphia area. know that through Christ all things are possible and i know you already know that through prayer many can help heal one. God's speed to you and your family. d.
donna knasiak <dkkacn@aol.com>
morton, pa - Wednesday, April 16, 2003 9:51 PM CDT
Sending you strength, love, hope and guidance.
Lora
Phoenix, AZ USA - Wednesday, April 16, 2003 11:24 AM CDT
Jennifer, remember me. When you were a little girl (how long ago) you lived across the street from me on Warwick. I met up with your Mother again and she is now keeping me informed about John Henry. My prayers are with you. Maybe when you come back to Chicago, I would like to meet the 'little one' and the others in your family. Take care. I am thinking of you.
Linda Brozynski <linda.brozynski@tdsecurities.com>
Chicago, IL USA - Wednesday, April 16, 2003 10:14 AM CDT
Hey there! I just wanted to let you know that I was thinking about all of you. I'm going to be back in Chicago for Easter, so Jen, if there is anything I can do while I'm back, please let me know. Take care and God Bless. I'll see you next week! Love ya!
Kristine Ippolito <krstnei@aol.com>
Los Angeles, CA USA - Sunday, April 13, 2003 3:52 AM CDT
The Robot sounds interesting. I wonder why they give spring break if they are going to give them assignments. The simple route would be wrapping papertowl rollers in foil for legs and attaching to end of wrapped shoebox(could use toilet paper rollers for shorter robot) and a small box for head. A little harder would be to use chicken wire to form body and head covered with foil. Still use either rollers and use matchbox cars for the feet that roll. So glad John had a good visit. I took my son camping at 6 months (he had had seizures, but had not been diagnosed with mps6 syndrome). Loved floating on our hands in the lake blowing bubbles. But I understand your concern about leaving the dock. When something goes wrong, it seems to take forever to get back to shore. Have fun on the boat and take care.
Darla Stewart, Illinois
- Saturday, April 12, 2003 5:09 PM CDT
We have been hard at work on the new website so I haven't much time to check in on "my kids" I saw that you were still having a rough week when I checked by yesterday but am glad to see that things have finally subsided...tweedle dee tweedle dumb, dumb and dumber will have things figured out soon...I have confidence...they may be slow but eventually (if you wait long enough) they catch up :):):):)
Anyway...we have a link on our site to John and I just had to tell you how in love I am with your little guy...he is soooooooooooooo cute...I showed everyone and Cody was like awwww mom he is cute! :) So there is something else to make you smile...
Hope your day is filled with lots of fun adventures...of course minus anymore fire escape climbing :)
In Love & Prayer...Eleasha & Cody & Greg & Riley <www.forcody.org>
- Wednesday, April 9, 2003 1:56 PM CDT
Jennifer & Phil,I have been following your trials with the 4 Tweedles. Sounds like ego to me also. I sometimes think the doctors should have all their disease and textbooks burned after being educated in them. My sons have never been textbook. Once upon a time my boys were given one of those blowup bop bags. It was a clown and stood about to my waist. It was great for relieving the frustration with the doctors. Hang in there, and remember, you are the expert on John. You also love him much more then the docs; so if Dr. TDee can't let go of her ego, demand your own consult with the Board.
Prayers for you, Faith in you, and Hugs.
Darla, Illinois <D6318_@hotmail.com>
- Tuesday, April 8, 2003 1:23 AM CDT
Jennifer and Phil, I just found out about your guest book and I wanted to drop a note. Jennifer, your dad has been keeping me informed about John for some time and I've always been concerned. What can I say that hasn't been already said,but I hope, as we all do, that John (I just saw his pic.on this sight,he's a good looking boy)pulls through in as short a time as possible.I'm sure it so frustrating at times when you can not get answers, and all you want is for your son to get better. Keep the faith and never give up.My prayers and love to you all. Chuck
Chuck Miller <ccascade101@aol.com>
Lantan, Fl Palm Beach - Saturday, April 5, 2003 12:51 AM CST
Hello NEW YORK!!!! Goodbye Tweedle Dee, Tweedle Dumb. Tweedle Dumber, Tweedle Dumbest!
Start spreading the news...I'm leaving today...I want to be a part of it...In Old New York! These morbid test skills...are leading the way...We want to find our piece of mind...in Old New York...dah dah dah dah dah...
Just know you are his parents...and besides being John advocates and caregivers...you have to do what is best for him, you and your entire family...there is nothing like piese of mind...so go get some...Tweedle Dee doesn't have to agree with your decisions...only Jennifer and Phil do :)
So there is my two cents hope it helps...Think of us while you make your way through New York and take pictures...we have never been there :)
In Love & Prayer...Eleasha & Cody & Greg & Riley <www.forcody.org>
- Friday, April 4, 2003 6:45 PM CST
BRAVO to you, Jennifer and Phil!
Bravo to you!!
Morbidly aggressive treatments, huh?
ha ha
Well, I must say I would also have opted for the "morbidly aggressive surgery" than the morbidly agressive CHEMO option that was given to you as your first(and only!) option!
I am sorry, however, that we will just miss you in NY, by a couple of days. We are coming home on the 12th.
We have complete faith in the Doc's at MSKCC.
I hope you get your answers! Boy, do you guys deserve them!
Also, keep making decisions based on what makes the most sense to you!
God Bless!
Victor and Sara Hammer
www.caringbridge.com/mn/danielhammer <hammertime311@comcast.net>
Lakeland, MN USA - Thursday, April 3, 2003 10:56 PM CST
Those Dern Docs!
You get em girl! I do it, and thanks to that I'm affectionately known as the P.I.T.A. I'm sure you've figured that out and I won't need to explain, don't want to OFFEND and sensitive readers.... Hope to meet you guys up North, Jake and I will be there starting the week of April 7th. Just look for the crazy southerner pulling all of her hair out with a little monster attached to her hip. Wait a minute… we all look like that. I guess you'll have to wait until I open my BIG FAT MOUTH. Take care of yourself, hope to meet you soon...
Chanda & Jake
- Thursday, April 3, 2003 2:12 PM CST
Hi Guys! I'm sorry that you aren't getting any straight answers from the docs. Hopefully when you get to NY, you'll find what you need. We can't wait to see you guys! I'll bet that John has gotten so big, we won't even recognize him. It will be good to see him! We continue to keep your family in our prayers.
Take care,
Virginia and Jay <vlm1960@hotmail.com>
NY, NY - Wednesday, April 2, 2003 11:29 PM CST
Hang In There Jennifer...things almost always get worse before they get better...I think the lesson for the millenium is patience...I know I have received a few doses of hurry up and wait!!! We will keep John and the rest of your family in our thoughts and prayers...and maybe the issue with the lymphnode is an easy fix...we prayer really hard for nothing but good results and complete healing...
In Love & Prayer...Eleasha & Cody & Greg & Riley <www.forcody.org>
- Wednesday, April 2, 2003 5:41 AM CST
You are in my thoughts and prayers!! I am the mother of a 6 yr old Stage IV neuroblastoma survivor. Her neuroblastoma also went to her lungs (both). After a very long haul, (MIBG treatment, stem cell transplant and Accutane)alot of chemo, radiation and many surgeries...she is cancer free coming up on 3 years now. Stay positive, focused and never give up. I will pray for your little angel!! What a darling. I will also check back often. Our onc. Drs told us they had only had one other NB case in the lungs EVER...(yours is the only other one I've ever found)but there is hope and healing. We are living with a miracle every day. Take care of yourselves also..God Bless you all-You are in my thoughts and prayers.
Donna <cochran7871@comcast.net>
Dallas, GA USA - Monday, March 31, 2003 10:28 PM CST
Okay so what is with these "experts"...do they always have to be so condesending? Like as if you do not know your child and his treatment better than anyone on the planet...HELLLLLOOOOOOO! Sure, we don't have medical degrees...but who needs one when you have on the job training? Our doc told me if I didn't like waiting I could go see another doctor...RIIIIGHT! In the middle of transplant, switch doctors :)~
It's a good thing we have faith and a sense of humor...without it we would have to crawl up and hide under a rock...sometimes I wonder how God expects us to keep a good witness when we are tasked with advocating for our child...My guess is it gives us reason to depend more on Him...Surely He knows that on my own...taksed with the job of obtaining the care I think Cody needs...I have been construde as...well...less than nice :)
My friend Ellen wrote an awesome letter with regards to dealing with the docs and people...check it on her site www.caringbridge.org/page/andrewshope scroll down to From the Heart.
Anyway...keeping you in our prayers...
In Love & Prayer...Eleasha & Cody & Greg & Riley <www.forcody.org>
- Monday, March 31, 2003 8:41 PM CST
Hey!!! So nice to meet you...It was great to read your entry on Cody's page...we always love making new friends...It sounds like you have your hands full...I guess John could Cody a run for his money on teeth...the docs pulled 8 of his teeth before transplant so now he only has 12 :)
It is nice to read such positive and uplifting entries...You all have officially landed yourselves on our prayer list :):):):):):)
In Love & Prayer...Eleasha & Cody & Greg & Riley <www.forcody.org>
- Sunday, March 30, 2003 12:23 AM CST
Hey Guys~
Just checking in. Thank the lord the areas have been identified and you have a path you are taking with Sloan. Good hands to be in.
I say let it rip! Don't apologize! That's what these pages are for. I do it all the time, and I feel much better when I do. It helps people understand EVERYTHING we are feeling. I get a lot more positive feedback when I go off on Jake's page.... for some reason? Maybe it's comic relief for others who knows? Anyway, hope to meet you guys at Sloan soon, we are getting Jake back into shape for surgery or antibodies? We don't know. But we are hopeful we are headed back up to NY soon! Take Care & God Bless!
Chanda & Jake
- Tuesday, March 18, 2003 12:22 AM CST
Hi Sweetie,
I am thinking of you and keeping you in my prayers!
Kathy Haws
Thousand Oaks, CA. - Monday, March 17, 2003 7:21 PM CST
Hi John and family, I hope and pray your next visit will have some helpful, conclusive answers for you. Just stopping in to invite you to visit Smile Quilts. http://smilequilts.com We would love to make you a virtual on line Smile Quilt all your very own. Just click on the graphic to visit and apply for a Smile Quilt. Praying all goes well for you.
Sprite <sprite@tds.net>
Eckert, Colorado USA - Sunday, March 9, 2003 6:38 PM CST
I hope this finds you doing well and thinking positive.
I know it must be so overwhelming to have to wait, but we are all praying for that second round of tests/scans.
Hugs and prayers,
Chris
~ Gooch's Site ~ * * ~ Adopt A Kid's site ~
- Wednesday, March 5, 2003 6:47 PM CST
We will continue to pray for John and your entire family. I can only imagine what it must feel like to not be receiving timely, accurate information on John's condition. I have a feeling in my heart though, that despite this, God's hand will ultimate and completely cure John.
The Hammer Family
Lakeland, MN - Sunday, March 2, 2003 3:16 PM CST
Hi, I just visited your precious site. My son was diagnosed 12/99 with an inoperable brain tumor. I just wanted to say hi, my only advise is don't ever give up the fight. Your family will be in our prayers.
Sharon Picariello www.caringbridge.org/page/dylansworld <SLDBP65@AOL.COM>
Port St. Lucie, Fl US - Saturday, March 1, 2003 8:09 AM CST
To my baby John- I remember the day you were born. Waking up at 2 in the morning to watch Becky and Philly. Then been woken up by them at 6. It was worth the sleep deprivation. I love you buddy and I always will. You will get though all of this. I know you will... YOU ARE A FIGHTER. Jen - My beautiful love (lol) If you need my help at all just let me know I am always willing to help you guys. My prayers are with you all. God bless.
Kelly Ippolito <italiandevil628@aol.com>
Chicago, IL USA - Friday, February 28, 2003 11:04 AM CST
I'm so sorry, and I will be praying for John.
Chanda & Jake
- Thursday, February 27, 2003 7:36 PM CST
Jennifer,
I will be praying for God's guidance in the decisions you make.
Andrea
www.passarella.com/matthew.htm
Andrea Passarella <Andrea@passarella.com>
Swedesboro, NJ - Thursday, February 27, 2003 8:35 AM CST
I am really sorry you are going thru all this.
I pray its not as bad as you think it is.
No kid should have to be going through this
Chris ~ Gooch's Site
- Sunday, February 23, 2003 5:45 PM CST
Sending lots of prayers today little guy. Mom hope everything turns out good and these new foundings turn out to be nothing bad. I have been keeping up with your site and have been praying for John. I will keep praying to god for little John that he take away this awful cancer away for good, and that no side affects remain.
p.s. He is very cute baby beautiful smile :)
Sincerely Sally
sally <sally_torres@lusknet.com>
anaheim, ca usa - Thursday, February 20, 2003 11:12 AM CST
Hi Guys!
Just wanted to let you know that we are thinking of you and hoping that things are going OK. We continue to keep John in our prayers. Jay says Hi!
Love,
Virginia & Jay B. <vlm1960@hotmail.com>
New York, NY - Sunday, February 16, 2003 9:56 PM CST
Hey Guys~ Just stopping by and checking in on John. Hoping he's doing better....
Thinking of you guys and hoping you have a wonderful VALENTINES DAY!XO ~
Chanda & Jake
- Wednesday, February 12, 2003 12:46 AM CST
Hi buddy - just wanted to drop by before I forget and wish you a Happy Valentine's Day!
Know many people are thinking of you & praying for you that day and every day!
Gooch & Mom
Gooch's Site
- Tueday, February 11, 2003 2:45 PM CST
To Our Beloved Grandson "John Henry",
You are healthy and strong because the spirit of GOD is power within you. Know that you will always hold a special place in our hearts and in our prayers. We are dedicated to helping you grow up healthy in mind and body and strong in spirit. We are also committed to letting you learn and grow at your own pace. GOD will provide people who will help you and guide you along your path. You have much to learn and perhaps even more to teach. May you always know how precious you are and how much you are loved by GOD and us. GOD is blessing you and you are a blessing from GOD.
BOO & DZIA
BOO & DZIA <hankkwas@cs.com>
Chicago, IL USA - Friday, January 24, 2003 at 08:17 PM (CST)
We are trying to raise awareness and bring more love, prayers and support to more kids' sites, so you will be getting messages here from someone who "Adopted" you and your site. (unless you dont want to..) We dont know each other, but my son has leukemia and I know the support & prayers from others mean a lot. I was touched by your story and how much you have been through, its so unfair. Please know we will be joining so many others who are thinking of you and praying for you.
Chris ~ Gooch's Site
Adopt a Kid's site Here
- Saturday, January 18, 2003 at 01:10 AM (CST)
The wonderful Sara H.'s journal entry led me to your page. We've just arrived here in MSKCC ourselves after treatment failure in COlumbus Ohio. HOpefully I can meet you. May God wrap His loving arms around you! Christi's web site is:
http://www.ChristiThomas.com
God bless you! Love, Angela
Angela Thomas <zzartset@bright.net>
Tiffin, OH USA - Sunday, January 12, 2003 at 11:51 AM (CST)
I have been praying for John today...that God was watching over him, keeping him safe, helping the drs to remove all of his tumors.
God bless,
Andrea Passarella and family
Andrea Passarella <www.passarella.com/matthew.htm>
Swedesboro, NJ - Friday, January 10, 2003 at 04:39 PM (CST)
We will be praying for John's surgery to be a success, and for God to comfort you and your family during this difficult time. John is SO precious. My son is treated out of MSKCC and has NB Stage III.
Chanda & Jake
- Friday, January 10, 2003 at 07:39 AM (CST)
Dear Jennifer,
I learned of John from Daniel Hammer's web page. My son, Matthew, was dx with a brainstem tumor 2 years ago. He was given no hope of living more than 6-9 mos. I KNOW it is because of prayer that Matthew is still alive and doing so well. I have faith that God will heal your precious little boy. I will keep you all in my prayers.
Love,
The Passarella Family
www.passarella.com/matthew.htm
Andrea Passarella <Andrea@passarella.com>
Swedesboro, NJ - Wednesday, January 08, 2003 at 01:15 PM (CST)
Dear Jennifer,
I found your site from the Hammer's. I am so sorry for the medical news you have just recieved regarding new tumors in little John. I am sure you and your husband are in much agony and I will pray for strength from God.
Hoping and praying for a successful procedure on Friday.
God bless,
The Paquette's: Monica, John, Aubrey & Saint Gabbie
Monica Paquette <mj.paquette@worldnet.att.net>
Minneapolis, - Wednesday, January 08, 2003 at 10:56 AM (CST)
Dear Jennifer & Phil,
I am so sorry to hear your latest news. John, your family, and the medical staff will definitely be in our prayers. We will especially be thinking of you on Friday.
Love,
Virginia
Virginia & Jay Barnett <vlm1960@hotmail.com>
New York, NY USA - Tuesday, January 07, 2003 at 10:23 PM (CST)
Dear Jennifer,
Thank you for updating us even though you are obviously very upset and worried right now. I will anxiously await the biopsy results on Friday and in the meantime I will pray pray pray.I will also ask for prayers for John on my website. I have a lot of faithful prayer warriers who check it and I know they will pray alot for John also. I still believe everything will be OK.
Love in Christ,
Sara
The Hammer's <hammertime311@ll.net>
Lakeland, MN - Tuesday, January 07, 2003 at 06:51 PM (CST)
Hi Jennifer and *Phil* (*The man we will always think of as Santa! :)
Like Virginia, I too just found out about John's webpage(today actually) from Akaida's webpage. (which I also found just today while doing an interent search!)
I hadn't known John had a webpage as I don't remember ever seeing one from listserve posts. But I am SO glad I know now becasue everyday I think of John and pray for him and always hope for posts from you to hear what is going on.
It just frustrates me to no end that you have so many unanswered questions about John's leg. (Did he ever have an MRI?)
My heart completey goes out to you for not knowing what that is in his leg bone.
I also completely believe in my heart that it is NOT the cancer.And I pray every day for John, (and all the kids, and for a CURE very very very soon for these kids)!!!!!
And John too is one every prayer chain I know.
I will keep checking back often for updates!
God Bless!
With Love,
Sara
PS I love the photo of the smiley little guy! CUUUUTE!!!
The Hammer Family <www.caringbridge.com/mn/danielhammer>
Lakeland, MN USA - Saturday, January 04, 2003 at 09:40 PM (CST)
Dear Jennifer & Phil,
I just found out about your website! I'm glad that there is a way to keep up with what's going on with you all, since I am so bad at keeping in touch. I hope that soon you will get some conclusive answers from the docs. I know how frustrating it must be for you.
What a cute picture of John!! He is getting so big!!
We are still in NY - Jay feels great but still has a long road ahead of him. He bravely marches on with hardly a complaint! He really misses hanging out with Phil!
Take care.
Virginia Barnett <vlm1960@hotmail.com>
New York, NY USA - Friday, December 27, 2002 at 11:48 PM (CST)
Dear Phil, Jen, Rebecca and John,
Just passing by and reading your updates and wanted to let you know I am still thinking about you all, and praying John will get better. I am so happy I got to see a photo of your little boy, he is a little cutie! The picture brought a tear to my eye and a smile to my face. I can't wait to see more! If you ever need a friend, feel free to email me, I am here for you!
Your will remain in my thoughts and prayers, I will keep on checking in to see how John is doing! God Bless!
Love n Hugs
Kim x7x
Kimberley Barrett <Slimkim77@hotmail.com>
Bradford, England - Saturday, December 07, 2002 at 04:49 PM (CST)
Dear Phil and Jen I am so sorry to hear about Little John not feeling well...I have been lost in our world and I aplogize for not writing sooner.....My prayers are with you.....love Nadia
NADIA hENDRY <nadiamh12804@yahoo.com>
nEW yORK, ny usa - Sunday, November 24, 2002 at 03:49 PM (CST)
Dear Jennifer & Phil, I found out about baby John through Akaida's web page. I am praying especially hard for him and his recovery. Please know that you are always on our minds. Please take care of yourselves and each other.
Warmly, Melanie (Angel Brendan's mom)
Melanie Hadvab <mhlvsrh@aol.com>
Margate, FL USA - Monday, November 18, 2002 at 08:46 AM (CST)
A little message for a little fighter!
I am thinking of you and will pray for you throught this hard time. My friend Robyn Brooks is having treatment for neuroblastoma at MSKCC too. Keep fighting sweetheart. God will protect you.
Love and Hugs
Kim x7x (aged 15)
Kimberley Barrett <Slimkim77@hotmail.com>
Bradford, West Yorkshire England - Saturday, November 16, 2002 at 01:20 PM (CST)
praying for you at this time John, & also for mummy, daddy & your sister & brother. You are a beautiful little boy, keep fighting baby!
Karen Brooks <garrybro@msn.com>
Rochdale, England - Wednesday, November 13, 2002 at 06:39 PM (CST)
praying for you at this time John, & also for mummy, daddy & your sister & brother. You are a beautiful little boy, keep fighting baby!
Karen Brooks <garrybro@msn.com>
Rochdale, England - Wednesday, November 13, 2002 at 06:39 PM (CST)
Happy 6 month Birthday John.
You have the a lot of love in that little heart. I can see it in your smiles.
LOVE
Grandpap Ron
Grandpap Ron <jos4021@aol.com>
Chicago, IL cook - Monday, October 21, 2002 at 10:04 AM (CDT)
I just wanted to say that my prayers are with you. My nephew was diagnosed with Lymphoma three years ago. I feel what you are going through.
Always remain hopeful and keep the faith! God Bless.
Anna M. Iacone, Philadelphia
Anna M. Iacone <aiacone@ecfmg.org>
Philadelphia, PA USA - Wednesday, September 04, 2002 at 11:51 AM (CDT)
JOHN HENRY,WE LOVE YOU BEYOND ALL EXPECTATIONS AND KNOW THAT WHATEVER HAS BEEN, HAS BEEN AND NOW WE LOOK FORWARD TO A GREAT AND GLORIOUS FUTURE BECAUSE YOU ARE MADE IN THE IMAGE AND LIKENESS OF GOD !!!
Boo & Dzia
Chicago, IL usa - Wednesday, August 28, 2002 at 05:04 PM (CDT)
I love you JOHN!!
Pat Ippolito <patipp1025@aol.com>
Chicago, Il USA - Thursday, August 22, 2002 at 05:42 PM (CDT)
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