Well the storms have settled for the night But as you see I'm up and can not sleep and have not slept well since the news of all of this. So as I check in all that we continue to Pray for of other families one special little family Kaitlyn Quandahl as I typed on her page I know Im not good with words but I'll share any way: My heart Prayers Hugs are with you all. Man not only the weather storms But families that face medical issues sure are facing many storms them selves We have to stand tall to Cancer and it hard I know Faith ~ Hope and lots of Love we get us thru these storms and the rains falls of tears will continue even as the sun-shines to make are wonderful rain bows of Hope it the Thunder and lighting and the Hail and the gusts of wind we family face with kids due too Cancer that put the Twisters in are lives out of are Control But are Faith of family and friends of a community that keeps us strong through theses storms so let the Rumbles of the storms soon pass and we Have Peace and Healing. God will be there at are sides and he will carry us thru these Floods of emotions But Cancer will not win or take the spirit from us so We stand tall and snuggle a little more .Hugs and Prayers through these storms of Life xoxox...
So I'll end with that I ask for Prayers for there family and for my little man Terrell as we head on the road by 4:30am in the morning He is very scared and as we are God has gave me some good sign we did finally get a family picture taken for the Church directory .My heart is very heavy and mind is full of emoticons so as I jump in the driver sit to drive this when I know I'll be asking God to Put myself in his hands and carry me thru this again this what got us thru many other storms letting God being in control and trusting he will steer us thru what ever storm lays ahead I will update as we go .Thank you all for continued Prayers Terrell and family
Sunday, April 21, 2013 6:16 PM CDT
This weekend brings us 3 of the 4 seasons Saturday was full of sun and wonderful out this morning we awake to snow every where then after church to rain Wow I know it will get here soon enough. Friday at 4:15pm bring us news my Mom passed away just slept away .What a shock but yet so Blessed she got her wish. As she feared death so bad so I guess made this last wish for her. She has been doing wonderful all appointment's this week were all Great,she made it to the Haystack supper she always loved going to ,she was able to see the house that we lived in 45 years ago, and one last Bullshitting with Emanuel on Thursday night I think Emanuel will miss this most calling Grandma and making bets to a football game and calling her back she owed him $20.00 she would pay and not really know whet she was betting to . Terrell said it best Grandma back with Bud ( this her dog that passed last fall ) We were able to see Mom on Saturday to for one last time as she will be cremated they told us in what to expect Terrell was fine with this Emanuel said he did not want to I did not push him and when we saw her it was like she was resting Just the way Mom should of been not darken in color on nothing I reassured Emanuel of this and he said I could see her just fine where I was standing and she still owes me $20.00 bucks So Mom I guess your going to Heaven still owe 20.00 $ LOL We will have Mom service on Friday 4-26-13 At Rossville Prsby. Church . Thanks you for all the support and continued Prayers Love Terrell and family
Wednesday, April 17, 2013 9:40 AM CDT
Well Yesterday brings phone calls first from are wonderful Endo. she is most heart felt person ever called to apologize again for not calling us earlier on the MRI and to see how Terrell was doing ? we had a very long visit and I back her 200% for not taking Terrell as a patient to growth hormone and this will not happen for Terrell it would have to take some major to change my mind on this after 7 years praying about and when we finally do we again are thankful for doing the MRI when we did and to find this growth .then finally the call from are team from MPLS after many hours of reviewing Terrell's MRI from last August it was there very tiny so it has grown .They are with Lacrosse we can sit and wait or do it now ? any other time Ken and I jumped at it now for some reason something is holding for sure me back ? I don't know is school almost down then do it ? but my gut don't have a ease on this and I can not get my finger pointed to why ?? it driving me nut or a sign form God I know that may sound little out there But my insecticides usually hit it on the head for example if I met some one for the first time and I get a funny feeling and they have not done nothing to me come out and it like I told you there was something not right and people laugh at me . The not knowing is killing me then I think if I do nothing this night mare will all go away.Or I just can not get my self to think this simple little 1 percent so many would be jumping for joy but no me .This simple 1 percent could be round 3 to cancer I just don't know if mental and emotional can go thru it again and it not about ME it about Terrell . So please continue the Prayers for direction and strength and Healing for Terrell
Monday, April 15, 2013 9:37 AM CDT
Today the sun is out but has a chill in the air. Today bring many emotions for me as we still await more information as to where we go from here . As I return form my trip to Arizona a trip I earned thru my sells with Tastefully Simple I felt so selfish to go putting Terrell medical needs off but Terrell is doing Great going to school etc. I have to keep telling myself give it to God Jan give to him he has the plan be patient . reflection of time passed can be so overwhelming and the storm you thought you stood alone through you see every storm God was there and carried us through. I have to believe in this that Yes God will see us through this storm . I can not take the energy and think that the 99 percent this Meningioma tumor is NON cancerous I have to stay strong .Yes it is a very low 1 percent But way to high for Terrell he has fallen 1 time to many in this percent range As when the surgeon explained to us to where he would going in the only words I could say yet another scare not earned from being just a Boy living life and earning it. I read online about this does ease my thought any . I had a most wonderful room mate God sent while in Arizona never had met TS set up the room mates so we have no control over whom we get But God has plans and works in mysterious ways .The room mate I had her son pass away will be 3 years on mother day you guess it a brain tumor ? Thursday night after my very long travel to get to Arizona we talked until are time almost 5:00am it was the best talk we had so much alike and both truly understood are cancers were to totally different out comes . Thank you Cinnamon for being there and most wonderful talk we had Thank you for your strength. You are Amazing person and Mom ever Thank you for you !! Return from 80 degree weather to SNOW then rain It been a very emotional day for me as we still wait for where we go from here waiting of the NOT knowing is harder then the knowing . Again Terrell is home doing his everyday thing a young man can possible do He went to a swap met on Sunday with Rose but no animal brought home . Again we ask for Prayers and strength to have the very best out come for Terrell and that all the doctors are all o the same page we have a great team of them . more then Blessed to have all of them on Terrell medical care Love Terrell and family
PS the only song keeps going thru my head is Josh Groban " You Raise me up "
Monday, April 15, 2013 9:34 AM CDT
We saw the neruo surgeon today 4-8-13. The finding is some what good it 99 on cancerous tumor call a Meningioma not on common when you've had radiation to the brain BUT for Terrell age is uncommon . All of Terrell caners have fallen in the very low range of NOT happening so Yes I'm concerned just with that 1 ven if they said 100 hat it was not I still would worry Terrell is the one that make up that f NOT happening and having it happening as the doctors put it. Dr.Bob has been doing his job 35 yrs. and told me that Terrell for as he knows when we started this Melloblastoma brain cancer was put into a study because of the age of DX 22 months average and yes one of the most common brain cancer in kids but in average age of 3 years old and up again low appening and then the All T-cell leukemia chemically unset again less then 1 -million happening and another the oing brain cancer to Leukemia very rare again low r even if heard of happening But if the other way very common .as Dr.Bob calls it Terrell is writing the book of what should not happen and having it happen Dr.Bob also stated far as he knows in the national survey National Terrell far as he know is the only one this has happen to. surgeon states it a very simple surgery and if any area of the brain this coming to is the Best area to have it happen Amen . If we said we wanted surgery today it would of happen But the neuo surgeons in MPLS are reviewing the MRI and the team there is looking and awaiting there input. we could wait 3 months but they are thinking if this was not there 6 months ago and this size already and causing no harm but they concerned that it could grow faster and being harms way. Looks of very overwhelming info again to take in and being a 3 time around man you learn so much and have even more question to asked even after a 30 minutes of thinking of all the question of the what if's ? and not even out the door and have many more .So for right now we wait I leave Thursday for 4 days yes I feel selfish But as I watch Terrell I'm concerns Yes but then again he doing Great . If they put him the hospital and etc. No I wouldn't leave .Terrell now 13 1/2 years old did great he listen as I told the surgeon He has a voice now I have to have his input He agreed so he printed off the best pictures to explain to Terrell and showed him the size of it being like his thumb nail explained to him where they would open his head up which would be on the left side around his ear area ( again a scare he did deserve to earn) Terrell said I get silly when I go to sleep Dr. laugh and asked do you get scared Terrell said no I'm young man now .Terrell asked good questions the Dr told him if he any other question to call him and he would talk to him I thought that was great . as we visited he asked whom did are first brain surgery we told him he looked and asked when ? he thought and said I was a fellow then and worked with him then I asked if he was still working cause he was a old doctor then (12years ago) he said yes and he happen to be in the office when he got the call and the surgeon remember Terrell WOW to leave a mark like that and this doctor said you know I 'm thinking and asked a few more ? and said Yes I do remember Terrell he was in on his second back to back surgery . small world .as we left there was a big tall man and scared Terrell as he came around the corner and he goes have I know you and Ken and I both look again and were like you were the big guys that helped hold Terrell down to get a IV in O I remember that is the day I lose my hearing this man is over 6 foot and 300 lbs if that gives you any in sight how big he is and it took then 4 people to hold a 22 month old . Sorry for this to be so long Yes Terrell will be having surgery will not do the waiting 3 months thing .But we wait MPLS to contact with the surgeon in LaCrosse So again Terrell has left a mark in so many people and teaching Doctors for the kid that faces brain cancer which is one to many and it truly sucks that Terrell has to be the one I sure hope this is not God plans in some point .Yes there more then likely Terrell will have another of these . And that why him ever having the chance of doing Growth Hormone replacement to help him grow is off the table This is the one reason for 7 years we held off knowing this could happen so I guess I take this as my sign from God for the reason why If Terrell would of been on this it would of been much worst because the tumor and possible more then one would grow very fast since this drug help you along with anything else that should not be . So please keep my little short sassy young Man in your prayers .He is my rock I have let me tears flow when you work over nights man I'm surprise they didn't give me a IV to give me my fluids back .Terrell and I have talked and I have explained everything to him to best for him to understand and not worry him all he could say to me Mom I'm not scared Wow how do I not hold back the tears with that answer told me not to cry Mom know God will help me . I just hug him and said we have to keep believe this Terrell you are so right God will get us thru yet another storm as I said that he I heard it thunder last night God was playing his drums again Terrell was laughing and this what I always told the boys so they won't be afraid of thunder storms . Terrell has grown to learn so much thinks that any child should never have to face . I have always said If Terrell can keep the Hope alive in just one person that face this monster of cancer then I guess he has done his job my job is to Help Terrell stay strong and him keeping me strong Because if he in for the fight I have to right there with him and believe the fight will be the victory at the end. Emanuel wow he has grow so much and never knowing his brother no other way . First thing when home form school I was sleeping since I worked a over night then right to Lacrosse and home at 1:30pm and to rest for work tonight came in asked tons of questions I know he is worried but we had a very long talk reassured Him Terrell will be okay I was a bit surpise when he said he wants to go the day we have it done I usually do not take him along as I do not want Terrell illness to stop Emanuel life cause Cancer effect s all in a family no matter what age BUT I will not let it stop for sure Terrell life and not Emanuel either I was going to close Terrell caring bridge page but I think I will keep it up I do have to update it So good Night and Prayers are more then welcome . Thank you
Monday, April 15, 2013 9:32 AM CDT
Eight Years ago today we received the most Amazing Gift !! Today marks 8 years Terrell had his Bone Marrow Transplant his life saving cure and only treatment to his ALL-cell Leukemia and yet to day Cancer free we Celebrate each day of this gift and thank this family whom donated there cord blood to be a perfect match for my son cure . Easter brings new life new begins Terrell reminds so much in what Jesus did for are sins to what he had to face and go thru to be here today is are Blessing today and each and every day . Today as we mark another year of cancer free we start new journal in are books for Terrell it hard to put into words it is just so weird for 7 years we have held off and after lengthy doctor visits we decided to do this next journal and when they call to tell us for his MRI schedule saying 3/29 at 1:30pm it did not hit me and then it was like OMG this is the same day and time 8 years ago we had his BMT then I knew God was giving me the sigh that I needed to reassure me that this will be the right decision for him God has got us thru many storms and I just have to trust in him that he will see us thru this have a Very Blessed Easter Every one !! Thank you for all the con't support and Prayers for Terrell we could of never gotten thru this with out all of YOU
Sunday, August 19, 2012 8:41 AM CDT
WE are 13 Today !! teenager !! WOW a Very Blessed day So overwhelmed to whom ever thought this day would be possible ? The tear flow in JOY !! Terrell has been up since the crack of dawn ready for the day. I'm a lost for words . Thinking another year in the memory book and new one to start But Number 13 !! The cake is cooling .Have to frosted he wants it like a Chicago Bears ?? Some gifts open and cards he gotten in the mail all week. We got him a Bears flag for his bike (3 wheel bike w/a basket) Emanuel had to put it on for him and then Emanuel had to take his bike for a ride he comes in and say* someone drove by him and honked there horn and yells out GO BEARS ! Emanuel sure got a laugh out of this !! are day if filled with many things today . nothing in stone But to Church, eat out of Terrell's choice, cake and then more gifts.. Then this afternoon if weather permits to a plane ride !! Yes that right .Earlier in the year Terrell had a consult with a Doctor locally of removing a wart on his thumb .and then labs which they could not get so the anesthesiologist Skip Loebig came to see if any luck but none Terrell was so brave He said to Terrell maybe someday I'll take you for a plane ride if okay by your MOM ? Well Friday got a message from Skip saying if Sunday the19th of August works out weather wise to come to Decorah airport at 3:30 pm . First thought to mind was Terrell's 13th. Birthday is literally going to be a a high flying adventure! Start of the morning was gray . I've been praying a little Pray for the sun to shine and as I type I see it starting to come out . He and Emanuel know nothing yet of this . I myself is excited. Terrell last night coming home from the races kept saying KNEI my song thinking what ?? wanting his song Give me on more shot . So Monday morning I 'll being calling them too play his song But also add so you all can enjoy.. I know it been along time since are last update .We did have a yearly check up in MPLS. all test results are Great. MRI all good I know some are thinking ?? why MRI well we are in the long term flow up clinic now and they say that every other year we have to do a MRI to make sure we don't have recurrence of tumor of the brain believe me when we heard this a year ago like WHAT ? they told us the brain is cured no more MRI's she said we do this just every other year knowing what some cancer treatment can do .And with this clinic they check Every organ (per say) of his body make sure that treatment given IS NOT causing other cancer and other delay effects that his body may face . This is how they found the iron over load 2 years ago normal iron level is 145 he was 2200 now down to 1115 yes down I was so hoping we would be done with this med Ejade which removes the iron from the body well not yet . But this med also causes side effects to Kidneys,eyes and hearing which all have been hit so we have labs every 4-6 weeks to make sure all his organs are handling this well. Seizures delayed effects of Radiation these really suck !! still adjusting med to get under control . his Nero. evaluation all when Great. All labs were in the normal my be able to take one more pill away Yeah to this. One thing I like about when we get a copy of the labs it shows the history way back to 2007 and we can compare and it like WOW never thought we would see normal from either way critical low to critical High .But NORMAL !! Well before ending this and off to Church and enjoy Terrell's Big 13 day.. Thank you ALL for the con't support thru this all. If you could check in to a little girl and say many extra prayers here is her web Please leave a message for them http://www.caringbridge.org/visit/kaitlynquandahl P Love to you all and Blessed to have yet another day and year to be Blessed with and Even cancer free couldn't ask for more. Still praying for all you family out there, Love to all Terrell & family
Terrell this his song !! Enjoy
http://youtu.be/Tb5DAYI1wzo click on link below to enjoy
Thursday, March 29, 2012 1:30 PM CDT
This song go out to my Most Amazing young man Terrell 7 years ago today he received his life saving bone Marrow transplant (via cord blood ) it took us 4 months of very High dose of chemo therapy to have your body to take these new baby cells and cure you we Pray for life from Cancer . to get you to Transplant you had many Doctor also Praying that your body would not make cancer from the chemo to get you to transplant in how your body know how to make cancer from chemo and that how you got the Second cancer . But with the Grace of God you are here today and the fight for life you had to go thru to be here for us to Love that 7 more years and Yes cancer free . I will always be Blessed to the family that donated that cord for your Life could go on I wish so many time that we could meet them and Thank them personnel so out to the family from Massachusetts who had a little boy born on Oct. 6, 2002 and being a Perfect match for my son THANK YOU for giving him the cure he needed from his Cancer. Yes Terrell has a high chance of having Cancer in his life But Cancer will NOT top Terrell from living life and nor should it stop anyone from living life due to Cancer. Because if we stop living life due to what Cancer can do to us Cancer wins and for Terrell that Not going to Happen . So this songs goes out to you Terrell We Love ya more and are Blessed to have you here with us for Many more years to come Love ya Always Mom
The song for you from Alabama * Give me one more Shot * If never heard do a search and listen..
Tuesday, January 31, 2012 10:57 AM CST
Hi Everyone It's been along time I know we are doing fine. & years ago almost this was are life line I know someday I'll down load all of this and have to show Terrell all are support we had during are time . The last year flew by it to think it is 2012 ? the weather has be amazing. Terrell is now in the 6 Grade doing well . In October we lost a great person Terrell's Grandpa Baumler was dx in June of 2011 with Leukemia it was a very hard day in hearing the word cancer again in a family member again. Terrell understood what Grandpa had ahead of him . Grandpa first round was a tough one but you can not keep a good German down for long .He took everything in strides. Then October came and Grandpa got sick had nothing to defend himself to fight his white count was zero. so on October 11 Grandpa lost his battle he is dearly missed .Why is it you never die from Cancer but all the other stuff that cancer does to are body to fight it ? Cancer just sucks it takes to many loves and friends and people that just want to live there life. As this was are life line and a very very dear friend and my life line when we went are BMT this Dear friend Lori Meyer if I was in need of anything from prayers she was on my speed dial of calling and she was there. She walk with Terrell at his fist ever survivors lap at relay for life knowing her self and being herself a cancer survivor is now fighting for her fight against cancer one more time so many of you out there could raise this Amazing Friend up in your prayers would be truly appreciated . She has a caring bridge page user name lorimeyer1 Please send this family all the prayers they sure can use them. You we are support and strength and still are yet today so Thank you someday seem so small in all that you have done. send out Prayers to all family that have crossed are paths on this jourany of cancer We love you and May God con't to Bless each and everyone of you. Love Terrell and family
Sunday, December 26, 2010 10:38 AM CST
Merry Christmas and Happy New Year to all !!
Well Santa has found are home once again Terrell is thrilled with his gifts of Jay Culter the cap don't come off.Are one year appt. w/ are Dr. Bob all when Great yet again we do not return for one year !! On December 13th,2004 it was 6 years since are second cancer. What 6 years has broughts us ? Even more then after having cancer the first time just back in June of 2001. The first cancer we were just in the mode we had all faith in are health care whatever they said was and from day one we had the faith we could bet this even thou the as not on are side just being under the age of 2 years old @ 22 months.At the age of 2 years old the odds we more favorable of survioral. But to this day I will never ever forget the words of another parent Devon Doughty now a angel saying to me don't look at the odds we all have to go we it is time that is just a medical number not a God Number he only knows when the time is .So very true Terrell did bet the odds on this hands down thru all his treatment he only lost a pound and only had one treatmet held for one week due low counts and that was his last treatment and if this would not of happen he would of finished all treatment on his 3rd. Birthday but he did just a week later. He zipped thru this hands down. He was my rock and still today. And then out of all treatment that door slams us hard very hard 28 months out of all treatments just days before Christmas . Dr. Bob then knowing the odds once again we not Good. But Terrell again bet them and No he did not spend the time in the hospital for Christmas . So in this pass 6 years. 6 Years has brought out once again are faith ! 6 Years of Terrell never giving up the fight! 6 years of the not knowing ! 6 years of Terrell belly giggle finally returns! 6 Years of Terrell true sparking eyes when he smiles coming back. 6 Years of just living on egg shells 6 Years of why life has to stop do to Cancer. 6 Years but really for Terrell it's been 9 1/2 years since cancer entered his life and all of it.But thru it all Cancer will not stop Terrell life come hell and high water.That is if we let cancer win So we live life and he has so much to catch in what he has missed. Even with the odds twice stacked again him God has better plans for Terrell because he going by Gods odds which are better and this has been show thru the First cancer. His second cancer and the Road of Hell of his Bone Marrow Transplant. I am so glad Terrell took the odds with Gods not the Medical odds. As a Mom I will take the fight with him he maybe my short sassy 11 year old I want to pull my hair out somedays. In not 6 years did it take for me to learn this I know at 5:23pm on August 19,1999 when he was born he was a fighter my laid back easy going lillte man. Has never let the odds hold him back. Thankyou Terrell for this you are have been Cure of one Cancer and a 6 years Cancer survior but again really 9 1/2 years 2x Cancer Survior you have touch so many lives and show what real faith can bring keep with God's numbers young man God has so many more plans for you to complete. So keep being my short sassy young man. keep that sparking eye smile and that full belly giggle. I love you more . Well Christmas come once again and many Blessing once again have been answered I send out to many of you friends and family across the miles. Thankyou all for the con't Prayers and support for are family thru all of this we could of never made it with out you there. Many of God Blessing to you all and a Very Healthy 2011!! As we will have another Awesome Year of living Life to kick Cancer in the Butt as Terrell says. Love & Hugs Terrell & Family
Sunday, November 14, 2010 5:09 PM CST
Hello Everyone !! Wow time really got away in to update like they say no news is good news, Well in a years time we have been busy. Terrell is doing well we still face delayed effects from what caancer can do to us, We have been work yes still with seizers from injury to the brain . But we can deal with this but sometimes get trying. He is now in the fifth grade and the girls just love him. We had a last day party at are home last May everyone made it plus 8 stayed the night. Great fun they just take sure good care of him and all his friends & classmaates have always been good to him. Then this summer we had baseball & swimming then football this fall.On his Birthday the big 11th we took all his friends just the boys to Bare foot Bay at a Motel in a town 20 miles from us O"my the fun and food they were 14 boys ages 10-11 WOW can they eat 6 pizza 3 pitchers of POP an a whole cake after we left we got 3 boxes of I ce Cream bars and they were gone before even half way home and the ghost stories it was a great night. Are appt. to MPLS this Summer when fine no BMT doctors wahoo & n cancer doctors Wow 5 years since are BMT someday it like yesterday. But with are visit there with the After effect Doctors we found that his iron level was sky high noram is 140 he was 2200 so we started a med. to bring down the count another delay effects. But we can handle this. As Thanksgiving comes again we are so thankful to be where we ae today and Blessed to have met so many on this jourany this use to be a life line I do checkin on many families but have not left any messages. So as the hoilday Season beginngs just can not ever say a big enough thank you for being there for us still yet today .So may Blessing back out to you all. There times of closing are page but when is a good time but before I do that I will have to down load everything for a keepsake. There days i come and this and think how? how did we get thru what we did. And then think I guess God was there every step of the way . So I will be keeping this open I do have to upload more pictures . Sothankyou to all for all that you done never hurts to have some extra prayers keeps us safe and going. So May God Bless each and every one of you thru this Hoiday season and always Terrell & family
Saturday, November 14, 2009 2:18 PM CST
Wow here we are again between updates. It is a cool damp day in Iowa after many days in arow of are wonderful fall weather. Which we so need to get the crops out after a very wet October. Terrell is doing well both he and Emanuel has the little seasonal flu not H1N1 .but both thru this just fine and I got it then a week after them. Terrell is so loving school he is going to are private School this year the class is of only 15 kids.No matter were Terrell goes the kids are so wonderful to him even at the Public school the kids were great and still are this poor kid cann't go anywhere with out someone coming up and talking to him and thing. so we are so luck to have some wonderful kids around. They take him just the way he is and during any game they play they make the best of what terrell is able to do.They just Love him. teachers conference all went well Terrell teacher told us that she on the girls to give hime some space there mother hens with him her comment to them * would you do this to any of the other 4th. grade boys ? NO he just to cute so I guess I'll have to be keeping a eye on this boy ?? They are pleased with his progress there and say it a joy to have him. They Love his Independents !! But as you see he got the girls wrapped already..We are still working on his seizers getting them under control last visit we did a MRI to rule out if there were any lesion there that maybe causing them ? all was well.Then after this was done thru another family there daughter started having really bad seizers and she has to have surgery aspa the vessels in her brain are closed off causing this so my light bulb went off and called to see if they could see if this was happening w/Terrell Dr. Rothmeyer could not see anything like this on there but it was a good ?? asked .But there is special kind of test they do to get this to see. But all in all Terrell is looking Great .Feeling Great !and just being a 10 year old BOY! what more can we ask for. So as many of know that with Thanksgiving approaching the we just do not count are Blessing once but many times and each and every day.. The First part of Dec.8th it will 5 years since this sencond cancer slammed in are face . we move forwrd we will win not Cancer it may get us down but not out so life for us has to move forward.Some days it was just yesteray and others like 5 years. So as the Thanksgiving Day comes take sometime and be thankful for the small Blessing in your life.And with everything going on in the world be should be happy to have good health,a home,are for all are Faith and friends and family that has seen us thru the best and the worst day of Terrell life. From are home to all of you out there that check in leave a message. we Wish a Very Bless Thanksgiving from are home to where ever you maybe. God Blessing be with you... Love Terrell & family
Thursday, August 20, 2009 5:45 PM CDT
Wow been so long again . Terrell has turned double numbers the BIG 10 !! on the 19th.of August. It is a sure blessing to see make this birthday with all he has faced. He is doing well still having the seizers but this medicine is doing okay but having some but mood wise is great. School started today he is in the Fourth Grade and we put him in are private school this year because the other school had so many kids this is I think 18 kids less so that many more less for him to worry about he looked so forward to school and did great. And Emanuel turned 8 years old on the 13th of August and he just cryes he is growing up but can not wait to be 16 ?? He is in second grade he said this moring *Mom summer went so fast I just cann't go to school* I told him you have so much to find out what your friends did all summer. We were busy making cupcakes for school yesterday.for treats today. The last couple years they have taken ice cream or pop sickles I like that but not this year. It is so hard to think that my babies are growing up so fast and it was just yesterday we would rock the day away. But with school starting football to start and then we do more of are Boy Scouts stuff.But these are days we have longed for. We just count another day of another Blessed Day to Have Terrell here and Cancer free.We will take it even it days that I cry to see him have the after effects of treatment But I have to be Blessed just one more day he is my gift to enjoy. So nothing new to report but know we send are Prayers out to all of you that we have crossed on this jourany. Til next time thankyou to all that con't to support us thru all of this. Love Terrell & family
Sunday, June 14, 2009 8:39 AM CDT
Hello Everyone
Well it has been 8 years since Cancer has entered are household. Terrell was just a baby of 22 months. So Brave then and still to this day. Finally after fight 2 times and a Bone Marrow Transplant by the age of 6 years old. Finally Made the Surviors lap at the Relay for Life for American Society. It took us 8 years to get this done and it was 8 years to the day ! And with is fight again he did him self .When I went over to walk with him he said MOm I am doing by myself . And he did with all the others Not only did he make that lap. He did another and ran this one most of the way ~ God has gave him the Coruage to face so much in his life and he hits it face on and never lets the changle bet him. Terrell Mom is so very proud of you more ways then one. So many was surpise with him being the youngest and the only child there to do this .You could here them talk o'so small that not fair .some ask me and things. I told them he has been thru hell and back but never ever once did he ever Quiet the Fight.! O the tears run to say I am so Proud to be his MOM. His fight is what kept him to win agaist Cancer. A Huge THANKYOU goes out to Lori & her Mom,sister-in-law also made the walk with him. Cancer Surviors them selves. Thankyou. Also his Great Aunt Diane A survior herself made the walk with him Thankyou. Also to Dean & Sue (Susie)are Daycare person or home away from home you are the Best ver !! Brenda his dance Teacher Thankyou. The Jones family his new Cub Scount Leader Thankyou Lana & family friend Thankyou And for sure his Little brother Emanuel for not only walking the walk but to run it we lost count in how many times he made the lap Runing !! And to Cater & Chance Terrell's classmates that made the walk with him Thankyou. Also to all the others out there Thankyou Also Thankyou to all that dropped off Money,Mail us donation or dropped off at the Radio Station. That we are on are way to are Goal thankyou.. Did I menetion radio yeap I did I dropped off a message to ask for walkers and doantion to make this walk and they no more and said it got a call in to changle people to donate and donted a $100.00 Wow and we were off. people stop by with loose change,checks thanks a Million everyone We live a great Coummmity we could of never ever got thru any of this with out them praying us thru. And the most best part with me being a Tastefully Simple theyn will match up to $50,000. If you would like to Doante Here is a Link http://main.acsevents.org/site/TR?fr_id=16158&pg=entry Team name Terrell Tatsefully Simple Support Buddy's In this 8 years has brought many chnagles but then again many rewards. the most is CANCER Free !!!! Well we have met so many people on this jourany some are still fighting for there life some and to many have lost there battle and not only to cancer . But where ever you are at in this jourany we think of you all and send you all are Love and Prayers. Again we can never say Thankyou big enough to all of you that con't to support us on this jourany Love, Terrell & family
Friday, April 24, 2009 11:04 AM CDT
Hello, Well I am back on my two feet on land. The Cruise was unbelieveable GREAT !!The ocean is blus Yes Blue so when you see pictures they are not edited for that they really are blue.. The sail friday was a litle rough like you had been drinking all night trying to walk everyone was this way and after while all you would have to do is stop and laugh and start over again. I laugh so much and met so many great Tastefully Simple friends from all over. I guess where I come from I myself was pretty amazed that I even made this sales incentive. When Jill the CEO was on stage welcoming all of us and saying there are 689 of you that made this incentive out of nearly 28,000 consutants making you all are Top 5ells of this company WOW !! when I guess you break it down that is pretty Awesome..Are sail home was great it was like were not even sailing so smooth. So on my arrivel home monday . tuesday moring we headed to MPLS. to have Terrell do a inpatient EEG test for 24 hours. He did Great with all them wires on. They have not Read all of this yet. But we are a little confued yet what we were told were seizers are not by the test??? But when he is quiet and coloring that when he is having one..So no full answer on this. we had my other Dr stop by. Endo. still throwing this thought around on Growth Hormone.. The Unvty. of Minnesota truly amazes us. one email with are concerns and a call the next day wanting to know when we can come and we get there at 8:15 and resgtier by 8:40 am hooked up to the EEG and testing by 11 clock and by noon have 6 different doctors stop in. That get pretty mind full. Terrell did super all his labs were great in which we had no concerns with that. he even got to play all nigth at the Ronald McDonald Hosue this is something he didn't get to do much when we were there. Met so many new families some are in great need of Prayers The name has sliped my mind but form Minnosta. And we ran in to Matthew and his mom Please send some prayers out to the he is the same age as terrell and has been figthing this cancer a long time the treatment that was help is no longer working and has gone to his bones he looks so great.So may hugs out to you guys. So I guess this is all I have for you will update soon we know something. Thankyou goes out to all are Coummunity of prayers. well enjoy the warm sun and may God con't to Bless each and everyone of you~~~~~~~~~
love Terrell and family
Friday, April 24, 2009 11:04 AM CDT
Hello, Well I am back on my two feet on land. The Cruise was unbelieveable GREAT !!The ocean is blus Yes Blue so when you see pictures they are not edited for that they really are blue.. The sail friday was a litle rough like you had been drinking all night trying to walk everyone was this way and after while all you would have to do is stop and laugh and start over again. I laugh so much and met so many great Tastefully Simple friends from all over. I guess where I come from I myself was pretty amazed that I even made this sales incentive. When Jill the CEO was on stage welcoming all of us and saying there are 689 of you that made this incentive out of nearly 28,000 consutants making you all are Top 5ells of this company WOW !! when I guess you break it down that is pretty Awesome..Are sail home was great it was like were not even sailing so smooth. So on my arrivel home monday . tuesday moring we headed to MPLS. to have Terrell do a inpatient EEG test for 24 hours. He did Great with all them wires on. They have not Read all of this yet. But we are a little confued yet what we were told were seizers are not by the test??? But when he is quiet and coloring that when he is having one..So no full answer on this. we had my other Dr stop by. Endo. still throwing this thought around on Growth Hormone.. The Unvty. of Minnesota truly amazes us. one email with are concerns and a call the next day wanting to know when we can come and we get there at 8:15 and resgtier by 8:40 am hooked up to the EEG and testing by 11 clock and by noon have 6 different doctors stop in. That get pretty mind full. Terrell did super all his labs were great in which we had no concerns with that. he even got to play all nigth at the Ronald McDonald Hosue this is something he didn't get to do much when we were there. Met so many new families some are in great need of Prayers The name has sliped my mind but form Minnosta. And we ran in to Matthew and his mom Please send some prayers out to the he is the same age as terrell and has been figthing this cancer a long time the treatment that was help is no longer working and has gone to his bones he looks so great.So may hugs out to you guys. So I guess this is all I have for you will update soon we know something. Thankyou goes out to all are Coummunity of prayers. well enjoy the warm sun and may God con't to Bless each and everyone of you~~~~~~~~~ love Terrell and family
Thursday, April 23, 2009 7:20 PM CDT
Hello, Well I am back on my two feet on land. The Cruise was unbelieveable GREAT !!The ocean is blus Yes Blue so when you see pictures they are not edited for that they really are blue.. The sail friday was a litle rough like you had been drinking all night trying to walk everyone was this way and after while all you would have to do is stop and laugh and start over again. I laugh so much and met so many great Tastefully Simple friends from all over. I guess where I come from I myself was pretty amazed that I even made this sales incentive. When Jill the CEO was on stage welcoming all of us and saying there are 689 of you that made this incentive out of nearly 28,000 consutants making you all are Top 5ells of this company WOW !! when I guess you break it down that is pretty Awesome..Are sail home was great it was like were not even sailing so smooth. So on my arrivel home monday . tuesday moring we headed to MPLS. to have Terrell do a inpatient EEG test for 24 hours. He did Great with all them wires on. They have not Read all of this yet. But we are a little confued yet what we were told were seizers are not by the test??? But when he is quiet and coloring that when he is having one..So no full answer on this. we had my other Dr stop by. Endo. still throwing this thought around on Growth Hormone.. The Unvty. of Minnesota truly amazes us. one email with are concerns and a call the next day wanting to know when we can come and we get there at 8:15 and resgtier by 8:40 am hooked up to the EEG and testing by 11 clock and by noon have 6 different doctors stop in. That get pretty mind full. Terrell did super all his labs were great in which we had no concerns with that. he even got to play all nigth at the Ronald McDonald Hosue this is something he didn't get to do much when we were there. Met so many new families some are in great need of Prayers The name has sliped my mind but form Minnosta. And we ran in to Matthew and his mom Please send some prayers out to the he is the same age as terrell and has been figthing this cancer a long time the treatment that was help is no longer working and has gone to his bones he looks so great.So may hugs out to you guys. So I guess this is all I have for you will update soon we know something. Thankyou goes out to all are Coummunity of prayers. well enjoy the warm sun and may God con't to Bless each and everyone of you~~~~~~~~~ love Terrell and family
Saturday, March 28, 2009 9:47 PM CDT
Well we are still around sorry for the delay in updates. Here we are 4 Years post Transplant. Sometimes no it don't seem like 4 years it like yesterday. And when we were started this journey time just sometimes just didn't not move for us. What has this 4 Years brought us? When I look back Wow how now I can see god was there carrying us all. On March 21,2005 Terrell enter the hospital to prepare is body for a life saving treatment for his ALL T-Cell Leukemia chemical on set from his first cancer treatment a Bone Marrow Transplant (via cord blood )was his only cure. On March 29,2005 @ 1:15pm Terrell received his transplant it took 15 minutes.Yet to this day we thank the family for there donated cord that saved are son life THANKYOU !! In this 4 years has boroughs us many joys, many many trying times, But Thur it all Terrell never gave up.He fought his cancer and the treatments with so much courage. In this 4 years Terrell has faced more courage then most adults. Yes he is CANCER FREE yet to this day and we are Thankful for that. In this 4 year time we have seen so many after effects of treatment that he faces each day. *From the being on the vent 6 times. *kidney failure 2 times *GVH (graph vs host) skin and GI track. *Gall Bladder out *Lost of blood after surgery of the gal bladder 5 units of blood. *To relearn to walk 3 times, talk to eat took a year. *10 line infection. *many,many units of platelets a day some days as many as 3 units to keep him at 75,000 & countless blood transfusions. *up to as 12 IV pumps at one time. *blood clot in your bladder that you pee blood for weeks *Collapse lung In 380 days you spent 285 in the hospital 285 days . Yes I know there is 365 days in a year. But I had to do a talk to a group about how we need FAITH in are life and when I wrote it .It hit me Terrell when on the vent just 7 days after getting his Transplant April 6Th and the last day he walk out and has stay out a year later was April 6 to the day and never has been back in, Weird ? And it was Easter day 2005 that Terrell quiet eating and if you all remember right it was Easter to the day that he started to eat (Ham ). Also in this year he even got a helicopter ride . In this time Terrell my son I am so proud of you.Your courage,someday seems to amaze me. In this time Terrell you have faced so very much you were so very small when cancer entered your life. Cancer has change your life each and every day you face the after effects this has done to you. *The memory loss *Hearing loss *scares on your chest for your central lines *scare on your belly *scare on the back your head These are scares that you have and will have the rest of your life and didn't get to earn them by falling off your bike, playing your favorite sport But all due to CANCER. And now for the last 8 months you deal with seizures. Terrell I know we pray every night that God will have them stop and that we cont Cancer Free and that some day that you will be able to live a child no medicine but you take them like a pro. And always know Terrell you are my Hero and I love you to the moon and back. As you see in this 4 years when we look back all the memories of this journey it still seems like yesterday. but so glad some of those days are years gone. And on this journey we have met some great families and always will hold special parts in are hearts. we have seeing what cancer can do it take so many young people.And there are many that have won this battle. So if any of you still have them Terrell support shirt it would be great to see you get them out and wear them on his day March 29,09 .$ years and CANCER FREE !! Sorry this update is so very long this is what happens when you don't for 3 months. When I look at the pictures to get them all together i just can not get a theme together. So I am hoping to get it together and to share with you are extended family what My Hero Terrell has faced in his short 91/2 years. Wishing You all a VERY BLESSED EASTER. it's a season of new beginnings. Again Thank You for your cont support and prayers. Love, Terrell and family
PS Terrell lost another great buddy Mitch Maxey on March 17,09 .Mitch fougth his cancer and he will be always 19 . Mitch & family you will always hold a special part i terrall and are life.
Thursday, December 25, 2008 7:49 AM CST
Well here were are the boys are sleeping in after a very early visit by Santa and the smiles on there face. They could not sleep til he came and now sound a sleep For are home Christmas could not get here fast enough. So here we go I am so bad with words for what I truly mean. Terrell is doing well keep busy and looking forward to basketball to start. He is now 9 years old in the 3 rd grade. Emanuel is 7 years old and in first grade and he is the life of the unknown and he just can not grow up fast enough there are days that he seems 16 . I know I am well over due for new pictures and I will I promise. Are life is back to normal and but a new noraml of life we pray get day that a health stay on the track we are and see each and every day the side effects that Terrell faces each day and not only him but all of us it has effected. We count are Blessing again and again for Terrell life and all of are and try not to take any thing for granted as we know that it can change in a heart beat.And for sure the family that donated there cord for science that has saved Terrell's life we will always be thankful for them. And also to all are coummity and family,friends that con't to pray for us THANKYOU !! And to all are extened families far and near we pray that your journay is the best ever and to all of you that have lost there loved ones may God give you comfort thru this Holiday season. So From are home to Yours no matter to where you are you ALL hold a Special part in are hearts ALWAYS !!We couldn't Wish you a More Blessed Holiday Season and Year to come *2009* With all are Hearts we Love you all and could of never got thru this without any of you. Thankyou!! Happy Holidays ~~~ Terrell & Family
ps Please send out prayers to a great friend Mitch he is hanging on for his Miracle and he Belives so please check in and let them know web page is www.caringbridge.org/wi/mitchmaxey We love you guys ~~~~~~~~~~
Please click on this and listen to all there songs Mercery Me is truly amazing uplifting song it help us get thru many time so click on and listen to them all. also I have added the story
My Purpose
I have cancer. There isn't an explanation as to why I became sick. All I know is God has a plan for each of us and for each plan there is a purpose. Some of us know what our purpose in life is and others will never find it. Then there are those like me who accomplish if without ever realizing it. My journey with cancer will not and has not been without purpose. It is through my illness that I have helped doctors understand this disease a little more so they may find a cure. It is thorugh my illness that I have opened the eyes to those around me to how precious life really is. Something we all to often take for granted.
It is though my illness that some of those around me have realized that life is too short to be afraid of our feelings. My cancer has been beaten back by the power of love. It is the most powerful of emotions, one not to be afraid of, but to be embraced. To be loved by someone unconditionally and completely is to reach into your soul and feel warmth.
It is thorugh my illness that I have shown there is no guarantee for the future--only dreams for it. Whether the future is just another day or another 75 years, we should all dream big and live fully everyday.
It is through my illness that I have seen the strong cry, only to find more strength.
It is through my illness that some of us who haven't talked to God in a while have once again begun to pray.
It is through my illness that I have joined the hands of those familiar to those of strangers, to form one long chain. I have already accomplished so much in such a short amount of time and each day I continue to touch the hearts of many.
That is my purpose.
Thursday, December 25, 2008 7:49 AM CST
Well here were are the boys are sleeping in after a very early visit by Santa and the smiles on there face. They could not sleep til he came and now sound a sleep For are home Christmas could not get here fast enough. So here we go I am so bad with words for what I truly mean. Terrell is doing well keep busy and looking forward to basketball to start. He is now 9 years old in the 3 rd grade. Emanuel is 7 years old and in first grade and he is the life of the unknown and he just can not grow up fast enough there are days that he seems 16 . I know I am well over due for new pictures and I will I promise. Are life is back to normal and but a new noraml of life we pray get day that a health stay on the track we are and see each and every day the side effects that Terrell faces each day and not only him but all of us it has effected. We count are Blessing again and again for Terrell life and all of are and try not to take any thing for granted as we know that it can change in a heart beat.And for sure the family that donated there cord for science that has saved Terrell's life we will always be thankful for them. And also to all are coummity and family,friends that con't to pray for us THANKYOU !! And to all are extened families far and near we pray that your journay is the best ever and to all of you that have lost there loved ones may God give you comfort thru this Holiday season. So From are home to Yours no matter to where you are you ALL hold a Special part in are hearts ALWAYS !!We couldn't Wish you a More Blessed Holiday Season and Year to come *2009* With all are Hearts we Love you all and could of never got thru this without any of you. Thankyou!! Happy Holidays ~~~ Terrell & Family
ps Please send out prayers to a great friend Mitch he is hanging on for his Miracle and he Belives so please check in and let them know web page is www.caringbridge.org/wi/mitchmaxey We love you guys ~~~~~~~~~~
Please click on this and listen to all there songs Mercery Me is truly amazing uplifting song it help us get thru many time so click on and listen to them all. also I have added the story
My Purpose
I have cancer. There isn't an explanation as to why I became sick. All I know is God has a plan for each of us and for each plan there is a purpose. Some of us know what our purpose in life is and others will never find it. Then there are those like me who accomplish if without ever realizing it. My journey with cancer will not and has not been without purpose. It is through my illness that I have helped doctors understand this disease a little more so they may find a cure. It is thorugh my illness that I have opened the eyes to those around me to how precious life really is. Something we all to often take for granted.
It is though my illness that some of those around me have realized that life is too short to be afraid of our feelings. My cancer has been beaten back by the power of love. It is the most powerful of emotions, one not to be afraid of, but to be embraced. To be loved by someone unconditionally and completely is to reach into your soul and feel warmth.
It is thorugh my illness that I have shown there is no guarantee for the future--only dreams for it. Whether the future is just another day or another 75 years, we should all dream big and live fully everyday.
It is through my illness that I have seen the strong cry, only to find more strength.
It is through my illness that some of us who haven't talked to God in a while have once again begun to pray.
It is through my illness that I have joined the hands of those familiar to those of strangers, to form one long chain. I have already accomplished so much in such a short amount of time and each day I continue to touch the hearts of many.
That is my purpose.
Thursday, September 18, 2008 8:10 AM CDT
HELLOOOOOOO EVERYONE !!
WELL IT'S WELL OVER DUE FOR A UPDATE I HAVE A COUPLE MINUTES SO I THOUGHT I WOULD UPDATE. ARE APPIONTMENT IN MPLS. IN MARCH WENT GREAT !! NO CANCER! 100ONOR WHICH WE KNOW IS SURE TO STAY THIS WAY.MRI OF THE BRAIN NO CHANGE. SO NEURO. EXAMINE WAS DOWN FROM LAST YEAR BUT NOT SURPISING THIS WILL HAPPEN W/KIDS THAT HAVE RADATION TO THE BRAIN UPS AND DOWNS THEY WOULD LIKE THEM TO THE SAME BUT WE DROPPED. BUT WE ARE GETTING THERE. THEN GROWNING NOT MUCH THEY THROW OUT TO US ABOUT THE GROWTH HORMONE AGAIN BUT WE ARE STILL WAITING OFF ON THIS BECAUSE THE MORE I READ AND ASK ABOUT THERE IS THAT CHANCE OF DEVOPING CANCER FROM IT ANS I WILL NOT INJECT MY SON EVERY NIGHT AND HAVE THSI HAPPEN I WOULD NEVER LIVE WITH MYSELF. SO THIS IS LEFT IN GOD'S HANDS TO HAVE HIM GROW AS FOR ME HE WILL STAY SHORT & SASSY! THEN IN MAY WE HAD ARE FIRST COMMUNION O'THE TEARS OF JOY JUST FLOWED AND SO MANY IN THE CHURCH WAS SO WITH US SEE THIS LITTLE MAN WALK DOWN KNOWING WHAT HE HAS ENDURED IN HIS LIFE. YOU COULD JUST FEEL GOD SURLY BLESSING HIM THAT DAY. AND TO BEAT IT OFF HE WAS THE FIRST TO WALK DOWN BECAUSE OF ALPHABET ORDER. SO HOLDING TEARS THERE WAS NO TIME TO HOLD. HE WAS SO PROUD TO BE THE LEADER OF HIS PACK THERE WERE 28 OF THEM WHAT A GREAT BUNCH OF KIDS AND FAMILIES AND TEACHERS HE IS SO BLESSED TO HAVE SO MANY THAT REALY HELP HIM. THEN THIS PAST SUMMER BASEBALL AS YOU SEE I DIDN'T BUT T-BALL TERRELL TOLD ME TO SET THE RECORD STRAIGHT THAT IT BASEBALL !! NOT T-BALL THAT JUST FOR KIDS ! WELL AS WE ARE GROWING UP,, IN APRIL I NOTICED THIS WEIRD THING HE WAS DOING AND HERE IT EFFECTS FROM RADATION & CHEMCO IT IS SEIZERS NOTHING BAD BUT HE HAS IT AROUND 2-3 TIMES A DAY AND NOW TRYING TO GET THE MEDCINE TO STOP THEM. LIKE I ALWAYS HAVED SAID ON THIS JOURANY OF LEARNING SO MANY PEOPLE SAY HAY! YEY! YOUR DONE WITH TREATMENT AND YES THIS GREAT THING BUT IT THE LIFE AT TREATMENT THE AFTER EFFECTS THAT I KNOW TERRELL FACES EVERYDAY AND WILL FOR THE REST OF HIS LIFE . CANCER REALLY SUCKS !! AND HITS SO MANY YOUNG AND OLD. SEPTEMBER IS PEDS. CANCER AWARNESS MONTH SO PLEASE SUPPORT WHATEVER IS OUT THERE WE NEED A CURED NOT TODAY BUT IT SHOULD OF BEEN YESTERDAY. THE GOVERMENT HAS NO CLUE IN WHAT THESE PEOPLE GO THRU IF THEY DID THERE WOULD BE MORE DONE AND CHANGING THINGS IN THE WAY WE LIVE.. SO THAT ALL FOR NOW AND YES I WILL UPDATE NEW PICTURES SOON. AND TO TOP IT ALL OFF MY WORK PLACE IS CLOSING SO I WAS LAID OFF AUGUST 8TH AFTER 21 YEARS 3 MONTHS IT'S TIME FOR A CHANGE SO WHO KNOWS WHERE THE ROAD WILL LEAD. BUT WILL GET THRU THIS WE BEEN FACED WITH LOTS MORE THEN THIS. WELL MANY PRAYERS OUT TO ALL OF YOU AND SOME OF YOU HAVE LOST THE BATTLE AND KNOW WE CON'T TO PRAY FOR ALL OF YOU AND MAY GOD CON'T TO BLESS EACH AND EVERY ONE YOU AND YOUR FAMILIES. LOVE, TERRELL & FAMILY
THERE MANY TIMES THAT WE LISTEN TO THIS GROUP MERCY ME THET ARE ARE AND THE ONE SONG THERE ARE MANY YOU CAN LISTEN TO IS THE WORD OF GOD COME DOEN LIKE RAIN . ENJOY !!
Saturday, March 29, 2008 4:54 PM CDT
WELL HERE WE ARE THE SUN IS OUT AND WHEN WE LOOK AT BACK AS OF TODAY IT'S BEEN 3(THREE) YEARS TODAY THAT WE RECIEVED ARE BONE MARROW TRANSPLANT(BMT) FROM A CORD BLOOD WHICH WE ARE SO THANKFUL FOR THAT FAMILY THAT HAD DONATED THERE CORD BLOOD WHEN THERE LITTLE BOY IN MASSCHATTS BORN OCT./2002 WAS A PREFECT MATCH 6/6 FOR TERRELL.YOU SAVED HIS LIFE THANKYOU WILL NEVER EVER BE ENOUGH FOR THIS I WISH WE COULD MET YOU BUT THRU THIS I GUESS WE NEVER GET TO. BUT ALWAYS KNOW THAT WE THANKYOU FOR THIS !! WELL WE HAVE RETURN FROM MPLS. FOR ARE 3 YEAR CHECK UP AND WORDS CAN NOT BE MORE THEN ANOTHER BLESSING OF NO!! YES NO SIGN OF LEUKMIA IN HIS MARROW YEAH !!! 80 ERILTY NORMAL NORMAL . ALL LABS PERFECT !! HE EVEN DID HIS FIRST MRI WITH NO SECDATION 40 MINUTES OF LIKE HE SAYS *NO WIGGLING MOM I DID IT* THIS WAS TO GET A BASE LINE FOR IF WE DO GROWTH HORMONE TO MAKE HIM GROW WHICH WE HAVE ASKED AND ASKED SO WE ARE GOING TO WAIT ONE MORE YEAR IF NO GROWTH IN THAT TIME THEN MAYBE WE WILL CROSS THAT BRIDGE.. ANOTHER THEY HAD TOLD US THAT HE WOULD BE ON ADNERAL GLAND MEDICINE FOR LIFE BUT ARE STIM TEST CAME BACK WITH GOOD NEWS IN APRIL WE ARE GOING TO START TO WEAN OFF THIS MEDICINE AND REDO THE STIM TEST AND SEE HOW HIS BODY IS DOING ALL ON IT'S OWN,, YEAH JUST MAYBE GET OFF THIS.. AND PHORUS. NORAML ALSO FIRST TIME IN 3 YEARS SO WE ARE CUTTING THIS BACK AND SEE WHERE THIS GOING IF GOOD MAYBE GET OFF THIS. THRYIOD LEVEL WAS RIGHT ON SO DOSE ON THAT IS FINE. I DIDN'T THINK ABOUT ASKING ABOUT THIS ONE BUT ASK IF WE CAN OR NOT.. O BEFORE ALSO BEFORE I FORGET HE SAT THERE WHEN PUTTING I.V. IN AND JUST WATCHED DIDN'T CRY THE FIRST TIME BUT NO LUCK SO WE HAD TO DO IT ANOTHER POKE HE HAD SOME TEARS THIS TIME BUT DID GREAT .HE IS GROWING UP SO FAST AND BRAVE.. SOME OF THE BMT DR'S SEEN TERRELL AND TRULY AMAZED IN HIS PROGRESS.. AND BEST OF ALL WE DON'T RETURN TO THEM THE BMT FOR 2(TWO) YEARS. YES YOU ARE READING RIGHT 2 YEARS THAT IS SO GREAT !! WE ALSO RAN INTO ONE OF ARE OLD BUDDYS FROM NORTH DATKOA MATTHEW HE LOOKS SO GREAT IT WAS SO GOOD TO SEE THEM ON WEDENDAY NIGHT HE HAS BEEN THRU SO MUCH AND GETTING HOME A GOT EMAIL FROM THEM MATTHEW MOM HAD TEST ON THURSDAY AND SHOW MORE TUMOR HAD COME. MY HEART GOES OUT TO THEM IT REALLY SUCKS HE HAS FACED THIS NOW I THINK IS HIS 4TH. TIME W/NEROBASTOMA. HE IS JUST A YEAR OLDER THEN TERRELL AND HE HAS A SMILE THAT CAN STEAL YOUR HEART AND PARENTS OF THE MOST LOVING PEOPLE IN THE WORLD HERE IS HIS WEB PAGE PLEASE PRAY FOR HIM AND HIS FAMILY SO THEY CAN GET A CURE FOR HIM.www.caringbridge.org/nd/matthew. TODAY AS WE GET READY FOR ANOTHER MILSTONE FOR TERRELL WE HAD A THING AT CHURCH FOR ALL THE FIRST COMMUNION TO GO THRU THINGS THAT WE NEED TO GET DONE . THIS WILL BE A VERY BUSY WEEKEND FOR TERRELL AS ON FRIDAY MAY 2 HE HAS HIS DANCE RECTIAL.AND THEN THAT SUNDAY MAY 4 HE HAS HIS FIRST COMMUNION. I HAVE ALSO ADD HIS PICTURE BUT IF YOU CLICK ON IT YOU CAN SEE MORE. AND PLEASE IF YOU THE TIME LISTEN TO THE SONGS FROM MERCURY ME THEY ARE SO INSPIRTIONAL AND YOU KNOW GOD HAS POURED DOWN LIKE RAIN ON TERRELL HE HAS BLESSED HIM & ARE FAMILY IN MORE WAYS THEN WORDS CAN EVERY SAY. AND ALSO ON THERE IF YOU CLICK YOU CAN LISTEN TO MORE OF THERE SONGS. SO ENJOY. AND IF YOU A CHANCE LEAVE A MESSAGE WE LOVE HEARING FROM YOU ALL. AND THANKYOU FOR ALL YOUR SUPPORT THRU THIS JOUANRY. THE UPDATES WILL BE NOT AS MUCH BUT WILL UPDATE ARE DOCTOR APPTS. NOW 6 MONTHS APART BUT IF WE HAVE NEW THINGS TO SHARE I WILL UPDATE. SO FOR NOW FOR MANY OF ARE FAMILIES ON THIS JOURANY WE SEND ALL ARE LOVE OUT TO YOU AND MANY PRAYERS AND HUGS. AND MAY ARE ROADS CROSS AGAIN IN A GOOD WAY. TIL NEXT TIME... SO ENJOY THE MUSIC........ LOVE TERRELL AND FAMILY
Friday, March 21, 2008 11:13 AM CDT
HAPPY SPRING !!! WELL MAYBE NOT IT IS SNOWING HERE IN IOWA TODAY AND WE ARE UNDER A WINTER WARNING ! THEY MUST OF MADE A MISTAKE ON WHEN SPRING STARTS ?? HAHA WELL WE HAVE A HAD A VERY LONG WINTER AND ARE SO READY FOR SPRING BUT NOT THE MUD.. WELL 3 YEARS AGO TODAY AS I TYPE TERRELL STARTED THIS JOURANY OF BMT (BONE MARROW TRANSPLANT)THE CURE THAT WE SO NEEDED FOR HIM TO BECOME CANCER FREE !! I SO REMEMBER THIS DAY WE WERE IN MPLS. THE WEEK BEFORE THIS TO SEE IF HIS BODY WAS READY AND WHEN WE COME TO COME HOME THEY WERE BLASTED YES THEN WITH 24 INCHES OF SNOW BUT BY THE TIME WE HEAD BACK ON THAT SUNDAY IT WAS GONE AND HERE WE ARE 3 YEARS LATER AND SNOW. SOMETIMES IT HARD TO FIND THE WORDS IN WHAT TERRELL HAS FACED IN HIS LIFE TIME.HE HAS NEVER GAVE UP AND WHEN GET TUFF HE JUST KEEPS ON FACING THE WORLD WITH THAT WONDEFUL SMILE AND SPARK OF LIFE THAT HE SO WANTS. AND HE HAS DONE SO WELL IN THESE PASS DAYS,WEEKS & YEARS TO SEE WHAT HE CAN DO AND WHAT HE HAD TO DO TO GET HERE IS THRU HIS BELIEVING IN HIMSELF AND HIS FAITH AND GOD GUIDING HIS EVERY STEP IS A BLESSING. TO SEE HIM DANCE. TO SEE HIM JUST BEING A BOY AT HEART ,TO SEE HIM EAT AND ENJOY. TO SEE HIM DRAW,TO SEE HIM RUN WITHOUT FALLING ON HIS FACE (A DAY I THOUGHT WE WOULD NEVER SEE), TO SEE HIM DO DOWN STEPS NOT SITTING ON HIS BUTT OR HANGING ON TO THE RAILING FOR DEAR LIFE,TO SEE HIM WRITE HIS NAME,TO HEAR HIM COUNT AND TO HEAR HIM READ AND TO HAVE HIS WONDEFUL LAUGHTER BACK AND THAT PURE PERFECT SMILE.WHEN WE REFLECT BACK AND THINK WILL WE EVERY GET HERE.SOMETHING SOME PEOPLE JUST TAKE FOR GRANTED. AS EASTER IS HERE TERRELL REMINDS ME SO MUCH IN WHAT JESUS HAD TO GO THRU FOR US FOR SALVATION AND WHAT TERRELL HAS TO GO THRU JUST TO BE A BOY. WE COULD ON NEVER GOT THRU THIS WITHOUT YOUR CON'T SUPPORT AND FAITH AGAIN THANKYOU. WE HOPE YOU ALL HAVE A VERY BLESSED EASTER.SPRING AND EASTER ARE ALL STARTS OF NEW THINGS IN LIFE. AS THE WEATHER WARMS THE NEW GRASS,THE NEW TREE LEAFS,FLOWERS,BIRDS SINGING IN THE AIR WOW WHAT WE ALL LOOK SO FORWARD TO EACH YEAR. PLEASE CON'T TO PRAY FOR TERRELL WE HAD BACK TO MPLS. HERE MARCH 26,27,28 2008 FOR ARE 3 YEAR CHECK UP. THAT ALL TEST COME BACK STILL CANCER FREE AND LABS ARE GOOD. HAPPY EASTER TO YOU ALL !! LOVE, TERRELL & FAMILY
ALSO TERRELL WAS HONOR PATIENT IN IOWA FOR PENNY FOR PAITENTS FOR THE LEUKIMA FOUNDATION AND AGAIN THIS YEAR .BUT LAST YEAR HE WAS CHOSEN AS IOWA 'S HONOR PATIENT !! WAY TO GO TERRELL WHAT A HONOR !!
Friday, March 21, 2008 11:12 AM CDT
Saturday, February 9, 2008 6:18 PM CST
WE ARE ALL DOING GREAT !!! TIME IS JUST FLYING BY WOW !! ALMOST 2 MONTHS SO I THOUGHT I BETTER UPDATE..
SNOW IS FALLING ALONG WITH THE TEMPS BURRRRRRR!!
HEALTH WISE TERRELL IS DOING GREAT.. JUST NORMAL KIDS STUFF. DID I SAY NORAML !!!!!! NO DOCTOR VISTS TIL END OF MARCH FOR ARE 3 YEAR POST TRANSPANT CHECK UP. YES THAT RIGHT 3 YEARS !! AND IF THIS ALL GOES WELL THIS SHOULD BE ARE LAST BONE MARROW BIOSPY.WE WILL HAVE TO CON'T TO GO FOR CHECK UP BUT THEY CHECK IT THRU ALL THE LABS.. SOMEDAYS WHEN I HAVE TIME I SIT AND READ BACK THRU TERRELL'S JOUANAL AND NEVER THOUGHT WE NEVER WOULD OF THOUGHT WE WOULD BE HERE AND CANCER FREE !! AND MANY OTHERS I READ BACK THRU YOU KNOW FIRST HAND THAT THE BIG GUY (GOD)HAS TOUCH MANY OF ARE LIVES AND SOMETIMES WORDS JUST CAN NOT EXPLAIN IT AND THANKYOU JUST DON'T HIT BUT WE DO THANKYOU FOR ALL YOUR SUPPORT THRU THIS. MY GOAL FOR THIS YEAR IS TO GET MY SCRAPBOOKING DONE AND GET ALL OF TERRELL JOUANY ON A CD WITH MUSIC AND PUT ON HIS WEB PAGE. I THINK THIS WILL GIVE YOU A LITTLE UNDERSTANDING IN WHAT HE HAS FACED AND SEE YOUR PRAYERS AT WORK. WELL SOME ONE IS SAYIN HELP ME MOM WITH MY VALTAINES FOR SCHOOL SO TELL NEXT TIME.WE SEND ALL ARE THANKS AND LOVE OUT TO YOU ALL.. LOVE, TERRELL & FAMILY
PS THE NEW SONG IS TERRELL HE IS A BRAND NEW MAN ENJOY!!!!! ALSO I HAVE ADD TO THE LINKS ABOUT CHILDHOOD CANCER WE NEED A CURE SO SO MANY .HAVE YOUR LOSE THERE BATTLE TO THIS,,,,,,,
Monday, December 24, 2007 10:26 PM CST
Well here we the night before CHRISTMAS all is well in are home.. Sorry for the delay in updates.We have been very busy it's been so long since I updaated pictures that I hope i rememebr in how to do it it should even have music.. We went to church tonght and open presents here and now awaiting Santa's arrive both boys have been good this year so if santa don't get stuck in the snow he should be making his rounds. Terrell has the cookies out & milk for him.And Emanuel's keeps eating them some day i just don't know what I am going to do with him!! It's wonderful to be 6 years old. This Christmas has again brought us many Blessing one for sure if maybe you read earlier in June we did get Great news are 6year MRI od the brain came back "CLEAR" AND THE WORDS "CURED" waiting 6 years for those words.And as of today we are "CANCER FREE" And that it self is the biggest Blessing we count this Christmas as many others days. Well the there not much to update but we can never THANKYOU ALL enough for all the prayers & support that con'ts for Terrell and are family we could of never got this far without you. And to many of the families that we have meet on this jourany some of you lossing your love one thru this battle we share the tears with you and may this holiday season bring all the wonderful comfort it can bring.And to all of you I still check in on many of you yet I'll try to leave a message I know how we enjoy getting them .We send all are love out to you all at this Holiday time & may the New Year bring all of the Wonderful Health & many great Blessings !!! Love to all & a Good Night !!!!!!!! Til next time Terrell & family ps Listen to the music & enjoy the new pictures !!
Monday, December 24, 2007 10:26 PM CST
Well here we the night before CHRISTMAS all is well in are home.. Sorry for the delay in updates.We have been very busy it's been so long since I updaated pictures that I hope i rememebr in how to do it it should even have music.. We went to church tonght and open presents here and now awaiting Santa's arrive both boys have been good this year so if santa don't get stuck in the snow he should be making his rounds. Terrell has the cookies out & milk for him.And Emanuel's keeps eating them some day i just don't know what I am going to do with him!! It's wonderful to be 6 years old. This Christmas has again brought us many Blessing one for sure if maybe you read earlier in June we did get Great news are 6year MRI od the brain came back "CLEAR" AND THE WORDS "CURED" waiting 6 years for those words.And as of today we are "CANCER FREE" And that it self is the biggest Blessing we count this Christmas as many others days. Well the there not much to update but we can never THANKYOU ALL enough for all the prayers & support that con'ts for Terrell and are family we could of never got this far without you. And to many of the families that we have meet on this jourany some of you lossing your love one thru this battle we share the tears with you and may this holiday season bring all the wonderful comfort it can bring.And to all of you I still check in on many of you yet I'll try to leave a message I know how we enjoy getting them .We send all are love out to you all at this Holiday time & may the New Year bring all of the Wonderful Health & many great Blessings !!! Love to all & a Good Night !!!!!!!! Til next time Terrell & family ps Listen to the music & enjoy the new pictures !!
Thursday, November 22, 2007 8:37 AM CST
HAPPY THANKSGIVING EVERYONE !!!
WE ARE BUSY BUSY ALL IS WELL HERE IN ARE HOME ARE COUNTING MANY BLESSING ONCES AGAIN. IT IS SO HARD TO THINK IT'S THIS TIME A YEAR AGAIN WE ARE GOING TO HAVE A WHITE THANKSGIVING AND THE BOYS ARE LOVING IT !! SORRY FOR THE DELAY IN UPDATES AND YES I KNOW I HAVE TO GET NEW PICTURES UP .. TERRELL IS LOOKING AND FEELING GREAT!! JUST DOING NORAML KIDS SICKNESS !! WELL THIS IS GOING TO BE A SHORT UPDATE AS WE ARE GETTING READY TO HEAD OUT . AGAIN WE COUNT ARE BLESSING NOT JUST ONCE BUT MANY TIMES AGAIN AGAIN. AND ALL GOES OUT TO ALL OF YOU THRU PRAYERS AND NEVER LEAVING ARE SIDE AND BEING THERE PICKING US UP AND CARRYING US SO MANY OF THE TIMES AND THAT IS A BIG BLESSING THIS THANKSGIVING AND EVERY THANKSGIVING AGAIN THANKYOU ALL SO VERY MUCH FOR BEING THERE AND SUPPORTING US AND NOT JUST ARE FAMILY BUT SO MANY OF THESE FAMILIES THAT HAVE CROSSED ARE PATHS. SO MANY STILL FIGHTING .SOME HAVE LOSS THERE FIGHT (ny/anna) WE SEND YOU PRAYERS AND COMFORT YOUR WAY. WELL SIGNING OFF FOR NOW BUT I'LL TRY TO GET THEM UP HOPEFULLY BY CHRISTMAS !!
MANY THANKS TO ALL OF YOU AND WE SEND ALL ARE BLESSING FROM ARE HOME TO ALL OF YOU OUT THERE CLOSE AND VERY FAR AWAY BUT YOU ALL ARE SO VERY CLOSE IN ARE HEARTS !! HAPPY THANKSGIVING !! LOVE, TERRELL AND FAMILY
Monday, October 1, 2007 10:30 PM CDT
LONG TIME NO UPDATE......... WELL IT FINALLY FALL I LOVE FALL. JUST WHEN WE LOOK BACK IN WHERE WE HAVE GONE AND WHERE WE HAVE COME IS A TRUE BLESSING. IT'S BEEN NOW 2 YEARS SINCE ARE RETURN HOME OF BEING IN MPLS. 200 DAYS. AND CANCER FREE & LIVING LIFE AS A YOUNG BOY SHOULD. WE HAD A DOCTOR & DENIST VISIT LAST WEEK ALL WHEN WELL. NO CARVES YEAH !!! AREW DENIST IS SIRE AMAZED WITH THAT WITH ALL THE CHEMCO HE HAS HAD. WE MADE BE LOOKING AT BRACES BUT I THINK WE CAN HANDLE THIS. BUT THIS WILL BE AWHILE YET. DR'S VISIT ALL LABS GREAT WE ARE UP TO 60 LBS. SO WE ARE EATING WELL. I THINK IF YOU GO BACK THRU MY JOURANAL I THINK I SWORE I SAID I WOULD NEVER EVER TELL TERRELL NOT TO EAT TO MUCH WHEN THERE WAS A TIME WE JUST BEGGED FOR HIM WELL THAT DAYS IS HERE I CATCH MYSELF TELLING HIM I THINK YOU HAVE HAD ENOUGH!! I THINK WE MAY CALL THIS GETTING MORE NORAML LIVING.. TERRELL IS BUSY WITH SCHOOL THIS YEAR WE ARE IN A ROUGH SPOT HOPING THIS CAN GET ON A BETTER FOOT SOON. WE HAVE DANCE WORKING ON ARE BIG "5" YEAR TROPHY,BOY SCOUTS AND SOME FARMING W/DAD. AGAIN WE ARE TOTALY BLESSED IN MORE WAY THEN WE CAN EVER AMAGE IN TERRELL'S PROGRESS AND WE HAVE ALL OF YOU TO THANK FOR YOUR FAITHFUL SUPPORT THRU ALL OF THIS WE CAN NEVER TELL YOU HOW THANKFUL WE ARE TO HAVE ALL OF YOU.. PLEASE CON'T TO PRAY FOR A COUPLE OF ARE FAMILIES AS THEY FACE MANY NEW DECSIONS AND MAY THEY GET THIS CANCER IN REMISSION AND CURED THEY ARE MITCH MAXEY FROM LACROSSE HAD RELASPED & SPREAD OF HIS BRAIN TUMORE BUT CHEMCO IS WORKING AND IS PREPARING TO HEAD TO NEW YORK FOR HIS NEXT TREAMENT OF A CURE .MITCH AND FAMILLY WE ALL ARE WITH ALL THE WAY IN PRAYERS. AND FOR ZACH HALVERSON HAD HIS BONE MARROW TRANSPLANT AND DOING WELL HE HAS HAD STEM CELL A LITTLE OVER A YEAR AGO BUT RELASPED THIS WAS HIS BEST OPION FOR A CURE. SO ALSO KEEP HIM IN SOME EXTRA PRAYERS. THERE ARE MANY OUT THERE YET WE CON'T TO THINKOF MANY OF YOU HOPE ALL IS WELL IN WHERE EVER YOU MAYBE IN YOUR TREATMENT.. WELL THIS IS ALL FOR NOW HOPE TO UPDATE SOONER THEY I DID LAST TIME AND MAYBE NEW PICTURES... AGAIN THANKYOU FOR CHECKIN IF YOU HAVE A MINUTE LEAVE A MESSAGE WE LOVE HEARING FROM ALL OF YOU..... LOVE, TERRELL AND FAMILY
Monday, August 20, 2007 10:48 PM CDT
WELL GUESS WHO IS THE BIG #8 NOW ?? TERRELL IS NOW 8 ON THE 19 OF AUGUST !! HAPPY BIRTHDAY TERRELL !!! WE HAD THERE PARTY ON THE 4TH. OF AUGUST. THIS IS A BUSY MONTH OF BIRTHDAYS FOR US. TERRELL'S IS THE 19TH. OF AUGUST (8YERS.) BROTHER EMANUEL IS THE 13 TH. OF AUGUST (6YRS.) COuSIN CODY IS THE 14 TH OF AUGUST (7yrs.) SO THIS KEEP US BUSY FROM ONE PARTY TO THE NEXT.. I DO HAVE SOME PICTURES TO UPDATE HOPEFULLY SOON..THE BOYS ARE GROWING UP SOOO VERY FAST.. SCHOOL START ON TUESDAY AUGUST 21,07 WE ARE READY AND RUNNING !! TERRELL WILL BE IN 2ND. GRADE & EMANUEL IS IN KINDERGARDEN.. WE ARE PRAYERING FOR ANOTHER AWENSOME YEAR FOR TERRELL IN SCHOOL HE HAD 3 AWENSOME TEACHER LAST YEAR !! AND WHAT I KNOW OF THE TEACHERS THIS YEAR AND FEEL THEY WILL ALSO BE PRETTY AWENSOME ONE THING NICE THE TEACHER LAST YEAR WILL HELP GUIDE THIS YEAR TEACHER,RESOURCE TEACHER IS THE SAME THE ASSOCATE IS DIFFERNET BUT KNOW HIM FROM DAY CARE. AND WE HAVE BE SO BLESSED TO GET ASSOCAITES W/ THERE TEACHER DEGREE BOTH TIMES SO THAT IS GREAT!! WE HAVEN MADE UP ARE MINDS ON DANCE YET ?? EMANUEL IS A SURE NO !! MAYBE PEEWEE WESTLING FOR HIM..BOY SCOUTS ARE 1 & 3 FRIDAY RIGHT AFTER SCHOOL AT SCHOOL SO THIS ALL A PLUS AND THE NEW DEN LEADER IS A TEACHER & WHAT I HAVE TALK W/ HER SEEMS GREAT!! THEN WE HAVE CCD ON WEDEDAYS WE HAVE FIRST COMMUNTION THIS YEAR SO I THINK WE WILL BE BUSY.. THEN MAYBE BOWLING ?? WE HAVEN'T DONE FOR A COUPLE YEAR BUT LIKED WHEN THEY DID.. WE HAVE NOT STARTED ANY SHOTS TO HELP HIM GROW THEY WANTED HIM TO START IN JUNE BUT IN BETWEEN CHICAGO & CALIF.. IS A MESS ONE SAY ONE THING ANOTHER SAYS ANOTHER IN WHAT INSURANCE PAYS AND THEN THEY CALL US AND WE AREN'T THE ONCE TO MAKE THAT OPION THAT IS BETWEEN THE DR'S & INSURANCE I TOLD THEM IF WE ARE HAVING THIS MUCH TROUBLE WITHOUT EVEN STARTED FORGET IT !! ARE FAMILY DR. SAID IF HE GETS TO BE 5 FOOT & WELL WHY ?? AND THAT HIT ME WHY PAY $48,000 A YEAR FOR UP TO 10 YEARS AND ONLY GAIN ABOUT 4-5 INCHES & HAVE THAT CHANCE OF GETTING CANCER FROM A DRUG THAT SOMETIMES CAUSE CANEROUS TUMOR BEEN DOWN THAT ROAD ONCE WHY WOULD ANY PARENT DO THIS TO A CHILD OF THERE ARE RISK ARE HIGH ENOUGH FO HAVING IT AGAIN WHY WOULD WE GIVE A DRUG THAT WOULD INCREASE THAT RISK ?? SO THAT WHERE WE ARE ON THAT .. I GAVE THIS ALL OVER TO GOD HE CAN HANDLE IT HE GOT US THIS FAR AND HE IF WANTS TERRELL TO BE TALL HE BE TALL . PLEASE CON'T THE PRAYERS FOR TERELL & MANY OTHER ON THIS JOURANY SOME ARE REALLY BATTLING FOR THAT TRUE MIRACLE & MANY HAVE WON IT AND MANY HAVE LOST IT. AND I KNOW MANY WOULD AGREE TO THIS CANCER REALLY SUCKS..IT'S NOT THE DIEASE ITSELF IT'S THE EMOTIONAL ROLLER COASTER THE WHOLE FAMILY GOES THRU & THEN ALL THE DELAYED EFFECTS FROM ALL THE TREATMENTS THAT YOU MAY NOT SEE FOR YEARS THEN HAVE MORE TROUBLES.. SO WHEN SOMEONE FINSIHES THERE TREATMENTS DON'T STOPING PRAYERING FOR THEM THE BATTLE STILL CON'T WILL MANY AFTER EFFECTS SO KEEP PRAYERING THEY DO US ALL GOOD.
ALSO PRAY FOR ALL THE VITMIANS IN THE BRIDGE INTERSTE 35 IN MPLS. I WAS JUST OVER THAT BRIDGE THE WEEK BEFORE. AND FOR ALL ARE LOCAL FLOOD VITAMS IN A BACK DOOR THIS PAST WEEKEND ..IT CAN STOP RAINING NOW. AGAIN THANKYOU FOR ALL YOUR CON'T SUPPORT THRU THIS... MUCH LOVE TIL NEXT TIME NO NEWS IS GOOD NEW SOMETIMES THEY SAY !!! I HOPE TO UPDATE PICTURES SOON.. LOVE, TERELL & FAMILY
Tuesday, July 10, 2007 8:00 PM CDT
HELLO EVERYONE !!!!! YES WE ARE STILL AROUND.. SORRY FOR THE DELAY. THE COMPUTER BEEN DOWN & OUT !! SO HOPEFULY WE ARE UP AND RUNNING. WELL AGAIN WE THANKYOU ALL FOR ALL THOUS EXTRA PRAYERS FOR TERRELL.. WE HAVE GREAT ,WONDERFUL,AWENSOME NEWS!!!! ON MONDAY JUNE 18,07 TERRELL HAD HIS YEARLY MRI OF THE BRAIN AND YES WE GOT THE ALL CLEAR & THE WORDS CURED !!! YES YOU READ RIGHT "CURED" AFTER 6 YEARS FINALLY GETTING THOUS WORDS.. & SO THIS ALSO MEANS NO MORE MRI'S I KNOW SOME OF YOU FEEL ARE JOY...OF NEVER THINKING OF EVER HEAR THOSE WORDS.ALL HIS LABS WERE IN THE NORMAL RANGE NOT TO LOW OR HIGH ON ANY OF THEM THEY WERE PERFECT !!GO BACK IN 3 MONTHS.. SO WHAT HAVE WE BEEN UP TO WELL TERRELL IS IN T-BALL AND DOING GREAT. DOING SWIMMING ,HAS SCHOOL 2 HRS. A WEEK AND DOING WELL AND JUST BEING A KID FOR THE SUMMER .. EMANUEL IS JUST DOING SWIMING THIS SUMMER NEXT YEAR HE CAN DO T-BALL.. ON THE 4TH. OF JULY WE WENT TO A COMBINE DEMO.. WOW!! IT WAS GREAT THE BOYS LOVED IT.. THEN ON FRIDAY THE 6TH. OF JULY THE BOYS & I RODE IN THE SEMI TO MILLUWAKEE W UNCLE TONY AND WENT TO THE ZOO FOR THE DAY THE TWO BOYS WERE GREAT & REALLY ENJOYED THERE DAY THERE.. WE HAVE FAIR THIS WEEK SO DAD WILL BE TAKING THEM ONE NIGHT FOR KIDS NIGHT & I THINK THEY MAYBE GOING TO A TRACTOR PULL ONE OF THESE DAYS.. SO AS YOU SEE LIFE IS GETTING MORE & MORE IN THE NORMAL MODE BUT I THINK WE WILL ALWAYS HAVE A NEVER BACK TO FULL NORMAL JUST A NEW WAY OF NORAML BUT WE ARE NOT GOING TO LET CANCER STOP US.. WE HAVE TO MOVE FORWARD AND ENJOY OR THE CANCER WINS..BUT ONE BATTLE WON & ENJOY LIFE AS MUCH AS WE CAN WE HAVE LOTS TO MAKE UP AND CROSS THE BRIDGES AS WE FACE THEN ONE BY ONE... MANY PRAYERS GO OUT TO ALL OF YOU THAT WE HAVE CROSSED APTHS W/ ON THIS JOURANY.. WE THINK OF YOU ALL MANY TIMES.. SO ARE DOING WONDERFUL & SOME STILL FACE THE EFFECTS OF THERE TREATMENT EVEN 2 PLUS YEARS OUT..SOME HAVE LOSS THERE BATTLE ONE A JUST 9 YRS. OLD CORI MONTI YOUNG BOY RELASPES LOSS HIS BATTLE TO CANCER WHAT A TRUE FIGHTER HE WAS.. THEN JUST A 5YRS. OLD JONTHAN DIEBLES WON THE BATTLE OF CANCER BUT LOST IT DO TO THE AFYTER EFFECTS OF TRANSPLANT NEARLY 2 YEARS OUT.. MY HEART ACHES FOR THEM HE WON MANY BATTLES ONE AFTER ANOTHER BUT HIS BODY WAS JUST SO WEAK TO FIGHT THE THE LAST ROUND.. SO MANY THINK WHEN YOU GO THRU TREATMENT FOR CANCER & GET THRU IT YOU HAVE WON BUT NOT ALWAYS. THE AFTER EFFECTS ARE SOMETIMES & MOST TIMES HARDER THEN THE TREAMENTS AFTER EFFECTS LAST MUCH LONGER THEN THE TREATMENTS IT CAN GO YEARS AFTER TEATMENT TO HAVE AFTER EFFECTS ..BUT MANY US CAN NEVER THANKYOU MANY OF ALL OF YOU FOR PRAYING & SUPPORTING US THRU THIS JOURANY ..AGAIN WE SEND MANY PRAYERS OUT TO ALL OF YOU AND HOPING YOU ALL HAVE A WONDERFUL SUMMER!!
TIL NEXT TIME !!! LOVE,TERRELL & FAMILY PS I HOPE TO GET SOME NEW PICTURES ON.......
Saturday, May 26, 2007 8:59 AM CDT
HELLO EVERYONE !!!!!
WE ARE ALL DOING VERY WELL... TERRELL WILL BE DONE WITH SCHOOL ON TUESDAY THEN SUMMER BEGINGS.. TERRELL HAD A AWENSOME SCHOOL YEAR !!! HE MADE GREAT PROGRESS HE HAD THE MOST WONDERFUL TEACHER'S ANY PARENT WOULD WANT.. SO A HUGE THANKYOU TO ALL OF YOU !! HE IS SIGNED UP FOR T-BALL & SWIMMING .HE WILL CON'T WITH SUMMER SCHOOL ON EVERY TUESDAY MORINGS ONLY..HE WILL FINISH HORSE BACK RIDING & IS SIGNED UP FOR SOME DAY CAPS AT THE PARK SO WE ARE THANKFUL THAT JUST MAYBE HE WILL GET TO ENJOY A FULL SUMMER AS A BOY SHOULD.. THE DANCE RESTILE WHEN WELL BOTH BOYS DID A GREAT JOB I'LL HAVE TO PUT HIS PICTURE ON ARE COMPUTER BEEN DOWN FOR THE LAST MONTH AND HOPING IT'S FIXED..
AS THINGS MORE FORWARD THE UPDATES COME FARTHER APART THERE ARE DAYS I NEVER THOUGHT THIS DAY OF NORMAL LIFE WOULD EVER GET HERE.. BUT WE STILL HOLD ARE BREATHS AND AND WONDER THE UNKNOWN BUT LIFE HAS TO MOVE FORWARD WE CAN'T LET CANCER STOP US THEN IT WINS.. SO WE ARE HOPING TO DO SO FAMILY TIME OF FUN WHICH HAS BEEN ON HOLD WAY TO LONG AND THE BOYS ARE GETTING OLDER SO THEY CAN ENJOY MORE..THIS JOURANY OF CANCER HAS BEEN APART OF ARE LIFE FOR 6 YEARS IN JUNE.. ON THE 18TH OF JUNE TERRELL HAS HIS YEARLY MRI OF THE BRAIN PLEASE SEND SOME EXTRA PRAYERS HIS WAY IF THIS IS CLEAR THAT WILL MEAN THIS MEDULLOBLASTOMA BRAIN CANCER IS A CURE AND NO MORE MRI OF THE BRAIN WE ARE IN HIGH HOPES IT WILL BE CLEAR BUT WILL BE MORE RELIEVED TO KNOW THE FINALLY OUT COME...SO PLEASE PRAY FOR CLEAR SCAN !!!! STILL NOT SURE ABOUT DOING GROWTH HORMONE SHOTS YET STILL PRAYING & THINKING HARD ABOUT IT.. WE SEND OUT MANY PRAYERS OF THANKYOU TO YOU ALL FOR YOUR CON'T SUPPORT AND PRAYERS AND CHECKIN ON US LEAVE A MESSAGE WE LOVE HEARING FROM YOU ALL. WE ALSO SEND OUT MANY PRAYERS OF GOOD HEALTH TO ALL ARE FAMILIES THAT WE HAVE CROSSED PATHS WISHING ALL THE BEST AND MAY EACH AND EVERYONE HAVE A WONDERFUL SUMMMER!!!!!!!!!!!
TIL NEXT TIME I WILL UPDATE WILL RESULTS OF ARE MRI ..
LOVE, TERRELL & FAMILY
Sunday, April 22, 2007 7:54 AM CDT
GOOD MORING EVERYONE !!!
BE MEANING TO UPDATE THE RESULTS OF ARE BONE MARROW BIOPSY.. WE ARE STILL 100 ONOR !!! AMEN AND NO SIGN OF LEUKIMA OR ANY KIND OF CANER !! AMEN !! LIKE DR. TOLAR TOLD US SEE YA IN A YEAR !!! ALL OTHER LABS ALL CLOTTED SO NO RESULTS THERE.. WE GO TO LACROSSE IN JUNE I THINK THERE STILL WORKING ON THE APPTS. THERE WE ARE SETTING UP ARE YEARLY MRI FOR THE BRAIN ,EYE APPT. & EAR CHECKING & LABS.. IF MRI IS CLEAN THIS WILL BE ARE LAST FOR THE MEDULLOBLASTOMA STUDY !! SO WE WILL HOLDING ON AND HOPE FOR THE BEST. WITH THIS BEING DONE THEN THE DECIED TO DO GROWTH HORMONE SHOTS.. BUT WE ARE ENJOYING THE WONDERFUL WEATHER AND TERRELL IS GETTING ANTIESY ABOUT GOING FARMING W/ DAD.. DANCE IS SOON TO BE DONE & BOY SCOUTS SO THEN WE HAVE HORSE BACK RIDING.. HE WILL TRULY LOVE THAT..
WE CON'T TO THINK OF SO MANY FAMILIES AS SUMMER COMES MAY YOU ALL BE ABLE TO ENJOY !!!
LOVE, TERRELL AND FAMILY
Wednesday, April 4, 2007 8:57 PM CDT
GOOD EVENING EVERYONE !!!
TODAY MARKS US BEING OUT OF ALL HOSPTIALS FOR A YEAR !!WE TOAST TO THIS !!!
WE ARE BACK TO WINTER MAN IT'S COLD AND WINDY !!!WHAT HAPPEN TO ARE WONDEFUL WARM WEATHER......... WE MADE ARE TRIP TO MPLS. LAST WEEK TERRELL DID A AWENSOME JOB WITH ALL TESTING. THE FIRST DAY WE HAD ARE NEURO. EVALATION HE DID WONDEFUL AND THEY WERE REALLY PLEASED WITH HIS PROGRESS.. THANKS TO TERRELL WORKING SO HARD AND HAVING 3 WONDERFUL TEACHERS 0R MAYBE SCHOOL DOING A GREAT JOB !!! HE HAS GAIN 1 YEAR IN 10 MONTHS YEAH !! HIS I.Q SCORE ALSO IMPROVED !! ARE BIGGEST TROUBLE ARE #'S THEY ARE GOING TO SEND OUT SOME IDEALS TO SEE IF THIS WILL HELP.. THEN LATER WE HAD A DEX SCAN DONE WE HAVEN HEARD MUCH BACK ON THIS YET BUT WHAT THEY COULD SEE IS SOME THIN BONE IN THE PELVIC AREA FROM HIGH DOSES OF STREIODS BUT NOT TO WORRY. THEN OFF TO THE ENDO. STILL HAS NOT GROWN HE IN THE 3 ITLE. FOR HEIGHT .SHE WOULD LIKE TO START HORMONE. GROWTH SHOTS TO HELP OUT. HE IS A GOOD CANDITE AS (1) NEVER HAD RADTION ON THE SPINE (IF SO SPINE WILL NOT GROW W/SHOTS ) (2) BONE AGE IS AT 5 YEAR OLD WHICH MEANS HE IS 7 YRS.OLD HE HAS BONE TO GROW .(3) HE HAS LITTLE THIN BONES WHICH HE CAN GET HELP WITH THIS. BUT !! AS WE TALKED ABOUT THIS ARE BIG CONCERN IS ONE OF THE SLIM CHANCE OF THESE SHOTS CAN CAUSE CANCERS TUMORS !! YES THAT RIGHT CANCERS TUMORS !!BUT A VERY SLIM CHANCE SHE SAID .BUT AS YOU KNOW I SAID WE HAVE BEEN DOWN THAT SLIM CHANCE ROAD ONCE WHY WOULD WE WANT TO GIVE A MEDICINE THAT COULD CAUSE THIS AGAIN AND FOR THE 3RD. TIME ?? SHE WAS REALLY UNDERSDTANDING WHEN THIS BROUGHT UP SO SHE GAVE US SO WEB PAGES TO READ AND SEE AND GO BACK IN 3 MONTHS TO SEE IF WE START ARE NOT ?? PLEASE SAY SOME PRAYERS THAT WE CAN MAKE THE RIGHT CHOOSE IN WHAT TO DO.. HE WOULD BE ON THIS FOR MANY YEARS NOT JUST A COUPLE.UNTIL TEEN YEARS.. SO LOTS TO FIGURE OUT THERE ANY OTHER OPINON .MAYBE STRAT HANGING HIM AT NIGHT ?? SO ON TO FRIDAY WITH DR.TOLAR HE IS TRULY AMAZED ON TERRELL'S PROGRESS HE IS VERY PLEASED IN WHERE HE WAS TIL NOW.. SOME OF THE LAB GIRLS REMEMBER WHEN WE WOULD TAKE HIM IN FOR LABS WHY'LL STILL IN THE WHEEL CHAIR AND HAVE HIM TRY TO WALK IF 10 FEET HE WOULD SCREAM THE WHOLE WAY AND TO SEE HIM RUNNING AND HAVING FUN SURE MADE THERE DAY.. SO FOR LABS WELL WHEN WE FINALLY GOT THE BLOOD 15 BOTTLES FOR LAB BY TIME IT GOT TO LAB IT ALL WAS CLOTTED. WE HAD ARE BONE MARROW BIOSPY WE ASK FOR A COPY NONE BACK SO WE PACKED AND HEADED FOR HOME BUT WHEN WE CALLED THE NEXT DAY WE LEARN THIS. BUT ALL WAS WELL THEY GOT WHAT THEY NEEDED AND DIDN'T HAVE TO REDUE ANY THANK GOD. SO WE DON'T KNOW ANY OF ARE CBC COUNTS. TIL WE GO IN MAY..NO RESULTS BACK ON THE BIOSPY TIL THE END OF THIS WEEK OR THE FIRST OF NEXT.. DR.TOLAR SAID WE WILL SEE YOU IN A YEAR !! AND NEXT YEAR IF ALL IS WELL IS ARE LAST YEAR FOR BONE MARROW BIOSPY UNLESS OTHER THINGS HAPPEN.WE ASK WHEN IS IT OKAY TO SAY THIS BEHIND IS US HE SAYS I WOULD SAY 5 YEARS BUT WE HAVE SEE SOME RELAPSE 14 YEARS OUT. AND THAT MEDCINE IS NOT 100 E LIKE DR.TOLAR HE IS SO UP FRONT ANND HONEST.. SO WE WILL JUST ENJOY AND COUNT ARE BLESSING IF NOT ONCE MANY TIMES AND COUNT THEM AGAIN..TERRELL IS FEELING WELL AND ENJOY LIFE.HE WILL BE FINISHING BOY SCOUTS SOON AND DANCE IS ALMOST DONE ,CCD IS DONE AND THE FIRST OF MAY WE START ARE HORSE BACKRIDING FOR 6 WEEKS.THIS IS THE FIRST THERPY SINCE LAST OCT. THIS WILL HELP WITH UPPER BODY AND HE LOVES IT.. AND FOR 45 MINTUES OF THERPY FOR $5.OO IS CHEAP AND IT HELP HIM.. WELL WE SEND OUT MANY BLESSING OUT TO MANY FAMILIES MAY THIS EASTER BLESS MANY OF YOU IN MORE THEN ONE WAY AND SO THAT YOU ALL CON'T TO COUNT YOUR BLESSINGS.. HAPPY EASTER TO YOU ALL !!!!!!!! LOVE, TERRELL AND FAMILY
And every budding flower.. The Hand that rules the universe
with gentleness and power.
And may this Easter grandeur
that spring lavishly imparts
Awaken faded flowers of faith
lying dormant in our heart.
Give us ears to hear, dear God,
the springtime song of birds
with messages more meaningful than man’s often empty words.
Telling harried human beings
who are lost in dark despair
‘Be like us and do not worry
for God has you in His care.’ (Author Unknown)
Thursday, March 22, 2007 3:38 PM CDT
HELLO EVERYONE !!!!!!!!!!!!!! WELL YOU PROBABLY THINK ALL MUST BE WELL .WE COULDN'T ASK FOR MORE TERRELL IS DOING WONDERFUL.. THINKING BACK TO WHERE WE WERE A YEAR AGO. I STILL THINK THAT WAS HIS COMPLETING HIS HEALING CIRCLE. ON THE APRIL 6 TH. I KNOW IT'S A COUPLE WEEKS AWAY BUT IT WILL BE A YEAR HE HAS BEEN OUT OF THE HOSPITAL AND THAT IS TOTALY AWENSOME !!!!!!! WHEN WE WERE GOING IN EVERY 20-30 DAYS WAS GETTING SO OLD AND WE COUNT ARE BLESSING MORE THEN ONCE THE SCARY MEMEORIES OF THINKING TO WHERE HE WAS A YEAR AGO BEING AIRLIFTED AND THE NOT KNOWING IF HE WAS GOING TO MAKE IT A VERY VERY SICK LITTLE BOY.. AND TODAY WE ARE DOING WONDERFUL GOING TO SCHOOL FULL TIME ,DANCING BOY SCOUTS AND EATING AND EATING AND NEVER THOUGHT I WOULD EVER SEE THE DAY WHEN I HAVE TO ASK HIM "HAVEN'T YOU ALREADY EATEN" AREN'T YOU FULL YET NOT LIKE "PLEASE TERRELL TRY IT AND ASK TO FEED HIM ANYTHING.. GOD HAS BLESSED MORE THEN WE CAN COUNT TERRELL IS JUST A TRUE MIRCLE IN MANY EYES. HE IS JUST A FIGHTER AND JUST WANT THE LOVE OF LIFE SO BAD AND HE IS GETTING THERE SMILE AND ALL. I HAVE BEEN SCRAPBOOKING AND THE BOYS ARE SURE GROWING AND WHEN I SEE SOME OF THOSE MOMENTS OF TERRELL DURING TRANSPLANT THINKING THAT BIG GUY SURE WAS LOOKING OUT FOR HIM HE GOT BIG PLANS FOR THIS YOUNG MAN !! WELL IT'S HARD TO BELIEVE WE ARE HEADING BACK TO MPLS. FOR ARE 2 YEAR CHECK UP WE WILL BE THERE 2 DAYS. SO PLEASE SAY A FEW EXTRA PRAYERS FOR HIM THAT WE ARE STILL CANCER FREE !!! TERRELL IS DOING WONDERFUL IN SCHOOL WHEN HE STARTED SCHOOL HE ONLY KNOW IF 5 OF HIS ABC AND NOW WE ARE UP TO 12 SPELLING WORDS.. WELL FOR THE NUMBERS THAT IS A DIFFERENT STORY BUT HE IS SO WILLING TO GO AND DO HIS BEST AND THAT ALL WE CAN ASK OF HIM. TERRELL WAS HONOR PATIENT FOR THE LEUKIMA SOCIETY AND HIS SCHOOL RAISED $2500.00 JUST FROM LOSS CHANGE GREAT JOB GUYS !! THIS ALL GOES TO HELP OTHER FAMILIES AND FIND A CURE. I WISH THE CURE COULD COME SOONER THEN LATER. AS I UPDATE SOME ARE FRIENDS (OR FAMILIES ) ARE IN NEED OF PRAYERS (1) MITCH www.caringbridge.org/wi/mitchmaxey HAD A MEDULLABLASTOMA BRAIN TUMOR BACK IN 4-2004 HAS RELASPED HE IS 17 YRS.OLD AND BEEN THRU SOO MUCH AND HE NO MORE GOT DONE W/ TREATMENT HIS MOM WAS DX. WITH BREAST CANCER AND NOW THIS. TERRELL AND MITCH USE TO HAVE EATING CONTEST WHEN HAVING TREATMENT TERRELL WOULD WIN BUT HE WAS ON STERIODS BUT NOW IT'S A PRETTY CLOSE RACE.. (2) IS ANOTHER YOUNG MAN AGE 8 CORY MONTI HAS RELASPED HIS WEB PAGE IS www.caringbridge.orgvisitcorymonti HE WAS DX MAY OF 2006 THESE TWO BOYS WERE DX. OR RELASPED ON THE SAME DAY. SO ASK THAT YOU KEEP BOTH IN PRAYERS AND FOR THE DR'S TO FIND THE BEST TREATMENT TO FIGHT THIS.. WELL SPRING IS HERE AND ALL ARE SNOW IS ALMOST ALL GONE WE HAD THUNDERSTORMS LAST NIGHT THE SUN IS OUT TODAY AND THE BIRDS ARE SING IT'S LOOKING SO MUCH LIKE SPRING THE BOYS ARE REALLY LOOKING FOR TO IT.. WELL AS I END WE SEND OUT MANY PRAYERS TO ALL THAT HAVE CROSSED ARE PATH ARE WISHING YOU ALL THE VERY BEST IN EVERY WAY.. IF YOU HAVE A CHASE PLEASE SIGN IN.. TELL NEXT TIME WISHING YOU AL A WONDERFUL SPRING AND A VERY BLESSED EASTER !!!!!!!!!!! LOVE, TERRELL AND FAMILY
You're my life's one miracle Everything I've done that's good And you break my heart with tenderness And I confess it's true I never knew a love like this 'til you
You're the reason I was born Now I finally know for sure And I'm overwhelmed with happiness So blessed to hold you close The one that I love most Though the future has so much for you in store Who could ever love you more?
The nearest thing to heaven You're my angel from above Only God creates such perfect love
When you smile at me, I cry And to save your life I'd die With a romance that is pure in heart You are my dearest part Whatever it requires I live for your desires Forget my own, your needs will come before Who could ever love you more?
There is nothing you could ever do To make me stop loving you And every breath I take Is always for your sake You sleep inside my dreams and know for sure Who could ever love you more?
GOOD EVENING EVERYONE !!! WELL SORRY FOR THE DELAY I COULDN'T BELEIVE IT BEEN THIS LONG SINCE MY LAST UPDATE.. TERRELL IS DOING WELL HE RECOVED FROM PNEUIONA VERY WELL HE HAD THIS ABOUT A MONTH AGO . WE HAD ARE DR'S VISIT WITH GUNDERSON IN LACROSSE ON THE JANUARY 31. APPT. W/ EYE DR. ALL IS WELL NO CHANGE GO BACK IN 6 MONTHS. APPT W/ DENIST ALL IS WELL NO CAVIVIES GO BACK IN 9 MONTHS AND ARE LAST DR. APPT. W/ DR.BOB AND TEAM.ALSO ALL IS WELL THERE WE HAVE GAINED 4 LBS. SINCE NOVEMBER SO HE IS EATING VERY WELL..AND HAS GROWN A LITTLE BIT MORE.. LABS AS FOLLOWS : WBC 7.0 (5.0-14.5) ANC 4.05 (1.50-8.00) HEMBO. 13.8 (11.5-14.5) PLATELETS 151,000 (140,00-385,000) CREATINE (KIDNEY FUNATION)0.5 (0.3-0.7) BEST YET ON THIS !!
SO AS YOU SEE THIS APPT. WENT WELL ALSO. WE DON'T GO BACK TO LACROSSE TIL END OF MAY. WE ARE WAITNG FOR APPT. SCHUDLE FROM MPLS. FOR ARE 2 YEAR POST TRANSPLANT. YES TWO YEARS ALREADY !! SOMETIMES IT SEEMS LIKE YESTERDAY THEN AGAIN WE NEVER THOUGHT WE WOULD OF EVER MAY IT THIS FAR. WE HAVE COUNTED ARE BLESSING MORE THEN ONCE ON THIS JOURANY AND THANKS TO ALL ARE FRIENDS AND FAMILY AND ARE COMMUNITY OF SUPPORT WE CAN NEVER THANKYOU ALL SO VERY MUCH..
TERRELL IS A HONOR PATIENT FOR THE LEUKEMIA &LYMPHOMA SOCIETY OF IOWA I HAVE ADD THE LINK BELOW SO IF YOU LIKE TO DONATION IN HIS HONOR PLEASE DO SO . HE IS IN THE FIRST GRADE AT WEST ELEMTARY IN WAUKON IOWA AND YOU CAN MAKE DONATIONS ONLINE. HIS SCHOOL IS RAISING PENNIES TIL THE 23 TH OF FEBURARY SO ANY OF YOU OUT THERE THAT HAVE KIDS IN SCHOOL PLEASE SUPPOTS THIS.. AND THE CLASS THAT RAISES THE MOST GETS A PIZZA PARTY. SO I KNOW TERRELL AND I ARE GOING TO GET SOME DONATION AND SEE WHO CAN GET THE MOST CHANGE RAISED...THE RACE IS ON !!!!!!!!!
WELL NOT MUCH MORE TO UPDATE WE HAVE SNOW AND AND MORE SNOW ON THE WAY.THE BOYS WILL LIKE THIS THEY LOVED TO SHOVEL AND DO A GREAT JOB !! SO WE SEND MY BLESSING OUT TO MANY OF ARE ON GOING FAMILIES BATTLING THIS TREAT OF CANCER WISHING ALL THE VERY BEST AND TO ALL OF YOU THAT ARE MADE THE FINISH LINE MAY GOD KEEP BLESSING YOU AND EVERY WAY POSSIBLE..WELL THAT ALL FOR NOW TIL NEXT TIME >>>>>>>> LOVE, TERRELL AND FAMILY
My Purpose
I have cancer. There isn't an explanation as to why I became sick. All I know is God has a plan for each of us and for each plan there is a purpose. Some of us know what our purpose in life is and others will never find it. Then there are those like me who accomplish if without ever realizing it. My journey with cancer will not and has not been without purpose. It is through my illness that I have helped doctors understand this disease a little more so they may find a cure. It is thorugh my illness that I have opened the eyes to those around me to how precious life really is. Something we all to often take for granted.
It is though my illness that some of those around me have realized that life is too short to be afraid of our feelings. My cancer has been beaten back by the power of love. It is the most powerful of emotions, one not to be afraid of, but to be embraced. To be loved by someone unconditionally and completely is to reach into your soul and feel warmth.
It is thorugh my illness that I have shown there is no guarantee for the future--only dreams for it. Whether the future is just another day or another 75 years, we should all dream big and live fully everyday.
It is through my illness that I have seen the strong cry, only to find more strength.
It is through my illness that some of us who haven't talked to God in a while have once again begun to pray.
It is through my illness that I have joined the hands of those familiar to those of strangers, to form one long chain. I have already accomplished so much in such a short amount of time and each day I continue to touch the hearts of many.
DANCE TERRELL LIVE LIFE TO THE FULLEST YOU HAVE BEAT SO MANY ODDS IN LIFE THAT YOU ARE MY INSPIRATION.. PROUD OF YOU LOVE,MOM
Sunday, December 31, 2006 10:38 PM CST
WELL IT'S SNOWING OUT FINALLY IN IOWA.THE TIME IS TICKING AWAY ONLY A COUPLE OF HOURS LEFT IN THE YEAR AND IT WILL BE "2007" CHRISTMAS WAS WONDERFUL SANTA FOUND THE BOYS AND HAVE ENJOYED THERE GIFTS VERY MUCH. TERRELL IS DOING WONDERFUL HE HAD INTER&OUTER EAR INFECTION BUT THAT IS BETTER.HE DON'T HAVE ANOTHER APPT. TILL THE END OF THE MONTH SO ABOUT EVERY 2 MONTHS AND WE ENJOY THE TIME OFF FROM DR'S. AS THE YEAR ENDS WE LOOK BACK TO HOW ARE YEAR WAS AND IN HIGH HOPES THAT TERRELL WILL START THE NEW YEAR OF MUCH BETTER THIS YEAR. THERE ARE SO MANY FAMILIES THAT WE HAVE CROSSED ON THIS JOURANY AND HOPES THAT YOU ALL HAD A WONDERFUL CHRISTMAS AND MAY THE NEW YEAR BRING YOU ALL WONDERFUL HEALTH AND PEACE AND JOY OF THE YEAR "2007"
TERRELL THE LOVE OF DANCE IS IN YOUR HEART !! SO YOU DANCE TERRELL JUST LIVE LIFE TO THE FULLEST.. LOVE,MOM!!!!
Wednesday, December 20, 2006 6:52 PM CST
WELL HERE WE ARE 5 NIGHTS BEFORE CHRISTMAS AND MANY THINGS YET TO DO.THE COOKIES WERE MADE BUT ATE SO MORE NEEDS TO BE MADE ,GIFTS ARE BROUGHT AND SOME WRAPPED AND MANY TO WRAP YET, TREE IS UP AND ENJOYED EVERYDAY..THE BOYS ARE SO LOOKING FORWARD TO CHRISTMAS AND THE COUNT DOWN IS HERE EVERYDAY WE ARE TOLD HOW MANY DAYS AND BEGGING TO OPEN GIFTS. THIS CHRISTMAS WE HAVE MANY BLESSING TO BE THANKFUL FOR THIS CHRISTMAS. BUT FIRST OF WE ARE THANKFUL FOR THE GREAT HEALTH THAT WE BEEN BLESSED WITH THIS PASS YEAR. FOR ALL THE CON'T SUPPORT AND PRAYERS FROM ALL OF YOU NEAR AND FAR. YOU HAVE TOUCHED ARE LIVES VERY MUCH AND SO THANKFUL FOR EACH AND EVERYONE OF YOU AND MAY GOD BLESS YOU ALL... TERRELL IS 7 YRS. OLD AND LIVED A LIFE THAT I PRAY NO CHILD HAS TO FACE. BUT HE IS DOING WONDERFUL AND THAT IS A BLESSING IN ITSELF AND ONE THAT WE COUNT ARE BLESSING FOR EACH AND EVERYDAY.. EMANUEL IS 5 YRS. OLD AND ANOTHER BLESSING AND LIVING LIFE LIKE MAYBE A TEENAGER ?? BUT VERY HEALTHY AND THEN SOME... SCHOOL WILL SOON BE OUT TIL AFTER THE NEW YEAR AND THEY ARE LOOKING FORWARD TO THE TIME OFF.. SO AS ANOTHER CHRISTMAS COMES WE WANT TO TAKE THIS TIME TO WISH YOU ALL A VERY MERRY CHRISTMAS!! AND A VERY BLESSED NEW YEAR FILLED WITH GOOD HEALTH !!
THANKS FOR CHECKING IN AND PLEASE SIGN IN IF YOU A CHANCE..
MERRY CHRISTMAS AND HAPPY NEW YEAR TO ALL !!!!!!!!! LOVE,TERRELL AND FAMILY HOHOHOHO!!!!!!!!!!
Friday, December 8, 2006 10:24 PM CST
GOOD EVENING EVERYONE!!!!!!
WELL TODAY WAS THE START OF TERRELL JOURANY OF THE WORD LEUKEMIA HIT US RIGHT SQUARE IN THE FACE AND SO LUCKY TO BE ALIVE.THERE ARE TIMES I DON'T THINK I WILL EVER FORGET THAT DAY THE FACES ON THE NURSES THAT COULDN'T SAY ANYTHING TIL ALL THE TEST WERE BACK..AND THE VERY FIRST NIGHT IN ICU EXCHANGING HIM WITH NEW BLODD TO BRING DOWN HIS VERY HIGH WHITECOUNT OF 595,00 ALL THIS DONE BY HAND 20 CC IN 20 CC OUT INTO A BUCKET ON THE FLOOR..SO YOU CAN SEE HOW LONG THIS TOOK... TERRELL HAS HAD A JOURANY BUT WITH HIS COURAGE AND FIGHT HE IS HERE TODAY.. ARE TRIP TO MPLS. WENT WELL THE TEST OF HIS ADNERAL GLAND SHOWED THE DOSE HE WAS ON WAS ON THE LOW SIDE SO WE HAD TO UP HIS MORING DOSE. AND HIS PHORUS LEVELS WAS STILL LOW SO WE HAD TO ADD TO THIS TO ONE MORE PILL ADAY. HIS RELF CAME BACK ALL 100ONOR WHICH WAS GREAT NEWS..SO WE GO BACK TO MPLS. IN MARCH FOR ARE 2 YEAR CHECK UP. AND WE GO BACK TO LACROSSE IN JANURARY IF NOTHING COMES UP IN BETWEEN TIMES SO I PRAY NOT.WE HAVE A RUNNY NOSE AND COUGH BUT NO FEVERS SO WE WILL KEEP ARE FINGERS CROSSED TIL THEN.. TERRELL IS BUSY WITH SCHOOL,DANCE AND BOY SCOTTS. ON SATURDAY HE IS GOING SHOPPING AND TO A MOVIE AND ON MONDAY DANCE.TUESDAY CARLOING W/ THE BOYS SCOTT,WED.CCD HE IS GOING TO BE A TRIED BOY.. BUT HE ENJOYS GOING DOING THINGS. I HOPW TO PUT ARE TREE UP SUNDAY WE WILL SEE.I HAVE TO GET STARTED SHOPPING,CHRISTMAS CARDS AND SOME BAKING I THINK MY 2 WEEK SHUTDOWN I KNOW WHAT I'LL BE DOING.. AGAIN THANKYOU FOR CHECKING IN AND FOR CON'T PRAYERS....... LOVE, TERRELL AND FAMILY
Tuesday, November 21, 2006 8:44 PM CST
GOOD EVENING EVERYONE!!!! Well are trip to MPLS. went well happy to be home again after 2 long days there.Terrell did a AWENSOME job!!! all his labs were GREAT!! NORMAL RANGE WBC 8.0 (5.0-14.5) ANC 4.0 (1.3-8.1) HBG 12.3 (10.5-15.0) PLATELET 205,000 (150,000-450,000) ALL LIVER COUNTS NORMAL RANGE !!! ALL KIDNEY COUNTS NORMAL RANGE!! AND ALL OTHER LABS NORMAL RANGE..I never thought we would ever see normal range labs..So Terrell and all of us are getting a little more normal life (which will never be all the way there ) But we will take it!! Some of the other test for his adneral gland and relf(donor -and any leukima)test won't be back til probley with hoilday til next week.. But these other counts we feel they should be okay!!We also met with a endocolist(SP?) to see how we are doing growing wises well Terell weight 50reat height maybe 5ell I think he takes after mom being short haha!!We took a x-ray of his left wrist that will give us a bone age??weird ha!He differntly will needed growth hormone but not for 2 years yet they have to wait to make sure all the chemco is out of his system and we will meet with them again at are 2 year post transplant and do a bone scan to check his bone for dead bone (from high doses of steriods)..Til then we will cross that bridge... So speaking of normal life we are busy ,busy both boys are loving school. Emanuel his school they sold candy bars and he was top seller (THANKS UNCLE TONY!!)Where he drives out of he took them there and sold for him..Terrell in Tiger Clubs sold some popcorn and got his prizes tonight at the meeting and we had a first Hoilday parade in Waukon last night perfect night Terrell rode the Boys Club float and really enjoyed it!! Kenny has been busy with farm work and the boys go when the chance is right. We will have Thanksgiving at home then Friday to Kenny's brother then Saturday to my sister so I hope we get enough turkey and the weather stays nice and we can get are light outside up.Kenny won't put them up til after Thanksgiving which is good so we can enjoy the one holiday at a time but the boys are O'looking forward to seeing Santa on Sunday they have a list we maybe there awhile!!! So as another year comes and goes we sure are counting are BLESSINGS..Just thinking last Oct. we had shingles,then last Nov.(thanksgiving night) line infection,then again last Dec.(x-mas night)line infection and last Jan.again line infection and Feb. of this year it all came to a head Terrell body said hey now enough is enough and was very critial and air lifted from LaCosse,Wis. to MPLS. This was like a completing of are circle of the jourany none of us families never want to relive.And with all the community support prayering for us,friends (new and old)family and this list could con't for pages for us you are our BLESSING this THANKSGIVING !! And to the family that donated the cord for Terrell transplant we will always be very greatful to them..So that is another BLESSING this THANKSGIVING !!So as this Thanksgiving comes we THANK EACH AND EVERYONE OF YOU!!! When we all say a Thanksgiving prayers there are some families in need of prayers .. UNDER CARINGBRIDGE WEB PAGES: nc/sidney.williams (Very critical!!) visit/jonathandiebles (Improving but need lots of healing). mn/gavindahms (For EBV virus to be -neg.) nd/matthew(neuoblastoma return 1 more opion)FDA has on hold mi/danielbosch (spinal surgery ) mn/tomneddo (still fighting upset stomach) And may all the families that are healthy stay health we all know how fast are life can change in a heartbeat!! This list could con't so please pray for all are BMT families and many other families with ill children it means the world to them and please leave a message we all love reading your encouraging words.And to all the families that have loss loves ones May God hold you all very close and bring you sunshine and comfort to your hearts thru these holidays ahead and every new day..Again Thanks for checkin Please leave a message..And have a VERY BLESSED THANKSGIVING EVERYONE!!!!!!!!! TIL NEXT TIME..LOVE TERRELL AND FAMILY..... UPDATE!! TERRELL RELF CAME BACK STILL 100 ONOR!!! OTHER TEST WE HAD TO UP BOTH MEDS. FOR ADNERAL GLAND AND HIS PHORES.. BUT ALL IN ALL HE IS DOING WELL>>>
Sunday, November 5, 2006 7:42 PM CST
Good Evening Everyone!!!!!
Well here we are in the month of November a month that makes me think of so many blessing that has bless are lives. As each day passes it is truly amazing in how far Terrell has come last year this time we were fighting off shinlges and so blessed they are behind us like so many things he has endored but we are very blessed that Terrell in thru all he when thru never gave up and that is a blessing in it self.And the big blessing is having the communty of prayers pulling us thru.And we are so blessed that each and everyone has come it to are lives sometimes it hard to show how very thankful that we are for all of you.So again THANKYOU!!!! Well Terrell is doing well tumMy flu gone yah!! to that it was about 3 weeks and finally gone.And since transplant his tools have been loose but with GVH of the gut and all that his system when thru he finally can say we are get noraml stools!! Amen to that it was almost 17 months. I can amage what he will think when he gets older and reads this jouranal Mom did have to go there?? We had pink eye last weekend that all clear and his nose has been running since August and wake up coughing at 2-3 a.m. every night and when I called in for medcine for the pink eye I said I think he also has sinus infection his nose was very green not clear so we got medacine for that and by Tuesday night eyes were better and nose was not running and now we have no cough at night so Amen to that!! And he is eat lots more so i think he is feeling much better. Halloween when well it was cold but when the wind went down it was not bad. Terrell went as a John Deere Sales man (can not believe he want to be that haha) and Emanuel went as Superman .I got picture so when I get them I'll but them on. This weekend the weather was great we have the leaves all rake and toys all put away for winter so it can snow now!! We will be making are trip north to MPLS. on Novemebr 16 and 17th. for 18 months check up WOW!! 18 months post transplant that is hard to believe sometimes but a sure Blessing in it self.We have some other test to see for sure if he has adnerline gland trouble or not this is like a 4 hour test if this is fine we maybe cut another med. But since we have been on this we have been out of the hosptial 7 months!!!So if they are going to drop this I think we will wait til spring.Both boys are doing great in school. Terrell"s teachers are very pleased so far number are the hardes they mean nothing to him but we will get there one bridge at a time.We are so blessed to have 3 wonderful,great teachers working with him they are so good to him like so many of the people in his school and his classmates and him get long great the teacher told us Terrell is a postive influses in his class so that was great to hear so many of the kids want to work with him and they let him in on there football games he just kills me Terrell he will say Mom so and so just don't how to play football? like he is a pro at this game. Well are life is a boring good normal life alittle bit more as time goes by but we still hold are breathes.. Please say a few extra prayers for Jonathan Diebles he needs lots of healing on his lungs he only 4 yrs. old and on the vent again his web pages is www.caringbridge.org/visitjonathandiebls . Agian please con't prayers for so many families just beging the jourany or finshing we all love all the extra prayers if it weren't for all of you .Prayers a healing and we can never have to many.. Til next time.........\ Love, Terrell and family
PS click on the link live strong and lisiten to the song just click on the braclet this song reminds me of so many families all we want is TO LIVE STRONG!!!!!
Saturday, October 14, 2006 10:57 AM CDT
WELL HELLO EVERYONE!!!!!!
ALL IS WELL HERE AND WE HAD ARE FIRST SNOW ON WED. NIGHT AND ON THURSDAY THE GROUND WAS WHITE AND DURING THE DAY ON THURSDAY WITH THE WIND AND BLOWING SNOW REALLY MADE IT FEEL LIKE JANURAY!!! IT'S WAY TO EARLY FOR THAT KIND A WEATHER RIGHT NOW. ON THURSDAY WAS ARE 10 YRS. WEDDING ANNY. AND BELIEVE ME WE HAD A WONDERFUL FALL DAY IT IS ONE THAT ALL WANTS THE LEAVES WERE FULL COLOR AND NO BREEZE IT WAS 68 DEGRESS IT WAS PICTURE PERFECT WE HAD A HORSE A BUGGY THAT DAY I COULD OF RODE IN THAT ALL DAY LONG IT DON'T SEEM LIKE 10 YEARS ALREADY.. WELL NOW WITH TERRELL HAD HIS MONTHLY VISITS LABS ARE:
WBC 10.5 (5.0-14.5) ANC 6.5 (1.50-8.0) HEMOGLOBIN 12.8 ^11.4 (11.5-14.5) PLATELETS 213,000 (140,000-385,000) THYRIODS LEVELS WHERE IN NORMAL RANGE SO ALL IN ALL TERRELL IS DOING WELL I THINK THE WBC AND ANC IS IS ON THE HIGH SIDE BUT HE'S FIGHTING A COUGH FOR THE LAST COUPLE MONTHS AND HAS THE TUMMY FLU GOING ON SO I THINK THIS MAKES THIS GO UP.. HE HAS BEEN HAVING THE TUMMY FLU NOW GOING ON 3 WEEKS AND WE HAVE TO WATCH THE DAIRY PRODUCTS OR IT MAKES IT MUCH MORE FOR HIM BUT IF YOU DON'T KNOW TERRELL MILK IS HIS LIFE SO HE HAS DONE WELL TAKING HIS JUICES TO SCHOOL AND LUNCH WHEN ALL THEY HAVE IS DAIRY PRODUCTS FOR LUNCH. WE DID STOOL CULTRAL THIS TIME TO RULE OUT C-DIFF AND IT WAS NEGATIVE WHICH KEN AND I THOUGHT WOULD BE HE HAS NEVER HAD THAT EVEN WHEN ON LOTS OF ANTI-BODIES THIS CAN HAPPEN BUT NEVER DID AND NOW THAT HE HAS BEEN OFF ALL OF THEM WE COULD NOT SEE IT NOW !! SOME OTHER TEST OF STOOL WERE NOT BACK YET SO SAY A FEW PRAYERS THAT THIS WILL ALL PAST AND HE CAN ENJOY HIS MILK AGAIN!!! THE BOYS AND I WENT TO A HERITAGE FARM LAST WEEK END WHAT A GREAT TIME THEY HAD IT WAS A WONDERFUL FALL DAY THEY RODE ON TRACTOR AND WAGONS THRU THE WOODS AND TERRELL RODE IN A WAGON PULL BY A STREAM TRACTOR.AND HORSE A WAGON RIDE AND THEY EVEN GOT TO SEE A CHICKEN COOP EMANUEL THOUGHT THAT WAS NEAT HE EVEN GOT A EGG HE ATE FOR BREAKFAST ON SUNDAY.THEY WERE POOPED WHEN WE GOT HOME. TODAY WE ARE OFF TO A PEDS. ONOCLOGY HALLOWEEN PARTY IN LACROSSE TERRELL IS SPIDERMAN AND EMANUEL IS SUPERMAN AND I AM THE JAIL BIRD THEY CAUGHT!!! THE SUPERMAN COSTUME WAS THE BEST THING I BOUGHT FOR EMANUEL HE HAS WORE IT ALMOST EVERYDAY AND TO BED SO I GUESS WE GOT ARE MONEY OUT OF THAT. ON SUNDAY IF IT'S NOT TO WINDY WE WILL PUT UP ARE HALLOWEEN STUFF OUTSIDE AND CARVE ARE PUMKINS.. SCHOOL FOR BOTH BOYS IS GOING GREAT TERRELL IS DOING WELL AND THE TEACHER ARE VERY PROUD OF HIM GIVING IT HIS ALL!!! THE LEUKEMIA AND LYMPHOMA SOCIETY HAS ASK IF TERRELL WOULD BE A HONOREE IN ARE SCHOOLS TO HELP RAISE MONEY FOR THEM IT THE "PENNIES FOR PATIENTS" WE SAID YES SO WE CAN HELP BACK SINCE THEY HELPED US SO THIS IS THE LESS WE CAN DO WE GOT A CALL THE OTHER DAY AND HE WILL SEVERE AS HONREE IN ALL OF NORTHEAST AND NORTH CENTRAL IOWA WAY DOWN TO AROUND WATERLOO. WOW!! THAT A BIG AREA I TOLD HER BUT HE IS THE ONLY ONE FROM THE AREA SO HE WILL BE COVERING LOTS OF GROUND AND THEY JUST LOVE HIS PICTURE AND ASK IF WE COULD COME TO DIFFERNET SCHOOL TO SHARE HIS STORY AND WE SAID WE WOULD HELP OUT IN ANYWAY WE COULD .. SO I URGERY ANY OF YOU IF YOU SEE A LEUKEMIA-LYMPHOMA SOCIETY, RONALD MCDONALD HOUSE,MAKE A WISH ,AND KID'S CANCER, AND CHILDERN MIRACLE NETWORK TRYING TO RAISE MONEY IN YOUR AREA PLEASE GIVE IT MAY NOT HELP YOUR FAMILY BUT IT HELPS SO MANY OTHER NEEDY FAMILIES IN MORE WAYS THEN YOU CAN THINK SO PLEASE GIVE AND HOPE IT IS NEVER YOUR OWN FAMILIY RECIEVING..AS A FAMILILY THAT HAS BEEN THRU THE CANCER 2 TIMES AND KNOW THE EFFECTS OF THERE HARD WORK AND ALL YOU WANT TO DO IS SAY THANKYOU AND HOPES THAT SOMEDAY WE CAN GIVE BACK.. ONE DAY AT WORK IT HIT ME ARE AREA HIS SO MUCH CANCER FOR A SMALL COMMUNITY THAT THEY DON'T HAVE A RELAY FOR LIFE WALK??? AND THINKING WHY SO MAYBE THIS IS SOMETHING I NEED TO GET TOGEHTER I THINK IT WOULD BE GREAT TO HAVE SO MANY SURVIORS OUT THERE WALIKING AND RAISING MONEY FROM ARE AREA WELL I THINK IT WILL BE ALOT OF WORK AND HAVE TO FIND MY CONNECTIONS TO HELP BUT IT WILL BE WELL WEITHER IT!! SO SAY A FEW PRAYER S ON THIS FOR ME.. I AM SAD TO SAY THERE SRE SOME FAMILIES THAT HAVE LOST THERE LOVES ONES BABY JESSICA AND NATE FROM FL. THEY WERE SOME FAMILIES THAT WENT THRU TRANSPLANT WHEN WE DID AND MY HEART GOES OUT TO THEM. SO PLEASE CON'T THE PRAYERS FOR US AND SO MANY FAMILIES DOWN THIS JOURANY AGAIN THANKYOU FOR ALL YOUR CON'T SUPPORT. LOVE TERRELL AND FAMILY
PS IT'S GOING ON 7 MONTHS SINCE TERRELL HAS BEEN OUT THE HOSPITAL WOW!!! ALSO WE WILL MAKE A TRIP TO MPLS. IN NOVEMBER FOR ARE 1 1/2 YR. CHECK UP.. AND IT WAS ON SEPT. 27,2005. WE MADE A JOURANY HOME FROM MPLS. AFTER 200 DAYS UP THERE... AMEN TO THAT!
Saturday, October 14, 2006 10:57 AM CDT
WELL HELLO EVERYONE!!!!!!
ALL IS WELL HERE AND WE HAD ARE FIRST SNOW ON WED. NIGHT AND ON THURSDAY THE GROUND WAS WHITE AND DURING THE DAY ON THURSDAY WITH THE WIND AND BLOWING SNOW REALLY MADE IT FEEL LIKE JANURAY!!! IT'S WAY TO EARLY FOR THAT KIND A WEATHER RIGHT NOW. ON THURSDAY WAS ARE 10 YRS. WEDDING ANNY. AND BELIEVE ME WE HAD A WONDERFUL FALL DAY IT IS ONE THAT ALL WANTS THE LEAVES WERE FULL COLOR AND NO BREEZE IT WAS 68 DEGRESS IT WAS PICTURE PERFECT WE HAD A HORSE A BUGGY THAT DAY I COULD OF RODE IN THAT ALL DAY LONG IT DON'T SEEM LIKE 10 YEARS ALREADY.. WELL NOW WITH TERRELL HAD HIS MONTHLY VISITS LABS ARE:
WBC 10.5 (5.0-14.5) ANC 6.5 (1.50-8.0) HEMOGLOBIN 12.8 ^11.4 (11.5-14.5) PLATELETS 213,000 (140,000-385,000) THYRIODS LEVELS WHERE IN NORMAL RANGE SO ALL IN ALL TERRELL IS DOING WELL I THINK THE WBC AND ANC IS IS ON THE HIGH SIDE BUT HE'S FIGHTING A COUGH FOR THE LAST COUPLE MONTHS AND HAS THE TUMMY FLU GOING ON SO I THINK THIS MAKES THIS GO UP.. HE HAS BEEN HAVING THE TUMMY FLU NOW GOING ON 3 WEEKS AND WE HAVE TO WATCH THE DAIRY PRODUCTS OR IT MAKES IT MUCH MORE FOR HIM BUT IF YOU DON'T KNOW TERRELL MILK IS HIS LIFE SO HE HAS DONE WELL TAKING HIS JUICES TO SCHOOL AND LUNCH WHEN ALL THEY HAVE IS DAIRY PRODUCTS FOR LUNCH. WE DID STOOL CULTRAL THIS TIME TO RULE OUT C-DIFF AND IT WAS NEGATIVE WHICH KEN AND I THOUGHT WOULD BE HE HAS NEVER HAD THAT EVEN WHEN ON LOTS OF ANTI-BODIES THIS CAN HAPPEN BUT NEVER DID AND NOW THAT HE HAS BEEN OFF ALL OF THEM WE COULD NOT SEE IT NOW !! SOME OTHER TEST OF STOOL WERE NOT BACK YET SO SAY A FEW PRAYERS THAT THIS WILL ALL PAST AND HE CAN ENJOY HIS MILK AGAIN!!! THE BOYS AND I WENT TO A HERITAGE FARM LAST WEEK END WHAT A GREAT TIME THEY HAD IT WAS A WONDERFUL FALL DAY THEY RODE ON TRACTOR AND WAGONS THRU THE WOODS AND TERRELL RODE IN A WAGON PULL BY A STREAM TRACTOR.AND HORSE A WAGON RIDE AND THEY EVEN GOT TO SEE A CHICKEN COOP EMANUEL THOUGHT THAT WAS NEAT HE EVEN GOT A EGG HE ATE FOR BREAKFAST ON SUNDAY.THEY WERE POOPED WHEN WE GOT HOME. TODAY WE ARE OFF TO A PEDS. ONOCLOGY HALLOWEEN PARTY IN LACROSSE TERRELL IS SPIDERMAN AND EMANUEL IS SUPERMAN AND I AM THE JAIL BIRD THEY CAUGHT!!! THE SUPERMAN COSTUME WAS THE BEST THING I BOUGHT FOR EMANUEL HE HAS WORE IT ALMOST EVERYDAY AND TO BED SO I GUESS WE GOT ARE MONEY OUT OF THAT. ON SUNDAY IF IT'S NOT TO WINDY WE WILL PUT UP ARE HALLOWEEN STUFF OUTSIDE AND CARVE ARE PUMKINS.. SCHOOL FOR BOTH BOYS IS GOING GREAT TERRELL IS DOING WELL AND THE TEACHER ARE VERY PROUD OF HIM GIVING IT HIS ALL!!! THE LEUKEMIA AND LYMPHOMA SOCIETY HAS ASK IF TERRELL WOULD BE A HONOREE IN ARE SCHOOLS TO HELP RAISE MONEY FOR THEM IT THE "PENNIES FOR PATIENTS" WE SAID YES SO WE CAN HELP BACK SINCE THEY HELPED US SO THIS IS THE LESS WE CAN DO WE GOT A CALL THE OTHER DAY AND HE WILL SEVERE AS HONREE IN ALL OF NORTHEAST AND NORTH CENTRAL IOWA WAY DOWN TO AROUND WATERLOO. WOW!! THAT A BIG AREA I TOLD HER BUT HE IS THE ONLY ONE FROM THE AREA SO HE WILL BE COVERING LOTS OF GROUND AND THEY JUST LOVE HIS PICTURE AND ASK IF WE COULD COME TO DIFFERNET SCHOOL TO SHARE HIS STORY AND WE SAID WE WOULD HELP OUT IN ANYWAY WE COULD .. SO I URGERY ANY OF YOU IF YOU SEE A LEUKEMIA-LYMPHOMA SOCIETY, RONALD MCDONALD HOUSE,MAKE A WISH ,AND KID'S CANCER, AND CHILDERN MIRACLE NETWORK TRYING TO RAISE MONEY IN YOUR AREA PLEASE GIVE IT MAY NOT HELP YOUR FAMILY BUT IT HELPS SO MANY OTHER NEEDY FAMILIES IN MORE WAYS THEN YOU CAN THINK SO PLEASE GIVE AND HOPE IT IS NEVER YOUR OWN FAMILIY RECIEVING..AS A FAMILILY THAT HAS BEEN THRU THE CANCER 2 TIMES AND KNOW THE EFFECTS OF THERE HARD WORK AND ALL YOU WANT TO DO IS SAY THANKYOU AND HOPES THAT SOMEDAY WE CAN GIVE BACK.. ONE DAY AT WORK IT HIT ME ARE AREA HIS SO MUCH CANCER FOR A SMALL COMMUNITY THAT THEY DON'T HAVE A RELAY FOR LIFE WALK??? AND THINKING WHY SO MAYBE THIS IS SOMETHING I NEED TO GET TOGEHTER I THINK IT WOULD BE GREAT TO HAVE SO MANY SURVIORS OUT THERE WALIKING AND RAISING MONEY FROM ARE AREA WELL I THINK IT WILL BE ALOT OF WORK AND HAVE TO FIND MY CONNECTIONS TO HELP BUT IT WILL BE WELL WEITHER IT!! SO SAY A FEW PRAYER S ON THIS FOR ME.. I AM SAD TO SAY THERE SRE SOME FAMILIES THAT HAVE LOST THERE LOVES ONES BABY JESSICA AND NATE FROM FL. THEY WERE SOME FAMILIES THAT WENT THRU TRANSPLANT WHEN WE DID AND MY HEART GOES OUT TO THEM. SO PLEASE CON'T THE PRAYERS FOR US AND SO MANY FAMILIES DOWN THIS JOURANY AGAIN THANKYOU FOR ALL YOUR CON'T SUPPORT. LOVE TERRELL AND FAMILY
PS IT'S GOING ON 7 MONTHS SINCE TERRELL HAS BEEN OUT THE HOSPITAL WOW!!! ALSO WE WILL MAKE A TRIP TO MPLS. IN NOVEMBER FOR ARE 1 1/2 YR. CHECK UP.. AND IT WAS ON SEPT. 27,2005. WE MADE A JOURANY HOME FROM MPLS. AFTER 200 DAYS UP THERE... AMEN TO THAT!
Wednesday, September 13, 2006 9:50 PM CDT
GOOD EVENING EVERYONE!!!!
WOW I DON'T SEEM LIKE 5 YRS. ALREADY SINCE 9/11? I REMEBER THIS DAY LIKE IT WAS YESTERDAY. WELL WE CAN ONLY KEEP HOPING ARE TROOPS CAN MAKE THERE WAY HOME . AS I CHECK IN ON SOME OF THE OTHER FAMILIES AND ALL THE FALL BACKGROUND REALLY MAKE YOU THINK THAT SUMMER REALLY IS COMING TO A END AND IT WILL BE FALL SOON.AND SEEING THE COEN TURNING AND SEEING THE PUMKINS I LOVE FALL BUT WHAT COMES AFTER IT NOT AWAYS THE BEST...
TERRELL HAD HIS DR. VISIT TODAY AND ALL WHEN FINE. HE BEEN FIGTHING A COUGH FOR ABOUT A MONTH SO TODAY HE SOUNED ALITTLE WHEZY BUT X-RAY WAS FINE. HE BEEN REALLY ITCH THE LAST WHY'LL SO TODAY WE ARE GOING TO TRY SOME NEW THINGS TO SEE IF THIS WILL HELP.HIS LABS ARE WONDERFUL!!!
WBC 8.5 NORMAL(5.0-14.5) ANC 3.63 " " (1.50-8.0) HEMOGLOBIN 11.4 (11.5-14.5) PLATELETS (DRUM ROLL) 251,000 UP FROM 192,000 NEW HIGH!! NORMAL 140,000-385,000 SO ALL THE WORRYING FOR NOTHING. AND KIDNEY FUNCTION CREATINE 0.6 (0.3-0.7 NORMAL) THIS IS DOWN AGAIN BUT AT ONE TIME WE WERE 7.0!! HIS PHOSHORUS WAS A LITTLE LOW LAST MONTH AGAIN SOME WE STARTED ON SOME REPLACEDMENT AND IT WAS UP STILL LOW BUT MUCH BETTER THEY FEEL WITH HIS KIDNEY HAVING THE INJURY THE HE IS PUSHING MORE OFF THEN THEY SHOULD.HIS WEIGHT I THINK IS THE SAME!! SO ALL IN ALL TERRELL IS LOOKING GREAT AND FEELING GREAT.
WE WENT TO A BOY SCOUT MEETING THE OTHER NIGHT WELL HE WANT TO SIGN UP SO WE SIGN UP HE INT THE TIGER CLUBS THEY ONLY MEET 2 TIMES A MONTH AND ONLY 2 HRS. SO I THOUGHT THIS WOULD BE SO BAD BUT HE WAS TOLD SCHOOL IS FIRST! SO NOW WITH DANCE,SCOUTS,CCD AND JUST BEING A KID I THINK SOOMEONE IS REALLY GOING TO BE KEPT BUSY .BUT TERRELL HAS MISSED OUT ON SO MUCH AND WANTS TO BE APRT SO BAD HOW CAN I SAY NO. I THINK IT WILL DO HIM GOOD TO AROUND OTHER KIDS AND I GUESS IF IT GETS TO BE TO MUCH WE WILL HAVE TO CUT BACK.. BUT THE NEXT THING HE WANTS TO DO IS LITTLE LEAGE BOWLING HE WAS IN THIS BEFORE HE GOT SICK AND DID VERY WELL IT FROM I THINK OCT,-TO FEB. EVERY SATURDAY MORING. THIS USE TO BE DAD'S AND BOYS DAY TO GO BOWLING WHILE I TRY TO CLEAN AND TIME TO MYSELF BUT I DON'T KNOW IF HE WILL BE BOWLING OR NOT. TIME WILL SEE. WELL PLEASE CON'T PRAYER TO FL/NATE NOT VERY GOOD HIS LIVER COUNTS ARE RISING TO VERY HIGH COUNT. AND FOR BABY JESSICA AS SHE IS STILL HERE WITH US JUST PRAY THAT HER ANGELS WILL COME GIVE HER PEACE AND HER FAMILY.\ AGAIN THANKYOU FOR ALL YOUR SUPPORT IF YOU HAVE CHANCE SIGN IN WE LOVE HERE FROM YOU ALL. TIL NEXT TIME.. LOVE, TERRELL AND FAMILY !!!
Saturday, September 9, 2006 1:52 PM CDT
WELL HERE WE ARE ON AND CLOUDY DAY WITH RAIN IN THE FORCAST A GOOD DAY TO REST AND WATCH MOVIES..
WELL HAS 3 WEEKS OF SCHOOL BEHIND HIM AND DOING VERY WELL WE HAD A FIRST GRADE MEETING W/ ALL THE PARENTS AND TO SEE WHAT THERE YEAR WILL BE LIKE. O MY SCHOOL IS MUCH MORE NOW THWN WHEN I WAS IN SCHOOL. TERELL TEACHER IS VERY PLEASED WITH HIM. SHE SAYS HE KEEPS THEM IN LINE SHE WAS TELLING US LIBRAY IS AT A BAD TIME OF THE DAY THEY GET BUSY AND SOMETIMES FORGET AND ARE A LITTLE LATE GETTING THERE BUT W/ TERRELL HE RAISES HIS HANDS AND ASK ARE WE GOING TO THE LIBARY YET??? AND SURE ENOUGH IT IS TIME SO THE TEACHER ASK TERRELL ASSOCATE THAT HELPS HIM TO TRY TO REMIND HER SHE JUST SAID TERRELL WILL KEEP YOU IN LINE AND SURE ENOUGH IT HAPPEN AGAIN AND THEY JUST HAD TO SMILE AT EACH OTHER.. TERRELL IS REALLY WILLING TO LEARN NEW THINGS AND THEY ARE LETTING HIM IN ON ALL THE STUFF SO FAR HE IS GIVING 150F HIMSELF AND I GUESS AT HOME HE GETS HIS HOME WORK DONE RIGHT AWAY SO HOPE THIS UP>> TERRELL HAD HIS FIRST EVER CLASSMATE B-DAY PARTY TO GO TO LAST NIGHT WHEN I WENT TO PICK HIM UP THERE WERE MANY OF HIS CLASSMATES THERE HE REALLY ENJOYED IT!!
THEN WHY'LL TERRELL WAS AT B-DAY PARTY EMANUEL HAD A FRIEND OVER FOR A FEW HOURS THEY SURE ALSO HAD A GREAT TIME.EMANUEL TELLS ME JOHN'S MY BESTEST OF FRIEND MOM.. EMANUEL IS ALSO ENJOYING SCHOOL HE IS SELLING CANDY BARS FOR A FUND RAISER AND THEY ASK FAMILIES ONLY TO SELL 2 BOXES WELL WE ARE AT 8 BOXES AND SHOOTING FOR TEN HE TOLD ME HE WAS GOING TO GUIET SCHOOL TO SELL CANDY BARS? THINKING HE MUST THINK THERE IS BIG MONEY IN SELLS CANDY BARS WELL MOM IF THAT WON'T MAKE ME ENOUGH I'LL JUST GO TRUCKING...AND THIS IS A KID THEY SAY DON;T KNOW MONEY VALUE? WELL WE ARE TO START DANCE ON MONDAY BOTH BOYS BUT DIFFERENT CLASSES AND EMANUEL STATED GUITAR LESSONS AND THEY ON TUESDAYS HE IS REALLY UNDERSTANDS IT SO FAR SO WE GOING TO TRY FOR 6 WEEKS TO SEE?? SO IT LOOKS LIKE WE MAY HAVE A DANCER AND A SINGER COMING UP HERE . I GUESS WE ARE SO BLESSED TO WHEN WE LOOK BACK AND TO WHERE WE ARE WE WILL TAKE THIS HANDS DOWN AND LET THEM ENJOY LIFE.TERRELL WILL BE MAKING HIS MONTHLY DR. VISIT THIS WEEK HIS LABS HAVE BEEN ALL GREAT BUT I JUST HOPE THE PLALETTS STAY AND UP HE IN NORMAL RANGE THEY TELL ME BUT IN MAY WE WERE 232,000 AND DOWN TO 192,000 AND KEEP ASK WHY?? HE IS FINE THEY SAY SO STILL WORRYING.SO AGAIN LIFE IS GOING WELL HERE A LITTLE MORE NORMAL IT IS SO GREAT TO SEE TERRELL RUN,EAT AND JUST BEING A KID..
AS I END I WOULD LIKE ALL OF YOU TO KEEP A COUPLE FAMILIES IN PRAYERS IT LITTLE BABY JESSICA HAD A TRANAPLANT AROUND THE SAME TIME WE DID FOR A VERY RARE DIESE TO HELP BUT NOW LITTLE JESSICA IS NOT WELL HER TRANSPLANT HELPED SOME WHAT BUT IN WAY THEY THOUGHT AND NOW STRUGLING AND VERY SOON WILL BE ARE ANGEL JESSICA SO PLEASE SAY A FEW PRAYER FOR PEACE FOR JESSICA AND HER FAMILY. AND LITTLE NATE FROM FLORDIS ALSO HAD TRANSPLANT AROUND WHEN WE DID NOW HAVING TROUBLE WITH MAKING BLOOD AND HAVING A HARD TIME TO MATCH HIS THE TYPE HIS IS HIS PAGE IS fl/nate THEY HAD A VERY LONG LONG JOURANY SO PLEASE SEND SOME HIS WAY.. AS YOU SEE LIFE CON'T ON BUT WE STILL KEEP IN TOUCH WITH SO MANY FAMILIES FAR AND NEAR AND THEY WILL ALWAYS BE VERY DEAR TO ARE HEARTS ARE EXSTENDED FAMILY AND KNOW THERE NEVER A DAY THAT GOES BY I DON'T THINK OF ONE OF YOU AND SOME OF THE HAPPY MOMENTS WE ALSO SHARED SO AGAIN THANKYOU FOR ALL YOUR PRAYERS AND SUPPORT FOR TERRELL WE ARE SO BLESSED HAVE MET YOU ON THIS JOUARNY WE COULD OF NEVER DONE IT WITHOUT YOU.. LOVE, TERRELL AND FAMILY
Wednesday, August 30, 2006 10:51 AM CDT
GOOD MORING EVERYONE!!!!!
WELL HERE WE ARE ON ARE SECOND WEEK OF SCHOOL AND TERRELL IS DOING GREAT!!! HE PRETTY TRIED AND BUTT DRAGGING WHEN HE GETS HOME BUT GETS HIM HOMEWORK DONE RIGHT AWAY !!! HE HAS A GREAT TEAM OF TEACHER'S THEY ARE REALLY PLEASED SO FAR HIS MAIN TEACHER'S SAY'S HE GIVING 100 ND VERY PROUD OF HIM WANTING TO LEARN SO MUCH.. TERRELL LIKES HIS TEACHER'S HE HAS ENJOYED SEEING SO MANY OF HIS FRIENDS BUT THE NAMES OF THEM ARE HARD SO HIS TEACHER TOOK PICTURES OF ALL HIS CLASSMATES AND WROTE THERE NAMES ON THEM AND WE WORK ON THIS EVERY NIGHT AND IT REALLY HELPED... SO ARE HOPES FOR HIM IS TO JUST DO THE BEST HE KNOWS HOW.. FOR EMANUEL PRE-K IS GOING GREAT ALSO HE REALLY LIKES SCHOOL AND HE WANTS TO READ SO BAD SO EVERY NIGHT HE HAS TO READ ME A BOOK HE DON'T DO TO BAD.. SO BUSY GOING TO SCHOOL TRYING TO BE A KID KEEPS US ALL BUSY AND WELL.. DANCE WILL START AFTER LABOR DAY BOTH BOYS WANT TO DANCE BUT IN THERE OWN CLASSES SO THEY WILL HAVE THERE OWN CLASS. EMANUEL RECIEVED A GUTIAR FOR HIS B-DAY AND LOVES IT SO IAM GOING TO TRY TO FIND SOMEONE TO GIVE HIM LESSONS.. TERRELL DON'T GO BACK TO THE DR'S TIL THE 13TH OF SEPT.. HE IS EATING GODD JUST THAT HE CAN HOLD HIS WEIGHT WOULD BE GOOD HE IS DOWN TO 51 LBS. HE WAS AT 59 LBS. W/ THE TPN. BUT HE LOOKING GREAT!!!HE HAS COME A AVERY LONG WAY HE ABLE TO RUN NOW, SOMETIMES HE CAN GO UP STEPS FOOT AFTER FOOT,RIDING BIKE IS GETTING BETTER.IT'S SO GREAT TO SEE HIM RUN AND NOT FALL...WE WHEN TO CHUCKY CHEESE ON SUNDAY THE BOYS JUST LOVED IT THEY DID GREAT!! WELL THANKYOU FOR CHECKING WE LOVE HERE FROM ALL OF YOU SO IF YOU HAVE CHANCE PLEASE LEAVE A MESSAGE AGANI THANKYOU ALL FOR YOUR CON'T SMILES,PRAYERS,HUGS AND CONCERNS WORD WILL NEVER EXPRESS IN HOW THANKFUL WE ARE TO ALL OF YOU!!! LOVE TERRELL AND FAMILY........
YOU ALL HAVE A GREAT LABOR DAY WEEKEND!! WOW THIS MEANS SUMMER ALMOST OVER ENJOY!!!!!!!!!1
Friday, August 18, 2006 8:12 PM CDT
GOOD EVENING EVERYONE!!!!!!!!!!!!
WELL THIS STILL FINDS WELL. DR'S APPIONMENT WENT WELL ALL LABS IN NORMAL RANGE NEITHER TO LOW OR TO HIGH!!! WE GO BACK IN A MONTH WE ARE HOPING TO MAYBE MOVE IT OUT TO 6 WEEKS IF ALL CON'T WELL...
WELL AS WE LOOK BACK TO WHERE WE WERE ONE YEAR AGO JUST SAYING MANY PRAYERS THAT HE COULD GET OUT OF THE HOSPITAL TO BE ABLE TO ENJOY HIS BIRTHDAY AND HE DID GET OUT AFTER BEING IN 146 DAYS.. AND NOW HERE WE ARE AT HOME GETTING READY TO HAVE ARE 7TH. BIRTHDAY ON THE 19 TH. OF AUGUST AND WE WILL ALSO BE HAVE A PARTY FOR EMANUEL HE WAS 5 ON THE 13TH.OF AUGUST AND 5 HAS BEEN GREAT FOR HIM !!!!!!!!!
WE ARE ALL REISGTOR FOR SCHOOL AND READY TERRELL WILL BE IN FIRST GRADE AND HAS MET HIS TEACHERS AND REALLY LOOKING FORWARD TO SCHOOL. EMANUEL WILL BE IN PRE-KINGARDEN AND REALLY LOOKING FORWARD TO 4 DAYS AND WILL BE ABLE TO RIDE THE BUS!!!!!!! AS ARE SUMMER WILL BE COMING TO END WITH SCHOOL STARTING ON THE 22ND.OF AUGUST. SWIMMING IS DONE NOW THEY FIND MORE TIME TO RIDE THERE BIKES AND TERRELL HAS COME A LONG WAYS WITH THIS IN TIME HE WILL GO FASTER BUT JUST HAVING RIDE BIKE IS SURE JUST A MIRCLE IN ITSELF..
PLEASE KEEP LITTLE ZOEY SLABY IN YOUR PRAYERS SHE WILL START HER TREATMENT FOR HER STEM CELL ON MONDAY THE 21. FOR HER STAGE 4 NEUROBLASTOMA IN MPLS.HER FAMILY SURE WOULD LIKE THAT. AND FOR JONATHAN DIESBLE IN THE HOSPTIAL ON THE VENT NOT REALLY SURE WHAT IS WRONG. AND LITTLE LILLY FOESTER HAD FLUID REMOVED AROUND HER HEART HOPING SHE WILL BE OUT VERY SOON. AND FOR GAVIN DAHMS FOR HIS EBV VIRUS NUMBER TO COME DOWN. AND TO ALL ARE FAMILIES FAR AND NEAR WE THINK OF YOU ALL HOPE ALL IS WELL . THANKYOU AGAIN TO ALL OF YOU THRU THIS JOURNAY FOR THE PRAYERS ,HUGS,THE SMILES.WE COULD NEVER THANKYOU ALL ENOUGH IN WORDSCOULD SAY!!!!!!! LOVE TERRELL AND FAMILY
Friday, August 4, 2006 6:31 PM CDT
HELLO EVERYONE!!!!!!!!
ALL IS WELL WITH US THE SUMMER IS GOING BYE SO FAST IT WILL NOT BE LONG AND SCHOOL WILL BE STARTING! ON THE 22 OF AUGUST WE START>> WELL LAST WEEKEND WE MADE A TRIP TO WARRENS WIS.TO JELLYSTONE PARK FOR THE PEDS.ONGOLY FAMILY WEEKEND IT WAS GREAT SEEING SO MANY FAMILIES WE DON'T SEE ONLY AT THE WEEKEND IT WAS GREAT VISITING WITH ALL OF YOU SO HAPPY SOME OF YOU ARE DONE WITH ALL DR VISIT BUT ONCE A YEAR... THE INDOOR WATER PARK WAS GREAT WITH IT SO HOT AND THIS WAS RIGHT ACROSS WERE WE STAYED THE BOYS LOVED IT EMANUEL COULD NOT GET ENOUGH WATER SLIDES BY SATURDAY NIGHT TERRELL FINALLY GOT BRAVE ENOUGH TO GO DOWN BY HIMSELF AND DID GREAT AND LOVED IT!!!!!!!! THE OTHER BIG HIT WAS TAKING THE SHUDDLE TRAIN AROUND THE PARK THERE WAS ALOT OF PEOPLE CAMPING THERE.... BY TIME WE GOT HOME SUNDAY THERE WAS SOME TRIED BOYS AND I WAS TRIED ALSO.. TODAY TERRELL WENT ON A FIELD TRIP WITH THE DAY CARE TO PORT OF DUBQUE HE LOVED IT >>> I WORRIED A LITTLE HOPING ALL WENT FINE AND IT DID... NOTHING REALLY NEW TO REPORT WE HAVE ONLY DR'S VISITS ONCE A MONTH NOW SO MAYBE WE CAN MOVE IT TO 6 WEEKS WHEN SCHOOL STARTS WILL SEE.. THIS JOURANY HAS BROUGHT SOME VERY SPECIAL FAMILIES IN ARE LIFE THERE ARE SOME THAT HAVE LOST THERE BATTLE AND SOME JUST STARTING.. SOME ARE HITTING BUMPS IN THE ROAD AND COULD USE SOME EXTRA PRAYERS ARE LITTLE BUDDY GAVIN HAD A KIDNEY TRANSPLANT IN DEC. AND NOW COUNTS ARE ON THE LOW SIDE PLEASE SEND SOME PRAYERS THERE WAY HIS WEB IS mn/gavindahms HE WILL MELT YOUR HEART!!!!!!!! AND MN/JUSTIN BACK IN VERY LUCKY I HOPES TO GET BACK OUT THIS WEEK END... TO ALL THE FAMILIES NEAR AND FAR WE THINK OF YOU ALL SO MANY TIMES ARE HEARTS GO OUT TO THE CRABTREE AND HOFF FAMILIES WHICH LOSS CHILDREN THESE PASS COUPLE OF WEEKS.
AGAIN THANKYOU FOR ALL THE CON'T PRAYERS FOR TERRELL AND US AND YOUR CON'T SUPPORT....HAVE A GREAT WEEKEND AND STAY COOL ........ TIL NEXT TIME
Monday, July 24, 2006 8:43 PM CDT
HELLOOOOO EVERONE!!!!!!!!!!!!!! YES WE ARE STILL AROUND SORRY FOR THE DELAY WOW! IT'S BEEN OVER A MONTH TIME IS REALLY FLYING SUMMER IS ALMOST OVER.. WELL ANY WAY TERRELL DR'S VISIT ON THE 7-19-06 ALL WENT WELL EYE EXAMINE WAS OKAY DON'T GO BACK FOR 6 MONTHS AND THE OTHER DR. VISIT WIH DR.BOB WENT WELL ALSO HIM WEIGHT IS HOLDING I WAS A LITTLE NERVOUS ON THIS SOMEDAYS HE DOES NOT EAT VERY MUCH AND OTHERS HE EATS GREAT...ALL HIS LABS WERE ALL IN THE NORMAL RANGE THIS HAS TO BE A FIRST..
TERRELL HAS BEEN VERY BUSY FROM SCHOOL WHICH IS GOING WELL HIS TEACHERS HAVE BEEN GREAT W/HIM THIS SUMMER THEY ARE VERY PLEASED WITH HIS PROGRESS HE HAS A SOMETHING YET TO WORK ON BUT WE WILL CROSS THE BRIDGE AS THEY COME.. THE SCHOOL SO FAR HAS BEEN REALLY GOOD WITH WORKING WITH US AND WHAT IS BEST FOR HIM.. THEN WHEN NOT IN SCHOOL HE IS AT DAY CARE WE ARE TRYING TO WORK HIM UP TO A 8 HOUR DAY THIS WILL BE A CHALLAGNE BUT WE WILL TAKE IT AS IT COMES .THEN HE HAS SWIM LESSONS 3 DAYS A WEEK AND ALSO HAS A GREAT TEACHER THERE THIS HAS HELPED HIM BUILD SOME OF HIS LEGS STRENGTH. KNOW FOR EMANUEL HE IS ALMOST SWIMING WE ARE IN THE FORWARD BACKWARD MODE ALL IN ONE.. THEN TERRELL HAS BEEN TO THE FAIR (THAT WAS VERY HOT!!!)TRACTOR PULL, WE WERE GOING TO PUT THE BOYS IN THE PEDAL TRACTOR PULL BUT IT WAS VERY WARM UPPER 90'S SO NEXT YEAR.. HE DID MAKE HIS RIDE IN THE SEMI W/ UNCLE TONY HE EVEN SPENT THE NIGHT WITH AUNT LIZ AND TONY THAT WAS THE FIRST IN 20 MONTHS FOR A SLEEP OVER HE DID FIND I WORRIED A LITTLE...TERELL HAD A FRIEND OVER ONE DAY THEY PLAYED FARM AND PLAYED ON THE SLIP AND SLIDE THEY BOTH HAD A GOOD TIME..MADE IT TO FIRWORKS AND HOT TUBE B-DAY PARTY HE LOVED IT.RIDING ON THE 4 WHEELER AND DRIVING LAWN TRACTORS ,HELPING DAD FARM . SO TERRELL HAS HAD A GREAT SUMMER SO FAR.. LAST WEEKEND BOTH BOYS SPENT 2 NIGHT W/AUNT LIZ AND TONY WHILE I GOT READY FOR A GARAGE SALE W/ THE NEIGHBORS WE DID GOOD IT'S HARD TO SAY WE ARE GOING TO MISS ARE NEIGHBORS AS THEY MADE THERE MOVE TO THERE NEW HOME IN THE COUNTRY THERE GIRLS AND ARE BOYS PLAYED VERY WELL TOGETHER THEY SURE MISS THEM AND ONLY BEEN GONE JUST A COUPLE DAYS THE PEOPLE THAT ARE MOVING IN DON'T HAVE KIDS SO THIS WILL BE DIFFERENT... WELL AS YOU SEE SO FAR ALL IS WELL WE ARE KEEPING ARE FINGERS CROSSED TERRELL WAS ALBE TO DROP ALL HIS ANTI-BODIES DOWN TO JUST 2 MEDICINES WE WILL KEEP SAYING ARE PRAYERS THAT HE CAN DO OKAY WITH OUT THEM... SOME ARE BMT FAMILIES ARE IN NEED OF PRAYERS~~~~~~~~~~ NY/ANNA RARE GENE DISORDER HAD TRANSPLANT BUT SOME BUMPS NOW ALL W/BABY JESSICA.. MN/WHITNEY HAS DEAD BONES HAS BEEN VERY PAINFULL FOR HER..BUT OTHER THEN THAT DOING GREAT.... MN/JUSTIN DOING GREAT OUT NOW 2 MONTHS WI/TOMNEDO DOING WELL MAKING HIS TRIP TO CANANDA W/FAMILY~~ MN/ANDYLENORD DOING GREAT!!!! SOME HAVE LOST THERE BATTLE AND WE SEND THEM ARE PRAYERS BABY TIAHNA ONLY 91/2 MONTHS OLD.. NATHAN FROM MISSIOR MADE HIS WAY HOME BUT CANCER HAS RETURN ... THERE ARE SO MANY FAMILIES WE HAVE MET ON THIS JOURANY AND KNOW THAT WE CON'T PRAYERS YOUR WAY EITHER IN THE HOSPITAL OR TO YOUR HOMES...WE JUST KEEP PRAYING THAT ARE JOURANY WITH TERRELL STAY ON THIS PATH HE HAS GONE THRU SO MUCH IT'S TIME HE CAN LIVE AS A ALOMOST 7 YEAR OLD WOW HIS B- DAY IS COMING UP AGAIN ON 8-19 AND EMANUEL'S IS THE 13 TH ,HE BE 5!!!! WOW THEY ARE REALLY GROWING UP WAY TO FAST. WELL PLEASE CON'T THE PRAYERS FOR TERRELL AND SO MANY OTHER FAMILIES WE ARE SO THANKFUL FOR ALL OF YOU ON THIS JOURANY AGAIN THAKYOU FOR THE HUGS,SMILES AND PRAYERS..TIL NEXT TIME HOPE THAT WON'T BE A MONTH!!! LOVE, TERRELL AND FAMILY
Thursday, June 22, 2006 7:28 PM CDT
GOOD EVENING EVERYONE!!!!
WELL ALL IS STILL WELLL FOR TERRELL IT JUST TOTALLY AMAZING IN HOW EACH DAY TERRELL KEEPS GETTING STRONGER!! WE HAVE ONLY ONE YES ONE FEVER SINCE MARCH SO THIS PUT US 3 MONTHS NOT BEING SICK WOW!! BUT STILL HOLD ARE BREATH BUT MAYBE NOT SO TIGHT! ON JUNE 7TH. DR. VISIT WE HAD THE REST OF HIS MRI THAT MPLS. DID NOT GET OF HIS LOWER BACK WHICH CAME BACK FINE BUT ALSO HELP WITH A SHOTS FOR A IMMUN. SYSTEM(BABY SHOTS)ALL OVER AGAIN SINCE THRU TRANSPLANT THEY WERE ALL WIPED OUT . SO JUST AFTER THE MRI WHY'LL STILL ASLEEP HE GOT 5 OF THEM 2-IN EACH LEG AND ONE IN HIS ARM. THIS WORKED GREAT. LIKE THEY SAYING IS HE DID NOT KNOW WHAT HIT HIM. I WAS A LITTLE WORRIED WITH MAYBE A REACTION TO IT OR GET SICK AND I DID NOT WANT HIM TO GET SICK BUT DID GREAT!! WE WILL REPEAT THE SECOND DOSES ON OR AROUND AUG. 7TH. BUT THIS WON'T BE AS EASY HE'LL BE AWAKE. BECAUSE IF ALL CON'TS NO MRI TIL NEXT JUNE!! ONE YEAR!!BUT WE SHOULD HAVE ALL HIS SHOTS UP TO DATE JUST BEFORE SCHOOL STARTS. WELL TERRELL DR'S VISIT ON THE 21RST. WENT WELL WEIGHT DOWN A LITTLE BUT EATS BUT SWIMING AND RUN IT ALL OFF SO WE ARE TRYING TO PUSH MORE CALORIES.LABS GO AS>>>>>>>>
WBC..8.0 ANC..2.25 HEMOGLBIN 11.5 UP ON HIS OWN AND FINALLY NORAML RANGE!!! PLATELETTS 209,000 NORAML NO OTHER LABS RAN JUST THE NORAML CBC YES NORMAL!!! AND WE DO NOT GO BACK FOR ONE! YES ONE MONTH I NEVER THOUGHT WE WOULD EVER SEE THIS DAY WE WILL BE SO BUSY AND FORGET TO GO!! HAHA!! SCHOOL IS GOING GREAT!! HE MADE IT TO DAY CARE HE LOVED IT!!! HE GOT A CALL ON SUNDAY FROM UNCLE TONY THE BANANS DID NOT MAKE IT IN SO HE DIDN'T GO IN THE TRUCK WITH HIM IN A COULPE WEEKS IF IT WORKS OUT HE IS GOING TRUCKING!! IF THE WEATHER IS GOOD FRIDAY WE MAY MAKE THE CIRCUS.. WE A KEPT BUSY FROM SCHOOL ,TO DAYCARE.TO FARMING, TO SWIMMING AND JUST BEING A KID. WE WENT TO MY SISTER ONE NIGHT AND SAT IN THE HOT TUB THIS FELT SO GOOD THE BOYS LOVED IT!! WELL AS LIVES A KEPT BUSY WE THINK AN DPRAYER FOR SO MANY OF YOU THAT CAME INTO ARE LIFE THIS PAST YEAR AND HALF THAT IT IS TOTALY AMAZING..SO OF YOU HAVE MADE GREAT IMPROVEMNETS AND THERE ARE SOME THAT LOST THERE BATTLE AND SOME THAT ARE JUST HAVING MORE HURGLES I HOPE ALL YOU KNOW THAT LIKE US AND SO MANY OF US ARE HOLDING ALL OF YOU IN PRAYERS.. SO IF YOU HAVE A CHANCE PLEASE SIGN IN WE LOVE HEARING FROM YOU ALL. AND WOULD LOVE TO WISH ALL OF YOU AGREAT 4TH OF JULY!! LAST 4TH OF JULY TERRELL AND I WAS THE ONLY ONES FROM 4A THAT GOT TO GO UP TO THE 8TH. FLOOR TO WATCH THE FIREWORKS. BUT THIS YEAR WE WILL WATCH THEM IN IOWA!!WELL ALL HAVE SAFE TRAVELS AND A GREAT SUMMER WERE EVER IT MAYBE!! LOVE AS ALWAYS THANKYOU FOR THE CON'T PRAYERS AND SMILES AND HUGS FROM YOU ALL.WORD CANNOT EXPRESS HOW THANFUL WE ARE TO YOU ALL. TERRELL AND FAMILY
Saturday, June 17, 2006 1:00 PM CDT
GOOD AFTERNOON EVERYONE!!!!!!!!
WHAT WARM WEATHER WE ARE HAVING IN IOWA BUT I GUESS IT WILL HELP THE CROPS.. THIS STILL FINES US ALL WELL WOW TWO UPDATES IN A WEEK. WELL WE ARE UPDATING WE HAVE LOSS AND VERY DEAR YOUNG LADY SARA KERRIGAN (visit/sarakerrigan) SHE WAS A INSPIRATION TO SO MANY OF US. SHE LOSS HER BATTLE TO HER HOSKGINS SHE WENT THRU SO MUCH BUT YET THRU ALL OF THIS SHE COMPLETED SO MUCH SHE MADE HER PROM, HIGN SCHOOL GRADUATION AND SO MANY THINGS AND ALWAYS WITH A SMILE. SO IF YOU COULD CHECK IN WITH THEM THIS WOULD BE GREAT . THIS PASS YEAR HAS BROUGHT MANY FAMILIES INTO ARE LIVES SOME WITH VERY GREAT ENDS AND THEN SOME WITH THE ENDING THAT NONE US PARENTS EVER WANT TO FACE.AND THRU THERE FAITH AND STRENTH IS SURE AND INSPIRATION.WE SEND MANY PRAYERS OUT TO ALL OF YOU THIS FATHER'S DAY WEEKEND.
WELL TERRELL JUST LEFT TO HELP DAD MOVE ROUND BALES SO I BETTER FINISH MY STRAWBERRIES AND THEN TAKE EMANUEL FOR HIS TURN.. ON MONDAY AND FRIDAY TERRELL IS GOING TO TRY DAYCARE W/KIDS HIS AGE FOR 4 HRS. EACH DAY THIS WILL DO HIM GOOD THE IF ALL STAY PLANNED UNCLE TONY TOLD TERRELL WHEN HE GOT TO EAT HE COULD GO TRUCKING W/HIM SO THURSDAY HE IS GOING WITH UNCLE TONY IN THE SEMI AND GET TO SPEND WEDENDAY NIGHT WITH AUNT LIZ AND TONY SO THEY CAN LEAVE VERY EARLY IN THE MORING THIS WILL BE THE FIRST SLEEP OVER IN ALMOST 2 YEARS IAM ALITTLE WORRIED BUT HE IS GOOD HANDS AND HE IS LOOKING SO FORWARD TO THIS.SO WE WILL JUST PRAY IT ALL WORKS OUT FOR HIM. MAY THIS WEEKEND FIND ALL YOU WITH SMILES AND GREAT FUN. THANKYOU FOR ALL YOUR PRAYERS AND SUPPORT. LOVE, TERRELL AND FAMILY
Tuesday, June 13, 2006 8:47 PM CDT
GOOD EVENING EVERYONE!!!
WELL THIS STILL FINDS US DOING VERY WELL!!!!!!!!! TERRELL HAS BEEN BUSY WITH SCHOOL 2 HOURS A DAY FOR 2 WEEKS THEN A WEEK OFF AND SO FORTH TIL SCHOOL STARTS HE HAS BEEN DOING VERY WELL AND REALLY LOOKS FORWARD TO IT.THE ON MONDAYS.WEDDAYS, AND FRIDAYS WE HAVE PRIVATE SWIM LESSONS IF WEATHER PERMITS. WHEN NOT IN SCHOOL WE ARE GOING TO SEE IF WE CAN GET HIM TO A DAYCARE FOR KIDS HIS AGE TO GO ON FIELD TRIPS AND JUST BEING AROUND OTHER KIDS A COUPLE DAYS A WEEK.. AS I UPDATE IT HITS ME IT WAS 5 YEARS AGO TODAY THAT TERRELL WAS DIAGIOST WITH CANCER ONLY AT THE AGE OF 22 MONTHS AND WHAT A BLEESING THIS WAS IN THE WAY IT HAPPEN. A SLIP IN THE TUB SAVE HIS LIFE.WITH THAT BEING SAID TERRELL HAD SLIPED IN THE TUB ONE NIGHT AND JUST WAS NOT HIMSELF THOUGHT MAYBE INTER EAR INFECTION COULD NOT WALK SO TOOK HIM TO THE DOCTOR THEN THEY DID A C-SCAN AND THAT AGE SLEPT ALL THE WAY THRU IT. THEN WE TOLD TO GO TO LACROSSE TO DO A MRI AND THEN TOLD THAT WE WERE GOING TO SURGERY THE VERY NEXT DAY AFTER FIRST SURGERY WAS TOLD THEY DID NOT GET ALL THE TUMOR SO THE VERY NEXT DAY BACK TO SURGERY AND TEHY WERE ABLE TO REMOVE IT ALL WOW!! 22 MONTHS OLD TWO MAJOR SURGERIES BACK TO BACK TOLTAL OF 10 HRS. AND IN TWO DAYS SITTING IN A HIGHCHAIR AND PLAYING AND EATING...THEN JUST 2 WEEKS AFTER THAT STARTED ALL ARE CHEMO AND THEN RADATION. HE WAS SO LITTLE BUT SO BRAVE HE START OUT AT 27 LBS. AND WHEN DONE WITH RADATION HE HAD ONLY LOST ONE POUND!!!! IN THE MISITED OF ALL THIS WE WERE EXPECTING A SECOND CHILD WHICH CAME IN AUG. JUST 2 MONTHS TO THE DAY . GOD WAS LOOKING OUT FOR US THAT YEAR IN MARCH OF THAT YEAR WE HAD MADE ARE MIND UP TO GET OUT OF FARMING WHICH WAS A GOOD THING THERES NO WAY WE COULD OF DONE FARMING A TREATMENTS KENNY WAS ABLE TO BE THERE WITH TERRELL MORE AND TAKING HIM TO TREATMENTS WHILE I WOULD STAY HOME AND TAKE CARE OF EMANUEL. WHEN WE LOOK BACK OVER THE PAST 5 YEARS WHERE TERRELL HAS BEEN AND WHERE HE HAS COME IS A TRUE MIRCALE AND BLESSING OF GOD AT WORK... ON ARE DR. VISITS ON 6-7-06 ALL WAS WELL LABS WERE GREAT
WBC 8.0 NORMAL ANC. 3.87 NORMAL HEMBLOBINE UP TO 10.5 ON ARE OWN... PLATLETTS 232,000 VERY MUCH NORMAL.. TERRELL WEIGHT HAS BEEN HOLDING SO WE KEEP TRY TO MAKE HIM MORE AND MORE AND THE MORE ACTIVE HE GETS. WELL SO FAR ARE SUMMER IS GOING WELL AND WISH THAT ALL A FAMILIES THAT WE HAVE MET CAN ALSO ENJOY THERE SUMMER THIS YEAR MUCH BETTER. WE CON'T PRAYERS FOR ALL OF YOU THAT HAVE FINSH THERE JOURANY OR THAT HAS JUST STARTED.. WELL AGIAN WORDS CAN NOT EXPALIN ALL WE ARE SO VERY THANKFUL FOR THE PRAYERS,SMILES AND THE HUGS THRU ALL OF THIS.. LOVE TERRELL AND FAMILY
Wednesday, May 31, 2006 9:30 PM CDT
GOOD EVENING EVERYONE!!! SORRY FOR THE DELAY... WELL WE MADE A FINALY TRIP NORTH TO MPLS. ALL WENT VERY WELL.. WE ARE PICC LINE FREE!!!!!!!!!!!!!! WE ARE G-TUBE FREE!!!!!!!!!!!!!!!!! AND YES ARE MRI OF THE BRAIN NO TUMOR AND SPINAL FLUID NO CANCER!!!!!!!!!!!!!!! SO I GUESS WE COULD NOT ASK FOR MORE THANKYOU GOD!!! TERRELL HAS COME SO FAR AND WHAT HE HAS GONE THRU IN THIS PAST YEAR IS TRULY GOES TO SHOW TERRELL IS SURE TO GIVE EVERYTHING HE HAS AND HE NEVER GAVE UP ONCE AND WE ARE SO VERY PROUD OF HIM.FROM LEARNING HOW TO TALK,WALK AND TO EAT ALL OVER AGAIN.AND DOING ALL OF THEM JUST WONDERFUL..DR.TOLAR AND DR.MCMILLAN AND DR,ORCHARD WERE ALL TOATALY AMAZED IN HOW WELL HE IS DOING ASPECIALY WHEN SOME OF THEM SEEING IN HIS WORST TIMES...THE ICU DR.WENDOFF WE HAD WHEN TERRELL HAD TO PUT SLEEP FOR THE MRI AND WOKE UP AND WANTED TO EAT HIS SAUAGE AND PANCAKES HE LIKE WELL NOTHING LIKE EATING OR WHAT ONLY THING HE COULD REMEMBER W/TERRELL WAS ON THE VENT. VERY SICK AND PUTTING THE FEEDING TUBE IN AND NOW EATING THIS WOW!!HE SAID I GUESS YOU CAN'T KEEP THEM IOWA BOY'S DOWN..TERRELL NEVER LIKED ANY KIND OF FEEDING TUBE NOT IN THE NOSE OR THE TUMMY. DR. CONNE (GASTROL DR.) SAID SOME PEOPLE BODY JUST DO NOT LIKE FEEDING TUBE AND THOUGHT TERRELL WAS ONE AND HE GUESS THAT RIGHT!!!! ALL ARE COUNTS WERE GREAT ARE PLALETTS HIT THE 200,000 MARK WOW!! NORMAL(140.000-450,000)BUN 19!!WELL IN NORAML RANGE. WHILE IN MPLS TERRELL WENT TO THE RMH AND PLAYED BINGO AND WON 2 TIMES!!!!WE DID HAVE JUST A LITTLE WORRY WE STAYED FRIDAY NIGHT TO MAKE SURE ALL WAS WELL SO PLANNNED TO COME HOME SATURDAY BUT WE HAD A FEVER 101.8 DID COME DOWN HE WAS ACHEY ALL OVER TYENLONE HELPED BUT WE HAD TO GO IN TO BMT CLINIC FOR CULTURALS KNOWING TERRELL'S PAST WE GOT THE I.V LINE IN HIS FOOT NOT HAPPY GAVE HIM A DOSE OF ANTIBODIES AND STAY ONE MORE NIGHT IF NO FEVERS AND NOTHING GROW IN CULTURES GO HOME SUNDAY NO FEVERS WE PULL THE LINE OUT BRIGHT AND EARLY SUNDAY TO HEAD HOME THE CAR BATTERY WAS DEAD CALLED FOR A JUMP AND FINALLY ON THE ROAD I WAS STARTING TO THINK THEY REALLY WAS GOING TO KEEP US IN MINN. WELL WE DID MAKE IT HOME JUST FINE. THE ONLY THING NOW WE CAN NOT KEEP TERRELL OUT OF THE SHOWER HE TAKEN ONE EVERY NIGHT SINCE WE HAVE BEEN HOME .WE WENT TO THE MOVIE OVER THE HEDGE NAD EAT PIZZA HE REALY ENJOY THIS..WE SIGNED UP FOR SWIM LESSONS AND HE WILL BE BUSY WITH SCHOOL THIS SUMMER. HE IS LOOKING SO FORWARD TO ALL THIS.NO DOCTORS FOR 13 DAYS...SUNDAY HE WILL BE AT THE CMN(CHILDREN MIRACLE NETWORK) TELATHON TO GIVE THE CHECK HIS SCHOOL OF DANCE RAISED.I THINK THEY WILL AIR HIS STORY ALSO FROM LAST YEAR .WELL TERRELL HAS COME SO FAR AND WE ARE PRAYING WE HAVE MADE THE COMPLETE CIRCLE NOW AND WE AS A FAMILY CAN ENJOY A LITTLE A BIT OF NORMAL LIFE WE STILL HOLDING ARE BREATH A LITTLE KNOW HOW FAST THING CAN CHANGE BUT TRYING TO ENJOY EACH DAY WE ARE WELL.AGAIN THANKYOU ALL FOR ALL YOUR CON'T SUPPORT AND PRAYERS ON THIS JOURANY WE COULD NOT OF DONE IT WITH OUT ANY OF YOU .WE LOVE HEARING FROM ALL OF YOU SO IF YOU A CHANCE PLEASE SIGN IN. LOVE, TERRELL AND FAMILY
Saturday, May 20, 2006 8:57 PM CDT
GOOD EVENING EVERYONE!!!! ALL IS STILL VERY WELL FOR TERRELL.HE FINISHED DANCING LAST SATURDAY AND DID GREAT AND FROM FREE WILL DONATION FOR CMN HE RAISED 2068.00 THIS WILL HELP SO MANY FAMILIES IN THE AREA THANKS TO EVERYONE THAT MADE THIS POSSIBLE TERRELL WILL BE TAKING THE CHECK ON JUNE 4TH. TO LACROOSE TO GIVE TO THEM. THURSDAY WE HAD ARE WEEKLY DR. VISIT AND THEY WERE GREAT!!! NO MORE TPN(BAG NUTRIENT)THAT'S RIGHT AFTER ONE YEAR AND ONE MONTH OF THIS WE NEED NO MORE!!!!TERRELL EVEN HAD THE PLEASURE OF THROWING HIS LAST BAG AWAY!! HIS LABS ARE :: WBC 8.7 NORMAL 5.0-14.5 ANC 3.66 NORMAL 1.50-8.00 HEMOB. 10.0 NORMAL 11.5-14.5 DOWN FROM 11.1 OKAY! BUN 24 NORMAL 8-26 (KIDNEY FUNCTION) CREATINE 0.8 NORMAL 0.3-0.7(KIDNEY FUNCTION) AND FOR THE PLATELETTS I HOPE YOU ALL HEAR THE DRUM ROLL FROM 137,000 TO 163,000 FINALLY NORMAL ON ARE OWN THIS IS THE FIRST SINCE 11-04 WOW!!! NORMAL IS 140,000-385,000 SO WE ARE HOPING NOW THAT HE CAN GET THE HEMOBLIN ON HIS OWN RIGHT NOW HIS LITTLE BODY JUST CAN NOT DO EVERYTHING AT ONCE WITH HEALING AND ALL BUT IT WILL COME..ALL HIS OTHER CHEMISTRYS WERE AWENSOME!!ALL NORMAL RANGE ONLY ONE THAT'S LOW WAS HIS PHOSPHUS WHICH THEY THINK WILL CORRECT IT SELF. SO AS YOU SEE TERRELL IS DOING GREAT AND KENNY AND I COULD NOT ASK FOR MORE.WE ARE JUST AMAZED TO WHERE TERRELL WAS JUST WEEKS AGO AND TO WHERE HE HAS COME IS SURE A BLESSING OF MANY ANSWERED PRAYERS.THANKYOU GOD!!! WELL WE MAKE ARE JOURANY NORTH ONE MORE HURDLE WE ARE TO BE IN MPLS.24,25 AND 26 OF MAY. FIRST TWO DAYS A TESTING TO SEE WERE HE IS AT AND THEN FRIDAY WE SEE ARE BMT DR.TOLAR AND DO A BUNCH OF LABS AND THEY WE GO AND HAVE ARE TUBE IN ARE TUMMY REMOVED YES REMOVED SINCE HE IS EATING ENOUGH. AND ARE PICC LINE REMOVED. AND IF ALL WORKS OUT WE ARE HOPING WHILE A SLEEP WE GET HIS MRI OF THE BRAIN AND SPINAL AND A SPINAL TAB THIS IS ARE YEARLY THING FOR TO MAKE SURE HIS BRAIN STILL IN REMISSION .SO PLEASE SAY A FEW EXTRA PRAYERS THAT THIS IS STILL GOOD THIS WILL PUT THIS IN REMISSION FOR 5 YEARS ON JUNE 13TH. WE HAD A CALL FROM THE UNVY. OF MINN. CANCER RESEACH AND WILL TALK TO US MORE WHEN WE ARE IN MPLS. TO PUT TERRELL ON THIS RESEARCH BECAUSE TERRELL HAS SO MANY NEAT OR RARE THINGS THAT THEY WOULD LIKE TO PUT HIS STUFF INTO RESEARCH I WILL UPDATE MORE ON THIS AFTER WE TALK WITH THEM MORE.AND THE MORE I ASK THE MORE THINGS THAT I LEARN ALSO ABOUT TERRELL'S CANCER'S LIKE MANY OF DR'S HAVE TOLD US THE WAY TERRELL'S CANCER HAPPEN IS A VERY RARE WAY OF IT HAPPENING SO TILL I KNOW MORE.. AGAIN KEEP SENDING THE PRAYERS TERRELL'S WAY WE SURE DO APPRICATE THEM MORE THEN WORDS AND CAN EVER SAY. ON ANOTHER NOTE THERE ARE A FEW FAMILIES IN NEED OF PRAYERS SO PLEASE SEND SO THERE WAY THAT IS nd/matthew CANCER RETURN AND ONLY 5 YRS. OLD. ny/anna HAD SOME TEST DONE TO SEE WHAT REALLY GOING ON AND IF HER VERY RARE DIESE IS BACK OR NOT ONLY 1-2 YRS. OLD visitsarakerrigan LIVER FUNCTION NUMBER VERY HIGH TRYING A NEW DRUG TO HELP HEAL THE LIVER. visitnathan_thomas A 12 YR.OLD BOY CANCER IS BACK AND UNDER HIS PAGE IS A LINK TO A LITTLE LILLY FOSTER HAS RETURN FOR SOME TESTING AND NEED OF PRAYERS THAT HER BRAIN IS SHINKING AND SO OTHER ISSUES GOING ON AND VERY FEW CANCER CELLS HAVE SHOWED UP IN HER BONE MARROW BIOSPY THERE ARE SO MANY FAMILIES IN NEEDS OF PRAYERS SOME A NEW TO US AND SOME ARE OLD FREINDS THAT WE HAVE COME TO KNOW ON THIS JOURANY AND I SEND EACH AND EVERYONE OF THEM MANY PRAYERS YOUR WAY. SO IF YOU HAVE A CHANCE PLEASE LEAVE US A NOTE WE LOVE HEARING FROM YOU ALL AND WE WILL UPDATE SOON AS WE HAVE ANY NEWS!!! MAY GOD BLESS EACH AND EVERYONE OF YOU AND MAY ALL YOU HAVE A WONDERFUL MEMORIAL DAY WEEKEND!!! LOVE, TERRELL AND FAMILY
Wednesday, May 10, 2006 7:38 PM CDT
GOOD EVENING EVERYONE!!!!!!!!!!!!!
LABS: WBC 7.8 NORMAL 5.0-14.5 ANC 3.48 NORMAL 1.50-8.0 HBG 11.1 NORMAL 11.5-14.5 THESE ARE HOLDING... PLATELET 137,000 NORMAL 140-385,000 WE JUST MAKE THIS !!! WELL THIS STILL FINDS US JUST GOING GREAT!! WE ARE TRYING ANOTHER WEEK NO TPN!! IF ARE LABS ARE GOOD ARE PICC LINE MAYBE COMING OUT!!EATING IS GOING GOOD WE NEED TO EAT A FEW MORE CALOIES BUT DOING OKAY....WE KEEP TELLING HIM THE MORE YOU EAT NO TPN AND NO FEEDING TUBE.. LAST WEEKEND'S DANCE WENT GREAT!!THIS FRIDAY WE DANCE AT HOME IN WAUKON THEN FINISH ARE DANCE SEASON IN PRAIEDUCHIEN THEN WE ARE DONE TIL FALL.TERRELL IS GOING TO SCHOOL EVERYDAY FOR A HOUR AND DOING GREAT. THE PLAN IS TO SEND HIM THRU THE SUMMER TO HELP CATCH UP AND HOPING WE CAN GO FULL DAYS NEXT YEAR HE HAS BEEN OUT OF SCHOOL A YEAR AND A HALF.THIS WILL BE GREAT TO GET HIM BACK IN THE SWING OF THIS BUT BABY STEPS.ARE HOPES ARE MAYBE IF WE CAN SEND HIM TO A DAYCARE FOR HIS AGE GROUP THEY GO ON FIELD TRIPS AND JUST GETTING HIM USE TO BEING AROUND OTHER KIDS. TERRELL AND EMANUEL HAVE BEEN BUSY RIDING BIKES AND JUST ENJOYING BEING TOGETHER... CHECK OUT THE NEW PHOTOS ADDED. BOTH BOYS ARE GOING UP SO FAST..PLEASE CON'T THE PRAYERS FOR TERRELL TO KEEP EATING AND TO STAY HEALTHY WE STILL HOLD ARE BREATHES IF AND WHEN IT GOING TO HAPEN??IN HOPES NEVER AGAIN GET SICK.. PLEASE IF YOU COULD CHECKIN ON SOME OF ARE FAMILIES THEY ARE visit nathan_thomas 12 YRS. OLD HAD TRANSPLANT BUT CANCER HAS RETURN SO PLEASE KEEP THEM IN YOUR PRAYERS..AND FOR visitsarakerrigan SHE NEEDS MANY PRAYERS TO BRING DOWN LIVER FUNCTION NUMBERS TO CON'T THE FIGHT AGAIST HER CANCER SO THEY CAN START CHEMO.. I WOULD LIKE TO WISH ALL ARE MOM'S OUT THERE A VERY BLESSED MOTHER'S DAY!!!!!! WELL ARE UPDATES HAVE NOT MUCH TO SHARE SO TIL NEXT TIME WE LOVE EACH AND EVERYONE OF AND MAY GOD BLES YOU ALL!!! LOVE, TERRELL AND FAMILY
Thursday, May 4, 2006 7:34 PM CDT
GOOD EVENING EVERYONE!!!!!!!!!!!!! SORRY FOR THE DELAY .SO THIS MEANS ALL IS WELL. TERRELL IS DOING GREAT!!!!!!!!! THIS IS THE BEST HE HAS FELT IN A VERY LONG TIME AND HAS ALOT MORE ENERGY .WE HAD ARE DOCTOR VISIT ON TUESDAY ALL WAS WELL WE COULD NOT ASK FOR MORE AS YOU WILL SEE FOR YOURSELVES WHAT LABS WERE 10 DAYS BEFORE TUESDAYS THEY GO AS........
TUESDAYS............... 10 DAYS AGO....................... WBC.9.5>>>>>>>>>>>>>>>>>>> 5.6>>>>>>>>>>>>>>>>>>>>>> ANC.4.88>>>>>>>>>>>>>>>>>> 1.47>>>>>>>>>>>>>>>>>>>>>>>>>>> HGB.11.9>>>>>>>>>>>>>>>>>>> 8.3 GOT BLOOD>>>>>>>>>>>>>>>>>> PLT.129,000>>>>>>>>>>>>>>>>88,000 WOW!ON HIS OWN!!!!!!!!!!! BUN34>>>>>>>>>>>>>>>>>>>>>>>> 26 UP BUT OKAY>>>>>>>>>>>>>>> CREATININE.7 WOW!!!!!!!>>>>>>> .8 THESE NUMBERS ARE KIDNEY FUNCTION ON MARCH 1 THESE WERE 6.75 VERY HIGH HAD DIALYSE AS YOU ALL REMEMBER THEY TOLD US DON'T BE SURPRISE IF HIS KIDNEY NUMBERS ARE ON THE HIGH SIDE THEY COULD OF GOT DAMAGE WHEN HE WAS VERY SICK BUT WITH THESE NUMBERS IS THE BEST IN OVER A YEAR.THANKYOU ALL AND THANKYOU GOD!!!!!!!! TERRELL STILL EATING PRETTY GOOD HAS OTHER LABS ALL LOOK GREAT SO WED. AND THURSDAY NO TPN(BAG NUTRTION)YES YOU READ RIGHT NO!!TPN ON FRIDAY FOR LABS TO SEE HOW HIS CHEMISTRY LABS LOOK IF FIND NO TPN BUT IF DIFFERENT WE WILL HAVE HAVE MORE TPN. HE HAS TO TRY TO EAT 1500-1800 CALOIES A DAY AND 30-40 FLUIDS A DAY.DOING PRETTY GOOD BUT HOPFULY IT WILL IMPROVE AND NO MORE TPN HE HAS THIS EVERYDAY SINCE MARCH 28.2005!!A VERY LONG TIME KENNY SAYS IT DIFFERENT NOT MAKING A BAG UP BUT A GOOD FEELING!TERRELL WENT TO BED LAST NIGHT AND SLEPT ON HIS BELLY HE HAS NOT DONE THAT IN A LONG TIME! SO PLEASE KEEP THE PRAYERS COMING TO CON'T EATING AND STAYING WELL AND SPEAKING ON WELL WE MAKE IT THRU THE MONTH OF APRIL NO FEVERS FIRST SINCE LAST OCT...STILL HOLDING ARE BREATH THINGS CAN CHANGE SO FAST FOR HIM AND ALSO PRAY THAT HE CON'T WELL HE DANCES IN MONONA SATURDAY NIGHT THEN SUNDAY AFTERNOON IN DECORAH AND THE THE 12TH OF MAY IN WAUKON AND HE IS LOOKING SO FORWARD TO THIS.WE GOT THERE PICTURES BACK AND WILL UPDATE SOON WITH THEM. PLEASE CON'T TO PRAYER FOR SOME ARE FAMILIES ND/MATTHEW NY/ANNA AS THEY FACE SOME BUMPS IN THE ROAD AND FOR VISITSARAKERRIGAN AS SHE STILL BATTLING THIS CANCER FROM ONE AREA TO ANOTHER AND FOR VISITZACHHALVERSON THAT HIS SCAN IN 2 WEEKS WILL BE FINE.WE MISS SO MANY OF YOU AND PRAYERING ALL CON;T WELL FOR ALL OF THINK OF YOU OFTEN.AGAIN GOD HAS SAW TERRELL THRU TO WHERE HE WAS AND TO SEE HIM NOW THANKS TO ALL OF YOU AND TO GOD FOR ANSWERED PRAYERS.WE LOVE HEARING FROM ALL OF YOU SO PLEASE SIGN IN>>>>
LOVE, TERRELL AND FAMILY
Sunday, April 23, 2006 3:16 PM CDT
GOOD AFTERNOON EVERYONE!!!!!!!!!!
WELL WE BEEN EATING !!EATING AND MORE EATING!!!! HE HAS DONE A WONDERFUL JOB AND HE WAKES UP IAM HURGY WE HAVE NOT HEARD THESE WORDS IN A YEAR.HE IS SO BUSY EATING WHEN HE LOOSES A TOOTH HE TELL DAD MY TOOTH FELL OUT AND CON'T EATING.WE HAVE MORE OFF THE HAM HE'S BEEN FROM FRENCH TOAST TO CHICKEN NUGGETTS,TODAY A MILK SHAKE FROM HARDEE AND NO PROMBLEM ?WE HAVE STAYED CLEAR OF THE MILK STUFF BUT THIS SEEM TO GO OKAY. SO NOTHING NEW FOR US BUT SAME OLD SAME OLD!! ON SATURDAY WE HAD TO MAKE A TRIP TO LACROSSE ARE PIC LINE HAD A CRACK SO THEY REPLACED IT WITH A SINGLE LINE SO NO MORE DOUBLE LINE AND JUST FLUSH WITH SALINE NO HERPERN!THIS WAS A ALL DAY THING GOT THIS REPLACED DID ARE LABS NEEDED BLOOD DOWN TO 8.3 BUT ALL OTHER COUNTS WERE GOOD PLATLETTS UP TO 88,000 FROM 58,000 NORAML 150,000 SO JUST MAYBE WE ARE ON THE ROAD.AS I WROTE LAST WEEK IT WAS 3-27-05 LAST TIME WE ATE AND THIS WAS EASTER LAST YEAR AND THEN TO START TO EAT ON EASTER THIS YEAR.WEIRD HA? IAM THINKING GODS SIGN OF NEW BEGINGINGS FOR TERRELL WELL WE WILL TAKE IT WE COULD NOT WAIT TIL THIS DAY TO HAPPEN AND TERRELL HIMSELF IS SO PROUD.AND WITH GOING ON SATURDAY WE DO NOT RETURN TO THE DOCTOR FOR TOTAL OF 10 DAYS NO VISITS WELL WHAT DO YOU THINK WE WILL BE DOING!!! HE HAS A BUSY WEEK LINED UP ALREADY WITH DANCE,SCHOOL AND P.T..HE HAS DANCE TWO TIMES ON MONDAY ONCE BY HIMSELF TO PRACITICE HIS DANCE AND THEN GO BACK AND DANCE WITH HIS CLASS ONLY 3 WEEKS LEFT TILL THE BIG NIGHT.THAT WAS ARE GOAL AND WE ARE PRAYERING THIS WILL HAPPEN TO HAVE HIM BACK TO DANCE THIS YEAR AND HE GOING TO DO ONE NUMBER ALL BY HIMSELF!!HE IS LOOKING SO FORWARD TO IT EVERY YEAR FOR THE PAST 3 YEARS WE HAVE A FREE WILL GIVE FOR CMN(CHILDREN MIRACLE NETWORK) AND THEN HE PRESENTS THE CHECK FROM THE SCHOOL OF DANCE TO THE TELATHON IN LACOSSE IN JUNE SO WITH THIS BRENDA HIS TEACHER ASK IF HE COULD DANCE HIS SONG IN MONONA ON 5-06-06 AND THEN IN WAUKON THEN IN DECORAH ON 5-14-06 SO IF WE ARE UP TO IT WE WILL BE DANCING ARE NUMBER . ARE PLANS WERE TO RETURN TO MPLS FIRST PART OF MAY BUT NOW NOT TIL THE END JUST MAYBE WE WILL NOT BE PUTTING THE TUBE IN???WE TELL HIM IF YOU EAT ENOUGH WE CAN GET OFF TPN AND NO FEEDING TUBE SO HE IS REALLY TRYING.WELL WE ARE ENJOYING THE WONDERFUL WEATHER AND MAY ALL OF YOU ALSO. THANKYOU FOR ALL THE CON'T PRAYERS FOR TERRELL GOD IS AMAZING!! LOVE TERRELL AND FAMILY
PS WE WERE GOING TO WALK THE RELAY OF LIFE IN DECORAH NEXT WEEKEND BUT WITH 8 CASES OF MUMPS AT THE COLLOGE WE ARE GOING TO PASS. MUMPS ARE ARE A BIG THING IN IOWA OVER 1000 CAES SO FAR AND MINN.,WISC, ALSO SO BUT IOWA HAS THE MOST AND THIS IS SOMETHING WE DON'T NOT NEED.
Tuesday, April 18, 2006 8:29 PM CDT
GOODM EVENING EVERYONE!!!
WELL I HOPE ALL OF YOU HAD A VERY BLESSED EASTER!!! WELL FOR US WE COULDN'T OF ASK FOR MORE ONLY IF IT WOULD NOT OF RAIN BUT THE BOYS STILL DID HUNT EGGS OUTSIDE BETWEEN THE RAIN SHOWERS.THIS EASTER GOD REALLY DID BLESS US WITH SO MUCH AND EASTER TO ME IS A NEW START OF THINGS AND THAT SURE IS WHAT WE ARE IN HOPES OF.LAST EASTER IT WAS 2 DAYS BEFROE TERRELL TRANSPLANT WHICH WAS A NEW LIFE FOR TERRELL HOPING TO BE FREE OF CANCER AND ONE YEAR LATER WE STILL ARE.AND THIS EASTER WE HAVE BEEN PRAYING AND ASKING FOR PRAYERS FOR TERRELL TO EAT AND AT EASTER DINNER WITH GRANDPA BAUMLER AND AUNT SHARON AND KENNY'S AUNT AND COUSIN WE ALL WERE FILLING ARE PLATES TO EAT AND TERRELL ASKED FOR HAM SO I GOT A LITTLE PIECE FOR HIM TO LICK AND TRY AND HE WANTED A BIGGER PIECE SO BIGGER IT WAS AND GUESS WHO ATE THE HAM??? WELL LOW AND BEHOLD TERRELL DID HE DID NOT CHOKE OR NOTHING IT WAS ABOUT 2 0Z PIECE IF THIS WAS NOT ARE BLESSING FROM GOD THIS EASTER I DON'T KNOW ABOUT ANYBODY ELSE SO SINCE SUNDAY GUESS WHO'S BEEN EATING HAM??? TERRELL HAM IN THE MORING ,HAM IN THE AFTERNOON AND EVEN SAYS HE HUNRY SO HAM IT IS TONIGHT I MADE MAC-CHEESE W/HAM AND HE ATE THAT .WE KEEP TELLING TERRELL IF YOU CAN EAT WE DON'T HAVE TO PUT THE FEEDING TUBE IN SO WE ARE KEEPING ARE PRAYERS CLOSE AND FINGERS CROSSED THAT HE JUST MAY START TO EAT. THIS WOULD BE GREAT!!!THIS IS THE FIRST HE HAS ATE SINCE 3-27-05!!! DOCTOR VISIT WHEN WELL NO VISIT TIL NEXT WEEK IT THIS IS NOT SOME FEEDOM. HE GOING TO SCHOOL EVERYDAY FOR 45 MINUTES.BACK TO DANCE WE GOT A PICTURES DONE AT DANCE MONDAY NIGHT THIS WILL BE GREAT TO SEE HIM AND ALL THE GIRLS IN HIS CLASS. HE'S THE ONLY BOY AGAIN BUT HE LOVES IT AND THE GIRLS ARE REALLY GOOD TO HIM EVEN BRENDA HIS TEACHER SHE HAS BENN AWENSOME TO HIM!!!AND EVEN GETTING SOME FARMING IN WITH DAD. SO FROM THIS END EVERYTHING IS GOING WELL AND WE ARE HOPING THIS STAYS AND THE BOYS ARE PLAYING GREAT TOGETHER INSIDE AND OUT AND BACK TO CAUSING TROUBLE OR JUST LIVING LIFE AS TWO BOYS SHOULD!!!! WELL AGAIN THANKYOU FOR ALL THE PRAYERS AND CON'T PRAYERS FOR TERRELL.AS YOU SEE THEY ARE BEING ANSWERED AMEN!!! LOVE, TERRELL AND FAMILY
Saturday, April 15, 2006 11:27 AM CDT
HAPPY HAPPY EASTER EVERYONE!!!!!!
WELL THE WEATHER HAS BEEN MORE THEN JUST GREAT WE HAVE ENJOYED MANY HOURS OUTSIDE THESE PASSED FEW DAYS.IT HAS BEEN WONDERFUL NO DOCTOR VISIYS SINCE LAST MONDAY AND TERRELL COULD NOT BE DOING ANY BETTER.
THIS EASTER IS GOING TO BE GREAT LAST YEAR THIS TIME WE WERE AWAITING FOR A BIG DAY TRANSPLANT DAY WHICH WAS 3-39-05 IT WAS MUCH EARLIER LAST YEAR THEN THIS YEAR.WE HAVE THE EGGS ALL COLORED AND WE ARE MORE THEN READY FOR THE EASTER BUNNY. THE BOYS HAVE BEEN DOING GREAT PLAYING AND JUST BEING TOGETHER.WE ARE SO THANKFUL FOR THIS .TERRELL HAS BEEN DOING GREAT HE IS REALLY TRYING TO WANT TO EAT FOOD HE BEEN LICKING MANY DIFFERENT KINDS OF FOOD AND WANTING TO HELP GET THE MEALS TOGETHER.HE DID TAKE A COUPLE LITTLE BITS OF HIS BOLGANE EMANUEL IS PROUD OF HIS BIG BROTHER HE HAS BEEN THE BEST HELP FOR TERRELL SHOWING HIM THAT IT IS OKAY AND HOW TO CHEW. GOOD JOB EMANUEL!!!!
SO AS THIS EASTER SEASON ARRIVES WE ARE SO HOPING THIS WILL BE THE NEW BEGING THAT TERRELL AND ALL OF US HAVE BEEN AWAITING.GOD HAS BLESSED ALL OF US IN SO MANY WAYS IT IS A TRUE BLESSING AND WE ARE THANKFUL FOR HIS BLESSING EACH AND EVERYDAY. WELL WE ARE HOPING ALL OF YOU HAVE A VERY BLESSED EASTER YOURSELVES TO ALL ARE DEAR FAMILIES CLOSE AND VERY FAR AWAY THAT WE HAVE MET ON THIS JOURARY YOU ALL HOLD A VERY DEAR SPOT IN ALL ARE HEARTS. AGAIN WE THANKYOU FOR ALL THE CARDS,SMILES,HUGS AND ALL THE PRAYERS.
HAPPY EASTER TO YOU ALL!!! GOD IS GOOD ALL THE TIME!! LOVE TERRELL AND FAMILY
Tuesday, April 11, 2006 8:40 PM CDT
GOOD EVENING EVERYONE!!!!!!!! DAY 378!!!!!
WELL HERE WE ARE ALL DOING GREAT!! AS YOU SEE THE NEW PICTURE TERRELL DID MAKE IT TO SEE THE EASTER BUNNY LAST SATURDAY AND ALSO TO THE BARBER FOR A HAIR CUT.THE DAY WAS A PERFECT DAY FOR A EGG HUNT.TERRELL DID GREAT AND REALLY ENJOYED IT WHEN WE RETURNED HOME GUESS WHO RESTED ALL AFTERNOON? YEP TERRELL AND MOM? SUNDAY WE MADE SOME CHOC.CHIP COOKIES AND THEY WERE PICTURE PERFECT.AND THEN EMANUEL AND I MADE NO BAKE COOKIES HIS FAVORITE.EMANUEL AND TERRELL ARE BOTH GLAD TO BE SPENDING TIME TOGETHER AND ALSO DAD AND EMANUEL SINCE DAD AND EMANUEL DID NOT SEE EACH OTHER FOR 50 DAYS ALSO BECAUSE DAD WAS WITH TERELL THE WHOLE TIME IN LACROSSE AND MPLS. SO ON MONDAY WE MADE ARE VISIT TO LACROSSE EVERYONE WAS GLAD TO SEE HIM AND OF COURSE TERRELL HAD TO TAKE HIS COOKIES TO SHARE. LABS WERE GOOD THINKING WE HAVE TO GO BACK ON FRIDAY AND DR.BOB SAID YOU HAVE HAD ENOUGH DRS. AND HOSPITALS NOT TO COME BACK TIL NEXT MONDAY!!! SO ONE WHOLE WEEK NO DOCTORS!! SO WE WILL KEEP ARE FINGERS CROSSED THAT WE DON'T HIT ANY BUMPS. WHEN WE RETURN HOME HE HAD SPEECH DID WONDERFUL AND THEY GUESS WHO GOT TO GO HELP DAD BE A FARM HAND YOU GUESS IT TERRELL IT'S BEEN ALMOST A YEAR AND A HALF SINCE TERRELL HAS BEEN ABLE TO HELP WITH DAD IN THE TRACTOR HE WAS TOTALY HAPPY LITTLE BOY THEN AFTER ABOUT A HOUR EMANUEL GOT TO GO BE A FARM HAND WITH DAD IT GOOD THAT DAD WORKS NOT TO FAR FROM HOME SO I CAN GO AND CHANGE BOYS TO TAKE TURNS.THEY WE IN BED AND NOT A PEEP OUT OF EITHER ONE !!! IT IS JUST TOTALY UNBELIEVABLE IN HOW TERRELL HAS OVER COME SO MUCH IN HOW SICK HE WAS. GOD IS GOOD!!! HIS KIDNEY FUNCTION NUMBERS ARE GREAT!!! JUST A WEEK AGO THE CREATINE WAS 2.15 YESTERDAY IT WAS .8 NORMAL IS .7 YEAH!! B.U.N. WEEK AGO 115 YESTERDAY 46 NORAML 25 YEAH!!! AT ONE TIME THESE #'S ON 3-1-06 CREATINE 6.75 AND B.U.N 167 SO THIS IS GREAT!!! GOD HAS ANSWERED SO MANY PRAYERS FOR TERRELL AND HE SAW HIM THRU ONCE AGAIN.THANKYOU GOD!!! SO ON WED. AND THURS. TERRELL WILL BE BACK TO SCHOOL FOR AND HOUR AND LOOKING SO FORWARD TO IT.SO AGAIN WE CAN NOT THANKYOU YOU ALL FOR YOUR PRAYERS AND CON'T PRAYERS FOR TERRELL AND ALL OF US WE ARE SO THANKFUL FOR EACH AND EVERYONE OF YOU WORDS CAN NOT EXPRESS!!!WELL I HOPE ALL OF YOU ARE ENJOYING ALL THE GREAT WEATHER WE ARE HAVING.AND I'M PUTTING A COUPLE WEB PAGES ON THE BOTTOM PLEASE CHECK IN IF YOU HAVE A CHANCE THEY ARE IN NEED OF SOME PRAYERS IT IS visitsarakrrigan FACING MORE RADITION THEY WOULD LOVE SOME PRAYERS THERE WAY. AND FOR visitzachhalverson HAD HIS STEM CELL AND NOW BACK IN WITH FEVER AND WOULD LOVE SOME PRAYERS FOR THE FEVERS TO GO AWAY AND FOR HIS CELL COUNTS TO COME IN AND START HEALING THE SORES IN HIS MOUTH.WELL ONCE AGAIN THANKYOU FOR CHECKING IF YOU HAVE A CHANCE PLEASE LEAVE A MESSAGE THANKYOU!! LOVE,TERRELL AND FAMILY
Friday, April 7, 2006 6:52 PM CDT
GOOD EVENING EVERYONE!!!!
WELL AFTER 50 DAYS IN THE HOSPITAL TERRELL HAS MADE THE JOURANRY TO HOME IN IOWA ONCE AGAIN!! AND DOING GREAT..
TERRELL FROM BEING A VERY SICK BOY SURE HAS COME A VERY LONG WAYS!!!
ARE GOAL TO COME HOME ON WAS NO LEUKIMA,NO STENT,AND NO CENTRAL LINE AND TPN. WELL WE ARE CANCER FREE!!!!!!!AND ALL DONOR AND CELLURITY OF BONE MARROW IS 90 ORMAL!!! THE STENT IS OUT!!!! WELL THE CENTRAL LINE IS OUT AND NOW WE HAVE A PIK LINE IN HOPING TO BE OFF TPN PUT WE DID GET THE FEEDING TUBE IN BUT WE HAD TO REMOVE IT THEN BUT IT BACK IN AND IT'S NOT THE SAME AND IT FLOWS ALL OVER IN HIM SO NO FEDS RIGHT NOW STILL TPN(NUTRION IN A BAG)WE WILL GO BACK IN 3 WEEKS AND PUT ALL WHAT NEEDS TO BE PUT IN PLACE FOR THE MICKY BUTTON(FEEDIN TUBE) IF WE WOULD EVER GET THIS GOING IT WOULD BE A GOOD THING FOR TERRELL TO GET HIS STOMCH WORKING AGAIN. SO THEN WE COULD GET THE PIK LINE OUT THEN!!!SO IF I HAD TO PICK FROM THE 3 THINGS NOT TO GET DONE IT WOULD BE THE TPN SWITCHED OVER TO FEDS. WE HAVE MORE MEDACINES TO TAKE BUT WE CAN DEAL WITH THIS WE WOULD DO ALL THIS THEN DEAL WITH CANCER AGAIN!!!
AGAIN THANKYOU FOR ALL YOUR CONT'D PARYERS FOR TERRELL WE COULD NOT OF DONE IT WITHOUT YOU SUPPORT..
IF WE ARE FEELING UP TO IT AND WEATHER GOOD WE MAY GO TO THE EASTER EGG HUNT THEY HAVE THIS WOULD DO HIM GREAT!!! LOVE,TERRELL AND FAMILY
Sunday, April 2, 2006 6:40 PM CDT
GOOD EVENING EVERYONE!!!!!!!!!!
WELL HERE WE ARE IN APRIL!!!AND TERRELL IS STILL IN THE HOSPITAL NOW TOTAL OF 44 DAYS IN. HE IS DOING WELL ALL LABS ARE GREAT!! ARE KIDNEY FUNCTION NUMBER'S WERE JUST HOLDING BUT BEING ON ANTI-BODIES THIS CAN BE HARD ON THE KIDNEY'S HE IS FINALLY UNDER 2 FOR CREATINE IT WAS 1.47 TODAY NORMAL IS .6 THEY SAY TERRELL'S MAY RUN ON THE HIGHER SIDE WITH HAVING THE KIDNEY GETTING HURT THE WAY THEY DID.AND THE B.U.N. IS DOWN TO 63 NORMAL IS 25. A MONTH AGO THESE NUMBER'S WERE CREATIN 7.0 AND B.U.N. 178 AND IT'S BEEN A MONTH SINCE HE HAS HAD DIALYS SO HE HAS COME A LONG WAYS ON THIS.BLOOD PRESSURES ARE AND HAVE BEEN GREAT!! NOT TO LOW NOR TO HIGH A MONTH AGO WE HAD 2 DIFFERENT KINDS OF MEDS. TO KEEP HIS BOTTOM NUMBER OUT OF THE 30-40 AND A WEEK AGO WE WERE RUNNING 4 DIFFERENT KINDS TO BRING THEM DOWN FROM 160/110 IN A DEAD SLEEP.AND NOW RUNNING 98-105/65-78 WHICH IS WERE HE NEEDS TO BE. ARE WEIGHT IS HOLDING AT THE 26KG-26.5KG WERE WE WANT HIM.FOR THE FEDS HE IS DOING WELL WITH IT BUT NOW LAST NIGHT WE THROW UP 3 TIMES AND THEN AGAIN TODAY ONE TIME BUT HAD FEDS IN IT AND THAT SHOULD NOT BE BECAUSE HIS BY-PASS THE STOMACH SO THEY DID A X-RAY AND THE FEEDING TUBE WAS NOT BY-PASS THE STOMACH IT HAD MOVED UP CAUSED WHEN HE THROW UP SO GUESS WHAT GOT PULLED AGAIN FOR THE 2 TIME TIL MONDAY HOPING THEY'LL GET IN. THEN YES THE FEEDING TUBE THIS IS GETTING MADDING .WE WANT HIM OFF TPN SO BAD !! WELL ANY WAY TERELL WAS OUTSIDE ON SATURDAY AND RODE BIKE ON THE FLOOR WITH ALL HIS JOHN DEERE OUTFIT ON EVEN HIS NEW HAT(THANKS OLSON FOR THE HAT HE LOVES IT)SUNGLASS ,PANTS AND SHIRT ALL JOHN DEERE AND DID A LITTLE WALKING. TODAY HE MADE 3 TIMES AROUND THE HALL THEN WALKED ABOUT 10 FEET BY HIMSELF THEN WE RESTED. SO PLEASE CON'T THE PRAYERS FOR TERRELL'S FEDS TO CON'T FORWARD AND FOR IT TO STAY WHERE IT SUPPOSE TO!! AGAIN THANKYOU FOR ALL YOUR PRAYERS,CARDS WORDS OF ENCOURAGMENT AND ALL THE SMILES... LOVE, TERRELL AND FAMILY PS MY STORY I HAVE TO SHARE IT'S A GOOD THING IT DIDN'T HAPPEN ON APRIL 1RST. WELL REMEMBER ME TELLING YOU ABOUT GETTING TAXES DONE AND IF NOT I WOULD GO TO JAIL TELLING EMANUEL THIS?WELL SPEAKING OF JAIL THAT WEDS. NIGHT WHEN I GOT DONE WITH TAXES AND EMANUEL AND I WAS SPENDING TIME TOGETHER TALKING WITH MY FATHER-IN-LAW ON THE PHONE AND HEARD SOMEONE PULL IN THE DRIVEWAY AND SAID I HAD TO GO SOMEONE WAS HERE.GET TO THE DOOR OPEN IT AND 2 POLICEMEN WERE STANDING THERE I THOUGHT WHAT THE H----?THEY SAID IS THERE A PROMBLEM HERE AND I SAID NO!!WELL THEY GOT A 911 CALL IN FROM ARE PHONE AND I DID NOT CALL IT IN?THEN I GOT TO THINKING EMANUEL WAS DOWN STAIRS AND THOUGHT MAYBE HE DID ?HE KEEP ASK ME ARE YOU GOING TO JAIL NO TAXES DONE I SAID NO I HAVE THEM DONE AND THEN ASK HIM IF HE PLAYED ON THE PHONE WELL HE ANSWERED ME LIKE MAYBE HE DID SO DOWN WE WHEN WELL THE PHONE WAS DEAD SO THEN I KNOW HE DIDN'T SO THIS WAS A LITTLE LAUGH I HAD TO SHARE AND STILL DON'T KNOW HOW THIS HAPPEN.THEN WHEN TELLING KEN HE SAID WELL YOU KNOW THERE ARE HOW MANY HOUSE ON ARE BLOCK 308 RIGHT THERE IS ONE HOUSE TO THE WEST OF US 308 ONE HOUSE NORTH OF US 308 AND ANOTHER HOUSE EAST OF US YOU GUESS IT 308?? WELL I WISH THE BILLS COULD FIND THERE WAY TO THAT 308 THEN THIS 308!!WELL I HOPE YOU ALL HAVE A GREAT DAY!! DID YOU ALL SPRING A HEAD??
Wednesday, March 29, 2006 6:28 AM CST
WELL HERE WE ARE ONE YEAR POST TRANSPLANT DAY 365!!!!!!!!!!!
IF YOU HAVE A TERRELL SUPPORT SHIRT PLEASE WEAR OR YELLOW OR GREEN YES WE WILL LET YOU WEAR GREEN PACKER SHIRTS IN HONOR OF TERRELL BUT JUST FOR TODAY!! TERRELL IS DOING WELL ALL EXTRA LINES ARE OUT!!!CARTHER IS OUT!!! BLOOD PRESSURES NOT TO HIGH NOR TO LOW JUST RIGHT!!!AMEN TO ALL THIS. FEEDING TUBE GOES BACK IN ON THURSDAY START FEDS AGAIN .WELL IAM UPDATING VERY QUICK AND SHORT BEFORE WORK. SO AGAIN THANKYOU FOR ALL THE PRAYERS AND PLEASE CON'T PRAYING FOR TERRELL FOR A FULL RECOVERY. HIM AND DAD AND TERRELL MADE THERE WAY OUTSIDE FIRST FRESH AIR IN 40 DAYS FOR TERRELL I'LL UPDATE SOON. LOVE TERRELL AND FAMILY PS NEXT TIME I UPDATE I HAVE A VERY FUNNY THING HAPPEN I NEED TO SHARE TIL THEN !!!!!
Sunday, March 26, 2006 7:17 AM CST
GOOD MORING EVERYONE!!!! DAY 362!!
WELL A QUICK UPDATE BEFORE HEADING TO THE HOSPITAL THIS MORING. TERRELL GOT OFF THE VENT. AFTER BEING ON 4 DAYS THE BLEEDING SEEMS TO STOP WITH GOING DOWN AND SEALING IT.THANK GOD!! TERRELL ENDED BACK UP ON WEIGHT UP TO 28.5KG FROM ALL THE BLOOD PRODUCTS IT WAS GOOD HE WAS 25.5KG BEFORE ALL OF THIS OR HE WOULD OF BEEN SWIMMING? BUT NOW TODAY HIS WEIGHT IS BACK TO 27.5KG THANK GOODNESS.TERRELL BLOOD PRESSURES ARE ON THE HIGH SIDE NOW 130/100 WITH BLOOD PRESSURE MEDICINES. THIS ALL DO TO ARE LOVING STERIOD THEY HAVE HIM ON AND SUGAR COUNTS ARE HIGH TO 150-245 NORMAL IS AROUND 90 .THEY HAVE HIM ON THIS THE ONE OF HIS BLOOD TEST FROM HIS YEAR CHECK BLOOD TEST SHOWED HIS THYRIOD WAS NOT WHAT THEY WANT THIS COULD OF COME FROM HIS RADATION HE GOT FROM WHEN HE HAD THE BRAIN TUMOR ALMOST 41/2 YEARS AGO AFFECT OF THAT SO THIS IS HELP WITH THIS. ALSO ON WED. WITH ARE FEVERS WE DID HAVE A CULTURAL COME BACK A POSTIVE BACTRACAL BUT THEY THINKING MORE NEGATIVE BECAUSE OF THE RAPID DROP IN HIS BLOOD PRESSURE THEN SO AS WE TOLD THE DOCTORS WHY?? IS IT EVERY MONTH TERRELL IS GETTING SICK WITH INFECTION?? SO SOMETIME THIS WEEK THEY ARE GOING TO HAVE THE INFECTION CONTROL DOCTORS STOP IN AND GET SOME ANSWERS TO WHY?? IT ALL MAYBE COMING FROM HIS GUT SINCE IT IS SO RED AND THE WALL IS SO THIN. SO I THINK WE HAVE HAD PRETTY MUCH HAD EVERY KIND OF DOCTOR VISIT . SO NOW WE PRAY THAT WE CAN STAY OFF THE VENT AND GET THE FEDS GOING AGAIN AND GET HIM BACK ON TRACK IT JUST KEEPS PUTTING HIM BACK TO START AND ALL OVER AGAIN.
WELL BEFORE I FORGET THE TOOTH FAIRY HAS TO COME ON WED. THE ONE OF HIS FRONT TEETH HAD TO COME OUT IT WAS LOOSE SO ITS OUT AND NOW YESTERDAY WHEN HE GOT OFF THE VENT THE 2 BOTTOM ONES ARE VERY LOSE SO IF YOU LOSE ONE HE'LL PROBABLY LOSE THEM ALL AND WITH THE STRIEOD HE'LL WANT TO EAT AND HE'LL HAVE NO TEETH. THIS WILL BE TERRELL.
WELL AGAIN WE THANK YOU FOR ALL YOUR WONDERFUL PRAYERS AND SUPPORT THRU ALL OF THIS.KEEP THEM COMING. LOVE, TERRELL AND FAMILY
PS REMEMBER THE 29TH OF MARCH IS TERRELL ONE YEAR POST TRANSPLANT SO IF YOU HAVE YOUR SHIRT PLEASE WEAR THEM.THANKS!!!! HAVE A GREAT DAY!!!!!!!!!!!!!!!
Wednesday, March 22, 2006 7:09 PM CST
GOOD EVENING EVERYONE!! DAY 358!!
WELL SO MUCH FOR A GREAT UPDATE LAST NIGHT. WELL THE PHONE RINGS AT 5:30AM IT'S KENNY TELLING ME TERRELL IS GOING DOWN FOR EMERECY SURGERY. LAST NIGHT HE HAD THROWN UP SOME VERY LARGE CLOTS OF BLOOD BUT EVERYTHING ELSE WAS FIND SO LITTLE AFTER 6:00AM TERRELL WENT DOWN THEN JUST BEFORE HE WENT TO SLEEP HE THROW UP MORE THEY HAD GIVE HIM 2 BAGS OF BLOOD AND PLATLETTS BEFORE HAND. SO THEY WENT BACK DOWN WITH THE SCOPE TO SEE WHAT WAS GOING ON THEY THINK HIS SMALL LEAK WAS COMING FROM HIS BIOSPY AREA FROM ON FRIDAY IN HIS STOMACH SO THEY PUT SOME STUFF TO SEAL THIS UP. SO HE WAS BACK IN HIS ROOM AOUND 9:00 AM AND YES WE ARE BACK ON THE VENT. FOR NOW TO MUCH SURE HE DON'T HAVE ANY MORE BLEEDING ITS EASISER THIS WAY THEN PUTTING THE TUBE IN MANY TIMES .AND NOW WE HAVE A FEVER 101.7 SO THIS IS CULTURALS ARE DRAWN AND ANTIBODOES ARE RUNNING. NO CULTURES BACK YET. BLOOD PRESSUES ARE DOWN SO ARE MEDCINES TO KEEP THEM UP ARE BACK THIS COULD BE FROM LOOSING BLOOD TO FAST AND ADD IT TO FAST,INFECTION AND THE MEDICINE TO KEEP HIM ASLEEP.BUT TERRELL IS DOING FINE TEMP HAS COME DOWN SOME AND ALSO HE MAY BE ON THE DRY SIDE AGAIN. SO PRAY THAT THE BLEEDING HAS STOP AND THAT THE BIOSPY DON'T COME BACK GVH OF THE STOMACH BUT WE WILL CROSS THIS BRIDGE WHEN WE GET THERE. WHEN I TALKED TO TERRELL'S NURSE ALL HE SAID THAT'S TERRELL DON'T PISS AROUND IF HE GOING TO DO SOMETHING IT ALL THE WAY DOWN THERE NO QUESTION ABOUT THIS SO THE ROLLER COASTER RIDE IS STILL TERRELLL I GUESS THEY DON'T CALL HIM THE ROLLER COASTER BOY FOR NOTHING. I KNOW GOD IS WATCHING OVER HIM AND HE WILL SEE HIM THRU.I JUST PRAY THAT HE CAN JUST GET OVER THESE BUPS KENNY AND I ARE SO THANKFUL HE WAS STILL IN THE HOSPITAL. SO PLEASE SAY SOME EXTRA PRAYERS FOR TERELL AND ALL OF US.
LOVE TERRELL AND FAMILY!!
PS I GUESS I WON'T BE GOING TO JAIL TAXES ARE DONE THANK GOD!!
ALSO I WANT TO ADD THIS POEM TERRLL GOT FROM ONE ARE BABYSIITERS SHE WROTE THIS FOR HIM FOR ENCOURGMENT AND NOT GIVE AND THAT GOD IS THERE FOR HIM.
HOLD OUT YOUR ARMS LOOK TO THE SKY CLOSE YOUR EYES AND BELIEVE YOU CAN FLY IT'S A FUN LITTLE GAME THAT CHILDREN LOVE TO PLAY BE A LEAF ON THE WIND LET IT TAKE YOU AWAY FLY UP TO THE CLOUDS IN THE HEAVENS YOU'LL SOAR STAY UP THERE FOREVER AND SEVEN DAYS MORE WHEN LIFE GETS HARD THE CLOUDS WILL PART LET THE WIND CLEANSE YOUR SOUL YOUR MIND AND YOUR HEART...
THIS IS SO VERY TRUE THANKYOU KALLIE.. GOD IS HOLDING TERRELL VERY CLOSE AND IS SEEING HIM THRU..
Tuesday, March 21, 2006 10:19 PM CST
GOOD EVENING EVERYONE!!! DAY 357!! HAPPY SPRING!!!
A YEARS AGO TODAY TERRELL WAS ADMIITED TO THE HOSPTIAL TO START HIS JOUNARY OF A BONE MARROW TRANSPLANT. WELL TERRELL IS DOING WONDERFUL TO WHERE HE WAS 3 WEEKS AGO TERRELL IS TRULY AMAZING IN HOW HE FIGHTS SO HARD THANKYOU ALL FOR ALL YOUR PRAYERS. TERRELL RODE BIKE TODAY IN P.T. THIS IS TOTALY AMAZING !!!WHEN I TALK TO HIM ON THE PHONE HIS VIOCE IS GETTING SO MUCH STRONGER. HE ALWAYS ASKING ME WHEN DAD GOING BACK TO WORK? WHY HE ASK THIS HE WANT ME THERE AND FOR DAD TO COME HOME WHEN IAM THERE POOR DAD CAN'T EVEN OPEN THE DOOR HE WANTS HIM OUT!! AND I DON'T KNOW WHY DAD DOES GREAT WITH HIM. TERRELL IS OFF ALL OXGEN!!YEAH KIDNEY FUNCTION NUMBERS STILL COMING DOWN! AND THE FEDS TO THE BELLY SO FAR SO GOOD!!! ON MONDAY THEY DRAW ALL KINDS OF BLOOD TO SEE WHAT SHOTS HE NEEDS(BABYSHOTS)SO WE ARE NOT LOOKING FORWARD TO THIS AT ALL TO DO ALL OVER AGAIN!!
WELL AGAIN THANKYOU FOR YOUR CON'T PRAYERS FOR TERRELL AND ALL OF US.
PLEASE KEEP PAT AND JENNIFER IN YOUR PRAYERS THERE LITTLE MAN GOT HIS ANGEL WINGS ON SUNDAY HIS WEB PAGE IS wi/dominicseipel. AND FOR HOLLY AND ERIC FAMILY THEY FACE SOME UNCERTAIN DAYS AHEAD THERE WEB PAGE IS visitgraciehopkins THEY WOULD LOVE TO HEAR FROM ALL OF YOU SO PLEASE DROP THEM A LINE IF YOU CAN. ALSO KEEP ALL ARE OTHER BMT KIDS AND MANY OF ARE FRIENDS FROM THE RMH IN YOUR PRAYERS.
EMANUEL IS DOING GREAT HE IS GROWING MIND,SOUL AND BODY. HE TELLS ME NOT TO FILE MY TAXES SO I CAN GO TO JAIL THEN HE WON'T FILES HIS AND THEN HE CAN COME TO JAIL TO?? WELL I DON'T THINK HE UNDERSTAND THAT 4 YEAR OLDS DON'T HAVE TO FILE.SO THIS WILL BE A GOOD JOB DONW AFTER WORK ON WED. FILE TAXES PICK HIM UP FROM SCHOOL AND MAYBE GO TO THE PARK AND SPEND SOMETIME WITH HIM. WELL GOOD NIGHT AND KEEP THE PRAYERS COMING LOVE, TERRELL AND FAMILY
Sunday, March 19, 2006 5:15 PM CST
GOOD AFTERNOON EVERYONE!! DAY 355
WELL TERRELL IS DOING WELL YESTERDAY HE SAT ON THE EDGE OF THE BED AND WE PLAYED CARS AND TRACTOS AND CLORED AND SANG SONGS TO ALAMABAM HE JUST LOVES THEM!!HE SAT THERE ABOUT 40 MINUTES AND SLEEP THE REST OF THE DAY HE IS STILL PRETTY WEAK BUT GETTING THERE. HIS NOSE CANULA(OXGEN)IF HE DON'T THINK TAKES AND LAYS ON TOP OF HIS NOSE AND THEN HE THINKS HE NEEDS IT HE PUTS ITS BACK IN AND DOES THIS ALL IN HIS SLEEP HE ONLY ON ONE LILTER AND STAYING IN THE 92-100 ND THE ON TOP OF ALL THIS HIS THING TO MEASURE THIS IS ACROS HIS FORHEAD AND HIS HAIR NEEDS A CUT AND IT STANDS ON END HE LOOKS LIKE HE BEEN TO HELL AND BACK ( AND YES HE HAS)THE PEE CATHER IS OUT!! THEGROAN LINEOUT!! HE IS DOING WELL WITH HIS PIK LINE(CENTRAL LINE )IN HIS ARM. AROUND 3 CLOCK AM AND AT 6 AM AND 9 AM HE THROWN UP WHICH IS GOOD HE BEING UP THIS OLD BLOOD FROM SURGERY THIS WILL MAKE HIM FEEL BETTER BLOOD IS HARD ON THE STOMACH.WHEN THEY DID SUGERY HIS TUMMY LOOKED A LITTLE RED INSIDE THEY DID DO A BIOSPY TO RULE OUT GVH OR INFECTION.THE FEDS STRSTED LAST NIGHT LETS HOPE AND PRAYER HIS TUMMY WILL TAKES THIS AND GET ON FULL FEDS AND WE DON'T HAVE TO PUT A CENTRAL LINE BACK IN.
ON MONDAY PT AND OT WILL START HE'S LOOKING FORAWRD TO THIS I THING HE THINGS HE READY TO RIDE BIKE WE WILL SEE.
IF ANYING OF YOU WERE WONDERING WHAT##### THIS WAS I DON'T KNOW BECAUSE BEFORE I UPLOADED IT WAS FINE AND THEN WHEN I DID AND READ IT THERE THIS WAS BUT IT WAS NOT THERE BEFORE AND IF I WOULD GO BACK I WOULD LOOSE EVERYTHING SO I GUESS THE OUTSPACE HELPED ME THERE!!
THERE ARE SOME FAMILIES UP HERE IN NEED OF PRAYERS OF COMFORT AND SUPPORT FIRST IS LITTLE wi/dominicseipel HE HAS BEEN IN THE HOS[PITAL AINCE HE WAS BORN A YEAR AGO ON 2-26-05 HE HAS GO THRU SO MUCH NOW THEY ARE DOING NO MORE SURGERY HIS CHANCE ARE SLIM SO PLEASE CHECK IN AND SEND THEM MANY PRAYERS. AND THE OTHER FAMILY IS ARE LITTLE visitgraciehopkins SHE'S THE LITTLE GIRL OF 3 MONTHS WHICH SURGERY THEY CUT HER ARTERY AND NOW ON LIFE SUPPORT SO ALSO SEND THEM SOME PRAYERS THERE WAY. AGAIN THANKYOU FOR ALL YOUR CON'T SUPPORT AND PRAYERS FOR TEERELL AND ALL OF US. LOVE, TERRELL AND FAMILY
Friday, March 17, 2006 7:34 PM CST
GOOD EVENING EVERYONE!! DAY 352
WELL THE SUN IS OUT AND VERY NICE IN MPLS.SOME AREAS GOT 8 INCHES OF SNOW.
WELL WE HAD A VERY BIG DAY TERRELL HAS HIS STENT OUT AMEN!! TERRELL HAS HIS J-G TUBE (FEEDING TUBE)TO HIS BELLY AMEN!! AND TERRELL HAS HIS PIK LINE IN HIS ARM(TEMPORY CENTRAL LINE) HOPING HE WILL BE ON FULL FEDS IN 8 WEEKS THIS WAY WE WON'T HAVE TO PUT A CENTRAL LINE BACK IN WHICH WHAT WAS CAUSING ALL ARE INFECTIONS. TERRELL'S LABS ARE LOOKING GREAT KIDNEY FUNCTION NUMBER'S B.U.N. AT 83 ON MONDAY IT WAS 137 YEAH!! THE CREATINE WAS 3.75 DOWN FROM 5.95 ON MONDAY NORMAL FOR THESE ARE BUN IS 25 CREATINE IS .6 WE HAVE A LITTLE TO GO BUT WE ARE HEADED IN THE RIGHT DIRECTION. NO MRI THEY HAVE TO USE A DYE AND THIS IS ####### THE KIDNEYS AND THERE IS NO NEEDED HURRY ON THIS SO WE WILL WAIT. BONE MARROW BIOSY WAS GREAT ALL CELLS ARE THERE, ALL 100 NOR, CERLITY 90HICH IS NORMAL FOR HIM AND NO LEUKIMA!! WE COULD NOT BE HAPPIER ON ALL THIS NEWS.THE SONG THAT KEEPS GOING THRU MY HEAD IS GLORY AND PRAISE TO THE LORD!! AND THIS IS PRAISE GOD HE HAS ANSWERED SO MANY PRAYERS.WE STILL ARE HOLDING ARE BREATH TO WHERE TERRELL WAS A MONTH AGO (YES ALREADY A MONTH )AND EVEN 16 DAYS AGO WHERE HE WAS SO VERY VERY CRITICAL AND NOW DOING SO WELL WE ARE JUST LIKE OKAY WE LIKE THIS BUT ARE SO AFRIAD THE DOOR IS GOING TO COME AND KNOCK HIM BACK AGAIN HE HAS BEEN HIT BACK SO MANY TIMES JUST WHEN HE STARTS FEELING SO GOOD AND THAT WHEN IT HITS WE ARE PRAYING HE IS ON THE ROAD TO FULL RECOVERY AND HE CAN ENJOY HIS SPRING AND SUMMNER AND EVERY SEASON AS A LITTLE BOY SHOULD. HE'S BEEN DOING VERY WELL THIS AFTERNOON RESTING VERY NICELY HIS OXGEN IS DOWN TO 1 LITLER SO WE ARE GETTING THERE AND HE TALKED ALOT MORE TODAY AND WHEN MONDAY COMES ALSO THE START OF THERPY PT AND OT HE WANTS TO RIDE THE BIKE WE TOLD HIM YOU HAVE TO GET A LIITLE STRONGER AND THEN YOU CAN RIDE THE BIKE HE JUST LOVES THE BIKE UP HERE TO RIDE IN THE HALL WAYS.SO AGAIN TERRELL ANGEL IS STILL WATCHING OVER HIM . WE ARE SO THANKFUL FOR THIS ANGEL WATCHING OVER HIM IT BEEN THERE NOW 3 TIMES AND HAS SEEING HIM THRU SOME PRETTY CRITICAL TIMES AND FOR ALL ARE PRAYER WARRIORS THANKYOU BUT PLEASE KEEP THEM COMING WE WILL KEEP TAKING THEM TIL WE ARE MUCH STRONG AND ARE HEALED. ALSO WE HAVE MET SOME MORE GREAT FAMILIES SOME WE NEVER GOT THERE NAMES BUT ARE VERY SAD TO SAY THAT 2 FAMILIES HERE HAVE LOST A LOVED ONE OF ONLY 3 MONTHS OLD ALEX FROM WIC.HAD SOME HEART ISSUES AND FOR LITTLE LIV WHEN TO BED ONE NIGHT HEALTHY LITTLE GIRL WOKE UP DEADLY SICK AND STILL DID NOT KNOW WHAT IT WAS ALSO LOST HER BATTLE YESTERDAY. SO MY DEEPEST SYMPATHY GOES OUT TO THEM. THERE IS ALSO ANOTHER LITTLE GIRL GRACE 3 MONTHS OLD VERY CRITICAL WAS GOING TO HAVE SURGERY TO FIX HER HEART AND THE SURGERY ACCIDENTLY CUT HER ARTERY AND IS ON LIFE SUPPORT SO IF YOU CAN PLEASE LIFT THESE FAMILIES UP IN PRAYERS. WELL AGAIN THANKYOU FOR CON'T PRAYERS AND SUPPORT FOR ALL OF US. GLORY AND PRAISE TO THE LORD!!!! (I KNOW THE REST OF THE SONG THRU HUMMING) LOVE, TERRELL AND FAMILY
PS ADDRESS RONALD MCDONALD HOUSE 621 OAL STREET SE MINNEOPLIS,MN 55414 ROOM 131 RRELL BAUMLER
Friday, March 17, 2006 7:34 PM CST
GOOD EVENING EVERYONE!! DAY 352
WELL THE SUN IS OUT AND VERY NICE IN MPLS.SOME AREAS GOT 8 INCHES OF SNOW.
WELL WE HAD A VERY BIG DAY TERRELL HAS HIS STENT OUT AMEN!! TERRELL HAS HIS J-G TUBE (FEEDING TUBE)TO HIS BELLY AMEN!! AND TERRELL HAS HIS PIK LINE IN HIS ARM(TEMPORY CENTRAL LINE) HOPING HE WILL BE ON FULL FEDS IN 8 WEEKS THIS WAY WE WON'T HAVE TO PUT A CENTRAL LINE BACK IN WHICH WHAT WAS CAUSING ALL ARE INFECTIONS. TERRELL'S LABS ARE LOOKING GREAT KIDNEY FUNCTION NUMBER'S B.U.N. AT 83 ON MONDAY IT WAS 137 YEAH!! THE CREATINE WAS 3.75 DOWN FROM 5.95 ON MONDAY NORMAL FOR THESE ARE BUN IS 25 CREATINE IS .6 WE HAVE A LITTLE TO GO BUT WE ARE HEADED IN THE RIGHT DIRECTION. NO MRI THEY HAVE TO USE A DYE AND THIS IS ####### THE KIDNEYS AND THERE IS NO NEEDED HURRY ON THIS SO WE WILL WAIT. BONE MARROW BIOSY WAS GREAT ALL CELLS ARE THERE, ALL 100%DONOR, CERLITY 90% WHICH IS NORMAL FOR HIM AND NO LEUKIMA!! WE COULD NOT BE HAPPIER ON ALL THIS NEWS.THE SONG THAT KEEPS GOING THRU MY HEAD IS GLORY AND PRAISE TO THE LORD!! AND THIS IS PRAISE GOD HE HAS ANSWERED SO MANY PRAYERS.WE STILL ARE HOLDING ARE BREATH TO WHERE TERRELL WAS A MONTH AGO (YES ALREADY A MONTH )AND EVEN 16 DAYS AGO WHERE HE WAS SO VERY VERY CRITICAL AND NOW DOING SO WELL WE ARE JUST LIKE OKAY WE LIKE THIS BUT ARE SO AFRIAD THE DOOR IS GOING TO COME AND KNOCK HIM BACK AGAIN HE HAS BEEN HIT BACK SO MANY TIMES JUST WHEN HE STARTS FEELING SO GOOD AND THAT WHEN IT HITS WE ARE PRAYING HE IS ON THE ROAD TO FULL RECOVERY AND HE CAN ENJOY HIS SPRING AND SUMMNER AND EVERY SEASON AS A LITTLE BOY SHOULD. HE'S BEEN DOING VERY WELL THIS AFTERNOON RESTING VERY NICELY HIS OXGEN IS DOWN TO 1 LITLER SO WE ARE GETTING THERE AND HE TALKED ALOT MORE TODAY AND WHEN MONDAY COMES ALSO THE START OF THERPY PT AND OT HE WANTS TO RIDE THE BIKE WE TOLD HIM YOU HAVE TO GET A LIITLE STRONGER AND THEN YOU CAN RIDE THE BIKE HE JUST LOVES THE BIKE UP HERE TO RIDE IN THE HALL WAYS.SO AGAIN TERRELL ANGEL IS STILL WATCHING OVER HIM . WE ARE SO THANKFUL FOR THIS ANGEL WATCHING OVER HIM IT BEEN THERE NOW 3 TIMES AND HAS SEEING HIM THRU SOME PRETTY CRITICAL TIMES AND FOR ALL ARE PRAYER WARRIORS THANKYOU BUT PLEASE KEEP THEM COMING WE WILL KEEP TAKING THEM TIL WE ARE MUCH STRONG AND ARE HEALED. ALSO WE HAVE MET SOME MORE GREAT FAMILIES SOME WE NEVER GOT THERE NAMES BUT ARE VERY SAD TO SAY THAT 2 FAMILIES HERE HAVE LOST A LOVED ONE OF ONLY 3 MONTHS OLD ALEX FROM WIC.HAD SOME HEART ISSUES AND FOR LITTLE LIV WHEN TO BED ONE NIGHT HEALTHY LITTLE GIRL WOKE UP DEADLY SICK AND STILL DID NOT KNOW WHAT IT WAS ALSO LOST HER BATTLE YESTERDAY. SO MY DEEPEST SYMPATHY GOES OUT TO THEM. THERE IS ALSO ANOTHER LITTLE GIRL GRACE 3 MONTHS OLD VERY CRITICAL WAS GOING TO HAVE SURGERY TO FIX HER HEART AND THE SURGERY ACCIDENTLY CUT HER ARTERY AND IS ON LIFE SUPPORT SO IF YOU CAN PLEASE LIFT THESE FAMILIES UP IN PRAYERS. WELL AGAIN THANKYOU FOR CON'T PRAYERS AND SUPPORT FOR ALL OF US. GLORY AND PRAISE TO THE LORD!!!! (I KNOW THE REST OF THE SONG THRU HUMMING) LOVE, TERRELL AND FAMILY
PS ADDRESS RONALD MCDONALD HOUSE 621 OAL STREET SE MINNEOPLIS,MN 55414 ROOM 131 %TERRELL BAUMLER
Thursday, March 16, 2006 7:49 AM CST
GOOD MORING EVERYONE!!! DAY 352
LIKE THEY SAY LET IT SNOW !!LET IT SNOW!!!
THINKING ABOUT THIS IT WAS A YEAR AGO WHEN WE START TRANSPLANT JOURNARY AND I REMEMBER ALSO THEN WE GOT A PILE OF SNOW UP HERE SOUTH OF MPLS. THEY GOT 24 INCHES OF SNOW SO THIS JUST A THING UP HERE AROUND THIS TIME A YEAR.WELL WHAT A YEAR THIS HAS BROUGHT US MANY BLESSINGS TO BE THANKFULL FOR AND IT NOT THE SNOW AND THAT IS WHAT IT IS DOING IN MPLS. THEY HAVE ABOUT 6 INCHES ALREADY ON THE GROUND AND STILL SNOWING.AFTER SEEING THE WEATHER AT HOME IN IOWA I THOUGHT I BETTER GO BEFORE THE STORM HITS SO I GOT BACK HERE AROUND 10:30 PM LAST NIGHT SO THANKFUL I DID ABOUT 35 MILES SOUTH OF MPLS.CANON FALLS IT WAS STARTING TO SNOW BUT IT WAS THE WORST THE LAST 7 MILES INTO MPLS.BUT MADE IT.
WELL SORRY FOR THE DELAY TERRELL IS DOING GREAT IN TO WHERE HE WAS 2 WEEKS AGO.ON MONDAY HE GOT MOVED DOWN TO 4A THE BMT FLOOR THEY CAN ADJUST LEVEL OF CARE THERE BETTER THEN IN 5C ON 4A THEY CAN GO 1-3 MEANING 1 NURSE TO 3 PATIENTS ETC.HE ON A NOSE CANEL TO HELP WITH BREATHING AT 2 LITLERS OF OXGEN SO NOT MUCH AND ON THE BI-PAP COUPLE HOURS HEAR AND THERE TO HELP OPEN THE LUNGS HE DOESN'T TAKE DEEP ENOUGH BREATHS TO OPEN THE LUNGS THEY SAY HIS LUNGS LOOK GOOD AND SHOULD RECOVER WITHOUT DAMAGE THANK YOU GOD!! THE KIDNEY FUNCTION NUMBER'S ARE COMING DOWN ON THERE OWN THEY CALL THIS SMART PEEING THANK GOODNESS THOSE KIDNEY GOT THERE REST AND CAN START THERE JOB AGAIN.AND STILL PEEING WELL NOT TO WHERE HE GOING TO PEE HIMSELF DRY AGAIN WEIGHT IS UP FROM 25.5KG.THIS IS LOW FOR HIM TO BACK TO 26.5KG WHICH IS STILL ALITTLE DRY BUT WE ARE GETTING THERE LITTLE BY LITTLE THEY CAN NOT GIVE HIM ALL THIS FLUID AT ONCE IT WILL OG TO THE LUNGS AND WE DON'T NEED THAT IT'S CALLED THE BALACING ACT OF HOW A LITTLE BODY WORKS AND WE HAVE COME TO UNDERSTAND THIS SO MUCH.
DR.CASS THE DOCTOR THAT PUT THE STENT IN WAS TO SEE TERRELL AND SAID IT HAS TO COME OUT NOW!! HE THINKS MAYBE THIS COULD BE WHERE SOME OF THE TROUBLE COULD BE COMING FROM.TERRELL IS NOT LIKING THE FEEDING TUBE DOWN HIS NOSE SO AS WE ARE SO HOPING AND PRAYERS ARE BEING ANSWERED ON FRIDAY TERRELL WILL BE GETTING HIS STENT OUT AND I THINK ALSO AT THAT TIME THEY WILL BUT THE FEEDING TUBE INTO HIS BELLY.AND HAVE HIS MRI ALSO DONE THIS WILL ALL BE GREAT TO HAVE DONE AND BEHIND US AND IF ALL GOES WELL AND COMES OUT WELL TERRELL SHOULD NOT HAVE TO BE PUT TO SLEEP FOR A YEAR THIS WOULD BE GREAT.KEEPING ARE FINGERS CROSS FOR NO CENTRAL LINE TO GO BACK IN? LIKE I HAVE SAID BEFORE I HAVE THIS FEELING THIS IS TERRELL COMPLETING THE CIRCLE AND WHEN DONE WE ARE HEALTHY AND NEVER SEE ANOTHER HOSPIAL FOR A LONG TIME.I CAN ONLY KEEP PRAYING THIS BUT I HAVE TO STOP AND REMEMBER NOT TO PUSH THINGS TERRELL IS THE ENGINE OF THIS TRAIN AND HE WILL LEAD US TO WHAT WILL BE.WELL I BETTER HEAD TO THE HOSPITAL AND HEAR TERRELL THE FIRST TIME IN 3 WEEKS TO HEAR HIM BE HIS SASSY LITTLE SELF WHICH I CAN NOT WAIT TO HEAR. SO DAD CAN HAVE A BREAK KENNY HAS BEEN WITH TERRELL EVERYDAY SINCE HE WENT IN SO I CAN WORK A FEW DAYS HERE AND THERE AND KENNY'S DOING A GREAT JOB.
WELL PLEASE KEEP THE PRAYERS COMING AND FOR SURE ON FRIDAY AS TERRELL HAS ALL THIS DONE AND ALL GOES WELL.
JUST A REMINDER IF YOU STILL HAVE THEM SHIRTS AND IT WOULD BE GREAT SEEING ALL OF THEM ON HIS ONE YEAR ANNY. MARCH 29 IT IS TRULY AMAZING WHEN I SEE THEM AND HOW MANY PEOPLE PULLING FOR HIM. THANKS FOR ALL THE CON'T SUPPORT. LOVE, TERRELL AND FAMILY
ADDRESS: RONALD MCDONALD HOUSE 621 OAK STREET SE MINNEPOLIS,MN 55414 ROOM 131 RRELL BAUMLER
Sunday, March 12, 2006 10:30 PM CST
GOOD EVENING EVERYONE!!!! DAY 348
WELL AT AROUND 1:40 PM TERRELL GOT OFF THE VENT.HE IS ON THE BIPAP MACHINE THIS WILL HELP HIM TAKE DEEP BREATHES TO KEEP HIS LUNGS OPEN AND FLUID OUT. HE IS DOING FINE THE MEDICINE TO KEEP HIS BLOOD PRESSUES UP IS OFF AND THEY ARE DOING FINE HE WILL HAVE SOME DRUG WITHDRAWALS AFTER BEING ON THE VENT 17 DAYS.DAD SAYS HE DOING GREAT.AND THEY ARE GOING TO TURN DOWN HIS PEEING MEDICINE BECAUSE THEY THINK HE IS PEING HIMSELF DRY AND MAYBE CASING HIS CREATINE AND BUN TO STILL BE HIGH IT'S BEEN 8 DAYS NO DIALYS SO PRAY HIS KIDNEYS STSRT PEEING SMART THEY NEED TO FILTER THE WASTE.TERRELL HAS COME SO FAR BUT HAS A WAYS TO GO BUT HE IS A TRUE FIGHTER .I AND DAD CAN NOT BE MORE PROUD OF HIM OF DOING HIS BEST KEEP IT UP TERRELL!! WELL MPLS IS IN FOR A SNOW STROM THEY ARE TO GET UP TO 6-10 INCHES.IN IOWA WE HAD THUNDER AND RAIN WELL I GUESS IT'S THAT TIME A YEAR. THANKYOU FOR THE CON'T PEAYERS AND SUPPORT SO KEEP THE PRAYERS COMING FOR THE KIDNEYS TO PEE SMART AND START TO FILTER AND TERRREL'S COMPLETE HEALING!! LOVE, TERRELL AND FAMILY
Saturday, March 11, 2006 3:02 PM CST
GOOD AFTERNOON EVERYONE!!! DAY 347
SORRY FOR THE DELAY TERRELL HAS BEEN IN THE HOSPITAL NOW 3 WEEKS AND LITTLE OVER 2 WEEKS ON THE VENT. WHEN WE GOT HERE IN MPLS. THEY SAID HE WOULD BE ON THE VENT ANY WHERE FROM 2-3 WEEKS. WELL WITH TERRELL'S GREAT PROGESS THEY ARE STARING TO WEAN HIM OFF SOME OF THE VERSET AND FETINALL (SP??)THE MEDCINE TO KEEP HIM A SLEEP SO HE DON'T PULL HIS TUBE OUT SO IF THEY START TO WEAN NOW HE WON'T HAVE THAT MUCH DRUG WITHDRAWAL BECAUSE THIS STUFF GOES INTO THE TISSUE IT TAKES SOMETIME TO COME OUT OF THE TISSUES.ALL HIS SETTING ON THE VENT IS HE CAN'T BE EXTUBATED AT ANYTIME BUT WE ARE IN NO HURRAY BECAUSE WE WANT TO MAKE SURE TERRELL IS READY WE DON'T WANT TO HAVE TO PUT HIM BACK ON THEY WILL DO A PRSSURE TEST TO SEE IF HE IS READY.
THE KIDNEY THEY ARE ANOTHER STORY IT'S BEEN 1 WEEK NOW NO DIALYS HE IS PEEING BUT NOT FILTERING THE WASTE HE IS PEEING OUT MORE THEN GOING IN SO THEY WILL INCREASE FLUIDS IN BUT NOT TO FAST TO SEE IF THIS WILL HELP HE MADE BE ON THE DRY SIDE NOW AND THIS CAN RAISE THE COUNTS SOME IT JUST A BALANCING ACT TO MUCH IT MAY GO TO THE LUNGS AND TO LITTLE THEN THE KIDNEY FUNTION GOES UP ?? WE GOT ARE BONE MARROW BIOSPY DONE ON FRIDAY MORING A ARE 1 YEAR CHECK ALL LOOKS GOOD SO FAR AND WON'T KNOW THE REST FOR ABOUT A WEEK. HE'LL HAVE MORE BLOOD DRAWN TO SEE WERE EVERYTHING ELSE IS. THE DR'S ARE VERY PLEASE WITH HIS PROGRESS. TERRELL IS FIGHTING VERY HARD YOU CAN JUST TELL HE WANTS OFF THE VENT SO BAD HE CAN GET PRETTY MAD BUT I AM SURE IT WON'T BE LONG AND HE WILL BE SCREAMING AND TELLING EVERYONE WHAT HE WANTS.I CAN NOT WAIT TO HEAR HIS LITTLE VOICE AND LAUGHTER AGAIN!! SOMETIMES I FEEL THIS IS TERRELL'S COMPLETE CIRCLE OF MAYBE WHEN WE GET OUT HE WILL BE WELL AND WON;T HAVE TO SEE ANOTHER HOSPITAL FOR A LONG TIME ARE HOPES ARE TO TRY TO GET EVERYTHING DONE WHY'LL WE ARE IN LIKE THE STENT REMOVAL FROM THE LIVER BUT WE MAY HAVE TO SEE ON THIS THE MEDCINE THEY USE CAN BE HARD ON THE KIDNEYS AND PRAYING THE CENTRAL LINE CAN STAY OUT THE OTHER FEDS ARE GOING WELL.BONE MARROW DONE ONE DOWN AND1 TO GO AND HOPE FOR NO CENTRAL LINE TO GO BACK IN. WE THANKYOU FOR ALL THE CON'T PRAYERS FOR TERRELL HE HAS COME SO FAR BUT YET ALONG WAYS TO GO BUT WE WILL TAKE IT TERRELL HAS A VERY QUIET WEEK OF JUST HEALING. SO PLEASE KEEP THE PRAYERS COMING FOR THE KIDNEYS TO START TO FILTER.THANKYOU FOR ALL THE CARDS FOR TERRELL IF ANYONE WOULD LIKE PLEASE MAIL THEM TO THE RMH THIS FARVIEW STUFF GET ME CONFUSED TO WHERE WE ARE RIVERSIDE OR THE OTHER I KNOW WE AREN'T AT RIVERSIDE YOU WOULD THINK AFTER ALL THIS TIME I WOULD KNOW WHERE WE ARE ALL I KNOW HOW TO GET HERE BUT NOT BY ADDRESS. SO SEE BELOW.
GOD HAS ANSWERED MANY PRAYERS AND WE ARE SO GREATFUL FOR HIS AWESOME HEALING I HAVE COME TO LEARN IF YOU BELIEVE ALL THINGS ARE POSSILBE THRU HIM.
SO PRAYERS WARRIORS KEEP THEM COMING!!
LOVE, TERRELL AND FAMILY
PS ADDRESS: RONALD MCDONALD HOUSE 621 OAK STREET SE MINNEOPLIS,MN ROOM 131 %TERRELL BAUMLER
Tuesday, March 7, 2006 8:45 PM CST
GOOD EVENING EVERYONE!! DAY 343
WOW JUST LOOKING TERRELL PAGE HAS BEEN HIT ALMOST 30,000 TIMES!!!THIS IS TRULY AMAZING.
SORRY FOR THE DELAY BUT TERRELL IS DOING GOOD 3 DAYS NO ROCKING OF THE BOAT I MUST SAY.WE WILL TAKE IT BABY STEPS ALL THE WAY. BECAUSE WHY I SAY BABY STEPS BECAUSE WHEN TERRELL HAS HIS CRASHES AND WHAT I MEAN THIS IS HE CAN BE GOOD AND ALL AT ONCES HIS BLOOD PRESSURES WILL DROP 3O POINTS AND HE SOMETIMES DON'T HAVE THIS TO GIVE.TERRELL IS STILL VERY SICK LITTLE BOY AND WILL TAKE TIME TO HEAL. THEY HAVE LOWERED HIS VENT SETTING DOWN ON THE PEEP(THE PRESSUE IT TAKES TO HELP OPEN HIS LUNGS)TO 8 FROM 10 WE WERE ONCE 12 WHEN WE LEFT LACROSSE WE WERE 18!!!NORMAL RANGE FOR HIM IS 5-6 SO GOD IS LISTING AND HE IS ANSWERING!!THE OXGEN IS DOWN TO 45% FROM 50% ONCE WERE WE AS HIGH AS 90% AND STILL ABLE TO TAKE BREATHS OVER THE VENT WERE WE COULDN'T A WEEK AGO AND THE VENT DID ALL THE WORK.SO AS YOU SEE GOD HAS LISTEN AND WE ARE BLESSED ONCE AGAIN .THE POWER OF PRAYERS!! THE KIDNEY FUNCTION NUMBERS ARE UP PUT HE IS PEEING OUT ABOUT WHAT HE TAKES IN WHEN THE KIDNEY GET HURT THEY TAKE ALITTLE TIME TO HEAL AND TERRELL'S KIDNEYS WERE HIT PRETTY BAD 2 TIMES IN ALMOST A WEEK ALONG WITH HIS LUNGS. SO WE ARE VERY GREATFUL FOR EVERY PRAY FOR HIM THAT EACH AND EVERYONE OF YOU HAVE DONE PLEASE CON'T THEM WE WILL DANCE AND PRAISE GOD FOR EACH DAY FORWARD UNTIL WE ARE COMPLETLY HEALED.THE DOCTORS ARE VERY PLEASED WITH HIS PROGRESS.
FOR EMANUEL HE HAD HIS FOLLOW UP ON HIS EARS AND EVERYONE THAT SEEING HIM SAID HE LOOKED MUCH BETTER THEN THE LAST TIME THEY SAW HIM WHICH THEN HE WAS VERY SICK RAG DOLL SICK!!HIS EAR TESTING WHEN VERY WELL HE CAN HEAR JUST FINE!!! IT STILL LIKE -210 WAS -400 BUT HE MUST BE RECOVERYING FROM THE EAR INFECTION SO HE CAN HEAR ME NOW!! EMANUEL DID A WONDERFUL JOB WITH THE TEST!!HE SURE MISSING BIG BROTHER THE OLDER HE GETS THE HARD IT GETS ON HIM SO ITS HARD TO HAVE TO SEE HIM THIS WAY.SO I TRY TO SPEND MORE TIME WITH HIM AS I CAN WHEN I GOT UP MONDAY MORING TO GET READY FOR WORK HE ASK ME MOM WHERE YOU GOING I TOLD HIM WORK HIS LITTLE VIOCE I DON'T WANT TO STAY HOME BY MYSELF I SAID AUNT LIZ IS COMING AND HE SAID I DON'T WANT AUNT LIZ I WANT YOU STAY HOME AND YOU AND ME JUST ROCK ALL DAY. AND THE TEARS ARE JUST RUNNING OUT OF HIS EYES .SO I FINISED GETTING DRESSED AND THEN WE ROCKED AND TALKED BEFORE I LEFT FOR WORK AND THEN SEEM PRETTY GOOD.SOMEDAYS ITS HARD BUT WHAT ARE YOU TO DO WHEN YOU HAVE TO WORK TO KEEP THE BILLS PAID. AGAIN WE THANKYOU ALL FOR YOUR PRAYERS AND SUPPORT WE COULDN'T DO IT WITH OUT ANY OF YOU. LOVE TERRELL AND FAMILY
PS THANKS BOB FOR SNOW BLOWING THE DRIVE WAY AND DECK OFF THAT WAS A SURE TREAT TO COME TO.THANKS!!!
Sunday, March 5, 2006 10:24 AM CST
GOOD MORING EVERYONE!! DAY 341
WELL THE WEATHER HERE IS FOGGY AND SNOWY.. TERRELL WAS AWAKE ALOT YESTERDAY AND DID PRETTY GOOD WITH EVERYTHING GOING ON I CAN NOT IMAGING WHAT HE IS FEELING HE GETS REALLY UPSET EASY BUT I WOULD TO HAVING A TUBE DOWN THE NOSE'S ONE ON EACH SIDE,IV IN HIS FOOT AND HAND AND CAN NOT MOVE IT AND HE DOES NOT LIKE IT IN THE FOOT TO BEAGING WITH ,THEN HAVING THE VENT TUBE IN HIS MOUTH AND WANTS TO TALK SO BAD .BUT ALL IN ALL TERRELL HAS DONE WONDERFUL BEING AWAKE WE WATCHED THOMAS THE TRAIN AND BEEN LISTENING TO MUSIC THIS SEEMS TO CALM HIM.
HE HAD FRIDAY OFF FROM DIALYS BUT THEN HAD THEM ON SATURDAY TO JUST FILTER THEY WERE GOING TO TAKE ANOTHER LILTER BUT TERRELL DID NOT HAVE THAT TO GIVE SO THEY JUST FILTED AND BUN AND CREATINE WERE DOWN BUN WAS 27 NORMAL DOWN FROM 77 CREATINE WAS 4.4 DOWN TO 2.2 THEY USUAL ONLY TAKE THEM TO 2 SO HOPEFULLY HE'LL BE DONE WITH DIALYS .WELL WE HAD ANOTHER FEVER SO SOME DIFFERENT TYPES OF ANTIBODIES STARTED .AND ARE CENTERAL LINE IS OUT AS OF 10:15 AM THIS MORING YEAH!!! I WOULD OF LOVE TO HELP PULL.THEY PUT A TEMPORY ONE IN THE GROAN NOT A GOOD PLACE BUT HE NEEDS THIS FOR GIVING MEDCINES AND THING AND IF THEY NEED TO DO DIAYLS THEY CAN GO THRU THIS.THEY STARTED HIS FEDS DOING WELL SO FAR.THEY WANT TO TRY TO KEEP A LINE OUT FOR 3 DAYS TO CLEAR THE INFECTION THEN MORE THEN LIKELY PUT ANOTHER BACK IN I HOPING WE WON'T BUT THIS WOULD BE BETTER THERE THEN THE GROAN. THE VENT WAS SET THAT HE COULD NOT BREATH OVER IT BUT NOW HE CAN BREATH OVER IT AND DOING GREAT. BLOOD PRESSURES ARE STILL LOW THE ONE MEDICINE IS HELPING TO KEEP IT UP.HEART RATES SOMETIMES ARE ON THE LOW SIDE SO TERRELL IS STABLE BUT STILL VERY SICK LITTLE BOY IT WOULD NOT TAKE MUCH TO ROCK HIS BOAT. SO PLEASE CON'T THE PRAYERS FOR TERRELL FOR HIS LUNGS AND KIDNEYS TO HEAL.TERRELL IS FIGHTING AND HE HAS SHOWN THAT OVER AND OVER AGAIN HE TRULY IS A VERY STRONG BOY WHEN THEY GIVE HIM BUMPS TO MAKE HIM SLEEP HE FIGHTS IT.
THANKYOU BILL AND MARY FOR STOPPING BY IT WAS GREAT TO SEE YOU AND FOR THE BALLON AND BEAR AND FOR ALL THE HUGS AND UNDERSTANDING. AND THANKS TO LARRY AND CLAUDIE FOR STOPPING IN THE PRAYERS CON'T FOR HANNAH AND THAT ALL CON'TS WELL FOR HER. SO IF ANY OF YOU HAVE A CHANCE PLEASE CHECK IN ON HANNAH SHE A YOUNG LADY FROM FROM ARE HOME TOWN AND HAD RECEIVED A DOUBLE LUNG TRANSPLANT HERE IN MPLS. HER WEB PAGE IS visit'hannaholson THEY WOULD LOVE SOME EXTRA PRAYERS THERE WAY.WELL THANKYOU ALL FOR THE CON'T SUPPORT FOR US AND FOR TERRELL. MAY GOD BLESS EACH AND EVERYONE OF YOU !! LOVE, TERRELL AND FAMILY
Friday, March 3, 2006 7:46 PM CST
GOOD EVERNING EVERYONE!!! DAY 339
WELL TERRELL HAD A PRETTY QUIET DAY NO DIALYS MAYBE ON SATURDAY HAVE TO SEE. HIS WEIGHTS DOWN TO 26.6KG THEY THINK HE HAS MORE FLUID I AM THINKING NOT BUT THEY KNOW BEST. THE ONLY THING TODAY WAS WELL GUESS THERE ARE 2 THINGS (1) HIS HEART RATE WAS REALLY LOW THIS MORING LIKE AROUND 67 EITHER IN A DEEP SLEEP ALONG WITH THE MEDICINE TO KEEP HIM A SLEEP BUT WAS PRETTY GOOD ALL DAY THEN.(2) THE FEVER THE OTHER DAY (THURS)GROW A CULTURAL WHAT WE DON'T NEED RIGHT NOW IT CAME FROM HIS LINES BUT A BACTIACL INFECTION LIKE WE HAVE HAD BEFORE SO THE VACO. IS STARTED AGAIN.THE DOCTORS HERE AGREE THE LINE MUST GO!!!!! WHEN HOPFULLY SOON RIGHT NOW THE ONLY THING GOOD ABOUT THIS LINE WAS THE WE COULD DUE DIALYS WITH OUT PUTTING HIM THRU ANY MORE. WHEN TALKING WITH DR.NELSON(icu)IT COULD BE MAYBE UP TO 2-3 WEEKS TERRELL BEING ON THE VENT ALL DEPENDS ON HOW HIS LUNGS HEAL THEY HAVE IMPROVED BUT HAVE LOTS OF HEALING TO DO.THE KIDNEY ALSO NEED TIME TO HEAL THERE IS SOME PEE BUT NOT MUCH SO THEY ARE BEING LAZY NOW BUT THEY WILL COME THEY GET HEALED. THE BMT DOCTORS ARE IN EVERYDAY CHECKING ON THE ROLLER COASTER KID (THAT'S WHAT THEY CALL TERRELL)IF HE CAN STAY STABLE THEY MAY DUE HIS ONE YEAR BONE MARROW BIOSPY NEXT WEEK WHILE HE'S ON THE VENT AND IT WOULD NOT TAKE MUCH MORE TO REALLY BUT HIM UNDER TO DO THIS.ITS HARD TO BELIEVE IT ALMOST A YEAR WHEN THIS JOURANY STARTED 3-29-05 SO WE PRAY THIS WILL ALL BE FINE.WE DON'T NEED ANYMORE HUNDLES RIGHT NOW. KIDNEY FUNCTION NUMBERS DOWN BUN 47 CREATINE 3.5 STILL HIGH BUT COMING. HEMB.16.0 THIS WAS HIGH WBC 13.1 ANC 9.2 THESE ARE HIGH FOR TERRELL ALL CAN COME FROM INFFECTION AND STRESS TO THE BODY DO THINK TERREL HAS HAD STRESS??? WELL WE GOT INTO THE MCDONALD HOUSE TONIGHT YEAH!!SO I GUESS I WON'T HAVE ANY FIGHTING WITH HOUSE KEEPING IN THE MIDDLE OF THE NIGHT LIKE LAST NIGHT THEY HAD TO SHAMPOO THE CARPET AT 10:00PM AND SAID IT WOULD BE DONE AT MIDNIGHT WELL I JUST COULD NOT SLEEP ANY LONGER SO AT 1:30 AM STILL COULD NOT BUT I PUT MY FOOT DOWN THEY KEPT SAYING CARPET WET I KEPT SAYING SO?? I WANT TO SLEEP ON THE COUGHT A FEW ROUNDS AND GUESS WHO WON YOU GUESS IT I DID I WAS OUT.SO I GUESS TONIGHT I WON'T HAVE THIS TO WORRY ABOUT.
SOME OF DR.BOB'S PATIENTS GOT SOME GREAT NEWS SARA KERRIGAN SCAN CAME BACK TUMOR SMALLER YEAH!!! BRIANNA SCAN WAS GREAT ALSO SO SHE SHOULD BE RETURNING FROM MPLS SOMETIME SOON.ALSO YEAH FOR HER.
PLEASE SEND SOME EXTRA PRAYERS OUT TO TOM NEDDO BACK IN MPLS. STILL STOMACH ISSUES. BABY JESSICA DOING BETTER BUT HAS TO DO LOTS OF HEALING OF THE LUNGS ALSO. AGAIN KEEP THE PRAYERS COMING FOR TERRELL HE'S MADE SOME IMPROVEMENTS BUT IT WOULD NOT TAKE MUCH TO GO THE OTHER WAY FAST. MAY GOD BLESS EACH AND EVERYONE OF YOU, LOVE, TERRELL AND FAMILY
ADDRESS RONALD MCDONALD HOUSE 621 OAK STREET SE MINNEOPLIS,MN