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Welcome to Jeremiah's Web Page. It has been provided to keep people updated about Jeremiah our seven year old son.
On February 21, 2003 Jeremiah was diagnosed with Adrenoleukodystrophy. Our only option was a cord blood stem cell transplant. We were told that the Duke Medical Center was the place to be. Follow us through our journey to what we hope is Jeremiah's recovery.
Journal
Tuesday, February 16, 2010 8:52 PM CST Once again, I don't know if anyone checks on us anymore. This will be my last entry.
My beloved Jeremiah, passed away on December 29, 2009.
Jeremiah came home on the Monday evening before, after his week long visit with his dad. He was having some breathing issues, but nothing that he hadn't had before. As the night progressed, I tried different treatments, cough med, ibuprophen, breathing treatment, etc., in an attempt to make him comfortable. He didn't have a fever at that time, so I wasn't sure what was wrong.
I got in bed with him to comfort him, and he seemed better. It was midnight by then, so I went to bed. At 3:00 a.m. Jeremiah woke me crying. When I went to his room, he had vomited, and now had a fever of 102.4.
I woke my husband to tell him that we needed to take Jeremiah to the hospital.
When we arrived at the hospital his oxygen level was in the low 80"s. They wanted to intubate him. Once they do that he has to be airlifted to the children's hospital in Iowa City.
I can not explain it but, something came over me, and I knew it was time to let Jeremiah go.
His xrays indicated that he had pnuemonia. His right lung was completely involved. Jeremiah's father and I decided to do nothing. The doctor didn't think that taking him to Iowa City would make a difference. He thought we made the right decision.
This was the hardest thing I have had to do in the last 6 1/2 years.
Jeremiah was transfered to a hospice center here. He passed away within 3 hours of arriving there. Having him leave so quickly gave me comfort knowing that I had made the right decision. He was ready.
Jeremiah is now free of pain, running, playing, and singing all his favorite songs again.
Thank you to all who have ever followed our journey!
Jeremiah's journey is over, but I will continue to try to educate and advocate for the testing of babies for diseases like Jeremiah's, so that not another child should lose their life.
God Bless
Peggy
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