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Fully Relying On God
Announcing the
Trenton W. Kindred Research Fund
Cure Childhood Cancer is proud to announce the Trenton W. Kindred Research Fund. This fund was created in Honor of Trenton The Trenton W. Kindred Research Fund has a very specific purpose. Proceeds from the Trenton W. Kindred Research Fund will be used to support childhood cancer research - supporting the doctors and scientists of the Aflac Cancer Center and Blood Disorders Services of Children's Healthcare of Atlanta and Emory University School of Medicine Trenton was a fighter even at the age of 1 when he was diagnosed. He is still a fighter with a determination like we've never seen. Trenton has shown us how to embrace all the small joys of life. Our hope and prayer is that we WILL find a cure for Neuroblastoma and we WILL be able to say that we did it BECAUSE of Trenton and the support from our friends and family. We feel in our hearts that Trenton will inspire other childhood cancer patients to live life to the fullest. But first we must help find a cure for those who are suffering PLEASE Join us in securing a CURE for our children - EVERY amount COUNTS. If every person gives what you can afford and you "PAY it FORWARD" in no time we would have the funding needed to conquer childhood cancer in our lifetime.
To learn more about Trenton and the Trenton W. Kindred Research Fund, click here.
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Trenton is currently a very sweet "5"-year old little boy who has had lots of family and friends praying for and loving him for 4 years now. Trenton was diagnosed on March 18, 2005, (5 days after his '1' year birthday) with High Risk, Stage IV Neuroblastoma, N-MYC Amplified Cancer. Neuroblastoma, a rare cancer found mostly in children under age 10, is a form of cancer that occurs in infants and children but is rarely found in children older than 10 years. Neuroblastoma is by far the most common cancer in infants and the third most common type of cancer in children. There are approximately 650 new cases of neuroblastoma each year. Since Trenton's diagnosis, he began with 5 rounds of chemotherapy immediately. After the third round of Chemo, Trenton's tumors disappeared miraculously; therefore he did not have to endure surgery to have the masses removed. Miracle #1 :)
This was only the beginning of Gods work and His miracles in our son......he's a living testament today - and we will remind him of this every day as he grows into a young man!
Trenton's Bone Marrow also became free of cancer at that point and we were advised by ALL Oncology doctors (specifically Dr. Woods) to move forward with the total protocol, not to stop for a minute, as this cancer is a Beast and has a 70% chance track record of relapse. Therefore, we journeyed on………Following 2 more rounds of chemo, they harvested his own cells to save for TWO contiguous Bone Marrow Transplants that would be forthcoming in the fall of 2005. Between Chemo and harvesting, Trenton had many viruses encounter his body with low blood counts and was in the hospital over a period of 5 month thru spring and summer, and then we were finally home for a couple of weeks.
Finally, his body recovered enough to conquer on, to begin bone marrow transplant #1 in August 2005. Trenton endured the first one, with the hardest battle and toughest fight for another 37 days in hospital. There were 7 grueling days that we thought we would lose Trenton, as he struggled to breathe and bring his fight up to fighting order, we held him in our arms day and night hardly letting go. He made it, with the prayers of faith, love and hope.
We then came home for couple weeks had pictures made for Christmas cards, loved his brother lots and family time and journeyed on to be readmitted for #2 BMT at Egleston Children's Hospital once again under the best of carefor another 33 days. He did so much better this round. In addition to the other long weeks and months of hospital stays, these were the worst. EACH bone marrow transplant procedure, completing them both the end of October 2005. Praise the Lord. Trenton rested and recuperated once again at home for about a month and then started radiation in December for 21 days, and he was our hero all the way thru (again, under the best of care)! Put to sleep during every single procedure, not to mention the 17 different surgeries for placement of infected port lines and picc lines - All the doctors and nurses blessed us with such love and support (so many we claim family :) we LOVE them all for so many of things they taught us and loved us each day, and will always keep them close in our hearts. The doctors are the best at Scottish, and Scottish Aflac Clinic, as well as Egleston BMT floor, Egleston Clinic, and Emory radiation.
Trenton's final protocol was Oral Chemo which he began on January 10th, 2006. The oral Chemo requires 14 days on and 14 days off, twice a day for 6 months. We just completed the end of everything June 11th 2006. Trenton has been N.E.D. (no evidence of disease) and We just want to thank everyone for the support we have had these past 4 years. It’s amazing to me how much love is in this world, and when you think of a bad day or bad people, please think of us and how much love and support comes from ALL families when touched with the sickness of children.
When you pull together all the love for one child with cancer or any sickness in a child………just think of all the love we can pull together with the many children with cancer in the world.....the numbers are shocking……..that is what our family has learned……..we will support and fight and speak the word of faith, love and hope and the journey we can end with children of cancer, if WE ALL pull together………. Please feel free to sign Trenton's journey and read his journal and battle with this horrific disease called Neuroblastoma, the day our families lives changed forever…. WE will PAY IT FORWARD for the rest of our days in the Kindred home www.caringbridge.org/ga/trentonsjourney
Please Light a Candle For Trenton
Turn your Speakers on
Double click on the 4 Candles link below....
Wait for the first 3 candles to go out then watch the 4th candle...
4 Candles
Visit Trenton's Personal Page at
www.TrentonsJourney.com
Journal
Wednesday, October 26, 2011 3:14 PM CDT HI TO ALL OUR WONDERFUL PRAYER WARRIORS!!!
It is that time again! Scan, blood, heart, thyroid testing! Annual Survivorship testing. We are truly believers but gosh, it is just gut-wrenching every time we have to go. Since we work with so many cancer kids and newly diagnosed, the worry is ever present. We know we have a very healthy cancer survivor and he is tough as nails!!! He now thinks going for the test is actually FUN!!! For him maybe, but his parents are nail-biters!! Trenton now things it’s fun to go and see how long it takes for them to get the needle in his vein and dawn blood WIHOUT crying (seriously) then he tells all his friends at school how long it took!!! Really????? As I said, he is a tough little nut and we are so thankful that he is! God has given Trenton his own suit of armor and believe me, he wears it strong and proud!
We don’t have all the tests back as yet, we are lacking two results but here is what we are thankful for so far:
Pulmonary function testing – very good
Hearing/Audio – the same as before. Still diminished high pitch sounds (we can live with that! – guess it means he can’t hear a dog whistle! :-)
Blood work (CBC blood cells, markers) thank you Lord, all good. We were able to breathe a little better after that one!!!
We are still waiting for the cardiovascular testing (checking to see if there is any scarring on the heart from radiation) and the Thyroid. Trenton tested high on the TSH levels several times and the last time it was very high. They wanted to start him on meds then but our doctor wanted to wait for the ultimate testing to see if it was the same. If it remains high, then we will need to start him on life-long care of daily Synthroid medication. We can live with that too, it is not the worst thing in the world as long as everything else comes out normal.
UPDATE – UPDATE - UPDATE!!!!
We just found out his echocardiogram was fine and everything looks great. One thing they have been following for months now is his thyroid levels. Anything above 5.0 is considered high. Trent has hovered around 5.0…5.1 and the last visit in August it was at 6.1 or so. They sent in a prescription to start him on lifelong thyroid medicine, but we decided to see where it would be on our October visit. Well…..it is 4.5???? We have a call into his thyroid doctor to discuss the results, but needless to say it is a shock. Thyroid medicine is not horrible, but it is forever and we have really been praying that it would be delayed Amazing!!!
The one takeaway that I have from yesterdays doctor visit is almost a disbelief from all of the doctors at how well he is doing. How big he is and how healthy he looks. They fall short of saying it is a “miracle”, but you can see them wanting to use that terminology. For all of us that have walked the journey and have prayed so hard we know that is absolutely the case. We continue to believe in miracles and thank you all for your continued prayers.
Trenton is playing football this year and doing GREAT!!! He is much improved and plays both sides of the football – or as he says it “I never get to sit down on the bench”! Ha!!! He takes it very seriously and is proud that he finally gets to tackle instead of play touch!!! He is a bit of a nightmare for the quarterbacks! But we love to watch him play, he puts his all into it.
The boys are looking forward to Halloween and then on to our favorite time of year – Thanksgiving and Christmas. We are blessed to be able to enjoy the holidays with our boys, family and friends. We can’t let this beast steal our joy, our faith, our love and family peace. We are so thankful that we are now free to enjoy the season with this wonderful news and be able to enjoy our family and friends and most of all, our boys.
WE HAVE A SPECIAL REQUEST: This year, Childhood Cancer has struck another in our family. My cousin’s little boy Adam Bartlett, who is a precious 7 year old, just like Trenton, was diagnosed with Wilms Tumor! CAN YOU BELIEVE IT? TWO DARLING BOYS IN THE SAME FAMILY???? He is under chemo treatments right now and will have 18 consecutive treatments and then radiation and they will go from there. He has been handling them pretty well, as well as a 7 year old can but anyway you look at it, it is NOT SUPPOSED TO BE THIS WAY for a child to face these adult horrors. Children should be left to be children, to play, build memories and not be robbed of chasing butterflies, bugs, balls, playing in the dirt and rough housing with their dogs, friends and classmates. Little Adam is being homeschooled now because his immune system is being attacked and he cannot be with other children, out in stores or anywhere but his home. Hi mom, dad, sister and grandparents are his only playmates for some time and it is very hard to understand why, except on the days when his bed is his friend because his tummy or his port or reactions from the meds hurt so much. We ask that our prayer warriors add our sweet Adam to your prayers. Please pray that God guides the hands of his doctors and heals his body and rids Adam’s body of this tumor and all the cancer cells that impact his little life. Please visit his web site here on Caringbridge. His mommy keeps it up beautifully and follow him daily with updates and many, many prayers. http://www.caringbridge.org/visit/adambartlett
We want to thank you EVER FAITHFUL PRAYER WARRIORS, once again you have prayed us through this tough time and once again Trenton has reprieve from the dreaded possibilities that face so many children.
Again, thank you all for all the prayers, text messages, emails, facebook and voicemails of encouragement. You have no idea how uplifting they are and how much we appreciate each one, knowing you're there. We read a lot of them to Trenton and he loves it, especially from his friends and football buddies and coach; every one of them put a big smile on his face.
We believe!!! We believe in miracles and we are witness and proof that prayer is the only answer. We NEVER TAKE THEM FOR GRANTED but always know God is with us and hears every prayer. But with every miracle, comes more prayers, worry, tears, more prayers, more worry, patience, understanding, believing, hope, faith and more patience and the list goes on. Maybe it is a test of our faith. We know the miracle is here because we see it every day in our wonderful little boy!!
One thing we do know for sure is that we have the most powerful group of prayer warriors anywhere. We know if we all pull-together and keep the faith, everything will be fine.
Good days are ahead, thanks so much for your prayers, believing in miracles, and wishing each and every one of you a very Happy Thanksgiving and Blessed Merry Christmas!!!
Let the joys of the Christmas season fill your hearts with joy and remember all those less fortunate than we are. Share your wealth and your time with all who hunger, suffer without jobs, hopes and the homeless, of which are many more this year.
Be generous, you never know when it could be you!
God Bless You Every One,
Ginger, Greg, Taylor & Trenton Xo
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E-mail Author: gkindred@cambridgepg.com
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