Kylie and Christian at the school carnival
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Welcome to Kylie's corner! The place to get the most recent update on Kylie's health. The purpose of this forum is to keep everyone as informed as possible so that the Barry's are able to spend less time on the phone and more time with Kylie.

Drew and Raquel are so appreciative and overwhelmed by the love and support everyone has shown. Please continue to pray!

Kylie had been ill on and off for months before she was diagnosed. She continued to spike high fevers for seemingly no reason and had been in and out of the doctor's office for months without many answers. Around the beginning of October 2004, Kylie was admitted to the hospital after another extended illness. Doctor's felt that this illness may have been caused by a condition called celiac disease.

The doctors performed an endoscopy to obtain a biopsy to test for celiac disease. During this procedure, Kylie's doctor found a large mass in her abdomen.

On October 7th, 2004 a tumor, about the size of a softball, was found in Kylie's abdomen and she was diagnosed with Neuroblastoma. The tumor was connected to Kylie's adrenal gland and wrapped around several major arteries. A biopsy of the tumor revealed that the cancer is N-MYC amplified. This means Kylie's cancer is considered "unfavorable" and aggressive.

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Please help us raise money so that researchers may have the funds to provide new treatments for Neuroblastoma and save lives:

http://www.getetched.com/band-of-parents/
http://www.iGive.com/BandofParents
http://www.cafepress.com/bandofparents

Journal

Tuesday, October 7, 2008 8:17 AM CDT

Today's the four year anniversary of Kylie's diagnosis. It's hard to believe it's been four years since the nightmare began, although it also seems like a lifetime ago. We forgot about the date last year and I probably wouldn't have remembered this year either if it weren't for trying to remember after forgetting last year! I am so thankful that we're able to forget the date of diagnosis and instead remember and celebrate the date when she was declared cancer free! That's a blessing from God in itself.

Have a blessed day and please continue to pray for Kylie's good health, the health of all children with cancer and a cure for ALL cancers.

love,
Raquel

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E-mail Author: raquelbarry@bellsouth.net

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