Jennifers Elizabeths very Special Page

Jennifer was born with Septo-Optic-Dysplasia ( Totally blind & missing part of her brain, The Septum Pellucidum & The Corpus Callosum ).She was also born with Turner Syndrome ( stunted growth )and anomilies of her arms and feet. She has thyroid deficiency, adrenial deficiency,cortizol deficiency,lipid problems, advanced osteoperosis,scholiosis,bronchial asthma,chronic sinisitus,chronic ear infections,migraine headaches,female hormonal problems, high blood pressure , salt deficiency,severe reflux,severe psorasis, chronic pain and muscle spasims.In other words, though she may be young, her little body is aging rapidly and she suffers ( painfully ) what most people take a life time to feel in old age.She is currently taking several different medications daily. Parents are George & Cheryl Weaver and sister Bonnie, twelve years old.Your our precious angel and gift from God Jennifer & we love you more then words can express.We are truly blessed to have you in our lives.Thankyou Lord for this precious child!!!!! You are a true insperation to us all Jennifer!!!We are very proud of you.October 2007, diagnosed with a somatrophin deficiency.::::::::::::::::::::::::::
February 1st/2009 6:10p.m.
STARTED HAVING SEIZURES!!
I Have Hurt A Thousand Times,
But Smiled Away The Pain.
I Am Courage.

I Have Faced Impossible Odds,
And Won.
I Am Determination.

When No One Would Listen To Me,
I Trusted In God.
I am Faith.

I Have Put My Life,
In Others Hands.
I am Trust.

I have Shared My Story,
To help Others.
I Am Inspiration.

I Have Fallen Many Times,
But I Always Get up.
I am Strength.

I Know That A Day Will Come,
When My Pain Will Be Gone.
I Am Hope.

I Am Courage
I am Determination
I am Faith
I Am Trust
I Am Inspiration
I Am Strength
I Am Hope

I AM JENNIFER!!


Birthday is 03/20/1985






WE LOVE & MISS YOU JEFFERY,REST IN PEACE www.caringbridge.org/fl/jeffery


REMEMBER: If this is your first time visiting or your 100th, please sign the guest book. Jennifer LOVES to read and keep all the messages in braille.THANKYOU & GOD BLESS YOU!!


CHECK OUT THESE WONDERFUL SITES!

www.online-angels.org
www.angelsofdestiny.net
www.netwish.org
www.blanketministry.com/prayerblanket.html

FOR FINANCIAL ASSISTANCE WITH MEDICAL BILLS,TRY:

http://groups.yahoo.com/group/getorgivemoney/




PLEASE VISIT THE PHOTO PAGE TO SEE A
PICTURE OF JENNIFER'S ROSARY'S,THAT
SHE HAS LOVINGLY HANDCRAFTED.THEY
HAVE BEEN BLESSED BY A PRIEST & ARE
AVAILABLE UPON REQUEST TO ANYONE
WHO REQUESTS ONE.MAY GOD BLESS YOU.


****HAPPY HAPPY 23rd BIRTHDAY JENNIFER****
( MARCH 20th )

Journal

Sunday, February 8, 2009 11:26 PM CST

This has been a terrible week
for our family. Last Saturday
Jennifer had a really bad bad
seizure.It was around 6:10 p.m.,
we had some friends over for a
visit.while we were talking, one
of our guests, Larry,looked
over at Jennifer who was sitting
on the stairs. He shouted that
Jennifer was having a seizure.
At first we really did not believe
him and thought that mabey she was
just stretching. Then he yelled
loudly that she was having a
seizure.At that moment, I heard
Jennifer make a gurgle sound and
her dad heard her thump onto the stairs.

Both her dad and I went running at the
same time. I got to her about a second
before him. I saw that she had vomitted
and was choking on it, so I grabbed
her arms and pulled her forward.The
next thing I knew, her dad shoved me
out of the way and called for me to call
911.

from this point on everything happened so fast.
I ran for the phone, but could not find it,
so I ran for the one in the kitchen. We found
out later that I could not find the phone
because Jennifer herself had it, in the
pocket of the robe she was carrying.
Anyway, I called 911 and they kept me on
the phone until the fire dept and ambulance
arrived.The seizue last about four minutes
and was really really bad.She was not
really herself for a while after that.
They stuck me in the front of the ambulance
and worked on Jennifer all the way there.
Dad followed in the car.

she had been complaining all day of feeling
weak, shakey and of having a bad headache.
In the hospital, after SEVERAL hours, they
got her stable and sent her home with more
meds.The really scary part is that they do
not know why this happened or if or when
it will happen again.seizures and the cause
of them, do not show up on tests all the
time.I don't mind saying that it really
scared the hell out of her dad and I.Thank
God that her sister Bonnie did not see it.
she was down the street at a friend house.

now the hard part begins.This past week,
she has seen two different doctors and
begun testing.Tomorrow a.m., she goes in for
fasting blood work. For right now anyway,
Jennifer is under 24 hour watch. The seizure
is scary enough, but the vomitting is what
worries us. Had no one been here, she would
choked to death on her own vomit. It
really scared Jennifer also, because,in the
past two years, she has lost, seven special
needs friends.She broke our hearts,
when she told us at the hospital that she
did not want to die.I just put my head down and
cried.Dad cheered her up and started to make
jokes.

A special thanks to Larry and Judy for staying
with Bonnie all night and for being here for us.
Also to Bonnie, who, poor girl, was left to
clean up all the vomit, of which there
was ALOT.

Please everyone, keep Jennifer in your prayers,
she is a very very sick little girl.

peace
oxo

Read Journal History

Hospital Information:

Patient Room: PLEASE SEND CARDS & LETTERS TO:

Miss Jennifer Elizabeth Weaver
1152 South Confederate Drive
Lake WildWood, Macon, Georgia,31220
478-477-8044

Links:

E-mail Author: weaver_cheryl@yahoo.com , ceweaver@cox.net

---

 

Your gift will help millions of people stay connected with friends and loved ones during challenging times.

---

 

This page has been viewed 22098 times.

Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent.  This information does not confirm that anyone is or was actually a patient at any facility.