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JEN & JON'S TRANSPLANT JOURNEY 
Welcome to our Web Page.
It is to keep family
and friends updated about Jen & Jon.
We were blessed with our daughter who had an undefined liver disease that was diagnosed at 4 weeks old. Several years later our son was born with the same liver disease. In 1992 both kids were listed for liver transplants.
Jen received her first liver transplant but had many complications which led to her needing a second transplant years later. She experienced acute kidney failure after both liver transplants requiring temporary dialysis and as a result her kidney function is now watched as closely as her liver function. We are praying that she will not ever need a kidney transplant.
Jon received his liver transplant and did very well for a number of years. Several years ago a liver biopsy showed advanced scarring in his liver from yet another liver disease. So not only did he battle liver disease as a baby but he also endured a second battle from liver disease as a teenager. He suffered severe complications during treatment for the second liver disease, some physical and some emotional. It was an extremely difficult time but it appears that the treatment was successful. He does still have advanced scarring in his liver but because his treatment was successful the scarring in his liver should not continue to progress to the point of needing a second transplant.
Jen is now attending college, on 6 meds, has lab work every 8 weeks & sees the transplant team every 6 months. She does some experience side effects from the medications she takes to prevent rejection. One of the side effects is that she has cataracts but does not yet need surgery to remove them.
Jon is a high school senior, is on 5 meds, has lab work every 8 weeks, sees the hepatologist every 3 months and the transplant team as needed. He does go to therapy regularly to help him deal with the emotional trauma that came from going through treatment for his second liver disease. At this time we are not expecting that he will need a second liver transplant.
As a family we know that whatever the future has in store for us the Lord will help us through it. We praise the Lord for all the many blessing he has bestowed on our family. We are a very blessed family to have received the Gift of Life 3 times over.
FUND RAISING INFORMATION
We don't have any fund raising events going on at the current time. We will always have a need for funds for their transplant related medical expenses as these expenses are life long. The kids uninsured medical expenses are at least $10,000 per year. As of summer of 2008 their account is down to $10. We will post a note as future events are scheduled. In the meantime, if you feel led to donate, online contributions can now be made at the NTAF website. The address is www.transplantfund.org and select liver from the drop down menu then go to the L section to find Jen and Jon's page to donate.
THANK YOU ALL FOR YOUR SUPPORT, whether it's donations, prayers or you are thinking of Jen & Jon. We appreciate it all. May God bless you all.
Creative Spiritz
Journal
Sunday, August 31, 2008 7:15 PM CDT We are still asking for prayer for Jen to find a direction for college and future career. She is going through a tough time right now and could really use some prayers sent her way.
Read Journal History
Hospital Information: Patient Room: Both kids are home! Jen or Jon
PO Box 1948
Chatsworth, GA 30705
Links:
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