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Sir Ian's Page 
Welcome to our site... I hope to update this daily. Ian is four years old and has been diagnosed with a very rare immune disorder called Wiskott Aldrich Syndrome. The only cure is a bone marrow transplant. We were told without this transplant death is certain. We started coming to Duke Hospital on a an outpatient basis in January. Since March 7th we have been here every day with a few weekend trips home but March 27th was our last trip home and we miss home very much. We came inpatient on April 13th and on April 14th Ian started the first of eight days of strong chemo to kill his existing immune system then on April 23th we had our cord blood transplant. We are told depending on his counts we would be here a minimum of 100 days and could be longer....The follow up treatment will start the day we are "discharged" from the Bone Marrow Unit and will last for at least a year. We have wonderful insurance but the out of pocket expenses are many...and as we go outpatient they will be even greater as we start covering many of the co pays for the medications and daily clinic visits. To help with these expenses we have set up a fund named: The Ian McGahee Fund and donations can be sent to:
South Bend United Methodist Church
3512 Clarkesbridge Rd
Gainesville, GA 30506
Mark on check "Ian McGahee Fund"
any amount is greatly appreciated and I ask the Lord bless each one of you who give and pray for us!!!
Thanks again for all your emails and most of all thanks to all who pray for us!!!!
Journal
Thursday, June 23, 2005 2:36 PM CDT Hi everyone,
Just a note to say THANK YOU to each person who loves & cares about Ian and our family. The journey was very long and very very hard but it ended (not as I prayed & prayed it would but as God wanted it to) Ian was exactly where he wanted to be in my arms - with me holding him as I always did...I told him as he went from my arms to the arms of Jesus that he was not alone for he was taking the best part of me with him...The service was "beautiful" if that is the word - he had the most important people in his life there right beside him and we played his songs & I read to him his favorite book (I love you more). He left with "Rocking Robin on the CD player and balloons being sent to heaven with him. I told him that day that I could no longer touch his physical body after I gave him the last kiss on his precious little lips but that I would kiss him each morning & kiss him each night & as he knows I tell him I love him a thousand times a day. The peace is that I know he hears me and feels my love to. He is the most amazing little boy that I will ever know & I know he lives on in heaven but as for me....no words can say. Ian as a very nice man said to me was like cutting off my right arm & I said "No" it is like cutting out my heart...for it went with him to heaven - you know. Ian & I did everything together...so not one thing in my life has been left untouched by his leaving. I miss him every second of each day. When the phone rings - Ian would always want to answer it, when we would take off the garbage we would complain at the smell, when the kids are all around - I panic to find Ian and he is not there, when I try to sleep (5 & half years) he was always there...I ask GOD how am I to do this???? I seem to wonder from room to room. I go to Momma's then home & back again...I seem to be walking in such an empty place..after not being home in a year & half It seems to be that without Ian - I have landed on a far away planet with no understanding in sight. Just please continue to pray for me & my family (my Momma still needs that miracle that Ian did not get). Pray that even though I know my precious son in with Jesus that he will allow Ian to come back & let me know that he is okay & that he still feels my love & that he is building our Mansion for he is waiting on me. I say to people "I know you love Ian but you don't understand" Ian was everything to me. Every minute of everyday so this is beyond any pain anyone could even imagine. I need your prayers more than ever.
With love
Sir Ian's Mommie
***I love you Ian so much to heaven & back & back again.***
Read Journal History
Hospital Information: Patient Room: 5307 Duke Pediatric Bone Marrow and Stem Cell Transplant
Duke University Medical Center Room 5200
27705
919 681-5307
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