Welcome to Chloe's Web Page. It has been provided to keep people updated about Chloe.

Chloe was born on June 29, 2004 at 7:59 a.m. weighing 6lbs 5oz and inches long. She was born with the cord around her neck and took a little bit to start breathing. She spent about 4 days in the NICU where she was discovered to have reflux.

We went home and she was a normal baby until she started having seizures at about a month old. She was having complex partial seizures. Chloe has had several MRIs, CAT scans, and EEGs. The MRIs and CAT scans were all normal but the EEGs confirmed the seizure activity. She was put through several trials of different medicines including Phenobarbital, Trileptal, Dilantin, Depakene, and Keppra. None of them controlled her seizures and in January of 2005 she was at her worst. She was having 14 to 15 seizures a day and was unable to drink a bottle. She was put in Children's for almost a month. No one could figure out why she was having seizures so she was given a muscle biopsy. At that time her neurologist also put her on ACTH steroids on a whim to see if it helps. It was the only thing that was able to stop her seizures.

The results of the muscle biopsy came back a few months later and she was confirmed to have a Mitochondrial Disease - Comlex I & IV deficiency. It is a genetic disease which affects the body's ability to produce energy. So now we know what was probably causing her seizures.

Journal

Wednesday, May 9, 2007 6:11 PM CDT

It has been such a long time since I updated this. I was busy getting married, buying a home, and starting work again. A lot has happened with Chloe. She is now crawling great and can pull to stand. If we stand her up she can stay there for a few seconds by herself. She is now able to eat pretty much anything as long as it is cut up for her. Chloe can finger feed herself if you put it in her hand or on her tray. She has been in daycare since October and I think it may be helping her to be around other children who are developing "normally". I plan to start her in the special education program at public school this fall. I have been seeing her making slow progress lately and I hope she keeps it up and am excited to see what happens.

Links:

E-mail Author: brandyand7@yahoo.com

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