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SYDNEY SIMS



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CHRISTMAS 2010

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FIRST DAY OF 7TH GRADE!!!!!


January 15,2004
Diagnosis  Neuroblastoma stage 4

January 20  May 2004  All Childrens Hospital, FL
4 high dose rounds of Cyclophosphamide, Doxorubicin, & Vincristine Chemotherapy
2 high dose rounds of Cisplatin & Etoposide Chemotherapy
Stem cell harvest

July 2, 2004  Memorial Sloan Kettering Cancer Center NY
Surgery  tumor resection, left adrenal gland, and lymph nodes

July 19,2004  MSKCC
1 high dose round of Cyclophosphamide, Topotecan, & Vincristine Chemo

September 2, 2004   MSKCC
Radiation to left femur  10 treatments
1 high dose round of Cyclophosphamide & Irinotecan Chemo

October 2004  MSKCC
***1st clean Bone Marrow biopsies (No Evidence of Disease)***
Only disease located in left femur
Began round 1 of 3f8 antibody treatment/GMCSF followed by Accutane

November 2004  MSKCC
Round 2 of 3f8/GMCSF followed by Accutane
Acquired HAMA (Human Anti-Mouse Antibody)
Successful Stem Cell harvest
Radiation to Skull 10 treatments
Radiation to Orbits 10 treatments
Radiation to Abdomin 10 treatments

February 21, 2005  MSKCC
Round 3 of 3f8/GMCSF
(Stopped treatment 3 days into it due to allergic reaction)
Continued on Accutane
Acquired HAMA again

April 17 2005  MSKCC
Completed round 5 of Accutane, stopped treatments  toxic

April 19,2005  MSKCC
Disease ***RELAPSE*** in Bone Marrow

April 25,2005 MSKCC
1 high dose round of Cyclophosphamide, Irinotecan, & Vincristine Chemo

May 31,2005  MSKCC
1 high dose round of Cyclophosphamide, Irinotecan, & Vincristine Chemo

June 2005  MSKCC
*** Bone Marrows   NED *****
Persistant spot in left femur
Began Low Dose Temodar Chemotherapy, Thalidomide, & celebrex (T.T.C.)
Completed 6 cycles

February 2006  MSKCC
MIBG scan results  Spot in Femur Appears to have intensified

March 16,2006  MSKCC
Radiation  (2nd time) Femur 7 high dose treatments

March 20,2006 MSKCC
1 high dose round of Irinotecan chemotherapy followed by
2 cycles of low dose T.T.C.

June 2006  All Childrens
Stopped Temodar chemo, (low blood counts)
Continued Thalidomide, Celebrex

September 25, 2006  MSKCC
Began round 1 of 3f8 antibody/ Beta Glucan

October 31, 2006  MSKCC
Round 2 of 3f8/beta glucan

December 5, 2006  MSKCC
Round 3 of 3f8/beta glucan  cut short 1 week due to HAMA

December 18,2006
Round 1 of Accutane

Jan 15, 2007
Round 2 of Accutane

February 12,2007
Round 3, 4, & 5 of Accutane, still HAMA
Disease remains in Femur  stable


May 2007
RELAPSE - SYdney has a new tumor on her aeorta behind her heart


June 2007
Surgery to remove new tumor, Chemotherapy - 5 rounds so far of Irinotecan/Temodar
Radiation - 10 "hits" to new tumor bed



December 2007
1/2 round (1 week) of Heat induced, High Dose 3F8 antibodies (12 Xs the strength of previous 3f8) Acquired HAMA after first week


January 2008
1 round low dose Temodar chemotherapy - marrow was too weak for it - took 6 weeks to recover, stopped chemo again

February 2008
Started Accutane for the 3rd time

APRIL 2008
Started Thalidomide and Celebrex again - completed 4 cycles

JULY 2008
Scans show stress fractures in Left Knee and left Tibia bones. All other disease - stable

AUGUST 2008
Starts 5th cycle of Celebrex and Thalidomide. Disease is stable in left femur - possible new spot in right hip (questionable)

SEPTEMBER 2008
Cycle 6 of Thalidomide?Celebrex>


OCTOBER 2008
High -Dose 3f8 - one round (12x's the normal dose)- HAMA positive after one cycle

NOVEMBER 2008
Started back on Thalidomide/Celebrex
Scans are still stable with only disease in Left Femur

JUNE 2009
Sydney continued on the Thalidomide/Celebrex combo every month since last November. Scans this month showed NED - No Evidence of Disease on the MIBG scan. First time EVER!!!!!!!!!!

JULY 2009
Sydney was the first patient ever to start the phase 1, new Neuroblastoma Vaccine protocol at MSKCC.

SEPTEMBER 2009
Sydney received her 4th injection of the NB Vaccine. Scans good and stable

NOVEMBER 2009
5th vaccine Inj. Scans


MARCH 2010
6th Vaccine Injection, scans still NED


July 2010
7th and FINAL NB VACCINE INJECTION!!!!! Still NED (1 year), Off Treatment for the first time ever since diagnosis!!!! Way To Go Sydney!!!



This is a summary of Sydneys cancer treatments ONLY.  It does not include the countless number of Blood Transfusions, CT scans, MIBG scans, Bone Marrow biopsies and surgical procedures, GCSF shots, antibiotics for infections, and many, many hospital stays.  She has been through A LOT, and she is go
ing to BEAT THIS CANCER!!!


Please sign the guestbook, so Sydney will know who is checking in on her!! We love to hear from everyone!!








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If you would like to make a donation to help the family with all of the extra expenses and suppliment the loss of income, a fund has been set up for that purpose.  It is called the Sydney Sims Family Fund.  Rhonda Spradlin, the trustee, set up the fund, and handles all of the transactions at Bank of America.  The fund helps the family pay some of their monthly bills, along with plane tickets and other expenses incurred during travel.  Checks can be made out to....Sims Family Fund and mailed to...  Trustee @ 2817 Durant Trails Blvd.   Dover, FL 33527
Thank You








Sydlets are bracelets, necklaces, and ear rings made by Sydney and her mom. They are made with Swarovski crystal beads complimented with a sterling silver awareness ribbon, so they can be worn proudly, and spread the word on pediatric cancer, and the brave warrior children, like Sydney, who fight everyday for their lives.
















































Journal

Friday, February 25, 2011 12:56 AM CST

We are finally finished with the hospital!!!!!
Yesterday started out rough with the MIBG scan. Her port was not working properly and they had to flush it multiple times. We finally got through that.
Then we had our visit with the endocrinologist for a consult of her late term side effects. It was hard to hear all of the possible horrible things she has to look forward to later on in life. There are so many late side effects, and each chemotherapy drug has different effects. Some affect the heart, liver, brain, hormones, bones, eyes, ears,etc. You name it, it can be affected later on in her life. Plus she is at high risk for developing other cancers.....DEPRESSING!!!! She had a 30 minute pulmonary function test, and we were out of there by 2.
We caught a cab and headed for Times Square. First we went to the Wax Museum. It was so much fun and we took tons of funny pictures with the stars. They are on FB. After that, we had some much needed retail therapy, followed by dinner at the Hard Rock Cafe. It was a great Girls night out!!!
Today we headed in early for her bone marrow biopsies. They went as expected and she had her first 4 immunizations while she was under. She is very sore now, but recovering nicely.
We have results for 2 of her scans so far.
The MRI says in a nutshell "no new disease". To me that implies that there is old disease, however her Dr says everything is ok.
The MIBG scan says "no MIBG Avid disease". Again, I am confused by that because it normally says, no evidence of disease.
Anyway, the way the person who ready the scan, words everything can be confusing. I will just go by what her Dr says and believe that she is healthy and has no disease.
We still are waiting on the biopsy results and the urine results..... sometime next week for that.
We fly home in the morning. Today will be spend in bed resting and recovering.
Thank you sooooo much for keeping Sydney in your prayers this week!!
Michelle

SORRY FOR THE DOUBLE POST FROM TODAY. I DIDN'T THINK THE OTHER ONE WORKED FROM THE HOSPITAL. OH WELL....

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Hospital Information:

(Home)
6488 Chadwell Ct
Indian Land, SC 29707
(Cell #813-310-5485)

Links:

http://www.loneliestroad.org  
http://www.sydlets.com  
http://www.cookiesforkidscancer.org  


 
 

E-mail Author: kasmic1@yahoo.com

 
 

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Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent.  This information does not confirm that anyone is or was actually a patient at any facility.
 
 
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