SYDNEY SIMS

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FIRST DAY OF 7TH GRADE!!!!!


January 15,2004
Diagnosis  Neuroblastoma stage 4

January 20  May 2004  All Childrens Hospital, FL
4 high dose rounds of Cyclophosphamide, Doxorubicin, & Vincristine Chemotherapy
2 high dose rounds of Cisplatin & Etoposide Chemotherapy
Stem cell harvest

July 2, 2004  Memorial Sloan Kettering Cancer Center NY
Surgery  tumor resection, left adrenal gland, and lymph nodes

July 19,2004  MSKCC
1 high dose round of Cyclophosphamide, Topotecan, & Vincristine Chemo

September 2, 2004   MSKCC
Radiation to left femur  10 treatments
1 high dose round of Cyclophosphamide & Irinotecan Chemo

October 2004  MSKCC
***1st clean Bone Marrow biopsies (No Evidence of Disease)***
Only disease located in left femur
Began round 1 of 3f8 antibody treatment/GMCSF followed by Accutane

November 2004  MSKCC
Round 2 of 3f8/GMCSF followed by Accutane
Acquired HAMA (Human Anti-Mouse Antibody)
Successful Stem Cell harvest
Radiation to Skull 10 treatments
Radiation to Orbits 10 treatments
Radiation to Abdomin 10 treatments

February 21, 2005  MSKCC
Round 3 of 3f8/GMCSF
(Stopped treatment 3 days into it due to allergic reaction)
Continued on Accutane
Acquired HAMA again

April 17 2005  MSKCC
Completed round 5 of Accutane, stopped treatments  toxic

April 19,2005  MSKCC
Disease ***RELAPSE*** in Bone Marrow

April 25,2005 MSKCC
1 high dose round of Cyclophosphamide, Irinotecan, & Vincristine Chemo

May 31,2005  MSKCC
1 high dose round of Cyclophosphamide, Irinotecan, & Vincristine Chemo

June 2005  MSKCC
*** Bone Marrows   NED *****
Persistant spot in left femur
Began Low Dose Temodar Chemotherapy, Thalidomide, & celebrex (T.T.C.)
Completed 6 cycles

February 2006  MSKCC
MIBG scan results  Spot in Femur Appears to have intensified

March 16,2006  MSKCC
Radiation  (2nd time) Femur 7 high dose treatments

March 20,2006 MSKCC
1 high dose round of Irinotecan chemotherapy followed by
2 cycles of low dose T.T.C.

June 2006  All Childrens
Stopped Temodar chemo, (low blood counts)
Continued Thalidomide, Celebrex

September 25, 2006  MSKCC
Began round 1 of 3f8 antibody/ Beta Glucan

October 31, 2006  MSKCC
Round 2 of 3f8/beta glucan

December 5, 2006  MSKCC
Round 3 of 3f8/beta glucan  cut short 1 week due to HAMA

December 18,2006
Round 1 of Accutane

Jan 15, 2007
Round 2 of Accutane

February 12,2007
Round 3, 4, & 5 of Accutane, still HAMA
Disease remains in Femur  stable


May 2007
RELAPSE - SYdney has a new tumor on her aeorta behind her heart


June 2007
Surgery to remove new tumor, Chemotherapy - 5 rounds so far of Irinotecan/Temodar
Radiation - 10 "hits" to new tumor bed



December 2007
1/2 round (1 week) of Heat induced, High Dose 3F8 antibodies (12 Xs the strength of previous 3f8) Acquired HAMA after first week


January 2008
1 round low dose Temodar chemotherapy - marrow was too weak for it - took 6 weeks to recover, stopped chemo again

February 2008
Started Accutane for the 3rd time

APRIL 2008
Started Thalidomide and Celebrex again - completed 4 cycles

JULY 2008
Scans show stress fractures in Left Knee and left Tibia bones. All other disease - stable

AUGUST 2008
Starts 5th cycle of Celebrex and Thalidomide. Disease is stable in left femur - possible new spot in right hip (questionable)

SEPTEMBER 2008
Cycle 6 of Thalidomide?Celebrex>


OCTOBER 2008
High -Dose 3f8 - one round (12x's the normal dose)


This is a summary of Sydneys cancer treatments ONLY.  It does not include the countless number of Blood Transfusions, CT scans, MIBG scans, Bone Marrow biopsies and surgical procedures, GCSF shots, antibiotics for infections, and many, many hospital stays.  She has been through A LOT, and she is go
ing to BEAT THIS CANCER!!!


Please sign the guestbook, so Sydney will know who is checking in on her!! We love to hear from everyone!!








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If you would like to make a donation to help the family with all of the extra expenses and suppliment the loss of income, a fund has been set up for that purpose.  It is called the Sydney Sims Family Fund.  Rhonda Spradlin, the trustee, set up the fund, and handles all of the transactions at Bank of America.  The fund helps the family pay some of their monthly bills, along with plane tickets and other expenses incurred during travel.  Checks can be made out to....Sims Family Fund and mailed to...  Trustee @ 2817 Durant Trails Blvd.   Dover, FL 33527
Thank You










Sydlets are bracelets, necklaces, and ear rings made by Sydney and her mom. They are made with Swarovski crystal beads complimented with a sterling silver awareness ribbon, so they can be worn proudly, and spread the word on pediatric cancer, and the brave warrior children, like Sydney, who fight everyday for their lives.























Check out the new Marathon line of Sydlets!!!

Journal

Sunday, November 30, 2008 7:29 AM CST

Hello,

It has been a while since my last post. The truth is that things have just been "normal" around here. We have been up to the regular day-to-day things that everyone else has. Sydney has not even been to the doctor in the last 2 weeks. Her blood counts have been stable, she is taking oral meds at night, and she is feeling great. School is good, cheerleading is so fun, and she serenades us every night practicing for her chorus concerts. She had one last week, and another this coming Tuesday. It is sort of scary to me how normal our lives are becoming. The "C" word is not mentioned very often anymore, and we are sort of pretending that it does not exist. However, my mind does not let me forget about it for long, nor does the reality of life. We will be flying to NY on Dec 9 for scans again. The anxiety is starting to build within me, as I kind of have this feeling of, "It's all too good to be true". We are enjoying each day to the fullest!!

We had a wonderful Thanksgiving. WE WERE HOME!!!! I cooked a huge dinner, that we are still eating, and probably will for the next few days. Kevin says that the leftovers get better each day. Over the past 4 Thanksgivings in the cancer world, we have spent 3 of them in NY. It just worked out that way. I always made a huge green bean casserole for the 150 people in the house, we would fight the crowds to see the Macy's parade, then we would always go to the movies that night with several other families. It was always fun, but this year, it was just so nice to be in our own home. We ate, watched football, and played the Wii.

The rest of this weekend has been busy getting ready for Christmas. We have been decorating the house (inside and out). We even did a little shopping. I just love this time of year, and we are sooooo enjoying the seasons. The fall leaves were so beautiful. Now, there are no leaves left, and the weather is cold. We use the fireplace every night, and it is so cozy. It is a welcomed change from the Florida weather.

This week will be busy too. Syd has a concert on Tuesday night, then Thursday night is the first BB game where she will be cheering. Also, I have 2 job interviews this week. We will be going out this afternoon to get our real Christmas tree. I can smell it already!!!!

Thanks for checking in on us, and I will try to keep the updates more frequent and regular!!!

Michelle

Read Journal History

Hospital Information:

Patient Room: 706

(Home) or Ronald Mc Donald House
(4105 Jade Lane) or 405 E. 73rd Street-room 511
(Valrico, Fl 33594) or New York, NY 10021
(Cell #813-310-5485) or 212-639-0100

Links:

E-mail Author: kasmic1@yahoo.com