Suryan had Alveolar RHABDOMYOSARCOMA Stage 4, he endured 30 months of treatment, 20 months of chemo, 4 months of radiation and countless times of hospitalizations.
Suryan inspired joy and promise in others by never giving up or giving into the cancer.
He lived each day as if it were his last, embracing life with a joyful abandon and passion for running, surfing, guitar playing and his love of learning at FSU. He left us with memories to laugh about, as well as moments to make us think. He embraced life; he embraced us; he left us wishing for one more day. Suryan will be deeply missed. but we are grateful that he touched our lives, and we are better people for having known him.
Suryan lost his battle on May 13, 2004 in my arms with his father at his side. It was his dream and ours that no future child or parent should ever have to endure the devastation this cancer causes without hope and promise for a cure. We are dedicated to that purpose in Suryan's name , that children that come after him will be able to survive this devastating cancer and have the promise of life.
He is off to catch the big wave!!!!!
For more information please click on the link below for a copy of our complete letter on this research.
Please send donations made out to
"Trustees of the University Of Pennsylvania"
Frederic G. Barr MD PHD Alveolar Rhabdomyosarcoma Research Fund Department of Pathology & Laboratory Medicine University of Pennsylvania School of Medicine 505C Stellar Chance Laboratory 422 Curie Blvd Philadelphia, PA 19104-6082
Sometimes it is just too painful to write. I took a 7 month break and everytime I went to the page , I couldn't even face writing anything. Yes, it is still painful losing your child even after 4 years. Sometimes I have good days and other times I miss Suryan so much . Last week, Stephen & I both realized that we were both crying in our cars because we missed his smiling face. He could light up a room faster than anyone I know. The holidays are coming up and I wish I could fast forward past them. Everyone is talking about familes and getting together and all we want is to get them over with. Here is to you my boy - I was still the luckiest Mom alive to have experienced such a joy of you.
I hope everyone is still working on raising funds for a Rhabo Cure as it won't happen without us working towards the goal.
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