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Sierra you are cuter then Tinker Bell with your beautiful sparkling smile You always make people feel happy doing it in your Sweet Sierra style Polly Pocket, Bratz and Barbie dolls dressed in red, blue, purple and pink Bring to mind such happy play times for our Sierra is what her friends think Sierra's favorite girl to watch on TV is a singer who plays different roles She is an everyday girl named Miley and also Hannah Montana I'm told But her all time favorite is Tinker Bell a little pixie with dust of pure gold Coming from an island called Neverland she is Peter Pan's companion of old "Second to the right, and straight on till morning" is how you get to Tinker Bell's Neverland So we hope you like the one we've created on Sierra's web page, we think it's grand However you came to Sierra's web page whether you flew or clicked on a link Please drop her a line in her guestbook Sierra thanks you and so does Tink!
Copyright ©2007Island Princess
Special needs child needs your help in Collecting Toys, Blankets, Books, etc to Deliver to our local Children's Hospital that she spends alot of time in each year! For more info on ways you can help please e-mail me or call Pixiechick1429@yahoo.com / 1-321-264-4238 For those of you who live closer we do have a Drop off point Historic District Storage was kind enough to Donate 2 storage units for Sierra's project all year long!!! They are newer so please help me pass the word around about them! Items can be dropped off at the location of 500 Minnie St - Titusville between 9 - 5 ask for Deanna, she is keeping items in a safe place until I can get there, or I could possible even meet you there! Their phone # is 1-321-269-3280. Also if you do not live close to us we can work out shipping arrangements ... so far lots of people are watching for good deals like at Disney.com they even had FREE shipping last week and great deals ... we have loaded up on blankets for 6.99 rather than $20 and people are just having them shipped directly to me! Please feel free to enjoy Sierra's webpage and get a hold of me with any questions! We look forward to meeting those who help us! Blessings & Many Thanks Shay ~ Sierra Journey Factor & Clinton Akery & Many other member of our Extended Family and Friends!
Sierra's Video Interview with Magic 107.7 on Valentine's Day 2008 for Children's Miracle Network! Click Here
SIERRA WAITS FOR WHEEL CHAIR READ STORY CLICK HERE
SIERRA IN PARADE ! READ ALL ABOUT IT ! CLICK HERE
SIERRA HELPS SPACE MISSIONS ! STORY RIGHT HERE ! (PAGE 3) NEED ADOBE READER CLICK HERE
Help Us Fight To get SMA put on the List for Newborn Screening Test at Birth SIGN THE PETITION CLICK HERE
This website has been created to help keep family friends and visitors updated on Sierra's progress
Hello ... for those of you who don't know me my name is Sierra Journey and I am 8 yrs old, I have Spinal Muscular Atrophy, Kidney Disease and Lung Disease ... thank you for coming to visit my page and to learn more about my condition . .... if you have any questions or wanna talk please e-mail my mom .....
Please come and check back on me often !
Sierra lived with her mother in a tiny white cottage just outside the town of Mulberry. Mulberry was known for it’s warm days and beautiful summer sun rays. Sierra’s front yard had no trees only a patch of yellow daisies and purple hydrangeas with strokes of baby blue. Of all the houses in town - the sun shinned the brightest right outside their little cottage because their were no pines or oak trees to shield away it’s rays. When her friends Molly and Emily came to play, they would dance in the warmth of the sun. Their shadows would frolic on the ground. When Sierra watched the girls dresses swaying upon the grass, she wished if but for a moment - she could dance too. Their shadows were so lovely and small. They kissed the daisies as they spun around like ballerinas. Sierra wasn’t sure if she liked her own shadow - it didn’t spin in the same way the other girls did. If Sierra wanted to dance with her shadow - she’d have to do it in her wheelchair. And besides, she didn’t think big shadows were anywhere near as beautiful as the smaller ones of Molly and Emily. She decided she would no longer play in the sun - she would just wait for it’s beams to fade.
One evening Sierra noticed a young girl admiring her mother’s flowers. One by the one the girl lifted the hydrangeas and the daisies into her nose and took a deep breath. Sierra had noticed new neighbors were moving into the house next door - the one with what seemed like thousands of big, tall trees. This must have been their daughter. Sierra decided to go out and make friends with her.
“So you live in the house next door. What’s your name?“ asked Sierra. “Angel.” replied the girl confidently. “Wow. You’re lucky. I wish we had all those beautiful trees!” Sierra said. “Yea, they’re awesome. You know what the best part of having those trees are? They make the most beautiful shadows.” whispered Angel. “Really? I always thought small shadows were the most beautiful shadows - because they can kiss the daisies as they dance.” Sierra answered - just a bit confused. Angel looked at Sierra and said “Really. My father says everything has a beauty all it’s own. True - small shadows can leap and bounce, kissing a few daisies here and there. But - big shadows can kiss the daisies and the hydrangeas at the same time.”
The next day, Sierra couldn’t wait to tell her Mom about her new friend. Her mother looked puzzled as Sierra shouted “I met the neighbor’s daughter. Her name is Angel. She is so cool!” “What daughter, honey? The Smith’s don’t have any children.” Sierra couldn’t believe what she was hearing. She strolled outside into the garden, looking across the field at the house with a thousand trees. Just then the wind blew. Sierra’s dress rustled in the breeze as the sun shinned below. Looking down Sierra saw her shadow - kissing both the daisies and the hydrangeas . . .along with a white feather that had fallen from the sky. It was unlike any feather she’d ever seen before. In fact, it looked a lot like an . . . Angel feather.From that moment on, Sierra loved her shadow. Although it wasn’t small like theother girls. Her shadow was uniquely her own. Beautiful in the way God made it. God >had blessed her with a shadow that could kiss every flower in the garden.
She spun her chair around and . . .she danced.
ANGEL JANE
*HUGS* TOTAL! give SIERRA more *HUGS*
Get hugs of your own
When You Wish Upon A Star Courtesy of LORRAINES MIDI PAGE
Journal
Saturday, February 21, 2009 3:19 PM CST We have found HOPE ~ Sierra's life and our lives are going to change for the better! As most of you knwo Sierra was born with a Terminal disease called SMA or Spinal Muscular Atrophy and then later on down the road she was diagnosed with 2 more Terminal diseases Lung and Kidney disease .. well HOPE HAS FINALLY COME ...
Sierra was accepted for Stem Cell Injections (Not THE BAD KIND!!!) in China .. so now we need everyones help to get her there .. to learn more check out the site that we set up dedicated to keeping everyone updated on Sierra's China Journey
http://www.myspace.com/SendSierra2China4StemCell
** We are asking for EVERYONE help this is a matter of life and death with our little girl .. those of you who have kids and even those of you that may not just yet know that you would do ANYTHING for your kids or those you love... we have to make this happen and with God behind us we know it will with the help of all of our friends!!
Do you have Delta Sky Miles?? Do you knwo someone that does?? DONATE THEM FOR A GREAT CAUSE ....
Delta Sky Miles well that account will not be set up until he flies somewhere so we have an account and have 15,000 sky miles donated so far and need 60,000 per ticket like 300,000 all together .. so now we do have an active account .. please help us get the word out!
Account name NORMAN AKERY
ACCOUNT # 2394838813
Thank you
Also we are still working on scraping together the 20% of the treatment cost that we have to have by WED so any help at all is VERY MUCH appreaciated!!
Remember you can donated at any WACHOVIA Bank location to SIERRA JOURNEY FACTOR TRUST!!!
Bless you all for helping Sierra
We have to make this happen for her!!
Read Journal History
Hospital Information: Arnold Palmer Hospital for Children 1414 Miller St Orlando Florida
Links: www.smasupport.com Learn About Spinal-Muscular-Atrophy www.hugsandhope.org Hugs and Hope www.fsma.prg Families of SMA
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