about CaringBridge  |  home page  |  view guestbook  |  view photos  |  read journal history  |  make a tribute donation
 
 

Welcome to Alyssa's Web Page. It has been provided to keep family and friends updated about Alyssa.

Diagnosis: MPS1H/S
A genetic lysosomal storage disorder caused by the body's inability to produce specific enzymes

Alyssa is 8 years old. She is a beautiful and A very intelligent little girl in spite of all her set backs. She is currently in home school. She is recieving enzyme replacement therapy every tuesday at the hospital. Mommy and Daddy couldn't be more proud of their "lil" princess. Alyssa is a HUGE fan of barney, baby bop and blues clue's. To learn more about Alyssa please visit the journal history.Thank you for visiting







Journal

Sunday, August 3, 2008 11:52 PM CDT

I know it's been along time since I updated. I've been really busy! Alyssa has been sick, she has been having alot of stomach issues. We are undergoing alot of test to try to find what is going on. Other than that she is doing well her vocabulary is improving, and she is starting homeschool this year. She is developing a very mature personality which is very cute. I will be sure to update once we have all the test complete and the results back. Thanks for checking on us!

Read Journal History


Sign and view the guestbook
Sign and View Guestbook

View personal photos

View Photos

Links:

http://www.nationalmpssociety.org   A site to inform people about MPS.
http://www.mpsforum.com   A site for parents, family and friends of someone with MPS/ML


 
 

E-mail Author: mpsmom622@yahoo.com

 
 

  Celebrate someone you love with a Tribute Gift to CaringBridge

Your gift will help millions of people stay connected with friends and loved ones during challenging times.


 

This page has been viewed 1496 times.

 

Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent.  This information does not confirm that anyone is or was actually a patient at any facility.
 
 
Copyright Policy  |  Privacy Policy  |  Terms of Use  |  Donate |  How to Help |  Contact Us  |  FAQs
Copyright © 1997-2005 CaringBridge, a nonprofit organization. All rights reserved.
 
Visit the Onvoy website