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Welcome to Alyssa's Web Page. It has been provided to keep family and friends updated about Alyssa.
Diagnosis: MPS1H/S A genetic lysosomal storage disorder caused by the body's inability to produce specific enzymes
Alyssa is 8 years old. She is a beautiful and A very intelligent little girl in spite of all her set backs. She is currently in home school. She is recieving enzyme replacement therapy every tuesday at the hospital. Mommy and Daddy couldn't be more proud of their "lil" princess. Alyssa is a HUGE fan of barney, baby bop and blues clue's. To learn more about Alyssa please visit the journal history.Thank you for visiting
Journal
Sunday, August 3, 2008 11:52 PM CDT I know it's been along time since I updated. I've been really busy! Alyssa has been sick, she has been having alot of stomach issues. We are undergoing alot of test to try to find what is going on. Other than that she is doing well her vocabulary is improving, and she is starting homeschool this year. She is developing a very mature personality which is very cute. I will be sure to update once we have all the test complete and the results back. Thanks for checking on us!
Read Journal History
Links: http://www.nationalmpssociety.org A site to inform people about MPS. http://www.mpsforum.com A site for parents, family and friends of someone with MPS/ML
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