Jillian Rose Lamparyk
^^Our Line Leader to Heaven^^

Welcome to Jillian's Web Page. Jillian was diagnosed with pre-b standard risk ALL (Acute Lymphoblastic Leukemia) on January 5, 2001 and relapsed on October 7, 2002. She received a cord blood transplant at Duke University Medical Center on December 24, 2002, but relapsed again on April 28, 2003. Her battle finally ended July 8, 2003, when she became an angel in God's Kingdom.

Journal

Friday, August 15, 2008 3:36 PM CDT

Several notable things have happened since our last update; most recently, Jillian’s Birthday… she would have turned 11 this past Monday Aug. 11th. We went to the cemetery and sent balloons up to her. We also did that on her heaven day, July 8th. This year’s dates all fall on the same days as in 2003. I (Ken) realized this around Father’s Day, which was also on June 15 five years ago. It’s still one of my fondest memories, and I still wear the bright yellow Sponge Bob t-shirt she gave me that day. Quite a few dates in late June and early July this year brought back bittersweet memories of those last couple of weeks that she was with us.

Laura’s marathon in Nashville on April 26th was a great success… she ran the whole 26.2 miles wearing Jillian's favorite Minnie Mouse hat in just under 5 hours, and raised $5,775 for the Leukemia & Lymphoma Society. See details at her race website My Marathon Site

2 weeks later, on May 13th, we were re-united with the doctors and staff at the Children’s Hospital in Ft. Myers as our radio station, WAVV-101.1 did a special fundraiser called “Jillian’s Angels”. We did a 6-hour live broadcast on-location from the hospital lobby, and all of our advertising proceeds from that day, plus additional donations were donated directly to the Pediatric Oncology Unit in Jillian’s memory. We had a very generous response, and raised just over $13,000 for them. I interviewed several parents and kids on the air, as well as Dr.’s Salman & McArthur and Nurse Debbie, Jillian’s immediate caretakers. Laura also did a live break. It was very gratifying for me, and great to get re-acquainted with all of them.

Nathan starts 2nd grade next Tuesday. He’s had a pretty good summer. He had a week at Horse Camp which he loved, and just got back from 2 weeks in Maine with his Grammie and cousins. We joined them the 2nd week.

Isabel is still crazy about him, but is discovering how to push his buttons. She’s a stubborn little thing, but also very loving, and funny when she’s in a good mood.

Nathan still tells everyone about his big sister in heaven. He’s very proud of her, and we of course are, too, and miss her as much as ever.

E-mail Author: llampary@msn.com

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