Welcome to Jacob's Page. Jacob was born with a very rare genetic muscle condition, known as X-linked, Myotubular Myopathy. Jacob has a tracheostomy through which he breathes and a g-tube for his nutrition. We are so lucky to be his parents. He is such a happy boy and brings much joy to our lives.







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Journal

Sunday, November 26, 2006 1:08 PM CST

Happy Holidays! I can't believe how quickly this year has passed. I hope everyone had a wonderful Thanksgiving weekend.

Jacob continues to do very well. He has been staying very healthy and is getting stronger. The worse time of year for Jacob (December-February) is approaching, so we are praying that we can keep him away from the hospital.

He is really loving school this year, and he is doing quite well. He is talking much better, which makes his experience much more fun. He is beginning to read and do simple addition. Go figure! He also finds it interesting to count by different factors, forward or backward. For instance, he will count backward from twenty by twos, or by tens to one hundred.

Finally, after almost a year of waiting, Jacob got his new power wheelchair. It will (should) last many years. I just don't know if my walls will! Seriously, he does very well in it.

Thanks for checking in on Jacob. I posted some new pics, also.

Take care!

Love,
Amanda, Dennis, and Jacob

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E-mail Author: hollingsworth02@earthlink.net

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