Angel - Delaney Natasha 2/4/02-2/24/08

Delaney was diagnosed January 19, 2005 with a chiasmic Optic Glioma (low-grade fibrillary astrocytoma, non-NF) extending to the hypothalamus and brain stem, hydrocephalus secondary to the tumor and failure to thrive. Over three years we went through 3 types of chemo, proton radiation, many MRI's and hospital stays. The cancer was beaten but complications of the side effects of chemo and radiation made life a bit more difficult. Delaney was forever healed February 24, 2008.





Life can only be understood backwards; but it must be lived forwards.





I saw what I saw by Sara Groves

I saw what I saw and I can't forget it
I heard what I heard and I can't go back
I know what I know and I can't deny it

Something on the road, cut me to the soul

Your pain has changed me
your dream inspires
your face a memory
your hope a fire
your courage asks me what I'm afraid of
and what I know of love

we've done what we've done and we can't erase it
we are what we are and it's more than enough
we have what we have but it's no substitution

Something on the road, cut me to the soul

Your pain has changed me
your dream inspires
your face a memory
your hope a fire
your courage asks me what I am made of
and what I know of love

I say what I say with no hesitation
I have what I have but I'm giving it up
I do what I do with deep conviction

something on the road, cut me to the soul

Your pain has changed me
your dreams inspire
your face a memory
your hope a fire

Your pain has changed me
your dream inspires
your face a memory
your hope a fire
your courage asks me what I’m afraid of
your courage asks me what I am made of
your courage asks me what I’m afraid of
and what I know of love
and what I know of God




Homesick by MercyMe
You're in a better place, I've heard a thousand times
And at least a thousand times I've rejoiced for you
But the reason why I'm broken, the reason why I cry
Is how long must I wait to be with you

I close my eyes and I see your face
If home's where my heart is then I'm out of place
Lord, won't you give me strength to make it through somehow
I've never been more homesick than now

Help me Lord cause I don't understand your ways
The reason why I wonder if I'll ever know
But, even if you showed me, the hurt would be the same
Cause I'm still here so far away from home

I close my eyes and I see your face
If home's where my heart is then I'm out of place
Lord, won't you give me strength to make it through somehow
I've never been more homesick than now

In Christ, there are no goodbyes
And in Christ, there is no end
So I'll hold onto Jesus with all that I have
To see you again
To see you again

And I close my eyes and I see your face
If home's where my heart is then I'm out of place
Lord, won't you give me strength to make it through somehow
Won't you give me strength to make it through somehow
Won't you give me strength to make it through somehow

I've never been more homesick than now

Journal

Wednesday, August 20, 2008

And the madness has begun….school madness that is. It was a little hard this year since Laney would have started her 1st day of 1st grade. I had requested this day off in January knowing that it would be the first day of school. Interestingly enough, I got a jury summons about a month ago for the same day (18th). I didn’t end up going to jury duty (my juror number was excused) nor did I take the day off. The older kids are veterans at the first day…no reason to stay home.

The week has been crazy to say the least and it’s only Wednesday. Cakes are being delivered at the beginning and the end of this week, church, school, parental homework (which = open checkbook and sign here), practices. Oh and can you throw work, cooking and laundry in there. Oh and just for good measure, here’s a hurricane!

Can I just say that sleep is overrated? I feel like the caffeine patch lady in Meet the Robinsons. AHHHH, Sorry!

And apparently as much as the schools “understand that money is tight” because “we’ve had to cut back too” it certainly doesn’t mean that parents get to cut back on our spending for school supplies/uniforms/memberships…no offense to any school personnel, BTW! Just venting!

Driving down the road I came across a song whose lyrics caught me a little off guard. The song is not about losing a child but it does express the desperation that you feel sometimes. Just the chorus:

I’ve talked to friends
Talked to myself
I’ve talked to God
I’ve prayed like hell
But I still miss you

I tried sober
I tried drinkin’
I’ve been strong and
I’ve been weak and
I still miss you

I’ve done everything, move on
Like I’m supposed to
But I’d give anything
For one more minute with you
I still miss you


Next month is September which means childhood cancer awareness month. Please prepare to be inundated by all of our sites to support great charities, foundations and such. Chili’s will again be supporting donations to St. Jude’s (as far as I have heard). The Children’s Cancer Center is doing some fund raising as well as places like the Pediatric Cancer Foundation. There are many others and if you only give to one…please do.

Love and prayers,
The ‘Baums

Hospital Information:

Forever Healed by Jesus

Links:

E-mail Author: mydessertdiva@gmail.com

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