Journal History
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Monday, May 1, 2006 8:11 AM CDT
Wednesday, February 15, 2006 8:02 AM CST
Tuesday, January 10, 2006 7:58 AM CST
Monday, December 19, 2005 7:25 AM CST
Monday, December 19, 2005 7:17 AM CST
Friday, November 18, 2005 8:27 AM CST
Wednesday, October 26, 2005 2:17 PM CDT
Thursday, September 22, 2005 8:08 AM CDT
Tuesday, August 2, 2005 6:57 AM CDT
Wednesday, July 27, 2005 3:16 PM CDT
Wednesday, July 6, 2005 2:16 PM CDT
Thursday, June 2, 2005 9:07 AM CDT
Wednesday, May 25, 2005 6:46 PM CDT
Saturday, May 7, 2005 8:17 PM CDT
Monday, April 11, 2005 7:02 PM CDT
Sunday, March 13, 2005 2:24 PM CST
Wednesday, February 16, 2005 6:42 AM CST
Wednesday, February 2, 2005 6:54 PM CST
Sunday, January 23, 2005 3:32 PM CST
Sunday, January 23, 2005 3:28 PM CST
Sunday, January 2, 2005 12:47 AM CST
Sunday, January 2, 2005 12:47 AM CST
Thursday, December 23, 2004 4:06 PM CST
Tuesday, December 21, 2004 10:18 AM CST
Hello,
Just wanted everyone to know that Christina is HOME!!!! Yeah!!!
I have to go back to Tampa today to get her medicines, but I will update with all the happenings of the past few days when I get back...
Thank you all for the support and prayers, you will never know how much it all means to our family..
Love, Sherry
Friday, December 17, 2004 9:47 PM CST
Friday Update....
Hello,
Nothing really new.. The sinus doctor said that the bacteria in her sinuses is not a type of bacteria that would cause pneumonia.. But they are thinking she has a type of pneumonia bacterial or viral or it still could be fungi.. But also the first spot on her lung that was biopsied 2 weeks ago is not connected to any of this.. So that means Christina is fighting 3 different things... So they now have her on 3 different meds... The transplant doctor said we should get to go home Monday or Tuesday.. They will either repeat the scan of her lungs on Sunday or Monday and then it will determine if she can go home.. Hopefully the scan will show an improvement.. She is still not needing any oxygen but she does get very short of breathe when she walks and she still starts coughing so bad she chokes..
So basically it is a waiting game to see if anything grows that they sent off and to see if any of these meds help...
Tomorrow Ashley has a gymnastics performance at 2:30 so Mike and I are going to go to that and Mike's mom is going to stay with Chris.. Christina did start throwing up tonight, I don't know what that was about, but if it continues then I probably will just stay here and Mike can video tape Ashley..
Christina's spirits were pretty good today, she had some visiters THANK YOU Charlene, Mary Jane and Jane Snow... And THANK you Hugs and HOpe for the beautiful ballons.. They sure did put a smile on her face and so did the visits...
When Christina started throwing up tonight it really scared her, it has been a while since she got sick like that.. I kept telling her she was o.k. That's all I could do..
Thank you all for the words of support and the prayers... I have been telling Christina about her messages...
Well, I guess that is about all..
Love, Sherry and Family
New update..
Christina had her prosedures done around 11:00 this morning... She made it through all of them o.k... She kind of scared the crap out of me right before they toke her back to the O.R .. Mike was not here yet, and she was upset over that and then she started coughing so bad she was choking and that scared her so much she almost passed out on me and then her nose started bleeding and all of this was happening in the rest room down the hall from the holding room she was in.. So I am standing ouside the door SCREAMING for a nurse.. any nurse, we needed a wheel chair and "the bucket" and she was so pale and shaking so bad she couldn't stand up... We finally got her back into her lodling room and she calmed down.. I think it was just a mixture of things that caused this, but all I know is that after almost 3 years of this nightmare I still PANIC and my legs got week and I know I was pale too... She was hyperventalating and so was I.. What a scene it must have been... Needless to say they felt like she was calm enough to go back and have her prosedures done..
The E.N.T doctors that did the sinus work said that they toke alot of the crap out of her sinus and that will all be sent off for fungi, viral and bacterial test and they also biopsied some of the tissue..
The lung part of the prosedure went well, they don't know anything yet, but she did need a little bit of oxygen for a while, but now she is on room air and she is holding stats around 95 to 98.. Which is pretty good for all that she went through today.. We have oxygen on stand by...
We will definatly be here through the weeken, past that we don't know..
Right now it is just a waiting game on all of these test... They also started her on another med..
Well, I better get back up to the room, she was sound asleep when I came down here, Mike is up there with her now...O.H. Mike did make it here in time to see her in recovery.. The resaon her wasn't here to start with is he went home last night to be with Ashley and they were not scheduled to do the prosedures until 2... But like I said they got moved to 11..
Thank you all for the words of encouragment and prayers... I will update again tommorrow...
Love, Sherry and Family
Hello,
Just a very quick update...
I am on the hospital computer right now.. Christina got admitted late last night with difficulty breathing... Ct Scan and x ray shows something very bad going on in her lungs... What it is we don't know... The doctors are competely stumped, so A LOT of different test are going to be run today.. She will also go in to surgery to have a biopsy of her sinus's and they are also going to flush her lungs out... That is were they put solution in her lungs and then suck it back out and then they will send that off to be tested too... Pretty much I DON"T have a clue as to what is going on all I know is Christina is very scared and so are all of us.... Please say an extra prayer for Christina, please let this be something controlable... What doesn't make sence is she had a chest x ray last Wedensday and nothing was there except the spot and now there are lines/smoke effect all through BOTH lungs... Her sinus are fully packed too...
I just can NOT decrible the feelings I am having... So much can run through your mind... It's enough to drive you insane...
Our Lap top is broke so I will update more when I know more... and I will let Christina know the messges that are left for her...
Thank you ALL again for your support and prayers..
Christina is in room 265 All Children's Hospital extention 2265 1-800-456-4543
Love, Sherry and Family
Thursday, December 16, 2004 8:58 PM CST
New update..
Christina had her prosedures done around 11:00 this morning... She made it through all of them o.k... She kind of scared the crap out of me right before they toke her back to the O.R .. Mike was not here yet, and she was upset over that and then she started coughing so bad she was choking and that scared her so much she almost passed out on me and then her nose started bleeding and all of this was happening in the rest room down the hall from the holding room she was in.. So I am standing ouside the door SCREAMING for a nurse.. any nurse, we needed a wheel chair and "the bucket" and she was so pale and shaking so bad she couldn't stand up... We finally got her back into her lodling room and she calmed down.. I think it was just a mixture of things that caused this, but all I know is that after almost 3 years of this nightmare I still PANIC and my legs got week and I know I was pale too... She was hyperventalating and so was I.. What a scene it must have been... Needless to say they felt like she was calm enough to go back and have her prosedures done..
The E.N.T doctors that did the sinus work said that they toke alot of the crap out of her sinus and that will all be sent off for fungi, viral and bacterial test and they also biopsied some of the tissue..
The lung part of the prosedure went well, they don't know anything yet, but she did need a little bit of oxygen for a while, but now she is on room air and she is holding stats around 95 to 98.. Which is pretty good for all that she went through today.. We have oxygen on stand by...
We will definatly be here through the weeken, past that we don't know..
Right now it is just a waiting game on all of these test... They also started her on another med..
Well, I better get back up to the room, she was sound asleep when I came down here, Mike is up there with her now...O.H. Mike did make it here in time to see her in recovery.. The resaon her wasn't here to start with is he went home last night to be with Ashley and they were not scheduled to do the prosedures until 2... But like I said they got moved to 11..
Thank you all for the words of encouragment and prayers... I will update again tommorrow...
Love, Sherry and Family
Hello,
Just a very quick update...
I am on the hospital computer right now.. Christina got admitted late last night with difficulty breathing... Ct Scan and x ray shows something very bad going on in her lungs... What it is we don't know... The doctors are competely stumped, so A LOT of different test are going to be run today.. She will also go in to surgery to have a biopsy of her sinus's and they are also going to flush her lungs out... That is were they put solution in her lungs and then suck it back out and then they will send that off to be tested too... Pretty much I DON"T have a clue as to what is going on all I know is Christina is very scared and so are all of us.... Please say an extra prayer for Christina, please let this be something controlable... What doesn't make sence is she had a chest x ray last Wedensday and nothing was there except the spot and now there are lines/smoke effect all through BOTH lungs... Her sinus are fully packed too...
I just can NOT decrible the feelings I am having... So much can run through your mind... It's enough to drive you insane...
Our Lap top is broke so I will update more when I know more... and I will let Christina know the messges that are left for her...
Thank you ALL again for your support and prayers..
Christina is in room 265 All Children's Hospital extention 2265 1-800-456-4543
Love, Sherry and Family
Wednesday, December 15, 2004 11:57 AM CST
Hello,
Just a very quick update...
I am on the hospital computer right now.. Christina got admitted late last night with difficulty breathing... Ct Scan and x ray shows something very bad going on in her lungs... What it is we don't know... The doctors are competely stumped, so A LOT of different test are going to be run today.. She will also go in to surgery to have a biopsy of her sinus's and they are also going to flush her lungs out... That is were they put solution in her lungs and then suck it back out and then they will send that off to be tested too... Pretty much I DON"T have a clue as to what is going on all I know is Christina is very scared and so are all of us.... Please say an extra prayer for Christina, please let this be something controlable... What doesn't make sence is she had a chest x ray last Wedensday and nothing was there except the spot and now there are lines/smoke effect all through BOTH lungs... Her sinus are fully packed too...
I just can NOT decrible the feelings I am having... So much can run through your mind... It's enough to drive you insane...
Our Lap top is broke so I will update more when I know more... and I will let Christina know the messges that are left for her...
Thank you ALL again for your support and prayers..
Christina is in room 265 All Children's Hospital extention 2265 1-800-456-4543
Love, Sherry and Family
Friday, December 10, 2004 6:29 PM CST
Friday, December 3, 2004 7:56 PM CST
Tuesday, November 30, 2004 7:41 PM CST
Wednesday, November 24, 2004 8:32 PM CST
Wednesday, November 10, 2004 6:24 PM CST
Saturday, October 30, 2004 9:53 AM CDT
Tuesday, October 12, 2004 5:39 PM CDT
Wednesday, September 29, 2004 2:32 PM CDT
Hello,
I am having to use our cousins computer at her house to update real quick...
As many might know we had a hurricane blow through Polk county sunday, we had no power for over 50 hrs and when power came back on we lost our phone and cable, so no internet either.... We all did fine.. It was So very scary.. We did have water coming in the house from the roof down into a hallway and Ashley's room, but it all can be fixed.. The MOST important thing is we ALL are O.k....
I will update when we finally have phone or cable back, which we have been told it could be a month...
I hope ALL who weathered the storm are all o.k. and I hope everyone else is doing good too...
Love, Sherry and Family
Wednesday, September 15, 2004 8:44 PM CDT
Sunday, September5, 2004 12:00 PM CDT
Thursday, August 26, 2004 10:29 AM CDT
Friday, August 13, 2004 8:59 AM CDT
Monday, August 2, 2004 12:15 AM CDT
Friday, July 30, 2004 3:33 PM CDT
Friday, July 23, 2004 8:53 PM CDT
Tuesday, July 13, 2004 7:03 PM CDT
Friday, July 2, 2004 5:57 PM CDT
Wednesday, June 30, 2004 12:38 AM CDT
Hello everyone this is Ashley christina's sister my mom wanted me to update her journal so you would know my sister is in the hospital nothing big she needed to get an Anti Viral medicene so we arent't Totally sure when shes going home but my mom's laptop is broke so she can't update but All is good. Thanks for signing her guestbook. Have a good day.
Monday, June 28, 2004 4:18 PM CDT
Wednesday, June 23, 2004 11:24 AM CDT
Thursday, June 10, 2004 11:46 AM CDT
Wednesday, June 2, 2004 12:08 AM CDT
Sunday, May 23, 2004 6:18 PM CDT
Wednesday, May 12, 2004 8:09 PM CDT
Wednesday, May 5, 2004 6:34 PM CDT
Wednesday, May 5, 2004 6:34 PM CDT
Tuesday, April 27, 2004 4:15 PM CDT
Friday, April 23, 2004 11:12 AM CDT
Wednesday, April 14, 2004 9:21 PM CDT
Saturday, April 10, 2004 8:19 PM CDT
Monday, April 5, 2004 8:38 PM CDT
Monday, March 29, 2004 6:55 PM CST
Wednesday, March 24, 2004 5:34 PM CST
Monday, March 15, 2004 8:10 AM CST
Wednesday, March 10, 2004 8:02 AM CST
Sunday, March 7, 2004 8:36 PM CST
Friday, March 5, 2004 10:00 PM CST
Friday, February 27, 2004 10:05 PM CST
Wednesday, February 18, 2004 1:38 PM CST
Friday, February 13, 2004 8:15 PM CST
Thursday, February 12, 2004 10:19 AM CST
Tuesday, February 10, 2004 1:41 PM CST
Monday, February 9, 2004 7:28 AM CST
Sunday, February 8, 2004 7:10 AM CST
SATURDAY, February 7, 2004 12:11 PM CST
Tuesday, February 3, 2004 1:12 PM CST
Thursday, January 29, 2004 11:39 AM CST
Saturday, January 24, 2004 10:43 AM CST
Sunday, January 18, 2004 7:10 PM CST
Thursday, January 15, 2004 8:17 pm CST
MINI UPDATE...
Christina and our family just learned of a friends relapse, her name is Casie Snow and she is such a wonderful, beautiful, full of life and love tennager who also has AML... She was just admitted yesterday and now they are talking about transplant... Please if you get a moment please stop by her page for words of encouragemant... I know she would be forever greatful...
All her friends went off to college this year and she had to stay behind because of the Cancer and now the relapse on top of it all, just really sucks... CHristina really adores her and Christina is very upset to here the news, but in CHristina fashion, she said "casie will be o.k. I know it" so there you have it....
Sunday, January 11, 2004 7:16 PM CST
Monday, January 5, 2004 12:31 AM CST
Sunday, December 28, 2003 6:55 PM CST
Sunday, December 21, 2003 9:33 PM CST
Saturday, December 13, 2003 3:11 PM CST
Sunday, December 7, 2003 8:50 AM CST
Monday, December 1, 2003 10:58 AM CST
Tuesday, November 25, 2003 6:11 PM CST
Wednesday, November 19, 2003 6:09 PM CST
Sunday, November 16, 2003 10:25 AM CST
Wednesday, November 12, 2003 3:39 PM CST
Sunday, November 9, 2003 11:02 AM CST
Tuesday, November 4, 2003 10:06 PM CST
Friday, October 31, 2003 10:36 PM CST
Mini Update: Day 68 in hospital Day 59 post transplant
Hello,
I just wanted to update real quick before the weekend...
Christina is doing well, she started taking all of her pills by mouth now, all with the exception of one morning dose which include 4 pills that smell like SKUNK....I am not kidding about the smell... She already takes them at night, and believe me when I say I am TOTALLY amazed she is able to take them.. She is awesome...
Well, I guess that's all for now, I will update over the weekend.. Mainly I just wanted to post her picture in her Halloween costume... Doesn't she make the cutest pumpkin ever...
She was not able to go trick or treating with the other kids, but she did get to watch the other kids go by in there costumes...
Hope everyone has a Happy and Safe Halloween Weekend..
Love, Sherry
This RingSurf Childhood Cancer Net Ring
owned by Christina's AML leaukemia Page.
Friday, October 24, 2003 4:00 PM CDT
This RingSurf Childhood Cancer Net Ring
owned by Christina's AML leaukemia Page.
Wednesday, October 22, 2003 9:43 AM CDT
This RingSurf Childhood Cancer Net Ring
owned by Christina's AML leaukemia Page.
Friday, October 17, 2003 10:35 CDT
Mini Update: Day 54 hospital Day 45 post transplant
Hello,
I just thought I would do a mini update before the weekend....
Christina is doing just about the same, she did get to go outside today on the roof top playground... She had to wear a special gown and mask, but hey at least she got to go outside for the first time in 54 days.... We wheeled her out there in a wheel chair, but then she got up and walked a little. So that was Good!!!!
As far as her blood pressure, it is not doing to good... It went Very High again last night so they gave her the stuff to make it go down, which made it drop pretty quick again... Her little body can't take much more of this.... They went ahead and gave her platelets last night because with her blood pressure going So high then dropping So low so fast it can cause bleeding in the brain.... Sometimes it is unreal the things we are being told that could happen...
So now they have Christina on a blood pressure med. that is a very small pill, that should keep her blood pressure more level...Please PRAY this helps and works... Like I said her body can't keep taking this shock... Her organs can't keep handling all of this.... And mentally I don't know if We can either.....
Well, I guess that’s all for now…Thank You again for everything….
Christina wanted me to tell EVERYONE who has been sending her cards and gifts THANK YOU!!!
So THANK YOU FROM CHRISTINA!!!! Like I have said before she Truly lights up when visitors come by and when it is mail time…. Thank You for putting a smile on her beautiful face…..
Love, Sherry
This RingSurf Childhood Cancer Net Ring
owned by Christina's AML leaukemia Page.
Monday, October 13, 2003 9:25 PM CDT
THE PICTURE OF CHRISTINA AND ASHLEY UP ABOVE WAS TAKEN ON SEPT 29TH.. THE GIRLS RECEIVED A GOODIE PACKAGE FROM MY BROTHER IN JAPAN...
This RingSurf Childhood Cancer Net Ring
owned by Christina's AML leaukemia Page.
Friday, October 10, 2003 9:14 AM CDT
CaringBridge is moving to a new web server on Saturday, October 11, 2003 from 3:00 p.m. to 6:00 p.m. CST. The move is necessary to update the technology to better serve you.
What does this mean for you? First, it will not change how you use CaringBridge for your day-to-day updates and/or viewing. Second, the CaringBridge Web site will not be available for use on 10/11/03 from 3:00 p.m. to 6:00 p.m. It may take up to 72 hours past the move date for you to be able to make updates. You will know the server change is complete once you are able to update your page with new journal and guestbook entries. Watch this page for the latest news on this change.
This is a temporary web site THANKS to Code_Blue for updates when caringbridge is down...THANK YOU CODE_BLUE_!!!
This RingSurf Childhood Cancer Net Ring
owned by Christina's AML leaukemia Page.
Tuesday, October 7, 2003 1:39 PM CDT
THE PICTURE OF CHRISTINA AND ASHLEY UP ABOVE WAS TAKEN ON SEPT 29TH.. THE GIRLS RECEIVED A GOODIE PACKAGE FROM MY BROTHER IN JAPAN...
This RingSurf Childhood Cancer Net Ring
owned by Christina's AML leaukemia Page.
Sunday, October 5, 2003 9:49 PM CDT
THE PICTURE OF CHRISTINA AND ASHLEY UP ABOVE WAS TAKEN ON SEPT 29TH.. THE GIRLS RECEIVED A GOODIE PACKAGE FROM MY BROTHER IN JAPAN...
This RingSurf Childhood Cancer Net Ring
owned by Christina's AML leaukemia Page.
Thursday, October 2, 2003 10:08 PM CDT
THE PICTURE OF CHRISTINA AND ASHLEY UP ABOVE WAS TAKEN ON SEPT 29TH.. THE GIRLS RECEIVED A GOODIE PACKAGE FROM MY BROTHER IN JAPAN...
DAY 30
Hello Everyone.
Well, Today when I wanted to sit down and update I was looking forward to be able to say things are improving… But, now it is 10:00 p.m. and Christina has been flirting with a fever again… So the doctor wanted blood draw to have cultured… Please pray that nothing grows in the cultures..
The past 3 days we have been making Christina get up and out of bed and go to the chair around 10 in the morning.. She has been doing very well with this.. She is still sleeping a lot, but she does wake up more often now… She did throw up today, we had hoped to go through a whole day with NO vomiting, but not yet… Christina is still on the pain pump, they had
been decreasing the amount she receives, but now they will keep it were it is… Christina has been very stern about them not lowering it anymore…Which is fine, she has a say in all of this too… We also make her get up again later in the evening usually around 6 pm for her daily bath, that she absolutely hates…
Well, Christina had her bone marrow aspiration done yesterday… They did the procedure here in her room… Ashley was over in the corner playing her video game and she asked if she needed to leave and I said No, Christina always sleeps right through it all… Well, MOM messed up on this one… Christina screamed in pain… Mike and I were in tears, I turned and looked at Ashley and she was as white as a Ghost… Christina has never had a problem with the aspirations before, I think the meds didn’t kick in fast enough and plus they used a larger biopsy needle than she is use to.. The doctor also said that sometimes after transplant, the aspiration feels different than before… I don’t know, All I know is that it was a terrible experience for ALL of US… I am just glad it is behind us now…
And now we wait…We will now have to wait 6 days to find out the results… Today went by really fast so maybe the next 6 days will…ya right…..ha ha…
O.k. Let’s see… The liver and kidneys are staying the same, unfortunately the doctors are changing the med for the CMV virus and this other med. Will effect her liver and kidneys.. So we will have to watch all of that again real closely… She is still needing blood about every 2 to 3 days and platelets 2x a day…Other than all that I think everything else is pretty much the same…
O.K. Now a Christina moment… Last night Ashley and I were saying our goodnights and goodbyes before heading to the RMH and out of the Blue Christina says “Ashley I love you” and even stranger than that is the fact that Ashley said “I love you” back to her… These 2 girls LOVE each other more than anything, but they NEVER say it… Mike said that Christina kept smiling and giggling all night over the fact that her sister said she loved her… She kept saying “Ashley said she loved me…”
I thought it was very special and cute… Sisters…they are so weird to each other…
Well, I guess that’s all for now, Christina is sleeping so I think I will call it a night too…
Thank you for the continual prayers and support, the words of encouragement left behind means a lot to the Whole family…..THANK YOU!!!
Love, Sherry
This RingSurf Childhood Cancer Net Ring
owned by Christina's AML leaukemia Page.
Tuesday, September 30, 2003 12:55 AM CDT
THE PICTURE OF CHRISTINA AND ASHLEY UP ABOVE WAS TAKEN ON SEPT 29TH.. THE GIRLS RECIEVED A GOODIE PACKAGE FROM MY BROTHER IN JAPAN...
DAY 28
I started this at 9:30 am.. It is now 1:30 and I am done.. However we just found out that the bone marrow aspiration will now be done TOMORROW….
Hello Everyone.
TODAY THEY ARE DOING THE BONE MARROW ASPIRATION!!!! YEA!!!!
Christina is doing well for the most part… O.k. I have to say it.. She is holding her own.. Nothing has really changed over the weekend, still a wait and see thing… The doctors did stop one of the antibiotics, she still spikes a fever every day after the anti -fungal med. So we all agree that the fevers are medicine induced.. Yesterday they also stopped the anti-fungal that was making her spike the fevers, so today will be a test… If she doesn’t spike a fever today we will know for sure that it was this anti-fungal med… She is still on a few other antibiotics and she is on the antiviral med. For the CMV virus.. They took more blood yesterday to run the test on the CMV virus again to see if this med. Has been helping… If it hasn’t helped then they will have to put her on a stronger one, which then puts her major organs at risk again… Speaking of that.. Her liver is still struggling and so are her kidneys.. The lab work keeps coming back the same, which is better than worse, but she is still way out of range.. We just hope that the levels will start coming down more on there own..
Christina immune system is doing awesome.. She has a higher ANC (immune system) now than she did when she was in remission.. But A LOT of that is due to the GCSF (white cell booster).. So when she reaches a certain level, they will stop the GCSF and usually the white count drops… So when they stop the GCSF after a few days we will then see what her TRUE immune system is, without the help of meds.. Then we wait and see if her white cells start producing on there own… White cells usually come back first, then red cells and platelets are always the last to recover…
O.k. Now today they are doing the bone marrow aspiration, It is 9:40 a.m. and I have not heard yet what time they are doing it… I did find out that it will take about 7 days to find out how many cells are HERS and how many cells are DONOR… All I know is that will be the longest 7 days of my life for sure…. I asked the doctors what are we hoping for, and she said a 100onor cells… Maybe 90/10... I wasn’t expecting that….
Ashley did get to meet her Big Buddy at the Children’s Cancer Center Saturday, she seemed really nice and Ashley liked her so that’s good… I don’t know if I had mentioned that Ashley and Christina both had a drawing that was picked for the 2004 Children’s Cancer Center Calendar… Christina’s drawing is for June and Ashley’s is for September… Yesterday they had a lunch and unavailing of the cards and calendars at a restaurant and Ashley and I went.. Christina was upset because she really wanted to be there.. I told her to start drawing now and maybe she will win again next year and she can be there next year…. Like saying any of that helped.. but I tried…
Christina did get to see a little of it on the news, because 3 news stations were there.. The Mayor of Tampa was even there…
Well, I guess that is all for now… I will post an update as soon as anything changes… Yes, even if it is later today… I am staying tonight so I will do a mini-update on how the bone marrow aspiration went…
Thank you for the continual prayers and support, the words of encouragement left behind means a lot to the Whole family…..THANK YOU!!!
Love, Sherry
This RingSurf Childhood Cancer Net Ring
owned by Christina's AML leaukemia Page.
Saturday, September 27, 2003 11:02 AM CDT
DAY 25
Hello Everyone.
Well, as usual Christina is still holding her own… I know I say this every time, but it is the only way I can describe how she is doing… It’s very hard to write she is getting better or she is doing good, because she is still a Very Sick Little girl… Even though things seem to be improving at times, the next day things might not be that great… You just learn to take the good moments and good news while it’s there, because you just never know… Her immune system is still improving with the help of the GCSF (white cell booster).. She is still needing blood and the platelets she is still getting twice a day… Christina has been still spiking a fever just about everyday, but we are thinking it is from the anti-fungal med. She is on… This is one of the meds she has a reaction to… The fever then goes away on its own later in the night… We really haven’t heard anything else on the results of the CMV virus… The doctor had a special test ran to see how much of the virus is running through her body… But like I said before she is already on an antiviral med. For it, but there are 2 other ones they can use if the virus is more prominent. So basically, it all is still a waiting game… The vomiting is still happening.. Christina is still sleeping a lot, but yesterday she was awake for a few hours off and on.. So that was an improvement…
One good note, is one of the lab/chemistry levels that was pretty high on her liver came down a little.. It is still way high, but it did come down, so that was exciting yesterday… So maybe her Kidneys and liver will start fixing themselves.. Because of the level coming down she doesn’t look as jaundice (yellow) today…
Well, I guess that’s all for now.. I am taking Ashley to the Children’s Cancer Center this afternoon for her to met her big buddy.. The Cancer Center pairs up the sibling with a 2nd year Med student from USF… Ashley and her new big buddy will do things together once a month… It’s a really nice program and it’s nice to see something special being done for the sibling of a child with cancer…. They go through a lot too….
I’m sitting here trying to think of a Christina moment and I don’t think there is one… It is driving me nuts!!! I miss hearing her voice…. The only thing I ever hear her say anymore is “Bucket” she says that when she is going to get sick… That’s me and Mike’s cue to get up and get the “Bucket”…And Ashley’s cue to leave the room ..ha ha… It’s amazing how Mike and I and even Ashley have become Mind readers… or face readers.. We can read a lot about Christina just by looking at her… But I STILL MISS HER BEAUTIFUL VOICE!!!
Thank you for the continual prayers and support, the words of encouragement left behind means a lot to the Whole family…..THANK YOU!!!
Love, Sherry
This RingSurf Childhood Cancer Net Ring
owned by Christina's AML leaukemia Page.
Thursday, September 25, 2003 10:00 PM CDT
DAY 23
Hello Everyone.
Christina is still holding her own…Some things have changed, some for the good some not….
Christina’s immune system is still improving with the help of GCSF(boosts her white cells), but she is still needing Blood and platelets those she still gets twice a day…. Christina spiked a fever yesterday, so they took blood for cultures, but like the last 4 weeks I don’t expect anything to grow… We will know more about this CMV virus tomorrow.. She is already on an antiviral for that, so it is already being taken care of…The vomiting unfortunately is still a major issue… The doctors are now trying a different combo of anti-nausea meds. Let’s ALL cross our fingers and toes that something will start working for her… She has NOT been herself for the past week and it is very hard to see…. I know I have to stay positive and so does Mike and Ashley, but it is Very hard when you sit here and look at her…. This is Not Christina…. We all want Christina back…
Christina is still having a problem with her Liver, they are running different test to see what is going on… Other than all of that, everything is pretty much the same…Just one big waiting game.. With a few bumps along the way….
Christina is still sleeping A lot, but today she did wake up in the afternoon and then again at 6 p.m. to play video BINGO… She got BINGO, but didn’t win the grand prize… That’s o.k. she still seemed to enjoy playing a little.. After Bingo she opened her mail from today…. Christina truly loves all of the cards and gifts and all the stickers she has been receiving in the cards… I am going to the store this weekend and I’m going to get her a sticker book… She has been rewarding the nurses with stickers too…
O.k. It still has been very tuff, but I have a Little Christina moment… Tonight is my 3rd night in a row staying…Mike went to take care of the clothes.. GOD love him, if he wants to do laundry more power to him…. I Love him for it….
Anyway, Christina ALL day today wouldn’t say anything to me, but anytime we would look eye to eye, she would give me the most warm/loving smile and it just made me feel so good, I just can’t explain it… And then tonight I tucked her in and she said “you have many stars in your eyes tonight Mommy”
Well, I guess that’s all for now… Day by day, hour by hour, minute by minute and somehow we make it…
Thank you for the continual prayers and support…
Love, Sherry
This RingSurf Childhood Cancer Net Ring
owned by Christina's AML leaukemia Page.
Tuesday, September 23, 2003 9:14 PM CDT
DAY +21
Hello Everyone.
Well, things have pretty much been staying the same… All of Christina’s lab/chemistry levels that were very high, have started to come down some… She is still a little jaundice…She is still way out of range on a lot of stuff, but staying the same or even improving a little bit is good news as far as I am concerned….Her blood work as far as the red blood, white blood and platelets are still struggling to improve.. She is still getting platelets twice a day…
We did find out today that she has the CMV virus in her blood… Over half the people in the world carry it and don’t even know it… Since Christina’s immune system got so low it showed it’s face… Kind of like the Ecoli that sent her to ICU last year…. Everyone has it in there body, it just comes out when our bodies are at there weakest… So Christina is being put on 2 new antibiotics…She is still on 5 of them, they are just switching 2 of them out… Christina had done good with the fevers for 3 days and then unfortunately tonight she spiked a fever over 101.5, so that meant they has to draw more blood for cultures… The doctor thinks this CMV virus is what is causing the fevers, but we won’t know for sure for a few days… I just asked the nurse and she said even if she test positive, after a few days of the antibiotics she should test negative… It is NOT something you can catch from being around her… And like I said it is something that is in all of our bodies and don’t even know it… And wouldn’t unless you had NO immune system…
Christina is still sleeping A LOT and still throwing up…. The doctors are now trying a totally different med for the vomiting… I just hope something helps her… I truly think that is why she is sleeping so much too… Every time she wakes up or moves she throws up… I would sleep too….
Christina still has the oxygen, she did have it off for a while today when I had her sitting in the chair for her bath… She is still using the Morphine, but that’s o.k. I don’t want her in any pain… She was able to come off the Morphine pretty easy last year when she was on it for so long… So that is not a worry…
Unfortunately, I don’t have a typical Christina moment to tell… She usually does something that makes you just light up, but the past few days she has just been really quiet and like I said sleeping A lot… I really hate when she is this quiet…It drives me NUTS!!!! She will still smile at me whenever I look over at her, but other than that she hasn’t said much… Of course she still wakes up to open the mail and that perks her up for a while, then off to sleep once again… She’s my Sleeping Beauty!!!!
Ashley is doing pretty good, it has been Very Hard to get in a home schooling routine, but we are trying… Ashley says Thank You to those who have sent her a card… She has been really good through all this, with Christina’s vomiting Ashley has to leave the room more than she gets to stay in there….
Mike has been wonderful as usual, I just could not imagine being here by myself… Mike and I say it all the time, that we just don’t see how some of the parent’s do it alone… I could not begin to imagine what this all would be like without Mike by my side… All of this is so mentally exhausting, you need someone to lean on and he is my rock… He is all of our Rock… We are still taking turns staying in the room with Chris and staying at the RMH house with Ashley at night… And then during the day we all 4 are together, the way it should be…. Our system works, that’s all that matters…
Well, I better go for now… I think I will take advantage of getting to bed early tonight…
Thank you for the continual prayers and support…
Love, Sherry
This RingSurf Childhood Cancer Net Ring
owned by Christina's AML leaukemia Page.
Sunday, September 21, 2003 10:36 PM CDT
DAY 19
Hello Everyone.
Christina is still fighting with all her might… The fevers are still there, but not as high as a few days ago… Unfortunately, the vomiting is still a major issue… She is still a little yellow (jaundice), but I think that is even starting to improve, some of her lab work is coming back either a little better or staying the same… All I have to say is that’s better than getting worse at this point.. Christina is still using the morphine pump a lot and she is still using the oxygen… She has just been sleeping a lot, and when I say a lot I mean 20/21 hours out of a 24 hour day… I think that maybe her body is trying to recover from the 2 weeks of Very restless sleep.. She dreams a lot and talks a lot in her sleep.. She has been having a lot of nightmares, to the point she is screaming and crying in her sleep… It scares the crap out of me, because I wake up to this not knowing what in the world is going on…
It is so hard to believe we have been her for 26 days already, the days are just running together..
I am nervous, yet excited about day 30, that’s when they will do a bone marrow biopsy to see if the transplant is working, to see how many of her cells are there and how many are donor cells….
Today, she tried watching some of the Buccaneers game, she would sleep on and off…And then after the game I gave her a bath and she perked up enough to look at some mail she got yesterday and she tried painting with me…
I guess that’s about all for now, Hopefully tomorrow will be a better day, that’s all I want…
Just for her to get better each day.. This is starting to get very mentally exhausting…
O.k… Here is a typical Christina moment…. Last night after I washed her down I was holding her hand kneeling in front of her… I kept telling her how strong and brave she was and how amazing I thought she was and that everything would be o.k. … I said a lot more things too… But then she looked straight at me and said “I love you Mommy and thank you so much for encouraging me” she said “I know everything will be alright because my Mommy says it will be”….
LORD PLEASE LET IT ALL BE ALRIGHT!!!!!
The new picture was taken on Sept, 20th, 2003...
If it was me in her shoes, I would be mad at the world… But NO Christina is still spreading LOVE and putting smiles on OUR faces… I Love you Christina…..
Love, Sherry
This RingSurf Childhood Cancer Net Ring
owned by Christina's AML leaukemia Page.
Friday, September 19, 2003 12:39 AM CDT
DAY +17
Hello Everyone.
Christina is still holding her own… The fluid situation is still an issue, but we have got her on a schedule of different meds to help level out her lab work…The ultra sound of the liver and kidney look O.k. but now she is turning yellow (jaundice) The doctor is pretty much stumped, her gallbladder is looking a little sluggish , so they will do an ultrasound on that too today.. A few things on her lab/blood work have went higher in the past 12 hours, so they are just watching everything closely…. I totally was not kidding when I said sometimes things happen day by day, hour by hour and even minute by minute… And of course it never fails you get one thing figured out and under control and then a whole other issue pops up….. It just doesn’t seem to ever slow down…
The vomiting is still happening and so are the fevers… The vomiting issue in my opinion, is from everything she is having put in her body…. This child at times has 6 different types of fluids/meds going into her body at once.. There is never a second that she doesn’t have something flowing into her…. And then not eating in 4 weeks on top of that, makes me want to vomit myself.. Just the thought of all that makes me sick…. YUCK!!!
Christina is still having to use her Morphine button quite a bit… She is still sleeping a lot.. She did play video bingo last night, she won bingo once and her name got put into a bucket for the grand-prize, but she didn’t win and boy did she ever get mad!!!! The Grand-prize was a football signed by the whole Buccaneers Team… Then yesterday afternoon, she was watching TV and all of a sudden she started yelling ”NO” and kind of whimpering and the nurse was in the room at the time, we both were like what is going on… We looked up at the TV and there was a commercial for ICEE’s , 7-11 convenience store has a new flavor out and she was having a break down because she couldn’t have one and it will be a year before she can have any ICEE’s or a fountain drinks again…
Christina is sleeping again right now, she woke up for a little while, but then she said she was going to take a nap before the mail got here and to make sure I wake her up as soon as it arrives…. She doesn’t stay on any type of schedule here… Time of the day doesn’t really mean anything here, but she sure does know when mail should be arriving… silly little girl……
The mail she has received has been so wonderful… There is just NO way to describe watching your child go through living HELL, but then for a little while you see the child she use to be, while she is opening the mail and packages… What a Blessing to see her SMILE… Thank you to the ones that have sent her cards and gifts… It truly makes a difference in Christina and Our whole Family…
THANK YOU!!!!
O.h. I keep forgetting to let you know that there is something going on with her lungs… The lower right lobe has a spot from what they see on the x-ray… This could be Fungus, Fluid or the lung is a little collapsed.. So, she is getting chest x-rays everyday right now to keep an eye on this…
Christina’s eyes look so bad it is unreal.. She is still receiving platelet transfusions twice a day…
I now have her in FBS (florida blood services) computer system…
IF YOU WOULD LIKE TO DONATE BLOOD OR PLATELETS FOR CHRISTINA, YOU NEED TO EMAIL ME YOUR NAME AND ONCE A WEEK I WILL GO TO THE FBS OFFICE AND ADD THE NAMES…. I HAVE TO ADD THE NAMES IN PERSON… BECAUSE I HAVE TO GO IN PERSON TO ADD THE NAMES I WILL COLLECT NAMES FOR A FEW DAYS THEN GO AN ADD THEM…TO FIND A LOCATION NEAR YOU PLEASE GO TO www.fbsblood.org YOU WILL FIND ALL THE INFO YOU NEED THERE…OR YOU CAN CALL THEM, THEY HAVE AN 800 #……TO DONATE PLATELETS YOU HAVE TO SCHEDULE AN APPOINTMENT…. THANK YOU SO MUCH TO THE ONES THAT HAVE ALREADY EMAILED ME….. EVERY BIT HELPS AND IF CHRISTINA DOESN’T USE THEM IN TIME THEY GO TO ANOTHER PERSON THAT REALLY NEEDS THEM… BY DOING THIS YOU ARE HELPING TO SAVE LIVES !!!
Thank you also for all the encouraging words that are being left behind for Christina and our Family… Reading the guest book entries is a bright spot in these long mentally hard days….
The picture I added to the top of the page was taken on Sept 15th, 2003.…
Lots of Love, Sherry
This RingSurf Childhood Cancer Net Ring
owned by Christina's AML leaukemia Page.
Wednesday, September 17, 2003 6:50 PM CDT
DAY 15
Hello Everyone.
It has been a VERY long few days again… I am not sure where to begin…
First, Christina is Very Sick right now.. But like usual her spirits are good.. All she wants to do is sleep. A few days ago we noticed that she was getting puffy, so the doctors have had her on lasix (to help her pee) so she can get rid of the extra fluid that is ballooning her up. Well, that is not helping much at all, she has now gained 14 pounds. She hasn’t eaten in 3 weeks all they have her on is fluids, so she is pretty much having a fluid overload. Because of all this fluid, she is now on Oxygen and she is having a Very difficult time going pee.. Even with all the lasix and other meds to help her kidneys..
Of course my worst fear is pneumonia, fluid in the heart and kidney damage…These are the things that are of Great concern right now.. Christina’s fevers still come and go, one hour her temp. is normal then an hour later it is 104. Or higher.. She is on 5 antibiotics and they have had to increase the continual morphine and the amount of morphine she gets when she pushes her button. I just can’t get over how swollen she is… Today she can’t really open her eyes, because they are swollen so much and when you can see her eyes, there is NO white around her pupils, it’s all very red and she has a lot of busted blood vessels there too… As far as pain I think the morphine is controlling it, the crappy thing is because they have her on so many meds. They have to turn her morphine off a few times a day because they have to use the line for other stuff. The doctors have talked about to a pic-line, which is a big IV in her leg, but Mike and I said NO to that.. She is already in discomfort, and if you put that in her leg, she will not want to get up out of bed at all.. So if they do need another line to run meds through, they will just put in a regular IV in the hand or arm.. She is not to thrilled about that either, but she can’t go without the Morphine..
The above update was done at 9:00 am this morning…..
It is now 5:15 pm ……
The game plan now is for Christina to have platelet transfusions twice a day to keep her platelet count up (platelets in your blood are what keeps you from bleeding out). Because her platelets are so low, this is what is causing her blood vessels in her eyes to pop. With the fever and everything else going on in her body, the platelets are just not lasting long at all.. And because her body is not technically rejecting the platelet transfusions Florida Blood Services will NOT send her specific blood type… WHAT CRAP!!!! So instead she will have to get 2 transfusions a day.. Which in return means MORE fluids!!! She needs the platelets, she has NO WHITE in her eyes. .NONE…She’s my BEAUTIFUL angel that looks like the Devil child now…
Christina also had a ultrasound of her Kidney and Liver and an echo of her Heart all today..
She is losing her strength everyday that passes.. We still make her walk all the way around her bed to go to the chair to be washed down.. Even those few steps are starting to get tricky… But she is determined, she still wants to do some stuff on her own with NO help.. She says out loud to herself “I can do it, I can do it” She keeps convincing herself that she can keep going.. She is a FIGHTER!!!
I still sit here and watch her with TOTAL AMAZEMENT… She is having to go through so much, but yet she is NOT complaining…….
O.k. now it is 6:50 pm…. I am eventually going to get done with this update sometime today…ha ha..
It just seems like it never ends.. Doctors, nurses and others have been in and out of here today, it has been unreal.. I think more people have listen to Christina’s lungs today than an average person has done in a lifetime… O.h. by the way yes, the fevers are still there and so is the vomiting….YUCK!!!!
Well, I think that is All for now.. I have to start updating everyday, because trying to catch up is hard to do… I’m sure I’m leaving something out, but that is not unusual for those who Know me….
Christina did want me to tell EVERYONE HELLO!!!! I read her journal entries to her everyday, sometimes a few times a day when new ones come in… Thank You so much for the encouraging words that are being left for Christina and our Family, It really Helps… The days are Very Long and it is nice to have encouragement and support… Right now the computer is OUR line to the outside world….
P.S. I AM GOING TO FLORIDA BLOOD SERVICES TO FILL OUT PAPERS FOR PEOPLE TO DONATE BLOOD AND PLATELETS FOR CHRISTINA… IN ORDER FOR YOU TO DONATE TO HER, I HAVE TO PUT YOUR NAME ON THE LIST TO GO IN THERE COMPUTER SYSTEM.. YOU CAN’T JUST GO AND SAY YOU WANT TO DONATE TO HER.. I HAVE TO GIVE THEM PERMISSION TO EXCEPT THE BLOOD/PLATELETS… SO IF YOU WOULD LIKE TO DONATE BLOOD OR PLATELETS FOR CHRISTINA JUST EMAIL ME PERSONALLY. (SUBJECT LINE: BLOOD/PLATELETS CHRISTINA) ANY (FBS) FLORIDA BLOOD SERVICE LOCATION IS FINE…. RIGHT NOW SHE IS NEEDING PLATELETS TWICE A DAY….
The picture I added to the top of the page was taken on Sept 15th, 2003.…
Lots of Love, Sherry
***********************************************************
This RingSurf Childhood Cancer Net Ring
owned by Christina's AML leaukemia Page.
FRIDAY, September 12, 2003 10:00 PM CDT
Another Mini Update: DAY 10
Christina is still running Very High fevers, they are hanging around 104.5 and higher
She is still sleeping alot, she wakes up to open her mail and to watch a little t.v. now and then, but mostly she sleeps.. That's O.K. her body is fighting on heck of a fight and let's all Pray that the new marrow wins this battle... She is now on 3 anibiotics and they have a cooling blanket on her to try and bring this fever down.. They are going to start her on anti-fungal antibiotics tonight also.. They also gave her some more Lasix to make her pee more because she is starting to puff up a lot..to much fluids with all her meds and blood and platelets etc... What a NIGHTMARE..can I please wake up NOW!!!!
Well, I gotta go.. She doesn't like the sound of me typing right now... Thank you so much for all the encouraging words in her journal entry.. On these VERY long days, it means A LOT to ME and CHRISTINA...
Love, Sherry
Wednesday,September 10, 2003 11:00
MINI UPDATE: DAY 8
Christina is now running a Fever, so she is on 2 antibiotics and is being watched very closely.. She did have to start the GCSF again, but we pushed her Morphine button before she got it and then again a few more times in between and she seemed to do O.K. It was a lower dose than what we had tried a few days ago... They did have to increase the dose of Morphine that she gets continuously because her whole body is hurting a lot more.. She is using the bedside potty and has not been very active in anything.. She did stay awake for a little while today, but the throwing up is still an issue, so the doctors are trying some other medicine for that... She has NO immune system so please say an extra prayer that these antibiotics do there jobs...
Thank You again for ALL the cards she is getting, Yes Deidre, she has been getting your cards, she just got the one with the smiley face sun thing.. VERY CUTE...
THANK YOU TO EVERYONE!!!!!
Well, I gotta go, Christina is sweating pretty bad right now so maybe she is trying to break this fever...Let's hope so, she won't take tyenol because it will just come right back up...YUCK!!!
Lots of Love and MANY THANKS, Sherry
Tuesday,September 9,2003 6:59 pm
DAY 7
Hello Everyone,
Well, It has been a few Very long days… Christina is now at day 7 post transplant and she is still holding her own. We thought that the whole throwing up issue and pain problems were resolved, but we were mistaken…
She still has her moments and she told me today that she sleeps all the time so she won’t throw up.. So pretty much all she is doing is sleeping and more sleeping… Which is O.k. her little body needs to rest and recover, but I really miss hearing her talk… Funny how 2 weeks ago her and her sister were fighting SO much and I just kept telling them to be quite and don’t talk to each other any more… And now the silence is driving me NUTS!!!! I want to hear her laughing, fighting or anything… I miss that.. She has laughed here and there, mostly when one of her favorite nurses comes in telling her crazy dog stories…
The doctor came in and looked at her today and said she doesn’t even look like a child who has just had a transplant. She said she almost looks to good, needless to say, you can take that 2 ways.. And of course my thinking was the bad… So I asked the new doctor who came from Sloan Kettering what she thought and she said that Christina’s body is doing everything it is suppose to be doing right now.. They said that we might not see any Graft vs. host until around day 14 or so…
The main objective right now is for Christina to stay as healthy as possible with no immune system..
Her body has been flirting with a temperature since last night, but it hasn’t gone high enough for them to do cultures and start antibiotics.. We hope and pray that the fevers and the infections stay away…
I have to bath Christina once a day and change her bed sheets and today when I was bathing her, she ran her hand through her hair and now her hair is starting to fall out… I started fake pouting and she looked at me and said “Mom you knew it was going to come out, so stop pouting..” And now that it is coming out, she thinks it is pretty finny to show me the hands full of hair, because she remembers from last year when it fell out, it use to turn my stomach… She would always say “hey Mom look” and then she would laugh, because she knew it drove me nuts… That’s Christina for you… ha ha..
The whole day she slept, but when she woke up she realized mail had come and the first thing she said was “where’s my mail” with a Big smile on her face… Obviously, she wasn’t asleep the whole time, or she wouldn’t have know the mail had been delivered… She is getting pretty sneaky, she lays there with her eyes closed, so you have to be careful with what you say… Sometimes all of a sudden you her something and she is either correcting us or putting in her 2 cents and then she rolls back over… silly child of mine…..
Well, I just keep going and going…. I guess that’s all for now…
Just remember the Transplant is just the beginning of a VERY long journey, One day at a time is how we are living right now… Even though I say she is having a good day, that might just mean she only threw up 5 times, instead of the 10 she did yesterday…
Lots of Love, Sherry
This RingSurf Childhood Cancer Net Ring
owned by Christina's AML leaukemia Page.
Friday, September 5, 2003 7:57 PM CDT
At 2:42 p.m Sept, 2, 2003 Christina received her cord blood transplant…THANK YOU VERY MUCH to the Donor who is out there somewhere that had a baby girl and was kind enough to donate the cord blood… MAY GOD BLESS YOU!!!!!!!
DAY 3
Hello Everyone,
Christina is holding her own, at least she is trying very hard to…The last time I updated she was still throwing up a lot, she is still getting sick but I think it has slowed down some.. She is just very weak and very tired, she is still not eating or drinking.. She will watch t v for awhile and then sleep again..
She has a Morphine pump now, because yesterday she had sat in the chair for a pretty long time and she had thrown up so much, that when she got back in bed and stretched out she had severe pain in her chest and stomach. She was screaming so loud and she kept asking her Daddy to help her and she kept saying she couldn’t breath… The hooked up the pulse ox machine and her oxygen levels were good… We think she just had really bad pains and she wound up having a panic attack and started hyperventilating.. Needless to say it was a VERY scary experience… And then to top it of it happened again tonight… SO our thinking is, Christina started getting this medicine called GCSF it stimulates the bone marrow anyway, she got the first dose last night around 5 and then within minutes she had the pain in her chest and that’s what happened again tonight… I still want a EKG and an echo done on her heart to be safe.. So the doctor is going to stop the GCSF for a few days to see how she does… If she gets no more chest pains, then it probably was the GCSF…
NEVER A DULL MOMENT!!!!!!!
Other than all that, the doctor said that all the lab work it looking good, as far as her kidneys and stuff like that… We did find out yesterday that they will not take bone marrow until DAY 30..
The doctor said even then her marrow will still show some of her own cells still there, but we hope to hear that more of the Donor cells are there, rather than hers… That’s the goal……
So we now just sit and wait…. And PRAY she starts grafting and does not get any infections in the meantime… One of the meds she is on for the throwing up makes her very moody… She wakes up crying sometimes and other times she wakes up with a smile on her face…
As usual through all of this Christina has a way of melting your heart… Last night/early this morning she had gotten up to go potty and then she was sitting on the side of her bed with her feet dangling and I asked her “did you realize that your sheets, comforter and nightgown all have stars in them” and she said “yes and you have stars in your eyes…” And she said it with such a loving, sincere look on her face… At that moment I just got up and held her tight… Why is this Amazing, beautiful, caring, loving, sweet child having to endure all of this horrific CRAP that she is enduring….. Somehow she keeps going and she keeps us going..
We did tell Christina about ^i^Brittany^i^ , I know it would have Just made things worse if she would have found out by accident or if we told her weeks later, she would have been very Angry with us.. We had promised her in the beginning that we would tell her everything, so that was a very had choice to make… I am glad we told her…. She knows that ^i^Brittany^i^ is taking good care of ^i^Taylor^i^…and she finds comfort in the fact that they are not alone up there.. They are together again and can play and run free…. And watch and protect us all down here…
^i^Taylor’s^i^ parents sent Christina a worry stone that says Angels are protecting You.. It use to be ^i^Taylor’s^i^… Christina keeps it under her pillow.. It means the World to her now… Thank You Angie and Jeff for sharing a little special piece of ^i^Taylor^i^ with Christina…
I wish all of you who come across this page through one way or another could have a chance to meet all of these AMAZING kids… The strength that they have is truly unbelievable… I am honored to know the ones I know… I feel blessed.. Even though we are going through all of this with Christina, the best thing that has happened is getting to meet these kids… Look at ^i^Brittany^i^, UNBELIEVABLE…. She truly is an inspiration… I will NEVER be the same after getting to know Her and Her Family.. Our Lives WILL forever be Changed.. Not just because we live with Cancer.. But we have the privilege to see some VERY courageous Kids and young Ladies…
Well, I have went on long enough…see this is what happens when I don’t update everyday ..ha ha…
O.h… Christina is featured this month on Make a Child Smile… The web site is www.makeachildsmile.org
THANK YOU TO ALL THAT HAVE BEEN SENDING CARDS AND GIFTS TO THE HOSPITAL… CHRISTINA TRULY LIGHTS UP WHEN THE MAIL COMES.. AND SHE DOES GET DOWN WHEN THE MAIL COMES AND THERE IS NOTHING FOR HER… MAKES FOR A LONG DAY… THANK YOU ALSO TO THE ONES THAT HAVE THOUGHT OF CHRISTINA’S SISTER ASHLEY.. SHE IS HERE TOO EXPERIENCING ALL OF THIS WITH US… AND IT REALLY, REALLY LIGHTS HER UP WHEN SHE GETS SOMETHING….
THANK YOU TO THE STUDENTS, STAFF, AND FAMILIES OF SCOTT LAKE ELEMENTARY SCHOOL FOR ALL THAT YOU HAVE DONE FOR US AND ALL THAT YOU CONTINUE TO DO FOR OUR FAMILY…. IT MEANS THE WORLD TO US….THANK YOU SO MUCH…..
Love, Sherry
This RingSurf Childhood Cancer Net Ring
owned by Christina's AML leaukemia Page.
Tuesday, September 2, 2003 10:05 PM CDT
At 2:42 p.m today Sept, 2, 2003 Christina received her cord blood transplant…THANK YOU VERY MUCH to the Donor who is out there somewhere that had a baby girl and was kind enough to donate the cord blood… MAY GOD BLESS YOU!!!!!!!
This RingSurf Childhood Cancer Net Ring
owned by Christina's AML leaukemia Page.
Tuesday, September 2, 2003 8:36 AM CDT
This RingSurf Childhood Cancer Net Ring
owned by Christina's AML leaukemia Page.
Sunday, August 31, 2003 10:50 PM CDT
This RingSurf Childhood Cancer Net Ring
owned by Christina's AML leaukemia Page.
Thursday, August 28, 2003 10:47 PM CDT
This RingSurf Childhood Cancer Net Ring
owned by Christina's AML leaukemia Page.
Wednesday, August 27, 2003 10:21 PM CDT
This RingSurf Childhood Cancer Net Ring
owned by Christina's AML leaukemia Page.
Monday, August 25, 2003 9:33 PM CDT
This RingSurf Childhood Cancer Net Ring
owned by Christina's AML leaukemia Page.
TUESDAY, August 19, 2003 9:16 PM CDT
This RingSurf Childhood Cancer Net Ring
owned by Christina's AML leaukemia Page.
Tuesday, August 12, 2003 6:15 PM CDT
This RingSurf Childhood Cancer Net Ring
owned by Christina's AML leaukemia Page.
Tuesday, August 5, 2003 8:33 AM CDT
This RingSurf Childhood Cancer Net Ring
owned by Christina's AML leaukemia Page.
Wednesday, July 23, 2003 2:52 PM CDT
This RingSurf Childhood Cancer Net Ring
owned by Christina's AML leaukemia Page.
Friday, July 18, 2003 12:54 AM CDT
THE COLLAGE OF PICTURES UP TOP IS FROM OUR TRIP TO TENNESSEE
This RingSurf Childhood Cancer Net Ring
owned by Christina's AML leaukemia Page.
Monday, July 14, 2003 9:10 AM CDT
THE COLLAGE OF PICTURES UP TOP IS FROM OUR TRIP TO TENNESSEE
This RingSurf Childhood Cancer Net Ring
owned by Christina's AML leaukemia Page.
Monday, July 7, 2003 4:36 PM CDT
This RingSurf Childhood Cancer Net Ring
owned by Christina's AML leaukemia Page.
Monday, June 30, 2003 12:38 PM CDT
This RingSurf Childhood Cancer Net Ring
owned by Christina's AML leaukemia Page.
Friday, June 20, 2003 8:46 AM CDT
This RingSurf Childhood Cancer Net Ring
owned by Christina's AML leaukemia Page.
Tuesday, June 17, 2003 3:20 PM CDT
Wednesday, June 11, 2003 7:36 PM CDT
Picture up top is from today when we took Christina to camp...
Hello,
I just wanted to let everyone know that we got Christina off to camp. It is already toooo quiet around here...
We had car problen on the way there, but we made it and then more car troubles on the way home. We slowly made it to Lakeland, we stopped off at a Discount Auto Parts because it was over heating so bad. We sat there for a while and then we finally made it home. We had to drive about 35 mph. But we made it...
Christina of course picked a top bunk. She was the first kid in her cabin there. She made her self right at home. We weren't even there an hour and she cut her finger with a pair of scissors. It took forever to stop bleeding, so we are calling her doctor tomorrow and have her fax a prescription for a CBC (blood work) for maybe Friday or Saturday. I hope she has a wonderful time..
Love, Sherry
MONDAY, JUNE 9, 2003
Hello Everyone,
Well, Christina went to clinic today for her blood work and it was not what we had hoped for. Her platelets had dropped from 71 to 39 which 71 wasn’t that great to begin with. Her ANC (immune system) dropped from 2400 to 700 which is not that great either. Her hemoglobin (red blood) dropped a little and so did her red blood count. So the doctor wants to do a bone marrow aspiration on Christina the day after she gets back from camp which will be the 17th so, on the 18th she will have the biopsy done. The doctor felt like she was good enough to be able to go to camp. We still don’t know if it is still the Rembrandts of the very aggressive chemo she had or if it is something else going on. I guess the bone marrow biopsy will maybe answer some questions and concerns. PLEASE keep praying for her…..
On a brighter note Christina does leave Wednesday the 11th to go to Boggy Creek Camp until the 17th. She is VERY excited about it. She keeps wanting to pack and I keep having to tell her I’ll take care of it, if I let her pack there would be no telling what she would take with her. Ha ha…..Boy, it sure will be quiet with her not here, she might have fun but I just don’t know about me… They won’t let the kids call home so, all I can do is send her mail. If any one else would like to send her mail while she is at camp the address is:
Christina Gates (yellow 11)
The Boggy Creek Gang Camp
30500 Brantley Branch Rd
Eustis, Fl 32736
I guess they say that mail time is pretty exciting to the kids. I’m going to get something out in the mail already tomorrow, with her only being there 6 days I want to make sure she gets something from me. Some of the Moms overnight stuff.
I’m sure she will have a lot to update on when she gets back home. They are suppose to have horseback riding, boating, fishing, art and crafts, theatre, and much more. Sounds pretty fun…I’m sure she will have a wonderful time. THANK you American Cancer Society……
Well, I guess that’s about all for now. I hate that I have to wait a week and a half for the marrow to be checked, but I’m just going to pray it is just a bug she might have gotten and that’s what’s effecting her marrow… Something simple like that would be nice……Hear me GOD something as simple as a cold maybe would be nice.
Thank You ALL for your continual Prayers, Thoughts and Support, it means a lot to our Family….
Love, Sherry
HELLO,
I’M GOING TO CAMP THIS WEEK. I KNOW MY MOM HAS TOLD YOU ALL ABOUT IT. I CAN’T WAIT. IT SOUNDS LIKE SO MUCH FUN. SOME OF MY CANCER FRIENDS WILL BE THERE TOO SO I HOPE TO SEE THEM THERE. I’M JUST SO HAPPY ABOUT CAMP, I THINK I CAN GO HORSE BACK RIDING EVERY MORNING. IF I CAN THAT IS WHAT I WILL DO. I HAVE NEVER BEEN HORSE BACK RIDING SO IT SHOULD BE FUN, I HOPE I GET A NICE HORSE TO RIDE I DON’T WANT TO GET KNOCKED OFF, THAT WOULD NOT BE GOOD..HA HA… MOM WOULD NOT LIKE THAT EITHER.
I WILL UPDATE WHEN I GET BACK HOME PROBABLY AFTER MY DOCTORS APPOINTMENT.
THANK YOU FOR WRITING ME AND SIGNING MY PAGE. WELL, I GOTTA GO BYE,
LOVE, CHRISTINA
Monday, June 9, 2003 8:11 PM CDT
Hello Everyone,
Well, Christina went to clinic today for her blood work and it was not what we had hoped for. Her platelets had dropped from 71 to 39 which 71 wasn’t that great to begin with. Her ANC (immune system) dropped from 2400 to 700 which is not that great either. Her hemoglobin (red blood) dropped a little and so did her red blood count. So the doctor wants to do a bone marrow aspiration on Christina the day after she gets back from camp which will be the 17th so, on the 18th she will have the biopsy done. The doctor felt like she was good enough to be able to go to camp. We still don’t know if it is still the Rembrandts of the very aggressive chemo she had or if it is something else going on. I guess the bone marrow biopsy will maybe answer some questions and concerns. PLEASE keep praying for her…..
On a brighter note Christina does leave Wednesday the 11th to go to Boggy Creek Camp until the 17th. She is VERY excited about it. She keeps wanting to pack and I keep having to tell her I’ll take care of it, if I let her pack there would be no telling what she would take with her. Ha ha…..Boy, it sure will be quiet with her not here, she might have fun but I just don’t know about me… They won’t let the kids call home so, all I can do is send her mail. If any one else would like to send her mail while she is at camp the address is:
Christina Gates (yellow 11)
The Boggy Creek Gang Camp
30500 Brantley Branch Rd
Eustis, Fl 32736
I guess they say that mail time is pretty exciting to the kids. I’m going to get something out in the mail already tomorrow, with her only being there 6 days I want to make sure she gets something from me. Some of the Moms overnight stuff.
I’m sure she will have a lot to update on when she gets back home. They are suppose to have horseback riding, boating, fishing, art and crafts, theatre, and much more. Sounds pretty fun…I’m sure she will have a wonderful time. THANK you American Cancer Society……
Well, I guess that’s about all for now. I hate that I have to wait a week and a half for the marrow to be checked, but I’m just going to pray it is just a bug she might have gotten and that’s what’s effecting her marrow… Something simple like that would be nice……Hear me GOD something as simple as a cold maybe would be nice.
Thank You ALL for your continual Prayers, Thoughts and Support, it means a lot to our Family….
Love, Sherry
HELLO,
I’M GOING TO CAMP THIS WEEK. I KNOW MY MOM HAS TOLD YOU ALL ABOUT IT. I CAN’T WAIT. IT SOUNDS LIKE SO MUCH FUN. SOME OF MY CANCER FRIENDS WILL BE THERE TOO SO I HOPE TO SEE THEM THERE. I’M JUST SO HAPPY ABOUT CAMP, I THINK I CAN GO HORSE BACK RIDING EVERY MORNING. IF I CAN THAT IS WHAT I WILL DO. I HAVE NEVER BEEN HORSE BACK RIDING SO IT SHOULD BE FUN, I HOPE I GET A NICE HORSE TO RIDE I DON’T WANT TO GET KNOCKED OFF, THAT WOULD NOT BE GOOD..HA HA… MOM WOULD NOT LIKE THAT EITHER.
I WILL UPDATE WHEN I GET BACK HOME PROBABLY AFTER MY DOCTORS APPOINTMENT.
THANK YOU FOR WRITING ME AND SIGNING MY PAGE. WELL, I GOTTA GO BYE,
LOVE, CHRISTINA
Monday, June 2, 2003 9:35 AM CDT
Tuesday 3rd, Mini Update: Just got a call from clinic they had to change Christina's app. to Monday the 9th. So I will update again after then.So cross your fingers for a good blood report on Monday...THANKS, Sherry
Hello Everyone,
Sorry it has been a while since I’ve updated, no real excuses. With Christina going a whole month with not getting her blood checked has been very trying for me. It might seem silly but, when you spent the last year of your life seeing her blood report 3 times a week and then down to once a week and now all of a sudden once a month is pretty hard. Christina is not worried at all, she is just happy go lucky with it all. She did go to clinic this past Thursday for her breathing treatment and she goes to clinic this Friday June 6th for her blood work. She is going on Ashley’s Birthday, we told Ashley we could change the appointment for Wednesday but, I think the child life therapist convinced her to let sisters app. Stay on the 6th that way they all can see Ashley on her Birthday. Which, I thought was sweet, they want to make it special for Ashley too. I can’t believe she is turning 11 yrs old. Boy time sure does fly by…
Well, we did go to the beach over Memorial day weekend and we all had a wonderful time. Basically me and the girls could become beach bums very, very easily. We got invited back to the beach house again in the middle of July, so I definitely think we will go again. Mike and I finally got the little 18ft by 4ft pool cleaned out a couple of weekends ago and we have the filter working good so the girls have been in the pool as much as possible. Basically all last summer we where in the hospital so every chance we get we are doing something outside. We all where outside people before Christina got sick but, I think we are becoming even more obsessed with being outside in the beautiful sunshine. Mike plays softball 2 nights a week so we got to that, he has been with this same team for 12 years. So it’s nice to get out in the evening and go watch them play. It’s so cute Christina always goes on the field at the end of the game and goes in line with her daddy’s team and claps the hands of the other team. I guess she thinks she is part of the team.
Yesterday the Children’s Cancer Center had a Mother’s Appreciation day, The dad’s and kids stayed at the Cancer Center and the Moms got to go to the International Mall for Lunch and then we all went in different directions for some well deserved pampering. I got a manicure and a pedicure, then I got my hair washed and styled and then I got a mini facial and make-up done. It was a Very relaxing day. I really enjoyed my self and I think the other mom’s did too. It was nice to get out and be a woman, not just a mom or wife. Then we went back to the Cancer Center and reality set back in as the kids come running up to me. Ha ha….. It was A Blast…. THANK YOU CHILDREN’S CANCER CENTER IN TAMPA FLORIDA..
Our Family truly LOVES all of you and all of you that HELP with the Center…
Through all that our family has gone through the Families we have met and some we haven’t met we have just talked to through this site have been such a blessing to us. As I sit here by myself right now I feel alone but, then I just think of all of you and I know I am not. It is just weird because as I walk through a store I feel so different from everyone else, my life definitely has changed but, even though it changed because of a Horrible Cancer trying to take my child away, it has changed me for the better. My life is better, my out look on life is better everything looks brighter even with the reality of knowing the cancer can come back at anytime. So strange……
O.k. I am rambling on, I guess I just had a lot to get of my chest… Thank you for listening….Because of ya’ll we can go on….Thank you all for your continued support and prayers.. Remember Friday keep your finger crossed for a GOOD blood report for Christina.
Please keep Christina’s friends in your prayer Brittany, Taylor , Jacob, Vanessa, and Emily. And all kids with cancer…..
Love, Sherry
Hello
Summer has been fun. Somedays are boring but other days are fun. Me and my sister have been playing in the pool a lot. It is not very big but it is big enough for us to have fun in. I had a good time at the beach it had been a long time since I went to the beach so it was nice. I can’t wait to go again. I go to camp on June 11 for a week. I think that will be fun too. I can’t wait.
Thank you for reading my page. I check it a lot everyday. Thank you for signing my page and thank you for signing my MAP. I am starting to get more states. I am glad my mom put that on there I think it is pretty neat. Friday is my sisters birthday we are not having a big party she is just having her friend spend the night.
Love CHRISTINA
Friday, May 23, 2003 2:21 PM CDT
Hello Everyone,
Well things have been pretty good for Christina and us. Last day of school was Wednesday, Ashley had her 5th Grade graduation. Christina was sad to see the school year end, because she had just finally got back in the routine of going to school and being around her school friends again.
So far it seems Christina is doing well physically she has had hardly no complaints, her feet still hurt but, the doctors say that should start to ease up as time goes by, it is just one of the side effects of all the aggressive chemo she had. Other than that she had been pretty active, actually she has been none stop.
I think her goal is to do everything double this summer because she missed out on everything last summer. She just doesn’t want to slow down at all. That’s O.K. After the year she has had, I say run child run…..
We had a little excitement today, a reporter from The Lakeland Ledger, our local newspaper, came over today to meet Christina and to talk to her about the trip to Hollywood. Christina is usually pretty shy (hard to believe)haha..but anyway, Christina rambled on and on. The article is suppose to be in this Thursday Ledger, in the Life section. I will add a link to this page when it comes out, so everyone can read it.
We are heading to the beach for the weekend, hard to believe we live about an hour and a half from the beaches and we haven’t been in about 2 years. We are going with friends to there family’s beach house, we will be staying Friday and Saturday night. It should be a lot of fun, I’m a sun worshiper so I know I will love it. The girls and I love to make sand castles and just play at the waters edge. It is stingray time so we have to be careful.
Well, I guess that’s about all, I will update after the beach trip, I will take a lot of pictures.
THANK YOU so much for continuing to Pray for Christina, we still need the marrow to recover fully. She still has a way to go on that. THANK YOU ALL who continue to sign her guest book, she really loves reading what everyone writes, she still checks it a dozen times a day.
PLEASE keep Christina’s friends in your prayers too. Brittany, Taylor, Emily, Jacob. EXTRA prayers needed for all these wonderful, amazing kids who are fighting so hard.
Thank you again for everything, so many people have been so amazing to our family, and I don’t think I will ever be able to say Thank you enough but, I’ll keep trying THANK YOU…..
Love, Sherry
Hello,
I wanted to say Hello and to let everyone know that I have been doing good. I am out of school for the summer. I’m glad it is summer but it has been raining every night. It is very hot during the day then it rains. I guess it is just like that here during the summer. I don’t have that much planned for the summer but, in the beginning of June I will be going to Boggey Creek Camp, near Orlando. It is through the American cancer society. I just get to go I can’t even talk to my mom and dad the whole time I am there. Some of my friends from the cancer center will be there but I don’t know if I will be in the same cabin with them I hope so. Then the last week of june me and Ashley get to go to Kite Camp at the children’s cancer center in tampa. Mom will have to take us and pick us up everyday but, it will be fun and my sister gets to go to this one too. We are suppose to go to Tennessee for the 4th of July. My Oma and Opa live there and we always went up there for the 4th of july but, last year we couldn’t go because the doctors where still trying to see what was wrong with me. 5 days after the 4th of july last year was when they told me I had Cancer. I can’t wait to go to Tennessee. We have a lot of fun there.
Well that’s all.. Thank you for signing my page. Love, christina
Friday, May 16, 2003 9:47 AM CDT
Hello Everyone,
Well, This week has gone by pretty fast. Christina is still doing good after her surgery. She has gone to school every day and hasn’t really complained about it.
School gets out on the 21st. So the kids don’t have much work to do. Christina got picked to be a patrol next year. Ashley was a patrol this year. So Christina thinks that’s pretty neat. Which with her being a patrol her grades have to stay up so that is a good incentive for her.
A lot of people have asked if Christina has got to jump in a pool yet. Well, she hasn’t, We did go to Sea World on Mother’s Day and we all got soaked by Shamau. Other than that she hasn’t got to jump in a pool yet. Maybe this weekend. By us going to Sea World this past weekend made Christina want to go to Discovery Cove even worse, so if anyone has any connections let me know. It’s very expensive but, I hear it is sooo worth it. They only let 1000 people in a day and you get to swim with Dolphins and other fish all day.. Sounds pretty awesome.
We went to the Children’s Cancer Center last night for our parents meeting. The kids love it, they get to run wild while us parents talk. I hate that it is only every other week. The families we have met are so special and wonderful. It is just hard to get together more often because we all live about an hour from each other. We talk on the phone and email but, it’s nice to sit down face to face for a visit. I would like to Thank the Children’s Cancer Center for giving us a place to meet.. THANK YOU!!!!
Well, I guess that’s about all for now, Thank you for keeping Christina and our Family in your Thoughts and Prayers.. We still need to pray for her marrow to fully recover, especially her Platelets.
Please say en extra prayer for Christina’s friends mainly Brittany, Emily and Jacob who are in the Hospital right now, and for Taylor who just got back from receiving some really intense radiation treatments. These kids are ALL so AMAZING and STRONG…..
Love, Sherry
Friday, May 9, 2003 7:30 AM CDT
Hello,
YEAH!!!!!Christina's Broviac (central line) is OUT!!!!!
Christina is doing Very well. The surgery went well and fast. She did so well. He chest hurts a little and she has 2 bandages there. I haven't figured out why there was to bandages but, one of them is bleeeding a little so we just have to keep an eye on it. I couldn't believe how bruised the area is. But then again her platelets are only at 71. The doctor said for her to take it easy for a week but, also said she could swim Sunday. She just said if the bandages hold up keep them on as long as possible.
Well, I want to Thank everyone for all they have done for Christina and our Family. This has been one Hell of a Year. I can't bellieve we have made it through. I'm still amazed by Christina's Strength. We are truly blessed. Through all this in the past year we have met some amazing people, doctors, nurses, patients and there families and the families that we haven't met but, sign Christina's page. I believe all these people are blessings from God. Especially the families we have met through the Hospital and clinic. We all have a bond that will never be broken. Christina has beaten the Leukemia but, it will always be in our lifes. It will truly never go away. I do hate the feeling of always looking over my shoulder wondering if today will be the day she wakes up with a fever or wakes up with no energy. It's funny, I still make her take her temperture. I think this will be a fear that will be with me forever. I know not to dwell on it. It is just in the back of my mind. We will go on and live our lifes to the fullest. One thing I have learned and fully understand is you only have one life. Live it to the fullest. Material things don't mean a thing. Everything else can be replaced but, Christina, Ashley and Mike can't. We have always said as long as we have the 4 of us, everything will be o.k.
Please continue to pray for Christina to say in remission and for her marrow to continue to recover. Hopefully by next clinic appointment her counts will be better, mainly her Platelets.
HAPPY MOTHER'S DAY to all the MOM'S out there.
I hope you have a wonderful weekend.
Love, Sherry
Tuesday, May 6, 2003 2:06 PM CDT
Christina is having her surgery to have her central line removed at 9:45 am Thursday morning (8th).Her counts looked good today (7th) platelets dropped to 71 but everything else looked fine. I will update on how the surgery went later..Thanks, Sherry
I forgot to mention that this past Friday (2nd) was the ONE YEAR anniversary of when all this began..
Hello Everyone,
GOOD NEWS!!!!!!!
Christina goes to clinic on Wednesday, and then on Thursday she gets her BROVIAC OUT!!!(central line in chest)!!!
YEAH!!!!!!! It has been 10 months since she has been able to fully submerge into water..
The first chance she gets she wants to jump in a pool.
We are all so excited for her. We won’t find out until Wednesday what time the surgery is on Thursday, They said it would take about 4 hours total, get her ready, take the line out and then recovery. I’m excited to get her some gifts out of the gift shop for HOPEFULLY the last time…
I just can’t believe this is going to finally happen. It is a very big step forward for her. She has been so amazing through all of this. The only bad part is, now for her clinic appointments they will have to do a finger stick or take blood from her arm. Believe it or not she would much rather them taking blood out of her arm over the finger stick. What can I say she’s a strange child. Ha ha…
So far she has gone to school every day since we have been back from our trip, so that’s good. She still seems to struggle a little but I think it is getting a little easier every day. She still gets teased about looking like a boy. She came home from school yesterday and said 4 people asked her if she was a boy. She even had long dangling earrings on. It bothers her sometimes, but other times she just laughs it off.
School gets out on the 21st so both girls are pretty excited about that. Hopefully I can come up with some good stuff to keep them busy over the summer. Christina REALLY wants to go to Discovery Cove at Sea World in Orlando. It is where you can swim with dolphins and other fish. But, it is pretty expensive so we will have to see. If anyone has any connections with anyone that maybe could help out with a discount or something let me know.
I will update after clinic on Wednesday, hopefully her counts are good so they will be able to do her surgery. Keep your fingers crossed.. And toes too…
Thank you ALL for your continual support you give Christina and our Family. We truly appreciate everything that everyone has done for us, and for continuing to keep us in your thoughts.
Love, Sherry
Hello,
I am sorry I did not write about my trip yet. My mom pretty much took care of that. I had a good time, the best part was going to Six Flag and riding the roller coasters. The plane ride was fun too. I was scared at first then everything was o.k. just very long. I did not get to spend time with Hilary Duff like I wanted too. I was not too happy about that. But she is very busy and that night was very important to her too. I hope to see her again one day so I can talk to her like I wanted to. I really liked the movie. I was a little tired after we got back home. I was very tired the day after we got home and I went to school but I stayed at school all day. Mom and dad were happy about that. I am very excited about getting my broviac out. I will have to wait a little while after because of stitches but mom said she would find a pool for me to jump into. I can’t wait. Thank you for signing my page and for signing onto my MAP.. I really like reading what everyone says. It means a lot to me.. Thank you
Love christina
IF YOU HAVEN'T READ ABOUT OUR TRIP TO HOLLYWOOD JUST CLICK ON PAST JOURNALS.. AND ALSO I HAVE MORE PICTURES ON THE LINK BELOW THAT SAYS CHRISTINAS PICTURE PAGE, THEN CLICK ON PHOTOS...
Wednesday, April 30, 2003 1:02 PM CDT
I ADDED PICTURES TO THE LINK BELOW THAT
SAYS CHRISTINA'S LEUKEMIA PICTURE PAGE. WHEN YOU CLICK ON THE LINK THEN CLICK ON THE LEFT SIDE THAT SAYS (PICTURES)I ADDED 2 NEW PHOTO ALBUMS FROM HOOLYWOOD.IF YOU WANT TO LOOK AT THE PICTURE CLOSER UP YOU JUST CLICK ON THE PICTURE YOU SELECT.
Hello Everyone,
We are HOME…..
We all had a pretty good time. Our flight leaving Tampa was rough and we didn’t get to our hotel until 1:30 in the morning California time. So getting there so late messed us all up from the get go and I don’t think we ever adjusted to the time difference.
Saturday 26th….
We went and had breakfast at Mel’s Dinner and then walked the streets of Hollywood BLVD. We looked at all the stars names on the sidewalk. Just did the sightseeing stuff. We went back to the room for a while and rested. Then we got ready for the Premier of the Movie. We arrived at the RED carpet at 5:30.
We had to get our credentials , right before we walked into the theater they were taping Promo’s for the movie, so All for of us were taped talking about what we think the movie will be like and why we like The Lizzie McGuire Show and then we went and found our seats. After looking at our seats we walked back outside to watch all the stars come down the Red Carpet. The girls got to see Tim Allen, Jane Seymour, Kristy Alley, Penny Marshall, Aaron Carter, Danny B (I’m not going to try and spell his last name, he played the red head kid on the Partridge Family and now he is on the show The Other Half), The girls had there picture taken with Tim Allen, Hillary Duff of course and other members of the cast. It was a pretty exciting time. We got to go to the Dinner party after the Premier, that was beautiful. They had it set up outside under a lot of tents and canopy’s They had food lined up all along the sides and at the four corners there were activities set up for the kids to do, like bracelet making, nail salon, body art, and makeup. In the middle was a beautiful fountain. Hillary Duff was kept in the back, they would bring her out a few times but, then there would be so many people around her so the girls couldn’t get close to her. A Disney representative took the girls up to her and had another VERY brief moment with her, long enough for the girls to get Hillary to sign there credentials and a photo. It was all so fast. But it was a very BIG night for Hillary too. She was being pulled in so many directions. She was the star of the night. I will be honest Christina got pretty upset because the time with Hillary Duff was VERY brief, it was Hello, take a picture and that’s was it. We are VERY grateful for this experience and We did have a good time. I would Like to THANK Joanne from the Children’s Dream Fund and the people at Disney for making this possible for Christina and our Family.. It was something we will NEVER forget……
I guess as a parent you get pretty defensive when it comes to your kids. Christina was emotional upsetover not getting to spend time with Hillary, so that just broke my heart. You just want things to go perfect. But then again what is perfect????
Sunday 27th……
We went to SIX FLAGS amusement park. The girls had a Blast, O.K. so did Mike and I. We all love roller coasters, so this was the place to be. They have 16 of them. We rode Goliath, Superman (twice) and Scream. Mike and the girls rode Batman, I sat out that one. The kids probably could have kept going but Mike and I are wimps, we couldn’t ride anymore. I was just happy with riding Goliath and Superman, they are the rides you always see on the Travel channel and TLC. We got a few souvenirs from there including one of those pictures you get taken while your on a ride. The one of us on Goliath is to hilarious to even explain. Ha ha…..I’ll have to try and scan it to put on the page..
After we got back to the room we rested and then went to dinner. That was about all that day.
Monday 28th…..
We went to Mel’s Dinner for breakfast again and then we went back to the hotel and got our car and went sight seeing. We went to the worlds oldest flea market, Not what you would think. There were flea market stuff but, there were some nice store too. We go to go into a FAO Swartz toy store, that was pretty neat.
Then we went down Rodeo Drive. We got turned around a few times, never lost, because we were always going somewhere. Just had a nice scenic tour of Beverly Hills and Hollywood.
Tuesday 29th…
Woke up at 3:30 a.m. to check out of the Hotel. Arrived at airport at 5 a.m. Flight took of at 8:15 a.m. and we arrived back in Tampa at 3:30 p.m. Tampa time. Got home at 5 p.m.
VERY LONG DAY!!!!!!!!
OH I FORGOT TO SAY THE MOVIE WAS GREAT!!!!!!!!!!!!!!
WE REALLY ENJOYED IT.. TWO THUMBS UP…….
Love, Sherry
Christina is at school, so she will add on to this after she is done with her homework
Wednesday, April 23, 2003 8:39 PM CDT
Hello Everyone,
We hope everyone had a Happy Easter!!
Christina went to clinic today and her CBC (blood test) were pretty much the same as last week
Her white cell count went up a little and that is probably because of a little cold she has.
Other than that her platelets stayed the same in the 80’s and her hemoglobin was actually in the
Normal range for the very first time in a long time. We got the results of her bone marrow and everything looked really good. The doctor said that it was one of the best bone marrow results Christina has had.
So, I think she is defiantly on the way to improvement. Her feet still hurt but, I think that is even
Slowing down or she just doesn’t complain as much anymore.
As many of you know, Christina is getting to do her Dream through the Children’s Dream Fund.
We will be leaving Friday to go to Los Angelos California. The family is getting to go to the
Premiere of The Lizzie McGuire Movie with Hilary Duff who plays Lizzie and the rest of the
Cast from the Movie. Then after the premiere we will be attending the party and dinner with
The cast. Then we will have 2 days to do what ever we want. I think we will be going to Six Flags,
The girls love Roller Coasters and Six Flags has 15 of them. Then of course we will go and see
The Stars on the sidewalk. I don’t know if we will go on a tour of the stars houses or not. From what I’ve heard you just see the gates and long drive ways anyway, so we will see. We will have a rental car while we are there, so that will be interesting in it’s self. .ha ha.. I just can’t believe this is finally happing for Christina. She is so excited. What the lady’s do for these kids at the Children’s Dream Fund is AMAZING.. they truly make DREAMS come true.. THANK you…
Christina will go back to clinic on the 7th. That gives her 2 weeks, that’s the longest break between clinic visits in a VERY long time.
We will have the laptop with us on our trip so I can let everyone know how things are going.
Well, I better go I am still trying to get some stuff together.
THANK YOU ALL for the support and prayers.. Keep them coming, because I think it is working.
I also added a guest map to Christina’s page if you get a chance click on it and mark where you live.
Christina thinks this is the coolest thing. You only have to sign it once. THANKS….
Love, Sherry
Hello,
I went to clinic today and after my appointment, the dream lady had a send off party for me and Taylor the other girl who is going too. We had balloons and cake and even a red carpet in front of our chairs. They did up a goodie basket for me and my sister, I got a I zone camera that has sticky film, sunglasses, a purse shaped like a star, an autograph book and a photo book and a lot of other stuff. All of it was fun. I had a good Easter, I think I found the most eggs. Me and Ashley would hide the eggs too and Mom and Dad would have to find them, we did that for about 3 hours. Thank you for writing me and signing my map too. I really like the map my mom put on the page. Mom said she would update from LA.
Love, christina
Wednesday, April 16, 2003 8:21 PM CDT
FIRST I NEED TO LET EVERYONE KNOW THAT CHRISTINA MIGHT BE ON ESPN 2 TOMORROW THE 17TH. NOT REGULAR ESPN BUT, ESPN 2...At 10 am eastern time..
This will be the footage that they taped 2 weekends ago at the Mike Alstott Fishing Tournament. If it is not shown then, I'm sorry this is what I was told today.. Hope ya'll get to see it..
O.K, Christina went to clinic today for her bone marrow aspiration and the doctor looked at some of it under the microscope and she said it looked pretty good. We won't know the actual results until Friday. Or even Monday. Christina did very well through the procedure, as usual she needed oxygen, she needs it every time so nothing shocking..
She was a little more emotional after she woke up. Usually she is very loving a sweet, not that she's not that way when she 's not drugged, but there is a difference...ha ha..
They had an Easter egg hunt at clinic today, so that was fun. Ashley played hookey from school today so she could go. She hasn't been to the clinic in a while so that was fine. When we got home today the girls had a nice surprise at the front door, a package... Since leaving the hospital the package thing has stopped so needless to say the girls were excited... It was from the family from the Tampa Bay Lightning organization that adopted the girls for Christmas. Mrs. Campbell put together 2 easter baskets with an outfit each and a bunch of other goodies for the girls.. The clothes were from there favorite store the Limited Too, which I have never bought them anything from there, so I'm confused why it's there favorite, I guess because they carry the Lizzie Mcguire clothes.Anyway, That was very nice of the Campbell's for doing that.. what a THOUGHTFUL and NICE FAMILY....
Well, I guess that's all for now, oh Christina's blood counts stayed the same again, her immune system actually dropped some. but, like I've said before nothing is jumping out of control, just staying steady.
OUR FAMILY WISHES YOUR FAMILY A HAPPY EASTER!!!!!
We will be decorating eggs friday night so I'll post some new pictures after the weekend..
Thank you all for everything...Thank you for keeping Christina and our family in your thoughts and prayers...
Love, The Gates Family
HAPPY EASTER, wish me luck Sunday Morning that I find more eggs than my sister. ha ha Thank you for signing my page..
love,christina
Friday, April 11, 2003 8:52 AM CDT
Hello Everyone,
Well, after Christina’s excitement of getting to go back to school, she has now been home all week.
A lot of kids in her class are sick and her teacher is sick. But, the biggest thing is she is really having a hard time adjusting to going back. She has been getting very upset because things are hard and the days are long. Christina missed the last 2 weeks of last year and all of this year, so I could only imagine how it feels to be back in the school environment, plus she feels different than the other kids, rightfully so. She is, she is a survivor, she has grown beyond her classmates. I think after the colds go through the class and she goes back, we will just have her go back for half days.
Christina went to clinic on Wednesday, her counts are still just staying the same. So, the doctor is wanting to do a bone marrow aspiration next Wednesday. They are wanting to rule out MDS coming back and Leukemia. They don’t think it is either one of them but, with the aspiration we can be sure. The doctors are still thinking that it is just taking her marrow a long time to recover from the chemo and infections she had back in Nov and Dec. So time will tell I guess.
I want to Thank everyone for continuing to pray for Christina, she has been through so much, for her sake I hope it is just taking long for the marrow to recover.
Love, Sherry
HI,
I am home today, my class is sick so mom thought it was better if I stayed home the rest of the week.
School is hard, P.E. is fun. I think I will go back to school on Monday and I think I will start going for just half of the day. I have a lot to catch up on. I will have to do a lot of work over the summer too. I can’t wait to go to California. I am so excited. I hope my mom and dad get me some Lizzie McGuire clothes, she has her own clothes at the Limited Too store at the mall in Tampa. I still can’t believe we are getting to go. I will take a lot of pictures.
Thank you for signing my guest book. I really like reading what you write.!!!!
Love, chistina
Sunday, April 6, 2003 9:27 PM CDT
I ADDED A NEW PHOTO ALBUM LINK, LOOK AT THE BOTTOM OF PAGE UNDER LINKS. THIS IS A LOT EASIER ONE FOR ME TO ADD TOO, SO I WILL HAVE NEW PICTURES MORE OFTEN.
Hello Everyone,
Well it has been a very exciting weekend for Christina.
First, we went to the Children's Cancer Center Thursday night for the parents meeting.
The kids got a nice surprise, Mike Alstott from the Buccaneers and his wife Nichole stopped by.
The Cancer Center and Mike Alstott were having a celebrity fishing tournament this weekend and so Mike came by to fill some of the goodie bags with the kids. When they were done he took pictures with the kids and signed autographs and then he through the football with the kids for a while.
Then Friday night because My Mike was fishing in the tournament too, we got to go to the Captain's Dinner. So we got to see Mike Alstott and Nichole again.
And of course those of you that know Christina very well she was GLUED to the Alstott's side ALL NIGHT. ESPN had taped some from Thursday night and they were there taping Friday night also. So every Interview that Alstott did Christina was right there holding his hand. it was too funny.... Local news channels were there too. and there was Christina holding his hand.. I still can't get over how she just stayed glued to him the whole time.
Then on Saturday the guys left out early to fish, so the girls and I got to the Marina when it was time for the boats to come back in. MY Mike caught 2 trout and that's about it. But the guys who where on guided boats didn't do that great either. But that's o.k. it was all for FUN and for a good cause. Well, Nichole Alstott got there later with there 2 children. By then the girls where down on the docks fishing. So ESPN wanted to film footage of Alstott and his Family with the other kids fishing. Well, right when they start filming Christina's pole bends down into the water. Everyone was so excited. She caught a good size catfish. So ESPN got all this on film. What perfect timing.
Mike Alstott and His wife Nichole were so VERY, VERY NICE. They spent so much time with the kids. At the end of the evening Saturday Alstott had brought some footballs with him and then signed one of them for Christina.
It is so nice to see someone in the community that kids look up to be so kind and generous. I know this will be a weekend that Ashley and Christina both will NEVER ever forget. And me as a parent I THANK the Alstott Family for there support to the Children Caner Center. This will be a weekend us as parents will never forget either.
The lady from ESPN said she will get with me when all this will air. It won't be until football season start again. So I'll let everyone know when I find out.
O.k. The other good news, We got final confirmation that Christina is going to be able to do her dream from the DREAM FUND. Christina has been wanting to met Hilary Duff, who plays Lizzie McGuire on the Disney show Lizzie McGuire . Well, Hilary Duff is showing and attending the Premier of her Movie in LA. at the end of this month. Through the Dream Fund we are getting to attend the Premier with her and we get to meet her and the cast. We will be out in California for 4 nights/5 days. How exciting is that...
Well, Christina will be going to clinic on Wednesday, so hopefully her Marrow will be doing better. I will let everyone know how things go.
THANK YOU ALL for the continual prayers and support for Christina and our Family.
P.S. don't forget to sign the guest book on your way out...... Christina made me type that. ha ha....
Love, The Gates Family
I added a picture to the photo album of the fish Christina caught.
Tuesday, April 1, 2003 11:36 AM CST
Hello Everyone,
Well, Christina is at SCHOOL....
She went to clinic yesterday and her blood work was the same as last week, her platelets did drop some.
So there has been no improvement, it just seems like her Marrow is at a stand still.The doctors are saying they want to do a bone marrow aspiration in 2-4 weeks. We go back to clinic Next Wednesday. Her immune system hasn't changed it is still at 1000. Which is not the greatest but,
We gave in and let her go to school.
The biggest reason I gave in to it was because she needs to see for herself how far behind she has gotten. We try and tell her that and to her it is a big joke. At home she doesn't take her school work seriously. She is going to have to do a lot of work over the summer either way, so maybe she will realize this is for real. Sounds mean in a way but, I know she can catch up fast, she is very smart. She just needs to realize that.
I sit here at home by myself. I think I would much rather have her here driving me crazy...than at school.
It is only 12:30 and I'm missing her. I know she is having a Blast.. She was so excited this morning. We walked her to her class. It felt like the first day of Kindergarten all over again. My stomach is still uneasy. O.H. Well, a mother's worry is never over.
I'm sure Christina will want to update after a few days of school to let everyone know how things are going.
Thank you ALL so much for the continual Prayers and Support, we still need it. Her Marrow has a long way to go.
THANK YOU for signing the guestbook, you have know idea how much that means to Christina.
Love, The Gates Family
P.S.
Please say an EXTRA prayer for Brittany Zipter. She is back in the hospital with high fevers and a collapsed Lung. Her page is www.caringbridge.org/fl/brittanyzipter
THANK YOU ALL.....
Thursday, March 27, 2003 1:45 PM CST
Hello Everyone,
Things have been pretty quite around here. Ashley is on Spring Break so the girls having been driving each other crazy. and me too.. ha ha..
Christina is doing good. She goes back to clinic on Monday and hopefully she will get to go to school on Tuesday. She has missed the last 2 weeks of last school year and so far all of this school year so she is really looking forward to going back and being around her friends again.
We really haven't done much for spring break just been staying home and taking it easy. Pretty boring actually..
I'll let everyone know how clinic goes on Monday..
Love, Sherry
Hello,
I haven't done much this week, we went to visit Brittany and her family Tuesday. That was fun. I wish we lived closer to some of the family's we have gotten to know. But a lot of them live in Tampa or St.Pete. Ashley and I are suppose to go to Molly Edwards house for a sleep over with other friends from the Cancer Center. I can't wait to do that. I have not spent the night with anyone in 11 months. Like Mom said I go back to clinic Monday. I hope to get to go back to school on Tuesday. Wish Me Luck..Thank you for signing my guestbook. It makes me feel good to read what everyone writes..Thank YOU
Love, CHRISTINA
AGAIN, THANK YOU ALL FOR YOUR CONTINUAL SUPPORT AND PRAYERS. WE ARE STILL IN NEED OF THE PRAYERS, CHRISTINA'S MARROW IS JUST REFUSING TO IMPROVE. Love, The Gates Family
Saturday, March 22, 2003 10:21 AM CST
Hello,
Christina went to clinic Friday and pretty much nothing new. All her counts stayed the same. So we are looking at it as positive news. Her marrow is just taking it's time recovering and that O.K. as long as things don't go way up or way down. The doctor said that they will do another bone marrow aspiration next month just to make sure everything is going good. All the test from the last bone marrow last month came back looking good. Her chromosomes were fine which they have always been. Which in a way is harder for the doctors to realy explain a lot of stuff about Christina. Usually with Leukemia you have chromosomal abnormalities. Which in Christina's case they have always been perfect. So the doctors say they have no markers to go by. Makes sense. I guess....
The teacher only came out once this week but Christina goes back to clinic on the 31st which is the monday after spring break so maybe after that clinic appoinment she can go back to school for the last 9 weeks. She is going stir CRAZY staying home. O.k. Maybe I'm going stir CRAZY a little too..
This coming week is spring break for Ashley so we hope to get together with some of the other family's from the cancer center some this week. Gonna try and keep the kids busy.
For those of you that were praying for Christina's friend Brittany I am glad to report that she got to go home yesterday. We went up to the hospital after clinic to visit Brittany and some of the nurses. Brittany will start radiation and Chemo at the same time in about a week. So it will be good for the family that they will actually be home for maybe a week TOGETHER..
THANK you ALL for the continual prayers for Christina and her Friends and for our Family.
Love, Sherry
Hello,
My dad fixed my bike so now I ride it. I don't have to sneak riding my sisters. Ashley will be home this week.
I hope we get to do some fun stuff. I get a break from the teacher coming to the house too. So that's nice.
Thank you for signing my page. I really like reading what everyone says. Since I have been back home the cards in the mail have stopped so it is nice to hear from people on line.
love, CHRISTINA
Friday, March 14, 2003 7:33 PM CST
Hello Everyone,
Well, Christina went to clinic today she had her follow-up x-rays of her leg done and the doctor said that the bone that was dead is doing really good. It looks like all the bone is healing it's self. So that's really good news. He said just keep an eye on her and if she has any pain or start limping to let him know.
Christina also had her blood test today, Her platelets dropped and her ANC (immune system) dropped but, her hemoglobin (red cells) went up a little. So we go back again in a week. The doctor's can't really give us an answer on why her counts go up and down. They just keep saying that because she had such intense chemo that it just can take awile to recover. But like Mike and I have said before it has been 4 months since her last round of chemo, so how long is to long. It is just getting very frustrating. One week positive news then the next week news that make you stop and worry just a little more. And it's funny because we have had people say since she finished chemo "well thing can go back to normal" NEVER again will things be NORMAL. What is normal anyway?? even if you weren't fighting cancer.
It looks like Christina may go back to school after Spring Break. So she is pretty excited. By the way she made a 90 on her last spelling test. Not bad for only getting to study 20 words in one day.
I WROTE ABOUT ONE OF CHRISTINA'S FRIENDS NAME BRITTANY LAST ENTRY. WELL, TODAY SHE WAS TAKEN BACK TO ALL CHILDREN'S HOSPITAL IN ST.PETE FOR EMERGENCY SURGERY ON HER SPINE. IT LOOKS LIKE THE TUMOR IS RAPPED AROUND HER SPINE. HER WEB SITE IS www.caringbridge.org/fl/brittanyzipter
PLEASE PRAY FOR HER AND HER FAMILY. THIS LITTLE GIRL HAS BEEN THROUGH SO MUCH ALREADY. SHE WILL BE HAVING SURGERY IN THE MORNING. AGAIN, PLEASE SAY A LITTLE EXTRA PRAYER FOR HER AND HER FAMILY.
Thanks again to everyone for you're continual prayers and support for Christina and us. Christina is amazing and I believe it is through the power of prayer and the strength she has is the reason she is here today.
Love, Sherry, Michael, Ashley and Christina
Wednesday, March 12, 2003 8:29 AM CST
Hello Everyone,
Things are going pretty good. Christina usually goes to clinic on Wed. but, she is going this Friday instead. She has an appoinment with the doctor that did the bone biopsy on her leg. It is mainly a follow-up. But Christina has been complaining of pain in her feet a lot. They even hurt when she first wakes up in the morning. So we don't know what is going on there. On Friday she will also get her blood levels checked. Hopefully all is still going good there too.
Christina has been working with the teacher at home a lot and is so ready to go back to school. Maybe after spring break.
Other than that it has been pretty quite around here. Kind of a waiting game from week to week. But that's O.K. At least we are home and she is full of energy. Boy is she full of it. ha ha....
I'll update again after we get back Friday from clinic.
THANK YOU everyone for stopping by and signing Christina's guest book. She absolutely loves it... And Thank you all for the continual prayers and support that you give to our family.
P.S. Christina has a friend that is in need of extra prayers right now for her and her family. Her name is Brittany and she is an amazing little girl. Her and Christina are A LOT alike. They both have such strength and courage. If you get a chance please stop by Brittany's page. Right now she is in ICU. We went to see her and her family last night and they need alot of support.
www.caringbridge.org/fl/brittanyzipter
I still have the link to the newspaper article at the bottom, incase you haven't had a chance to read it.
Thanks again for everything,
Love, Sherry
Hello,
I have been riding my skateboard alot and I have been riding my sisters bike when she is at school. My bike's brakes don't work. Dad has to fix them if he can. I took a spelling test yesterday and made a 100. I have another spelling test today. I hope I make a 100 again. wish me luck. Thank you for signing my page.
love, Christina
Wednesday, March 5, 2003 6:04 PM CST
Hello Everyone,
Before I start I just wanted to THANK Mr.Joe Henderson from the Tampa Tribune for writing such a wonderful article about Christina. For those who have not seen the article it is down below on the links part, all you have to do is click where it says article in paper.
O.k. Christina went to clinic today and all was good. YEAH!!her (ANC) immune system came up really good. Her blood and platelets look good too. She is still not in the normal range but, her counts are better than they have been for a very long time, so we will take anything positive at this point. Christina is doing good. She wanted to skateboard yesterday so I held my breath and said yes. Well, of course 2 minutes later she falls. She scraped her knee and it bleed, I asked her are you done now and she said YES. We laughed. Then of course the rest of the day she wanted to go back out and try again. Needless to say she was more careful and did pretty good. She actually went bike riding a little today. I have a hard time watching this but, at the same time there is nothing more that I want to see than her living life and having fun.
I talked to Christina's teacher at school yesterday and her and a lot of kids in Christina's class are sick so I think it will still be awhile before she goes back. I really want to wait until all this stuff that is going around goes away.
I know I can't protect her for ever but, her body still isn't up to par.
Thank you all for signing the guestbook, she truly love it. I have to limit how many times she checks it a day.
Love, Sherry
Hello,
Mommy told you I have been skateboarding. It is fun. Thank you for signing my guestbook. I like reading them. I hope I can go to school real soon. Well that's all for now.
love, christina
Here are some friends of Christina's web pages too.
www.caringbridge.org/fl/brittanyzipter
www.caringbridge.org/fl/molly
www.caringbridge.org/fl/chelsea
www.caringbridge.org/fl/katia_leukemiapage
www.caringbridge.org/fl/emilylester
www.caringbridge.org/fl/bailee
These are the girls that have become such wonderful friends with Christina and Ashley. And there familys have become our family too.
Saturday,March 1,Wednesday, February 26, 2003 8:34 PM CST
Hello Everyone,
CHRISTINA IS ON THE FRONT PAGE OF THE TAMPA TRIBUNE TODAY MARCH 1st.Down below where it says LINKS, I added a link to an article that ran in the Tampa Tribune on Saturday March 1st.
Thank You for all the emails and for signing Christina's guest book. She really enjoys reading them.
Well, we went to clinic today and Christina had the bone marrow aspiration done. She did very well through the procedure. The doctor looked at some of the marrow under the microscope and she said that everything looked pretty good. We will not find out the true results until tomorrow and some of the test results like the DNA and chromosome test that they are doing again. All her counts came up some but her ANC (immune system)stayed the same. Which is low. Her marrow is very active so we don't know what to think. I hate all this waiting and worrying. You would think after 10 months of this we would be getting used to the roller coaster ride but it's just not happening.
The good news is Christina looks and feels great. We went got to sit in a Tampa Bay Lightning players suite (Brad Richards) on Sunday and then she got to meet him. She had already met him before but, he is one of the girls favorites. Then we went to another game on Tuesday Night. We have been getting the tickets through different groups, one of them is the Children's Cancer Center in Tampa and the other is Camp Good Days and Special Times. These 2 groups have been unbelievable with all they do for these kids and the families. O.H I ALMOST FORGOT THAT CHRISTINA SHOULD BE IN THE TAMPA TRIBUNE ON MONDAY (march 3rd).When we where at the Hockey game Sunday Night a gentleman from the Tribune interviewed us. I'm not sure what section of the paper, the story is supposed to be on Brad Richards but, he took alot of info on Christina. So we will see.
Well, I guess that's about all for now, I will update as soon as I know some results of the tests.
I have added a few pictures I will be adding more in the coming days.
Again THANK you all for the continual support you have been giving Christina and our Family.
Love, Sherry
Friday, February 21, 2003 10:55 AM CST
Hello Everyone,
Well, Christina went to clinic on Wed. and some of her counts came back up a little but, her ANC (immune system) dropped. So the doctor wants to do another bone marrow aspiration on her next Wed. They just took marrow 3 weeks ago and the marrow looked good and showed she was still in remission. We don't know if there is something going on again or maybe her marrow is just struggling from the last round of chemo 3 months ago. Needless to say we are confused and worried yet again. I will let everyone know how the aspiration goes next week.
Christina did get to go to the school for a little while on Valentine's Day. A lot of kids have been sick so I made her wear a mask, she wasn't to thrilled about that but, at least she got to see her friends.
I took some pictures this past week and I will be adding them to her picture page and also to the other links at the bottom of this message.
Love, Sherry
Hello, Thank you for signing my page. I am doing good. I can't wait until I get to go back to school. It won't be for awhile but I can't wait. Love, Christina
Thursday, February 13, 2003 11:54 AM CST
Hello Everyone,
Thank you all for the the sign-ins. Christina really enjoys reading what everyone writes.I have a few new pictures, check them out...
Well, Christina went to clinic yesterday and her counts had dropped. We don't understand WHY but, the doctor didn't seem too concerned but it scares the heck out of us. She should be fully recovered by now. And for her to have decent counts one week and then the next her counts drop just doesn't sit well with us. She goes back to clinic on Wednesday and maybe we will get some answers then. We all know that her marrow has been struggling but this is getting nerve racking.
Christina has been working hard with the teacher that comes to the house and we got all the papers taken care of today so she can be duel enrolled at school. So when the doctors say it's o.k. she can go back to school, but if something comes up and she misses some days they won't count against her. Christina REALLY wants to be with her friends, it has been long enough. She is getting very bored and restless staying home. I am taking her to the school tomorrow so she can be there for the Valentine's Day party. She is looking forward to that. I think it will help with her spirits too.
Other than all that everything else has been good. Ashley was sick for a few day and so was I but, somehow Christina and Mike managed to dodge all of it.YEAH!!!
I hope everyone has a HAPPY VALENTINE"S DAY !!!!! ;)
Love, Sherry, Michael, Ashley and Christina
Hello,
I just wanted to say Thank You for signing my guest book.
I hope you have a nice valentine's day. love,christina
Monday, February 3, 2003 1:19 PM CST
Hello Everyone,
Sorry it has been a while since I have last updated.
We were told last week that Christina would not be getting her
next round of chemo. so this news was pretty shocking. We had
a lot of questions and concerns that we had to deal with.
Well, we have been talking back and forth with Christina's Doctor's,
and we finally have it all straightened out.
The Doctor's are basically telling us that Christina's marrow cannot
take anymore chemo. It has taken 2 and a half months for her marrow
to recover from the last round of chemo. The are afraid if they hit her with more
chemo her marrow will never recover. If that happens it could turn into aplastic
anemia. Which is just your marrow would be unable to produce blood, therefor she
would need a bone marrow transplant.
It is hard to explain but, I'll try.
When we were told NO more chemo we were happy but, more
scared than before. It's weird because when Christina was going through
all that she has experienced we couldn't wait until this nightmare of chemo's
to be over. And now that it is over Mike and I are more scared than ever.
The best way for me to describe it is, while Christina was on Chemo she had
Armour Men standing around her protecting her from the Leukemia and now
she is just standing in an open field ALONE. We just have to pray that her
body will fight and that the Leukemia will stay away. Mike and I went from one fear
to another. The fear of relapse is horrible.
Christina will have to keep her Broviac (central line in chest) in for 6 months.
Needless to say she is not to thrilled about that, but the chance of relapse
is about 50% for the first year.
Christina went to clinic today, all of her blood counts dropped today.
Her counts had been coming up all last week but, she did get chemo in
her spine last week and she also is fighting off an infection so that
might be the cause of her counts dropping.
Christina had a bone marrow aspiration done last Monday and
they took some spinal fluid too. So far everything has come back looking
good. She is still in remission and her spinal fluid was nice and clear.
Christina goes back to clinic on Friday, hopefully then we will see an
improvement in her counts.
Well, I guess that is about all for now.
Ashley is doing well, she is doing good in school.
Mike and I are doing pretty good. Just the usual, taking things
day to day.
We THANK EVERYONE for the continual support and prayers.
Thank you to everyone who has still been signing Christina''s page.
She checks it about 10 times a day.
Love, The Gates Family
Thursday, January 23, 2003 at 10:17 AM (CST)
Hello Everyone,
Christina is doing pretty good. She went to clinic on Monday and Wednesday and so far her marrow is holding it's own. We thought for sure she would need blood and platelets on Wednesday but, she didn't. She was so excited. So hopefully this means her marrow is going to start to produce again on it's own. Her immune system is still pretty low, right now it is to low to allow her to go into stores. So she is not to happy about that, but we go back to clinic on Friday so hopefully her ANC(immune system) will be back up too.
I took Christina to pick up her pottery on Tuesday, and we took it to this place in town where you can paint pottery and then they fire glaze it. I even painted something, it was pretty neat. Christina and I pick our pottery up on Saturday, I'm not sure who's more excited to see the finished product, me or her. ha ha..
Tonight we are going for a meeting at the Children's Cancer Center in Tampa, the girls like going because the are around other kids that are going through the same stuff and Mike and I like it because we actually feel normal when we talk to other parents there.
Christina says HELLO..and she said HOW ABOUT THEM BUCS...
we all can't wait until the Super Bowl.GO BUCCANEERS..
Love, Sherry and the Family
Sunday, January 19, 2003 at 11:23 AM (CST)
Hello,
Well it has been a very busy week. Christina is doing very well. She went to clinic on Monday, Wednesday and Friday. Friday's clinic visit her blood work showed she will most likely getting a blood and platelet transfusion on Monday. We thought her marrow was finally starting to produce on it's own but, everything is still dropping. Oh well, we knew it would take a while.
On Tuesday I took Christina to make some pottery on a pottery wheel. It is something she has always wanted to do so I did some calling around and set it up. She was so surprised and excited. She did a realy good job. The guy who helped her is firing the pots this weekend and then she can paint them this week.
Saturday night we got invited to go to the Superbowl of Motor sports Monster Truck races at Raymond James Stadium where the Bucs play, we got to sit in a Suite. Dave Moore who use to play for the Bucs, now plays for the Denver Bronco's was there with his son. Mark Royals who also use to play for the Bucs, now plays for the Dolphins was there with his daughter and there were some WWF wrestler's there. We had no idea that these people were going to be there so it was pretty exciting. Mike got to talk some football, so that was pretty neat. Christina received a Buccaneers game ball with Mike Alstott signature and the other guys that I said were there also signed the ball. I haven't seen her so excited like that in a while.
Like I said earlier we will go back to clinic Monday and let's all pray and cross our fingers that her marrow is producing again so she won't need the transfusions.
I have added a link on the bottom of this page, check there every once in a while there might be new pics you haven't seen. I added some new pics last night. I will be adding pictures periodically.
Christina says HELLO..... She is so ready for the football game to start. GO BUCS....
Love, Sherry and Family
Monday, January 13, 2003 at 08:47 AM (CST)
Hello,
Well It again has been a very busy week and weekend. Christina went last Thursday and received her breathing treatment, that went well. Then on Friday I took her to clinic and she needed platelets, at least they arrived around 10 a.m so we got back home around 2, so the whole day wasn't wasted. Friday night Mike and I got to go out...o.h. how nice that was. For those that don't know our Anniversary was Nov 26th, and Christina was in ICU at the time, so we had a late anniversary dinner. Saturday night we all went to the Lightning hockey game, for some odd reason the girls have a blast there. Of course Sunday we all watched the BUCCANEERS WIN !!!!!!. Christina had to go back to clinic this morning, Mike just called and said that everything is fine for now and she goes back Wednesday, she will probably need platelets and maybe blood then. Other than that Christina is doing good. She is starting to eat alot more. She is on a big Popcorn kick. O.h. well, what every she eats is fine with us..
Love ya, Sherry, Michael, Ashley and Christina
Wednesday, January 08, 2003 at 06:14 PM (CST)
Hello,
Well, things are going pretty good. Christina is enjoying being home and we all are enjoying her being home. She still is going to the clinic alot. She went Monday, today and she goes back tomorrow for a breathing treatment to protect her lungs. She use to take medicine to protect her lungs from fungis's but, they are not wanting her to take any medicine that will affect her bone marrow while it is trying to recover, so they are giving her medicine in a breathing treatment. Then we go back to clinic Friday for usual blood work. She got platelets Monday and she had a reaction to them, nothing bad she just turned into one big hive. So now she will have to take benadryle and tyenol before getting any transfusions. Other than that she is doing very well, we went up to the school and had lunch with Ashley today, it was chicken basket day and that is Christina's favorite. Love, Sherry
Hello, I just wanted to say Hello to everyone and thank you for all that ya'll did while I was in the Hospital. I got so many cards and email I really liked that. love, christina
Thursday, January 02, 2003 at 06:08 PM (CST)
Hello,
We hope everyone had a Happy New Year!!! Let's hope this will be a good one for everyone. Well we have been home for almost a week and it has flown by. Sorry I haven't updated the page, it seams like when we are home everything is rushed. No excuse I know.
Well, Christina went to clinic this past Monday and she got Platelets, we went back to clinic today and she goes back tomorrow for more platelets. Her hemoglobin (red blood cells) are producing and her ANC(immune system) is going up,but her platelets are taking a little longer which is normal. The doctors want to wait until her marrow is producing everything good on it's own before they start the next round of chemo, so hopefully we will get to be home for a few weeks. Christina is amazing, I look at her laughing and playing and just can't believe all that she has been through. We had an unbelievable Christmas Thanks to friends and family. We would like to Thank Everyone that helped make our Christmas so special, one that none of us will ever forget. Thank You.....
Now that things are slowing down I'll be better at keeping her page updated.
Love, The Gates Family
Friday, December 27, 2002 at 09:09 AM (CST)
Hello,
The doctor just walked in about an hour ago and said Christina could go home today. Needless to say we were shocked and excited at the same time. I will update after we get home and get settled...I can't beleive it.....
THANK YOU EVERYONE FOR EVERYTHING.......................
Love, The Gates Family
Saturday, December 21, 2002 at 09:21 AM (CST)
Hello,
Christina is slowly improving, but she is improving and we are very thankful for that. We appreciate everyone who has been praying for her and our family. She had a bone marrow aspiration and a core biopsy done on Wednesday. There were not many cells in there, but there weren't any Leukemia cells either. That is a very good thing. She has been able to be without her oxygen since Thursday morning, so that is a good sign too. She's been having some pain in her head and some sinus congestion, she still very weak, and not eating yet either. But hopefully as her body continues to get better all of that will get better too. We still don't know when we will get to go home. We just know it will be sometime after Christmas, and were not going to rush anything with all that she has been through this stay.
There has been alot of very good people and organizations stoping by the hospital to bring gifts and meet the children. The St. Pete police dept., the fire dept. and EMS, and the postal workers have all come around bringing gifts. We have also seen and met some of the Tampa Bay Buccaneers players, a pitcher from the San Fransico Giants, and Vinny Lecavalier from the Tampa Bay Lightning. Christina was also in the St. Pete Times newspapper Friday, holding a stuffed animal that she recieved from the postal workers. So even though this hospital stay has been very hard on Christina both physically and mentally. We are very greatful for all the good people and organizations that have helped keep her spirits high, and heiped our family through these tough times.
Again our family wants to thank everyone for all the help, the prayers, and the cards.Sincerly The Gates family.
Saturday, December 21, 2002 at 09:21 AM (CST)
Hello,
Christina is slowly improving, but she is improving and we are very thankful for that. We appreciate everyone who has been praying for her and our family. She had a bone marrow aspiration and a core biopsy done on Wednesday. There were not many cells in there, but there weren't any Leukemia cells either. That is a very good thing. She has been able to be without her oxygen since Thursday morning, so that is a good sign too. She's been having some pain in her head and some sinus congestion, she still very weak, and not eating yet either. But hopefully as her body continues to get better all of that will get better too. We still don't know when we will get to go home. We just know it will be sometime after Christmas, and were not going to rush anything with all that she has been through this stay.
There has been alot of very good people and organizations stoping by the hospital to bring gifts and meet the children. The St. Pete police dept., the fire dept. and EMS, and the postal workers have all come around bringing gifts. We have also seen and met some of the Tampa Bay Buccaneers players, a pitcher from the San Fransico Giants, and Vinny Lecavalier from the Tampa Bay Lightning. Christina was also in the St. Pete Times newspapper Friday, holding a stuffed animal that she recieved from the postal workers. So even though this hospital stay has been very hard on Christina both physically and mentally. We are very greatful for all the good people and organizations that have helped keep her spirits high, and heiped our family through these tough times.
Again our family wants to thank evryone for all the help, the prayers, and the cards.Sincerly The Gates family.
Monday, December 16, 2002 at 09:17 PM (CST)
Hello,
Well, I think I can say that the power of prayer might be working for Christina. She had another CT scan done today and her lungs look a little better then on Wed. She has improved everyday. She is still having to use some oxygen but not as much. She is still having low grade fevers but they are coming down on there own, without tylenol. She is still not out of the woods yet but it is an improvement. She still has a long way to go. It is very hard for her to walk more than 10 steps.Her poor body aches, so they still have her on the morphine pump. She still is not eating, but yet she is not loosing any weight because of all the fluids she is getting.
We will be in the hospital until after Christmas but that is o.k. This will be a very special Christmas with the Help of a lot of family, friends and some people we have never met. One thing is certain we have met some amazing people and some very caring and generous families.
Our Family Thanks EVERYONE for your continous prayers and cards.Christina sleeps a lot but when mail comes she wakes right up..ha ha..
Again Thank You, Sherry
I added a new family photo we just took on the 18th.
Thursday, December 12, 2002 at 09:33 AM (CST)
Hello Everyone,
Well since I last updated alot has happened. Christina had a CT scan done yesterday and it showed 2 spots on her lungs, one on each lower lobe of her lungs. They don't know if it is fungus or damage left behind from a bacterial infection. They wanted to take her to the O.R. yesterday and open her up to take a biopsy of her lungs but, Mike and I stopped it. The reason being, she has no immune system, her platelet counts aren't that great. They have this antibiotic they can give her but everyone says it is very "wicked" I guess it is very toxic so they don't like to give it unless they know for sure it is a fungus they are dealing with. Well, we are trying to get them to just go ahead and put her on this antibiotic instead of operating.Because if they find it is a fungus then she will have to have the antibiotic anyway so why risk the operation. So hopefully we will have another ct scan done in a few days and then we should be able to tell if it has grown. In the mean time they keep sending off cultures to see if they will show anything. So everything is pretty much up in the air right now. Mike stayed with Chris last night and she told him at 6 this morning that she felt better today. So that was nice to hear.
On another note I just can't believe the amount of support our family is getting, THANK YOU !!!!!!
Christina told me one night, I think it was during the 2nd round of Chemo, she said "I know why God gave me Leukemia" and I said "Why??" she looked at me and said "so I could meet and be in so many peoples lifes" She blew me away!!!
She's a special child and I tell her all the time that she is to special that God is not ready for her yet and she tells me she feels the same way. Love, Sherry and Family
Monday, December 09, 2002 at 07:23 AM (CST)
Hello,
Well, it has been a very trying weekend. Christina's chest x-rays started showing signs of something going on. She is still running fevers and throwing up. So they took her to the O.R. yesterday to take a biopsy of the stuff in her lungs and then they washed her lungs out with this saline solution stuff. All to technical to pronounce the proper terms.ha ha.. Anyway, She came out of that o.k.She is on more oxygen then what we had hoped for but, they are weaning her off of it little by little. She was in and out of it most of the day yesterday, But on Saturday a family whose child has had treatment here came up to the hospital with bags of Christmas decorations and Decorated Christina's room. She has the Most popular room in the hospital. She sat up in the chair for most of that. So that was nice to see her out of bed for awhile. Her spirits are still up, so I'm very Thankful for that..She is still recieving mail and I am VERY THANKFUL to everyone who is sending her email, mail and packages. She really LOVES it...
Our whole family is very Thankful for everything everyone has done, support wise, prayer wise, financial wise and everything else wise..Good way to say that Huh???
My dad's probably loving my english right now..
Well, That's about it..
Love, Sherry and the rest of the Family...
P.S. I took a picture of Christina's room and it is in the photo album.
Friday, December 06, 2002 at 06:58 AM (CST)
Hello, Christina is still hanging in there, but this is starting to get pretty trying on her. She has another infection,so the Dr's have started another antibiotic which is the third one she is on now. She will have to get it for at least fourteen days. She has been vomiting and running fevers of 103 to 105.4 for the last fourty hours, and is still geting morphine for the pain. All of her blood counts are very low so she will be getting red blood cell transfusion and platelet transfusion today. We hope that the antibiotics will get rid of her infection and fever very soon, so that Christina will start feeling beter and get her energy back. We greatly appreciate everyone keeping Christina and our family in your thoughts and prayers. Thank you, The Gates family
Thursday, December 05, 2002 at 07:41 AM (CST)
Hello,
Well Christina was doing very well, the doctors told us yesterday morning that they wanted her to get 4 more days of the antibiotics and then watch her for 2 days after they were done and then we could go home. But unfortunately yesterday around 4 p.m she started running a high fever and throwing up again. She woke up in such a good mood too, So they took more blood to see if something will show up again. We were up all night with her because of the fever and vomiting. Her body aches so they are giving her Morphine again. She was discouraged yesterday but, now her spirtis are better. Like usual she still smiled and waved her fingers at me when she woke up this morning. I don't think I have ever seen a kid with such a fight in her. Anyway, I just thought I would let everyone know. It had been nice for a week to tell everyone that she doing great. Now, here we go again on this rollercoaster ride,.....
Love, Sherry and the Gates Family
Sunday, December 01, 2002 at 12:16 PM (CST)
Hello,
We hope everyone had a Happy Thanksgiving..
We had a nice weekend, it has been pretty quite aroung here. Christina is still recovering so she has just been resting. She is still not wanting to eat. We finally got her to eat 3 Mcdonalds nuggets last night. The doctors said her appetiate will pick back up soon. Her little body has just been through a lot, so it will take time. Other than that everything has been pretty good.~``Sherry
Hello, I just wanted to Thank EVERYONE for caring about me and for sending me cards and stuff. My room is all decorated with the cards I have gotten. Love, christina
Wednesday, November 27, 2002 at 06:51 PM (CST)
HOORAY!!!!!HOORAY!!!! Christina is out of ICU.
Christina is back up to the 2nd floor and we are all very happy! She is glad to be back to more familar people. She is doing pretty good. She is still needing morphine for pain and a little bit of oxygen for her breathing. She still has a long road ahead of her before we get to go home but, this was a big step forward. Thank you all so much for everything. I believe the power of prayer works.
We Hope all of you and your family's have a Very Happy Thanksgiving.We all have alot to be Thankful for..
Love, The Gates Family
Tuesday, November 26, 2002 at 04:05 AM (CST)
Hello,
Christina is doing good.She went into septic shock,Here body was so immune suppressed it wanted to start shutting down her blood pressure drastically dropped and her heart rate went very high. And she has ECOLI,it went from her intestines to her blood line. She is on alot of antibiotics and morphine for the pain. She had a rough day on Sunday. They were not able to lower her dose of blood pressure medice they actually had to go up on it. Monday they lowered it a lot so hopefully she will be off of it by tuesday evening. Monday she was able to get up and use the potty next to her bed and she sat up in a chair for about an hour. All the nurses on the 2nd floor where she normally is want her back up there for Thanksgiving so that is what we are shooting for. I can not describe nor put into words how amazing she has been through this. She just blows me away with the courage and strength she has.
I would also like everyone to know that when all the panic happened in Christina's room on Wednsday Ashley her sister was outside the door not knowing what was happening to her sister. I think I handled the panic with christina pretty good but to see the horror and fright on Ashley's face was to much to even imagine. She just broke my heart. She told Mike and I later that night she thought Christina had stopped breathing. She has only came in to see Christina 3 times in the past 6 days because all the machines and seeing her sister like that is just to much. I know Christina is going through a lot but, please let's not forget about a very frightened 10yr old Big sister. Thanks again for all the Prayers and support. The Gates Family..
Thursday, November 21, 2002 at 08:43 AM (CST)
Hello,
just wanted to let everyone that Christina had to be taken downn to ICU yesterday afternoon. She is doing o.k.
Her blood pressure had gotten extremely low so they have her on alot to different meds. She has improved through the night but it will just be a wait and see thing. She has a very bad infection in her blood and with no immune system again she has nothing to help fight it. They are giving her alot of antibiotics, blood, platelets and they are even going to do a white blood cell transfusion. Well I gotta go I'll keep everyone posted. Please keep us in your thoughts and prayers.~~~Love The Gates Family....
Wednesday, November 20, 2002 at 09:27 AM (CST)
Hello Everyone,
Well Christina spiked a 104 fever at 4 this morning so we are not able to go home today. I guess it's better than getting home and spiking a fever afew hours later and have to turn around and come all the way back. At Least we are already here and they can start treating what ever is causing the fever.They took alot of blood this morning for cultures so we just wait and see if anything grows. So we will be here for atleast 3/4 more days. Her spirits are still good. So that's good. Well continue to keep us in your thoughts and prayers...Thanks again for the cards... She really lights up when mail comes..``~~~~Sherry
Monday, November 18, 2002 at 08:51 AM (CST)
Hello,
Christina is on her 3rd day of Chemo and she is doing pretty good. She again has no immune system and her counts are dropping, she got blood on friday night and will get platelets tommorrow. She has been eating good this stay. So that's a good thing. So now we cross our fingers and pray she doesn't start running a fever so we can go home sometime Wednsday.Thanks again for all the support and prayers```~~~~Sherry
Hello, Just wanted to say Hi to everyone..;) ~Christina
Saturday, November 16, 2002 at 08:12 AM (CST)
Hello,
Christina is back in the Hospital. She got to have 5 days of fun and now it's back to more Chemo. We got to fish alot while we stayed at the Ronald McDonald House. So that was nice. Christina starts her Chemo this morning.She also has to get chemo in the spine again today. Not looking forward to that one. I asked her if she has her game face on and she said "yes". She's so silly..
Thank you to everyone that has sent her cards while she is here. It puts a smile on her face. She has her cards hanging in the window of her door for everyone to see. Thanks again.``~~~Sherry
Hello, thank you for sending me cards I like getting them and showing everyone. love, chrisitna
P.S I put 2 new pictures in the photo album.
Tuesday, November 12, 2002 at 06:07 PM (CST)
Hello,
Well Christina is out of the hospital but, we weren't able to go back home. She is having to stay at the Ronald McDonald house with us until Friday, that's when she will be re-amittted into the hospital for 4 more days of Chemo.
The doctors didn't want us to be very far from the hospital incase she had a reaction to the Chemo or incase something else came up. I'd hate to be home and somethng happen and us be a hour and a half away from the Hospital. So I guess it's better to be safe than sorry.The hospital is holding her mail there and I will be picking it up until we go back in.
She seems to be doing pretty good right now, all her counts are up so we took her fishing at the old skyway bridge last night and again early this morning. She kept catching pin fish and grunts. Nothing exciting. But it was fun, that's the important thing. She actually ate a whole Happy Meal tonight, that's the most she has eaten in a week, so that was good. ``~~Sherry
Hello, Thank you to everyone for writing me. I really like looking at my website. `Christina
Saturday, November 09, 2002 at 01:34 PM (CST)
Hello,
Christina is doing pretty good. She is not wanting to eat or drink anything. She is starting to give us a hard time about taking her pills, but who blame's her right? She has just been in a poopy mood. That's what we call it anyway. Other than that she is pretty good. She still put a smile on your face. ``~~Sherry
Thursday, November 07, 2002 at 05:27 PM (CST)
Just wanted to let everyone know that if you send a card or something up to the hospital you don't need to put a room number. We have been moved to a different room already and we might get moved again. But the mail will get to her. She woke up pretty sick today ,but she has purked up some now. She got the chemo in her spine today and she slept for a few hours after that so that was good. Other than that it just will be day to day..Thanks again for everyone's support and prayers..``~~Sherry
Wednesday, November 06, 2002 at 04:32 PM (CST)
Hello,
Christina is back in the Hospital, Her counts were good so they sent us over here. She will start her chemo's tonight,she'll get 6 different chemo's. She will recieve chemo in her spine tommorrow. Not looking forward to that one. Other than that her spirits are good. She is actually happy to see all the nurses, they spoil her rotten but, that's o.k. Ashley will be staying with her best friends family during the school week so she won't miss any school.If anyone would like to send christina cards while we are here the address is right below where you are reading this at. Just put Christina Gates c/o All Children's Hospital and so on. She would get a kick out of getting mail in the hospital. Thanks for all your support and prayers~~~Sherry
Chrisitna's room #is 260B
Friday, November 01, 2002 at 06:00 PM (CST)
We went to clinic on wednesday, October 30.Christina needed a blood transfusion so it turned into a long day. We recieved good news while we were there some of her bone marrow test results came back, and she is still in remission, which was a big relief to all of us.We don't have to go back to the clinic until Wednesday, November 6. If Christina's blood counts are up to a certain level we will likely go straight from there to the hospital for her next rounds of chemo. Christina and her sister Ashley dressed up in their halloween costumes,because they got to trick or treat at the clinic, they thought that was pretty cool. Then after we left the clinic we went to the childrens cancer center in Tampa where the girls got to be toy testers for a report that a local news station is doing on how kids like or dislike certain toys. They really enjoyed geting to play with all the different toys. So it was a really long day, but overall I think Christina enjoyed most of it. We took the girls trick or treating they had a blast and got ALOT of candy.. Sherry
Hello, to everyone, Thank you for writing me. My uncle Mike(my moms brother) and his family in Japan sent us a Laptop for a early family Christmas present, so I will be able to stay intouch while I'm in the hospital..Thank you Uncle Mike, Aunt Chika, Emi and Lisa.~~Christina
Friday, November 01, 2002 at 06:00 PM (CST)
We went to clinic on wednesday, October 30.Christina needed a blood transfusion so it turned into a long day. We recieved good news while we were there some of her bone marrow test results came back, and she is still in remission, which was a big relief to all of us.We don't go back to the clinic until Wednesday, November 6. If Christina's blood counts are up to a certain level we might possibilly go straight from there to the hospital for her next rounds of chemo. Christina and her sister Ashley dressed up in their halloween costumes,because they got to trick or treat at the clinic, they thought that was pretty cool. Then after we left the clinic we went to the childrens cancer center in Tampa where the girls got to be toy testers for a report that a local news station is doing on how kids like or dislike certain toys. They really enjoyed geting to play with all the different toys. So it was a really long day, but overall I think Christina enjoyed most of it.
Monday, October 28, 2002 at 08:34 PM (CST)
Hello,
Well we went to the clinic today, Christina had her bone marrow aspiration (biopsy) done and they also took some of the bone. We should know wed. if everything is still on the right track. Her platelets went up(good). but her hemoglobin (red blood cells) still went down(bad) but, they decided not to do the blood transfusion today. They ordered more blood for wed. incase she needs it. Hopefully her hemoglobin will start picking up so she won't need the transfusion. She did real good with the biopsy today, they gave her so many drugs but all she keep telling everyone is "I didn't fall asleep" but when it was done she was so hungry that she was trying to eat her POP Tart and was starting to fall asleep while eating. It was pretty funny to see. ~Sherry
Thank you for writing!!HAPPY HALLOWEEN!! ~~~Christina
Saturday, October 26, 2002 at 11:59 PM (CDT)
Hello,
Well, we went to cinic on Friday and christina's platelets are now coming up (good thing) but, her hemoglobin (red bllod cells) came back down (not a good thing). So Monday she is having a bone marrow aspiration and a core biopsy. Which means they are taking some of her bone marrow and a piece of bone. The doctors just want to make sure her body is still on the right track. It has taken along time for her to recover from the last round of chemo. Christina hasn't had a bone marrow aspiration done since see finished the first round of chemo, that's when they told us she was in remission, so it will be good to see what this one tells us.The good news is christina went to the Fall Festival at her school. She was so excited to get to run around with her friends and to act like a normal child again. ~~Sherry
I got my halloween costume today I'm going to be a Pirate!!!Can't wait until Halloween.~~Christina
Wednesday, October 23, 2002 at 12:24 PM (CDT)
Hello All,
Well, we went to the clinic on Monday and Today. So far it looks like maybe her bone marrow is starting to improve. Her red blood cells stayed the same from Monday to today , so that's a good thing. Atleast they didn't go down. Her platelets still went down, so we go back to the clinic Friday to see if she needs a platelet transfusion. Her immune system is staying good. Her school is having a Fall Festival Friday afternoon and she really wants to go, hopefully we will make it. We are hoping that she won't go back in the hospital for next round of chemo until after Halloween. She really wants to go trick-or-treating..~Sherry
THANK YOU EVERYONE FOR WRITING ME IT MAKES ME VERY HAPPY!!!~~CHRISTINA~~~
Saturday, October 19, 2002 at 02:35 PM (CDT)
Hello,
Christina went to the clinic on Friday. She had to get another platelet transfusion so the day was pretty long. We went to the children's cancer center today and they had a special guest, an art teacher. We all got to learn how to use water colors the right way.. We are going bowling tonight with friends 5 adults 5 kids, should be fun.
We go back to the clinic Monday. The are doing some special test on her kidneys before her next round of chemo, because how aggresive the next round will be. We all are not looking forward to the next round, it's going to be very intense. Not that the other rounds have been a breeze, it's just they say this one will make her very septic to anything. So we are preparing for a long stay.Christina's so strong, we tell her all the possible side affects to everything so that if something comes up she won't freak out. And all she says is "WELL I"M STRONG THAT WON'T HAPPEN TO ME... " She's so strong it's amazing..~~Sherry
THANK YOU TO EVERYBODY WHO HAS BEEN WRITING TO ME, I REALLY LIKE READING THESE..Love Christina
Wednesday, October 16, 2002 at 09:14 PM (CDT)
Hello,
Christina went to clinic today and we were hopeful she wouldn't need blood but, she still did. Her immune system(white cells) are still coming up but, not the rest of her blood. We go back to clinic Friday, she is able to go bowling now, so she is pretty excited about that. We just sit and wait for all her blood work to reach a certain level and then we go back in the hospital for more Chemo..
Monday, October 14, 2002 at 05:37 PM (CDT)
Hello,
We went to clinic today, as expected Christina need a platelet transfusion today and will most likely get blood on Wed. Her immune system is still coming up slowly. Maybe when we get to clinic on Wed. her body will be producing enough blood that she won't need it.. hopefully!!!
Again, Christina has really enjoyed reading all that has been written.. anything to put a smile on her beautiful face...puts a smile on all our faces... Sherry
Friday, October 11, 2002 at 01:26 PM (CDT)
Hello,
We went to clinic today, she had her blood work done and her immune system is still low. Christina is not to happy today. She was hoping to get to do a few things this weekend,but she'll have to wait. We still might go fishing or something else outside. The doctors say that being outside is good. She just can't go into buildings/stores etc...or be around alot of people. Sherry
Thank you for writing to me, I like seeing what everyone says. It's nice. christina
Wednesday, October 09, 2002 at 06:47 PM (CDT)
Christina went to clinic today. As expected she got blood and platelet transfusions.Her white blood cells are starting to go up, that is a good thing because that is what makes her immune system come up.Christina insisted we go back to the clinic on friday so she can see if her immune system is high enough that she can do some things this wekend, like go to a movie or shopping, etc.
Thanks to everyone for your prayers and concern...
Monday, October 07, 2002 at 05:54 PM (CDT)
Christina finished her 3rd round of chemo on sept 10th. unfortunatly this round of chemo has hit her hard. She still has no immune system. We went to clinic today, she will be getting blood and platelets on wed. , that is if her blood counts haven't started coming up yet. She is determined that her marrow will start producing blood again. Let cross our fingers!! Through all this she has been very positive. So that's been good.
Monday, October 07, 2002 at 05:45 PM (CDT)
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