Jordan's Page

Welcome to Jordan's Web Page. He was diagnosed with Desmoplastic Small Round Cell Tumor in October 2003 at age 12. He was treated at Connecticut Children's Medical Center by Dr Eileen Gillan who followed Dr Brian Kushner's P6 protocol. He had an extensive surgery at Sloan Kettering by Dr Michael LaQuaglia, followed by radiation, stem cell rescue and 6 months of oral chemo.
He has remained tumor free since his surgery. Unfortunately, on March 28,2006 following a routine 3 month check up, he was diagnosed with MDS, a form of leukemia which rapidly progressed to AML. He received a bone marrow transplant on June 23, 2006 from his brother at MSKCC and is currently recovering from the transplant at home after being in NY for over 4 months.
This website has been provided to keep family and friends updated about his progress.

Journal

Friday, August 21, 2009 8:47 AM CDT

Ok, let's try this again. I typed up my entire update, saved it (I thought), went back to check on something and ~poof~ the whole thing was gone. Oh well, onto the good news.....Jordan's scan came back clear and we are so thankful! No Evidence of Disease continues to be our favorite phrase in the world. He has a follow up visit with Dr Gillan on Monday, so as long as that goes well and his bloodwork comes back fine, we'll be very happy.
Jordan has been having a good summer. He has decided to go to Tunxis Community College to take some general courses because he doesn't know what he wants to do in the future. We think this is a great idea because the school is only 10 minutes from our house and we're hoping that once he is a student there, his eyes may be opened up to different careers he didn't even know existed. His plan is to go to school full time and work part time. So far he hasn't had much luck finding a job, but hopefully that will change once the college kids head back to school.
We ask that you keep our DSRCT family in your prayers especially Daniel, Josh, Jason, Patrick, Zach, Denis, Meliza and Rhema.
Thank you for checking in on Jordan.
Love,
Karen

Hospital Information:

We are home!

Links:

E-mail Author: kmfm66@sbcglobal.net

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Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent.  This information does not confirm that anyone is or was actually a patient at any facility.