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San Jose, CA US - Saturday, May 20, 2017 11:08 AM CDT

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Fremont, CA United States - Saturday, May 20, 2017 10:41 AM CDT

Hope you are all doing well! Thinking of you!
Love and hugs,
Harmen, Hanna, Jan and Jacomien
Haren, The netherlands - Friday, May 31, 2013 3:25 PM CDT

Hope you are all doing well! Thinking of you!
Love and hugs,
Harmen, Hanna, Jan and Jacomien
Haren, The netherlands - Friday, May 31, 2013 3:23 PM CDT

I hope all is well with your family. I would really enjoy an update on Cameron and how he is doing in school and your new house. I hope he is happy. I think of him and you guys often.
Susan Upton <uptonsusan@gmail.com>
- Tuesday, May 10, 2011 10:34 AM CDT

Hello Tracie,Doug and Cam! I dont know how or why you crossed my mind at this second but you did:) Just writing to check in on you guys and tell you I miss you. Hope all is well with Cam and the entire family! I frequent the website every now and then....especially when I need a reality check. Your strength empowers me as a mother and individual! Love you guys. We are planning on venturing out for next years golf outing. Looking so forward!!!!!
Kelly Mash <kmohiorn@aol.com>
Fairview Park, OH USA - Sunday, August 29, 2010 8:21 PM CDT

Thank You for sharing. I hope you don't mind, I passed your link onto my family and bffs. Your insight has made a big difference in our lives. Thanks for sharing yours.
JIll Wood <jillwood73@hotmail.com>
Brooklyn, NY - Sunday, May 23, 2010 12:17 AM CDT

Just checking for new pics. Can't wait to see you guys at Thanksgiving.
Megan Downey <clownbacon@comcast.net>
Fort Collins, CO U.S.A. - Saturday, November 21, 2009 5:48 PM CST

Loved seeing all the pictures. You all are in our thoughts and prayers. Marilyn and I made a donation to the foundation in Wanda Downey's name, but just could not figure out how to put her name in it. God Bless!
Stephanie Cubero
Colorado Springs., CO USA - Monday, August 31, 2009 11:54 PM CDT

Just checking in. It's been awhile since I have visited, I love the new website ~ Great job. Had a great trip to Florida with you Cam ~ you are a true ocean lover!
Uncle Tim <clownbacon@comcast.net>
Fort Collins, CO USA - Thursday, June 4, 2009 4:04 PM CDT

Dear Douglas,
Thinking of you, especially this time of year!
Love to your brother and mon and dad,
Harmen, Hanna, Jan and Jacomien
Haren, The Netherlands - Friday, May 29, 2009 2:34 PM CDT

Happy Belated Valentine Day!
Love,
Patty and Jesse

Pattyt <wordinedge@aol.com>
Baltimore, MD USA - Sunday, February 15, 2009 6:14 AM CST

Hi Tracie,
We're family from Calgary Canada.
Unfortunately our son Hamza has diagnosed with Sanfilippo in 2006 and he got stem cell transplant dec. 2007. Things going very well so far. I found your website when I was searching hope for our son. And we are very happy to see Cameron is doing very well. I've read his journal comletely. Sometimes my eyes filled with tears. You guys went through a lot and have done a wonderful job. Your little angel Douglas is in heaven free all his pain. I admired your family Doug, your mom and dad they're all wonderful people. Also our doctor wants to take look your journal so he could get some idea. You see you didn't only save Cameron also you give us hope too. I congratulate you for keeping update that journal. It's not easy find a time to update when you're busy all those things. Keep up to good work. By the way Cameron becoming very handsome boy ehhh!!! Please update your journal when you have time we want to hear more from you guys. God bless you all
Inal Family
yildirim inal <altinkafes@yahoo.com>
calgary, ab canada - Sunday, December 7, 2008 8:51 PM CST

I found your page via a young couple here in Kentucky that just lost their little girl to Hurler's. I didn't even know these diseases existed until I learned about Alyssa. Her parents are suggesting that any donations be made to Pennies for Nicoll. I praise your wonderful work. God Bless.
Kelly Craig
Pleasureville, KY USA - Saturday, October 11, 2008 9:25 PM CDT

I must admit, I have strayed and have not been here for a while. I got a new computer...again (ugh) and lost all the addresses. I LOVE the pictures. Cameron is such a handsome boy! So adorable. And that he is using the potty is AWESOME!!!! Hope you guys are having a great weekend!
alyssa...www.caringbridge.org/ca/bennettboys (my godchildren) <sabiemc@aol.com>
- Saturday, October 11, 2008 3:46 PM CDT

Hi, Tracie just viewing the site. Looks like Cameron has made a great deal of progress!
Monique Whitaker <monique08123@yahoo.com>
St. Petersburg, FL united states - Monday, October 6, 2008 9:05 AM CDT

Hi Tracie and Doug:

Just checking in to see how you guys are doing. Great job
Cameron!

Love,
Dave, Steph, Ana, Amelia and Cian
The Sartons <davidsarton1@msn.com>
- Saturday, October 4, 2008 8:29 PM CDT

Tracie & Doug
How very proud you must be. Keep up the great work.
He is a beautiful child.
Love to all your family
St Theresa keep on praying
Love Anne & Bob
Anne Antonius <rant42@sbcglobal.net>
Rocky River, ohio - Monday, September 29, 2008 8:06 PM CDT

Hello!

I just had to pop in and say hello. I hope you are all doing well, hugs!

Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Wednesday, August 20, 2008 5:33 PM CDT

Doug and Tracie,
Mike Speer mentioned the Pennies for Nicoll golf tournie, and I am sorry I didn't know about it sooner. I am tracking you guys on the web now, and find your family and perserverance amazing and honorable. My prayers will be with you always... and we really should do better at keeping in touch, Doug. God Bless, Cindi Gehler - remember me? Cheyenne Mountain High, Class of '84
Cindi Gehler <cindi.c.gehler@gmail.com>
Coronado, CA USA - Tuesday, July 29, 2008 4:49 PM CDT

Hey, Tracie! So glad to hear Cam is doing so well. I still check in every once in a long while, so I'm a little late in reading this entry but glad all the same. The pics are darling! He is so cute and getting so big. Keep strong. Love you.
Heidi
american canyon, ca - Monday, July 28, 2008 10:55 PM CDT

Sorry I haven't left any messages in a while. It was so good to hear about how well Cameron's doing and to see such wonderful pictures of him. We think of you all the time and still have Douglas' picture that we look at often.
Much love to you all!
Rai, Heather, Grace, Emma, & Benjamin Henniger <heather.henniger@comcast.net>
Colorado Springs, CO - Tuesday, July 22, 2008 10:46 PM CDT

Hi Tracie - I love the Cam Cam stories. I can't believe how big he's getting, and cuter as the years pass too :-) We moved to the D.C. area in January but got no snow the rest of winter. The kids were bummed that they couldn't make a snow man. Too bad you couldn't have shipped us some of your snow. Hope you're enjoying the summer. Hugs,
Jill and Alex www.caringbridge.com/ca/alexschwab <jillschwab99@hotmail.com>
Vienna, VA USA - Tuesday, July 22, 2008 7:56 PM CDT

John and I are praying for you, especially for sweet Cam! I loved seeing you this past weekend, wish we could have talked more. I will call you soon dear Tracie! Your friend, Michelle
Michelle Goad <mag@western-pm.com>
Windsor, CO USA - Monday, July 21, 2008 11:38 PM CDT

Hi Tracie....thank you for the update, and the wonderful stories of Cam! Thank God for a great school, and great staff. They make all the difference. Glad to read you are all doing well. :) Thinking of you.....
Lara (Allen) Jude <Larajude1@aol.com>
Battle Ground, IN USA - Wednesday, July 16, 2008 6:10 AM CDT

Hi Doug and Tracie ~
Just stopping in to say hello! Thanks for the update and the pictures. Just melted my heart. Cam looks great. He is such a cutie and has a personality to match!!! Good to hear that he is at a school that helps him be his best.
We'll be coming to Duke the first week in August. How often do you come back? Have a great summer!

Pat , Sal, Mishael and Isaiah ~~~ Isaiah�s Journey ~~~ <pat.bingham@charter.net>
Whitmore Lake, MI - Thursday, June 19, 2008 7:53 AM CDT

Yay, yay, yay!!! Such happy news and great stories!

Love and hugs,
Gretchen
Gretchen Hall <gretchenmhall@yahoo.com>
American Canyon, CA - Friday, May 30, 2008 7:46 PM CDT

Hi Traci,
This is a wonderful update!! We are very glad with such good news, dear Cam.
Love to you all,
Harmen, Hanna, Jan and Jacomien
Haren, The Netherlands - Sunday, May 11, 2008 2:52 PM CDT

Traci,

This is all such great news to hear about Cam. O what blessings they are!! I love the new pics too. He is quite handsome. Cam enjoy the "fizz"... Way to go young man!!
In Love,
Patty and Jesse
Pattyt <wordinedge@aol.com>
Balto, MD USA - Wednesday, May 7, 2008 5:36 AM CDT

Hey there guys,
So great to see the new pictures and hear about all the great progress!!! Well done kiddo! Hope you enjoy the heck out of that Fizz award, because you deserve it. I still check your site almost nightly and I am glad for the up date. You are very special people to me and are always in my prayers. Have a great day and Cam give your mama a great big hug for me. Love Janet
Janet Cottle <JANETCOTTLE@MSN.COM>
Rio Rancho, NM - Thursday, May 1, 2008 10:17 PM CDT

My love to both boys, they have very special parents the family is always in my mind and heart.
Kathy McGee <kathy.mcgee@ntsoc.com>
Colorado Springs, CO United States - Thursday, May 1, 2008 5:26 PM CDT

I've followed your site for a while, but dont think I've signed your guestbook before.
I wanted you to know that I'm thinking of you today, and always.
Love from Vibeke
Vibeke <vibekehovd@hotmail.com>
Skaun, Trondheim, Norway - Tuesday, February 19, 2008 5:30 AM CST

Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Thursday, February 14, 2008 7:09 PM CST

Happy Valentinesday!
Love to you all,
Harmen, Hanna, Jan and Jacomien
Haren, The Netherlands - Thursday, February 14, 2008 2:37 AM CST

Hi Tracie!
I have been thinking about you and your family so much lately, so I finally took the time to check in on you. It sounds like you are taking care of yourself and that Cam is doing great! The photos are wonderful. I am so happy that you found the perfect school for Cam. He sounds so curious and full of wonder!
Love and Blessings,
Stephanie Sarton
Stephanie Sarton <davidsarton1@msn.com>
Colorado Springs, CO USA - Sunday, February 3, 2008 3:29 PM CST

Tracie, glad to see the update, I took your lead and updated too. You are right it is hard to know what is journal worthy anymore. Glad to see the new pics, Cam looks wonderful. Nolan loves Kindergarten also, his para is a wonderful lady who has been through much of the same journey as we have many years ago. We should try to get together this year, Sam and I wanted to come to your fundraiser last year but we couldn't get down there, maybe this year!!
Love,
Nancy
Nancy Ramsey www.caringbridge.com/co/nolanramsey <samdramsey@comcast.net>
Erie, Co - Thursday, January 17, 2008 9:55 PM CST

Dearest family

We are sending our wishes for a Happy New Year 2008!

It was very good to read your update after such a long time. The pictures are awesome! They brought tears in my eyes. We remembered Cam as a baby and now he has become a little man. He (and you all) deserves every happiness and joy!

Kisses,

The Koumpouras Family.
Marianna <ermiskub@yahoo.gr>
Lamia, Greece - Thursday, January 3, 2008 10:06 AM CST

Hi Tracie and family!
Thank you for the much anticipated update! :) Although I already knew how wonderful Cam is doing from seeing you in July! :) (wish I could have met Doug though) Here is to a happy, and continued healthy- 2008! :) Much love to you and all the Cains! :)
Lara (Allen) Jude <Larajude1@aol.com>
Battle Ground, IN 47920 - Thursday, December 20, 2007 9:11 AM CST

Please know you are in my thoughts and prayers this holiday season and every day. May you be blessed in the New Year!
Love and Hugs,
Tami Slawson www.caringbridge.com/ca/slawson

Tami
- Wednesday, December 19, 2007 5:50 PM CST

So glad to read Cam is doing so well! I love the new pictures. His eyes are so beautiful!
alyssa godmother to www.caringbridge.org/ca/bennettboys <sabiemc@aol.com>
- Tuesday, December 11, 2007 11:00 PM CST

I am still checking on you after all these years and I am SO glad to see an update and a happy one at that. Life sounds good. I am glad you got the extra help. We keep hoping Super Nanny will show up for us. We are enjoying our first snow here and the kids got out of school early today. Andrew has been out shoveling our driveway and sidewalk. He loves to work-saves me and makes him happy. I hope you have a wonderful Christmas...and New Years... and Easter...and 4th of July...if we don't hear from you again before that!! Just kidding. Don't you love when you do something good like updating and then someone hassles you. LOL. Seriously, Love, Anne
Anne Himes <arhimes@msn.com www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Wednesday, December 5, 2007 7:27 PM CST

Doug, Tracie, the update is fantastic! Cameron sounds like he is enjoying life like you are. It was great seeing the two of you in San Diego. I miss you guys!
Love Always,
Aunt Peg
Peggy Powers <powersp05@aol.com>
- Monday, December 3, 2007 7:25 AM CST

I've been thinking about your family a lot lately. I'm glad to see the update on Cam. He looks great and so do you!

Sending love your way.
Heather Henniger <hhenniger@adelphia.net>
Colorado Springs, CO - Saturday, December 1, 2007 1:54 PM CST

Not trying to put any pressure out there, but I'm a Mom from your past with a child, with a different "syndrome" - where are you? It's been since January since you posted, praying all is well...Please update us again soon!
michelle
denver, co usa - Friday, November 30, 2007 10:02 PM CST

Doug & Tracie,
It's been awhile since I've visited the site, but I've recently thought of you and Cam and thought I'd check out how the little guy's doing. Dang, he looks just like you, Doug. Poor kid! I know...Danielle looks like me! LOL
Hope all is well with the new company. Prayers and thoughts with you always.
Vicki Gramm <vicki@bestwaydisposal.com>
Colorado Springs, CO USA - Saturday, November 24, 2007 5:57 AM CST

Tracie
I am so happy to read that you are taking care of yourself.Your little guy looks great. God bless you and your family.St Theresa pray for you always. Love Anne Antonius
Anne Antoniua <rant42@sbcglobal.net>
rocky river, Ohio - Friday, November 23, 2007 4:57 PM CST

Hi Tracie - It's hard to believe almost 5 years have passed since Transplant. Cam is so big and it's great that he's doing new things. Glad you have some time to yourself. It's so hard being a caregiver at times. Enjoy your big guy :-) Hugs,
Jill and Alex www.caringbridge.com/ca/alexschwab <jillschwab99@hotmail.com>
Manhattan Beach, CA United States - Friday, November 23, 2007 0:33 AM CST

Thanks for the update. Cam looks so much like our five year old son Nicholas. I am glad to hear about the help you have, I am certain it makes your life much richer. Congratulations!

You all remain in our prayers, and again, it's really good to hear how Cam is doing.
Renee Wiesner <reeree@mchsi.com>
Aurora, IL - Wednesday, November 21, 2007 10:17 PM CST

Not long to go! Are you getting excited? We are!

Love Everyone at Post Pals

viks <viks@postpals.co.uk>
- Wednesday, November 21, 2007 8:36 AM CST

Tracy
It was SO good to read your update and know that you are happy and healthy and that Cam is doing better every day.
The pictures brought tears in my eyes... after all that the little guy (and you) has gone through!
We think of you always. Take care of yourselves!
Kisses,
The Koumpouras Family.
Marianna <ermiskub@yahoo.gr>
Lamia, Greece - Monday, November 19, 2007 10:19 AM CST

Yes...ehem...we like to hear how things are going. Cam has a special place in the hearts of his family; natural, extended, and surrogate.

On to the message though...seeing those beautiful pictures brought mistiness to my eyes, he is such a big boy! And yay to you all for having someone like Cassandra. "Mommy" time is VERY important.

Anyhow, happy Thanksgiving!!!

Hugs,
Gretchen
Gretchen Hall <gretchenmhall@yahoo.com>
American Canyon, ca - Sunday, November 18, 2007 1:32 PM CST

Tracy, It does my heart good to see the progress that cam has had. He is such a handsome little man. May God Bless your family and keep Cam healthy and happy.
Sheila(^jordan's^grandma) <sayeske@yahoo.com>
Decatur, il usa - Saturday, November 17, 2007 7:49 AM CST

Geez, Tracy, she's right, it's about frickin time girlie!! We love to hear the 'babble', seriously!! Hey, it was awesome to see you at the '87 reunion. Tell Megan I absolutely loved talking to her!! You look fabulous, and I'm sooooo happy to hear that the Camster continues to make great strides. Good for you for ditching that 'guilt', someone has GOT to take care of the momma too!! Rock on sistah, and update us a bit more often, wouldya? Even just a 'Cam is moving along' entry is great (and pictures are even better). Love you!!
Kassie Fischer <tandkathome@hotmail.com>
- Friday, November 16, 2007 7:24 PM CST

Fantastic, just absolutely Fantastic!

We love you,

Cooper and the Rieg's
Pete Rieg
- Friday, November 16, 2007 4:23 PM CST

Tracie - How wonderful it is to read about your journey once again. I did not know that Cam was using the potty!! That is great. I also need to tell you the glow that you have reacquired since the nanny came into your lives. The light is back in your eyes again and it seems to have given you a renewed energy to continue to conquer the world. That's great, thanks for the update.
Susan & Jim Smith <ssmith@crystalspecialties.com>
- Thursday, November 15, 2007 10:19 AM CST

I am so thankful that you updated your web page. I check it every once and awhile. It's had to believe how big he his getting. I am thankful that you let go of the mommy guilt (it gets us all one way or other!). Please tell Doug hello and that we keep your family in our prayers.
Dana Jewett (Welch) <jewetts2000@yahoo.com>
Tabor, IA USA - Wednesday, November 14, 2007 9:30 PM CST

I'm glad to read that you and Cameron are still doing well.
Suzanne
Chapel Hill, NC USA - Wednesday, November 14, 2007 3:44 PM CST

I hope all is well and I wanted to stop in and let you know I was thinking of you. Love, Anne
Anne Himes <arhimes@msn.com www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Friday, September 14, 2007 2:17 AM CDT

Hey Sister!!! Where is the update about Cam Cam???!!! I checked in to see how the little man is doing.
Hope you guys are well. Enjoy and take good care of eachother
We love you all~
Michelle, Tony, Gabby, and Aidan <agruber@columbus.rr.com>
Delaware, OH USA - Thursday, August 30, 2007 12:35 AM CDT

Tracie- I loved our conversation the other night!!! I can't think of the last time I thought (and laughed) about the old times . I miss you tons!! I think about you and your babies so much. You are constantly in my thoughts -- let's stay in touch. All my love. ~JaNe'
JaNe' Tobias <jane.tobias@kohler.com>
- Friday, August 3, 2007 11:57 PM CDT

Hi Tracie and Doug,
Katie and I are so pleased to be spending time with Cam-Cam! He is a ball of energy and we love him dearly! We are looking foward to the weekend with him in August!

Love,
Marge and Katie.
The Fletcher's <mfletch03@msn.com>
Colorado , Co USA - Friday, July 20, 2007 10:24 PM CDT

Tracie-- Thinking of you (and your babies & family) more and more every day!! I recieved a message from Jeff that you tried to reach me in Canada...I left a message (this evening) and will keep trying until we connect...I hope soon! It's been too long. All my love. ~JaNe'
JaNe' Tobias <jane.tobias@kohler.com>
- Saturday, July 14, 2007 9:05 PM CDT

Happy July 4th tomorrow!

Thinking of you lots, hope you are super busy having loads of summer fun!
Gretchen Hall <gretchenmhall@yahoo.com>
American Canyon, CA - Tuesday, July 3, 2007 2:43 PM CDT

Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Sunday, June 17, 2007 3:05 AM CDT

Thinking of Douglas, May 27th.
Love,
Harmen, Hanna, Jan and Jacomien
Haren, The Netherlands - Sunday, May 27, 2007 5:54 AM CDT

Paulina and Andrew
Paulina and Andrew Jump MPS III B <caljump@msn.com >
Sparta, Ky USA - Tuesday, May 15, 2007 8:11 AM CDT

I hope Cam has been healthy and is still plugging along. I hope you continue to see improvements every day. Update when you get a chance. Love, Anne
Anne Himes <arhimes@msn.com www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Tuesday, April 17, 2007 3:13 PM CDT

Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Sunday, April 8, 2007 12:42 AM CDT

Thanks for all you do!!

Have a Blessed Easter!
Love,
Patty and Jesse

PattyT <wordinedge@aol.com>
Balto, MD USA - Saturday, April 7, 2007 8:26 PM CDT

Happy Easter Nicolls!

Hugs from California,
Gretchen
G <gretchenmhall@yahoo.com>
American Canyon, c - Saturday, April 7, 2007 1:33 AM CDT

Dearest family
We wish you a Happy Easter Season and we pray always for your well-being and for Cameron's good health.
Love ,
Savvas-Marianna-Dionyssos.
Ther Koumpouras Family <ermiskub@yahoo.gr>
Lamia, Greece - Saturday, March 31, 2007 7:48 AM CDT

Just sending some

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___________________ XX ____________________
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To you,

From Everyone at Post Pals
www.postpals.co.uk
viks <viks@postpals.co.uk>
- Tuesday, March 20, 2007 6:53 PM CDT

Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Saturday, March 17, 2007 7:01 PM CDT

JaNe!! You're ph# was d/c...please forward!
Jane Cain <ManitouCains@Comcast.com>
Manitou Springs, CO El Paso - Friday, March 9, 2007 12:37 AM CST

We are thinking about you.

caringbridge.org/visit/quiltsofhope
Jaime <aquiltofhope@aol.com>
- Friday, February 16, 2007 2:08 PM CST

Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Tuesday, February 13, 2007 11:44 PM CST

Always glad to hear good news, and Cam looks wonderful! The picture with the computer made me laugh because his little second cousin Monica here, who is just a few months younger, has recently discovered some old PC games that her big brother and sister used and she gets that exact same look on her face!

Have a great St. Valentine's Day next week!

Hugs,
Gretchen
Gretchen Hall <gretchenmhall@yahoo.com>
American Canyon, CA - Tuesday, February 6, 2007 4:39 PM CST

Tracey,
Wow Cam looks great!!! So glad Duke went so well! Thanks for the photo and card at Chirstmas, Nolan loves all the pics from our transplant friends, he carries them around. Love to see you guys sometime, we have been pretty busy, Nolan still has significant GVHD and we still spends alot of time @ children's. Well anyway Cam is a cutie!
Love,
Nancy
nancy ramsey <samdramsey@comcast.net>
Erie, Co - Monday, February 5, 2007 6:05 PM CST

i love the pictures! cameron looks beautiful. miss you and think of you
Mary Clarys <cmclarys@MSN.com>
Rock Springs, Wy - Friday, February 2, 2007 5:51 PM CST

I am so glad that the medical results are good and I am even happier that you are seeing proof of them!! I love the pictures. I have a picuture of Andrew very similar to the one of Cam at the computer. It is so great to see our boys working, playing and growing. Love, Anne
Anne Himes <www.caringbridge.org/page/andrewh arhimes@msn.com>
Boonsboro, md USA - Thursday, February 1, 2007 8:42 AM CST

Thanks for the update, Tracie! The Camster is sooo cute, and I'm glad to hear he keeps on plugging away. Go, Cam, Go!
Kassie Fischer
Littleton, CO - Wednesday, January 31, 2007 4:17 PM CST

Hi Cam, did you know January 24 is my dad�s birthday? He told me that your results in last update were his most beautiful birthday present! So congratulations to YOU!! Since I am back in the Netherlands they decided not to do any MRI brain scan on me yet, but this is very encouraging! Whenever that scan of mine may happen, I will certainly keep you posted. I shall never forget that talking to your parents and grandma convinced my mum and dad to go for the treatment, after my dearest friend and Angel Tommy had brought us on the track and showed us the way. Man, am I glad (certainly afterwards)!! You seem to understand a little more of the way of the world than I do, but what I do know is that I am standing healthily and happily in it and that you are my brave friend and brother in arms,
Love to you all,
Harmen

Harmen Prakken <janprakken@planet.nl>
Haren, Netherlands - Wednesday, January 31, 2007 3:24 PM CST

Praise God for such wonderful results!!! I pray for many more belssings througout the year!
Love and hugs,
Patty and Jesse MPS III A
Patty Taormino <wordinedge@aol.com>
Balto, MD USA - Wednesday, January 31, 2007 5:30 AM CST

A wonderful update! Thank you. :) So glad to read that Cam is doing so well! I luv his glasses! What a cutie! :)

Lara (Allen) Jude <Larajude1@aol.com>
Battle Ground, IN - Friday, January 26, 2007 8:48 AM CST

Hey Tracie,

That is great news!!! I am so glad to hear that. The pictures of Cam are the cutest ever!!! I can't believe he is already losing teeth.

All our love to you and the family. Say hi to your mom and dad for me.
Cheryl, David, Mikey and Angelo <cheryl.baca@cox.net>
Santa Fe, NM - Wednesday, January 24, 2007 7:37 PM CST

Hi Tracie,

I am thinking of you and the family this morning hoping that the holidays brought good news for you from Duke.

Happy New Year!
Cheryl Baca <cheryl.baca@cox.net>
- Wednesday, January 17, 2007 7:36 AM CST

Dearest Family
Many wishes from accross the occean for a very Happy New Year 2007. We think of you always and we pray for Cameron's wellness. May your life be full of health and happiness during 2007.
Love,
Marianna.
The Koumpouras Family <ermiskub@yahoo.gr>
Lamia, Greece - Wednesday, January 3, 2007 9:57 AM CST

HAPPY NEW YEAR !!!!

STACEY AND LUCAS MPS III~B
http://www.caringbridge.org/visit/hopeforlucas
Cedar Rapids, IA - Tuesday, January 2, 2007 7:01 PM CST

Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Sunday, December 31, 2006 9:45 AM CST

Dear Doug and Tracie,
You and Cam are still in our thoughts and prayers. May 2007 be a great year for you all.
With Love,
Phil & Arlene
Phil & Arlene Bosma <pbosma@att.net>
Colorado Springs, CO USA - Friday, December 29, 2006 9:31 PM CST

Hello!

First I have to say a belated Happy Birthday Tracie! I also hope that you had a wonderful Christmas, HUGS!

Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Tuesday, December 26, 2006 11:03 AM CST

MERRY CHRISTMAS!!!

Hugs from California,
Gretchen
Gretchen Hall <gretchenmhall@yahoo.com>
American Canyon, CA - Monday, December 25, 2006 7:57 PM CST

Dear Mr. Hallmark,

I am writing to you from heaven, and though it must appear,
A rather strange idea, I see everything from here,
I just popped in to visit, your stores to find a card,
A card of love for my parents, as this day for them is hard,
There must be some mistake I thought, every card you can imagine,
except I could not find a card, from a child that lives in heaven,
they are still a parent too, no matter where I reside,
I had to leave, they understand, but oh the tears they cried,
I thought that if I wrote to you, that you would come to know,
that though I live in heaven now, I still love my parents so,
they talk with me, and dreams with me, we still share laughter too,
memories are our way of speaking now, would you see what you can do?
my parents carry me in their heart, their tears they hide from sight,
they plants flowers in my garden, there my living memory dwells,
they writes to other grieving parents, trying to ease there pain as well,
so you see Mr. Hallmark, though I no longer live on earth,
I must find a way, to remind her of her wondrous worth,
they need to be honored, and be remembered too,
just as the children of the earth will do,
thank you Mr. Hallmark, I know you will do your best,
find a way to tell them, how much they mean to me,
until I can do it for myself, when she joins me in eternity.

I know Christmas must be so hard for you although I can't comprehend how difficult it must be.

All my love,

Viks

viks <viks@postpals.co.uk>
- Friday, December 22, 2006 10:17 AM CST

Happy Birthday Tracie! Since I don't know if the email address I have still works, I thought my next best bet would be in the guestbook. So have a great birthday today and a great weekend celebrating it and Christmas!
Mark Gappa <mgaps@hotmail.com>
Chicago, IL - Friday, December 22, 2006 9:54 AM CST

I can't imagine the thoughts and nightmares of returning back to there to do testing! I pray that you are able to overcome the hard times and enjoy the holiday season with Cam and your family! Praying that the results of the MRI came back good! Enjoy every day at it's best, and live for each day that we have here!

Hugs and love,
Patty and Jesse MPS III A

Patty Taormino <wordinedge@aol.com>
Balto, MD USA - Saturday, December 16, 2006 7:13 PM CST

Tracie, I am sorry I have not gotten ahold of you sooner, I would still very much like to help out with the Foundation if you are in need of any help. My prayers are always with your family. - Erica www.caringbridge.org/wi/ericathiel
Erica Thiel <scheiecat@yahoo.com>
Beaver Dam, Wi - Tuesday, November 28, 2006 4:36 PM CST

Tracie

I cannot begin to imagine how difficult it must be to return to Duke. How could you not be haunted with memories, longings, and nightmares? The unthinkable happened to you there but you also came away with Cameron. I am so happy to hear that his tests went well. I love your spirit and hope to speak with you again about foundation stuff.
Leslie Jurado <lesliejurado@rhtc.net>
- Sunday, November 26, 2006 6:10 PM CST

Hi Tracie! I'm one of those that still check in every now and then... I'm very very eager to hear about Cam's MRI and pray that all is OK.. that the treatment did ultimately what we wanted it to do. Please tell Mama Jane that I said "hello" and give yourself a big hug from me and ^^REESE^^!!!
Shawn Samuelson <shawnysamuelson@yahoo.com>
Ansbach, Germany - Friday, November 24, 2006 3:57 PM CST

Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Thursday, November 23, 2006 11:09 PM CST

alyssa <sabiemc@aol.com>
sacramento, ca usa - Wednesday, November 22, 2006 10:22 PM CST

Doug & Tracie,
Hey a great time was had at the 1st. Annual BOAC Turkey Shoot 11-17-06, a benefit for Pennies for Nicoll Foundation. Hope they have this event next again, maybe we can get more people there also. Hope all tests with Cam come out ok, haven't seen him in awhile, sounds like he making great progress.
God's speed and strength to all of you and have a Great Thanksgiving Day, to be thankful for what we do have.
See Ya, Dennis,
P.S. Doug the geese are flying.
Dennis Vierow <dennisv@naenet.net>
Sterling, CO 80751 - Monday, November 20, 2006 3:13 PM CST

Doug and Tracie, how great it was to visit with you and Cameron in August. I will always remember the "special" vacation I had because of you. Our little guy actually began to accept me with his morning "nods" on the head, to say he liked where we were. I did too!
Love Always,
Aunt Peg
Peg Powers <powersp05@sol.com>
- Sunday, November 19, 2006 9:05 PM CST

Dear Traci and Family.
Just a note to say we are thinking about you and always praying for you. love ANNE & Bob Antonius
Anne Antonius <rant@cox.net>
rocky river, oh - Thursday, November 16, 2006 7:03 PM CST

Thank you for the update. I think of you often, and am so happy to read that Cam Cam is wonderful and happy! :) Class of '87 reunion is in July- I'll be home for it & would luv to see you and meet Cam!
Many hugs to you all!
Lara (Allen) Jude <Larajude1@aol.com>
Battle Ground, IN - Tuesday, November 14, 2006 2:08 PM CST

It must be so hard. My sister died at Boston Children's Hospital and it took me 15 years just to go back to Boston. I have never been able to return to Children's, but I want to for some reason. Like, I almost think she is still there. Yet, I know the memories of her time there will flood me and I'm not sure if I can or want to deal with that. Glad to hear the Camster is doing well and praying his MRI results come back with good news!
Lisa Post <ltjpost@yahoo.com>
- Monday, November 13, 2006 3:47 PM CST

I am so sorry that it was such a tough trip. I hope the results are fabulous. I can, in a small way, understand how you felt. I see and hear the ghosts of the past when I visit too but for me it is other peoples children I see and hear and not my own. I think, 'so and so was in that room until they passed' or 'that family lived there until they left.' I can't imagaine how much it must hurt for you. I wish those awful nightmares would just go away for good. The torment of the day should be enough, you shouldn't have to be haunted at night too. Douglas is safe and happy. He isn't where we would like him to be right now but he is not sad and abandoned and he knows how very much you love him. Love, Anne
Anne Himes <www.caringbridge.org/page/andrewh arhimes@msn.com>
Boonsboro, md USA - Monday, November 13, 2006 11:34 AM CST

Hi Tracie & family,

It saddens me to see you go through such pain on your trip back to Duke. I hope that with that pain comes good news for Cameron. You are a very strong woman and never cease to amaze me with your strength.

We love you and keep you and your family in our prayers always.
Cheryl, David, Mikey and Angelo <cheryl.baca@cox.net>
Scottsdale, AZ - Sunday, November 12, 2006 11:10 AM CST

I am sorry for your pain. That was beautifully written, and so heartfelt. I wish there was more I could say or do to comfort you, but all I can do it keep you in our prayers and look forward to good news. We had the Divine Liturgy said for your family's healing, physical, emotional and spiritual in October. And we don't forget Douglas. May his memory be eternal!
Renee Wiesner <reeree@mchsi.com>
Aurora, IL - Saturday, November 11, 2006 2:00 PM CST

Hi Guys!
It was nice to hear from you again. I'm sorry your trip brought back so much pain and we're praying for the best of results for Cam. Thinking of you and your families always.
The Riley Family <Kriley1188@aol.com>
Cleveland, Ohio - Thursday, November 9, 2006 12:12 AM CST

Dear Nicolls,

My heart was aching reading about how the trip affected you. It was hard enough to go back to Children's Hospital after we brought our Tommy home 5 years ago. I cannot imagine what it was like for you, but I can imagine an adorable little gaurdian angel walking those halls with you to help you get through it all.

And great news that Cam is letting the doctors assess him without fuss! That has got to be one of the bigger challenges with toddlers and preschooolers, just getting them to do what they need to do so the doctors can get an accurate idea of their progress. We will of course keep our fingers crossed and prayers going for clear MRI results.

Lots of hugs from CA,
Gretchen
Gretchen Hall <gretchenmhall@yahoo.com>
American Canyon, CA - Wednesday, November 8, 2006 0:31 AM CST

We love you!
The Rieg's
Durham , NC USA - Monday, November 6, 2006 12:50 AM CST

Hope you're having a healthy Fall season! Praying all went well at Duke also!
Hugs and prayers,
Patty and Jesse MPS III A

Patty Taormino <wordinedge@aol.com>
Balto, MD USA - Thursday, November 2, 2006 3:49 PM CST

alyssa <sabiemc@aol.com>
sacramento, ca usa - Tuesday, October 31, 2006 3:13 PM CST

Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Tuesday, October 31, 2006 10:08 AM CST

Tracey & Cam,
Just thinking of you today. Nolan is at clinc getting IV's and I was thinking how long it has been since we have seen you guys. Hope Cam is well. We really wanted to come to your fundraiser but it just was not possible on that day. We were thinking of you. Give Cam a hug and big Hi from Nolan.
Love, Nancy

Nancy Ramsey www.caringbridge.org/co/nolanramsey <samdramsey@comcast.net>
Erie, Co - Wednesday, October 25, 2006 2:41 PM CDT

Tracie, Megan and Cameron - I know this will be a tough week for all of you back at Duke. Our prayers are with you.
Love, Jim & Susan
Jim & Susan Smith <ssmith@crystalspecialties.com>
- Monday, October 23, 2006 2:13 PM CDT

Hello dear friends!
We just wanted to say Hi! and wish yoy a happy winter season. We think of you always.
Kisses ,
Savvas-Marianna-Dionyssos.
Marianna <ermiskub@yahoo.gr>
Lamia, Greece - Thursday, October 12, 2006 9:59 AM CDT

Hi, Nicolls! Just checking in and saying hello!

Hugs,
Gretchen
Gretchen Hall <gretchenmhall@yahoo.com>
American Canyon, CA - Monday, August 28, 2006 2:56 PM CDT

I was posting this picture on Cassie's site, and thought I would swing by your page to say "hello", I'm glad to read that Cameron is doing so well :)

Lots of love

Viks

viks <viks@postpals.co.uk>
- Tuesday, August 22, 2006 8:54 AM CDT

Hi there.
Just checking in, and wishing for a new wonderful update....hint, hint....:) I'm sure you are all busy & enjoying your summer!
Thinking of you!
Lara (Allen) Jude <Larajude1@aol.com>
Battle Ground, IN USA - Monday, August 14, 2006 8:33 AM CDT

Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@Hotmail.com>
- Tuesday, August 8, 2006 1:51 PM CDT

Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Sunday, July 23, 2006 1:50 AM CDT

Hi Nicolls:

Still checking in and sending our love. Hope to talk to you soon!
David and Stephanie Sarton <davidsarton1@msn.com>
- Friday, July 21, 2006 10:47 PM CDT

I am so glad to hear the boys are doing and loving their surroundings. I cant believe Douglas would be six already. Its not normal for a six year old to be in heaven on his birthday.
Chris Gooch's mom <chrisrusso_@hotmail.com>
- Saturday, July 15, 2006 3:36 PM CDT

Hi Tracie & Cam
It's so nice to read that "Life is good for Cam"! You're really blessed to have such a supportive "Educational" team for Cam. Scotty also does the PECS and we love it.
Take Care,
Kim & Scotty (MPS II)

<cottons@earthlink.net>
Modestoc, ca - Saturday, July 15, 2006 0:47 AM CDT

Dear Tracie, Doug and Cameron,
Just a little note to let you know that we think of you, especially today, July 11th. It is hard to believe that it is already 3 years ago that Douglas earned his angelwings.
We send hugs and love across the ocean,
Harmen, Hanna, Jan and Jacomien
Haren, The Netherlands - Tuesday, July 11, 2006 8:42 AM CDT

Happy Fourth of July!!!

Hugs,
Gretchen
Mike and Gretchen Hall and family <gretchenmhall@yahoo.com>
American Canyon, CA - Tuesday, July 4, 2006 1:59 AM CDT

Hello,

I hope you are all enjoying your weekend and have a wonderful 4th of July!

Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Sunday, July 2, 2006 1:29 PM CDT

Have a blessed Independence Day!! We are blessed each day to still have life and God's pleasures!

Hugs and prayres,
Patty and Jesse MPS III A

Patty Taormino <wordinedge@aol.com>
Balto, MD USA - Saturday, July 1, 2006 8:14 PM CDT

Sorry we haven't left any messages lately. We've been thinking of you and are so happy to hear that CamCam is doing well.

It only makes sense that emotions would run high around Douglas's birthday. How could they not? Let your body do what it needs.

If you feel you need Botox, let me know and maybe we can get a 2-for-1 deal!
Heather Henniger <hhenniger@adelphia.net>
Colorado Springs, CO - Saturday, July 1, 2006 4:24 PM CDT

Cameron,Just stopping by to say hi and to let you know we are thinking about you.

God bless,love&hugs,Linn,Daniel & Ariel
The Marrero's <gillinn7@msn.com>
Port Orchard, wa usa - Sunday, June 25, 2006 11:53 AM CDT

Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Saturday, June 17, 2006 6:26 PM CDT

I love to read the progress he is making. I'll keep praying. Love to all---- St Theresa & Nancy will pray for you. Love Anne & Bob
anne antonius <ran@cox.net>
rocky river, oh - Wednesday, June 14, 2006 7:32 PM CDT

Doug and Tracie, It does my heart good to see the positive out come from transplant. Cam is getting so big! He is one handsome dude. I pray that God will give you comfort. I still have my days where it just doesn't seem real that we went through transplant and almost two years later lost ^Jordan^. May God continue to Bless Cam.
Sheila ^Jordan's^ G.Ma <sayeske@yahoo.com>
Taylorville, il - Wednesday, June 14, 2006 7:53 AM CDT

It's been three years since we moved from Colorado Springs and I have to admit that I still go to your website often just to check in. Your family is never to far away from our hearts. I pray for you often.
Dana Jewett (Welch) <jewetts2000@yahoo.com>
Olathe, KS - Tuesday, June 13, 2006 10:05 PM CDT

What an update! I felt such a relief after reading it!
We are very happy every time we read that Cam is doing well and is enjoying his life with his wonderful family.
We are sending our wishes for a very nice summer season.
Love,
Savvas-Marianna-Dionyssos.
Marianna <ermiskub@yahoo.gr>
Lamia, Greece - Sunday, June 11, 2006 8:29 AM CDT

Hi Doug and Tracie,
It was great visiting with you. I thank God I got the opportunity to see Cameron. I love the way he communicates; especially when he doesn't want to hear or do something; he sticks his fingers in his ears and shakes his head! The little man knows what he wants! He is precious. His diet leaves a lot to be desired, as his favorite treat appeared to be stones. But I believe it's a game he developed so he could laugh when you take them away from him. My prayers continue.
Love Always,
Aunt Peg
Peg Powers <powersp05@aol.com>
- Saturday, June 10, 2006 1:07 PM CDT

Hello,

I am so happy to hear that Cam is having a great time exploring and learning, that is so wonderful! I know what you mean about stuffing down the tears, but sometimes that's what we have to do. Tommy would also be 6 years old and I can't help but wonder what he would look like and what he would be doing if he were still here with us. I But I also know that the boys had a wonderful time while they were here on earth with us and they are still right by our side every day. HUGS!

Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Friday, June 9, 2006 9:00 PM CDT

I am glad to hear that Cam is doing so well and enjoying the beauty this world has to offer. He sounds like such a sweet and precious boy.
Leslie Jurado <lesliejurado@rhtc.net>
- Friday, June 9, 2006 7:57 PM CDT

Thanks for the update, it is always good to hear about how Cam is doing.

And no Botox, you have a cousin here who is a Mary Kay consultant...Botox is the enemy! Free eye-cream from family is the way to go! hehehehe

Lots of hugs,
Gretchen
Mike and Gretchen Hall and Family <gretchenmhall@yahoo.com>
American Canyon, CA - Wednesday, June 7, 2006 12:06 AM CDT

Tracie,

So good to see the update this morning. I am so glad that Cam is doing well and that he is continually making progress.

I am sure because of your deep love for Douglas, you will always have his memories and they will sometimes bring you joy and sometimes pain, but Tracie, you have done amazing things with your pain and experience to make positive and life changing experiences not only for you but for other people. Your children have shown throughout that they have immeasurable strength and my guess is they got a lot of that from you.

No Botox yet Sister, we are still too young!!! :)
Cheryl Baca <cheryl.baca@cox.net>
Scottsdale, AZ - Tuesday, June 6, 2006 10:58 AM CDT

Tracie,
Stopped by to say hi and we are thinking of you and your family. We are at Duke for her two year study. She cought a virus and and we've been at Duke for 3 weeks now. We can't go home until she is more stable and they find out what is wrong with her nutrophil count. How is Cameron doing? As always, we love to find out how everyone is doing. Annabelle loves to see your boys pictures, her friends. Love Annabelle and Christine
christine barrietua <barrietua@yahoo.com www.saveannabelle.org>
boise, id usa - Thursday, June 1, 2006 10:18 AM CDT

Just stopping in to wish you all a wonderful Holiday weekend! We think of you often!

Patty and Jesse MPS IIIA

Lysosomal Storage Diseases Support Forum

Hugs and prayers,
Patty and Jesse MPS IIIA

Lysosomal Storage Diseases Support Forum
Patty Taormino <wordinedge@aol.com>
Balto, MD USA - Monday, May 29, 2006 3:16 PM CDT

Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Friday, May 26, 2006 8:59 PM CDT

Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Sunday, May 14, 2006 9:15 AM CDT

Happy Mother's Day!
Love,
jennifer & Allison
Jennifer Restemayer <jennmarie@bis.midco.net>
Bismarck, ND USA - Saturday, May 13, 2006 10:12 PM CDT

Kim & Scotty (MPS II)

<cottons@earthlink.net>
Modesto, CA - Saturday, May 13, 2006 6:47 PM CDT

Hugs for you all,
Patty and Jesse MPS IIIA

Lysosomal Storage Diseases Support Forum
Patty Taormino <wordinedge@aol.com>
Balto, MD USA - Saturday, May 13, 2006 11:43 AM CDT

Traci --- Glad things are goimg well for you and your family Love and prayes Anne & BOB
ANNE ANTONIUS <RANT@COX..NET>
ROCKY RIVER , OH CUYAHOGA - Monday, May 8, 2006 8:03 PM CDT

Just a quick hello to you, Doug, and Cameron. Think and pray for you often.
Love Always,
Aunt Peg
Peg Powers <powersp05@aol.com>
- Thursday, May 4, 2006 2:17 PM CDT

I just wanted to stop by and see how you all were doing. Have a great weekend!

Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Saturday, April 29, 2006 1:47 PM CDT

Hi Aunt T....
I haven't viewed for so long because you are so near to me, we just talk.....It was a good and different perspective.
Cam's milestones are amazing, and I hope they continue to make your days and bring you hope.
You are a treasured friend, godmom, and love to my family.
Keep Rocking this world.
-Shan
Shannon Sullivan <shannon.williams@hrbmc.com>
- Monday, April 17, 2006 11:53 PM CDT

alyssa <sabiemc@aol.com>
orlando, fl usa - Sunday, April 16, 2006 1:15 AM CDT

Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy - BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Saturday, April 15, 2006 4:48 PM CDT

Happy Easter from CA!

Hugs,
Gretchen
Hall Family <gretchenmhall@yahoo.com>
American Canyon, CA - Thursday, April 13, 2006 7:26 PM CDT

Kim & Scotty (MPS II)

<cottons@earthlink.net>
Modestoc, ca - Tuesday, April 11, 2006 11:25 PM CDT

Just wanted to pop in and wish you guys a good Holy Week and Happy Easter!

Hugs,
Gretchen
Mike and Gretchen Hall and Family <gretchenmhall@yahoo.com>
American Canyon, CA - Sunday, April 9, 2006 10:35 PM CDT

Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy - BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Sunday, April 9, 2006 9:48 AM CDT

Dear Tracie,
I am so sorry to hear your frustration but I sure do understand. I wish I had some magic to share with you. I read a new book called "you will dream new dreams" It was nice but you are sooo right in saying that it just keeps going and going and I think it is the daily survival with all the little jobs and tasks and worries that wear you down. It is amazing that any of us are still married but I can't imagine going through this alone! I hope that Cameron's joy will be your joy and that he will just keep plugging along, making progress. Lots of love, Anne
Anne Himes <arhimes@msn.com www.caringbridge.org/page/andrewh>
Boonsboro, Md USA - Thursday, March 23, 2006 9:08 AM CST

Hi dear friends!
We wanted to let you know that you are always in our hearts, we think of you all the time and we pray that Cam becomes a healthy and happy boy and man. Your update has touched us...
Love,
Savvas-Marianna-Dionyssos.
Marianna <ermiskub@yahoo.gr>
Lamia, Greece - Monday, March 20, 2006 5:26 PM CST

Well, it was worth the WAIT for the update! Cameron sounds likes he's communicating what he wants. A good sign! Every day a little more progress. Prayers continue.
Love Always,
Aunt Peg
Peg Powers <powersp05@aol.com>
- Sunday, March 19, 2006 9:30 AM CST

Happy St. Patrick's Day

Love, Kim & Scotty (MPS II)
www.caringbridge.org/ca/friends
Kim <cottons@earthlink.net>
- Friday, March 17, 2006 5:27 PM CST

Does Cameron watch Fairly Odd Parents? Tommy loved them so that is why I am leaving you a Fairly Odd Parent picture below. Have a great day!

PRAYER BEARS WEBSITE

Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy - BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Thursday, March 16, 2006 10:25 AM CST

What an update... Thanks for sharing you feelings Tracie. There is little I can say except that you are brave and strong and that keep up the strenght, the fight, the energy, the faith... Love
Marcella and Sean <mmarone@caliboro.com>
- Wednesday, March 15, 2006 1:17 PM CST

I learned of your children through another MPS III family. I'm so happy to hear that you are seeing cognitive progression, and not regression. That is so hopeful!! Jesse was not diagnosed until 6 years old (almost 5 years ago) No one could tell us what was wrong. Anyway we started the genistein back in June 2005. We figured it was a low risk thing to try after doing much research. (Jesse was too old already for other options) Jesse was starting to regress rapidly cognitively. It seems to have stopped the regression in it's tracks so far. He is doing wonderfully considering where he was before.
I pray you see much improvement with your son also. All these treatments bring so much hope for other families, where there was no hope in the past!
May God Bless you and your family!!
Many hugs and prayers
Patty and Jesse MPS III A
Patty Taormino <wordinedge@aol.com>
Balto, MD USA - Wednesday, March 15, 2006 7:40 AM CST

A friend sent me this and I'm passing it around:
This is God. Today I will be handling All of your problems for you. I do
Not need your help. So, have a nice day.

I love you.

with love, <Deirdre40@frontiernet.net>
- Wednesday, March 15, 2006 7:12 AM CST

Thank you for the wonderful update. You are in our thoughts all the time. Of course, we will continue to ask for Cam's complete healing, and that you will always feel Him holding you all in the palm of His hand. Blessings!
Renee Wiesner <reeree@mchsi.com>
- Tuesday, March 14, 2006 10:45 PM CST

PRAYER BEARS WEBSITE

Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy - BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Tuesday, March 14, 2006 1:13 PM CST

So good to get the update! I loved the pictures, especially the one with Cam in his glasses. He looks great! Keep fighting the good fight and know that you are never alone!
Heather Henniger <hhenniger@adelphia.net>
Colorado Springs, CO - Friday, March 10, 2006 1:26 PM CST

Hi, Tracie. It's great to get an update! It sounds like he is actually make wonderful strides! Red Robin happens to be one of our favorite places. Matt grew up in Seattle where Red Robin started. And he has taken me to the very first one! He and his friends often went there in high school. So we at least know that Cam has fantastic taste!! I wanted to ask you to pray for my friend's niece. She lives in North Carolina, is four years old and on Jan. 1st was diagnosed with an inoperable brain tumor. She has a Caringbridge site as well. Her name is Juliana Hernandez. I figured you have an "in" with the Big Guy! :) Thanks!
Heidi <homeschoolingqueen@yahoo.com>
American Canyon, CA - Friday, March 10, 2006 11:20 AM CST

Hi Guys! It was really great to hear from you again. We never stop thinking about you and praying for you. We've never been to Red Robin, but will now check it out since Cam thinks so highly of the place. Take care and we love you!
Kristin Riley and Family <Kriley1188@aol.com>
Cleveland, Oh - Wednesday, March 8, 2006 10:33 AM CST

Thanks so much for the update, it is truly wonderful to hear about the progress Cam has been making. Next time we eat at Red Robin out here I will surely be thinking of him.

Lots of hugs from California,
Gretchen
Gretchen Hall <gretchenmhall@yahoo.com>
American Canyon, CA - Wednesday, March 8, 2006 2:53 AM CST

Enjoy, enjoy the good stuff. None of us has control of the future! So good to hear from you.
with love, <Deirdre40@frontiernet.net>
- Tuesday, March 7, 2006 7:21 AM CST

Happy Sunday to you Tracie! I was glad to see your post today. I try to check on you guys often and it is always nice to see the positive things you share when you post. I am so glad Cam is doing well and that there are steps forward in his progress.

We miss and love you much!
Cheryl, David and Angelo Baca <cbaca@beazer.com>
Scottsdale, AZ 85260 - Sunday, March 5, 2006 5:58 PM CST

Hello!

I just wanted to say thank you so much for everything! It has been a bit of a rollar coaster here lately, but we are still on the ride! I am happy to hear that Cameron is communicating, no matter how he does it, at least he is doing it and that is wonderful!

Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Saturday, March 4, 2006 9:18 PM CST

Hey Nicolls!

Thank you so much for the update. We check in for progress
all the time.

Love,

The Sartons
David, Steph, Ana and Amelia <davidsarton1@msn.com>
- Saturday, March 4, 2006 8:41 PM CST

I'AM ALWAYS THINKING AND PRAYING FOR YOU AND YOUR FAMILY. lOVE AND ST THERESA PRAY FOR YOU ANNE & BOB ANTONIUS
ANNE ANTONIUS <RANT@COX.NET>
- Saturday, March 4, 2006 4:05 PM CST

Hi Doug and Tracie. Every time I visit the Journal I'm looking for an update. I keep you in my prayers, and look forward to hearing from you. Give Cameron a big hug and kiss and enjoy his progress. I know how time consumming a little one can be!
Love Always,
Aunt Peg
Peg Powers <powersp05@aol.com>
- Friday, March 3, 2006 9:15 AM CST

alyssa <sabiemc@aol.com>
orlando, fl usa - Saturday, February 25, 2006 7:35 PM CST

Alicia, Ciara, Hunter & Angel Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Saturday, February 25, 2006 11:19 AM CST

Just wanted to check in again and hope you had a nice St. Valentine's Day!

Hugs from CA!

Mike, Gretchen, Catie, Tommy, and Monica Hall <gretchenmhall@yahoo.com>
American Canyon, CA - Wednesday, February 15, 2006 7:37 PM CST

alyssa <sabiemc@aol.com>
orlando, fl usa - Monday, February 13, 2006 9:20 PM CST

Love,
Patty and Jesse

Patty and Jesse MPS III A <wordinedge@aol.com>
Balto, MD USA - Monday, February 13, 2006 6:28 PM CST

Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Sunday, February 12, 2006 5:34 PM CST

We haven't heard from you in a while. I'm assuming no news is good news. We think of you all often. Take care!
Heather Henniger <hhenniger@adelphia.net>
Colorado Springs, co - Tuesday, February 7, 2006 3:28 PM CST

Hi Doug and Tracie. Time is flying by. I can't believe it's February already. I'm sure Cameron is enjoying school and interaction with the other children. With Valentine's Day upon us, I'm sure he'll give you his heart.
Love Always,
Aunt Peg
Peg Powers <powersp05@aol.com>
- Friday, February 3, 2006 7:47 PM CST

alyssa <sabiemc@aol.com>
orlando, fl usa - Friday, January 27, 2006 5:09 PM CST

Glad to hear your all doing well. God Bless you and St Theresa continue to pray for you > love Anne & Bob Antonius
anne antonius <rant@cox.net>
- Friday, January 27, 2006 4:45 PM CST

Hello Nicolls! I haven't posted in a while, but wanted to make sure I did this time! Glad to read The Camster is doing so well! HAPPY NEW YEAR!!!!!!! Thinking of you all!
Lara (Allen) Jude <Tawking2u1969@aol.com>
Battle Ground, IN USA - Thursday, January 26, 2006 4:58 PM CST

It is so wonderful hearing how well Cam is doing! I remember those days of trying to "keep" the hearing aids and glasses on! He's 10 now and I STILL have to keep on him to keep them in when he is not at home! LOL
You are all in my thoughts and prayers.
Renee
www.caringbridge.com/ny/my2angels <rcurk@aol.com>
- Thursday, January 26, 2006 8:16 AM CST

Just popping in to say hello!!!

Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Thursday, January 26, 2006 2:05 AM CST

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