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www.thelilyfoundation.org


"Say that blessings come because we let them..." - Karen Harryman








“Nothing worth doing is completed in our lifetime; therefore we must be saved by hope. Nothing true or beautiful makes complete sense in any immediate context of history; therefore we must be saved by faith. Nothing we do, however virtuous, can be accomplished alone; therefore, we are saved by love.” - Reinhold Niebuhr

Lily's Faith Bracelet after surgery 05/09/08

"Consider it joy my brothers whenever you face trials of many kinds because you know the testing of your faith, develops perserverance." James 1:2-4




"Not all of us are here to be saints in the eyes of a religious authority, but we are all saintly in that we have the God force within us. our bodies are nothing more than the curriculum that we are taking to reach God. If your body cannot see or hear, or is missing a limb, or immobilized, this is not an indication that your life mission is canceled.
You can do your work from a wheelchair as well as a pulpit...from a bed in a quiet room or from behind a piano..." - Wayne Dyer, A Promise is a Promise.

On Facebook and MySpace? Join the group "Newborn Screening Awareness" and these pages on MySpace:

http://www.myspace.com/savebabiesthruscreening

http://www.myspace.com/thelilyfoundation

Journal

Friday, July 3, 2009 11:52 PM MST

I received more pictures this evening from Elya of Lily at camp! And, tomorrow I get to go see her! I am not going to be able to sleep, I miss her so much and am anxious to get there and give her a big hug!

When I talked with Elya on the phone tonight, she said Lily got to do the zip line, and giggled a lot when Elya was at the end of the line to get her. Also, they had their camp dance tonight and Lily had a wonderful time. I guess they ran her all around the dance floor (and I know my girl loves music!)

And, apparently Lily was getting homesick today. When Elya had to put her on her bed a few times, Lily would cry when she saw all the pictures I posted of family and friends, near her bed. It's a good thing I'm getting up there tomorrow!

Below are pictures!

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Getting ready to go up and get on the zip line!

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Still getting ready!

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That's Lily being lifted up! I got teary eyed again, seeing this. So cool! So so cool!!

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Wheeeee! (Wish I could see her face!)

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This is where Elya said she was giggling. Wish I could see it!! Kind of a funny shot though - LOL - it's cute!

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Ha ha! I know what sound she's making, don't you?

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Lily and Hannah. Hannah and her family live in Denver, and Hannah has GA-1 as well!

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Wonder what she's thinking about? :)

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Out fishing again!

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Lily and Elya :) Very sweet photo.

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Ready for the camp dance!

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Lily and Hannah, hangin' out at dinner time, before the dance!

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Lily and Hannah on the dance floor!

I'll post more tomorrow!

Sarah

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Links:

http://co.easterseals.com/site/PageServer?pagename=CODR_Rocky_Mountain_Village   Easter Seals Rocky Mountain Village
http://www.elisangels.com   Eli's Angels
http://www.baileybaioangelfoundation.com   For Families of Children with an Organic Acidemia - Visit!!


 
 

E-mail Author: SMKLCR@hotmail.com

 
 

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