|
Kyle was first diagnosed with Pre B ALL (acute lymphoblastic leukemia) on February 2nd of 2000, having just turned 3 years old. This is the day that will forever have changed our lives!
After 3 years and 2 months of chemotherapy, Kyle finished his treatments on March 28th of 2003.
On May 18th, 2004 (14 months off therapy) his leukemia relapsed in his bone marrow! He then endured 3 more years of intense chemotherapy.
Kyle officially went *off thearpy* AGAIN on March 28th of 2007!
The heartbreak continues, on October 8th, 2008 we received the news after a routine check up that Kyle has relapsed once again in his bone marrow. Kyle received and unrelated cord blood transplant on March 11th of 2009. Thank you little baby in Houston, Texas born in January of 2008.
On April 14th, 2009, we received the awesome news that Kyle is 100 percent donor cells, and again on his Day +95 biopsy, thank you Lord!
Kyle(12) lives with his mom, brother Ty(16) and sister Riley(8).
Footprints in the Sand
One night I dreamed I was walking along the beach with the Lord.
Many scenes from my life flashed across the sky.
In each scene I noticed footprints in the sand.
Sometimes there were two sets of footprints,
other times there were one set of footprints.
This bothered me because I noticed
that during the low periods of my life,
when I was suffering from
anguish, sorrow or defeat,
I could see only one set of footprints.
So I said to the Lord,
"You promised me Lord,
that if I followed you,
you would walk with me always.
But I have noticed that during
the most trying periods of my life
there have only been one
set of footprints in the sand.
Why, when I needed you most,
you have not been there for me?"
The Lord replied,
"The times when you have
seen only one set of footprints in the sand,
is when I carried you."
Mary Stevenson
Normal Blood Counts:
White Blood Count 4 - 12
Hemoglobin 11.5 - 14.5
Platelets 150,000 - 500,000
Road Map
Day -9 (Monday) - IT Ara-c in clinic
Day -8 (Tuesday) - TBI (total body irridation)
Day -7 (Wednesday) - TBI
Day -6 (Thursday) - TBI
Day -5 (Friday) - IT Ara-c, Anti-T-Cell Serotherapy
Day -4 (Saturday) - Ara-c - Anti-T-Cell
Day -3 (Sunday) - Ara-c, Cyclophsophamide, Anti-T-Cell
Day -2 (Monday) - Ara-c, Cyclophosphamide, Start Cyclosporine A or Tacrolimus
Day -1 (Tuesday) - Continue Cyclosporine A or Tacrolimus
Day 0 - UNRELATED UMBILICAL CORD BLOOD TRANSPLANT
WAYS TO PERSONALLY HELP:
1. Donate Blood or Platelets at Children's Hosptial
2. Join the Bone Marrow Registry at Marrow.org, Bonfils, or DKMS
3. Sign up at: A Cure for Kyle Care Calendar
4. Send financial donations to: A Cure For Kyle
5. PRAY!
Contact Jen Jones for more information at: jenjoturtle@yahoo.com
"No more crying, it's time to kick cancers butt!"
- Kyle Lindgren 10-10-08
Financial donations to help offset medical and day to day living expenses can be made during this diffcult time to:
A Cure For Kyle
Checks can be made out to: A Cure For Kyle
Please put the account number 528-000797 in the memo field
Due to current personal matters, please email myself or Jen for a mailing address at this time. Questions can also be directed to Sean McGaughey (303)469-1912 at Bank of the West
Recent media coverage of my sweet boy:
The Broomfield Enterprise
Channel 4 News
Channel 9 News
Your Hub
** Please don't forget to sign Kyle's guestbook,we love to hear from you! **
Journal
Saturday, July 4, 2009 11:39 AM CDT Happy 4th of July, Kyle's favorite holiday and he is unable to truly enjoy it...that breaks my heart!
One sign that my baby is a BIG, HUGE fighter...I went upstairs to sleep for the night. When I came down this morning for rounds, I came into Kyle's room to kiss him good morning. I kissed his soft warm head, kissed his steroid/chubby cheek, and whisperd "I love you baby, I am so proud of you!" With Jen on his other side, I hear "holy s*&^, his eyes opened!" I pulled my head up and his eyes were indeed open. I continued to talk to him and told him I loved him, I could see him trying to mouth it back to me. I kept telling him to rest and heal, go back to sleep. Jen said, "I don't think that's good!" Kyle ever so slightly shrugged his shoulders in the "I don't know either" way and we got the nurse.
She looked and his blood pressure indeed went up and he woke to be with his mommy. Of course, the nurse said that's good for me but made her job harder. It took awhile to sedate him once again...she said he is on huge sedation now. I teased that I hope they don't kick me out of his room. My baby heard me, he loves me, and he is fighting...this I know!!!
Rounds went pretty well. He will get his next dose of emborol (sp?) today, that is dose 4. My brother Mike sat up with him all night. "They" played video poker and "talked" together. Mike also led us in prayer before they put him on the ventilator. He is a baptist minister and am thankful for that. They had a very good night together, I know Mike is now exhausted. He made a promise to Kyle before he went into sedation that he was not leaving Kyle's side, and he is holding true to his words.
My sister in law Colleen spent an hour alone with him yesterday. She prayed, meditated, and told him stories. She came out and said, "I know when he wakes up from this, he will have some stories to tell!" I laughed and reminded everyone that sitting with Kyle and talking to him doesn't have to be confession. LOL! I just can't wait til he wakes up and does tell me all the stories. I keep thinking he is going to say, "nobody ever shuts up!"
So although he is paralyzed, sedated, and on a ventilator...he can hear us. He needs all of you...please feel free to come down and have some Kyle time if you would like. I want him to know we are all pulling for him. Tell him jokes, tell him stories, remember with him the good times...tell him to fight his little butt off!
We are at the Denver Children's Hospital, on the 3rd floor, PICU. You are most likely not all on the visitor list but they will call me to see if it's Ok for you to visit. They do not let children under 13 in the unit.
I'm going to try to rest some more, I'm afraid to talk with him anymore because I might wake him. I usually sit and touch his legs, he has so much stuff surrounding him that I can no longer lay with him and hold him. I tried to take a nap yesterday upstairs (they have a room for me) and I just couldn't. I have spent the last 4 months straight holding Kyle in my arms, smelling his soft hair, and holding his warm delicate hand...every single time I slept. And I just layed upstairs and cried in the bed, all by myself...hoping and praying that once again, I will be able to rub his soft head, whisper I love him, and fall asleep holding his hand in mine...
Denise
Read Journal History
Hospital Information: Patient Room: 708 The Children's Hospital
13123 East 16th Avenue
Aurora, CO 80045
720-777-7706
Links: http://www.caringbridge.org/visit/taylorjones Taylor Jones (AML)
http://www.caringbridge.org/in/matthewk/ Matthew's Fight (BMT for ALL)
http://www.caringbridge.org/visit/jacquelinerose Jumping Jax (relapse AML)
|
|
