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Hello and welcome to Jeremy's page
it's here where you'll get to know
All about this wonderful guy
and the journey he undergoes
He fights his battles everyday
not like just on a movie screen
He's sure a hero in our eyes
one of the bravest that we've seen
Long hard days and even harder nights
don't seem to get our Jeremy down
He just picks up his battle armor
and an awesome warrior can be found
Sometimes when Jeremy gets tired
and maybe a just little bit down
He looks back and thinks "yes I can"
and that fighting spirit again rebounds
We are glad you stopped by to visit
a true hero who is now your friend
Please leave your prayers and comments
after visiting Jeremy's page to the end
Copyright ©2007 Island Princess
Welcome To Jeremy's Webpage! It has been created to keep family and friends updated about Jeremy's on going battle with a Mitochondrial Disorder called MNGIE. ( Mitochondrial Intestinal Neurogastric Encephalopathy. Jeremy has gone through a lot in his life, he is currently fed TPN through an IV catheter that is inserted into his chest and into the heart, this provides all of the nutrition that jeremy needs on a daily basis, he also receives IV fluids and Fentynol through a PCA pump. He is on two liters of oxygen through out the day and on numerous other medications just to get by on a daily basis. It is hard to believe this when I see jeremy because he is such a fighter. So we are going to live on faith and hope and prayers that he fights this battle. As a family we are going to keep on pushing and fighting. Jeremy is one heck of a STORMTROOPER, he has made it through things that we never thought he would, so as long is there is one ounce of hope in us we are going to keep on pushing. Please sign the guestbook so that we know that you stopped by. To learn about Mitochondrial disorders please visit www.UMDF.org
Jeremy is showing signs of getting weaker with his lungs and being more and more tired throughout the day, but we manage to ge through just like before.
Many nights we pray with no proof that anyone could hear, and our hearts a hopeful song we barely understand.Now we are not afraid, although we know theres much to fear. We were moving mountains long before we knew we could. There can be miracles when you BELIEVE, though hope is frail, it's hard to kill. In this time of fear when prayers so often proove in vain, Hope seems like the summer birds, too swiftly blown away. Now I'm standing here, my hearts so full I can't explain, Seeking faith and speaking words I never thought I'd say. So remember there can be MIRACLES when you BELIEVE. Miracles don't always happen when you ask, and it's easy to give in to your fear. But when you are blinded by your pain and you can't see your way safe through the rain, thought of a still resillient voice says, love is very nearLife is not a race, Do take it slower, hear the music, before the song is over.
 
Thinking to myself I wonder,
Why do I get sick?
Is it my fault,
Or is chance the culprit?
Chance it is, I believe,
But it is courage to accept
The limits, the meds, the treatments
And to act upon them.
Difference confuses me.
My illness marks me as different
Yet my heart beats as does yours
I laugh, I cry, I learn like you.
I wish you could see as I do
That the important things about me
Are not unlike the important things about you.
Compassion, humor, curiosity, wonder
They are what make me the me that
Wants to get to know the you
that beats beneath your surface.
I hope that we will like one another.
Why ever not
COMING SOON
STAR WARS MEDLEY
Journal
Tuesday, August 12, 2008 11:50 AM CDT Hello to all, Just wanted to write an update to let you all know that we are hanging in there and doing ok! Things have been rough but we are getting through.
I still can not believe that I have lost my little boy, I think denial is the hardest thing to get through right now, as well as so many un answerd questions.
jeremy is doing ok, but he has positive blood cultures with a yeast and a psudomonas, so we are on home antibiotics, Hematology thinks that it is because his white count is so low, 0.8 this last go around with lab draws. So we are going to see what it is that we can do to help with these infections.
Other than that he is doing ok, just trying to deal with the loss of his brother like we all are.
His birthday is the 17th, so if any of you wouldnt mind sending him a card that would be awsome! He is just feeling so down right now, and we are trying everything to perk him up and help him through this horrible obstacle.
Love and hugs to all of you and thank you so much for all of your support and prayers.
Read Journal History
Hospital Information: Patient Room: **Home** PSL
Colorado
Links: www.umdf.org Info about Mitochondrial Diseases
www.oley.org Great source of information
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