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Wednesday, June 24, 2009 1:53 AM CDT



A Bifurcation

Well I’m going to leave Spencer’s website as it is for a while. At the moment there is a happy picture of Spencer at a cenote in Mexico. It’s a highly significant photo. Soon I will have important news from the region regarding Spencer, but I can’t say what just yet. We’ll call it Spencer’s Surprise.

Speaking of surprises Tracey went see Mackenzie dance a few weeks ago. Mackenzie was Spencer’s first friend. She did a major solo dedicated to Spencer. Tracey was blown away and cried through the whole thing so she is waiting for the video so she can actually see the dance.

Thursday is the last day of school. Pitt River Middle School wants to have an award honouring Spencer and asked us to come up with criteria and be present for the ceremony. Given that Spencer missed about 2/3 of sixth grade and nearly all of seventh, and because he had a wicked sense of humour, we’ve decided to make the award for attendance. Or something else. I don’t really want to give away the fun.

So we will leave the Mayan photo on Spencer’s website until the official news.

http://www.caringbridge.org/canada/spencer/


Meanwhile I need to introduce the new website. It’s been around for a little while with parallel content. It’s going to do have a lot of features that the old website doesn’t have. We will be able to send updates via email from single sideband radio from 100 miles offshore. Well be able to press a little button on the Spot messenger and our postion will be shown on a live map with a link to the latest blog. There’s room for photo galleries and video links for our voyages. All of this technology comes at a price, but we have a generous sponsor who I’ll introduce at a later time, after I let Stewart know that he is sponsoring our sailing blog.

http://www.sailblogs.com/member/blackdragon/

Foster just turned eleven. He had 15 of his closest buddies over for a party and sleepover. They were a bit noisy, but seem to have a lot of fun tearing around the neighbourhood with flashlights on a scavanger hunt. Not one of them made me coffee on Father’s Day morning! But I have to say I like the playlist they put together. It was AC/DC, AFI, Beatles, Bowie, Police, Queen, Zepplin, Stones, Floyd, G&R, & Chickenfoot - 19 songs in all. I’m not sure if ten and eleven year olds really like this music, or if that was just the best they could do with the library on my iPod. Check out the sailblogs website to see the coolest new land transportation for Foster.

Good news. We have solar and single sideband. 400 Watts in on the solar. 150 Watts out on the radio. Our liferaft is on order. And a nice man from the beacon registry in Ottawa called to chat about my EPIRB filing today. The 100 cone drogue is done including bridle! The bimini is complete. The speed/depth/temperature triducer is working on the NEMA 2000 network. Haulout is Saturday. We’ll be painting the bottom and putting in a new seacock for the watermaker. The new mainsail is nearly done. I just need to sew in the boltrope and have some rings pressed in. All of this probably utterly foreign language gobbledy gook, but stick with us and it will all make sense eventually.

August 1st is departure day. Big party at Vicki and John’s and we set sail from there.

We’ve rented the house to a nice family from South Africa. We told Thunderbird that they can let our slip go. So at this point, we have pretty much reached the point of no return. God help us if we turn the corner at Cape Flattery and decide we don’t like really Pacific swells!

Any way. Not many of these emails will follow. Updates will be updating exclusively on the sailblogs website. You can click on the little orange RSS button and your computer will tell you when there is a new entry.

Cheers,

Steve


Friday, May 22, 2009 1:54 AM CDT

There Goes the Autopilot

Today, I consumed 16 of my #2 spur grommets. Nobody undertakes using their spur grommets lightly. They are premium grommets for the most demanding applications. And I was making weather cloths. Weather cloths go from the lifelines down to the toerail around the cockpit. They keep out the cold winds and stop those seas that want to climb aboard. They need to be sturdy. They need spur grommets.

I’m not sure what Spencer would have thought about spur grommets or weather cloths. He would have been curious about their purpose and dismissive of my indulgence. Not the indulgence in the consumption of spur grommets; just the notion that there is any importance attached to little metal rings. He would have definitely enjoyed punching holes and pounding the dies.

I am pretty sure he would have approved of our giant garage sale this weekend. He always lived in the moment and didn’t get hung up on useless old possessions. He would gladly go into Mostly Music and trade 4 old games that he wasn’t using for 1 new one that he wanted today. Why do the rest of us get hung up on our stuff?

Tracey ditched a bit of stuff yesterday. She took an extra plaster cast of Spencer’s hands over to her mom. They cried together. I’m pretty sure Spencer would have been kind of pissed if we tried to unload a plaster cast of his hands at a garage sale.

The fridge died today.

I’m not sure why it chose the one year anniversary of Spencer’s death to pack it in. Will May 21st always be the day that we remember the loss of Spencer and the Frigidaire?

I don’t think so. We’ll get the fridge fixed tomorrow. There is no energy for a memorial service for the Frigidaire. I wouldn’t have any kind words for the eulogy. Nice stainless on the outside. Cheap crap on the inside.

I guess we all have the same struggle. There is the nice appearance on the outside and we’re forever trying to keep the veggie drawers from cracking and jamming on the inside. And God help us if the refrigerant leaks out or the compressor dies because then things really start to stink.

We sailed with Jared and Jack and Donna on the weekend. A night long cruise to Jedediah Island and sunrise in Deep Bay. And on Sunday, flat seas and the big new Spinnaker pulling us along at 4 knots on a bare breath of wind. Unbelievably beautiful sailing. And a pod of 50 dolphins cruised by at high speed.

And maybe Spencer sends us these things to remind us that we need to enjoy life in all its ups and downs every day. Maybe he talks to the dolphins and kills refrigerators. How are we to know?

But Spence. If you’re listening, Buddy. Could you please fix the autopilot? The damn thing is brand new.


Wednesday, May 13, 2009 0:33 AM CDT



Happy Birthday Spencer



It’s a long established tradition. Spencer skipped a lot of school.

So on his birthday today, we honoured Spencer by gathering up a bunch of his friends at their various schools, cutting class and heading for the go kart track. Yoshi would have been proud.

This year we were rather legitimate. I don’t think anyone was strung out on morphine. We all had proper shoes. Everybody met the height requirements, and only Foster had to invent a different year of birth for the form.

I hope at least that the kids lied to their teachers to maintain a little of the event’s traditional edginess.

Something strange happened this year. I was fast. Maybe the kids are getting heavier. Either that or it pays not to be obese anymore. Or maybe they were all strung out on morphine…

I hope Jared, Keaton, and Michael remember to skip school and do something fun next May 12th.

We’ll try to see if we can find a place to go donkey racing near the Golfo de California. And Foster can have the day off boat school.



Friday, May 8, 2009 0:02 AM CDT


Foster and Jared hung out with the Running Maniacs on the weekend. - A little prelude to Balding for Dollars.

The Maniacs dropped into to town to do the half marathon. Tracey had her own personal pace bunny, fly in from Kingston. Wow! Several shaved their heads and donated hair.

Sunday was race day. Tracey finished with a time she liked! Though she kept muttering something about an evil bunny...

Don't forget to drop by Foster and Jared's Balding for Dollars page on the link below...


Friday, May 1, 2009 11:59 AM CDT


Crossing One Off the List


The income tax is filed.

The spinnaker is done. Complete with a sock.

And the frames for the new bimini are installed. As is a new sub panel and mounting for the VHF, SSB, Stereo. My fabric has arrived for the bimini top. Things are going well.

And of course I crossed one other item off the list today.

The Gillette Series "Cool Cleansing" Shave Gel is intended for facial use only. Don't ask me why I know this.

Dr. Pollock was amazingly punctual. My appointment was for 10:10. At 10:25 I was standing in the line-up at Tim Horton's.

Dr. Pollock's literature states that most men report no pain during the procedure.

Most men lie.

It might be "no needle" but having the anaesthetic shot through your scrotum under high pressure isn't quite the same as a fairy sprinkling pixie dust. But it was all done in a few minutes. They asked if I experienced any pain.

I told them "no".

Again I declined the deluxe post care pack. No need to pay a $150 for a few dressings, a jock strap, some gel ice packs and a couple of Tylenol. Tracey had already taken care of it. Though she did buy frozen mixed vegetables instead of peas. It was quite a large bag. A little more thermal mass than I would have liked.

So I had a day relaxing. I picked Foster up from school and prepared a simple dinner. I served grilled chicken with Tortellini. I was just about to put the vegetables on Foster's plate and he said, "No thanks!"

"You have to have vegetables," I said.

"But I know where those have been."

I drove him to baseball and came back and watched the hockey game. Tracey picked him up from the game and they came home to find me relaxing on the couch with a smaller bag of vegetables. Foster wanted to know what the big deal was.

Tracey explained that I had a little cut on my scrotum.

"That's it? Just a little cut?" he mocked me.

I defended myself. "It wasn't just a little cut. There were stitches and a soldering iron and tubes pulled out and things."

"A soldering iron? Do you have metal balls?"

I liked him better when he was six. I could win then.


Thursday, April 9, 2009 1:00 AM CDT


Checking the Rigging

Today I went to see a man about my scrotum. Or well actually, not so much my scrotum, but a couple of tubes on the inside.

The paperwork and consultation took about 45 minutes. The actual surgery will take between 6 and 8 minutes. I am going for the no needle, no scalpel, pain-free vasectomy. Not only that, but I’m going to the nice doctor who advertises on the radio. He does about 4500 vasectomies a year.

And it’s free. The government will pay to have me rendered reproductively neutral. I didn’t realize that uncontrolled contributions to the gene pool represented a threat to society, but what the heck.

For $50 I could have skipped today’s consultation visit and filled in a form on the internet. But since we are on a budget, I went for the government funded clinic visit.

I did have to drop my drawers and offer the goods for inspection. I’m not sure how that is done online? We had a nice chat about sailing to Mexico while he located all the internal plumbing. I declined his offer to trade places for the year. I’m sure he would enjoy Mexico, but I’m not sure I would want to cut scrotums for a year. Though no doubt, it would buy a very nice boat.

For $195 I could have upgraded to the premium service. This includes the full package of pre-op goodies and post operative care items. And follow ups are done on the phone so no additional visits are required. I declined. It’ll be regular Tylenol and a bag of frozen peas. No premium service for me.

April 30th is the date. 10:10 is my appointment time. By 10:17, I will no longer be a threat to society. Well sort of. There is a whole quality control process that follows, but I’m a little shy about sharing personal details so I won’t mention it.

Tomorrow is the first sailing trip of the year. We’ll go test the new rigging. At least I got to know my rigger. He didn’t just grab me by the balls and then move on to the next customer. Mind you, I’m not sure if the quality control process is as much fun with the new rigging. Oh and I haven’t seen the bill yet. Maybe he grabs me by the balls to say goodbye rather than hello.


Wednesday, April 1, 2009 11:30 PM CDT


White Robes and Black Tails

We went to Harrison Hot Springs. The striking thing about the hotel is that everyone walks around in white robes. And they pace themselves. Never too fast. It�s as though they might be ticketed for some serenity violation if they appear to be rushed.

We did the cancer parent retreat thing. Quite interesting. A nice mix of parents of the living and dead. It�s a delicate thing inquiring about people�s kids at one of these things. It�s not like they make you wear a black armband or anything. But with this crowd, it�s never awkward. It�s like being with old friends. Kind of makes me want to go home and give Scupper chemo out of a sense of treatment nostalgia.

Foster sat on a panel. The grandmother next to him thought he was so cute that she wanted to bite him. I�ve never had the urge to bite children, even very cute ones. I�m not sure where that comes from. Keep your children away from strange grandmothers. Make sure they are current on their tetanus shots.

I forgot to mention that we are now triathletes. We did the UBC triathlon a few weeks back. Portions of it anyway. It was a family relay thing with two competing teams. John and John swam. Tracey and Leanne ran. Vicki and I rode bikes. One of the teams has bragging rights over the other, but we were something like 12 & 13th out of 13 teams so nobody is really bragging. I find it appalling how under-represented obese men on mountain bikes are in triathlons.

The upholstery shop is now closed. We�ve opened the sail loft. I�m sewing a 49 panel spinnaker that will pretty much cover the entire bottom floor of the house when it�s done. It is black and harvest moon beige. 26 panels are done. In the middle will go a 15 foot tall black dragon. I think I�ll give the dragon a Portuguese Water Dog tail to fully integrate all harmonious elements of life.

The new rigging is great. We tested it on Sunday with a little sail. Some serenity to follow up the serenity. Just a couple of adjustments and we�ll be good to go.

Oh and once I went for a dip at the hot springs, I was able to figure out the pacing on the robes. If you pull off your swim trunks so you don�t drip through the hotel, the short little robes tend to blow open once a breeze gets going. Best to take it slow, or some grandmother might try and bite you.

That reminds me. I must make a phone call about a vasectomy�


Sunday, March 22, 2009 1:36 AM CDT

Damn. I haven’t written in a month again.

I’ve fallen out of the habit. In truth, writing was an anxiety-driven habit. No anxiety. No writing. I planned to make writing an offshoot of leisure time. But I’m busier than I’ve been in years. So here it is. An update driven by guilt rather than anxiety.

I have to say I never would have imagined what a thrill it is to get up every day and spend the day playing with my stick. Every man should be so lucky.

But not every man can say that he has riveted a radar dome to his stick. I have. And I rubbed and polished every bit of hardware. Every fastener was coated with Lanacote. Every bit of stainless was backed with vinyl. The sheaves have new bushings. The halyards are new. Every wire replaced. My stick is as good as new. Almost ready to go sailing. Just need to finish my boom.

I think I’ve been dragging it out. It’s fun to go to the rigging shop every day.

Tracey is training for her half marathon. In preparation, she ran a half marathon with my sister Vicki. I’m not quite sure how this works. They’ve already achieved their goal in training for the goal. But I guess the goal is the Vancouver Half Marathon. The First Half marathon doesn’t count. Anyway, they are going to run another half marathon tomorrow. Just a training run though, not an organized thing, so I’m sure it doesn’t count.

I turned 44. I now own a guitar. Don’t worry, we’ll be well offshore and post nothing on the internet.

We have been invited to a parents’ retreat at Harrison Hotsprings. A few other cancer parents. Some chats and dinner, but most of all a weekend away from home and the kid at some nominal cost. Sounded great. We accepted. Then they called back a few days later and invited Foster to participate in a panel discussion. What?

Scupper had some issues. Gastrointestinal stuff that we don’t really like to talk about until we are sure the odour is gone from the carpets. The stool sample Tracey took to the vet showed “Q-tips”. This is quite rare, but unrelated to his problems. So for $143 he got an examination, poo analysis, some pro-biotic fancy dog yogurt, and some antibiotics. Why we are pro-bioticing and anti-bioticing in the same dog is beyond me, but that’s why we pay the big bucks. For $89 we could have had him put down. You can guess who drove him to the vet.

There is a another Portuguese Water Dog who just went to his new home with the Ritcheys in Texas. Sly was there old dog. Sly was Spencer’s idea of the prototype dog. Black and white. Fast and smart. Sort of like Scupper with straight hair and a better education. Sly died several months back after a good long life. The new dog is Spencer.

And the Krageljs have a new puppy, Ozzie. He came to visit tonight. Ozzie is one of the new doodles with tons of lovely blondy-red hair. Just like Foster.

Foster is growing his out. Hasn’t had a serious haircut since Balding for Dollars last year. But he’s planning to shave it all off again this year at Balding for Dollars. He and Jared Dulaba are going to do it together. You can visit their webpage and support them by clicking on the link below.

My dad turned 80. We had a big party for him up in Sechelt last weekend. All the brothers, kids, and grandkids were there. It was nice. Scupper didn’t come. And it snowed on Vicki and Tracey as they ran off the ferry up the hill in Gibsons. Why does it snow in March? This is almost like living in Canada.

Anyway, I think that pretty much covers everything. Making good progress on the list. Might as well just erase it from the whiteboard. Just need to find renters for the house. Let us know if you know anybody who needs a house in Port Coquitlam/Vancouver for a year starting in July or August.


Thursday, February 19, 2009 0:14 AM CST


Blackdragon is Stickless

It’s been a month more or less. I haven’t written.

You might think it’s a natural consequence. A guy’s son dies. Within a year he gets fired from his job. No doubt the man has sunk into a deep depression. Probably spends his days watching PVR leftovers of “American Idol” and “Two and Half Men”. Lost all sense of identity and purpose. A ghostly shadow of the man that once was.

It’s not like that really.

At the top of my list is a vasectomy.

Tracey wrote the list. I think she feels it’s an exercise to rebuild my self esteem. Render myself reproductively inert and restore my manliness.

I pretty much ignore the list.

Instead, I bought a sewing machine. A manly sewing machine. Not like some Bernina that is a model of precision machining. This one is more like a Taiwanese drill press. A bit clunky. But it will punch through a quarter inch of leather.

And I put it to use. Bought a few acres of marine vinyl. I think it is like regular vinyl, but because it’s marine, I pay twice as much. I remade the cockpit cushions. Bought vinyl tubing from Princess Auto to make the piping. Tracey says that my zippers are French zippers. I had no idea. I just did them. The cushions turned out rather well.

Based on the initial success, I pressed on and sewed an outboard cover. A barbeque cover. I made vertical tool pouches for both sides of the companionway. I’ve made pockets for stowing items. And in Foster’s bunk, a giant storage pocket thingy with 15 pockets and 4 cubic feet of storage space. Oh and tethers. I’ve made us each tethers so we can clip into jacklines and never fall overboard.

Now I’m redoing the interior upholstery. It’s a lovely fabric. Foster tested it with mustard, ketchup, coffee, coke, red wine, and olive oil. Nothing left a stain. Well except the oil. Port side is done. Next up is the starboard side. Then cabins fore and aft. No buttons and piping. Instead the smooth modern look. Quilting and topstitching.

I’ve ordered solar panels and radar. We have a new autopilot. Catalina is manufacturing a new rudder. My sail kit arrived. I’ll be stitching a new black and white spinnaker for Blackdragon with a giant black dragon in the middle.

For Valentines, Tracey got a new watermaker. Going full tilt, she can have a 150 gallons of fresh water every day. No need to row ashore and fill jerry cans with questionable water. Reverse osmosis all the way. The height of romance. She’s lucky to have me.

Now I’m at the riggers. We pulled the stick. I’ve stripped off all the hardware from the mast and boom. I’m sanding them. They’ll get painted, rewired, and reassembled. Then the stick goes back in with all new standing rigging. Those are all the stainless steel wires that hold the mast up.

A 20kg Rocna is on order at Steveston Marine. That’s an anchor. A serious anchor. The kind of anchor that you can drop 30 yards from the surf line on some bite in the open Pacific between Ensenada and Cabo, feel the swell, and still get a decent night’s sleep knowing you won’t be dragged ashore.

Tracey works most days. Some days she even makes more money than I spend. And I drop Foster at school and pick him up and make dinner. And of course, I diligently search for work each day. Scarcely any time left to book a vasectomy.

I may end up doing it myself.


Friday, January 16, 2009 0:51 AM CST


Lo Siento No Hablo Aburrido

I haven’t written much lately. I find it a little disturbing how disturbing it is to other people that I have not written much lately. I’m not sure if they are worried about us or just missing the latest episode in the serial entertainment.

Oh well. There were some good reasons why I was quiet. Some things were going on that I just wasn’t at liberty to talk about. But now I am free.

Today, I was fired.

Nothing personal. Just one of those transactions where a business is bought and not all the bits of the business are wanted and they get left behind. And so it was.

I wish I could say it was all very sad and tragic. Which it is of course at one level, but at another level there is opportunity.

And so it is. My job is now to refit the boat and get the house ready. Because the house will be rented.

And the boat is going to Mexico.

Foster will be dragged from school. Now geography, biology, mathematics, social studies, physics, navigation, watch keeping, engine maintenance, and Spanish lessons will all happen in the cockpit and the salon of Blackdragon. A real education.

And so Tracey gave notice at work today as well. We will leave in July or August. And we’ll come back in time for school to start in the fall of 2010.

We couldn’t be happier.

Planning is done. Now it’s time to do something.

Join us on our journey.


Monday, December 22, 2008 1:06 AM CST

We're Still Rock Stars

If there was nobody to receive the gifts, the whole notion of giving would fall apart. The process would break down. We can’t have that. So in the spirit of the season, we threw our support behind the whole process this week.

It started a while back. We were at the mall and Tracey asked Foster if he would have his picture taken with Santa. I’m not sure if he actually used any words, but the look on Foster’s face suggested not only that he was uninterested, but also that Tracey may have lost her mind.

And a few days later I received an email. And so I asked Foster if he would like to visit with Santa. “No!” Then I asked Foster if he would like to take the day off school and visit with Santa. A short delay and then, “No!” Finally I asked if Foster if he would like to take the day off school, visit with Santa, and fly in a private jet. “OK!”

And so it was. We had a wonderful day making gingerbread houses and hanging out. I know the telecommunications company really wanted to focus on the children and they weren’t doing this for publicity so I won’t mention their name. Just think warm thoughts about your telecommunications company whoever they may be.

Then the next night Foster was invited to go and hang on center ice for the ceremony to retire Trevor Linden’s jersey. TV cameras. Hockey players. The whole bit. Of course I couldn’t be on ice with him so I had to wait upstairs in a box until he was done. Then there was a game and pizza and hot dogs. Debbie Butt dropped by and gave all the kids Trevor Linden jerseys.

Oh and I’m famous too! There was a picture of me in the program. Well OK. That’s not completely accurate. There was a picture of my belly and half my face.

All right. So there was a picture of Spencer in the program. He’s still famous.

If that wasn’t enough, today there is foot of snow. I think snow might actually make Foster as happy as all the other rock star stuff.

And tomorrow, Foster and his buddy Zach are sleeping with the fishes. OK. Actually they will sleep with beluga whales. They’re like fish with blow holes. It’s sleepover night at aquarium.

At this rate, Foster will completely lose track of when Christmas is. I’m sure he’s not all that interested anyway since he doesn’t get that excited about Santa.

Oh and speaking of receiving gifts. Logan has done rather well with her Spirit of Angels toy drive. I think they have enough stuff for oh about 300 families! I hope that’s about 295 families more than actually end up staying over Christmas in the hospital and Ronald McDonald House.


Tuesday, December 9, 2008 0:20 AM CST


Spirit of Angels

It’s Christmas in our house. Sort of. For a little while longer.

There are piles of gifts. Lots of wrapping paper. A few dozen bottles of wine. A big jar full of cash and gift cards.

Tracey has been gathering goodies for weeks. Tomorrow she is loading up the truck and taking it all away.

Spencer’s friend Logan and her mom Jen had an idea that maybe this Christmas they should look after all the kids at Children’s Hospital and Ronald MacDonald House who can’t be home for Christmas. So they created the Spirit of Angels holiday gift drive and started spreading the word.

They’re gathering toys for kids. And robes and coffee cards for parents. Loads of cash for the shopping party. And they are coordinating with the child life people at Children’s.

Logan and her family have done enough time to know that it can suck being in the hospital. And having to be in the hospital over Christmas? Yuck.

So the shopping party is Friday and the wrapping party is on Saturday. Regrettably, I’ve been called away to a sailing emergency involving rum and poker, and can’t be there, but I’ll be there in spirit. Foster and Tracey will go.

I think Spencer would approve. In all the years of treatment, we were always home together at Christmas. But if you had to be in hospital, this would be nice…


Thursday, November 20, 2008 11:46 PM CST


Tracey had the staff from her office over for lunch. And then she took them to the park to show them the bench that they had installed at the park.

Behind it is a brand new playground. Ahead of it is a view down the hillside where Scupper chases tennis balls. On it our some nice words:

In Loving Memory of
Spencer Bruce Dolling
May 12, 1995 - May 21, 2008
"Apart from my cancer, you can see that I have a fantastic life" Spencer

---

Donated by Dr. Arnie and Sue Johnson
and the Staff of Shaughnessy Dental


Tuesday, November 18, 2008 0:01 AM CST



Subgingival Calculus

I’m used to spending my dental hygiene appointment looking deeply into the eyes of my hygienist. And at some point, when there isn’t a sharp instrument in my mouth, I always like to go for the reach around.

Of course on Friday, I didn’t have my usual hygienist. Instead I had Sandy. I had to be on my best behaviour. No mischievous staring. Definitely no reach arounds. I just laid back and thought about, well, dental hygiene. And I have to say, having your teeth cleaned is really not all that much fun when it’s not a semi-erotic experience.

Unfortunately, my flossing isn’t what it used to be. I have some 5 mm pockets that require more attention. Worse, Sandy made a note in my chart as part of the permanent record. For her, it’s just a little more tracking against the baseline. For me, it could have serious consequences. I asked her to make the “fives”, “threes” and “fours” on the chart. No need to get the regular hygienist all alarmed.

And then as Sandy finished up with a polishing and floss, she surprised me.

“Have you had any experience with a rubber tip stimulator?”

I didn’t want to appear to be ignorant, “Sure. Usually I don’t ever talk about it. I just quietly use it in the shower.”

“Oh so you do have rubber tip stimulator?”

“Doesn’t everybody?” I had to be a little careful here. “At least I did have one… But it may have been lost in a recent bathroom renovation.”

“I’ll get you another one,” she offered. “You know how to use it, right?”

“Oh yeah, yeah. No problem.”

I had to wait in line at the front desk. They were working on Bill’s invoice including a charge for his bottle of specialized mouth wash. “Did you get your complimentary rubber tip stimulator?” I asked Bill. Apparently, his appointment didn’t include any extra perks.

They tried to nail me down on a date for a 6 month recall. I refused to make a commitment. “I want to book in with Tracey, so I’ll have to see what her schedule is like.”

“Oh but Tracey is not in our system yet.”

“That’s OK, I’ll wait.”

They made me fill out a card with my name and address so they could send me an appointment notification.

I can’t wait to practice with my rubber tip stimulator.


Thursday, November 13, 2008 1:27 AM CST


Two and Half Men

Well it was close. I think we managed to get rid of it before the infection spread. You can never tell right away with these things. The garburator died. Actually it didn’t really die. It wouldn’t shut off. If the infection had spread to the other appliances, we could have been out a small fortune.

So I managed to get in, replace it, and get out of the kitchen with the tools and we didn’t trigger a renovation. Tracey wants me to replace a few missing bits of quarter round at the cabinet bases. I know how these things go. “While you have the tools out, maybe you could whip up some new cabinets out of maple and some granite countertops to go with them.” I won’t fall for it. Or maybe I’ll just do the quarter round while she is out running with Scupper.

Speaking of Scupper. He’s looking quite lean lately. I think his obesity problem is over. He’s an athlete. He ran for two hours on Sunday.

I’m still a man and a half. I have a few more pounds to go before I’m no longer obese. I think we’ll get a big cake to celebrate.

Foster is a mature ten year old. I suppose I’m overdue for the father-son talk. Neither fathers nor sons actually enjoy these talks which is why they almost never happen. I have no intention of avoiding my responsibility. There is no obligation to have the talk really – only an obligation to make sure the knowledge is imparted. Therefore Foster and I have taken to watching Two and Half Men together. All the reruns. Everything he ever needs to know. Sometimes two episodes a day. Whatever is missed, we backfill with The Simpsons.

I finished the crown mouldings in the downstairs bathroom. Crown mouldings require a lot of swearing. Even with a nail gun.
The mirrors are trimmed out. Don’t try to attach mouldings to a mirror with a nail gun. Construction adhesive is a better choice.

Tracey has begun to paint the master ensuite and closet. But I’m not worried. She is going to do it all herself.

Actually, our strategy for recovering the massive losses in our retirement portfolio goes something along the lines of: boost the performance of the local Home Depot store, trigger a big uptick in the Home Depot stock price, driving a rally of all the issues traded, continue renovating room by room until portfolio value is restored.


Monday, November 3, 2008 1:38 AM CST



Cleaning Out the Dead Kid's Room Part II

Some people read my last update and thought I was wonderfully real and coherent. Others read it and thought I must barely be on the edge of coping. So I guess it doesn’t matter what I say, people will believe what they like.

One thing I did do last time was throw out a shocking title without ever really dealing with the content.

We really did clean out the Dead Kid’s room. It was full of boxes of stuff that went to the memorial and just kind of got dumped until somebody had the energy to clean it up. Foster urged us to do it. He called it the “other room” or the “playroom” or anything but “Spencer’s” room. But Foster didn’t mind rolling up his sleeves and helping us sort through it. And giving Tracey a hug when tears flowed. After all, how do you make a decision about what to do with the extra set of plaster imprints taken from your dead son’s hands?

So now it’s kind of tidy. We didn’t deSpencerize it or anything. There are still hockey jerseys, model cars and pictures and things, but now there is plenty of room to play. And Foster dragged the miniature pool table out of the crawl space and set things up. He now occupies the suite of rooms in the North wing of the house.

And so there is the painful tortured moment to fulfill expectations.

Beyond that there is more ordinary.

I am still obese. It’s hard to shake. I’ve been riding my bike three or four hours a week. Something that must be understood: exercise makes you eat more. So it was all a terrible mistake. I would have been better off as a couch potato. But at least now I’m a very fit obese person.

So I’ve stopped eating carbs. I’m not sure why I ever reintroduced dessert, pasta and potatoes into my life. But they are gone now.

Max weight (last weekend): 230 lbs
Current weight: 225 lbs
Obesity Threshold: 220 lbs
Overweight Threshold: 180 lbs
Normal Threshold: 140 lbs
Dead: 88 lbs

So I’ll need to move down a couple more notches, but I’ll have to be careful or they’ll attempt to hospitalize me down at the lower end of normal. What normal six foot male weighs 140 lbs? Who makes this stuff up?

Tracey decided to paint the bathrooms. Couple of gallons of paint. Doesn’t cost very much. She was going to do it all herself. Which she did. Including the prep work before hand.

How is it then that a coat of paint that costs a few tens of dollars and means no work on my part results in me installing new shower head, regrouting the shower, installing a new toilet, putting in a medicine cabinet, dropping in a new sink, installing new towel racks, wiring in the new light fixtures, replacing the ugly receptacle, framing the mirrors, and putting in a new toilet roll holder? I know we prudently decided to avoid the expensive and time consuming bathroom renovations, but I’m trying to distinguish between that and a “fresh coat of paint”.

I sure hope we don’t paint the kitchen.

Rob finished the DVD of the Celebration of Life ceremonies for Spencer and delivered a few copies after our long bike ride today. They were beautifully produced. I watched them tonight and cried for a couple of hours. Who ever heard of funerals with standing ovations? I think we should sell the DVDs. Boxed sets with plaster imprints. They’ll move like hot cakes.


Tuesday, October 21, 2008 11:39 PM CDT


Cleaning Out the Dead Kid's Room

I think I’m supposed to share cute stories. You know the Thanksgiving stuff where I baked pies, but really only served as executive chef while Foster and his friends did the pastry and Tracey cooked the pumpkin filling. Or how rather than cooking brussel sprouts, we launched them off Vicki’s deck by slingshot into the sea forever confusing Yoshi on the tradition of Canadian Thanksgiving. Or I should talk about the paint ball and the bruises on my body or the smile on Foster’s face. Or maybe tell tales of Tracey’s training for the half marathon or Scupper’s propensity to stop running and roll in dead salmon by the river bank and how good he smells after he’s been washed in Foster’s Axe because we’re all out of doggie shampoo.

And then maybe I should shockingly rip the tale in another direction and offer some poignant reminder that we are not just amazing people living life so fully, but newly wounded grieving folks able to triumph in the most difficult of circumstances.

And then you are supposed to go “wow” and have some moment of introspection wondering how we do it. And wonder if faced with similar circumstances, how would you react? How would you live your life? And maybe you can’t answer the question. Maybe you are just glad you will never be faced with the question, touch wood.

Or perhaps, I’m supposed to pull profound observations out of the air like, if we won a lottery, we would probably be packing up a boat and going for a nice long cruise in some tropical climate. Conversely, if the economy sunk into a global depression and we lost our house and jobs, we would probably be packing up a boat and going for a nice long cruise in some tropical climate. The difference between the two is that in one case, fishing would be a recreational pursuit, and in the other it would be a quest for protein to go with the rice and beans.

So the two ends of the spectrum actually meet somewhere north of Panama or perhaps west of the Galapagos.

Which at this point should leave you wondering what the hell I’m actually talking about. And my clever obfuscation has left you thinking two levels deeper than I ever was. And at this point, I would just end the story and you would feel good, or moved, or confused. And we would wait for the next one.

But it would all be a distortion. Because I never directly address the question about what it is like to be the father of a dead kid. And I can’t possibly explain it. And you nod your head with understanding and a large measure of pity. And I shake my head because you don’t understand it. Because life is so fantastically ordinary. With work and report cards and dirty dog feet and obesity and soccer in the rain. And the ordinary is wonderful and cherished. And my ordinary is at least twice as ordinary as yours. Except I cherish mine which makes me extraordinary.

So never pity me or envy me.

And yet I could give a damn if I ever win the lottery or if I am left homeless because either way everything will still be OK because we’ll all be together. And I’ll be fishing.

Oh, and Spence, I think about you every day, five months later. Love you buddy


Wednesday, October 8, 2008 0:09 AM CDT


I've been under pressure to provide an update.

I think it has something to do with where I left off. People want to know:

"Did he have a prostate exam or not?"

It's a personal question. I don't feel compelled to answer.

But thank you for the feedback on Scupper. I didn't realize you were supposed to get the dog's height standing on two legs for calculating the BMI. That may change things a little. Not that I really need to compare myself to the dog.

The doctor didn't really have anything to offer in the way of enhancement. He suggests exercise will be more effective than trying to grow taller. Though I swear for a moment I was an inch or two taller. The good news is that my prostate is normal. Not that I feel compelled to share.

And everything else is OK. Except perhaps my RRSP. But I'm not really nervous about that. The Government will fix everything. They know what they are doing.


Thursday, October 2, 2008 0:48 AM CDT


Body Mass Index

Scupper is drifting into middle age. He’s getting a little grey around the muzzle.

Today, he went for a check-up. Tracey brought along some cute pictures for the bulletin board: Scupper kayaking in the Broughtons, Scupper sitting in a kayak. They like Scupper at the clinic and follow his story on the website.

Scupper is 2 foot 3 and weighs 58.5 pounds. That gives him a body mass index of 56. He’s way far into the obese category. Nevertheless, he has lost 5 pounds and the vet says he’s in good shape. She gave him the go-ahead to do a half marathon with Tracey as long as he trains with her.

I’m drifting into middle age. I’m getting a little grey around the muzzle.

Tomorrow, I go to my doctor for a check-up. I’ve never actually met my doctor. None of my middle age friends ever have nice things to say about going to visit their doctors. I’m not sure if I should bring a picture for the bulletin board.

I calculated my body mass index. I am a little bit on the obese side. I need to grow an inch and half just to be overweight and a full 9 inches to be normal. I hope the doctor has some strategies to help me get taller. But at least I’m a reasonably fit obese person and ride my bike a few hours a week.

Scupper can’t even ride a bike. And he needs to grow 14 inches just to be normal.




Monday, September 8, 2008 0:41 AM CDT

Cinnamon Buns in the Fog

We're home now. I'm supposed to give an update, but I'm not quite sure I'm ready to do that yet.

I don't even know how to describe what it's like emerging from the fog on Johnstone Straight after narrowly missing another sailboat and having fresh hot, home made cinnamon buns and coffee in brilliant sunshine while dolphins swim in the bow wave. I can tell you about it, but I can't explain what it feels like in your chest. How alive you can be.

There is something magical about watching Tracey and Scupper row ashore in early dawn and pull a crab trap. And hear the screams as the door falls open and the crabs spill into the dingy while both Tracey and Scupper try to occupy the little seat in the bow and the stern lifts up out of the water. What it's like to pull the anchor and steam in as the hero to rescue...

the crabs before they are lost in an endo dingy capsize.

I can't explain what it's like to pull into Campbell River after 3 weeks in the Broughtons and drop off laundry and go to the Superstore to buy groceries. And stop in the medical clinic above the Superstore to have the pain in Foster's leg checked out. And to hear the doctor say they want us to go to the hospital for an X-ray. Just to make sure it's not a tumor. How alive that makes you feel.

To hang at anchor with friends while a gale blows. And throw apples and pears to wild sheep descended from those left by Spaniards hundreds of years ago. And have all the kids in the anchorage go to a party on the upper deck of East Wind complete with a disco ball and strobe lights pulled off the life vests. While Pocket Pepper the rat dog huddles in his basket below. Safe from eagles and eight year olds.

And Spencer came with us. Every day. In one way or another. And of course his cremated remains, as the dead people folks call the ashes, were tucked up behind the microwave waiting to be scattered. And they never were. Because it doesn't feel right. Yet.

New memories mixed with old memories. New friends mixed with old friends. And all was good.

And we watched as Devin reeled for ages with bent rod. Dragging the monster Chinook from the deep. As we dodged cruise ships coming down from Seymour Narrows. Making plans to dive overboard and wrestle the oversized brute into our undersized net. Only to see Devin's soul destroyed as the dogfish hooked in the dorsal fin is finally dragged to the surface. A miserable little shark.

To watch waterfalls come down granite from thousands of feet up. To feel 40 knots of wind that kills your wind meter. To punch into eight foot seas. To have coffee in bed. To fold the table down and have family movie nights on Fridays. To hike into the woods and see 20 foot cedar trees - in diameter.

It's not really possible to describe these things yet.

At least once in your life, you must find an excuse, a reason, to check out for an entire month. You don't even remember what work is.

It was especially nice. And nobody asked us, "How are you doing?" with that look that is full of pity. And we were just doing. Fine. With an emptiness and fullness that combine together to something well north of average.


Tuesday, August 19, 2008 10:19 PM CDT

We are presently somewhere far North where the water is cold in the Broughtons. We can't make a phone call, but we found a marina with satellite internet capability.

3 dolphins swam with us up Johnstone Straight. Over 20 huge Dungeness crabs crawled into our trap in Cutter's Bay. And today 106 prawns decided to end their lives and grace our dinner table. There is blood on my winch handle which tends to happen when you whack a Coho.

Foster and I have decided we want to go and catch a 100 pound Halibut. Just for fun. And fish and chips. I think we would need about 300 lbs of potatoes?

No complaints. No worries. Tomorrow we start heading South again. Life is good. Really good.


Tuesday, August 19, 2008 10:19 PM CDT


We are presently somewhere far North where the water is cold in the Broughtons. We can't make a phone call, but we found a marina with satellite internet capability.

3 dolphins swam with us up Johnstone Straight. Over 20 huge Dungeness crabs crawled into our trap in Cutter's Bay. And today 106 prawns decided to end their lives and grace our dinner table. There is blood on my winch handle which tends to happen when you whack a Coho.

Foster and I have decided we want to go and catch a 100+ pound Halibut. Just for fun. And fish and chips. I think we would need about 300 lbs of potatoes?

No complaints. No worries. Tomorrow we start heading South again. Life is good. Really good.


Tuesday, August 19, 2008 10:19 PM CDT


We are presently somewhere far North where the water is cold in the Broughtons. We can't make a phone call, but we found a marina with satellite internet capability.

3 dolphins swam with us up Johnstone Straight. Over 20 huge Dungeness crabs crawled into our trap in Cutter's Bay. And today 106 prawns decided to end their lives and grace our dinner table. There is blood on my winch handle which tends to happen when you whack a Coho.

Foster and I have decided we want to go and catch a 100+ pound Halibut. Just for fun. And fish and chips. I think we would need about 300 lbs of potatoes?

No complaints. No worries. Tomorrow we start heading South again. Life is good. Really good.


Tuesday, August 19, 2008 10:19 PM CDT


We are presently somewhere far North where the water is cold in the Broughtons. We can't make a phone call, but we found a marina with satellite internet capability.

3 dolphins swam with us up Johnstone Straight. Over 20 huge Dungeness crabs crawled into our trap in Cutter's Bay. And today 106 prawns decided to end their lives and grace our dinner table. There is blood on my winch handle which tends to happen when you whack a Coho.

Foster and I have decided we want to go and catch a 100+ pound Halibut. Just for fun. And fish and chips. I think we would need about 300 lbs of potatoes?

No complaints. No worries. Tomorrow we start heading South again. Life is good. Really good.


Tuesday, August 19, 2008 10:19 PM CDT


We are presently somewhere far North where the water is cold in the Broughtons. We can't make a phone call, but we found a marina with satellite internet capability.

3 dolphins swam with us up Johnstone Straight. Over 20 huge Dungeness crabs crawled into our trap in Cutter's Bay. And today 106 prawns decided to end their lives and grace our dinner table. There is blood on my winch handle which tends to happen when you whack a Coho.

Foster and I have decided we want to go and catch a 100+ pound Halibut. Just for fun. And fish and chips. I think we would need about 300 lbs of potatoes?

No complaints. No worries. Tomorrow we start heading South again. Life is good. Really good.


Monday, August 4, 2008 2:04 PM CDT


Just returned from Hadley's Bar Mitzvah. Spencer was wondering about the possibility of becoming Jewish after hearing Hadley's description of a Bar Mitzvah. I think going to the party would have tipped him in that direction, but having to study all the Hebrew might have left him where he was.

In any case, both the ceremony and the party were awesome. And having the Blue Angels perform for the brunch was over the top.

Now both Al and I have had ceremonies to say goodbye to our boys. I liked Al's version better.

Anyway, the truck is loaded and in an hour or two Blackdragon will be loaded.

Back in a month!


Friday, July 18, 2008 0:51 AM CDT


Certifiable

The phone company sent their bill today. They advertise digital television service on the outside of the envelope.

The cable TV company sent their bill today. They advertise digital telephone service on the outside the envelope.

JD Power sent a survey today. They wanted feedback on our recent use of dead people services.

Imagine if you owned a funeral home with the top JD Power ranking. People would probably kill themselves just to do business with you.

We all got new certifications.

Foster wrote and passed the examination for the Boat Operators Card. Now at the tender age of ten years old he is legally able to operate the dingy with an outboard motor. For that matter, he is free to take 8 tons of sailboat out without any adult supervision. At least that’s what the government says. Thankfully, Dad is more powerful than the government.

Tracey and I wrote exams for the Marine Radio Restricted Operators Certificate. For a couple of decades we have been illegally using a VHF radio. Now we are legal. We have certificates.

I went to visit the psychologist. Tracey signed me up. We went together. The psychologist was very nice. I’m not sure what she wanted from me. She didn’t offer a diagnosis of any mental illness so I never have to check the “Yes” box next to that question on any forms I fill out. There is no return appointment. Unfortunately, she didn’t give me a certificate that says I’m sane or normal or happy or whatever I’m supposed to be.

The government doesn’t actually require you to have a certificate that says you’re happy or sane or normal or whatever. JD Power never checks in to see how you’re doing. I’m not sure the cable TV company or the telephone company really cares. But if I open the envelopes, I’m sure they offer an enhanced bundle of services that their marketing people will claim will cause happiness.

Just about everybody else besides the cable TV company, the telephone company, the government, and JD Power wants to know how we are doing. I think the expectation is that we should be melancholy. I don’t think we are living up to expectations.

Life is somewhat ordinary, often extraordinary. But not so much sad or melancholy. Though sometimes a bit.

Foster went camping this weekend with friends. Tracey and I took off on the boat together and sailed. Across the straight and down to Montague Harbour at the south end of Galiano Island. We talked and walked and watched the sunset and drank two extraordinary bottles of Fred’s 06 whites: a Pinot Grigio and a Sauvignon Blanc. No less than three pods of dolphins on the way home.

I would rather do that any day over visiting the psychologist. I don’t care if I ever get a certificate.


Wednesday, July 9, 2008 11:53 PM CDT


The Last Word on Hillbillies

Fred took me out on a date to see Mark Knopfler. It was at the Orpheum.

I went to the restroom before the concert started. I did business at the urinals and happened to bump into Leonard and Jim, some old colleagues from a few companies ago standing in line waiting for their turn. It was one of those confusing protocol situations. Clearly when you see old friends, you shake hands. But it was also clear that I had just had my penis in my hand and hadn’t yet made it to the sink. We looked at one another, hands at our sides. Leonard pointed out to Jim that they couldn’t shake my hand. It would violate the other protocol. Jim decided he wanted to shake my hand any way. And so I shook hands with Jim and an awkward moment passed. I said I would catch up with them outside.

But as awkward moments go, we weren’t quite done. They came out. I shook Leonard’s freshly washed hand. We chit chatted. “How is your son?” Leonard asked. A brave question.

“Oh, he’s dead.”

We exchanged sympathies, details, and oh shits and made some vague lunch overtures.

And it was time for me to find my date and take our seats. Fred is a good date. We were in row 2.

I can’t remember the opening act. No that’s not true. I’m trying to forget the opening act.

Eventually, there was Knopfler. And he started into the first song. Cannibals. I remember I used to crank this song at full volume when Spencer was a baby. It is sort of my personal father son anthem. But this wasn’t the usual rocky Louisiana zydeco influenced version of Cannibals. This had the accordion, fiddle, bass, but it had kind of turned a bit bluegrassy.

God, who am I kidding. It was full blown hillbilly.

And I thought I had had the last word. It didn’t matter how pure Telegraph Road and Sultans of Swing were. And they were pure. Nearly spiritual.

Mark Knopfler is hillbilly music.

At least sometimes. Not that there is anything wrong with hillbillies. Spencer made his point.

I’m free to play all the hillbilly music I want now.

Be careful when you wish for freedom. It might not be what you think it is.


Friday, June 27, 2008 0:07 AM CDT



Wii Fit

Foster turned 10. Several days before his birthday he got the Wii Fit that he has been looking for. Saturday he picks up the Aerosmith Guitar Hero that we have on back order. I’m not sure he actually got anything he wanted on the actual day but if we just attach a tolerance spec of plus or minus a week he’s perfectly spoiled.

He invited me up to play on the Wii Fit. The first thing it did was extract the little Mr. Steve Mii out of the game consol. It dressed me up in a little green Wii Fit shirt and then asked questions. It wanted to know what my height was and whether I was wearing heavy or light clothes. Then it asked me step on which I did. It weighed me and calculated my body mass index.

The good news is that I’m not overweight.

The bad news is that I would have to lose ten pounds to even qualify as overweight. The Wii Fit says I am obese. It took the little green shirted Mr. Steve and blew him up like a blimp.

I’ve never been personally offended by a video game before. I’ve been booed off the stage in Guitar Hero, but I never took it personally. I refused to do anything further with Wii Fit.

After a couple of days Foster and Tracey were playing with it. It asked them “Have you seen Mr. Steve? I haven’t seen him for several days. Is he looking heavier or thinner?”

I eventually did try a few things on it. Heading soccer balls is fun. You have to duck the shoes. It did assess my fitness and gave me a Wii Fit age that is actually 5 years younger than my real age. So maybe it’s OK.

There is guy a work, Gordon, who is a competitive body builder. He recently won a competition in his weight class. He doesn’t have any body fat to speak of, but by conventional measurement, he is obese.

I think it is a little unfair when guys with bodies like Gordon and me get unfairly classified


Wednesday, June 25, 2008 0:06 AM CDT



I'm done. I've had it. I'm fed-up.

I'm tired of people dieing of Cancer. Just sick of it. First Grama then Kevin and Justin. My friend Will has Cancer, he's not doing so good. He has a relly bad infection. His heart mite stop. I'm doing just fine. I'm sure everybody knows somebody who has Cancer and has died from it and will never forget them. But in my short eleven years I have know three and I'm not going to make it four peple who have died from Cancer. What I have learned in eleven years is to never give up cause if you do you'll never make it.

(An early draft from the archives of Spencer)


Friday, June 20, 2008 1:09 AM CDT





Hey Bud. It’s been a month. We miss you terribly. Hope you’re OK.

We’re all doing, OK. We’re not quite sure how we’re supposed to be doing. It seems like we should be weaping and moaning and what not, but that got old after a while.

What is staggering is the ordinariness of everything. We get up. We shower. Get dressed. Work. School. Baseball. Laundry and dirty dishes. Costco. Whatever. There doesn’t seem to be an instruction manual. Is that all there is? We just get our act together and carry on?

Seems like it’s a possibility.

There are other options. I’ve been suggesting that we should just sell the cars, the house, the boat, and just about everything and go buy a Beneteau in the Caribbean and go sailing for a few years. Mom likes the idea of going sailing, but she doesn’t think we should sell the house. I suppose she’s right. It might be a really dumb financial move because last time we checked Beneteau’s don’t appreciate. For now we’ll settle for a month in the Gulf Islands and Desolation if summer ever comes.

Besides there’s still a lot of you here in this house and we’re not ready to just pack up. Speaking of which, your cremated remains are sitting here beside me. They don’t come with an instruction manual either. We’re thinking they belong in one or more of your favourite coves. But which ones? Maybe we’ll stop by clinic and pick up a bunch of those urine specimen bottles that you liked and divide the ashes up into 20 or so bottles and have a bottle to scatter at each of your favourite places. One for Mexico too.

We’re trying to adjust to life without fear.

It’s hard. I think we were fear junkies.

Anyway there are a lot of people who cared about you. Hundreds of cards. Emails. The Canucks sent a tree. And you’ve been in the local paper and the national television news. It’s all been very nice.

We’re thinking about you and we miss you.

Dad


Thursday, June 12, 2008 1:03 PM CDT

Spencer was featured on the Global National news yesterday. If you didn't happen to catch it, you can view it here:


http://www.canada.com/globaltv/national/video/index.html

Paste the URL into your browswer then click on Global National Stories and move your cursor to the bottom to scroll down or search "Spencer's Blood Drive"

The Canucks were also asking about using an image of Spencer and Trevor Linden, so it might be worth picking up a copy of the National Post...





Tuesday, June 10, 2008 0:17 AM CDT



Scupper's True Purpose

Well you can't go sailing forever, but it is still possible to sail out of cell phone range. Though somehow the email still arrives on your BlackBerry as you sail from one island to the next. Which isn't all bad. It's nice to know people still care about you. But it's great to get away.

And today was back to work. Work is sort of an intellectual exercise at the moment. Don't tell my boss, but I'm unconvinced that it matters if anyone ever buys another optical sensor. That's why it's an intellectual exercise. If my heart's not there, I just have to convince my mind that a pay cheque is still a good thing. So what the heck, I'll fake it for a while and after a bit maybe I won't be able to tell the difference.

Who was it that said money can't buy you happiness, but it can buy you a nice boat and you can pull up right alongside?

Ah yes and I finally stopped playing telephone tag with the coroner today. They investigate the death of every child in the province. They wanted to make sure we didn't have any questions about Spencer's care or treatment. We don't have any questions. I didn't mention the parking.

And I brought along a copy of Spencer's death certificate. Our group benefit plan has dependent life insurance. It covers the cost of the theatre. Maybe the pizza. Not the dead people folks.

Tracey and Foster took back the wheelchair to the Red Cross today. When they went in they looked at Foster and said "You must be Spencer." Whoops. At least they didn't notice the bent handle and foot rest from our little accident in Mexico.

So tomorrow will be more normal than today. No wheelchairs, coroners or death certificates.

Oh. Except that there will be a television crew in our living room in the morning. Some national news crew interested in who was this boy named Spencer that everyone seems to be donating blood in his honour for.

OK maybe not normal tomorrow. Maybe not ever.

But I have figured out Scupper's purpose. And I even understand now our epic battle and the timing of my defeat. He lives to make us happy. So he crawls into bed. Sometimes with Tracey. Mostly with Foster.

What was once forbidden is now comfort.

And Foster calls him "My brother Scupper".



Tuesday, June 3, 2008 8:13 PM CDT



We're sorry. Regular programming has been interupted. The Dolling family has gone sailing.


Saturday, May 31, 2008 11:45 AM CDT


Wow. We had a great celebration for Spencer. I haven't chronicled it here yet because we have been so busy grieving. Which means we went out and raced go karts yesterday with Al & Sue and Hadley and then for dinner at a Thai food restaurant.

I'll have to get an electronic versions of the talks. They were all wonderful. I think they gave everyone a sense of Spencer's whole life and the impact he had. I'll see if I can't post a few of them here. Serge and Stephanie talked about Spencer's school life. Sheila and Suzanne and Alan talked about Spencer's hospital life. And Al spoke from the heart of a friend. And to hear Spencer in his own words was amazing, except that it made Scupper upset as looked around for his buddy.

It was all very moving. And it was really cool to see Jared and Keaton battle in Guitar Hero. And to hear Michael and Tyson play the real guitars with Hailey leading the singing and have Foster drive in on the gokart and fire the cannon into the crowd for the finale.

If you ever speak before an audience of hundreds, I would highly recommend that you walk up to the microphone and ask everyone to wait for a few minutes while you go pee. It creates a sense of drama. And definitely turn off the fart machine so everyone can focus on what you have to say.

And as I did my talk, Scupper ran back and forth across the stage chasing a tennis ball. And Tracey imagined that it was Spencer throwing the ball for him. It was beautiful.

And the pictures and the memory tables and the music. Ahh the music. All selected from among Spencer's favourites. Here's the playlist that Jared, Keaton, Michael, & Foster put together:

When You Were Young - Killers
Fairytale - Harry Gregson-Williamsand John Powell
Dead Wrong - The Fray
If Everybody Cared - Nickleback
Cliffs of Dover - Tamas Szekeres
Move Along - The All American Rejects
Hold On - Good Charlotte
The Music - David Usher
Walls Fall Down - Bedouin Soundclash
The Young & The Hopeless - Good Charlotte
When The Night Feels My Song - Bedouin Soundclash
Knights of Cydonia - Muse
You Make Me Smile - Blue October
Thanks for the Memories - Fall Out Boy
I'll Keep Your Memory Vague - Finger Eleven
Drink Up Me Hearties - Hans Zimmer

And then there is the old folks playlist that Tracey and I pulled together with some help from Foster:

Even Flow - Pearl Jam
Beautiful Day - U2
Give a Little Bit - The Goo Goo Dolls
Photograph - Nickleback
High Speed - Cold Play
Story of My Life - Social Distortion
When the Streets Have No Name - U2
Back 2 Good - Mathbox Twenty
Miss Murder - AFI
Nothing Lasts Forever - Maroon 5
I'm On My Way - Rich Price
Welcome to the Jungle - Guns N' Roses
Hey There Delilah - Plain White T's
Ruby - Kaiser Chiefs
Holding Out For a Hero - Frou Frou
It's Not Over - Daughtry
Wasting Time - Jack Johnson
Don't Panic - Coldplay
Ever The Same - Rob Thomas
Good Riddance (Time of Your Life) - Green Day

So set up a playlist on your iPod and crank up the volume and think good things about Spencer! ( And if you don't know what a playlist or an iPod is, you might be better off to just buy a Jack Johnson CD).










Friday, May 30, 2008 3:36 PM CDT



If you are sitting next to a doctor, shake their hand and tell them you are honoured.

If you are sitting next to a nurse, give them a hug and tell them you are in awe.

If you are a nurse, you have an odd person trying to hug you. Sorry about that.

Wow. How did we end up here? We certainly didn’t choose this. We had no choice at all. How is it then that the greatest lesson that Spencer taught us was that we do have a choice every hour and every day and that we can choose exactly how we want to live our lives.

And, if you are able at important points in your life, to look back and say you have absolutely no regrets, it’s a pretty wonderful feeling. Believe me, we know.

Spencer, “Spence”,” Buddy”,” Bud”, “Maddy”, “Nurk the All Powerful”, “Penker”. We miss you buddy. We are here to honour you today.

I think though that you must have a good public relations staff. All these people here believe that you were some flawless wonderful gift to the world. I think they should know the truth.

They should understand that there are a handful of fathers in this room that would not have wanted you left alone with their daughters. You had a serious drug problem and you skipped a lot of school. And all of this before you were a teenager.

But let’s start at the beginning.

I checked the log of the sailing vessel Snapdragon. May 7th 1995 was the first mention of you in the log. 5 days before you were born. You were called “Bump”. We sailed with Bob and Sue that day and caught a salmon.

Your mom always hoped you would be shaped like a salmon – small pointy head, no shoulders. It didn’t quite work out the way she hoped. There were 30 hours of painful labouring and then a C-section. But in the end, you were a lot cuter than a salmon-shaped baby would have been.

I remember the first night that we brought you home from the hospital. Actually, it was a very loud long night and I was very nearly convinced that fatherhood was a huge mistake. And then your mom discovered that she could stick her little finger in your mouth you would stop wailing. And thus began 13 years of bliss.

There was no mention of you again in the log until a full two weeks after you were born on May 27th. I remember that day. We took you to Snug Cove and we were enjoying calamari at Doc Morgan’s and you had done something in your diaper that was apparently Dad’s job. You were about the size of a football so I grabbed you in one arm like a football and jumped over the railing and carried you that way down the dock to the boat to change your diaper. Walking back up the dock, people were kind of staring in shocked disbelief at the sight of this father so casually carrying a precious newborn in one arm. I guess at various times throughout your life people have been in a state of shocked disbelief.

Forgive us Spencer. There is a temptation to measure your life. And if we do it in years, the number comes up far short of what anyone can imagine as a reasonable number and that makes us sad. But when we look at it in other ways, we can’t help but be happy.

You’ve always had a unique perspective and approach to life. You had a favourite saying, at least it was a favourite of mom’s and mine. You would say Mom, (or Dad) followed by a pause and then “I have a question”. Your questions were announced and left unposed until you had our full attention. It was like you were filling in all of the pieces of the great puzzle of life and each question was important and you knew that.

We even wrote down some of your early questions, at age 3 you were sitting around the dinner table you asked mom. “Where does broccoli come from?” And mom told you that “Farmers grow it in their fields and they bring it to Safeway where we buy it.” And you asked, “Where do bunny rabbits come from?” And Mom answered, “They come from mommy and daddy bunny rabbits.” And then she asked you, “Where do you come from Spencer?”. And you had already put together those pieces of life’s great puzzle and had the correct answer at the tip of your tongue. “I come from Home Depot.”

And by age 4 you had everything all figured out. The log notes that we were tied up at Silva Bay enjoying a nice dinner and you asked, “After dinner can we go and walk the docks and look for girls?” But there was a dark side to all of this.

You weren’t just content to enjoy the company of girls and laugh and play a game. You liked to sit next to them and gain their confidence. And then you would convince them to take off their shoes and be comfortable. And then you would convince them to take off their socks. And then you would play with their toes. More than once, a little girl came running out of your little play tent screaming, “He’s trying to get me to take my socks off!.” And it wasn’t just the little girls. The babysitter was fair game too. Thankfully you grew out of this one before long and it didn’t seem to cause any problems later in life. At least that we know of. Logan, did Spencer ever ask you to take off your shoes?


And we could measure your life by the things you’ve done. You’ve sailed boats. Big ones and little ones. And traveled to Mexico and Hawaii and the Caribbean and Disneyland and Disneyworld. And shot arrows from a bow. Climbed walls. And caught fish. Lots and lots of fish. And read novels, thick ones. And learned to speak French. Picked out a puppy. Raised a dog. Been to camp. Flown in a helicopter. Watched killer whales hunt and dolphins play. You’ve caught rock cod and fed them to eagles, in flight. And built things out of wood. Swam in cool rivers. Jumped off cliffs into Cenotes. Stuck everything together with hot melt glue. You’ve been on TV and the radio. And you’ve written a speech and talked to an audience of 500. You’ve met some of your heros. Rowed a dingy. Played guitar. Skied down a mountain. Skied through a valley. Shot things out of your own cannon, mounted on your own electric assault vehicle. You’ve raced gokarts. Jumped on trampolines. You’ve played soccer and baseball. Rode a bicycle, with rollerblades on. You’ve been fingerprinted and thrown in a police car. Planted a garden. Built a fence. Rode in a red Ferrarri. Squashed bugs. You’ve caught butterflies, tadpoles, caterpillars, squid, clams, octopus, jellyfish, snakes, spiders, and some really ugly lingcod and just about anything else that would take your hook or fit in your net. And you laughed and you’ve cried and you’ve loved.

When Marilyn came over the other day to learn about you, I think she expected to help make happy a sad tale of a boy who struggled and lost a long battle with cancer. But that is not really the story. Not even close as she learned and we have known. We hear words like courage and determination and bravery and battle and hero. And to be honest I don’t know what these words mean. What I do know is that cancer was a big part of your life, and it shaped your life, and guided its course, and ultimately set its duration. But cancer never defined who you were. And we won’t for a moment try and sweep it under the rug as a footnote to your life, but you did everything on your own terms.

The long list of things you’ve done were not the result of enthusiastic parents pushing you to do things so we could check things off on your “been there, done that” list on accelerated schedule. All we could ever do was give you the opportunity. You seized it and lead us there and we never once had to push you. I don’t think it ever really occurred to you that cancer was this really big thing that was supposed to slow you down. And it wasn’t as though you didn’t know what you were up against. You watched it take your Grandma. And your friends, Kevin and Jestin and especially Will. And what did you have as the password on your computer? “Never give up.” We never used those words. That was something inside you.


. . .


Spencer was lucky. He had an amazing mom. Tracey was his friend and companion and caregiver and chief medical researcher and advocate. She loved him and knew him and knew what he needed. She was in charge of cuddles. And there is a hospital full of people who would move heaven and earth to do whatever she asked for. In part because she was pretty much always right, but also because she baked cookies. And she cleared the decks for anything that might be looming on the fun agenda.

They have a commonly used phrase at clinic now: “the recreational transfusion”. That’s a top up of platelets or red blood cells usually before a weekend where we plan on doing something that requires a lot of energy or has risk of bleeding, even though it is not a strict medical necessity.

And we don’t worry too much about the negative impact that Spencer has had on the world’s supply of blood. He kind of took care of that. One day he had a question. “Where does all the blood come from?” And then based on the answer he set about saying thank you to some donors. And then in understated Spencer style, things just kind of took off from there. As we speak, there is a whole cyber nation of strange orange Running Maniacs who are organizing blood drives across the country in his honour. He just had that ability to inspire people.

And I guess in spite of his toe thing and the drug use and skipping school, he was a sweet kid. I remember once Tracey called me at work. Spencer was in kindergarten and had been called into the principal’s office. “What did he do?” I asked. “He stuck his finger up,” she said. “Stuck his finger up what?” I asked. And on it went until finally I figured out that he had flipped the bird to the recess monitor. Another kid had put him up to and Spencer didn’t know what it meant.

During his interrogation, the principal asked him if he knew any bad words. “Yes,” he explained, “stupid” and “shut up”. And that afternoon Tracey explained to him all the other bad words.

And maybe that was the point in Spencer’s life where true innocence was gone forever. After diagnosis he grew up fast. And his intelligence turned to wisdom. And wisdom is rare in a ten year old. But you could just hang out with Spencer and talk and learn a lot. And you would just forget he was a kid. He was a joy to be with even in silence.

But he did kid things. He was an expert couch potato. He played all the video games. And when they got boring, he was always creating something with his hands. And he loved to play games. Skip Bo, Settlers of Catan, Risk, Monopoly, Hospitalopoly, card games, and backgammon. And Spencer was a wicked poker player.

.
. . .

And Spencer you had an awesome brother. Foster is strong and sweet and caring and patient and kind. You helped teach him all these things. And they will be with him for a lifetime along with all the memories of being with you.

And great friends. And the thing is you actually managed to talk about your great friends and the love for your brother and family and publish it in the national newspaper as part of the permanent record. How special is that?

Do you know how many people never say these things and regret forever that they didn’t. What a gift.

Thank you Spence for bringing life to my iPod. Our music collection had kind of hit bottom. We knew that when the Shrek 2 Soundtrack was the best CD we had bought in years. Now at least half of the good stuff comes from you. Oh and since I get the last word, two things: Mark Knopfler is not hillbilly music. And Roy Orbison is not a form of torture.

And now Spencer I think I would like to recognize a few of the individuals in your life who have made a difference. I want to single out all those who have cared for you, played with you, inspired you, driven you, taught you, and coached you. I want to recognize all the people that you have cared about. I want to list all of those who you have inspired. I want to single out the mothers who give their kids an extra hug, the runners who are going up hills saying “Never Give Up.” The hockey players who think you kick ass. I want to thank each one of the people who have prayed for you individually and recognize them by name. I want spend a moment and talk about each of the people who think you are pretty special kid who has made a difference in their lives.

Spencer, we have a problem!

I don’t know where to begin. And I don’t know where to end. And I think perhaps there is no ending. And maybe we’ve stumbled across the measure of a life if indeed a life ever needed to be measured rather than just enjoyed.

Let’s measure it based on the space you occupy in people’s hearts. Let’s take the cumulative volume of all of the love that you have created. Let’s use that as the measure and forget about the whole age thing. And if we did convert all that to the age equivalent I hope to live to be as old as you. You wise old soul. What a fantastic life.

We love you to infinity and beyond.



Wednesday, May 28, 2008 2:02 AM CDT



I don't know if we are doing the grieving thing all that well. We've been out to see Indiana Jones and had a great sail on Sunday. Foster played a baseball game tonight. Tracey has been running. And I've done a few laps of the Poco Trail on my bike. We've been laughing a lot. Except of course when we see people who we haven't seen since before Spencer died and then of course we are sad with them.

It's a very strange thing.

I think the celebration on Thursday is going to be wonderful. Marilyn will preside over the affairs. She has a Portuguese Water Dog who Scupper has met and approved of so it should go well.

For those expecting a traditional service, ummmh ah well... Did I mention there will be pizza after? Foster chose the menu. Jared, Keaton, Michael and Foster chose the music. You know what? At a traditional service, you are just not going to get a playlist that you will want to download to your iPod. Here you will. It'll be loud and fun.

So we've had a few days to reflect. And if you reach important points in your life and you're able to look back and say you have absolutely no regrets about anything, that is a wonderful feeling. And we can say that because we know. And it really does take the edge off the sadness.

We hope to see everybody on Thursday!




Friday, May 23, 2008 7:52 PM CDT

This will be brutal for people who only check the website once a week, but hey we have to move on. There is important irreverant writing to be done. We only have so much capacity for tears. So get over it and catch up with us. We'll all cry again later.

We met with the dead people folks today. Actually they are quite nice. They had a cocktail shaker with martini glasses and a dinner jacket waiting for us when we arrived for the meeting. So right off the bat we decided to cancel the other 4 appointments we had with competing funeral homes.

We made the decision on the venue. We booked the Massey Theatre in New West. We want anybody who wants to come to be there so there should be plenty of room. I joked that Spencer would have liked it at GM Place and the funeral director actually gave them a call when he stepped out of the room. My sense of humor takes a while. Even I'm not sure when I'm joking.

We seem to be moving at quarter speed. So much to do. Music. Flowers. Speakers. Memorial Thingies. Pizza. Fart Machines. The usual stuff. Time to fire up a spreadsheet and delegate.








Friday, May 23, 2008 7:49 PM CDT

We'll dump this in the journal - I may want to view it someday. Need to update the header with important new info.

Welcome to Spencer's web page. It has been provided to keep people updated about Spencer's life with Neuroblastoma, but mostly it serves as a containment vessel for the stuff that oozes out of his Dad's mind and falls on the keyboard.

Spencer was diagnosed in April 2002 with high risk stage IV neuroblastoma and has had extensive chemotherapy, surgeries, a stem cell transplant, cis-retenoic acid, low-dose MIBG radiation treatments, a phase II fenretinide clinical trial, a Portuguese waterdog, heaps more chemotherapy, total body radiation followed by his brother's bone marrow and enough topotecan to seriously harm a small child.

Please sign the guestbook. We love it when you sign the guestbook.


Thursday, May 22, 2008 1:34 PM CDT



A week ago I wrote something that I never posted on the website or sent out to the email list. There were people at the hospital who were worried about us, and we needed to be kind of clear about where our heads were at. Some people were moved by this, so I'll share it here on the website:

"Sheila and Suzanne got a bit of grief today. Sheila is Spencer’s oncologist. Suzanne is his primary nurse. Together they know us as a family at least as well as, well, our family. They are family. We make all our important decisions together.

Today, there was a meeting among the medical staff about Spencer. Some concern was expressed that perhaps unwarranted hope was being passed on to us by pressing ahead with chemo when there is really no reason to be hopeful. There was also some alarm that we seem to walk around the hallways smiling and generally cheerful. It was observed that I am quiet. I guess the overriding concern, whether stated or not, was whether or not Tracey and I are at all plugged into reality or if we wander about in a serious state of denial.

Forgive me if I’m not miserable.

Believe me, I am miserable. But I’ve had six years of training. I fake it well.

A long time ago, Spencer was statistically dead. That is to say, the likelihood of attending his wedding was infinitesimally small. The likelihood of him ever being a teenager was tiny. Problem was, we had this vibrant, very much alive, little boy to contend with. So we had choices to make. We had to decide if every day Spencer was a little closer to death. Or if every day he was alive and we should damn well live the best we can. If it’s not obvious which choice we made, then we have failed.

We might very well be on a train headed down the tracks with the bridge washed out. We do of course have the choice. Shall we run to the back of the train, hide underneath a seat, and moan and whimper? Or would it be better to get dressed for dinner, head to the dining car, and have a few cocktails while enjoying the scenery? If we could jump off the train, believe me we would. In the meantime, have you seen my jacket?

So if you see me hopeful about the chemo my son is getting, don’t worry. I’m under no illusion that all of a sudden things will be better and remission is just around the corner. I don’t believe that any more than any one else. Trust me, I do the mental processing 24 hours a day. Do I believe the chemo might relieve his pain and make him feel better, and maybe we can go home have some fun or get another pass and go gokarting or whatever? Absolutely. It is possible.

I also understand that we are not waiting for God’s gentle hand to guide him to a better place. Neuroblastoma is an ugly beast that will rip apart his body with painful tumors. So let’s look at the alternatives. Being treated to death is not the worst thing that can happen.

So no we haven’t crushed Spencer’s hopes and told him he is dying. Last time I checked he was alive. I think they call that living. Will we come to that point? Yes. Likely. We discuss it every day or so. Have we taken advantage of all of the wonderful palliative services that are available to us? No. Thanks. We’re comfortable for now on 3B with the people Spencer knows giving him the care that he is familiar with. We don’t need to get freaky and fill our house with hospital equipment or go and live at Canuck’s place. Maybe later. Not now. And don’t ask, we know it’s there for us if we need it.

So suck it up. Get over it. The Dollings aren’t crazy. Their heads are screwed on tighter than yours. We’ve got a job to do. Let’s head for the dining car!"


So here we are now among the tangled mess of broken cars. Welcome to our train wreck!

Tracey and I have been deeply moved by all the words of sympathy that have poured out on the website, over the phone and through email. And I know people agonize over what to say and how to say it. It really doesn't matter. It really is the thought that counts and we appreciate the thought.

It's tough. We were all laughing and telling jokes by 5:00am yesterday. And then we made the first phone calls and completely fell apart. And back and forth it went all day.

I told friends that we were going to have to make decisions about arrangements because people would need to time to make their costumes. That triggered nervous laughter.

And we haven't made arrangements yet. We will meet with the funeral home tomorrow. It's tough. When you have a wedding, you might agonize over who to invite, but at the end of the day you know how big of a venue to book. With a funeral it's so hard. I don't know that a couple of hundred seats is going to be big enough. Spencer touched a lot of people. Plus I think it's going to emphasize fun over sadness so it should be a popular event!

Anyway we'll make some decisions and post notice of arrangements here tomorrow afternoon. We won't have a service until sometime mid / late next week.

And we have the perfect amount of flowers already. So we will also let you know what you can do instead of sending more.

Today I was gratified by all the people that were shocked at the news of Spencer's passing. Not because it's nice to shock people. But it's so much nicer to hear than "at last his suffering is over." He really didn't suffer. The last few months have been difficult, but Spencer lived a fantastic life right to the end. And he knew it.

If you've never seen the photo essay before. Click on the link below. Spencer said it best:

"Apart from my cancer, you can see that I have a fantastic life."






Wednesday, May 21, 2008 4:02 PM CDT


Spencer died this morning just after 3:00.

We were all there with him. Except for Scupper - he was in the car. Spencer didn't suffer in the end and really it happened very quickly.

Struggling to find some profound words, maybe later.

We'll update here with arrangements.


Sunday, May 18, 2008 11:22 PM CDT



Spencer is resting comfortably today. He's had a few rough periods and difficult nights.

He has had a lot of fluid build up in his abdomen, feet and soft tissues. It can, at times, be quite uncomfortable and painful. He's been getting a lot of morphine to help. He has had chemo on alternate days to allow him to get fluids out on the off days.

He gets out of bed to use the bathroom, but thats about it. Mostly he sleeps and hasn't even opened a few birthday presents that he's had for several days.

On the fun side,... Oh wait. There hasn't been a fun side. Though Tracey did host a bbq on the patio yesterday. Dozens of people came. Family, staff,patients. They polished off dozens of hot dogs and smokies in record time. Rumours that her thermos of green liquid was actually margueritas were really just rumours.

Hopefully Spencer is feeling a bit better soon.

Foster is working on his 4th grade science project. He has the same teacher that Spencer did. And in fact Spencer's hammer-lifting windmill still sits in the same classroom as an example for all. So Foster wants to do one better. He's decided to do a scaled down hydro-electric generating station. We went to the Depot today on got some plumbing bits and copper wire. He's found instructions on the internet. This should be good.


Wednesday, May 14, 2008 10:36 AM CDT


Spencer and I spent a couple of hours on his birthday working on one of those complex lego models. I haven’t seen that kind of concentration in weeks. They must have his drugs about right. Which probably means it’s time to mess with them.

He had an uncomfortable time yesterday. Things don’t feel right in his belly and he has had pain return to his knee and elbow. The ultrasound shows he has some fluid build up in his abdomen and lungs and his liver is a bit larger than it was. The lesions inside his liver look a bit fuzzier. There are no more of them and they are not bigger. So that is not bad news.

The bullet hole in his hip is healing up well. They’ve determined that the infection is e-coli and it will take several more weeks of antibiotics to drive it out of his bone.

Today he will start another round of chemo. Hopefully he’ll be feeling more comfortable soon.


Sunday, May 11, 2008 10:13 PM CDT



Mother's Day

I didn’t have a chance to update yesterday because the server was down at the hospital.

Spencer had his surgery yesterday. They cleaned out his infection. Nothing too complicated and it went well.

Small problem today. They left a dressing packed in the wound. Imagine a 1/2” hole in your lower back that goes through to the hip bone, packed with cotton. That’s kind of what Spencer has, but they don’t actually use cotton. The surgeon came by to “unpack” it today. Pain was the problem.

I say small problem. I think Spencer would disagree. OK, it was a major problem. It was too painful and the cocktail of pain killers hadn’t set in enough. So the surgeon went away and suggested Spencer or the nurse could pull it out whenever he was comfortable.

So a little while later, they decided to have a go since Spencer was already drugged up. Tracey attached the clamp. Spencer did the pulling.

Imagine pulling a bullet out of your own back. A big one, say 45 calibre.

Needless to say, we enjoyed a nice glass of the Mother’s Day sparkling shiraz in the playroom with the lovely meal that uncle Johnny brought. Happy Mother’s Day! I hope you all got to spend quality time with your kids like Tracey did today.

Spencer has also been enjoying his birthday presents a little early. He pooled together a little of his own fun money and Nanny Pop birthday money with a Mom and Dad contribution to get a 32” flat screen TV. Foster got him the new Mariokart for Wii game and so the real Yoshi and Mario have been racing in full colour in the hospital room. Why wait? I hope he still has some fun tomorrow.

Maybe we’ll be able to go home soon and mount his new TV on the wall in his room.


Saturday, May 10, 2008 1:00 AM CDT



The surgical resident came in today. She dropped her rubber glove on the floor. She picked it up and started to put it on her hand before examining Spencer. I asked her if maybe she wanted to go and get another glove. I sure hope they don’t do that with sterile gloves in the operating room!

Spencer has surgery tomorrow. He was going to have it today, but they decided to give it another day. They are going in to clean out his infection. The one at his bone marrow biopsy site from the last surgery. Hmmm. I wonder how it got infected?

Actually, the hospital has a big program underway to get people to wash their hands. They have signs like “this button was pressed by 734 people” with a little hand washing logo next to the elevator. I got confused in the bathroom. 3321 people had flushed the toilet, but only 1421 people had touched the doorknob. How the hell did a couple of thousand people get out of the bathroom?

Spencer has been very quiet and sleeping a lot. He didn’t come home on pass today. He just slept. No go kart rides. No looks. Though we did play a game of backgammon again last night. Unfortunately, Spencer rolled doubles twice near the end and I wasn’t able to take him.

Dad made it of the intensive care unit yesterday. Which was nice. I think perhaps I might be operating near the maximum stress level because I didn’t manage to feel any additional anxiety when he went in to the hospital. He’s going to be OK. Some heart issue easily fixed with the right drugs. My brother and sisters absorbed the additional anxiety. I think parents do these kinds of things to pay their children back for being teenagers.


Thursday, May 8, 2008 1:51 AM CDT


If Feels Faster When You're Slung Low

Blondie was driving Race 2. I was up above taking pictures. I heard a whump and looked down to see Yoshi bouncing off the wall. My first thought was, “Oh, oh, he’s run out of steam.” He qualified 7 seconds slower than Bowser. I thought maybe there was too much methadone and Tramodol and was just time to call it a day and have a rest.

But I watched as Yoshi took off. He hadn’t under-steered and missed the corner. He’d done a four wheel drift and slammed in sideways. I watched him through the next 3 turns and he was definitely not slowing down. He was reeling in Toad and Frying Pan. He came back down the straightaway and I saw the look.

I haven’t seen the look in a long time. Mostly I see the methadone look. The quiet boy without emotion. The blank stare. It’s better than the pain look, but it’s nothing like this look.

This was the animated look. This was the “get the hell out of my way I have a world to conquer” look. It’s a look a little more directly connected to the soul. Sort of fear and determination packaged together. It can’t be generated playing video games, no matter how good the graphics. It was a look that was good for Bowser’s soul.

I had plans to handicap the race. I talked to the pain docs this morning and asked how much methadone I should give to the other kids to make the race fair. They suggested that if I gave everybody the same dose Spencer was on, they wouldn’t be able drive at all.

So we did the handicapping based on the times in the qualifying race instead. Funny thing was by the third race Yoshi had picked up his seven seconds. In fact all of the near teenagers were within a second of each other. So Yoshi kicked butt on corrected time. Waluigi won on the uncorrected time (Happy Birthday Jared). Mario got the drift award (well done Foster).

Of course, Blondie beat them all, but she wasn’t eligible for prizes.

We might have to go back on Monday, Spencer’s actual birthday, because the first race is free. And of course Bowser would do anything to see the look again.

And then, just like in some epic endurance race, we had to help him out of the car and sent him off to be hooked up to an IV (after cake and pizza of course).


Wednesday, May 7, 2008 0:45 AM CDT

We broke all the rules today. I'm not sure that we are really fit to be parents.

First I took Foster to an appointment. But after that, he and I were pretty much playing hookie. He was skipping school and I was skipping work.

At the Go Kart Track we signed papers and certified:

Spencer was more than 58" tall
Foster was 11 years old
None of us were taking any drugs that would impair the operation of the go-kart.
We weren't wearing open soled shoes (Tracey had thongs on)

I think I was the only driver legally allowed to operate one of these karts. Oh well.

It all turned out well. Great fun. So we are set to go for the party tomorrow.

I am working on a handicapping scheme for the race. I think for Jared, Keaton, and Michael I'll administer the following: 200mg of Tramadol, 3mg of Methadone and a big kick in the back. That will keep the racing fair. I'm also considering using the results of the first race to handicap the next one with time allowances. I'm not sure which way would work out best for the kids.

We'll see how it goes.

Scupper! Get out of my bed. I know you're in there.


Tuesday, May 6, 2008 1:47 AM CDT



It's All Over

The epic battle is lost.

I didn’t realize it, but it was really a siege. For years the enemy has been in waiting in my very presence. And slowly, slowly, slowly we’ve been worn down. And at long last we are conquered.

I didn’t even know about it until the next day.

Tracey came to the hospital. And she told me that she woke up in the middle of the night after a fitful sleep. And the hairy beast was in the bed. In my spot. Not quite with his head on my pillow.

Spooning her.

And worse. And this was how we know it’s all over. She didn’t throw him out.

Fly the flags at half mast.

I can’t say that I blame Scupper. My friend Alistair came over on the weekend. We decided to get liquored up on Saturday night and cut Scupper’s hair. Understand, it’s not that we got liquored up and made a bad decision. It was all premeditated. We had to fix the Balding for Dollars work of the week before. Scupper was looking like a fat Schnauzer that had had its head stepped on. By the first glass of wine, we had already decided we go with the East Kootney Badger cut. Unfortunately it all went wrong and he ended up with a ¼ inch of hair everywhere. Everywhere except the scrotal area. Scupper and I have an agreement that supersedes anything I’ve had to drink. We just leave a ball of hair there. That way I don’t accidentally cut some loose skin that might be hanging down. And he can go out in the dog world and keep the bitches guessing.

And a smaller battle has been won. Telus sent me an email. They are not going to park in patient spots any more! Just that it was wrong and they will fix it. No excuses. No puffery. No defence. Thank you! There are good people and good companies left in the world.

Spencer has been coming home for a few hours every evening. His infection is slowly getting better. His biggest issue (other than that little cancer problem) is weaning off the pain medications. He’s been a bit quiet of late from all the drugs. Although today we played our first backgammon in about a month. Two games. He won them both. It was just luck. Three sets of doubles in a row.

Tomorrow, we are going to check out a go-kart track. There is an indoor one in Richmond that is apparently very fast. The plan is to have his birthday party there on Wednesday so tomorrow is the trial run to make sure he’ll have fun. Spencer might be a half an inch short of the height requirement. I think we’ll just show the bald head and say that it’s not fair kids with hair are taller. With the hair issue as a distraction, the topic of whether or not its safe to drive under the influence of a massive load of narcotics won’t come up…


Friday, May 2, 2008 8:52 PM CDT


Yeah! Spencer came home for dinner tonight on a pass.

He has an infection on his back that is quite painful. It seems to be responding to antibiotics and slowly getting better. They are working on the assumption that it is in his bone, so he will carry on with IV atibiotics for another 5 to 10 days. But it looks like he'll be able to come home on pass for a few hours each day.

So we've sort of fallen into a routine. Tracey and I alternate each night at the hospital. People have been wonderful looking after Scupper, bringing food and whatnot.

Thank you!

Oh yes. And they're is the Telus driver who 3 times this week parked in the patient spot and never once had the courage to explain why to me even after I left my phone number, room number and email address on his windshield. I'll see if I can't catch a picture of some poor mother carrying her sick toddler across the site because there are no patient spots to leave on his van (licence number 5870KK) so he understands the consequences.


Monday, April 28, 2008 1:07 AM CDT



We had a good weekend. Steve and Foster are bald as is aunt Vicki. Scupper has a flat top and got credit for being the first dog at Balding for Dollars and for raising over $3000. Of course Scupper had nothing to do with raising the money - Vicki did all that. Spencer shaved the heads.

We had a nice afternoon / evening sail yesterday with Al, Sue and Hadley who came up from Seattle.

Today, Spencer went back in the hospital. Elevated temperature and an infection near one of his bone marrow biopsy sites. So we will see how things go over the next few days.


Wednesday, April 23, 2008 0:18 AM CDT


Enlightenment

Tracey picked up a book by His Holiness the Dalai Lama at Costco a few months ago. It was $8.99.

I didn’t really have the attention span for it, but skimmed parts of it, picked out the good bits as it were. The thing struck me was the whole Buddhist notion of enlightenment. I think at first, I didn’t get it entirely right.

I sought insight. And for that you need high definition. And if you want high definition, you need 1080 lines and progressive scan. With a decent contrast ratio. And a signal source, preferably something that plays a Blu-ray disc.

So the 46” LCD came into our home. And I watched Planet Earth in full 1080p with surround sound. And so it was.

And I wondered how many Tibetan monks had 46” Sonys. And how many of them were attempting to achieve enlightenment without the right equipment?

Yet still I didn’t feel enlightened. And so I skimmed a few more chapters. I recognized the need to simplify and concentrate and bring things down to their essence. The complication of it all was darkening my pending enlightenment.

I needed to quiet the lake. You can’t quiet the lake when you have three different remotes. And simply programming one remote to work like three, just knocks the tips off the waves.

Thus the new Logitech smart remote.

And so it is with a few hours of programming I can now press a single button (well two actually) and choose whether to watch a hockey game or switch over to play Guitar Hero. And the thing talks to the TV and the cable box and the receiver and figures out everything and I can feel the stillness.

And now the lake is quiet, and I know I’m nearly there.




Monday, April 21, 2008 11:31 PM CDT


Coming Home Fully Programmed

OK. Those of us with hair are shaving it off at Balding for Dollars. My sister Vicki set it all up. Scupper, Foster and Steve are doing the balding. (Not Tracey – we like her hair.)

Unfortunately, I think Vicki had quite a lot to drink when she set it up. She challenged all the people on her running website that if they pledged $1000 she would shave her head too. That took half an hour. Spencer plans to do the shaving. Here’s the link:

https://www.kintera.org/faf/donorReg/donorPledge.asp?ievent=252579&supid=212943665 (click on it below under links)

They do good things with your money. We know.

Today Spencer had a pass for the third day in row. We went to Best Buy. He did a beautiful thing. He said to me that the methadone makes it tough for him to figure out all the remotes to watch TV. Thank god. I have trouble figuring out the remotes and I don’t take narcotics. So we bought the new Logitech supersmart remote thingy with the money that nanny gave me for my birthday. Now we don’t have to remember to turn the TV to HDMI 2, and the receiver to Video 2 when we turn on the Playstation, and switch to Component 1 and DVD when it’s the DVD player. We just press a button. This was an essential addition since I rely on Spencer to help me through this, and if he’s finding it confusing we’re in real trouble. It only took four hours to program!

Two weeks ago, Ann the physiotherapist, ordered a special air bed for Spencer to stop the immobile boy from getting bedsores from lying in one spot. He tried it, but didn’t like the noise it made, so he sent it back. Today, Spencer decided he wanted to go to the gym to workout and regain strength in his legs. And no mom thanks – he’s almost a teenager. I don’t think Ann gets very many requests from kids of their own initiative who want to do strength training. And I’m pretty sure she wasn’t expecting a call from Spencer.

By the way, the pain thing? Not any more. No fevers. Spencer may come home tomorrow or Wednesday. You have to love chemo.

Steve



PS: There is like a massive backlog of thank yous to all the people who’ve called, emailed, arranged meals, cleaned the house, walked the dog etc. We’ll catch up on all of these over the next decade. By the way item 17 – wine, you were supposed to drop it off to me, not drink it yourself.




Friday, April 18, 2008 1:46 AM CDT

We didn't have a party at the hospital today. Instead, we had a party at home! Spencer had another pass and felt well enough to come all the way home.

It wasn't much of a party. That is we didn't do anything extraordinary. Just regular things like cook a meal and sit together, wash dishes, and watch TV. And of course there was the gift of the purse. It was nice. I guess maybe it was the best kind of party.

Jason called today. He works for Telus. He wanted to talk to me about my long distance plan and find a way for me to save money. He seemed like a nice man. Unfortunately I wasn't able to help Jason achieve his objective.

"Do you have the ability to make notes and pass them on to your supervisor?" I asked him.

"Sure" he said.

"All right. I have a critically ill child at Children's Hospital. And often when I go there there is no parking because all the spots are filled. I'll spend half an hour trying to find parking. And almost every day I'll find a Telus van parked in the one of the spots reserved for patients. So when you call me to sell me a new plan..."

"I don't want to sell you a new plan. I want to save you money."

"I understand. But when I hear the name Telus all I can think about is that here is a company that is preventing me from spending quality time with my kid. All I want to do is pick up the phone and call Shaw and cancel my Telus service. So if you would please pass this on to your boss and then call me back in a week and I might be able to discuss this with you rationally."

Poor Jason. He's probably heard all kinds of objections from people who don't want to change. I'm sure he's never heard that one. I talked to one of the drivers of the Telus vans once. He absolutely did not care that he was parking in a patient spot. I've talked to doctors, nurses, and hospital security people who park in the patient spots. At least half the spots are always filled with staff cars. They're just pissed that they pay for parking and there are no spots. There is no apparent consequence for parking in a patient spot. I think if they have ever watched a mother carry her kid with crutches from the far side of the hospital to clinic or watched a kid with low hemoglobin collapse by the elevator (as Spencer did once) they would not park in these spots.

I don't know what I'll do if its time to take Spencer home on another pass and I can't get a parking spot he can walk to. Perhaps its time to write another letter to Mr. Petry. But I think life is to short to waste time on that.




Wednesday, April 16, 2008 11:21 PM CDT


It was six years and three days ago. Our regular doctor said not to worry, take some Tylenol. Tracey finally found a doctor in a walk-in clinic who took the time and listened to her when she said there was something wrong with Spencer. He was an older doctor. He moved at a different pace. And he was thorough and he took his time. And he found a mass. I think we all know how the story went from there…

We found a new family doctor!

Five years, three hundred sixty four days ago, we celebrated Tracey birthday at Children’s hospital.

Today, random acts of kindness were committed. Some folks from Pitt River school came by and assaulted the gardens. We really haven’t had time to do anything with the gardens for a long time. They toiled for hours. It was amazing.

And I ate Italian food tonight. I want to be Italian when I grow up. If you ever have the chance, tell the world you are starving and have them cook you dinner. It’s amazing what you can eat.

I didn’t get to see Spencer today. Foster had a sore throat. I woke up with a sore throat. So I left the hospital before Spencer woke up and Foster and I hung out in misery today. Except for the part where we went to the mall to look for new rollerblades. And then we remembered that it was mom’s birthday tomorrow. And we found a black leather purse that’s sort of backpack like. And we did it all on our own without any help. So we know she will love it. But just in case we put the gift receipt inside.

And today, Spencer was in pain. Excruciating, uncontrollable pain in his shoulder and his ribs. He couldn’t even talk. He had to write instructions to tell people to shut up, get out of the room, stop asking about his pain, and turn a movie on so he could change his focus. And then he wrote a new pain plan for the doctors explaining which drugs at what quantities and what times for what sorts of pain are most effective. And I think that they were listening.

But I’m not sure. I wasn’t there. Foster and I were at the doctor’s appointment that Tracey booked for us to have our sore throats looked at. Wouldn’t do to expose Spencer to something nasty while his immune system is suppressed from the chemo. And the regular family doctor wasn’t there.

There was an old doctor filling in.

Dr. Andrucson. And he asked why the older son’s immune system was suppressed. And we answered. And he asked what the older son’s name was. And we told him. And he remembered Spencer. And he remembered finding a mass. And he took his time. Nearly an hour to swab a couple throats and look in ears and noses. And we didn’t mind waiting. We have all the time in the world for Dr. Andrucson.

And tomorrow, we’ll celebrate another of Tracey’s birthdays at Children’s Hospital. But maybe Foster and I will wear masks. It takes a few days for results of the swabs.


Wednesday, April 16, 2008 1:14 AM CDT



Spencer had a good day today. He's been reading magazines for his Mac and saw an ad for a device he wanted. It's some thingy that you can hook up to cable and watch TV on your Mac and pause shows, record shows, skip commercials, and download stuff to your iPod.

So he was very keen to go out shopping and get one. So we called up uncle Johnny to get a lift. We had the hospital give us enough methodone in syrininges that we could sell it on the street to pay for the "eyeTV" and we were on our way.

Johnny drove us to the store and Spencer had no trouble walking in and standing around waiting while we paid for it. Then we went to Johnny's for dinner and hung out for a while. I ate dinner while Spencer unpacked his "eyeTV" to have a look.

Then it was back to the hospital to hook it up to the Mac and see how it works. And it works great.

Never did sell the methadone. Can't make any money if you consume your product. But it was a great day.


Tuesday, April 15, 2008 0:25 AM CDT



Spencer had a pretty good day today. He was awake and alert and feeling pretty comfortable.

Last night was a bit uglier. He has a sore spot on his ribs. He had taken Tramadol, Tylenol, Methadone, and Morphine and still he had pain. I warmed an IV bag in the microwave and wrapped it in a pillowcase and that seemed to finally do the trick. At least he slept after that. I can't say I did.

Tomorrow Spencer has plans to put together another book based on our Mexico trip. I can't wait to see it.

Thanks to everyone for all the help. I think we've knocked off most of the items on the list, except for Tracey's birthday. Tonya, Alison: let me know where you got your black leather pack style purses - she likes them. Oh she'll be so surprised if we boys manage to pull this off.

I hope Spencer has a better night tonight.


Sunday, April 13, 2008 8:54 PM CDT

It's possible that there are rules at the hospital that we haven't broken yet. I'm not sure what they might be, but it's possible.

I'm still waiting for a response from Guest Services. I asked at the nursing station for them to send someone. The drain in the bathroom sink wasn't holding and I kept losing my ice. So I needed them to either fix it or get larger ice cubes. Today, they promised that they would have a wine fridge installed so I don't have to worry about it anymore. I'll wait and see. I'm not sure they take me seriously.

We did have a nice sleepover on Friday. Foster and the other curly haired brother enjoyed their first ever overnighter. We decided that we would hook Foster up to an IV and put an NG tube down his nose so the experience would be authentic. The prospect made Spencer smile. Somehow we never got around to doing it, but we did enjoy a movie together.

Chemo wrapped up today. Which is kind of nice. Spencer has picked up a habit of peeing blood the last couple of afternoons. That seems to have stopped now. He rested all day today. He is still getting stronger and he has put on about 3 kg with the help of his feeding tube. He looks pretty good, but he is still very sick.

We had an awesome Easter dinner in the playroom. All the cousins aunts uncles and Grandpa dropped by with hams and yams and other things that are probably against the rules. It was wonderful.

Oh and Foster I went out the boat with some friends last night and dropped the hook at Halkett Bay. We found the bag with the jug of milk and leftover bacon and managed to toss it out before it leaked or exploded. That was good. Unfortunately, we left Greg's cooler on the boat this morning. That will be a surprise for another day.





Friday, April 11, 2008 0:47 AM CDT



Just an update. Spencer had a better day today. He is in less pain and is a lot stronger. He is able to get in and out of bed by himself. He did some work on the computer and played a game of backgammon. Fortunately, I rolled double 3s just before he was about to get all of his pieces off and I won the game. I don't care how big his narcotic load, he still has to beat me - I can't let him win.

Looking forward to a fun day tomorrow. I believe that we are all staying overnight at the hospital tomorrow. And Spencer's buddies Jared and Keaton are planning to visit in the afternoon after having to cancel their visit yesterday. Spencer is looking forward to it.

Oh and I want to apologize. Yesterday in my post I'm afraid I left a few people quite shaken. It's a bit unsettling when I mix humour with disturbing content. So I'm sorry for that. And it really wasn't necessary. I don't actually own or wear any G-Strings so you can shake that disturbing image out of your brain.



Wednesday, April 9, 2008 10:29 PM CDT



They have confirmed the pathology from Spencer's biopsies and he has neuroblastoma in both his liver and bone marrow. Small wonder he is feeling badly.

Today he started a round of topotecan and cyclophosphamide. That may cool things down and help with the pain.

We are hoping to bring him home soon, but at the moment he is better off in the hospital.

So what can you do to help? Well let's see. We're struggling with the ordinary business of running the household. Tracey and I alternate nights at home. We're usually too tired to do things like cooking, cleaning, walking the dog etc. So if you are looking to help here's how:

1) small meals that can be heated in the microwave - at home or delivered to the hospital are great

2) drop by the hospital for a visit - room 8 on 3B (call ahead 604-720-6885)

3) walk the dog

4) clean up the dog poo

5) mow the grass

6) help Steve figure out what to do about Tracey's birthday

7) laundry (make sure Steve's G-strings hang to dry - not in the dryer)

8) send emails

9) It is best if Foster is at his own home as much as possible between school, daycare and baseball ( Tue and Thur evenings.) He is a very easy going kid, and will happily bounce from one home to the next, but I think he needs the comforts of home routine. Please feel welcome to come to our home with or without kids.

10) At some point Tracey and I could use a date night

11) Wash your hands and don't infect us with viruses

12) Make us laugh

13) Don't avoid us

14) pick up a few groceries

15) if you bring a gift for Spencer don't forget about Foster.

16) only feed the dog dog food

17) wine

18) if you can find 2 17”x12” grills that create a 17”x24” cooking service for a Canadian tire Centro grill this will prevent me from going to jail for killing an innocent Canadian Tire employee who can’t help me without a model number which has faded or fallen off my bbq.

19) keep an eye out for a grocery bag with a tub of margarine, half a pound of bacon, ¼ of a jug of milk, and a half a bottle of red wine – Foster and I packed it after our boat sleep over on the weekend, but now we can’t find it – we’re afraid it might get stinky


Thanks,

Steve





Tuesday, April 8, 2008 0:51 AM CDT



Spencer is very sick. He is quite weak and has been getting his nutrition through a feeding tube. He has had quite a bit of pain from his shingles and is still on large doses of Tramadol with the occasional hit of methadone. He has had some good days and some not so good days.

His scan results were mixed. His MIBG scan seemed to be worse than the last one with a lot of his liver lighting up. This is obviously a big concern. At present they’re not sure if it is a fungal infection or Neuroblastoma in his liver.

His bone scan was actually improved a good deal since January. So when Spencer says the ABT is working, he may know what he is talking about.

Today he had a liver biopsy to investigate what they are seeing on the scan. If it’s a fungal infection, they will use and anti-fungal drug to treat it. If it’s NB, that’s not very good news and they’ll try more chemo. He also had a bone marrow biopsy today. None of these biopsies particularly does anything good for Spencer, so he asked to have a couple of warts fixed. If you’re going to have anaesthesia, might as well have some tangible good come from it!

Tonight he is feeling good and very hungry after not being able to eat all day with the surgeries. He has managed to put on some weight and is a lot stronger today than yesterday.

We’ll see what tomorrow brings…


Thursday, April 3, 2008 2:01 AM CDT



Episode 2

OK so there are a few people wondering what was the problem and the miraculous cure.

The problem is that Spencer is a drug addict. He was suffering withdrawal. The cure was more Tramadol. So the idea would have been to wean him off of it more gradually.

Unfortunately, after the first episode of House, there was a second episode. This one was maybe scripted by a producer during the writer's strike. Not nearly so entertaining.

It didn't take as many experts this time, and the diagnosis was simpler: Spencer has shingles. Shingles carries with it enough pain that there is simply no need to wean him from the Tramadol. In fact, Spencer has a little methadone now and then when the Tramadol isn't enough.

And he has been miserable.

So when he was withdrawing from the Tramadol, he might have been psychotic, but at least he was happy.

He did smile once yesterday. And today he beat me in Backgammon. And tonight he ate some chicken, his first food that hasn't travelled through a hose in his nose for at least a week. So things are looking up a bit.

We would like to return to a dull boring life with no medical intrigue. Scupper misses having all his humans together.





Saturday, March 29, 2008 1:32 AM CDT


An Episode of House

A work friend once asked me if I had ever seen the show “House”. I hadn’t. He explained it to me. Told me I reminded him of House. I felt flattered that I was compared to some intelligent doctor character. It wasn’t until I actually saw the show that I realized the option remains open for comparison to an asshole with poor social skills. I must remember to ask him exactly what he meant.

Today was like an episode of House.

But before the drama, I should back up a bit. People ask, “How was Mexico?” I hesitate a bit before answering and then I tell them it was really good, which is true, but there are different ways to get to really good. Really good can be 14 days of really good. Or it can be some blend of absolute excellence with some real crap. Sometimes both can be combined into the same hour.

There were a few days where Spencer was really feeling like crap. He had intense pain in his back and he was maxed out on Tramadol and methadone. We could hardly get him to eat or drink anything and on a couple of occasions I had pull the string out of the waistband of my shorts to hang IV bags from the picture frame in the hotel room while Tracey rigged all the lines and stuck needles in our boy. So if I tell people about the challenging bits, they feel so sorry for our suffering. And if I only talk about Spencer riding Jet skis, cliff jumping in Cenotes, snorkelling, fishing, sailing, and playing backgammon in the shade they get some idea of a sublime time in paradise. Neither image is entirely correct. If we just throw it all in the blender like a coco-banana, it all turns out pretty damn good which is exactly what it was.

The return from paradise has been more challenging. The eating and drinking problems have continued. The pain is gone, but there is something much more deeply disturbing. It started on the plane ride home. Spencer has had some rather serious confusion. And he has become obsessed with certain things. His cognitive processing is spotty. When we were riding home from the airport, he started taking notes in his Ipod and insisted on capturing his thoughts before he forgot things. He spent two hours writing notes. In the end, he captured about 5 different sentences. This from the kid who delivers speeches at medical schools.

Last night he wanted to watch the hockey game. “But the hockey game is tomorrow Spencer”.

“I know he says,” and a few seconds later, “Let’s watch the hockey game.” He spent 45 minutes entering channel 22 on the remote and surprised himself every time when the world billiard championship came on instead of the Canuck’s game. And the episodes came and went.

And like Brendan Morrison, (injured Canuck’s hockey player) Spencer went for an MRI yesterday. Poor Brendan has a torn ACL. His season is finished.

Now, as for Spencer, they weren’t looking at his knee. They were looking at his brain. They were looking for Neuroblastoma. Spencer has a little more at stake than the rest of the hockey season.

Unlike Brendan, Spencer’s MRI came back clean.

And thus the House episode began in earnest. The easy diagnosis was ruled out. Sharp diagnostic minds went to work.

Of course if you are going to have good drama, you can’t just have a bunch of doctors chattering away, the case has to get more complicated and urgent. So this morning Spencer went for the high heart rate and extreme tiredness and weakness.

The ambulance came around nine.

They didn’t want to take Spencer to Children’s - only Eagleridge. Tracey told them fine, she would drive him to the edge of Vancouver and call another ambulance.

Nobody messes with Tracey. They drove Spencer to Children’s.

And various experts came by to chat. Everything was potentially relevant. No detail was overlooked. Maybe the pressure on the airplane. What did we do in Mexico? Was anybody else sick? There was a lot of interest in what drugs were taken in what dosages at what times. We are at the maximum of methadone on what days and when exactly did we notice the first symptoms etc. etc. We told them everything. (I’m sure they must have even sent a resident to search our house and examine the dog’s butt and the various pill bottles.)

At one point there was a psychologist and one of the freaky pain service guys who were asking a lot of questions. I came clean: “ I was operating at pretty much half the maximum dose of rum and coke for the whole two weeks.” (I wasn’t sure if it was relevant but felt compelled to disclose.)

“How do you know what the maximum is?” the freaky pain service guy asked me.

“Maximum is face down in the sand,” I explained, “I was nowhere near that.”

“You know that is exactly how they do anaesthetics – they call it the L50 dose. L is lethal so they give you half the lethal dose. There’s years and years of data.” (This is why I find the pain service guys freaky.)

In six years, Spencer has had some complicated medical issues and done some risky things, but really nothing has been terribly mysterious. He has never really generated large amounts of medical interest. OK, maybe his second transplant, but by and large he’s never really stumped anyone.

We never really got to read the script or see the camera angles, but at long last the point of high drama was reached and a diagnosis was made. The ridiculously simple single drug treatment with instantaneous results was identified. It was administered to the patient.

Miraculously his symptoms disappeared. His mind was cleared. All was well.

Of course, unlike TV there is still the grimy business of actually regaining strength and getting some nutrition (NG tube tomorrow). And of course we need to see if all remains well, but so far so good. And there remains that nasty cancer thing, so next week there will be scans and bone marrow biopsies and whatnot to see where that is at. What has the ABT done? There is always the drama of next week’s episode.



Tuesday, March 25, 2008 0:59 AM CDT

Back From Mexico


It’s illegal in Canada to drive a personal watercraft if you are 12 years old. That’s why Mexico was created.

At least you might think that if you saw the smile on Spencer’s face.

According to Foster, it takes seven seconds for spit to reach the ocean when parasailing.

And of course we all went fishing. Next time we vow to go catching. But we did find a couple of scuba divers floating near a breaking reef - and their boat adrift about a mile away. Still, catching a barracuda would have been better.

I’m pretty sure that the doctors wouldn’t want to know about jumping off cliffs into the cool fresh water of cenotes given we will also be talking about large amounts of narcotics taken for back pain, so we just won’t mention it to them.

I think it was a good thing that it was Foster that fell out of the tree and had the bruising all up his side from the impact with the water. Spencer arrived home with low platelets and didn’t really have enough left over for falling out of trees.

We had a couple of other casualties. One of the two-way radios fell overboard while we were tacking. And the wheelchair we borrowed from the Red Cross shot out the side the resort shuttle as we went around the corner. There were gasps of horror from the fellow passengers until they realized that the wheelchair was unoccupied as it took to its new slightly bent form.

Tracey threw a birthday party for me while we were there. No less than 18 people! Complete with Mr. Steve cake, it was an impressive affair.

Scupper hung out with his brother for the duration. He was reported to be very well behaved and a “good dog”. I find it hard to believe, but I’m not sure why Sheila would lie to us. Perhaps he is just good in a relative sense compared to his brother Ben. Maybe Sheila was just being kind.

We did miss Scupper. But we did get to visit with his friend Boston down in Puerto Morelos. Boston and Sarah are doing well and seem to know everybody in town. And a cool town it is. Just hanging there for a day makes you realize how absurd it is to associate all of the wealth and technology and pace of life that we have with happiness. I’m not sure there is any relationship.

Better to live life slowly with a lot of friends than fast with a lot of money.








Friday, March 7, 2008 1:30 AM CST



Continuing Education

Tracey went downtown to the conference today to catch up with old classmates and colleagues and take in some lectures to keep her continuing education current.

Somehow, I think it was me who got the education today.

I’m glad Spencer slept till 11:00. It gave me four hours to figure out what medications he was supposed to take. I never was able to figure out exactly what I’m supposed to do to get him to eat and drink. Maybe that’s a more advanced lesson.

I was able to pick up a few credits in the emergency medicine curriculum. When you call into the hospital and explain that Spencer has tightness in his chest and discomfort breathing, they pretty much want to see him.

So we drove into emergency. I went fast. Not so much because we were in a hurry, but more so because I figure if I’m ever going to talk my way out of a speeding ticket, nothing could work better than “Oh sorry about that, I’ll try and slow down, it’s just that my son is having trouble breathing and I need to get him to Children’s hospital”

Spencer has Triple Platinum Elite Club Status at Children’s ER. There’s a room full of people waiting and we get whisked in to a freshly cleaned room of our own in no time.

He got the full going over. Poking and prodding, EKGs and bloodwork. Chest x-ray for giggles. I have to say I was a little disappointed. I thought maybe with electrodes being stuck all over him, I’d be able to pick up a few backgammon wins with the distraction. It didn’t work that way. I got my butt kicked.

Anyway, the chest tightness remains a bit of a mystery. I’m not sure what exactly I learned other than it’s more difficult in the role of responsible parent. Tracey can have it back any time she wants.

We did manage to make it home in time to catch the last few minutes of the hockey game in high definition no less. I did figure out the evening meds. It was nice to see Spencer actually eat a meal, even if was just a lot of pills.

Just two and half sleeps to go till Mexico!




Saturday, March 1, 2008 8:21 PM CST



It seems like whenever we write that things are going well, something sets us back.

Spencer started having mild pain in his knees again on Wednesday. By Thursday it became quite severe and he also developed stomach pain and episodes of intense back pain. It comes and goes and moves around to different areas. The pain is very puzzling to the docs. It could be a side effect of the ABT 751, some kind of nerve compression causing muscle spasms or it could Neuroblastoma. When it is gone, he is able to walk about and play. When the pain comes, it is terrible. We have been working with the pain team and methadone was added to his pain management. The methadone eases his pain, but it makes him feel miserable, and irritable. Spencer will be in hospital for the next few days until the pain team is able to figure out a pain solution and future pain plan. Hopefully this pain crisis is almost over, if it follows the pattern over the past few months.

All the docs are trying their hardest to figure it out to make it possible for us to go to Mexico next Sunday. We have a nurse lined up to stay at the resort for the first week and one of our doc’s is going to be in Cozumel during the second week for consultation if needed. We have plans to bring IV fluids and a suitcase full of narcotics. We even borrowed a wheel chair from the Red Cross to bring in case Spencer needs some assistance getting around. My dear friend Sarah is living near the resort, and she is finding out the best hospitals and what other supplies the local pharmacies carry.

We may not be able to pull off this trip. But no guts, no glory. If you never grab the fun, it never happens. It’s only money.

Please send all your good thoughts our way. We could all use the vitamin D and some dreamy Caribbean blue ocean to lift our hopes and spirits. A couple of Mojitos wouldn’t hurt either.

Tracey






Wednesday, February 27, 2008 0:23 AM CST


Against the Current

It’s been a while since the last update. People generally assume that things are going badly and the update must be difficult.

That’s not the case. It’s been a pretty good couple of weeks. No news is no news.

There was the pain thing of course. It was intense in Spencer’s knee. We thought it might be disease. Or maybe neuropathy from the ABT. It seems like maybe it wasn’t either of those things. It might have been a steroid he was on to stimulate appetite. Whatever it was, the pain went away.

Sometimes it’s best not to ask too many questions.

Tracey is courageous. She sensed a window of opportunity. I believe the tickets were booked and paid for before we actually got an answer from Spencer’s oncologist as to whether or not it was a good idea. We are going to Mexico. I put in my vacation request. It was rather more like a terrorist demand than a vacation request. Choice is only an illusion anyway.

The four year old salmon can choose if he wants to swim up the river.

We went sailing on Sunday. Scupper stayed home. But Graeme, our new nephew, came for his first sail. I think he liked it best when the engine was running. Spectacular.

And then Sunday night, a lot of blood. Very scary. Tracey and Spencer headed for the hospital. Foster and I stayed home.

But there was good news. I beat Guitar Hero. I battled Lou and I won. Now technically I’m on the same level as Spencer and Foster, although I don’t have five stars on any of my songs, and I’ve never even played a song on medium yet.

Oh yes and the bleeding. Tracey and Spencer never came home. I went to visit them on Monday morning. Spencer’s doctor and nurse were there. Most of the conversation seemed to be centered around Mexico and making sure that we have a letter explaining the bag full of narcotics we plan to take. Very little concern around the fact that Spencer is in the hospital getting transfusions of platelets and red cells two weeks before departure. Everyone is happy with the idea of a recreational transfusion the day before we go just to be sure. And so he was discharged.

Right then. Off we go. Does the salmon worry?

I think not.

We’re on a mission.


Monday, February 18, 2008 1:35 AM CST



It’s been a while since the last update. People generally assume that things must be going well and we’re too busy living life to be bothered writing.

I wish that were the case. It’s been a difficult few weeks.

Spencer has been in a lot of pain the last few weeks. The bump on his head disappeared which was nice. No radiation required. Maybe the ABT is doing good things. But he has other pains pop up in hips, back, knee, and ribs. He’s been taking a lot of narcotics and just trying to be comfortable. I suppose the good news is that they he doesn’t have persistent pain in one spot. But pain is pain and it’s not fun.

He hasn’t been to school. He missed the public speaking assignment in class, but he did deliver his Vampire speech to the first and second year medical students who were kicking off their blood drive – about 500 of them, some in person and others by video conference in Vancouver, Prince George and Victoria. Nobody told him he should be nervous - so he wasn’t. It was great.

I have had reasonable luck with backgammon. I think I win half the games. But it doesn’t matter how big the dose of narcotics, I still can’t win at Guitar Hero.

Scupper sends his regards.


Monday, January 28, 2008 11:58 PM CST


The Cat is Still Alive

A few random thoughts.

Tracey took him to the ER this morning with a bit of guilt because it didn’t really seem like an emergency. They didn’t treat it quite so casually there. She was rebuked for not bringing him in yesterday. Something about when they fall and they can’t get up for five minutes and there are lapses in their memory and pain all through the neck and back, the child should be taken to the ER. I guess we’re just kind of happy if the boys are able to get up and walk and both the eyes point more or less in the same direction after a little tumble. Oh well. Doctors will be doctors.

Now Scupper on the other hand, that’s a much more serious issue. What is it that the Portuguese see in the French? Perhaps I shouldn’t generalize. It might not be all Portuguese. Maybe it’s just Tracey’s Portuguese dog. And maybe it’s not all the French. Maybe it’s only the freshly baked French bread. In any case, she left the black one in the car with a wild Sockeye salmon and a loaf of French bread while she went to get some of the miniature Mandarin oranges. Tracey came home with only oranges, a salmon, and half a loaf of French bread. And Scupper of course, but he had to go in his box for a few hours.

There is a poster in the neighbourhood for a missing black and white cat. And a few times we’ve seen a black and white cat cut through the yard. But we can’t catch it. Spencer asked for a pellet gun. He’s insistent that the reward offering doesn’t stipulate that the cat be alive. And it’s hard to catch a live cat.

I too was at the hospital this morning. Spencer has a bump on his head that is sore. There was a bit of head scratching about what to do with the bump. Leave it for a while and see if it goes away with the ABT? Nuke it? Radiologists are being consulted. We’ll probably nuke it in a day or two. Nobody likes to have bumps on their head.

Oh yes. And it was Foster who was in the ER while Spencer was in the clinic. Foster’s ski instructor says, “That’s one tough kid.” He’s rather fond of speed and jumps. He combined the two yesterday and went ten feet in the air and came down hard on his back with both skis planted in the snow. Completely knocked the wind out of him. He didn’t cry. Once he could breathe again, he got up and carried on skiing. And these are beginner lessons.

And I decided we had waited long enough. This afternoon, we managed to find Guitar Hero III. It’s day one. Day one is usually the only day where I have a chance of being competitive in any new video game. Usually. Not so in this case. I get booed off the stage while Spencer seems to get encores and invited to guitar duals.

But I can still beat Scupper. As long as we aren’t playing find the French bread.


Tuesday, January 22, 2008 1:24 AM CST



What A Difference A Day Makes

It seems to me it was only a day or so ago that Spencer was lying in hospital bed having eaten nothing for days with his nourishment dripping into his veins from an IV bag of lipids or whatever it is they hang.

Today, found him sitting in a Club Seat sucking back a cheeseburger with Triple O sauce watching Alex Burrows score a wrap-around off the rush. And it wasn’t one of those carry the sick boy into the hockey game and pretend we’re all having fun kind of things. It was more a bounce around the house, take the dog for a walk, drive mom crazy, shut up and eat your dinner so we can go kind of things.

So as we watched the fevers and malaise of last week, we weren’t really sure how much of it was flu and how much of it was his disease. I think we are now pretty well convinced that it was mostly flu.

Since Spencer was in such great shape, today was the start of ABT-751. And so he did. All a little anti-climactic. An ordinary prescription for 14 capsules – 2 a day for a week. Except that there is a step or two required to get the drug in the pharmacy. We will see how it goes.

And Club Seats, wow! You just sit there and they’ll bring you anything you want without spoiling a perfect view of the game. We could even get the mini donuts for Foster and 50/50 tickets without getting up. I’m sure they’d even bring you a urinal if you didn’t want to stretch your legs between periods.

We all went. Except for Scupper. He is unable to break the species barrier even with his charms. That, and I’d never waste a hockey ticket on him. And there is no telling what he might do between periods.


Sunday, January 20, 2008 10:02 PM CST



We're on our way from misery to happiness today..un-hun, un-hun, un-hun, un-hun !

Spencer has been sprung. I don't recommend getting influenza. If you haven't already, get your flu shot.

Tomorrow we are back to the outpatient clinic in the afternoon to start the new ABT 751 drug. It is an oral drug taken once daily at home for one week,two weeks rest, then repeat. It may not be a cake walk but at least we
have the cake. The dosing of the drug and any side effects may take some tweaking for a few months, but we'll keep you posted as to how things are going. Likely side effects include loss of appetite, feeling of weakness/tiredness, constipation or diarrhea, nausea, numbness in fingers and toes, weight loss, pain in the abdomen, and headache. Sounds easy.

Spencer is looking forward to growing hair, not needing as many blood transfusions and attending some school.

Thanks again to all of you who were so helpful while we were in hospital this past week: Foster care, dog walkers, laundry fairies, grocery fairy, parent feeders, visits to the hospital, telephone calls and e-mails to see how we were doing or if you could help. It makes it all so much more bearable with your support. Until next time..

Tracey


Wednesday, January 16, 2008 1:24 AM CST


A Shot of Flu and a Shot in the Arm

A strain of it killed more people during WWI than all the bombs and bullets combined. But that doesn’t mean that this year’s flu is dangerous. Well except maybe to the elderly and those with weak immune systems. That’s why Spencer got a flu shot this year.

So naturally, he’s in the hospital with the influenza A.

Spencer seems to be doing better. He’s not barking like a small seal being kicked by a donkey any more. His fevers are less. Actually it’s kind of nice to have something else to blame fevers on.

I think I had it last week, but it only bothered me for a couple of days. Flu shots are a wonderful thing.

Some ABT-751 got shipped this week. I would like to think that Abbott would have shipped it anyway, but I don’t think receiving this letter slowed them down any. In fairness, they were dealing with a safety issue which they had to clear up. Spencer didn’t have any obligation to be fair. They only refer to him as SBD and his name gets ***** out in correspondence...

Dear ****************

My name is ******* ******* or SD. I’m pretty sure you know who I am. I am a 12 year old boy from Vancouver I have had stage four neuroblastoma for 5 and a bit years. I have had two bone marrow transplants, full body radiation and lots and lots of chemotherapy. My bone marrow has gotten very weak from all that so I am very platelet deficient. We were looking for a different chemo to start that didn’t affect my platelets as much so we stumbled across ABT751 we all so had heard someone talking about and it looked really good because it didn’t affect my platelets and it had mild side affects. So we thought we would see who had it on study. (this is around October ) We found out that the only places that had it on study close to us were Seattle, Toronto and Quebec. We did not really want to go to Toronto or Quebec because it was Christmas and we didn’t want to be so far from our family so it had to be Seattle. It turned out that Seattle was way to pricey and unreasonable. Then one of the doctors found it off study made by Abbott and they could send it to Vancouver then they could give it to me at the hospital. We ordered it around December 1st and they said it would be here a few weeks before Christmas. It didn’t come. They said because the shipping companies are so busy before Christmas and that a lot of there staff are on holidays so they would have to ship it later and it would arrive a few days after new years. We were fine with that so they gave me a different chemo to stop me from having pain in my back. We waited and waited. Now it’s January 9 and I’m wondering if you will actually send it. Now I am having to have more chemo to stop my back pain and fevers.

Now I don’t know who you are or what exactly you do but I do know that you work at Abbott. It may not be you but someone is getting my hopes up then letting them fall off a mountain. It may not even be someone that works at Abbott, it may just be someone who works for the government of Canada or The United States, but someone is doing it and I want to know why in the world it is taking so long to get something that they said would take two weeks to get. I understand that it’s not licensed in Canada but it’s been 5 and a bit weeks so I’m still wondering where’s my ABT751. All I’m saying is please hurry and send it so maybe it will help the pain in my back from my cancer.

Ps I know you like to use little stars so I thought I’d use them too ****************

Thanks
From ******* ******* or SD

Now Spencer is going to have to work on his backlog of thank you letters.

Steve

http://www.caringbridge.org/canada/spencer/


Thursday, January 10, 2008 0:00 AM CST


My sister called today. She wanted to know how things are going. If Vicki has to call, there are probably dozens of other people who are wondering what is going on. If I don’t write, there are usually good reasons.

The problem I have is that I haven’t yet released the Christmas letter. There are several versions in draft, but none made it to distribution readiness. And now we have unplugged Christmas. The tree sits by the curb. Frosty and his two little buddies are deflated. The lights are unplugged. I’ve missed the opportunity to somehow weave dog farts and frankincense into a profoundly touching cloak of cheer.

Speaking of which, we did have a good Christmas. I’m not sure how you measure these things exactly, but by any measure, I think it was good. That is to say all the family were here and everyone was wellish and glad to be together.

We managed to get away sailing for a couple of days. And we did get to go skiing. Life is really good when you can sail in one of the best places in the world on one weekend and ski in one of the best places in the world on the next weekend and you don’t have to travel far in between.

I thought this might be the last season where I would be able to keep up with Foster on the ski hill. It turns out that was last season.

Spencer and I have published our first book. It’s called “Best of 2007, Work Hard Play Harder”. It’s a very limited edition hardcover coffee table type photo book. The dedication reads “Dedicated to Scupper who understands nothing other than fun (and food, and ball…)”

So we’ve been having too much fun to be bothered writing anything. Sort of. Then again, Spencer has been busy writing. He wrote a letter to Abbott entitled “Where’s my ABT-751?” I’d publish it here, but we’re already at the mercy of a drug company. It wouldn’t be good to be at the mercy of a pissed-off drug company. And they would be pissed off if as many people amplified Spencer’s voice to Abbott as went to donate blood after his last bit of writing. So we’ll let Spencer fight his own battles for the moment. He’s more than capable.

On the disease front, let’s just say there have been more of the usual chemo and pain and fevers. More chemo on Thursday unless a surprise package arrives at the pharmacy. We’ll see how it goes.


Monday, December 24, 2007 10:38 AM CST



12 Year Old Vampire Says Thanks

My name is Spencer Dolling and I am a 12 year old vampire who lives in Port Coquitlam. I have been fighting a cancer called stage 4 Neuroblastoma for 6 years. The treatment that I have affects my bone marrow and I need lots of blood transfusions. I have had around 300 blood transfusion in 6 years. This came from 450 different donors.

Out of the 300 transfusions, about 110 have been platelets. Platelets are blood cells which help with clotting to stop bleeding. During all my years in treatment, my bone marrow has become weak and this year in particular, I needed about 50 platelet transfusions.

The other kind of blood I get is called packed red blood cells. It contains haemoglobin that carries oxygen. If your blood does not contain enough haemoglobin you can barely climb a flight of stairs and you will look very pale.
.
A couple of months ago, I went over to the Canadian Blood Services clinic on Oak Street to see how they got blood from people. I found that it takes about an hour to donate whole blood. The whole blood is later divided into red cells, plasma and platelets for different patients. Whole blood can be stored for several weeks. If they do not have the type of blood that you need they can get it from another province.

Some people just donate platelets. A special machine uses apheresis that picks out the platelets out of your blood and then gives the other unused blood back to you. It takes about two hours to donate platelets. Platelets can be only kept for 5 days.

I also found out that the people who donate blood come quite often and spend lots of their free time giving blood. I had never thought about it before but I now wonder what they get in return. I decided to make them a Christmas card to thank them. I mean really if you think about it, they’ve saved my life only about 300 times.

Canadian Blood Services in BC gets about 110,000 blood units donated a year. At this time of year people are really busy and sometimes forget the need for blood in the blood bank. This year over the holidays they will need an extra 1,200 units of blood donated to meet BC’s needs. I think that we forget that blood isn’t just used for car accidents or surgeries. It is used a lot for cancer patients like myself.

Blood is really important to me and my family so I can do simple things like go to school, play outside, or just stay out of the hospital. Maybe I’m not really a vampire, but I would like to thank the people who give their time to donate blood and even those who are now thinking about it.


Wednesday, December 19, 2007 0:52 AM CST

Spencer is about to launch a major media campaign on Thursday.

Check out his Christmas card above and in the photos section.

Check back here for a preview of his essay entitled "12 Year Old Vampire Says Thanks" and watch the papers and TV!


Tuesday, December 11, 2007 1:37 AM CST


Larousse de Poche and Other Biblical Stories

Canadians have a fear of being trapped outside the country with a serious medical condition. We’re conditioned that way since birth.

So it was a bit alarming. A fortuitous set of circumstances found us charged with the responsibility of having family fun. The boys had their choice of anything and decided upon a weekend away in fancy hotel - with a pool and shopping – in Seattle.

The medicals went to work. They are all about fun. They set about optimizing the platelet levels so Spencer would have a good chance of keeping the blood inside his vessels. After a recreational top-up on Friday afternoon, we were good to go.

Everything went well. There was Target and Best Buy and Costco and a whole raft of fancy shops in Bellevue Square. I found Boaters World just down the street. We even went up the Space Needle and ordered lattes and hot chocolate.

Our friends Al and Sue and Hadley dropped by the hotel and we all swam in the pool. I think Spencer and Hadley were impressed that an entire U13 girls soccer team arrived for a swim while we were there, but they pretended not to notice. We all went upstairs and ordered desserts from room service.

And then it happened. The medical thing that Canadians fear when they are in a foreign country. It was like all of a sudden it appeared – a lump that was completely unnoticed before. I was scared senseless.

“Al, you’re an ear nose and thumb doctor aren’t you? What do you think this is?”. I showed him my thumb. It had a tumour growing out of the knuckle. It had been in pain for some time, but the bump was new and growing fast.

Al poked and prodded and then pulled out his iPhone to do a little web research. Soon he was ready with a diagnosis, “It’s a gaglionic cyst,” he declared, “no doubt caused by excessive Blackberry use.” Treatment options included needle aspiration (high rate of recurrence) or surgical excision.

Google turned up a more radical folk oriented remedy now frowned upon by the medical community: whack it with a book.

That sounded good to me. A solution in line with a Canadian medical budget. I seized a copy of the Holy Bible and prepared to whack my thumb.

“Wait! You can’t do that yourself,” Al said. Yet he wasn’t jumping off the bed to help me. He may have had an issue with whacking a friend with a Bible smack in the middle of Hanukkah. More likely just a bad feeling about what might happen to his malpractice insurance rates if this went badly wrong. Maybe it was that ‘first do no harm’ thing. “You should really wait until your back inside a country with full health coverage.”

It was hard to fault his logic. I put the Bible down.

Yesterday was more room service and shopping and the return trip home. We all had a great time and it was a really, really fun get away. We told our usual lies to the border people and re-entered Canada with our loot and no mortgage on our home held by a Seattle medical center.

As we were finishing dinner, I put my thumb up on the table and we began talking about what to do. Foster wasted no time and grabbed a handy copy of Larousse de Poche 2006 – a two inch thick French dictionary. Tracey suggested I should lay my hand flat, but if I rotated the thumb the ganglionic cyst stuck straight up which appeared to be a better angle. I thought we were still in the conceptual phase.

Foster was way past the concept stage.

Whack!

I was stunned. The pain was intense. The evil grin on Foster’s face was shocking. Then I looked at my thumb. The hard lump was gone. Foster had cured me. He is a master healer and my hero.

Now we just have to make sure he doesn’t start chasing Spencer around with a copy of Larousse de Poche. The platelets are a bit low again…


Friday, November 30, 2007 9:30 PM CST


Good news!

Spencer managed to time a hospital stay with the annual Canucks visit.

Bad news. The party this weekend is cancelled. We'll try again next year!


Wednesday, November 21, 2007 1:25 AM CST

Happy Birthday Scupper

Happy birthday Scupper! He turned five yesterday. He got a new toy. And he was allowed on the boys’ beds at tuck in time. A banner day. He was very happy. He is always very happy. I don’t think Scupper knew it was his birthday.

The government is good. They reviewed 4 years of back tax returns and retroactively applied a disability tax credit. They sent me a used minivan – a bit older than Vicki’s. Call the government. They care for you and want to help. Tell them you need to renovate your kitchen. They are there to serve you. They will send money, you just need to be polite and ask for it.

Costco is even better. Tracey returned my dead iPod. It was a year and half old. They wanted to be fair. So for my year and half old, dead, out-of-warranty 60GB iPod, they wouldn’t refund the whole purchase price. Instead they would only give me a brand new 80GB iPod and a $40 credit. That seems fair.

Spencer and I have a new deal. We are no longer going to combine alcohol and power tools. No good comes of mixing alcohol and power tools. Although it can be good fun, the end result just doesn’t look as good as you thought it did when you were doing it.

Never mix alcohol and email. I sent out party invitations. I think the lady who trained Scupper five years ago got invited to our Christmas party. I don’t remember her name. But Tracey assures me that she is still in our address book. Many of our close friends didn’t get invited.

Spencer went to school yesterday. I believe he even went to woodshop. I’m pretty sure he didn’t drink any alcohol. I heard him and Jared using power tools after dinner.

Spencer didn’t go to school today. He was in pain. I think he is taking narcotics. I’m pretty sure he hasn’t been operating any power tools today. Although he is in the kitchen cooking chicken on a gas stove. I don’t think it was a lot of narcotics.

Tomorrow and Thursday are scan days. And still we wait for the ABT-751. Always just a few days away. Just need someone at Health Canada to approve the use of the drug...

Maybe we should ask Costco?


Wednesday, November 14, 2007 0:14 AM CST


Free Parking

Seattle Children’s Hospital has free parking!

And for $500, you can chat with a doctor. Which is exactly what we did. Of course we were a bit late for the appointment, not so much because of the long line at the border, the treacherous weather, or the hideous traffic, but more because of the outlet malls and the cheap US$.

Spencer found that nurses are universal. Always pleasant, caring, and professional of course, but more than anything they have an overwhelming compulsion to take height, weight, blood pressure and temperature. So they did.

Dr. Park is a specialist in Neuroblastoma. We went to pick her brains about the various trials that are going on in the Neuroblastoma world and have an opinion on what would be good for Spencer. Our hospital had already sent down all his scans and clinical summary. So armed with that knowledge, plus up-to-the minute height, weight, blood pressure, and temperature, we were ready to begin.

We discussed four different clinical trials and matched them up against where Spencer is at and what our goals as a family are. 3 of the trials are offered at Seattle Children’s. None of them are offered at BC Children’s. But we went through them all and discussed them without regard to where they offered or what they cost. Tracey could provide all of the technical details about why one is preferred over another, I just know what the conclusion was. It seems like ABT-751, the drug Spencer originally wrote his letter to MSP about, would be a very good place to start. Temsirolumus might also be a good alternative. Dr. Park was not a fan of the Vermont trial for Nifurtimox for Spencer because its efficacy may be tied into joint delivery with the same chemo that Spencer has had 19 rounds of. Zometa was a good choice to try targeting bone disease, but I think it got knocked lower down the list given nasty things we’ve already done to Spencer’s kidneys.

So the plan? Well as it turns out, the ABT-751 is available off-trial at BC Children’s. Tracey met with Spencer’s doctor today and she agrees that this is a good thing to try. We should be able to start fairly quickly and we should know relatively quickly if it is working or not. And the second choice Temsirolumus, may open up for trial in Vancouver in January.

It was a really good meeting in Seattle. So even though we might end up doing exactly what we might have done without going there, it is really good to know that different minds are more or less aligned in the same direction and we are comfortable doing what is right for Spencer, not just what is inexpensive or locally available.

I was a little disappointed in the visit in that I didn’t get a chance to meet anyone in the Desperate Foreign Family Cash Extraction Department. I really wanted to see them keep a straight face and tell me that it was necessary to spend $80,000 for tests and infusion costs to go along with a free drug trial. If we do ever end up in Seattle for trials, Dr. Park seems more than willing to work with our hospital to keep costs to a minimum.

So for the moment, it looks like nobody’s going anywhere for Christmas. Maybe we will need to think about scheduling our annual party that we seemed to have missed a few of.

Over the last five years, we’ve paid over $3000 to park at BC Children’s Hospital.

Somehow, I think free parking isn’t as cheap as we might think.




Saturday, November 10, 2007 0:11 AM CST



Dear Bob:

In the cc field above you’ll find a whole list of people who may be viable targets for the Spencer Cash Extraction Program. It is likely going to be difficult because all of these same people have watched us frivolously piss away large sums of money on Portuguese Water Dogs, trips to Disneyland, sailboats, and yes - high definition television. So you’ll have to explain why the cause might still be worthy. Also, bear in mind the above list contains health care professionals and others who should not be targeted because they work with dozens of people in similar situations. Many have cancer kids of their own. Still others have probably been receiving emails for years wishing desperately that I would stop harassing them, but they are not sure how to politely get off the email list. So I haven’t bothered to sort or anything. You’ll just have to treat it more like a marketing effort than a collection agency…

We’re going down to Seattle on Monday. We’ll meet with Dr. Park and see what she thinks about what is best for Spencer. And if Seattle is the place to go then of course we will negotiate with the Desperate Foreign Family Cash Extraction Services Department and see if we can’t work them down from the $80,000 estimate. So your target will be somewhere between $0 and $100,000, we just don’t know where yet. We will keep you updated because once we make decisions, we will push to move at great speed.

Thanks!

Steve


Friday, November 9, 2007 1:57 AM CST



Ogres

I think Spencer was attacked by ogres. I didn’t see the first one. It happened days ago in clinic.

But I saw three of them come back a few days later. They were big. They were green. They were mean. I think they were ogres.

Perhaps I should back up a little. Spencer was hanging out in clinic the other day with platelets at oh about the 8 level. At 40, I’m not allowed to hit him. At 20, he needs a transfusion. At 10, he could start spontaneously bleeding. At 8, he was bleeding. You know, nothing freakshow horror movie out of the eyeballs kind of bleeding, just a decent nosebleed.

A platelet transfusion didn’t stop the bleeding, so they called in the ear nose and throat ogre. I didn’t witness it. But Tracey described some kind of device with bazaar familiarity that gets stuck inside the nose and then it kind of opens things up. The ENT looked inside and found the source. Then he prepared some kind of packing material and smeared polysporin on it, opened things up, and stuffed it in. He told Spencer that it would dissolve and come out in 10 days or so. Spencer was shocked. Nobody told him he would have something stuck in his nose for ten days or described what the alternatives were. Ogres don’t require informed consent.

So Spencer suffered. He wandered around for a day or two with a nasally voice and strange sniffle. He seemed truly miserable. I happened to mention his plight to my friend Al who happens to be an ear nose and throat doctor. Al suggested that it isn’t necessarily a good idea to leave something stuck in your nose for 10 days because it’s a great medium to culture things. Perhaps we should look at having it taken out and if the bleeding started again, you could always have a fresh one put in. We should ask about it.

So Tracey and Spencer were back in clinic. They had the full authority of a second opinion from an international specialist. They demanded to have the thing taken out of Spencer’s nose as recommended by another expert. The ENT people were called. I had dropped by to say hello at this point. The ENT doctors arrived in force. The cowardly ENT brought 2 reinforcements to fight the 12 year old, all in surgical scrubs. First they had to counter the credibility of the expert. Who was this guy from Al from Seattle? “Ah, I know him. I trained in Seattle,” said the grouchy alpha ogre. “A voice guy. Works with adults.” Clearly my friend Al new nothing about noses or children. There was much huffing about antibiotics which the oncologist didn’t want. They were greatly concerned about disturbing the matrix of something or other. They were concerned about the platelet levels and bleeding. Neutropenia seemed to be much less of a concern for them.

I just watched Spencer’s face sink as he realized that he was being bullied into keeping a thing stuck up his nose for the full ten days. What he wanted didn’t seem to matter. Or at least nobody had the guts to take a risk or admit they were wrong. So we watched as they stormed away. We chatted with the other villagers wondering where the pitch forks were.

We went home. I told Spencer not to worry. It’s his nose and he could bloody well do what he likes. Tracey gave me instructions on what to do if Spencer got a nosebleed before she went out.

Spencer made his own decisions. He took his own risks. And he wandered into my office and announced that it didn’t even bleed when he blew the packing out of his nose.

No need to call the ogres.

Though Spencer doesn’t think they are ogres: “I watched them. None of them pulled wax out their ears and lit a candle.”


Tuesday, November 6, 2007 11:57 PM CST



Please Send More Minivans

Dear Vicki:

Thanks for the minivan. I had hoped to get it back to you before you returned from your trip, but there was a small problem, and I had to sell it. I hope you don’t mind. It was a nice minivan, what with the leather guts and everything, but it was a little long in the tooth so I could only get $15,000 for it.

Turns out the problem is a little bigger than I thought.

We’ve been dealing with Wendy. Nice lady. She is able to offer us not one, but up to three different clinical trials. The trials are totally free. All we need to pay for are the scans, bone marrow biopsies, bandages, gauze, etc. You see none of the Canadian scans, biopsies etc are any good because well, they’re free, and how could they possibly be any good? Depending on which trial we're on, they will offer everything for the low cost of $76,000 to $86,000 US. And it includes the use of the outpatient bathroom for a full month!

Now if Spencer has to be admitted to the hospital, well that’s an additional cost of course.

If it’s no trouble, please send an additional 5 or 6 minivans.

Thanks,

Steve


Monday, November 5, 2007 10:52 PM CST


A New Era

We’re about to enter a new era. Everything is different now.

I’ve given my MasterCard number to an out-of-country hospital.

It doesn’t leave me with a warm feeling. Just one step above sending my bank account numbers to someone in Nigeria introduced via email offering mutual benefit.

But there is a human on the other end of the line. Wendy is the Patient Financial Specialist. We don’t actually speak to a medical specialist; they have to process the $500 consultation fee before that happens. Wendy promises she will never process a payment on my card without discussing it with me first. I believe her. She hasn’t asked me for my bank account numbers yet.

Wendy is just waiting to hear back from the doctor about an opening in her schedule this week. We’re bringing our medical people with us. Oncologist, nurse – we’re going fully loaded. We’ll squeeze a full day of professional development out of the $500 consultation fee.

“OK, just let us know,” I say to Wendy, “We’re on a bit of tight schedule and want to get things arranged. I’ve borrowed my sister’s mini van and we’re ready to roll whenever you say.”

“I’ll let you know as soon as I hear.” Wendy advises. “And I just have one more item to get costed and as soon as I have the sedation numbers I’ll have that estimate ready for you.” Wendy is pricing out a big job for us. The clinical trial is free. But that’s just the marketing department sucking you in. You still have to pay for all the scans and bone marrow biopsies and ancillary stuff that goes along with a month long visit.

“Oh great. That was the other question Tracey had. Let me know the numbers when you got them. I think we’ll probably just sell my sister’s mini van instead of giving it back to her.”

Wendy didn’t even laugh. I think she just thought that was normal. Yikes!


Sunday, November 4, 2007 10:37 PM CST


Therapy

I could see him driving up the shoulder a full block behind me. Obviously somebody whose time was much more valuable than the rest of us stuck in traffic.

I took the opportunity to drift right a bit. OK a lot. To the point where there was no way he could get past me. As he approached, rather than merging in, he honked at me, mistaking an ambush predator for some geriatric driver with lane keeping incontinence. I moved left a bit - just enough that he could squeeze through, but only as far as my mirror.

I lowered my passenger side window. I screamed at the top of my lungs. “You’re driving in the bicycle lane, Dickhead!”

It felt fantastic. Therapeutic assholism. I highly recommend it.

But you have to practice carefully. A colleague dropped into my office to talk about a quality problem for one of our customers. I interrupted before he could say anything. “Hold on just a second” I said. I pulled out a roll of finely honed carving chisels that I had brought in for pumpkin carving. I unrolled them on my desk and arranged them in front of me. I selected a large gouge and carefully shaved the hair off the back of my knuckles to demonstrate the sharpness. I put the gouge down. “OK, go ahead...”

My boss explained to me that it’s only fun if both the people are having fun. You can’t practice therapeutic assholism at work.

So I rode my bike to work the next day. I do it every now and then. It takes an hour and twenty minutes, and there is no anger left after riding that long. People probably think I have a new love for the environment. Or perhaps I have some major new fitness thing going on. Or maybe they think I just like to wear the stretchy pants. If only they really understood. I am protecting them from my inner asshole.

And then there’s the outer one. That which soothes the inner chafes the outer. We must all strive to keep our assholes in balance.


Monday, October 29, 2007 9:00 AM CDT


I don't know where Spencer gets the idea that you can just write a letter and get whatever you want:

Dear MSP Approval Committee:

My name is Spencer Dolling. I am a 12 year old boy from Vancouver BC. I was diagnosed at age 6 with stage 4 Neuroblastoma. I have been in treatment for 5 1/2 years.

Right now it is the end of October and I really want to get on a COG clinical trial called ABT751. I probably won't be able to get on the study untill early December because I will need chemotherapy in Vancouver to stop my cancer pain.

I know the study is offered in Toronto and Quebec as well as Seattle. I was wondering if you would pay for all of my hospital stuff in Seattle because if we went to Toronto or Quebec for a month (because that's how long you have to stay in the place that you get the study drug because they don't know all the side effects.) Me an my mom would not be able to see my nine year old brother Foster, my dad Steve and my whole family that lives in Vancouver for Christmas then it would not Christmas because you're supposed to be with your family around Christmas.

If we went to Seattle we could stay at a friend's house and our family could just come across the border and it would be more like Christmas because my whole family could come down to Seatttle. Since the Canadian dollar is so strong, it might be cheaper for me to go to Seattle.

PS If you have time, google Spencer Story I think you will really like it or go to my website www.caringbridge.org/canada/spencer

Thanks,

Spencer


Thursday, October 11, 2007 1:18 AM CDT


Update From Tracey, Oct 9

As long as you can tell yourself that things could be a lot worse, then you are having a good day.

Spencer has been in hospital for 5 days with infection. The nasty culprit has been identified as an e-coli blood infection. Everybody has e-coli in their gut, and it may have entered Spencer’s blood through micro-leakage when his platelets were low or it may have been through his line via bad infection control. This particular strain is very resistant to antibiotics. The first 48 hours of antibiotics were not effective against this bacteria and amazingly he did not become severely ill with fever and other complications. He is now on Meripenam and he continues to be doing quite well with no fevers. The oncologist scared me by telling me that healthy kids with good immune systems often end up in ICU with kidney failure if they have contracted a blood e-coli infection. Boring is really good right now! Other than the infection, the main problems currently are his lack of eating, weight loss, no neutrophil white cells and the need for almost daily platelet transfusions. So we wait. Considering how serious things could be, I’m not really pushing the doctors for passes… maybe next week? Nine more days of IV antibiotics if he stays well with no fevers and negative blood cultures. Tomorrow he will likely start IV nutrition (TPN) to help stop the weight loss.

Thank you for all of your help. Visits to the hospital have been great to cheer Spencer up! A sit down turkey dinner for 14 at the hospital with family was unbelievable! Stay tuned for Steve’s penmanship about the Thanksgiving weekend. Thank you dog walkers, Foster picker- uppers, home work supervisors and laundry fairies.

Keep sending the good thoughts. Think cool, think neutrophils, think platelets, think “I’m so hungry”

Tracey


Sunday, October 7, 2007 1:19 AM CDT



Ran out of miracles on Thursday night. Spencer spiked a fever and ended up with usual rush to emergency. Usually we do four or five days of antibiotics and we never know what caused the fever.

This one was different. He definitely has an infection in his blood. If we showed up an hour later to hospital, he would have ended up in ICU. Instead he responded to the anitibiotics and he's on 3B. Fever is gone and he's feeling fine.

We barely managed to clear out the cloud of flour from the playroom after we baked about 14 pumpkin and butterscotch pies before EA Sports arrived to throw a party!

Freedom will be at least 10 to 14 days away...


Tuesday, October 2, 2007 0:18 AM CDT


Wilmington Tan

Today was a magical day. A day of great discovery. I’m not sure how, but Tracey and the boys were able to figure out that the remote fob for her car also activates the fart machine. What are the chances that the fart machine would be turned on at the very moment that they tried to lock the car? It’s a miracle.

Now as to the utility of this finding, we are not quite sure, but it must be some sort of a sign.

As for other miracles, Spencer just finished a seven day round of chemo. The last two days were in-patient for the vincristine / doxo koolaid combo. The last go around the planned two days stretched into twenty-two days, so it was great to be free on time. I think Spencer even plans on going back to school tomorrow for a day or so until his counts bottom out.

Yesterday, not so much a day of miracles. Foster and I were charged with painting the family room while Spencer was in hospital. It didn’t start out so well as I was giving a paint can a little shake when it leapt out of my hands and burst open on to the family room floor. A full gallon. It took a lot of swearing before we managed to salvage the paint from the floor and get it on the walls. On the bright side, Foster can use a roller without any lap marks and he now knows how to use the “F” word as a noun, a verb, an adverb, and an adjective. I taught him myself.

Scupper had a bath today. Tracey keeps raving about how cute he is. I’m still struggling with the relevance of cute when he had to have the patch of Benjamin Moore Wilmington Tan latex cut out of his hide at the point where he rubbed against my newly painted wall. Although I suppose cute keeps me from killing him.

So now that we’re able to make electronic fart noises while unlocking the car, it seems to me that there may be other links between technology and bodily functions and maybe if we put a high definition flat panel over some of that Wilmington Tan we might be able to stop the dog from farting. I’m going to stick with that as a hypothesis and the boys will help me with the push for some empirical testing just as we move into the opening of hockey season.




Sunday, September 23, 2007 11:20 PM CDT



Zajac Ranch

Spencer and Foster went to Zajac Ranch this weekend. Tracey went as volunteer. Rumour has it that it was a lot of fun. Looking at their pictures, I think I would have to agree.

Scupper and I just had a quiet weekend on the boat. Well apart from the really big winds and the little bit where Richard nearly ran us on the rocks and the part where I sat back enjoying the sunshine and nearly got ran down by ferry.

But hey, we came to find another dead rat, so life is good! Chemo starts again tomorrow.


Tuesday, September 18, 2007 1:58 AM CDT


Learn em Good

My job is to teach life’s important lessons.

The other night the supply of premium toilet paper that Sarah left us when she packed up and sold her place was exhausted. Foster was wrapping things up on a number 2 and whined “Hey, this isn’t Charmin Ultra.” I sensed a learning moment.

“Be grateful, Foster,” I explained, “When I was a kid, we didn’t have toilet paper. We had to get by with leftover 60 grit from the mill down the road.”

“That can’t be true Dad. Sand paper wouldn’t even flush down the toilet.”

“Ah, who said anything about flush toilets. When I was a kid, we had pit toilets and they were 38 feet deep.”

“You did not.”

“Yes we did. In fact, I used to have two other brothers. They were both lost to pit toilet accidents. The only reason uncle Ron survived is because he had a big butt.” None of this was true of course. It seemed like an important lesson at the time.

Sometimes a learning moment can go bad.

And this weekend Spencer was reeling in a big salmon when a fisheries patrol vessel came charging by. I don’t think we’ve seen a fisheries patrol vessel in 20 years, but when they saw Spencer’s rod bent over they decided to come by for a chat. With their large wake and much confusion we somehow lost the fish before we actually saw it. Such is fishing.

They wanted to have a look at our licenses and our gear. In spite of a very lax enforcement environment over the years, we’ve maintained a semi rigorous approach to compliance with the fisheries laws. The rod on the on the port side of the boat had the regulation barbless hooks. The rod on the starboard side had somewhat older hoochie with the recently outlawed barbed hooks. These would have worked their way through inventory and disappeared in a season or two. We’re content in the knowledge that we generally represent no threat to the salmon population and if the fisheries law is a few years ahead of us, we know we’ll catch up to it eventually.

However, with three enthusiastic officers wanting to board our vessel, I didn’t have a couple of years. Thankfully Tracey suggested to them that she would just tack the boat into the wind so we wouldn’t blow off as they tried to board. With the boom swinging and a 2 foot chop we were looking a little dangerous. I graciously put fenders out on the port side even though they came up on our starboard. They came around to the port side, decided not to board, and just hovered off five to ten feet away. I showed them licences, (all current, though the boys don’t have salmon tags on theirs) and explained our gear. “Yep were using flashers with hoochies and look, no barbs” as I held up the newer hoochie and ran my thumb over the hook where barbs might be. I didn’t volunteer to show them the other rig – a representative sample seemed sufficient.

“Oh good. You just saved yourself a hundred and fifty bucks. That’s what it would cost if you were fishing with barbs.” They gave us a few nice words about what species were running and why we shouldn’t lose any fish with barbless hooks if we just keep the tension on etc. We smiled and waved and sent them on their way. Technically, I didn’t lie to the fisheries officers. I just didn’t volunteer the whole truth. Another great lesson for the boys.

I dropped into to clinic today. Unfortunately, Spencer is having pain in his back again. Not nearly the right ratio of fun days to hospital days lately. More chemo to start next week.

He is starting on a study for an appetite stimulant. They collected baseline data on his quality of life, took his height and weight, measured the circumference of his arm, and then the dietician try to squeeze some fat on his arm so she could get her callipers on it. Spencer was writhing in pain. There was no fat to squeeze. She felt the need to try again. She left a nice bruise on his arm. She had to be told to stop and she left the room. We all stared in wonder at the bruise forming on his arm. The wonder only lasted a moment or two before the nurse, doctor, Tracey and I all started speculating on what his platelet number would be. It was one of those, Price is Right, closest to the number without going over kind of moments, so I chose seven – something just north of spontaneous bleeding out of the ears.

Thankfully, we were all wrong. Spencer seems to be manufacturing his own platelets again and scored in the fifties!

At lunch, Tracey mentioned that Foster was pretty bummed because he felt a little cheated out of his summer with the recent bad weather and what not. Spencer mentioned that he never had a chance to go go-kart racing again. And so was hatched a plan where, Spencer didn’t go back to school this afternoon, I didn’t go back to work, and we dragged Foster out of class and we all went go kart racing. Another good lesson in how to deal with adversity: just drop your responsibilities and go have some fun.

What am I teaching my children?

Steve

Oh yes. And hockey season is starting again. A ticket angel managed to find some tickets for Tracey and Spencer to go to the game tonight. And Foster and I get to go next week!




Tuesday, September 11, 2007 11:30 PM CDT

Of Rats and Boys

So the last post was a little misleading. The “men” are really only 12 years old. And the “mice” are 12 inches long.

Had a great weekend. Met up with friends at Bowen Island. Spencer gave us all a poker lesson. Quiet boy when he plays poker. Hard to read. Patient and wickedly smart. I’ll have to see if we can get him drinking caesars while he plays so the rest of us have a chance.

Hooked into a big salmon on Saturday but never quite landed it. So we only have a tale but no tail or head or any filets. We had to head downtown on an urban sailing adventure. Unfortunately, you can’t get a platelet transfusion on Keat’s Island. But Granville Island downtown is only a ten minute cab ride to Children’s.

On the way in, Foster was cranking in the main sheet and the topping lift let go. The topping lift is this steel cable that runs from the tip of the boom up to the top of the mast. It stops the boom from falling on your head when the sail is down. Of course if the topping lift breaks, all heads are fair game. Fortunately, none were hit. Nobody really has enough platelets for a whack in the head with a boom. But there was a mighty bang when the boom hit the dodger and the topping lift shot up through the spreaders.

While Tracey and Spencer were busy getting platelets, I was busy cranking Foster 48 feet up the mast to straighten things out. Every boat should have a nine year old. They’re very handy for sending in tight places or lifting to great heights.

If only they would tidy up dead rats. In spite of the peanut butter being gone, we managed to capture one. You don’t really need bait. Traps are like real estate: location, location, location. But we only got one and we know there are at least two.

We’ve had all kinds of advice on how to bait the traps. We decided to go with Lori’s. She suggested we hot melt glue doggie kibble onto the triggers. I like that. Foster likes to hot melt glue things. So while we were cooking dinner tonight and waiting for Tracey and Spencer to come back from a platelet transfusion, we fired up the glue gun.

Scupper was very interested in what we were doing. He watched intently as his dog food was being glued into the traps. I had this feeling as we were gluing that it was a very bad idea to do this in front of Scupper. I’m not sure why. I’ll have to think about this.

Steve

PS: I finished my root canal today. I can't remember what was next on the maintenance list, but I'm pretty sure it was fixing the leaky gutters.


Friday, September 7, 2007 1:33 AM CDT

Of Mice and Men

How quickly things change.

It appears I’ve forgotten to update. It’s been busy with back to school, soccer, small creatures that need to be killed, and the usual things.

Spencer is free. He was sprung on labour day. He didn’t meet the normal criteria for discharge with an ANC better than 0.5., but Tracey just decided it was time. Medical decisions seem to be all about a team consensus so she just isolates the individuals and spreads a rumour that “they” are talking about discharging Spencer and by the time “they” all go into rounds there is already a consensus even though there isn’t necessarily anybody on the medical team that would have independently come to the conclusion that Spencer should have been discharged.

I like the way Tracey’s mind works, but she scares me. I’m not sure, but I think there might have been one or two occasions where she might have had things her way by making me think that I had just come up with a clever idea on my own. I’ll have to watch this.

Anyway, discharged on Monday. First thing he did was fire up the go kart (new batteries – thanks Uncle John) and head down to the park to fire a few tennis balls for Scupper.

Morphine withdrawal on Monday night. Anxious, emotional, shakes etc. At two in the morning, Tracey dipped into her handy home supplies of morphine and all was well. Tuesday, I took Spencer for a platelet transfusion while Tracey took Foster to school. A little morphine in the afternoon (not for pain, just because it takes the edge off) and off to the park again. Are there any laws about children on narcotics driving electric vehicles and firing 60mm artillery in public parks? I think not.

Wednesday was a surprise. 3 weeks in hospital, hardly ate or drank a thing, lost 3 or 4 kg, developed serious morphine and platelet dependencies – it would seem like a quiet day of rest at home would be in order. But not Spencer. He decided he wanted to go to school. So he did. Technically his ANC isn’t high enough to be discharged from the hospital, but what the hell. Live a little.

Today, more platelets. Spencer’s done better than most of the famous Hollywood rehab types. He’s now kicked his morphine habit. Tomorrow, more platelets. And there is a rumour that we are going sailing.

Tonight, the creatures have licked the peanut butter off 4 traps without triggering them. Apparently my neighbours have been trying to hunt and kill them for six months. Now they’ve moved into my yard – some hardened death resistant sub species. I’m going to try crunchy peanut butter.


Tuesday, August 28, 2007


Hi all.

I thought I had better give you brief update about Spencer. He is still an inpatient. He has no more fevers or cancer pain. His chief problem is mouth pain, and nausea. The mouth pain is likely due to a fungal infection. The nausea is likely due to all the meds and residual c-diff infection.

The docs have started him back on morphine for his mouth pain, so that he can get some calories in. If he continues to loose weight, they will start feeding him by IV, TPN. The down side of TPN is that it will mean he will likely be in over the long weekend. The hesitation to start the IV feeds is that he should start to make his own white blood cells any day, and this will likely clear up his mouth and gut infection. So we wait. Tomorrow the decision will be made.

As predicted, this chemo has kicked him in the butt. Thankfully, it has also cooled of the cancer.

Thank you to all the Foster picker-uppers and entertainers, dog walkers, parent feeders, hospital visits and general support these past 2 1/2 weeks. It must get tiring for all of you too. We have got to get a better hobby to invite our friends and family to.

Think white cells. Especially neurtrophils.

Tracey


Thursday, August 23, 2007 2:08 AM CDT



Well we’ve happily living at Children’s for ten days or so now. Spencer had double his regular dose of topetecan for five days and followed it up with a couple of days of vincristine and doxorubicin a couple of agents his body hasn’t seen in several years. So it’s been a really impressive round of chemo therapy. I haven’t seen Spencer with barf dish asking me to rub his back in a long long time. It’s mildly unnerving. Mind you, at this point we have pretty much nailed the whole anti nausea drug regime thing, so he doesn’t actually fill the barf dish he just sits with it at the ready.

So to what end? The good news is he has given up on that whole pain thing in his back. No more morphine.

The chemo did its job.

Bad news? Serious squirts. Burning through three sets of jammy bottoms a day. Tested positive for C-diff. Nasty stuff. Mind you, at least now he gets a private room. I’ve tormented other families with my snoring long enough.

It looked like Spencer might be set free any day, provided of course he resumed activities like eating and drinking. He tested the waters with a pass this afternoon and dinner at Uncle Johnny’s. Unfortunately, tonight he spiked a fever. With no neutrophils, that gets us a ticket to stay for several more days of antibiotics.

So we’ll carry on. Usually after a stay this long, I start using words like incarceration and parole and other terms of imprisonment. This time around it was really frightening to see Spencer go in with so much pain. He’s never been hospitalized for pain. To see the chemo work so effectively was quite wonderful. Now he just has to recover from the treatment. So it will be good to see him feeling better. When that happens, either they kick us loose, or I appeal to the parole board. In the meantime, we’re just happy to be where Spencer is comfortable.

Maybe we’ll do another barbeque on the weekend. The first one was a big hit.


Wednesday, August 15, 2007 1:36 AM CDT


Save Room in the Bucket

I suppose it’s time for the post holiday update where I tell everyone about the wonderful vacation and all the things that we did and make people generally jealous or inspired or whatever. Not just the “Isn’t it nice that the cancer family got away for a couple of weeks” but more along the lines of “Oh my God, why can’t we have vacations like that?”

So I should natter on about the 15 knot breeze on the flat water rounding Shark Spit with the sun low in the western sky and the sails full and the boat nicely heeled and try to express in words what it feels like when you know in your heart that you’re living one of life’s great moments and it doesn’t get any better. And the clams in the lagoon off Manson’s Landing where we dug our limit of 225 in ten minutes with our hands and didn’t even disturb more that 4 square feet of sand. And the stunning solo anchorage in Grace harbour where the boys managed to find the perfect rocks for us to jump from. And rock crabs with white wine. And watching the boys jump off the top deck of Al and Sue’s boat with 4 life jackets and 2 boat cushions on so they hit the water like wine corks at terminal velocity. And the biscuits - the ones that went with the chowder of prawns and clams and fresh cod. Swimming in the lakes. Kayaking. The little dog named Pepper. And Foster’s octopus which stayed with us not quite long enough to be given a name before going back to the deep. And just sailing from one cove to the next with those perfect hours where Spencer devoured the new Harry Potter, only disturbed occasionally when there might be a cry of “Dolphins!”

But I won’t. Because it would be misleading. Life isn’t entirely perfect.

Sometimes it’s only moments of perfection otherwise encapsulated in crap.

Because in reality we didn’t even know if we were going to get away or not. The days before we left, Spencer had fever and was in hospital getting transfusions and IV antibiotics. On the way up, we stopped in Powell River. Foster and I went shopping while Tracey and Spencer went for blood work so we could be sure that platelets were stable enough for us to disappear into the wilds of Desolation Sound.

Ten or twelve days of perfection, and on the way back, more fevers and back pains and a stop in Nanaimo hospital for more IV antibiotics. And it would be nice if the antibiotics were fighting infection. But they were only a precaution. The cultures were negative. The pain and the fevers are the cancer. And when we got home it got worse. Much worse. Tylenol and codeine weren’t cutting it. Spencer asked to be taken to hospital in agony. IV morphine did the trick.

And today, there was a bone marrow biopsy and a new plan. And the pain is better managed. And new chemo is flowing. And tomorrow, Tracey is organizing a barbeque, because there are too many kids and parents on 3B stuck inside their rooms on beautiful summer days. And fear is replaced by hope and we move forward.

So the real trick is to encapsulate the crap and let the enjoyment of the moments triumph. Otherwise, you’re just stuck in a bucket of shit.

And you really need the bucket for the rock crabs and the octopus.

Steve

PS: The part that I find really disturbing is that Spencer still kicks my butt in Mario Kart while taking serious narcotics


Saturday, July 28, 2007 9:55 AM CDT


We're sorry. All website updates have been suspended. The Dolling family has gone away on the boat to make new stories.

Please stand by.


Friday, July 20, 2007 1:46 AM CDT



Maintenance

I’ve made good progress on the maintenance backlog. I booked the car in this week and rode the skytrain for a couple of days. Mario did a fabulous job. Everything I asked for at about half the price of what the dealer would charge. But what I really like is that he did a couple of things that I didn’t ask for. He fixed the rattly clunky noise underneath with a new sway bar linkage. And best of all when he restored the 1 2 & 3 settings on my air conditioner fan with a new resistor (not an expensive new assembly) as I asked, he also managed to make the thing stop squealing as an added bonus.

So now that I’ve got the tough one out of the way, I’ve started in on the next steps. I called the endodontist to book an appointment. I explained that Dr. Johnson said I needed to meet with Dr. Weinstock personally because I had a non vital 3-2 that may be trifurcated. The receptionist was impressed, “We don’t see that very often.”

“I know. Arnie even dragged his associate in and said ‘you have to have a look at this’. That’s never a good sign.” The receptionist took the opportunity to explain their approach to fees. They charge more than the fee guide recommends. And they like to extract cash from the patient rather than waiting for the insurance company to pay them.

What are the options here? They kind of have you by the short and curlies. Never mind, that’s the other health care professional. In any case it sounds like it will be expensive. I suppose you don’t really want to go for a discount root canal. Especially when it’s your first. And a complicated one.

Now I’m a little bit alarmed. I find that the less I pay for car repairs, the better quality service I get. But does the same hold true in dentistry? I don’t want to find out the hard way.

But the alarming bit is lower down. And I don’t why, but people are distinctly uncomfortable when I start talking about my pending vasectomy. I’m not at all uncomfortable talking about it. I’m uncomfortable with the notion of actually doing it.

Especially when the price is zero. Discounted car repairs – for sure. A discount on a root canal – I don’t know. But rendering yourself reproductively inert for free? This sounds like a bad idea. What if they tell me it’s non vital or trifurcated? I'm pretty sure they won't make it stop squealing as an added bonus.

Tracey is betting big bucks that the front porch will get rebuilt before I get neutered.

Anyway, Spencer’s chemo went OK last week. This week is refills. Platelets on Tuesday. Tomorrow I’ll be with him in clinic for more platelets and hemogoblins. Tracey is out looking after some maintenance items of her own. But I’m not sure if she is comfortable talking about it in public, so we’ll just leave it at that.


Steve


Wednesday, July 11, 2007 0:14 AM CDT


Following Seas

Sometime between being discharged from hospital last Tuesday and starting a new round of chemotherapy today, there were a few days of indescribable perfection. They involved some things like a small shark on the end of some 10 lb test, wind shrieking through the rigging on an undersized anchor at 3:00am, kayaking in a cove named Smugglers, smokies on a fire in Buccaneer Bay, racing in Secret Cove, meeting up with friends, and sailing home surfing on a following sea in a 20 knot north west. And other things.

And today there is chemotherapy. And the realization that I’m falling behind on the maintenance items. The wiring needs to be fixed for the passenger window, the brakes shudder at high speed, the timing belt is overdue for replacement, I need to get a root canal, the vasectomy is still on the list, and I really must rebuild the front porch with the cedar and stone.

It all seems a little overwhelming. I should break it down into smaller pieces.

I think I’ll phone Mario and book the car in for service. Yep. I’ll tackle the tough one first and the rest will be easy.


Friday, June 29, 2007 1:56 AM CDT

Day Parole

So Spencer finishes up his IV antibiotics around 3:00. Then it’s off to the Cancer Agency for radiation. No need for an ambulance ride, he’s perfectly mobile now. He has his radiation appointment and there is no need to report back to the hospital until 10:00pm or so. He is free on day parole with a six hour pass.

Pretty handy since Balding for Dollars is throwing a party at Playland for kids from the hospital. Siblings and a friend are invited so we all headed down. Several of the rides have warnings against use by people who have heart conditions, back or neck injury, recent illness, pregnancy etc.

If you are released on a pass for a few hours from the hospital, does that qualify as recent illness?

They probably only mean people who are still physically in the hospital. In any case, I personally try to avoid any ride that would not be good for a pregnant woman.

Not so the boys. Not so Tracey. They all had a go at one ride called Revelations which looks to be a couple of hundred feet high and just sort of swings people around in huge circles travelling at some unreasonable speed and subjecting them to inversion at the top and about five Gs at the bottom. It’s a ride that it would be physically impossible to throw up on because the contents of your stomach are held in by centrifugal force.

Spencer and his friend Jared carried on and did any ride that turns upside down. The old wooden coaster was good for four or five tries. And they ran between the rides.

Two nights ago we had Spencer’s teachers out for an end of year celebration on the boat. Spencer worked the foredeck stowing fenders, sailed the dinghy and generally had a good time. One of those perfect evenings with a warm breeze.

Last night there was road hockey.

All of this on day parole. And every night we return to the hospital and watch a few episodes of CSI and crash around midnight. And every morning the doctor comes in, and she finds this poor boy curled up in his bed still sleeping. To the doctor who sees him every morning there’s doesn’t appear to be any difference between Spencer today and Spencer of a week ago – the same Spencer who was taking morphine, moving only in a wheelchair and riding in ambulances. If she could only see what goes on the rest of the day!

Ah, but we know better. I think everyone is fairly comfortable that his infection is getting better. Each morning the outlook is another day or two of incarceration. The same outlook as ten days ago. But now, day parole in the afternoon. Last day of radiation tomorrow. Maybe freedom by the weekend.

If not, there’s always day parole. It’s possible to live well six hours at a time.


Monday, June 25, 2007 1:52 AM CDT


More Unbounded Perpetual Joy

The infection in Spencer’s leg is not getting any smaller. It’s a bit larger. But not quite so red. No fevers. The pain is much better. I think he went today without codeine and he’s able to walk around with relative ease.

But since it hasn’t improved to the degree that they would like with the heavy duty antibiotics, they sent the surgery team around today to consult. The concern is that maybe the infection has gone out of the skin and into the muscle and perhaps it would be a good idea to cut away the infected tissue to help it heal. We’re talking about an area the size of a DVD. So this doesn’t really sound like a lot of fun. Carving up boys never sounds like a lot of fun.

So the surgeon dropped by. She wasn’t wild about the idea. Spencer didn’t jump high enough when she poked it, so it’s probably not a really deep nasty thing. Surgery would rather keep a close eye on it for a few days rather than sharpen their scalpels. You gotta like a mechanic who tells you not to worry about the noise unless it gets worse rather than pulling your wheels off, replacing your brakes, and charging you $500.

Hopefully, we’ll stop drawing concentric lines soon. We did escape on a day pass for dinner again today. But it’s always nice to check out for good with your boy and all his bits.


Saturday, June 23, 2007 8:36 PM CDT

Unbounded Perpetual Joy

Spencer wanted to get a helicopter ride. I explained that this wasn’t possible.

He did, however, convince the ambulance driver to stop at Wendy’s to get chicken strips and fries. Hmmm. Perhaps I should back up a bit.

He was in the ambulance to go from Children’s to the cancer clinic for radiation treatment. Since he can’t walk, they arranged for an ambulance rather than Tracey having to carry him through the parking lot.

Whoops. I guess I really haven’t updated in a while. He was admitted to Children’s after the kayaking on Wednesday. The boys skipped out of school on Foster’s birthday and went up to Sasamat Lake to have a paddle in their new inflatable kayaks that they somehow scammed out of me on father’s day. We had dropped into West Marine to pick up some canvas snaps and these inflatable kayaks were on sale for the last day and if I would only pay half like a good father they would experience unbounded perpetual joy.

I wasn’t sure we could afford to save that much money. Nonetheless, they have the kayaks and I’m still waiting to see their cash.

But the kayaks have nothing to with hospitalization. At first I thought it was the road hockey. Monday, we had a little bit of a birthday celebration for Foster and the boys played road hockey for a couple of hours. Spencer thought he had pulled a groin muscle. Turns out it is some kind of infection in his leg. They call it cellucitis or some such fancy name.

So he has been on an ever escalating course of antibiotics that have him in the hospital. No worries. A little morphine and his pain has been controlled. He is really doing OK. If you want to see him, just check out BCTV on Monday night – I think they’ll run the piece at 5 and 7pm.

Oh boy. The more I explain the more questions there are. The radiation is targeting a bit of tumour high up in his spine. He had scans a few weeks back and things were generally improved except for this one little bit where a touch of Neuroblastoma has sort of got the idea that it would like to move into his spinal cord. The doctors don’t think that’s such a good idea. Something about good to keep walking, breathing, and stuff like that. That’s why they’re nuking it.

The TV thing was just an interview at an EA Sports party in the lounge today. Just the local gaming studio throwing a party and spoiling kids with games and prizes and things. They’re constantly doing good things for the kids, though usually not with any publicity.

Anyway, all is well and they’re hopeful that Spencer won’t have to have surgery next week and if he tries to walk a bit and keep the blood flowing that’s a good thing. Gotta run. We’re home on a pass for a few hours. I think we’ll try and play a little road hockey…


Tuesday, May 22, 2007 11:46 PM CDT

Yoga Follow Up

And I was so looking forward to it.

Unfortunately, Tracey had a little headache that she thought might develop into a migraine on Friday night. This meant that we were unable to go to candlelight yoga. It’s a shame because I think there was like this cosmic window that opened that would have allowed me to go if it happened on Friday. I can think of no point in the past or any point in the future where the window might open again and I might be convinced to do candlelight yoga. So I guess we’re done with that topic.

Friday, I brought home a new chartplotter. It’s a little screen that listens to satellites and puts a picture of your boat on a little electronic map. Vitally important for safety to know where you are. Plus it also happens to have a fishfinder, pardon me a depth finding sonar, that can point out how much water you have under your boat so it doesn’t meet the land. Again, vitally important for safety.

So the question came. “How much did it cost?”

These questions are best never answered directly. No good can come of it. “It was on sale” I answered.

I’m glad Garmin has this figured out already. They publish a nice price that is designed soley for the purpose of showing your spouse. It has nothing to do with what the real cost is. You have to add in the little chip that has electronic map on it. And of course you need to add on the cost of the depth transducer. And then of course the lowest cost one has such a ridiculously small screen that it really makes sense to go the next size larger, also on sale of course. But I’d already dodged the question, none of this would be exposed.

But I hadn’t really dodged it. The question came back again 20 minutes later. “So how much was it?” So I had to explain about looking at the unit in the store and by the time you display your data, you’re left looking at a chart size of a video ipod and how I didn’t want to endanger our lives with such a small screen (this argument doesn’t work for 50 inch plasmas for the family room) and that I would not want to make such an investment and end up regretting it for years. The extra $200 was really worth it. What a shame it was that the 178c was discontinued, because now you have to buy the expensive G2 charts…

And I went on and on until Tracey grew tired of the outrageous stories and I never had to answer the question.

So I was showing it to Spencer he was suitably impressed. And then he asked the question, “So Dad, where’s the button that you press in an emergency that makes the coast guard come?”

“Well, actually Spence, the chartplotter doesn’t have a button like that. What it has is a NEMA 0183 interface that will feed the position data to a VHF radio with DSC capability that broadcasts the distress call with your position.”

“You mean we would have to buy a new radio?” he asked.

This kid is smart. Scary smart. But I see the radios advertised at very reasonable prices. I’m sure they come fully accessorized with everything you need included in the price...

I’ve hidden the invoice. But there’s no hiding the Mastercard bill.

Damn. I’m going to have to go to a candlelight yoga class.


Friday, May 18, 2007 1:38 AM CDT


Strep Yoga

I’m very excited. Tomorrow night is candle light yoga. Tracey is convinced of how good yoga would be for me. She sees candle light night as the perfect opportunity to introduce me to the art form. I think that she hopes I will enjoy it as much she does. I think she is delusional. The only reason I would go is because I love her. The only reason I would stay would be a bunch of women in yoga tights. We’ll see how it goes.

Spencer had his birthday on the 12th. I can’t believe he is twelve already. Instead of a birthday party this year, he got to take a few friends an overnight cruise on the boat. It seemed to be a hit. Only one fish died. No crabs were harmed. The pirate flag was raised, but no pirates found my rum supply. No harm came to the Mongolian Razor Back.

Strep throat is everything that they say it is. I tried it out this week. If you’re smart, you go to your doctor early and they give you antibiotics that will act right away and get rid of the symptoms. If you’re like me, you are stubborn and slow, and about all the antibiotics do is make you no longer contagious. Then you get to experience how high your pain threshold is.

I was starting to get better but couldn’t sleep at night. So the other night Tracey gave me some magic pill that pretty much knocked me out for ten hours. That was great for the drowsiness thing, but when you wake up after snoring for ten hours with strep throat, you kind of feel like you would rather be in a yoga class. Maybe even a candlelight yoga class.

Spencer had chemo last week. I think chemo and yoga have a lot in common. But I’ve done neither, so I shouldn’t judge. I did, however, get to go to the lab this week with Spencer. We had father son blood work. I convinced him to go with the Donald Duck band aid so he could look like me.

Foster has been playing a lot of baseball. His team is undefeated. He’s thinking maybe they will win every game this year. I told him I thought that was kind of sad because he wouldn’t really learn much if all they ever do is win. He’s says he quite happy not learning anything if it means they get to win every game.

I wonder if I will win at yoga.




Tuesday, May 1, 2007 0:22 AM CDT

Mongolian Razor Back


Scupper didn’t do so well in Balding for Dollars.

For Spencer, there was no detectable change – no need to even bother with the trimmers. He’s fully committed to the cause, full time.

For Foster, well he has a good looking head and often has short hair this time of year anyway. Looks pretty good bald.

For me, well I always have a clean shaven head. I tried to grow it back for a few weeks just so I’d have something to shave, but every year there is less of it and there doesn’t seem to be much colour left in what does come back.

Tracey is strictly off limits. She would shave her head, but we like her the way she is.

So if we were going to raise any money, that pretty much left Scupper. Yep. He was pretty much our only chance to do something dramatic that would attract some attention.

One of Foster’s friends from baseball, also named Spencer, decided he wanted to shave his head. His dad has cancer and he wanted to do something meaningful. Now he had an impressive golden mane: the long shoulder-length kind that they tie up carefully and collect in the bags to send off to the people who make wigs for chemo patients. The kind of hair that gets noticed in its absence. The kind of hair that can raise more than $4000 when its shaved off. Wow!

Even with Scupper, we can’t top that.

The question was what to do? Bald dogs are kind of creepy. We decided not to make him look like a sick puppy. We went with a more stylized approach. We decided on a Mowhawk. For the event at Children’s I just did his head and left a big bit down the middle.

There was a problem with it though. With the big shaggy ears he kind of looked like a freaky 1970s rocker, sort of dog version of Gene Simmons. Couldn’t bare to look at him.

I had to finish the job. So off came the ears. Took the Mowhawk all the way back to the tail. Now he really looks like something. We’re not sure what exactly - part dinosaur, part mutant poodle. I want to join the Portuguese Water Dog Club, just to see the looks of shock and horror. But at least now I don’t have to explain all the stuff about water dogs to people we bump into on the sidewalk. It’s much simpler now. I just look them in the eye and explain:

“He’s a Mongolian Razor Back. Don’t get too close!”


Monday, April 23, 2007 0:08 AM CDT

Well it was the big weekend. Balding for dollars. I had to grow hair back just to be eligible to shave my head.

Foster joined in too! Spencer? Well he kind of does it full time.

Now I know there is absolutely no novelty in seeing me bald and it is not much of an incentive. But if lots of people go to the link below and chip in the their five or ten or fifty bucks, I will post a picture of Scupper on the website.

With a Mowhawk.


Wednesday, April 4, 2007 0:51 AM CDT

I guess it’s been a while since I updated.

Tracey did come back from Mexico. We missed her. It’s nice to have her back. Sarah liked Mexico so much she went back for another month.

I went to Russia. It’s spring breakup on the Volga. I stayed in a hotel on pilings on the river in Yaroslavl. Beautiful except big sheets of ice kept crashing into the pilings and shaking the hotel. Playoffs are already well along in Russia. I watched the Yaroslav Locomotiv take on a Siberian team. Good fun. Not quite Mexico though.

We closed on our new boat last weekend. Nice. Haven’t named it yet. Front runners are “Escape Velocity” and “Black Dragon”. Though Tracey still likes “Hot Ruddered Bum”. Suggestions please! The nice thing about owning a small 40 year old boat is that a medium sized 20 year old boat seems absolutely huge and brand new. We already did our first overnight (and our second) in the month of March – that’s a first. Tracey’s mom and dad even came out for a dinner cruise.

Anyway, the boys are doing well. Life has been uneventful medically. Spencer looks great and has a ton of energy and is playing road hockey, fishing, and attending school regularly.

Life is sort of normal (with chemo and transfusions). And that’s a good thing.


Monday, March 5, 2007 0:10 AM CST

Fever

As I was waking up the other morning, six anxious looking women stormed into the room. Generally, this would just be some kind of fantasy dream, but in this case, it was real. Spencer’s IV pump was beeping away and I was trying to retrieve his call button that was stuck underneath the head of his bed. Somehow, by yanking on the cord I had triggered some kind of a code that brought every nurse on the ward into the room.

They all looked at me a little funny when I went out to get a coffee a few minutes later.

We were in the hospital because Spencer had some kind of infection in his leg. It was only a couple of days in the hospital. Mild fever at the start. Seems to have sorted itself out.

My own fever hasn’t subsided. I sold the sailboat that has been in Tracey’s family for 40 years. So far the family doesn’t hate me for it. I keep showing them pictures of a Catalina 34 at that seems to keep the knives in the drawer. The nice thing about having a 40 year old boat, is that you can look at 20 year old boat and it seems brand new. We have an offer on one now. It passed its engine survey. Next weekend we do sea trials and the hull survey. After that, it will be ours. Well actually, when we finish paying for it in 20 years it will be ours. Financially it’s a dumb decision because we haven’t put any money in our retirement accounts in 5 years, but what the hell. There’s no point buying a boat in ten years when we can afford it because the kids won’t be interested in sailing with us. I don’t think we’ll ever regret living life fully.

Speaking of living life fully, Tracey left me and the boys. I’m now doing the single parent thing. For a full week. She went to Mexico with her friend Sarah. Both of them deserve a break! About now, they should be somewhere south of Cancun having their first drink of something with an umbrella in it.

We miss her already. We’ve tried to numb our loss at Costco and Home Depot. We threw out all the rusty old tools in the boat toolbox and replaced them with shiny new ones. We just had pizza for dinner. Now we’ll watch a hockey game. It’s going to be a brutal week, but we boys will do our best.


Wednesday, March 7, 2007 0:50 AM CST



Questions probably better not asked of Tracey as she enjoys her vacation in Mexico:

We’ve run out of liquid dish soap. Should we just stack pots in the sink or should we only be microwaving food in bowls that we eat out of?

We’re running out of dishwasher soap. This could be really bad. Where are the paper plates stored?

When Foster came out of the bathroom announcing that he had thrown up, I made him put his clothes in the laundry and take a shower. Was there anything else I should have done?

I’m trying to serve balanced meals. Tater Tots are a vegetable right?

The dog seems to be mining for empty toilet paper rolls in the bathroom wastebasket. I forget what this signifies. Is he lonely, bored, or underfed?

I did a trade with Jack. I did a “drop the boys at Jack’s house and he drives em to school” in exchange for “I pick em up from school and drive Jared to swim class.” This seemed pretty good. Now Jack and Donna did a “whoa we’re running late, can you feed Jared dinner?”. Which was fine. If I do three more “drop the boys for a ride to school” and a couple of “Jack picks em up from school”, then what do I owe Jack at the end of the week? I’m not familiar with the whole kid services barter market pricing scheme.

Saturday, Foster has a soccer game to go to with a birthday party following while I plan to be out doing sea trials. Is there anybody who we have big kid service barter credits with or have we pretty much tapped out our resources around town? Is it OK if Spencer drives Foster?

Hypothetically speaking, not that this would ever happen, but if Spencer were to miss one of his antibiotic pills at dinner would we just give him two at bedtime, throw one in the garbage and never mention it, or just carry on the usual schedule being diligent not to miss another one?

As we arrived at the orthodontist today my cell phone rang and I ended up talking to a customer for twenty minutes. Jared, Foster and Spencer went in, did the appointment, and came out again. What happens at the orthodontist? Was I supposed to do anything in there?

Do the teachers consider hockey games homework? Even if they’re Eastern Conference games? What if Foster is now able to spell Tampa Bay Lightning?

How do I explain to the children the bra that was thrown on the ice after Cowan’s second goal?

I know I was supposed to deposit the cheque from the insurance company as soon as it arrived. Ummm.



(see journal history for insurance details...)


Wednesday, March 7, 2007 0:47 AM CST

Claims Analyst
The Manufacturers Life Insurance Company
7 Maritime Place
PO Box 1030
Halifax, NS B3J 2X5

RE Your Letter of February 26, 2007 Group Plan Number 789002 ID 1111

Dear Analyst:

Thank you for your letter. Next time please sign it personally, as it is much nicer for us to believe that there are actually humans processing our claims.

I appreciate you pointing out that the Canada Health Act requires that medically necessary services provided in hospitals whether on inpatient or outpatient basis, including drugs, be paid for by the hospital.

You made a factual error in your conclusion that the Neupogen is administered in an outpatient setting. In fact, this drug is administered in a home setting. You are welcome to come and watch Spencer inject himself with the drug in our family room as he does on a regular basis. If the drug is ever required while he is in hospital, the hospital does in fact pay for it. You should have been able to confirm this fact when you spoke with his oncologist the other week.

If you argue that it’s an extension of an outpatient setting, why have you paid before? Why pay for any of Spencer’s drugs? Why not just abandon children with cancer and leave them with their families in financial ruin?

Because you’re an insurance company. You are run by people with hearts. And you recognize that when you collect the multitude of premiums, that there are circumstances in which you must pay out claims. That is why your customers buy your product: to protect their employees, particularly in the kind of circumstances that we face. It’s good business to make sure your product meets the expectations of your marketplace.


I appreciate the fact that you may be growing weary of paying our claims for drugs. Denying coverage for an expensive drug is a great cost saver. Believe me, we’re weary too. Have courage - it’s a long fight! We’re sticking with it all the way and you should too.

Please do write back. Preferably by email sdolling@whatever.com. Or call me any time 604-555-5555. We cannot afford to be stuck in the middle of a fight between an insurance company and a hospital while we are left here paying for expensive drugs. Your promptness is appreciated.

Sincerely,



Steve Dolling


Monday, March 5, 2007 0:10 AM CST

Fever

As I was waking up the other morning, six anxious looking women stormed into the room. Generally, this would just be some kind of fantasy dream, but in this case, it was real. Spencer’s IV pump was beeping away and I was trying to retrieve his call button that was stuck underneath the head of his bed. Somehow, by yanking on the cord I had triggered some kind of a code that brought every nurse on the ward into the room.

They all looked at me a little funny when I went out to get a coffee a few minutes later.

We were in the hospital because Spencer had some kind of infection in his leg. It was only a couple of days in the hospital. Mild fever at the start. Seems to have sorted itself out.

My own fever hasn’t subsided. I sold the sailboat that has been in Tracey’s family for 40 years. So far the family doesn’t hate me for it. I keep showing them pictures of a Catalina 34 at that seems to keep the knives in the drawer. The nice thing about having a 40 year old boat, is that you can look at 20 year old boat and it seems brand new. We have an offer on one now. It passed its engine survey. Next weekend we do sea trials and the hull survey. After that, it will be ours. Well actually, when we finish paying for it in 20 years it will be ours. Financially it’s a dumb decision because we haven’t put any money in our retirement accounts in 5 years, but what the hell. There’s no point buying a boat in ten years when we can afford it because the kids won’t be interested in sailing with us. I don’t think we’ll ever regret living life fully.

Speaking of living life fully, Tracey left me and the boys. I’m now doing the single parent thing. For a full week. She went to Mexico with her friend Sarah. Both of them deserve a break! About now, they should be somewhere south of Cancun having their first drink of something with an umbrella in it.

We miss her already. We’ve tried to numb our loss at Costco and Home Depot. We threw out all the rusty old tools in the boat toolbox and replaced them with shiny new ones. We just had pizza for dinner. Now we’ll watch a hockey game. It’s going to be a brutal week, but we boys will do our best.


Wednesday, February 14, 2007 1:06 AM CST


I keep promising an update. I've just been too busy lately.

That's a good sign. I usually write a lot when I'm highly stressed about Spencer.

He had chemo last week and scans the week before. Good news on the scans, at least in relative terms. They seem be stable or perhaps a little improved, no signs of any new areas.

Foster finished ski lessons last week. He had a blast. Tracey and I skied with him on the last day. I think we better go again soon - I doubt we will be able to keep up with him next year.

I'm experiencing my annual boat fever. This usually results in several weeks of frenzied activity looking at listing of boats at brokers until I finally reach saturation and conclude that we have no business buying a new boat and I do some project on Snapdragon instead.

I'm kicking myself today because I was at the boat show on the weekend and completely forgot to pick up a nice boat hook or something romantic for Tracey for Valentines day. Maybe I should go back to the dealer and see if I can get a deal on a shiny new Beneteau 49, the ultimate expression of romantic love?

Anyway, things are moving along. Life is good. More news later.



Wednesday, January 24, 2007 1:07 AM CST


It's been busy and I haven't updated in a while. That is not to say that I have anything to say, just that my guilt for not updating finally overcame keyboard inertia.

It's been a crazy few weeks. All the usual stuff: back to school, work, chemo, transfusions and whatnot.

I've included a few photos from our wonderful visit over New Years with friends Al, Sue, & Hadley down at Lake Wenatchee.

I'll attempt a real update soon.




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