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KYLE SAMPSON - 'EVER BRAVE' 
Forever in the Arms of Jesus
June 10/91 - November 24/04
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"With Hope" by Steven Curtis Chapman was sung at Kyle's funeral...this abridged portion has been etched on his memorial...
Never have I known anything so hard to understand,
Never have I questioned more the wisdom of God's plan,
But through the cloud of tears, I hear the Father smile and say well done,
And I remember you, where you wanted most to be, seeing all your dreams come true, cause now you're home and now you're free.
And we can cry with hope, we can say goodbye with hope,
Cause we know our goodbyes are not the end,
We can breathe with hope, cause we believe with hope, there's a place where we'll see your face again.
I know I will see Kyle's beautiful face again one day, that is what is keeping me going each day.
I found this poem on another site, it says it all.
THE CORD
We are connected, my child and I
by an invisible cord not seen by the eye
It's not like the cord that joins us til birth
this cord can't be seen by an eye on earth
This cord does its work right from the start
it binds us together attached to the heart
I know that it's there though no one can see
the invisible cord from my child to me
The strength of this cord is hard to describe
it can't be destroyed, it can't be denied
It's stronger than any cord man could create
it withstands any test, can hold any weight
And though Kyle’s gone, though he’s not here with me
the cord is still there, but no one can see
It pulls on my heart: I am bruised, I am sore
but this cord is my lifeline, as never before
I am thankful that God connects us this way
A mother and child, death can't take that away.
Kyle's Story
Kyle suffered with what we thought was tendonitis in his right shoulder the summer of 2003. After months of doctor appointments he was diagnosed in January 2004 with stage IV Undifferentiated Sarcoma - a very rare form of sarcoma. Our lives changed forever that day.
He was sent to our local children’s hospital, the IWK Health Center where he received the BEST care available. Fortuantely we were also able to receive much of Kyle's treatment and care from our home hospital as well as through Extra Mural Health Care. The ability to be treated close to home was such a blessing.
Kyle’s cancer was unresponsive to any of the treatments that were given and extremely aggressive. After undergoing many rounds of very intensive chemo and radiation with no positive results, we choose to come home on an oral chemo (VP-16) and enjoy EVERY moment, living each day making memories.
After only 11 months of fighting, my brave, sweet, precious boy was tired and his body could not fight anymore. Kyle passed away at home in his chair, peacefully and surrounded by more love than imaginable on the afternoon of November 24, 2004. He was almost 13 ½ yrs old.
He is now in the arms of Jesus...whole again and cancer free.
I will be forever grateful for our care team...without their guidance, wisdom and sincere care for Kyle's well-being, he would have not been at home when he passed away. He was provided the best home care and support possible. That was such a wonderful gift.
Take a look at Kyle's Quilt of Love...it is AWESOME!!! http://quiltsoflove.com/quilt_2004/kyle_GN_S/kyle_S.html
Journal
Tuesday, October 7, 2008 8:26 AM CDT There are so many children who are fighting their own battles right now...it's overwhelming really.
This past weekend was the CIBC Run for the Cure...a fantastic event raising funds for breast cancer research. It was another successful event! I have many family members and friends who have gone through or are going through this battle and there is incredible need for breast cancer research, however....
...why isn't there an event in support of childhood cancer? Why are so many children, and there are sooooo many, suffering with so little research and funding being put towards specific childhood cancers? There is great focus on breast cancer, prostate cancer, lung cancer and so many other adult cancers, which is great and needed, but you never hear of a great cause specifically focusing on our young warriors. There seems to be a large disconnect between funding and research for adult cancers and childhood cancers. Many would argue that research done for adult cancers trickle down to children, however cancers affect children so differently than adults. Children present differently and they react differently to treatments. Children are special little warriors and deserve special care when being treated...more has to be done specifically for them.
I'm on a bit of a rant...in my work, I see too many who suffer and struggle with daily life...too many that fight so hard and unfortunately lose their battles...it's heartbreaking and frankly makes me angry. It just shouldn't happen!!! More has to be done!!!!!
Kyle was such a strong person...he fought so hard and never gave up hope. He was such an incredible inspiration and remained extremely positive even thought the toughest times. He was my strength and continues to be the driving force behind my ability to get up and face each and every day. I often wonder if there had been more research done, more clinical trials, even one more chemotherapy agent to try...if things would have been different. I will always wonder, I will always question and I will always wish things had been different.
Why my son...when others recover and go on? Why my son...when he was so innocent and full of life? Why my son....why????
Read Journal History
Hospital Information: Heaven - Wrapped Safe in the Arms of Jesus
Mailing Address: 1133 Tower Road
Halifax, NS B3H 2Y7
Links: http://www.childrenswish.ca - a wonderful organization granting wishes to children with life threatening illnesses
http://curesarcoma.org - help find a cure for sarcomas
http://canadianbloodservices.ca - YOU can help these children in their fight against cancer
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