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Here in Dejah's journal you will read an amazing story of a courageous little boy, the mountains that he has climbed on his journey to being healthy again. We created Dejah's Journal to keep family and friends informed of Dejah's treatments and progress as well as a writen journal for ourselves to remember always what a brave little soldier Dejah is each and every day!
Dec 31st 2003...Dejah was diagnosed with Wilm's Tumour, (stage III) Chemotherapy treatments began Jan 4th, 2004. March 30, 2004...Surgery (11 hours)to remove the tumour & left kidney. Dejah had a 12 day recovery (5 days in ICU)in hospital. A whole new 34 week chemotherapy protocol began, starting with 11 days of radiation therapy.
July 2007...Wilm's Tumor Relapse A second journey begins..... Sept. 5th, 2007 Stem Cell Harvesting Sept. 24th, 2007 Dr. Blair performs his magic with more surgery...5 days in hospital. Oct 29th-Nov 14th, 2007 Radiation daily to abdomen and surrounding area. March 4th, 2008 Mega-Therapy begins with Stem Cell Transplant on day 8.
August 2009....Routine Tests and Leg Pain bring us back into the world of Cancer! SIX YEARS of cancer for our little man...Please pray for a CURE!!!!
Journal
Monday, June 6, 2011 1:23 PM CDT A year and a half later....I blog! This will be the short version...but will catch you up!
Last July Dejah was faced with some scary news....his cancer may have matastised into his lymph nodes and lungs.
It was a terrible waiting game...but he went off to Camp Goodtimes and had a wonderful time. We sat at home fearing for the worst yet praying for the best!!!
PET Scan showed no spread of the desease and actually looked quite good. So we went into a 'Maintenece Protocol' which meant taking chemo pills orally here at home and very rare trips to hospital. We even managed a trip to Mexico in April!
July 28th brought him to yet another PET Scan as he was having severe leg pain again. This test showed that a new tumour had grown near the other one. We then started a severe and harsh treatment which in the last few months has really taken it's tll on him. He has not been to school in a long while and we grow worried for him!
A few weeks ago he had another RFA (the cold version called Cryotherapy) then we did an MRI. There are mixed findings of this test as some say it looks like a spread of the disease and others say it's just scar tissue, etal.
June 15th he will have yeat another PET Scan to make this judgement call. So here he is 11 months later after all this harsh treatment and pain and suffering....waiting once again to hope and pray that there is no spread of the cancer...no new cancers...no nothing at all!
He is a happy camper this weekend....Uncle Bruce took him to playoff game #2 and the Canucks Won!! They also got to see their smiling faces up on the jumbotron!!!! How cool is that! Dejah also got up this morning and said "see ya, I am going to school!" It was like watching him eneter the school on his first day of kindergarten...I had tears streaming down my cheeks!
Here's hoping that tis is an amazing sign that he is well! Happy Dances and Prayers are always welcome :-)
Thank you for checking in!!! <3 Glo
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