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CONOR MICHAEL FORD



LIVING IN THE HEARTS OF ALL WHO KNEW HIM.
October 18, 1999 - February 4,2004



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In one of the stars
I shall be living
In one of them
I shall be laughing
And so it will be
as if all the stars
were laughing
when you look
at the sky at night

~The little Prince
Antoine de Saint-Exupery BR>



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A parents only group for those of us who have lost their child to JMML.



******************
There are a hundred places where I fear
To go - so with his memory they brim.
And entering with relief some quiet place
Where never fell his foot or shone his face
I say, 'There is no memory of him here!'
And so stand stricken, so remembering him.


From "Time does not bring relief"
by, Edna St Vincent Millay










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Journal

Tuesday, January 15, 2008 4:08 PM CST

The Gap
by Michael Crenlinsten

The gap between those who have lost children and those who have not is
profoundly difficult to bridge. No one, whose children are well and intact can be expected to understand what parents who have lost children have absorbed and what they bear. Our children come to us through every blade of grass, every crack in the sidewalk, every bowl of breakfast cereal. We seek contact with their atoms, their hairbrush, their toothbrush, their clothing. We reach for what was integrally woven into the fabric of our lives, now torn and shredded. A black hole as been blown through our souls and, indeed, it often does not allow the light to escape. It is a difficult place. For us to enter there is to be cut deeply, and torn anew, each time we go there, by the jagged edges of our loss. Yet we return, again and again, for that is where our children now reside. This will be so for years to come and it will change us profoundly. At some point in the distant future, the edges of that hole will have tempered and
softened but the empty space will remain – a life sentence.

Our friends will change through this. There is no avoiding it. We grieve for our children, in part, through talking about them and our feelings for having lost them. Some go there with us, others cannot and through their denial and a further measure, however unwittingly, to an already heavy burden. Assuming that we may be feeling "better" six months later is simply "to not get it." The excruciating and isolating reality that bereaved parents feel is hermetically sealed from the nature of any other human experience. Thus it is a trap – those whose compassion and insight we most need are those for whom we abhor the experience that would allow them that sensitivity and capacity. And yet, somehow there are those, each in their own fashion, who have found a way to reach us and stay, to our comfort. They have understood, again each in their own way, that our children remain our children through our memory of them. Their memory is
sustained through speaking about them and our feelings about their death. Deny this and you deny their life. Deny their life and you no longer have a place in ours.

We recognize that we have moved to an emotional place where it is often very
difficult to reach us. Our attempts to be normal are painful and the day to day carries a silent, screaming anguish that accompanies us, sometimes from moment to moment. Were we to give it its own voice we fear we would become truly unreachable, and so we remain "strong" for a host of reasons even as the strength saps our energy and drains our will. Were we to act out our true feelings we would be impossible to be with. We resent having to act normal, yet we dare not do otherwise. People who understand this dynamic are our gold standard. Working our way through this over the years will change us as does every experience – and extreme experience changes one extremely. We know we
will have recovered when, as we have read, it is no longer painful to be
normal. We do not know who we will be at that point or who will still be with
us.

We have read that the gap is so difficult that, often, bereaved parents must attempt to reach out to friends and relatives or risk losing them. This is our attempt. For those untarnished by such events, who wish to know in some way what they, thankfully, do not know, read this. It may provide a window that is helpful for both sides of the gap
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Hospital Information:

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Links:

http://quiltsoflove.com/quilt/conor/conor.html   conor's online quilt
http://www.bloodservices.ca   bone marrow registry info
http://www.bmtsupport.ie   information on bone marrow transplants


 
 

E-mail Author: kristydarren@yahoo.com

 
 

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