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Robert's Cancer Journey for the Lord's Glory

Welcome to Robert's Web Page. It has been created to share our testimony and to keep family and friends updated about answered prayers and for specific prayer requests for his prayer warriors.Please drop a line in the guestbook, He enjoys, even the simple ones, Hello.




Journal

Sunday now, 11/16/08 and last update was Monday, November 10, 2008 7:20 PM PST

Today, we ask for continued prayer, we have chosen to take him off the current protocol, let him enjoy the holidays without any doctors,nurses, hospitals, nausea,weakness,and everything else that goes along with the chemo/cancer and we are going to wait...till the end of Dec. for another scan/MRI to see if it has grown and then do IORT and a new protocol, which will probably be the IGF-1R because by that time if this is the cancer in his armpit it will have grown for them to do surgery. Right now its about 1cm and elongated, and the surgeon would like to wait for it to be bigger. And so would Robert.

So we pray.God is in the business of miracles, and we are for the taking.
My prodigal son, Thomas, is home with us and enjoying time with his brother, continue to pray for wisdom for him in the decisions he has to make. God bless you all for keeping us in prayer around the world in different prayer groups!!!! God gets the glory!!!

This is last Mon. 11/10/08 update...Hi all,

We have just come back from our first Dr.'s appt. in S.F.

Three options,
Do nothing and continue chemo regime and wait to see if it grows and remove all doubt that it is/was the cancer.

Talk with surgeon to see if he can take it out and biopsy what they find and go from there for more options if necessary.

Or start on another clinical trial (IGF-1R) and assume that it is the cancer that has come back.

I want to do nothing and leave it in the Lord's hands.
Robert wants to see what the surgeon can do.
My parents are leaning towards IORT.

Since we know Robert does not fit into any special Aleveolar Rhabdomyo Sarcoma box , and he is a funny duck, where this cancer has a life and mind of its own, and nothing is text book, since the original diagnosis anyway, so why not just leave it alone for another month and repeat tests.

We'll, compromise all around.
We decided the doc is going to put it thru the tumor boards for review, contact the surgeon and have him take a look at MRI's and PET/CT scans and get his opinion, and wait at least till the end of this week to see if we need to start back up the present chemo regime.

Robert is overjoyed to be off chemo to say the least, and he seemed pretty convincing today in the docs office that this is not the big "C" it has to be scar tissue that took the uptake, or fall back on, that the other MRI's never got the edge of his arm pit in a MRI for past comparisons so therefore you can't say this is it, especially since it looks "elongated" and not the natural tumor looking blob on a PET/CT scan or MRI. Soooooo, can you see we need more prayer, wisdom and God's grace and discernment.

Please continue to pray for Thomas, Robert's brother who is making some decisions as well.

Do you want to hear something providential??? Jasmine, Roberts' chocolate Labrador, has a suspicious lump above her paw, I have a lump under my arm and have to have it out, (doctor thinks its non-cancerous) Robert has a lump under his arm. All in one family at the same time!!! God sure has a sense of humor!

Thanking the Lord for your love and prayers.

In his grace, Linda, Robert's mom

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Hospital Information:

UC San Francisco, San Francisco Ca.
500 Parnasis
San Francisco, Ca

Links:

http://www.lpch.org/DiseaseHealthInfo/HealthLibrary/oncology/rhabdo.html   ALVEOLAR RHABDOMYOSARCOMA DEFINITION
http://www.hhmi.org/news/nobel20071008.html   Nobel Prize Awarded...Robert's RARE type of cancer


 
 

E-mail Author: juicepluswithus@yahoo.com; robdunseath@yahoo.com

 
 

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