PAUL ALEXANDER'S PAGE

"Big 5" Birthday Invitation of Paul Alexander (January 28, 2008)



WELCOME to the Little Senator's Web Page.
Diagnosed at Age 2 (he celebrated his 4th birthday on January 28,2007), with Acute Myelogenous Leukemia
very rare subtype M0 (myeloblastic, "otherwise not specified")
on February 16, 2005, later reclassified as M7 (Megakaryocytic type)
Completed Inpatient AML 2002 Chemotherapy at LPCH At Stanford in Palo Alto,CA on June 25, 2005
Considered High Risk because of his non-response to first induction chemotherapy
BMT candidate but still searching for his match. Achieved his first state of remission on April 22, 2005 and remains in remission thru God's continued blessings, and the prayers and good works of many.

Thank you for following Paul Alexander in his journey. We appreciate your guest book entries which provide us with much encouragement and support.
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Paul Alexander's Song From Songs of Love Foundation, Words & Music by Bill Smith
Vocals by Valerie Smith

Refrain:
Paul Alexander, where do you get your energy from?
You love to play and run
Paul Alexander, there's so many things that you want to do
We can't keep up with you
A fun-loving child, a happy little boy
You bring us so much joy


Splish splish splash, what was that?
Paul's in the pool getting everybody wet
Boom boom crash, don't even ask
Now Paul's in the ocean chasing waves
Look to the sky Paul, see the airplanes
Listen close, you'll hear the engines roar
Load up your dump truck as fast as you can
Then blow a thousand bubbles all over the sand...

Paul get a book, Mom says so
Of course you pick out Henry The Train
Long and strong, he's your favorite one
Better than a book about airplanes
Or books about race cars 'round they go
And firetrucks, hear the sirens blow
How 'bout something that doesn't have wheels
A story about turtles and seals . . .

When it's snowing outside, Mom and Dad say
Let's go ride on the snow boogie boards
Off they go, down the hill
Daddy says, Paul be careful you're going too fast
When you get home there's another surprise
Some of your friends are here to play
Chloe and Claire, Ginelle and Anaka
Paul, you're not even tired
And you've been playing all day
But classical music and Fred Penner songs
Means Paul Alexander, it's bedtime
Soon you'll be dreaming of what you want to be
A doctor, a firechief, a pilot
How about all three?


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Congress introduces the Conquer Childhood Cancer act of 2007.

Please write to your Senators and your Representatives in the House, follow the Action Alerts for the Senate and again for the House. Senate Bill S. 911 gives hope to the thousands of children diagnosed with cancer every year.
Please read the full article.
The link is http://www.curesearch.org/news_and_media/news_article.aspx?id=4612
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Journal

Monday, December 24, 2007 10:49 PM CST

We’ve had a busy “family” year and composing a comprehensive update simply has not been possible in the last several months given my hectic office schedule and various out of town trips with what seem like fleeting weekends at home. Our Christmas message below expresses our 2007 blessings and more.

We share our JOY as Paul Alexander celebrates 30 months in remission (off chemo) on Christmas day!

Thank you so much for your prayers and positive thoughts.

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December 2007


Dear Family and Friends,

We wish you all a joyous Christmas and happy New Year!

Our 2007 may be characterized by Paul Alexander’s year; a few scrapes but doing well overall. While medical concerns arose and have fortunately faded, our hopes for the future are strengthened by the challenges now passed.

We began 2007 with a January recall visit with Paul Alexander’s Oncologist at Packard’s Children’s Hospital at Stanford, who noted an abnormality from a new “high-tech” blood test which could be helpful in some instances but uncertain in Paul A’s case. It was a huge scare for both Paul and I, but thankfully proved to be a false alarm.

We had a couple of incidents where our little guy developed petechiae (pinpoint bleeding under the skin, the first sign that we noticed before he was first diagnosed with leukemia) again, which prompted unscheduled blood work. He dislikes “the pinching”, as he calls it, intensely but knows that it is necessary. All turned out well - those tight swimming goggles or rough play with his friends can cause them too! Unremitting high fever and cough earned him an Emergency Room visit when we returned from our Labor Day San Diego trip (attending Kristine’s, Auntie Pering’s granddaughter’s, wedding). Fortunately, the ER ordeal was relatively short, in spite of the distasteful blood work, x-rays and IV antibiotics, Paul Alexander did not need the dreaded hospital admission. That night, as he played with his newly acquired duck, he explained to his baby duck how it needed the “pinching” and medicine to get better.

In between these medical bumps in the road, including the occasional face and head plants into walls, floor and gym mats in gymnastics, Paul Alexander is a very happy, loving, enthusiastic, extremely energetic and sweet little boy. He kept us busy in the spring and summer with t-ball, almost daily swimming, and trips to the beach, mountains and favorite CA cities as Papa became an expert scout of the best playgrounds and museums suited for the young master who loves airplanes, cars, trains, Star Wars and dinosaurs! Soccer was his favorite outdoor sport this fall; indoors, he continues to improve his strokes and breathing techniques during his swimming classes. Becoming fluid with his speech, Paul Alexander’s innocent and hilarious verbal antics and logic, daily entertain his sleep deprived parents. His questions & stories about school, his friends and life, his interpretation of the rules bent to suit his young and fertile mind keeps us TV-and movie-free at night. We just love how this beautiful young being is developing. He keeps us focused and sane as we navigate our busy lives. Mommy, for the most part, enjoys her busy private practice while Daddy maintains his business activities and learns more parenting skills daily.

Christmas Day is extra special this year as it marks the day that we celebrate Paul Alexander’s 2 ½ years in remission (leukemia-free) and thus we end 2007 and begin 2008 with a big HURRAY!!!!!

Peace, prosperity, joy, hope and good health to all in 2008!

With our love,
Elsa, Paul and Paul Alexander

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E-mail Author: elsalerro@comcast.net;plerro@comcast.net