|
Introducing, starting Forward for the Bumblebees Youth Soccer Team.....MORGAN!!!! 
On December 9, 2002 our lives changed forever when our second child was diagnosed inutero with a myriad of birth defects known as Ivemark's Syndrome. Nearly all of Morgan's internal organs were misplaced and some were missing, worse yet, she had developed only half of a heart. We chose to give her life and vowed to seek out the best care possible for her. She was born in Berkeley, California and rushed to Children's Hospital Oakland, where she would begin the journey to live. We knew instantly that Morgan had a fighting spirit and as she has grown and survived 4 open heart surgeries, 4 cath labs, a huge abdominal surgery, a very complicated tonsillectomy, has been hospitalized for very rare and difficult to treat childhood illnesses we are reminded of that spirit and therefore, we live for today!
Morgan is now considered a Congenital Heart Disease SURVIVOR! She has endured a very detailed and delicate palliative repair on her heart. It will never be like yours or mine, but it is just as unique as she is!
She is a fighter, she loves to be alive, she is our hero!
If you have Faith the size of a mustard seed, NOTHING is impossible for you!
Morgan is MOVING MOUNTAINS!!!
We are forever grateful to all the amazing doctors at Children's Hospital Oakland, but Morgan's heart truly belongs to Dr. Mohan Reddy, Dr. Kishor Avasarala and Dr. Hitendra Patel! We thank you for the HOPE of many tomorrows and her beautiful pink lips!

Morgan's Fontan Journey!
 My Montage 3/11/08
~Photo By Alecia Silva~The Portrait Place, Bonney Lake, WA~

Morgan Faith Keane
Born: April 14, 2003 11:56 am Weight: 4lbs. 14 oz. Length: 17 3/4 inches 
Journal
Thursday, October 9, 2008 Where does time go?
I apologize for the lack of updates. I really have been quite busy and when I'm not busy I find myself feeling overwhelmed and to tired to sit down and update....but it's time!
We battled the back to school buggies, but Morgan just couldn't knock 'em so on Monday we went to the doctor and found ear infections and a sinus infection, so we've antibiotics and hopefully by Monday she will be feeling back to normal again! The best part of that visit is that Morgan weighed 32 pounds! SOMEHOW, SOMEWAY on a low-fat diet, she is growing!
We have a cardiology visit next Friday our first since August, so I am eager to check her out. We did see our cardiologist for her illness, but he didn't sneak any peeks even though we all wanted too!
She is doing good in school, even only feeling half speed she still has insisted on going everyday! She looks forward to her homework and seeing her friends and of course riding the bus!
However, I think our biggest news of the month is that Morgan finally got to do something she has ALWAYS wanted to do...Morgan started indoor soccer! She is THRILLED so the picture on her page is her first night of soccer...Her shorts are a size 4 and she has pee wee shin guards on and both are WAY to big...but she feels like a giant when she is wearing them! She loves being on a team and was even more thrilled when the team voted and chose her team name idea...so Morgan proudly plays on the Bumblebees! I won't lie, I have moments of fear watching her out there...last night she yawned SO big I wanted to throw her down on the ground and do some rescue breathing for her...cause yes...when you are heart mom, you are just that freaky and yawning can mean SO many more things...however...I think last night she was just tired! :)
Halloween is quickly approaching and I have an Indiana Jones, a leopard, and a "fifties girl" sprouting in my house and *hopefully* a visit from my parents...Dad are you reading this? It's vacation time!
And that is about it...of course little things have popped up here and there...but it's pretty small stuff. I am trying to be reminded more of my blessings and put the tough stuff into perspective more. Not always an easy task for me because I have to know what is happening RIGHT NOW!
I promise to update after Morgan's cardiology visit...and remember in February this page will be gone for good--we will celebrate Fontanniversary and say good-bye to caringbridge...so please visit our family page!
Read Journal History
Hospital Information: Patient Room: Children's Hospital Oakland Dr. Kishor Avasarala and Dr. Mohan Reddy Madigan Army Medical Center Dr. Robert Puntel
Links: www.marykay.com/angelakeane Angela's Mary Kay Business Website http://www2.caringbridge.org/ca/hadleyfox/ Visit Hadley's page...a fellow Coastie Kid that needs prayers too! http://www.geocities.com/blankets_with_heart A wonderful woman making kids broken hearts warm by making them personalized blankets!
|
|