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It's Been a Pinktastic Year!!!!

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Our lives changed forever when our second child was diagnosed inutero with a myriad of birth defects known as Ivemark's Syndrome. Nearly all of Morgan's internal organs were misplaced and some were missing, worse yet, she had developed only half of a heart.
We chose to give her life and vowed to seek out the best care possible for her. She was born in Berkeley, California and rushed to Children's Hospital Oakland, where she would begin the journey to live. We knew instantly that Morgan had a fighting spirit and as she has grown and survived 4 open heart surgeries, 4 cath labs, a huge abdominal surgery, a very complicated tonsillectomy, has been hospitalized for very rare and difficult to treat childhood illnesses we are reminded of that spirit and therefore, we live for today!

Morgan is now considered a Congenital Heart Disease SURVIVOR! She has endured a very detailed and delicate palliative repair on her heart. It will never be like yours or mine, but it is just as unique as she is!

She is a fighter, she loves to be alive, she is our hero!

If you have Faith the size of a mustard seed, NOTHING is impossible for you!

Morgan is MOVING MOUNTAINS!!!

We are forever grateful to all the amazing doctors at Children's Hospital Oakland, but Morgan's heart truly belongs to Dr. Mohan Reddy, Dr. Kishor Avasarala and Dr. Hitendra Patel! We thank you for the HOPE of many tomorrows and her beautiful pink lips!
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Morgan's Fontan Journey!
View this montage created at One True Media
My Montage 3/11/08


~Photo By Alecia Silva~The Portrait Place, Bonney Lake, WA~


Morgan Faith Keane

Born: April 14, 2003 11:56 am

Weight: 4lbs. 14 oz. Length: 17 3/4 inches


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Journal

Friday, February 6, 2009

It's Morgan's first Fontanniversary!!!!

So hard to believe that a year ago today, we handed our fragile toddler over to the delicate hands of the only man we have ever trusted to hold her heart in his hands, Dr. Mohan Reddy. With little hope to cling too, we trusted that he would give it his all to return her to us. He did, and then some!

This has been an incredibly long year...we battled thirty days in the hospital, nearly 9 months of dietary restrictions, and a mountain of medicine that no little girl should ever have to endure. She has come through it with the grace that only Morgan knows and I have learned so much from her. We have been to the cardiologist every single month this year, sometimes mulitple times a month. She allowed me to poke her to check her coumadin levels without hating me. She gave up chicken nuggets and chocolate...and she did it to live. How many five year olds do you know that have the strength and willingness to do this?

Morgan you are my hero...watching you play soccer and wiggle your very loose tooth have been the highlights of my year. This journey has been long and often painful, yet you continue to smile and see the goodness in this world. I am proud of you...a year ago today your groggy little anesthesia voice said to me "Mommy You's My Best Friend" as they took you from my arms....This morning as you left for kindergarten....and came home to me, I can easily say that "Morgan....You's My Best Friend!"

I love you Pinkalicious Pinky Pie....may you have many more Pink Days!!!

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Hospital Information:

Patient Room:

Children's Hospital Oakland
Dr. Kishor Avasarala and Dr. Mohan Reddy
Madigan Army Medical Center
Dr. Robert Puntel

Links:

www.marykay.com/angelakeane   Angela's Mary Kay Business Website
http://www2.caringbridge.org/ca/hadleyfox/   Visit Hadley's page...a fellow Coastie Kid that needs prayers too!
http://www.geocities.com/blankets_with_heart   A wonderful woman making kids broken hearts warm by making them personalized blankets!


 
 

E-mail Author: akeanemomx3@yahoo.com

 
 

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