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I AM A TWO YEAR HLHS SURVIVOR!

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Our lives changed forever when our second child was diagnosed inutero with a myriad of birth defects known as Ivemark's Syndrome. Nearly all of Morgan's internal organs were misplaced and some were missing, worse yet, she had developed only half of a heart.
We chose to give her life and vowed to seek out the best care possible for her. She was born in Berkeley, California and rushed to Children's Hospital Oakland, where she would begin the journey to live. We knew instantly that Morgan had a fighting spirit and as she has grown and survived 4 open heart surgeries, 4 cath labs, a huge abdominal surgery, a very complicated tonsillectomy, has been hospitalized for very rare and difficult to treat childhood illnesses we are reminded of that spirit and therefore, we live for today!

Morgan is now considered a Congenital Heart Disease SURVIVOR! She has endured a very detailed and delicate palliative repair on her heart. It will never be like yours or mine, but it is just as unique as she is!

She is a fighter, she loves to be alive, she is our hero!

If you have Faith the size of a mustard seed, NOTHING is impossible for you!

Morgan is MOVING MOUNTAINS!!!

We are forever grateful to all the amazing doctors at Children's Hospital Oakland, but Morgan's heart truly belongs to Dr. Mohan Reddy, Dr. Kishor Avasarala and Dr. Hitendra Patel! We thank you for the HOPE of many tomorrows and her beautiful pink lips!
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Morgan's Fontan Journey!
View this montage created at One True Media
My Montage 3/11/08


~Photo By Alecia Silva~The Portrait Place, Bonney Lake, WA~


Morgan Faith Keane

Born: April 14, 2003 11:56 am

Weight: 4lbs. 14 oz. Length: 17 3/4 inches


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Journal

Saturday, February 6, 2010

It's been ANOTHER year!!!!

Today we'll celebrate another year of Morgan as a survivor! These are the days that I longed to celebrate, but never thought I would be given the chance!

I often think back to all of the obstacles that have been placed in our way, and I wonder how we survived...and then I remember how I started this journey with Faith....and I have continued this journey with Faith.

There are so many quotes and stories that have gotten me to this point...The first one is:


"Whoso loves, believes the impossible."
Elizabeth Barret Browning

I will never forget the painful 'moments' that have now become our journey and my only answer has always been, this my child, I love her and I believe in her. I am grateful I never stopped believing!!! She is a prime example of the impossible!!!

Morgan is such a beautiful 6 year old...she is just amazing. Her spirit still is so strong and so full of life. She doesn't want to quit, yet knows that someday she will. She is very aware that this isn't a permanent fix and that one day sooner than later, her heart will tire and her time on earth will be done. Long before Morgan, I have always believed that the life we are meant to live, is not this earthly life and I have tried to teach her about that. I believe that it is because of that she lives fully each day and doesn't fear anything. She knows that there will be a better life--which is sometimes hard for me to imagine because this one is pretty spectacular.

To say I love this girl is an understatement. Yesterday I sat at lunch with teachers from her school and her school principal and I listened to them rave about her. About what a great kid she was, how she makes them all laugh, and how amazed they are by her. Her life purpose is soooo huge. She has touched so many lives. She is a true blessing through and through.

She is her brother's best friend and her baby sister idolizes her. She is an absolute joy to love and raise. I am grateful she's mine!

So today, we celebrate. We don't know what the future holds or how long this repair will last, but I can tell you what, if it ended tomorrow, it was worth it for these amazing TWO PINK YEARS!!!!

I love you Morgan FAITH Keane!!!!
"Faith is to believe what you do not see; the reward of this faith is to see what you believe."
~Saint Augustine

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Hospital Information:

Patient Room:

Children's Hospital Oakland
Dr. Kishor Avasarala and Dr. Mohan Reddy
Madigan Army Medical Center
Dr. Robert Puntel

Links:

www.marykay.com/angelakeane   Angela's Mary Kay Business Website
http://www2.caringbridge.org/ca/hadleyfox/   Visit Hadley's page...a fellow Coastie Kid that needs prayers too!
http://www.geocities.com/blankets_with_heart   A wonderful woman making kids broken hearts warm by making them personalized blankets!


 
 

E-mail Author: akeanemomx3@yahoo.com

 
 

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