|
~*~This is Me-Morgan~*~ 
On December 9, 2002 our lives changed forever when our second child was diagnosed inutero with a myriad of birth defects known as Ivemark's Syndrome. Nearly all of Morgan's internal organs were misplaced and some were missing, worse yet, she had developed only half of a heart.
We chose to give her life and vowed to seek out the best care possible for her. She was born in Berkeley, California and rushed to Children's Hospital Oakland, where she would begin the journey to live. We knew instantly that Morgan had a fighting spirit and as she has grown and survived 4 open heart surgeries, 4 cath labs, a huge abdominal surgery, a very complicated tonsillectomy, has been hospitalized for very rare and difficult to treat childhood illnesses we are reminded of that spirit and therefore, we live for today!
Morgan is now considered a Congenital Heart Disease SURVIVOR! She has endured a very detailed and delicate palliative repair on her heart. It will never be like yours or mine, but it is just as unique as she is!
She is a fighter, she loves to be alive, she is our hero!
If you have Faith the size of a mustard seed, NOTHING is impossible for you!
Morgan is MOVING MOUNTAINS!!!
We are forever grateful to all the amazing doctors at Children's Hospital Oakland, but Morgan's heart truly belongs to Dr. Mohan Reddy, Dr. Kishor Avasarala and Dr. Hitendra Patel! We thank you for the HOPE of many tomorrows and her beautiful pink lips!
Morgan's Fontan Journey!
My Montage 3/11/08
~Photo By Alecia Silva~The Portrait Place, Bonney Lake, WA~
Morgan Faith Keane
Born: April 14, 2003 11:56 am Weight: 4lbs. 14 oz. Length: 17 3/4 inches 
Journal
Wednesday, August 20, 2008 Greetings from IDAHO!!!
YUP, that is right the kids and I are in Idaho...we are at the start of another deployment, so I thought it would be best to keep the kids busy with Grandma and Grandpa. Plus, it is a good opportunity to get stuff done for school with help!
We've enjoyed a great week thus far, although, it appears we brought our Seattle rain with us, so we're not spending nearly as much time on the beach that we thought we would be! Oh well.
Morgan had a cardiology appointment before we left and there is nothing but good news! The best being that we don't have to go back until OCTOBER! We are SO thrilled! I can't even tell you how great it was to hear the cardiologist say that she looked awesome!! We're not doing anything different, just keeping up with the diet and meds and letting her adjust on her own.
We'll miss Daddy this fall, I am so sad he has to miss Morgan starting school. So many difficult days our only dream was to see her go to kindergarten...it seemed like that was a HUGE dream, an impossibility we would never see true...now it is just 13 days away! Wow. I didn't cry when Braeden went to school, but boy do I envision Sept. 2nd being a very rough day for me!
Alright, off to fish my little ones out of the hot tub with Grandma...they would keep her in there all night if they could!
I probably won't have much news till school starts but then I'll have pictures!
Read Journal History
Hospital Information: Patient Room: Children's Hospital Oakland
Dr. Kishor Avasarala and Dr. Mohan Reddy
Madigan Army Medical Center
Dr. Robert Puntel
Links: www.marykay.com/angelakeane Angela's Mary Kay Business Website
http://www2.caringbridge.org/ca/hadleyfox/ Visit Hadley's page...a fellow Coastie Kid that needs prayers too!
http://www.geocities.com/blankets_with_heart A wonderful woman making kids broken hearts warm by making them personalized blankets!
|
|
