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Emma

Welcome to Emma's Web Page. Emma was diagnosed with MLD on December 30, 2003. After 3 weeks of testing, she was admitted as an inpatient to Duke University Medical Center on February 9, 2004. Emma had her transplant on February 19, 2004. Emma became an outpatient in late March. She returned to California on June 11, 2004.

This page is designed to keep our friends and family updated on Emma's progress.

For information on donating toward the numerous extra expenses incurred, please see the link to Emma's Foundation located near the bottom of this page.

Please feel free to sign the guestbook often. We would all love to hear from you!

Also, check out Emma's smile quilt at: http://smilequilt.com/emma.html

Journal

Thursday, July 2, 2009 4:57 PM CDT

Hi --

I have a couple reasons for updating today....

Tomorrow is Emma's 14th Birthday!! Happy Birthday Emma. You are a beautiful young lady & such a pleasure to be around.

Emma had her first big adventure outside of the country this past week. My parents took all of us to Puerto Vallarta, Mexico. There were 21 of us in total (my siblings, their spouses & kids, my parents & grandmother). We had a fabulous time in Puerto Vallarta. I downloaded some pictures yesterday, so I'll try to post some this weekend. Emma had a great time hanging out with her cousins, having strawberry daiquiris, swimming in the pool and ocean, and much more. As we were at an all inclusive resort, she had fun ordering whatever she wanted any time of the day. She typically had a bean & cheese burrito for breakfast. She often wanted steak for lunch or dinner. As she hadn't been eating much before the trip, we allowed her to have more steak than we would normally, but she's on vacation, right? She had a blast, as did the other kids. Emma actually said that she wanted to move there! I think she likes the warmer weather & the humidity.

Emma starts summer school next week. She goes through the end of July. She'll have o/t, p/t, speech, etc. in the few hours that she's there. It starts at 7:30am, which will be early for all of us!

We hope that you all have a safe & wonderful 4th of July.

I also wanted to ask for your prayers for the daughter of a friend/coworker of mine. Her daughter Allison sustained a Traumatic Brain Injury on April 10. She is still in a coma. If you have a moment, please leave Allison a message. They regularly read the guestbook to her, in hopes that she will come back to them soon. http://www.caringbridge.org/visit/allisonangove

Erin

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Hospital Information:

Formerly: Duke Pediatric Bone Marrow and Stem Cell Transplant



Links:

http://www.MLDfoundation.org   Good site for MLD information
http://www.EmmasFoundation.org   Emma's MLD Foundation
  


 
 

E-mail Author: family@EmmasFoundation.org

 
 

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Site Sponsored by:
Duke Pediatric Bone Marrow and Stem Cell Transplant

Duke Pediatric Bone Marrow and Stem Cell Transplant Program

Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent.  This information does not confirm that anyone is or was actually a patient at any facility.
 
 
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