Emma Welcome to Emma's Web Page. Emma was diagnosed with MLD on December 30, 2003. After 3 weeks of testing, she was admitted as an inpatient to Duke University Medical Center on February 9, 2004. Emma had her transplant on February 19, 2004. Emma became an outpatient in late March. She returned to California on June 11, 2004.
This page is designed to keep our friends and family updated on Emma's progress.
For information on donating toward the numerous extra expenses incurred, please see the link to Emma's Foundation located near the bottom of this page.
Please feel free to sign the guestbook often. We would all love to hear from you!
Also, check out Emma's smile quilt at: http://smilequilt.com/emma.html
Journal
Tuesday, March 26, 2013 10:07 AM CDT After an extended absence on Emma's Caringbridge site, I thought it may be a good time to add another entry. Emma is having surgery today at Children's Hospital Oakland. She is having a femoral osteotomy (hip surgery). Her surgery is scheduled for 1:30pm. She should be out from surgery after about 3.5 hours. The same doctor who did her surgery for her back (due to severe scoliosis 2 years ago) will be performing her surgery today.
Emma is now nearly 18 years old. She attends the local high school where she is in the Special Education classroom and also enjoys singing in the school choir. She is a wonderful young woman of whom we are very proud.
Erin (& Greg)
Read Journal History
Hospital Information: Formerly: Duke Pediatric Bone Marrow and Stem Cell Transplant
Links: http://www.MLDfoundation.org Good site for MLD information http://www.EmmasFoundation.org Emma's MLD Foundation
|