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From Cayucos, California
Welcome to Matthew's web page. This web page has been made to keep our family and friends updated about Matt's progress and fight against Neuroblastoma.
Matthew was diagnosed at almost 2 years old with Stage III Neuroblastoma on September 26, 2002. He has had 7 rounds of chemotherapy, surgery, a stem cell transplant, 12 radiation sessions, a second surgery at MSKCC, and lastly mononclonal antibodies ch14.18 with IL-2. Matt finished treatment in Jan. of 2004. We have ten years from the time Matt was NED(no evidence of disease)so we are counting down until 8/14/13-Until then we are living for the day! We would love to hear from you. Please sign our guest book!
Thank you, God, For my child. It was your love that initiated this life, brought it to a successful birth, and now sustains it through your power.
I marvel at the miracle of modern medicine that allows my child to live. Your wonders are worked through the skilled hands of the physician, the delicate care of nurses and the incredible technology that is your gift to this age. Yet when I look at my child with the array of tubes extending from his body, I am frightened, God. I realize how fragile my child's life is. I feel so powerless, and fear lest the life you have given be taken from us.
Your world is filled with people in crises, God. Each time they came to you for help your response was, "Fear not." You asked merely that they put their faith and trust in you. Help me, God, to trust. Let me remember what you said about the birds of the air, the lilies of the field, and human life. If you care for the grass of the field which is here today and gone tomorrow, how much more will ou care for my child, who is made in your very image?
Guide the hands, minds and hearts of those who serve my child in this time of need. Bring my child to full health that I might parent him to adulthood. Alleviate my fears and bring me your peace.
Amen
God, please bless our family and all the families fighting this terrible disease. Please give our children the miracle they need to that they can show the world the power of your love.
He's My Son
by Mark Schultz
I'm down on my knees again tonight
I'm hoe'n this prayer will turn out right
See, there is a boy that needs your help
I've done all that I can do myself
His mother is tired
I'm sure you can understand
Each night as he sleeps
She goes in to hold his hand
And she tries not to cry
As the tears fill her eyes
Can you hear me?
Am I getting through tonight?
Can you see him?
Can you make him feel all right?
If you can hear me
Let me take his place somehow
See, he'e not just anyone,
he's my son
Sometimes late at night I watch him sleep
I dream of the boy he'd like to be
I try to be strong and see him through
But God, who he needs right now is You
Let him grow old
Live life without this fear
What would I be
Living without him here
He's tired
And he's scared
Let him know that You're there
Can you hear me?
Can you see him?
Please don't leave him
He's my son
Journal
Thursday, July 3, 2008 8:27 AM CDT Well hello to all.
We just got thrown into a bit of stress for the last couple of weeks. Sloan Kettering called about Matt's heart. They were concerned about the EKG that he had. They recommended we go see a cardiologist because of a symptom called “hypertrophy” (hardening of his artery). If anyone can remember that sunken feeling when something comes back that you dread, then you can understand our feelings. Debbie and I have been doing really well with everything and now to go back to this was like starting over. Now the good news, we met with the staff at Stanford and Central Coast Children’s Hospital. They tested Matt again and concluded that the test Sloan Kettering did was off because Matt was sick at the time. In short, Matt is once again a normal 7 year old and Debbie and I are once again normal parents. Thank the Lord.
This is all for now but promise to update often. I guess the scares that we experience in life are sometime meant to put us on the correct track.
Thom and Debbie.
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