I have started a web page for Kiki for family and friends to keep updated on his condition and things that he has been doing. Kiki was diagnosed with Accute Lympocytic Leukemia(ALL) type B on January 16, 2004. He relapsed in January of the year 2005. He finished his 16th day of radiation on July 19, 2005. Kiki relapsed the 3rd time on Dec 17, 2007.
Kiki loves the Simpson's. It makes him laugh so hard, I love it. The Simpsons come on here at 7pm and 11 pm. And I don't think he has missed an episode. I am so grateful for the Simpson's. Because it's one of the only times where I can really hear him laugh! Kiki aka Henry is in his third remission of Leukemia now in 2008.
Take care and God bless you all!
Here are the normal blood counts so you can understand what the normal is and what Kiki's counts are.
Late last night I found myself beside my childs bed; He was sleeping peacefully as I felt his fevered head. In my mind debate began, as I wondered what was best; Should I wake him up for medicine or leave him there to rest? To wait would mean three hours to let the fever rise; But waking him from peaceful sleep to me seemed less wise.
So I sat there in the darkness and asked a question silently, "what do I do?" I asked myself, thinking no one else could see. And as I asked the question, my Father must have heard;In a still small voice he answered my silent spoken word. He said, "I'll take care of him for you; You know that I am capable and you know I love him too."
So I left the two together and when I got back to my bed; My mind wandered as I prayed and in my prayer I said, " Dear Lord, if I've done something spare him pain and let me see;
And my Father gently told me, " this sickness is not from me." My mind was still not focused and my prayer kept rambling on; Until I said again, "Dear Lord, have I done something wrong?" Do I not appreciate this son you've blessed me with; "Have I not cared well enough for this most precious gift?"
Again my Father answered with much patience and great love, " I told you the child's sickness is not from above. This isn't me I told you , but if you'll just leave it in my hands; I'll work it for good like always and fit it into my great plan." And as my Father promised, He took care of my son; The healing wasn't overnight but I know the battle's won. When my Father comes and asks you to leave someone in his care;
The best thing you could ever so is just to leave them there. You may not understand it or know exactly what's in store; But no matter how much you love them, My Father loves them more. ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
He's My Son-By Mark Schultz
I'm down on my knees again tonight I'm hoping this prayer will turn out right See there is a boy that needs your help I've done all that I can do myself His mother is tired I'm sure you can understand Each night as he sleeps She goes in to hold his hand And she tries not to cry As the tears fill up her eyes
Can you hear me? Am I getting through onight? Can you see him? Can you make him feel all right? If you can hear me Let me take his place somehow See he's not just anyone He's my son
Sometimes late at night I watch him sleep I dream of the boy he'd like to be I try to be strong and see him through But God who he needs right now is You Let him grow old Live life without this fear What would I be Living without him here He's so tired and he's scared Let him know that You're there
Can you hear me? Can you see him? Please don't leave him He's my son
If you would like to donate blood in Kiki's name you can visit The San Diego Blood Bank. To donate in his name you will need this code: EH04. Kaiser Permanente also has a blood bank and they are in need of platelets. Remember to give the gift of life! Please click on logo below for information on becoming a donor.
"Pain is temporary. Quitting is forever" Lance Armstrong
Some things I have learned about Life, Leukemia and Love 1. It is a shame that we take our family?s love for granted until something as horrible as leukemia makes us realize how valuable that love is. 2. It is hard to look at your child?s baldhead. But when you are holding him tight it is warm and soft and makes you remember him as a baby. 3. True friends never say things like ?I am sorry I haven?t called but it is so hard for me to talk about it?, true friends know that it?s hard for ME to talk about it too but that I need to sometimes. 4. So much of what I used to consider important in life is now insignificant. You can?t cuddle a big fancy car, you can?t kiss a fancy wardrobe and a nice house won?t crawl in you lap, put their tiny soft hand on your cheek and say ?I love you Mommy.? 5. I find that I no longer admire celebrities and sports figures. I admire doctors and nurses that work long hours to save your child?s life. They are the ones that deserve the million dollar paychecks. 6. I learned that only a child would greet with a smile, a hug and a kiss, the person that sticks a needle in their spine once a month. And only an oncology doctor or nurse is deserving of such admiration. 7. Heroes don?t save lives on movie screens, they save lives by donating blood, platelets and bone marrow. 8. The most courageous story I know of is that of a young teen age boy who after a second relapse decided that he wanted to end the battle on his terms and with dignity and so halted all treatment and died at home in peace. 9. The second most courageous story I know is of the mother that let her son choose to end the battle on his own terms and die at home in peace. 10. .... 11. Just when you think you can?t go on life will throw you a lifeline. A hug from a friend, a phone call from a sister, a pat on the hand from a kind nurse. 12. It is okay to let your child see you scared and crying. How else would they know that it is okay for them to be scared and to cry? 13. There are many ways to cope when your child has cancer but the very best is to hold them tight and know that love may not conquer all but for now it?ll do.
Just being goofy!
Making cookies for Santa!
Limo Ride to the Pointsettia Bowl!
Henry and his teacher, Miss. Karen
Henry with his sisters and doctors
Henry with Katie Rose and Jimmy
Sea World Henry and Gabriel Iglesias aka Fluffy
Journal
Thursday, December 15, 2011 11:29 AM CST
Well, it's been awhile since I have last updated. Just to catch everyone up, I have still had my struggles with Kiki not being here. It's really hard to explain, but, I know a lot of people don't understand, my heart aches everyday that he is not here. I find happiness in my daughters and I live his life through them. They are my princesses and I love them. Stephanie is 11 1/2 and is still playing softball. She loves it. She is growing so fast. Abby is growing so fast too and is very smart. She loves to read and play with her dolls and barbies.
This is an extra hard time of year becuase this was his favorite time, as you all know. Christmas and his birthday so close together.
I just wanted to wish everyone happy holidays with your families and hope your New Year brings much love, happiness, and joy.
Don't sweat the small stuff. God always makes everything better!
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