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Katie Rose Hann 
Welcome to Katie Rose's Web Page. It has been provided to keep family and friends updated about her progress.
Katie Rose was diagnosed on Feb. 19th, 2005 with ALL Pre-B cell leukemia.
Katie Rose was born May 5th, 1996. She is the 5th child of 10 born to Keri and Ritchey Hann. She was born with Diplomyelia. (A split spinal cord) She walks and plays just like other kids. She has had 9 surgeries on her back and legs before diagnosis of ALL. Since diagnosis she has had 5 addition surgeries and a lung washing. Since diagnosis she has had a total of 20 transfusions; and 109 inpatient days including spinal surgery. She has had numerous clinic, OT and PT visits.
We are finished with Chemo treatment. Our last official dose was May 12, 2007! We will continue to be seen every 2 weeks for blood work and can now focus on treating Katie Rose other medical problems. We pray we never see leukemia again!
Katie's Leukemia Journey
This is a video to show you some of
Katie's treatment with Leukemia
This will give you an idea of what’s involved with
Leukemia chemo therapy process.
Press Play to Begin Video
Leukemia
General info on Leukemia
Leukemia is a cancer of the blood and bone marrow. The bone marrow is where cells are formed. They start out as stem or baby cells. Normally these cells would form into healthy white cells. But with Leukemia, these cells don’t mature. They call these “blasts”. These “blasts” multiply very quickly and crowd the good cells. The blasts do not have the infection fighting properties that the normal mature cells have. The other cells, red blood (carry oxygen to the brain), and platelets (clot to prevent bleeding) are decreased as well. There are different kinds of childhood leukemia; Katie Rose is in remission from Acute Lymphoblastic Leukemia. This type of leukemia comes on suddenly and spreads and attacks very quickly. Katie Rose prognosis is considered very good, it is at 80%. That is consider great but as a parent, 80% isn’t good enough. There needs to be a 100% cure!
Common questions I get are I thought Katie Rose was in remission so she must be fine now. Katie Rose is in remission. Remission means that the symptoms of leukemia have disappeared and there are less than 5% blasts found in the bone marrow and blood. If her treatment was stopped with less than 2 years 2 months of chemo the leukemia would come back in full force. It only takes one Leukemia cell for this cancer to come back. We have billions of cells in our bodies, but all it takes is one. It would multiply like crazy and the cancer would be back. The chemotherapy must continue for 2 years 2 months in order to kill all the bad cells that cannot be seen with the human eye.
Some have asked us about bone marrow transplants. I hope that Katie Rose will never need one! A transplant would mean that her chemo therapy didn't work and we hope we don’t ever have to worry about that.
Katie's end of treatment bonemarrow biopsy and aspiration had a lot of conterversity. We were told that she was showing signs of early relapse to normal. There were several conflicting results considering her cell gate. For now we will just monitor her blood work and if it becomes necessary we will have another bone marrow test done.
Absolute neutrophil count (ANC)
The absolute neutrophil count (also called the absolute granulocyte count or AGC) is a measure of the body's ability to withstand infection. Generally, an ANC goal for chemotherapy is 750-1500. An ANC of under 500 usually means you need to take precautions (wear a mask, no fresh fruit or vegs,)
Blood Counts Normal Range
WBC 4.5-14.5
RBC 4.0-5.2
Hemoglobin 11.5-15.5
Hematocrit 35-45
Platelets 130,000-400,000
Katie Rose has required several transfusions to survive. There is a SHORTAGE of blodd right now! Without blood donations, Katie wouldn't be here today. If you think about it, how often does an individual have the opportunity to save someone's life? Please consider donating blood: It is the gift of life! Please click on logo below for information on becoming a donor.
Katie Rose Loves Happy Mail!
Katie Rose with post cards from all over the world. Katie is still collecting postcards. So if you would like to send one, please send them to her home address.
8136 Starview Drive, El Cajon 92021
-Thank you all so much!
We would like to THANK YOU for the Love and Support you have shown to our family!
It's has been an emotional roller coaster ride, and we've have found out that this just isn't something you can get through alone. We are so grateful to all of you for your continued love and support. We've learned so much in these past few years, like how much people really care for one another, what true friendship means, the kindness of strangers, the true meaning of life and death, and that God is working in our lives. Thank YOU for the support you have given us.
THE HANN FAMILY
This is the book Katie Rose wrote when she had back surgery.
It is in slide show format. If you know anyone that can publish books
please let us know as Katie Rose would love
all kids to be able to have this book as a gift before surgery.
Click on book to read it.
Songs of Love made a fantastic song for Katie Rose
If you would like more info
or to donate click on Songs of Love logo
I put together a snapshot video with her song made from Songs of Love.
Click to watch video and hear her song!
This was made in 2006
When Katie Rose was bald she got a beautiful hair piece donated from
LOOKS LIKE ME
There are before and after pictures of Katie Rose
click on logo below to check it out!
  
Katie Rose Make A Wish Trip!
Dec 2005
We were very fortunite to be able to go on a Make a Wish Trip to Disney World. This was a trip of a lifetime and we will alwas treasure the memories from this trip.
The video will take a minute to load but worth it!
Press Play to Begin Video
This is one of Katie Rose's passions and mine also!
Below is a slide show of
Art Therapy Program at the San Diego Zoo and Kaiser hospital being redone in the rainforest theme!
If You are interested in The Children's Rainforest
and would like to become a member or check out there site
Click on logo above
Here is a recent photo of Katie Rose- Taken Jan 2008
Journal
Tuesday, April 29, 2008 10:56 PM CDT Hi, Katie had her appointment today. Her Blood work was done and looks great! The doctor ordered a UA and she is positive for nitrates so we really need to get on a regular cathing program. Katie told the doctor she didn’t want to wear her leg brace anymore, and the doctor explained it was for her safety and she will have to deal with it. Katie had a sleep study last week and it went perfect. I was so happy that she was healthy at the time so it was an accurate test and she did well. So now we know she has a reactive airway and colds and Asthma set her off. So I think it was helpful information.
We have had some warm days and the kids have been swimming everyday.
We have been busy with different events and I got to enjoy a teddy bear picnic with all my girls. We also went to the parade. The older boys play soccer and we now go to games every Saturday night. This coming weekend will be Katie’s 12th birthday (May 5th) we are going to a luau and sailing on Sunday the 4th with star light foundation. I promise to put up photos and up date next week after her birthday.
Keri
Katie Rose
Katie,Thomas,Madison,Sarah,Makayla, Rebecca
Katie Ready for her sleep study
Read Journal History
Hospital Information: Katie Rose is at home!
Links: http://www.caringbridge.org/ca/jimmy Jimmy
http://www.caringbridge.org/ca/kiki Kiki has relapsed please visit his page!
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