Isabelle Lamoureux

Welcome to Isabelle's Web Page. It has been created to keep people updated with Isabelle's progress as she goes through an unrelated bone marrow transplant at the Sainte-Justine Hospital in Montreal.

Isabelle is a beautiful blue eye blond, she is 3 years old with lots of energy. She was diagnosed at birth with Fanconi Anemia, a rare blood disorder, which leads to a bone marrow failure in 98% of the cases.

Bienvenue au site internet d'Isabelle. Ce site a été créer afin que tous puisse suivre les progrès d'Isabelle. Elle recevra une greffe de la moëlle osseuse à l'hôpital Sainte-Justine à Montréal.

Isabelle est une jolie petite fille aux yeux bleus et aux cheveux blonds, elle a 3 ans et a beaucoup d'énergie. Elle a été diagnostiqué à la naissance avec l'anémie de Fanconi, qui est une maladie génétique rare qui se dégénère dans 98% des cas en une insuffisance de la moëlle osseuse.

Journal

Tuesday, January 27, 2004 7:53 PM CST

Sorry it has been quite a while since my last update. Isabelle is doing very well so well in fact that doctor Fernandez has decided to start to reduce her anti rejection medecine, this is a big step since she is taking 4 more meds because of that one, others will soon follow. Her hair has grown back much fuller than before a little darker too they are also curlier she looks just like an angel. She is full of energy ,wish she could give me some, and people that see her do not believe that she is still recovering from a bone marrow transplant. We had a few scares due in part because of Sophie she goes to a day care when Isabelle and I go to the hospital, so one day a parent called and mentioned that her son had the chickenpox and Sophie happened to be there, Chickenpox is deadly for someone recovering from a bone marrow transplant since they do not have the immunity to help fight the virus, so ended up buying 2 plane tickets to bring Sophie to my mother home we had to get Sophie out of the house before she became contagious. The day before our flight the parent went to see her doctor and he told her that it was NOT chickenpox we were so happy for that news, so we we're able to change our flight date for december for Isabelle follow up visit to Montreal. Since we came back home it is a little hectic because we have to be so careful has to what Isabelle eat everything has to be fresh and no restaurant until she is completely off of her meds, needless to say she misses her Kid meal from Mc Donald's, but I promised her that the day she will be allowed to eat in a restaurant we will make it a family big event. Until next time I wish you all many thanks for keeping us in your thought and prayers I am positive that it is because of so many caring friends and people that Isabelle is doing so well .

Look at past journal entries

Hospital Information:

Sainte-Justine Hospital
3175 Chemin de la Cote Sainte-Catherine
Montreal Quebec H3T 1C5

Email address  : lamoureux@hfx.eastlink.ca

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