Mike Taylor

My name is Teri Taylor. Our fourteen year old son, Mike, was born with Intestinal Lymphangiectasia (IL), which is an incurable life-threatening illness.


Mike is treated by going to the hospital every three weeks to receive infusions of albumin and calcium. He has had seven surgeries and over 200 infusions!
Mike will need these infusions, or what he calls "tune ups", for the rest of his life in order to stay alive! IL is so rare, that we have only found 14 patients, like Mike, in the world!


Children's Hospital Central California has helped us to set up this web site. We are seeking doctors who have treated IL or patients with IL in order to find new treatment options or even a cure!


Mike has a wonderful positive attitude and he tries to live a normal life, even though he spends 30 days a year at the hospital. He is a ninth grader who loves to play soccer and is helping to raise money for our local Children's Hospital.


We are asking everyone to sign our guestbook and to pass Mike's Story along to everyone in your address book. (Even though you may not know of someone with IL, you could be the link that leads us to our goal!) Mike is our borrowed angel and we would like to keep him for a long time. Wouldn't it be great, if together, we find a cure for Mike!

Our heartfelt thanks to each of you who are helping us in this way. We appreciate all of the prayers and kind words of encouragement. We are so grateful to have such wonderful family and friends!

Best Wishes,
Teri, Ken, Joe, Brian, Steve and Mike




Iron Mike Song
Songs of Love
src="http://home.comcast.net/~Taylor.Theresa/01_Track_1.wma" autostart=true loop=true height=40 width=170>






MIKE'S SOCCER ARTICLE October 2006

Karl Dewazien, CYSA State Coaching Director, put Mike's Story and "Iron Mike" Song on his web site. If you would like to see it, just go to:

www.fundamentalsoccer.com


MIKE WAS ON WORLD TALK RADIO!!

Brian (Doc) Halliday interviewed Mike about soccer and he was able to share his story. It was heard in 35 countries, around the world! We are hoping that a doctor or patient who knows something more about Intestinal Lymphangiectasia (IL), will hear the show and contact us.

If you would like to hear the show, just go to:

http://www.worldtalkradio.com/show.asp?sid=26

look under - recent shows and click on Inside Soccer on 2006-04-29. Then click on segment 11 and you can listen!



Some of my favorite links are:

www.findinggodinautism.com
www.BurpieBabies.com


Here are a few of Mike's friends that you may want to visit and leave a kind word of encouragement.

http//www.caringbridge.org/visit/darla

www.christopherdiamond.co.uk
http://www2.caringbridge.org/ca/dannymunster
http://www2.caringbridge.org/ca/parkerfritsch

Journal

Monday, May 11, 2009 4:32 PM CDT

Hi Everyone,

I took Mike in for his "tune up" over the weekend. He is doing well. The doctor wants Mike to come in more frequently for his treatments, every 2 weeks instead of every 3. They have also increased the amount of albumin he is receiving by 50%. Even though he is coming in more frequently and receiving more albumin, his labs are still low. The levels that Mike maintains are almost the same even with the extra help.

Mike continues to have a wonderful attitude! He said that he is sure that this will help him to feel better. Maybe his numbers will go up over time. I am praying for that!

The boys gave me a wonderful Mother's Day. It was 80 and sunny and we all just enjoyed being together!

I will be a SURVIVOR for the American Cancer Society's "Relay for Life" this Saturday. Looking forward to doing my lap with the others.

Have a great week and thanks for checking in on Mike!

Best wishes,

Teri, Ken, Joe, Brian, Steve and Iron Mike

Hospital Information:

Patient Room: Craycroft

Children's Hospital Central California
9300 Valley Children's Place
Madera, CA. 93638-8762
(559) 353-3000

Links:

E-mail Author: Taylor.Theresa@comcast.net

---

 

Your gift will help millions of people stay connected with friends and loved ones during challenging times.

---

 

This page has been viewed 55655 times.

Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent.  This information does not confirm that anyone is or was actually a patient at any facility.